using social media to recruit and retain study participants ......using social media to recruit and...
TRANSCRIPT
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Using Social Media to Recruit and Retain Study
Participants – the CRC’s perspective
Presented by:
CTSI Research Education, Training and Career Development (CTSI-Ed)
Nick Rosener, CSMS,
President, Tech Nick
Creative
Daniel Holsinger, Community Health
Coordinator, SPH
Melissa Mueller, MPH,
CTSI Recruitment Service
Manager
Jeffery Perkey, MLS, CIP, IRB
Research Compliance
Supervisor
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Recruitment
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Targeted Ads
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Good Luck!
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Hypothesis-Driven
vs.
Not-(Totally)-
Hypothesis-Driven
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What are
your
brand assets?
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Brand Hierarchy &
Persona
Brand Awareness
Brand Capital
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Facts tell,
but
stories sell.
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Questions?
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Human Research Protection Program
Using Social Media to Recruit
Study Participants – IRB
Guidelines
Jeffery Perkey, CIP, MLS
Research Compliance Supervisor
[email protected] 612-626-5654
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Human Research Protection Program
Common Types of Internet Research
• Ethnography
• Focus Groups
• Qualitative Research
• Interviews
• Web-based Experiments
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Human Research Protection Program
Internet Research Survey Tools
• Survey Monkey
- Cloud based
- Online Panel
• Qualtrics
- Cloud based
- Online panel option
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Human Research Protection Program
Concerns Relevant to IRBs
• Is information posted online
automatically in the public domain?
• How do IRBs assess the expectation of
privacy?
– Terms of Use/Terms of Service
– Distinction between anonymous &
confidential
– Provide information about the environment
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Human Research Protection Program
Subject Recruitment
• Facebook Page
• YouTube video
• Matching algorithm on social media
sites (e.g. PatientsLikeMe)
• Consider the information that will be exchanged with
prospective subjects, use a dedicated site that is
individual for all other purposes
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Human Research Protection Program
Recruitment is part of informed consent
• Study title, purpose, protocol summary,
etc.
• Description of research risks/potential
benefits
• Solicitation of identifiable private
information (e.g. eligibility survey)
• Recruitment plan
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Social Media CRC seminar
Melissa Mueller, MPH
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Social Media Tips/Considerations
• Engagement versus advertisement
• Does social media make sense for your study?
• Relevancy: what does this look like and do you
have the resources to achieve it?
• Budget considerations: do you need staff,
student worker, paid promotion, etc?
• Use an existing platform
• Consider disease specific versus study specific
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Social Media Resources
• U of MN Social Networking Guidelines, Basics of social networking,
What to know before using social networking, Tool comparison
chart: https://www.ur.umn.edu/brand/requirements-and-
guidelines/social-networking/
• IRB Guidance on Using Social Media for Recruitment of Research
Subjects:
http://www.research.umn.edu/irb/guidance/documents/SocialMediaf
orRecruitment.pdf
• Social Media for Researchers: Tips for #Success:
• http://www.ctsi.umn.edu/news-and-events/events/past-events
• Penn Social Media and Health Innovation Lab:
http://www.med.upenn.edu/socialmedialab/
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CTSI Recruitment Resources
• CTSI Recruitment Center
– Consultations
– Leverage recruiting technologies, University
networking, and community partnerships
– Feedback on recruitment plans
– Connection to informatics experts and clinical
data
• Contact Research Navigator: [email protected]
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Questions for the panel