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Using Big Data Tools to Mine and Map the Patient Journey AN XL ALLIANCE COMPANY As featured during the DTC National Conference 2016

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Using Big Data Tools to Mine and Map the Patient Journey

ANXLALLIANCECOMPANY

As featured during the DTC National Conference 2016

In our pursuit of

Personalization Filling health disparities Relevant content Patient engagement Cultural competence Better outcomes

What is keeping us from getting the right insights at the right time to

make the right decisions?

Data

most

The U.S. is the

expensive country to conduct market research -ESOMAR

Methodology Legal approvals Questionnaires Screening Recruiting Limited diversity Traveling Downtown Long waits $$$$$$$$$$$$$$

One in three American adults have gone online to figure out a medical condition

Source: Health Online Pew Research

Source: Health Fact Sheet- Pew Research

82% of internet users say they have gone online to find others and interact with

those who might have health concerns similar to theirs.

46% of caregivers go online for a

diagnosis

Could we turn these discussions into

actionable insights?

A proprietary big-data methodology that delivers actionable insights from unbiased, unfiltered and real-time digital discussions. Imagine having the ability to map motivational, cultural, emotional and behavioral drivers and barriers across segments through their patient journey. www.culturintel.com

9

YES!.

WHAT IT IS…

Quantitate evaluation of qualitative organic data

Organic, unbiased, unfiltered,

real time

Observational based on very large data sets

Enhance to existing research

protocols

WHAT IT IS NOT…

Yet another social listening tool

Predictive and projectable

Replacement to quantitative research

COLLECT Using an arsenal of tools, digital discussions are collected from topical sites, reviews, blogs, content sharing, message boards, comments and social media.

ANALYZE Artificial intelligence, keyword Boolean, search analysis, keyword spiders, site scraping, text analytics, machine learning/tagging, clustering/relational adjacency analysis, entity analysis and segmentation.

REPORT Social Cultural Intelligence™ reporting insights around discussion sources and context, motivational, cultural and emotional drivers and barriers. Also, mapping of patient journeys.

1 2 3

Cultural Intelligence™ in 1-2-3

3-6 week turn-around time analyzing last 6-18 months of discussions

A process that takes weeks instead of months to map the patient journey

using hundreds of thousands of patient and caregiver

discussions!

[ Analyzed by usage, gender or cultural segments like women, men, Millennial, Hispanic, African American, LGBT, etc…]

Understanding Barriers to Breast Cancer Treatment Using a Novel Social Media Approach “We present powerful, real world data using this new modality for qualitative research, capitalizing on the rich conversations occurring on-line for patients with breast cancer. Future research should further focus on how to employ and learn from this type of social intelligence research.” - 2015

With strong academic validation [ Passing the test of the research community at Harvard resulting in a published study by the Breast Cancer Research and Treatment Medical Journal- May 2016 ]

13

A peek into three conditions

The universe

BREAST CANCER

OVERALL= 387,238 HISPANIC= 17,425 AFRICAN AMERICAN= 34,464

Emotional, physical, and spiritual sentiments expressed about breast cancer 1 year (2/1/14-1/31/15). Heart Failure Based on 12 Months of unbiased discussions as of February 2016

HEART FAILURE

OVERALL= 2,465,384 HISPANIC= 43,341 AFRICAN AMERICAN= 87,143

Past examination of barriers to breast cancer treatment receipt has typically been limited to registry or claims-based studies or smaller, survey-based analyses.

What Are The Destinations Where Discussions Are Taking Place Around Breast Cancer?

N= 387,238

Key Breast Cancer Discussion Topics What Are They Talking About?

diagnosis28%

treatment29%

informa=on19%

preven=on24%

diagnosis38%

treatment29%

informa=on22%

preven=on11% diagnosis

27%

treatment37%

informa=on22%

preven=on14%

Overall Hispanic African American

N=387,238 N= 17,425 N= 34,464

What Are The Treatment Barriers Discussed by Segment?

15 22 24

21

24 25 23

14 17

7 11

9 18 9 6

9 13 13

7 7 6

Overall Hispanic AfAm

resources beliefs emotional relationship physical HCP process

N=387,238 N= 17,425 N= 34,464

What Are The Types of Drivers Behind the Barriers Discussed?

