Supporting parents and families of disabled children and young people

NETWORKERAPRIL 2014 (REVISED JUNE 2014)

UPCOMING EVENTS

Welcome to the April 2014 Networker magazine in electronic format. Traditionally PFRC has printed and distributed the Networker but updated technology and requests for an electronic version has prompted us to change. We are keen to hear your feedback.

The focus of this edition is leisure, respite, recreation and sport opportunities for people with disabilities. It is now possible to think in new and creative ways about what respite and recreation means to us as there are emerging payment mechanisms for eligible people. We explain the Ministry of Health’s (MoH) Individualised Funding (IF) payment system and how Respite and Carer Support may soon be included under IF.

Sadly we have said goodbye to our Information Advisor Niharika Puri who left us on 4 April to explore opportunities overseas. We thank Niharika for her hard work and dedication over the last 18 months. We welcome our new Information Advisor Gabriele Fitzgibbon and Nicola Clark to this role.

We have moved! Our new address is 3B Olive Road, Penrose. All other contact details remain the same. We have a visitors car-park at our front door and we are fully accessible in our new premises. We also have two large seminar rooms available for use. Our full contact details are at the bottom left-hand corner of this page.

PFRC BOARDColleen Brown – ChairpersonGeoff Foster – Treasurer Sharon King – SecretaryAnne Martin Laraine HandWendy Duff Megan Salt

CENTRE STAFFLisa Martin – Centre DirectorVirginia Desai – Business SupportGabriele Fitzgibbon – Information Advisor Nicola Clark – Information Advisor

OPENING HOURSWeekdays from 9am–4.30pm

Baby VicToa comes back to visit PFRC (pictured with Virginia)

TRANSITION EXPOHosted by Parent & Family Resource Centre (PFRC) & Ministry of Social Development (MSD)When: Tuesday 19 August 2014Where: Fickling Convention Centre, 546 Mt. Albert Road, Three KingsTime: 9am–2.30pm

Click here to view the flier

INDIVIDUALISED FUNDING INCLUDING RESPITE SEMINARS October/November 2014 Please click here for a full list of dates/venues

TRANSITION SEMINARS August/September 2014 Please click here for a full list of dates/venues

TRUSTS & WELFARE GUARDIANSHIP SEMINARS September/October 2014 please click here for a full list of dates/venues

LEGAL CLINICS (private consultation with solicitor Nan Jensen re disability issues) Bookings available – 5th November midday till 6pm at PFRC, Penrose. Please click here to view the flier

Also on our website: www.pfrc.org.nz

Parent & Family Resource Centre Inc. (PFRC) 3B Olive Road, Penrose, Auckland P.O. Box 13385, Onehunga, Auckland 1643 Ph. 09 636-0351, Fax 09 636-0354. Email: pfrcadmin@pfrc.org.nz

Find us on Facebook: www.facebook.com/ParentandFamilyResourceCentre

www.pfrc.org.nz

Twitter: @pfrcnz

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CHAIRPERSON’S CORNER

Welcome to this April 2014 edition of the Networker magazine.

I well remember the frustration and worry that came every holiday break when all our other children seemed to have opportunities to participate in fun, age appropriate activities and the question remained – what to do with Travers?

As a family we made a decision that Travers was part of our community and that he should be included in all local activities. When he was at primary school we enrolled him in some of the community holiday programme classes. Just to be on the safe side, we asked Ray Murray from the then Auckland College of Education to carry out a follow-up survey of parents whose children had also attended those programmes. The overwhelming response from them was that their children knew Travers from school, swimming, or had gone to kindy with him and so having Trav with them on the holiday programme ‘wasn’t a big deal’.

I would urge all parents to have a look at local recreation and leisure opportunities first of all. You may well be surprised at what is available and how welcoming people are. You also might be astonished at the number of local activities that don’t cost a lot of money and are a huge amount of fun.

Barry and I were firm believers that the more Trav was out and about in the community, clearly visible to everyone; the less scared people would be of people who might be different from them. One of the small but quite profound victories we had was a comment made by a student the same age as Trav who said to his teacher, ‘Trav is more like me than I thought.’ A simple and important understanding, because these young people are the future parents and employers who will help break down the barriers to inclusion for all our young people.

