user profiling of people with disabilities - a proposal to pervasively assess quality of life
DESCRIPTION
My presentation at ICAART 2013 - February 15, 2013TRANSCRIPT
1
ICAART 2013 15th February 2013
Eloisa Vargiu
Barcelona Digital
Technology Center
User Profiling of
People with Disabilities A joint work with:
Luigi Ceccaroni, Laia Subirats, Suzanne Martin and Felip Miralles
Outline of the talk
BackHome Project
Telemonitoring and Home Support in
BackHome
The Challenge: Automated Assessment of
Quality of Life
Conclusions & Future Work
2
3
… BackHome Project
Aim & Motivation
The long term rehabilitation goal for
individuals with an acquired brain
injury is resettlement back in the
community away from institutional
care
The ideal scenario is that the
person will return to her/his
previous home and life roles
Aim & Motivation
In the early post-discharge phase, additional
home care is provided to support the
individual and their family
Unfortunately, the provided support is often
not long enough to achieve the maximum
possible independence
The transition to the home is often very
difficult and traumatic for the individual and the
carers
BackHome Main Goal
To assist people with disabilities back home
after a discharge(*)
(*) Daly, J., Armstrong, E., Miralles, F., Vargiu, E., Müller-Putz, G., Hintermller, C., Guger,
C., Kübler, A., and Martin, S. (2012). BackHome: Brain-neural-computer interfaces on
track to home. In RAatE 2012 -Recent Advances in Assistive Technology &Engineering.
BackHome Objectives
To study the transition from the hospital to
the home
To learn how different BNCIs and other
assistive technologies work together
To learn how different BNCIs and
other assistive technologies can help in the
transition from the hospital to the home
To reduce the cost and hassle of the transition
from the hospital to the home
A Reference Scenario
Chara is a painter in her thirties About eight years ago she started to have difficulties
holding her paint brush
She was diagnosed with amyotrophic lateral sclerosis
and became tetraplegic and artificially ventilated
She was so depressed that she refused treatment
when diagnosed with pneumonia
She survived and just recently had her first session
with BNCI-based Brain Painting(*)
(*) Münssinger, J., Halder, S., Kleih, S., Furdea, A., Raco, V., H¨ osle, A., andK ¨ ubler, A.
(2010). Brain painting: First evaluation of a new BCI application with ALS-patients and
healthy volunteers. Front Neurosci, 4:182.
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… telemonitoring and home
support in BackHome
Vargiu, E., Miralles, F., Martin, S., and Markey, D. (2012).
BackHome: Assisting and telemonitoring people with
disabilities. In RAatE 2012 - Recent Advances in As-sistive Technology & Engineering.
Telemonitoring & Home Support
Telemonitoring & Home Support Systems
(TMHSSs) provide a range of services which
enable patients to transition more smoothly
into the home environment and be maintained
for longer at home
TMHSSs Facilitate services which are convenient for patients,
avoiding travel whilst supporting participation in basic
healthcare
Can be a cost effective intervention which
promotes personal empowerment
The BackHome Approach
Care
Center
Home User Social
Environment
TMHSS
Contexts
The BackHome Approach
Care
Center
Home User Social
Environment
TMHSS
Functionalities
Personal Autonomy
Cognitive Rehabilitation
Social Autonomy
Remote monitoring
QoL Assessment
The BackHome Approach
Care
Center
Home User Social
Environment
TMHSS
Personal Autonomy
Cognitive Rehabilitation
Social Autonomy
Remote monitoring
QoL Assessment
Technologies
Ambient Intelligence
Automatic
Quality of Life
Assessment
System Remote Cognitive
Rehabilitation
Brain Neural Computer Interface
Complementary Interfaces
The TMHSS
Smart-Nodes
GAS
Temperature
Wearable
Sensors
Gyro
ECG
EMG
Smart-objects
Toys
AmI
AmI is the “glue” technology
providing the intelligent baseline framework
Robot
The TMHSS
Physical autonomy (smart home control) To turn on/off a TV
To open/close a curtain
To set the room temperature
Social autonomy (social networking) To communicate with the therapists
To communicate with relatives
To communicate with friends
The TMHSS
Performing cognitive activities through a communication system
• to plan future patient activities
• to personalize exercises and activities
sensors-based technologies • to monitor exercise execution and performance
• to perform cognitive activities (e.g., Brain Painting)
smart objects • to perform cognitive rehabilitation task (e.g., with a
robot)
The TMHSS
The TMHSS
QoL is the subjective experiences or
preferences expressed by an individual in
relation to specified aspects of her/his life, with
a particular reference to the health status
The TMHSS
The QoL assessment system will help answer
basic questions about the state of the user,
such as “is she depressed?”
“has she decreased her activity level?”
“is she more engaged in social interactions?”
BackHome Heterogeneous
information collected by
the system
User
health status
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… The Challenge
Automated Assessment of
Quality of Life
QoL Assement as User Profiling
The idea A relevant part of the profile of people with health
diseases is their QoL
How to assess QoL Several questionnaires have been proposed and
adopted
The user is asked to answer to a predefined set of
questions about her/his mental and
psychological status and feeling
The Challenge
Open Issue It could become boring and annoying for a user to
answer to them, especially if they are asked to do
that very frequently
Our Proposal Automated assessment of QoL
The Adopted Questionnaire
EQ-5D(*)
A standardized measure of health status
Provides a simple, generic measure of health for
clinical and economic appraisal
Provides a simple descriptive profile and a single
index value for health status that can be used in the
clinical and economic evaluation of health care as
well as in population health surveys
(*) The Euroqol Group (1990). Euroqol a facility for the measurement of health-related
quality of life. Health Policy, 16:199–208.
The Adopted Questionnaire
The Adopted Questionnaire
Geyh, S., Cieza, A., Kollerits, B., Grimby, G., and Stucki, G. (2007). Content comparison
of health-related quality of life measures used in stroke based on the international
classification of functioning, disability and health (ICF): a systematic review. Quality of
Life Research, 16(5):833–851.
Pervasive QoL Assessment
Mobility through location sensors
Pervasive QoL Assessment
Self-care in principle, also self-care
activities can be monitored
by relying on suitable
sensors
for privacy issues, we
decided to not monitor such
activities
Pervasive QoL Assessment
Usual Activities (housework,
education and/or leisure
activities) through the BNCI system
Usual Activities (family and
friends relationships) through the support of
communication system
through the support of social
network
Pervasive QoL Assessment
Pain/Discomfort through text mining
algorithms applied on social
networking and
communication activities
Pervasive QoL Assessment
Anxiety/Depression through the BNCI system
(fatigue, spasticity, stress)
through text mining
algorithms applied on social
networking and
communication activities
Pervasive QoL Assessment
Health state by performing inference on
all the data gathered by the
BNCI system, the wearable
sensors and the social
communications
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… Conclusions & Future
Work
Conclusions
Profiling people with functional diversity QoL assessment
BackHome challenge Pervasively assessing the QoL automatically
Preliminary proposal A smart home healthcare monitoring system
EQ-5D questionnaire
Work in Progress
Definition of an ad-hoc BackHome questionnaire Visual Analogue Scale (VAS) questionnaire
First prototype installation and testing Cedar Foundation (U.K.)
Univ. of Würzburg (Germany)
Future Work
Data analysis of the data provided by the first
testing phase
Selection of wearable sensors according to user
requirements
Acknowledgements
BackHome Website: www.Backhome-FP7.eu
The research leading to these results has received
funding from the European Community's, Seventh
Framework Programme FP7/2007-2013,
BackHome project grant agreement n° 288566
Consortium