Socio-cultural

Organizational / Experiential

Situational

Psychological

Belief systems •  gender •  family •  sickness •  cultural •  spiritual

Organizational/ HCP Experience •  Perceptions of care •  HCP interactions •  Healthcare system •  Prior experiences

Circumstantial •  insurance •  job •  income •  accessibility •  responsibilities

Emotionally driven •  Emotions •  Feelings •  Fears

DRIVERS

Barriers Discussed Through The Patient Journey (Overall vs. Hispanic)

21 18 18 16 25

30 31 32 27 25

21 22 21 16

19

28 29 29 31 31

prediagnosis diagnosis assesment decision to treat

treatment

6 13

28 21 29 24

28

24 18 20

43 35

22 19 25

27 24 26 24 26

0%

10%

20%

30%

40%

50%

60%

70%

80%

90%

100%

prediagnosis diagnosis assesment decision to treat

treatment

organizational socio-cultural psychological situational

Overall =387,238 Hispanic = 17,425

Socio-Cultural verbatim: “We don’t go to the doctor until we’re very sick” “Breasts cancer doesn’t run in my family“ “…if you believe in a great Creator, this is the part of the plan and my plan for health”

18%

41% 6%

8%

27% blogs message boards social networks content sharing topical sites

N=2,465,384

What Are The Destinations Where Discussions Are Taking Place Around Heart Failure?

71 61 58

21

22 31

8 17 11

0%

10%

20%

30%

40%

50%

60%

70%

80%

90%

100%

Overall Hispanic AfAm

other

caregiver

self

Who Is Engaging in the Discussions? Caregivers and others (family) are more engaged for ethnic segments

N=2,465,384 N=43,341 N=87,143

39% 41%

47 39

67

17 24

9

36 37 24

0%

10%

20%

30%

40%

50%

60%

70%

80%

90%

100%

Overall Hispanic African American

share info answer ask

What is the Context of the HF Discussion? Hispanics are community-oriented and share information a bit more than the rest. AA are asking questions about conditions at higher rates. This shows a hunger for information and support for themselves and their community.

N=2,465,384 N=43,341 N=87,143

28 34 39

19

24 16 9

4 4

14 5 7

18 24 27

12 9 7

Overall Hispanic AFAM

symptoms treatment prevention causes diagnosis info

What Topics Are Being Discussed by Segment? Ethnic segments are more reactive to the condition and are looking to find a solution to their condition vs. understanding the causes or ways to increase prevention. This shows a need for curating information in a culturally relevant way.

N=2,465,384 N=43,341 N=87,143

What Are The Barriers to Care By Segment?

23 22 20

9 19

15

14

22 24

30 15 19

24 22 22

0%

10%

20%

30%

40%

50%

60%

70%

80%

90%

100%

Overall Hispanic Af Am

situational

informational

experiential

psycho-cultural

economic

Between my job and family

responsibilities I just don’t have

the time to go to the doctor

Health is different if

you’re black..

N=2,465,384 N=43,341 N=87,143

14

39 42

86

61 58

0%

10%

20%

30%

40%

50%

60%

70%

80%

90%

100%

Overall Hispanic AfAm

life disruption

HCP problems

Top HCP barriers/ issues 1.  Previous care outcome/quality 2.  Communication problems 3.  System complexity/confusion 4.  Access/logistical factors

Experiential Barriers to Care by Segment

N=2,465,384 N=43,341 N=87,143

2.7x 3x

Motivational Drivers by Patient Journey Stage By Segment

613

28 29 2424

28

24 20

14

43

3522 25

25

27 24 26 2632

0%

10%

20%

30%

40%

50%

60%

70%

80%

90%

100%

prediagnosis diagnosis assesment treatment posttreatment

situa=onal

psychological

socio-cultural

organiza=onal

DriverSkew:Emo=onaltoprac=cal

OVERALL-N=2,465,384

21 18 18 1625

3031 32 27

25

21 22 2116

19

28 29 2931 31

0%

10%

20%

30%

40%

50%

60%

70%

80%

90%

100%

prediagnosis diagnosis assesment treatment posttreatment

situa=onal

psychological

socio-cultural

organiza=onal

DriverSkew:Beliefsystem/situa=on

2229 25 27 30

17

18 18 20 17

2821 17 21 19

33 32 30 32 34

0%

10%

20%

30%

40%

50%

60%

70%

80%

90%

100%

prediagnosis diagnosis assesment treatment posttreatment

situa=onal

psychological

socio-cultural

organiza=onal

DriverSkew:Situa=on/emo=on/HCPissues

HISPANIC-N=43,341

AFRICANAMERICAN-N=87,143

28

blogs!11%!

message boards!35%!

topical sites!37%!

social networks!

8%!

content sharing!

9%!

  Data source channels over 12 months of data (ending 5/30/16 )!