Often it is as your child with a disability gets older that the recreational opportunities appear to become limited. The Ministry of Health with its support mechanisms in place for parents is a great source of help and an excellent starting point.

This Networker aims to untangle what can sometimes seem to be a huge knot of information. This issue is full of information which may need to be taken with a cup of coffee and a large slice of cake. However – please remember PFRC staff are here to help you and if there are any questions, concerns or good news stories, we’d like to hear from you.

A happy and safe Easter break to you all.

Kind regards, Colleen Brown, Chair PFRC

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CENTRE DIRECTOR’S REPORT

It has been another busy year for the Parent and Family Resource Centre Inc. As we find ourselves facing the Easter break and school holidays, a common enquiry at PFRC is how to access leisure, recreation, respite and sport opportunities for people with a disability. This edition of The Networker explores this subject.

We have provided links to information and websites that we hope will make the process of information gathering enjoyable and interactive. Feel free to forward the link for this issue to other families you think may be interested. We will have some limited print copies available so please ask for these if you prefer the traditional print format.

We have created an alphabetical list of Auckland leisure, recreation, respite and sport organisations with links to their websites. We encourage you to scroll through this information to help you find suitable opportunities for you and your family. Exciting new opportunities are emerging under the Ministry of Health’s New Model for supporting people with disabilities and PFRC are working to keep families informed of these changes.

Exploration of leisure, recreation, respite and sport providers would not be complete without information about ways of paying for such support. This edition of the Networker examines imminent changes to Individualised Funding and the future option of including Respite and Carer Support under IF. It is important to remember that as a MoH funded Disability Support Service, respite eligibility is assessed by your Needs Assessment & Service Coordination agency. These future IF changes may create new and more liberal pathways for individuals and families to decide what respite means to them and the sort of respite they desire.

Many people with a disability are keen to explore family and community based respite opportunities. For other families traditional, structured, facility-based respite works well and this can be continued in the usual way for individuals assessed as eligible for this service.

Information and choice are fundamental to making informed decisions and we hope the material we have collated will be useful. In the meantime we hope you enjoy reading your April 2014 Networker magazine and have a fabulous Easter holiday.

Lisa Martin Centre Director, Parent & Family Resource Centre Inc.

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OVERVIEWAn enquiry we commonly receive at the Parent and Family Resource Centre (PFRC) is around the types of leisure, recreation, and sporting opportunities that are available for young people with disabilities. This is particularly prominent, and understandably so, around school holidays throughout the year. With the Easter holidays fast approaching, we thought it would be timely and appropriate to focus on the various activities (such as holiday programmes, classes, camps and so on) that are available around Auckland. It is important to mention that it is ideal and natural for people with disabilities to access local, community-based activities that best suit their interests.

PFRC have compiled a list of leisure, recreation, respite and sporting programmes that are on offer throughout Auckland. This list was collated from feedback provided by parents/families and professionals in our networks. If you find that an activity that your child may be interested in has not been listed, we encourage you to make enquiries using your local networks. You may wish to do this online via Google or Facebook, or alternatively contact Citizens Advice Bureau or your local library.

The following sections of the magazine explore some of the ways in which you can access and pay for these programmes. An exciting development is the imminent inclusion of respite under Individualised Funding. This is a choice – the service provider model is still available for people who are not eligible for IF or do not think that IF is suitable for their individual situation. Contact Taikura Trust to find out if IF is suitable for you www.taikura.org.nz

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MINISTRY OF HEALTH

The criteria for accessing DSS funded through the Ministry of Health are:

The Ministry of Health is the major advisor on health and disability issues and support. They aim to improve, promote and protect the health of all New Zealanders*. One of the roles of the Ministry is to make available (to eligible individuals) funding and services for people with disabilities. This is called Disability Support Services (DSS). In order to access DSS funded through MoH, an individual must meet eligibility criteria. If the criteria is fulfilled, disability supports are usually administered through a local Needs Assessment and Service Coordination (NASC) agency. In Auckland this is Taikura Trust. For a more comprehensive list of NASCs around New Zealand, you can visit the Ministry of Health website.

