using social media to manage chronic illness
DESCRIPTION
TRANSCRIPT
TECHNOLOGY-POWERED GRASSROOTS EMPOWERED
PATIENT MOVEMENT via “Health Care Social Media” “#HCSM”
Presented by:
Michael A. Weiss / www.HospitalPatient.com “Partnership with Patients Summit”Society for Participatory Medicine
September 21-23, 2012 / Kansas City, MO
CD is a form of “Inflammatory Bowel Disease.”
It is a “Broad Spectrum,” Autoimmune Disease that is Chronic and Incurable.
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Strategy for using HCSM Platforms:
1. Reference Tools2. Community Building of Similar “Souls”
3. Healthcare/Personal Interactivity
Diversify HCSM PlatformsStart with Broad Platforms
Setup Technology to bring the info to YOUSubscribe to Blogs and PodcastsEngage in Interactive Platforms
Become Assertive & Empowered Patient!!!!!
Wikipedia – Search “Crohn’s Disease”Good BROAD STARTING POINT
Crohn’s & Colitis Foundation – “CCFA”Find the National “Foundation” – if any
Healthcare “Portal” WebsitesGot a question?
WebMD is better than Wikipedia!!!!
Social Networking @ Virtual Mayo Clinic!!!
Yahoo! Groups “Living with Crohn’s Disease”
Setup Technology to have info come to YOU; emailed Daily Digests;Become a part of Virtual Community.
Google Alert – “Crohn’s Disease”Use Technology to keep YOU up-to-date w/ News & the Web
Subscribe to Blogs via “RSS” FeedsReally Simple Syndication – Outlook, Google Reader, email, etc.
Use Free RSS Aggregator Programs - NO SPAM
Subscribe to Podcasts/VlogsUsing HCSM to get more “Specific,” Automated & PREPARED
Crohn’s/Medical VIDEO YouTube Vlog: “The Medical Minute”
Sports AUDIO iTunes Podcast to comfort me in Hospital: “The BS Report”
Facebook Groups/CommunitiesCrohn’s-Specific or Patient-Specific
Instantaneous Engagement – “Who’s had success using the drug
“#Humira” 4 #Crohns?”
Twitter using “TweetDeck”
Maximizing Twitter 4 #HealthcareHashtags & Tweetchats
Hashtags organize Tweets by keyword
HealthCare TweetChat Schedule#HCSM – 9 PM EST, Sunday Night
Best 60 Minutes on Sunday Night!Now, Twitter MEETUPS!!!!!
Popular “Hashtags” #Crohns – catch-all for Crohn’s Disease tweets #Crohnie – person with Crohn’s Disease #Crohnology – member of Virtual Crohn’s
Community #IBD – tweets related to Inflammatory Bowel
Disease #health20 - tweets related to the next phase
of health delivery, Health 2.0 #mhealth - tweets related to mobile health #hcr - issues related to health care reform #hcsm - tweets about “health care social
media” #hcsmeu – tweets about hcsm in Europe #hcsmanz - tweets about hcsm in
Australia/New Zealand #hcIT - tweets related to health care
technology
Virtual Patient CommunitiesConnect, Learn & Commiserate
Crohnology.com –Crohnies
Rheumatoid Arthritis Folks
Interact w/ other Crohn’s Patients
Google+ Crohn’s Disease “Hangouts” & Support Groups
Join a Linkedin “Group”“Professionals w/ Crohn’s”
Free-form Blog & NetworkingWords, Pictures and Healthcare “Tags”
Adding Equipment Attachments to Mobile Phones to make them Medical Devices
Utilizing Mobile Phone Applications
mHealth activities can be seen everywhere in public health, across the public and private sectors and developed and developing countries. Examples of successful mHealth interventions include:
◦ Diagnostic technologies such as EKGs, microscope attachments to camera cell phones
◦ SMS (texting) platforms that send reminders and educational messages designed to help smokers quit
◦ Mobile Locator Applications that use mapping technology to provide information about the nearest locations providing health services
mHealth – Using Mobile Phone 4 Healthcare
The “CellScope” Result of Equipment Attachment to a camera-enabled
mobile phone that can take detailed images & analyse them to diagnose/monitor infectious diseases such as
Tuberculosis.
Mobile Phone Applications “ZocDoc” – Traveling in Big City & Need Doctor
“Lostit!” – Keep eye on Calories & Exercise Time
More Productive Doctors Time Efficient & Cost Effective Healthcare
“Transactions” Less Gross Inefficiencies in Hospitals Better Healthcare for more People Healthcare Insurance Cos. no longer Oil
Cartels!!!!!!
Result of HCSM Patient Grassroots Movement
The Empowered & Assertive Patient