•  Total N= 285,384!•  Patients N= 203,736!•  Caregivers N= 35,384!•  Hispanic N= 33,374!•  AfAm N= 54,394!•  Asian N= 12,182!

!

Analyzing a universe of 285K+ diabetes patient and caregiver conversations

Powered and informed by!

Diabetes Patient Journey Analysis

Diabetes Patient Journey Example

PRE-DIAGNOSIS DIAGNOSIS TREATMENT

MAINTENANCE/

CONTROL

Hispanic N= 33,374 . AA N= 54,394 !% of Hispanic conversations vs. % overall conversations by stages from CulturIntelTM!

6% 14% 43% 37%OVERALL!

0% 25% 56% 29%HISPANIC!

Health literacy!Access!

Family mindset!

+Financial!HCP interaction

(Respeto)!

No preventative mindset (diet/

exercise)!

AA! 0% 32% 51% 17%

Health literacy!Access!

Family mindset!Faith/ believes!

+Financial!HCP interaction

(Protective Silence)!

No preventative mindset (diet/

exercise)!

implications

Designing content, patient/ HCP tools, campaigns, engagement programs and overall interventions based on the quantitative evaluation of qualitative data.

PRE-DIAGNOSIS DIAGNOSIS ASSESSMENT TREATMENT POST

TREATMENT

Situational Psychological Socio-cultural Organizational

Checkmarksindicatethe#1mo=va=onaldriverforeachsegmentthroughthepa=entjourney

Making Decisions Based on Key Discussions [ Needs ] By Segment Through the Patient Journey

33

PHARMA

•  Identify the right topical discussions across segments to translate into content, tool and marketing strategies

•  Development of integrated health programs aligning to related conditions and symptoms •  Identify tonality and language to deliver culturally relevant messaging around topics based

on sentiment and cultural nuances •  Identify relevant stages to introduce tools, programs, and channels to intercept and

influence patients through the treatment-journey •  Identify the channels and influences that impact each segment •  Opportunity to run pre and post studies to evaluate campaign/ program impact •  Opportunity to dive deeper into geo-targeted and micro targeted topics and communities •  And more…

SYSTEMS OF CARE PAYORS ASSOCIATIONS

CONFIDENTIAL

Adding value to all stakeholders

Thank You! [email protected]

CULTURINTEL.COM

Types of Deliverables

•  Barriers/ Drivers: What are the influencing decision/usage/perceptions •  Motivational Profiles: What are the underlying factors •  Brand Analysis: Brand/company/competitor profiles strengths/weakness’/opportunities

(how is my brand/company perceived versus category •  Journeys: decision journey /usage journey / patient journey (based on category CPG,

health, etc.) •  Sentiment Analysis: What drives preference •  Segmentation: Cultural/ usage/ psychographic/ generational/ etc. •  Needs: Analysis and gaps •  Lexicon Analysis: How does the user/target/consumer talk about the subject, what words

do they use. •  User-defined: Perceptions

Applied to mine intelligence ranging everything from brand insights to healthcare barriers to even political candidate affinity!

REPORT CONTENTS

LEVEL 1 LEVEL 2 LEVEL 3 DISCUSSION DESTINATIONS Where are discussions taking place x x x

USER/ SPEAKER ANALYSIS Type of user that is driving the discussion x x x

SEGMENTATION OVERVIEW* Type of user engaging in the discussion across segments*

x x

CONTEXT ANALYSIS Analysis of the context that drive users to discuss (share info, answer, ask)

x x x

by segment (s)* x x

TOPIC ANALYSIS Breakdown of the topic that are driving the discussion

x x x

Deeper dive into topic analysis Deeper analysis of leading topics (i.e. what topics are discussed by segment)

top 3 all

by segment(s)* x

SENTIMENT DRIVERS x x

by segment(s)* x

MOTIVATIONAL DRIVERS Main motivators of the conversation (situational, physiological, socio-cultural, organizational)

x x x

by segment(s)* x

NEEDS/UNMET NEEDS x x

by segment(s)* x

BRAND PROFILING/ MAPPING client client + 2 client +4

CONSUMER JOURNEY Mapping of discussions at each stage of the consumer by segment

x x

by segment(s)* x

Motivational drivers by journey stage Outline of motivational drivers at each stage of the journey by segment

x x x

by segment(s)* x x

CONCLUSIONS & IMPLICATIONS Summary of implications and opportunities to impact the consumer journey

x x x

A-la-carte reports can also be customized based on your needs

*Demographic/ cultural/ geographic / gender / generational