There are also a range of conditions that are not covered by the Ministry of Health DSS. For instance, individuals who receive support from ACC and/or Mental Health services, funding allocations and accessibility may differ. For a more comprehensive look at these, you can read our Disability Support Guide or visit the Ministry of Health website on www.health.govt.nz

There are several types of disability support services that can be accessed through the Ministry of Health, such as:

• You have to be eligible to receive these supports in New Zealand

• You have to have a physical, intellectual, or sensory disability (or a combination of these) which:

— Is likely to continue for at least six months

— Limits your ability to function independently, to the extent that ongoing support is required

*information taken from the MoH website

• Household Management (more commonly known under the title of Home and Community Support Services or HCSS) This is where the individual is given support to maintain their home and manage day-to-day duties such as meal preparation, washing, drying or folding clothes, vacuuming, and tidying up

• Personal Care Support (also commonly known under the title of HCSS) This is for support with eating/drinking, daily routine tasks such as getting up in the morning and getting ready for bed at night, self-care tasks such as showering, toileting, and getting dressed

• Respite and Carer Support These are forms of assistance that may be provided to individuals with disabilities and their family members. These supports will be discussed in detail under the following section, Individualised Funding. These are going to be the focus of this article, as they are the primary ways in which families are able to access respite, leisure, recreation and sporting opportunities

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INDIVIDUALISED FUNDING

IF STATISTICS

Until now, the most common way to access sport, leisure and recreational programmes is through the Carer Support subsidy. Another way of accessing these services, of course, is through paying privately. The MoH recently announced that in the near future, individuals who are eligible for Individualised Funding may also be able to have flexible options when purchasing respite. The exact date of the availability of Respite and Carer Support allocations under IF is yet to be determined. IF is one of the ways in which disability support services funding can be managed to provide services that are more tailored to each individuals’ needs and goals. This allows the individual (and/or their family) to manage the budget that they are allocated under HCSS (i.e. Personal Care and Household Management supports). This means that the individual or their family can choose support workers, the way in which support is delivered, and they can even manage employing care providers as well as all the other aspects of service delivery.

In order to find out if you or your family member is eligible for IF, you need to contact your local NASC and organise an assessment. As a rule of thumb, so far IF has only been available to people who have HCSS supports.

The Parent & Family Resource Centre (PFRC) in conjunction with the Ministry of Health run regular seminars on the uses of Individualised Funding and the imminent option to include respite allocations under IF. For more information regarding the next series of seminars, visit the PFRC website on www.pfrc.org.nz/seminars-workshops/individualised-funding. You can also read more about IF, how it is administered, and the role of IF Hosts in our April 2011 Networker Magazine. This is available on our website, or via hard copy through the PFRC office.

The current IF framework was first introduced in 2009, with only 350 people using it as a mechanism to manage their DSS funding allocations. As of March 2013, the number has increased to 1,902 people that are currently enrolled under IF. The majority of the IF population resides in Auckland (47%), with the rest spread out across New Zealand (Canterbury/West Coast Regions 13%, Waikato 7%, Otago/Southland 6% and Bay of Plenty/Lakes Regions 6%). IF also seems to be more popular amongst the ‘younger’ age group of people with disabilities, with 68% of people accessing IF aged 35 years old and under.*

The Ministry of Health is now in the process of making Respite Care and Carer Support available under IF, which aims to allow people with disabilities and their families to have more say in how these allocations are going to be used. Keep an eye out on the PFRC website on www.pfrc.org.nz or contact Taikura Trust to find out when this will be available. *Taken from Karen Smith’s (MoH) Feb—March 2014 IF Including

Respite Presentation

Pictured: Murray Penman and Karen Smith presenting the IF Including Respite Presentation at Independent Living Service

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INDIVIDUALISED FUNDING STATISTICS

*Pie charts reproduced from Karen Smith’s (MoH) Feb—March 2014 IF Including Respite Presentation

IF POPULATION BY AGE GROUP HCSS POPULATION BY AGE GROUP

WHAT IS RESPITE CARE?Under the traditional service model, Respite Care is contracted and is part of a range of DSS funded by the Ministry of Health. The purpose of this service is to provide a break for the carers of the person with a disability, while also providing an engaging and enjoyable experience for the person themselves. Traditional respite services are usually short-term, intermittent, and available in community-based settings. In order to access funded respite, you will need to contact your local NASC who will conduct an eligibility assessment, and determine your allocation based on the need and availability of services. For more information about eligibility, visit the Ministry of Health website on www.health.govt.nz/your-health/services-and-support/disability-services. Respite may be a planned break (for example, a weekend once every three months) or unplanned, as is often the case in emergencies or unexpected events. Currently, there are a small number of traditional respite providers who provide services for individuals up to the age of 21 (normally, child respite services finish on the

individual’s 17th birthday). There are also a limited number of providers who offer respite services for individuals over the age of 21. It may be useful to contact the NASC first in order to determine if they are able to offer the services you seek.

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WHAT IS CARER SUPPORT?

Carer Support is a subsidy that is funded by the Ministry of Health. The aim of the subsidy is to help the unpaid, full-time carer of a person with a disability to have a break from caring for that person. The subsidy allocation is determined by the needs of the carer and the person with a disability, and it is usually assessed by the local NASC.

A full-time carer is someone who provides more than 4 hours of unpaid care a day to a person with a disability (for example, the parent of a child with a disability). The Carer Support subsidy is flexible and can be used to pay friends, some family members (not spouses, parents or family members living at the same residence), neighbours or more formal facilities, such as some holiday programmes, after school programmes, etc. However, the subsidy cannot be used for:

• The full-time carer going to work • By the parent/partner of the disabled person • To recover after being discharged from hospital • If the support carer lives at the same address as the full-time carer

It is important to note that the Carer Support subsidy may be subject to income tax in some situations. To determine whether this would affect you, you will need to contact Inland Revenue or Work and Income (if you receive a benefit).

RESPITE AND CARER SUPPORT UNDER INDIVIDUALISED FUNDINGSoon Respite Care and Carer Support allocations will be included in the supports you can manage under IF if you choose to do so. Under IF, respite allocations will be able to be used in a flexible manner in a way determined by the individual/agent instead of only via the traditional model of contracted respite providers. Families may vary in what they consider to be respite care, and having a respite allocation under IF will allow for this flexibility.

To access Respite and Carer Support under IF, you will need to be eligible for a respite allocation, which can be determined by contacting your local NASC. If you are eligible for respite under IF, you will be referred to an IF Host Provider of your choice who will help manage the allocation. Some families already have a respite allocation which they may consider transferring part or all of into IF. Some families will already have IF in place for their HCSS supports so can decide if they wish to transfer their respite allocation (if they have one). A budget will be confirmed by the NASC at the time the referral is made. You may be eligible for IF, if you have been allocated any of the following supports:

•Respiteonitsown •RespiteandCarerSupport •HCSSandCarerSupport

If you are eligible to get IF Respite it may only be used for the purpose of getting respite, just as IF-HCSS can only be used to purchase services deemed to be HCSS (as detailed by the MoH’s service specification).

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WHEN WILL RESPITE & CARER SUPPORT BE AVAILABLE UNDER IF? The exact time of the Respite and Carer Support allocations being available under the IF package is still yet to be determined. To find out whether this has been implemented, you can contact PFRC on 09 636 0351 or email Lisa Martin on lisa@pfrc.org.nz or keep an eye out on the MoH website on www.health.govt.nz. Once the MoH includes the option of Respite and Carer Support allocations under IF, this will allow you to transfer some or all of your respite and/or carer support allocations to your overall IF package.

Traditional respite providers have been facility based and contracted to the Ministry of Health. Under the IF model, respite could be used/purchased more flexibly – however, the option to access respite in the traditional facility based model still remains. This traditional respite can either be purchased under IF or accessed via the traditional referral process to the service provider. If you are seeking more flexibility in the way respite services are accessed, you may want to consider using IF to purchase respite.

UNDER IF, RESPITE CAN BE PURCHASED IN THE FOLLOWING WAYS:FACILITY BASED NON FACILITY – HOST

FAMILYNON FACILITY – IN HOME

NON FACILITY OUT OF HOME (FLEXIBLE)

• Purchase from the Ministry of Health contracted facility or other

• Provider – must have experienced staff and adequate level of service

• Directly negotiate services

• Purchase directly from host family

• Respite provided by host family in their home

• Services negotiated with host family – for example, neighbours, some family members (who don’t live in the same house)

• You can use your own networks to find people

• NASCs in some regions have contracted providers to help

• A support worker comes into person’s home, family gets a break

• Direct negotiation between person and support person

• Most flexible way of using respite allocation under IF

• Variety of settings and range of activities – ranging from short outings (movie, gym etc) or holidays

• Agreed between people with disabilities, with support of NASC, host provider or family if required

*Taken from Karen Smith’s (MoH) Feb—March 2014 IF Including Respite Presentation

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LIST OF ORGANISATIONS WHO COULD PROVIDE RESPITE-TYPE SERVICES:

NAME WEBSITEA Supported Life www.asupportedlife.co.nz Active lives at the Y www.ymcaauckland.org.nzActiv8 AucklandAdaptive Snow Sports www.snowsports.co.nzAll 4 Art LtdAllsports (Halberg) www.allsports.co.nz Ambury Park Centre for Riding Therapy - Riding for the Disabled www.rda.org.nz/RDAgroups/Ambrurypark.htmArt AdventureASD Kids Trust Basketball www.asdkidstrust.comAshley Cottage Trust BoardAt Heart (@) www.heartnz.org.nzAuckland Dyspraxia Support Trust www.aucklanddyspraxia.org.nzAuckland Eastern Suburbs -Riding for the Disabled www.rda.org.nz/RDAgroups/Aucklandes.htmBlind Foundation www.blindfoundation.org.nzBlind FoundationBoccia New Zealand www.boccia.org.nz/index.htmlCarabiner Mentoring www.carabiner.org.nzCare Group Limited www.caregroup.co.nzCarlson Toy LibraryCCS Disability Action www.ccsdisabilityaction.org.nzChild’s Play OT www.childsplayot.co.nz/wawcs0144759/Home.htmlChildren’s Autism Foundation - Building Brighter Future for Families www.autism.org.nzChristian Fellowship For Disabled www.elevatecdt.org.nz/aucklandcffdCircability Trust (Akl) www.communitycircus.co.nzClip’ n Climb www.clipnclimb.co.nzCreative Abilities www.creativeabilities.co.nz/default.htmlDance it LtdDance Therapy www.dancetherapy.co.nzDance4everyone www.dance4everyone.comDisabled Surfing www.disabledsurfers.org/nzDrumming www.rhythmdotcom.com

DrummingEastgate www.eastgatetrust.co.nzEveryday OT www.everydayot.comExtreme Trampolining (for people with autism) www.extremetrampoline.co.nzFriday Night Fun Night Geneva Northlink Healthcare www.genevanorthlink.comHalberg Disability Sport Foundation www.halberg.co.nzHorse Riding WarkworthIDEA Services Northland www.ihc.org.nz/our-servicesIDEA Services South East Auckland/Cromwell/CountiesIDEA Services West Auckland/North ShoreIn2it Street Crew www.in2it.org.nzInteracting Theatre www.interacting.org.nz/interactingtheatreJanet McVaegh Recreation www.facebook.com/jmrecreationKidactive Holiday Activity Programmes www.kidactive.co.nzKumarani Circus Workshops www.circuskumarani.co.nz Laura Fergusson Rehabilitation www.laurafergusson.co.nzLifekidz Trust www.lifekidz.org.nz

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Please note that this is not an exhaustive list. Respite organisations may come and go, and new opportunities may emerge. Many organisations already often accept Carer Support (as a whole or part payment) – however, it is best to confirm this with individual organisations.

One of the reasons for the upcoming changes being made to respite payment options is the need for personalised choice around the services individuals with disability access. In line with the philosophy of the MoH’s New Model for supporting people with disabilities, having increased choice and control and having the ability to plan a ‘good life’ is paramount. It may be that having structured respite, or perhaps being part of your local community based club or group is the best form of respite for you and your family member. With these imminent changes to IF, you will be able to make personal choices about what respite means to you and your family member.

EMAIL PHONE NUMBER CONTACT PERSON09 836 1740 Stuart, Carissa09 250 4346

dcurtis@activ8.org.nz 0800 210 019 or 021 285 3078 David Curtis

Janine.all4art@yahoo.co.nz 09 845 5110 or 021 076 9038 Janine09 579 9931 Chris, Maia, Stacey

principal@amburyparkcentre.org.nz 09 634 0763 Noel Morrisonclairelbenson@slingshot.co.nz 09 358 4024 or 022 6471785 Claire Benson

ashleycottage@xtra.co.nz 09 412 9401 DianeMathilde@heartnz.org.nz 09 215 9987 or 021 486 401 Mathilde Noordzywillingclan@xtra.co.nz 09 473 9055 or 0274 739058 aucklandes@rda.org.nz 09 521 2275 Beverly Hillfheenan@blindfoundation.org.nz 09 281 6503 ext 8503 Fiona Heenan

09 355 6886 John Scottboccia@boccia.org.nz 09 281 3269 Luke Morrisinfo@carabiner.org.nz 09 414 53 60info@caregroup.co.nz 09 304 0315 or 0800 111 078carlsonlibrary@gmail.com 09 624 3308auckland@ccsdisabilityaction.org.nz 09 625 9378 or 0800 227 2255 Debbie Schneiderlindsay@childsplayot.co.nz 09 630 9314 or 027 469 5884 Lindsay Mawdsleyinfo@autism.org.nz 09 415 7406 Teresa Mooreinfo@elevatecdt.org.nz 09 636 4763 Mariana Onofiathomas@communitycircus 09 361 3801 Thomas Hinzdr@clipnclimb.co.nz 09 630 6040debbie@creativeabilities.co.nz 09 444 0608 Debbie Steensondanceit@xtra.co.nz 021 793 018 Natashaanaia@dancetherapy.co.nz 021 184 9676 Anaiadance4everyone@xtra.co.nz 021 634 554 Allie Fitzgerald

09 409 4009 Markjacqui@rhythm.dotcom.com 09 846 0079 or 021 977 181 Jacquichewydrummer@hotmail.com 027 433 4627 Chewyinfo@eastgatetrust.co.nz 09 577 4556Carolyn@everydayot.com 021 023 26398 Carolyn Lotawa

09 636 8726specialkidscare1@xtra.co.nz 021 382 000 Dianaalbany@genevanorthlink.com 0800 425 999maia@halberg.co.nz 09 579 9931 or 021 995 951 Maia Lewishorseriding@xtra.co.nz 09 425 8517 Roger & Heather Mackenzielena.tau@idea.org.nz 027 607 3004 Lena Taumarion.littlejohn@idea.org.nz 027 600 5812 Marion Littlejohnolive.taulapapa@idea.org.nz 027 600 5748 Olive Taulapapainfo@in2it.org.nz 09 484 8712interacting@ihug.co.nz 09 849 5595 Paula Crimmensjm.recreation@ihug.co.nz 021 211 9882 Kerrie O’Haraenquiries@kidactive.co.nz 09 974 5135 or 0800 543 2284admin@circuskumarani.co.nz 09 439 5152info@laurafergusson.co.nz 09 524 0537 Heather McLeish (CEO)deearna@lifekidz.org.nz 09 533 6360 Deearna Buxton

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LIST OF ORGANISATIONS WHO COULD PROVIDE RESPITE-TYPE SERVICES CONT..

Little Kickers NZ www.littlekickers.co.nzMasada www.masada.org.nzMate’s Place www.frontierotconsulting.co.nz/matesplace/about-mates-place.htmlMusic & Fun Playgroup for Children with Special NeedsNew Creation Mission CentreNorthern Arena Swim School www.northernarena.co.nzNZ Care Group (Healthcare NZ) and Care Group Limited www.healthcarenz.co.nz Noah’s Autism Ark www.noahsautismark.co.nzNorthland Holidays www.dovestail.co.nzOasis Open Home Foundation www.ohf.org.nzOpen Home FoundationOpen Home FoundationOut of School Holiday (Care and Recreation) Network www.oscn.org.nzOutward Bound www.outwardbound.co.nzParafed Auckland www.parafedauckland.co.nzParalympics www.paralympics.org.nzPHAB Association Auckland www.phab.org.nzPHAB Association Auckland - PEERS, Hangout days & VoyagerRaukatauri Music Therapy Centre www.rmtc.org.nzRecreate NZ www.recreate.org.nzRenaissance www.renaissancegroup.co.nzRespite Care Auckland Ltd www.respitecareauckland.co.nzRiding for the Disabled North Shore www.northshorerda.orgRock My Baby - Nanny Agency www.rockmybaby.co.nz/pages/homeSailability www.sailabilityauckland.org.nzScouts NZ www.scouts.org.nzSibSupportNZ www.parent2parent.org.nz/services/sib-supportSmallfield Holiday ProgrammeSpark Centre www.sparkcentre.org.nzSpecial Olympics New Zealand - Central & West AucklandSpecial Olympics New Zealand - South & East Auckland www.specialolympics.org.nzSpectrum Care Holiday Programme www.spectrumcare.org.nz/media/brochures/School_Holiday_Programme-new.pdfSpectrum Care Trust www.spectrumcare.org.nzSpirit of Adventure Trust www.spiritofadventure.org.nzStarjam www.starjam.orgTalk Eazy Group 16-22 year oldsTe Roopu Taurima O Manukau www.terooputaurima.org.nzTe Whare WhakataaThe Cube www.thecube.org.nzTouch Compass Dance Co. www.touchcompass.org.nzTrikes 4 Bikes www.trikes4bikes.comTrikes NZ www.trikesnz.co.nz Vision West Community Trust www.visionwest.org.nz Wheely Football www.apfc.coWilson Home Trust www.wilsonhometrust.org.nzWilson CentreY-Kids Holiday Programmes www.ymcaauckland.org.nz/kids/Pages/Holiday-Programme-Online-Booking.aspxYoga Therapy www.divineyoga.net.nzYouth Activity Pukekohe - IDEA Youth ProgrammeYouthtown www.youthtown.org.nz

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09 815 8607 YvetteNorma-Jean@masada.org.nz or masada.c@xtra.co.nz 09 576 5229 or 021 258 2405 Norma-Jean Van De Rheedematesplace@frontierotconsulting.co.nz 027 469 5884 Lindsay Mawdsleynzmargaret@gmail.com or blakely.m@xtra.co.nz Margaret Davidson or Marjorie Blakelynctrust@gmail.com 09 292 7234

09 421 9700michelle.blackledge@nzcaregroup.co.nz 09 526 3570 or 0800 227 348 Michelle Blackledge

021 798 12909 430 3406

helen.williams@ohf.org.nz 09 624 2057 Helenrobyn.mackie@ohf.org.nz 09 634 2057 Robyn Mackieestela.mellars@ohf.org.nz Estela MellarsZanele.chikanya@ohf.org.nz Zanele Chikanyaoscn@xtra.co.nz 09 366 0320info@outwardbound.co.nz 04 472 3440 or 0800 688 927paraauckland@xtra.co.nz 09 270 2503info@paralympics.org.nz 09 526 0760 Mary Franceemma@phab.org.nz 09 488 7490 Emma Barneskerry@phab.org.nz 09 488 7490 Kerryinfo@rmtc.org.nz 09 360 0889 Julez Vincentinfo@recreate.org.nz 09 634 3474 Brent Jenkin (General Manager)info@ren2001.co.nz 09 250 4346sue@respitecareauckland.co.nz Sue Robertson

09 426 8110info@rockmybaby.co.nz 0800 762 569 Rachelsailabilityauckland@xtra.co.nz 09 834 0557 Tim Dempsey

0800 scouts or 09 476 50910508 236 236

louise.smith@sunnydene.school.nz Louise Smithangie@sparkcentre.org.nz 09 845 5361 Angie Richardsonmelg@specialolympics.org.nz 09 913 0839 or 027 455 0062 Mel GilesDaveb@specialolympics.org.nz 09 250 0563 or 027 505 4673 Dave Beattieinfo@spectrumcare.org.nz 09 634 3790 Caroling Leonginfo@spectrumcare.org.nz 09 634 3790info@spiritofadventure.org.nz 09 373 2060info@starjam.org 09 523 3500 or 0800 478 275enquiry@speechlanguagecentre.co.nz 021 546 917

09 276 628209 459 127909 414 5360 Kathleen or Sonia

catherine@touchcompass.org.nz 09 550 6464 or 021 289 447 Catherine Chappellrayna@trikes4bikes.com 03 214 9212 Rayna Neilsonbrian@trikesnz.co.nz 06 367 8272office@visionwest.org.nz 09 818 0760info@apfc.co 021 267 4380 Trevor Jenkininfo@wilsonhometrust.org.nz 09 488 0126 or 0800 948 787 Anne Nieuwland or Sally Kingrespite@waitematahb.govt.nz 09 488 4688 x5876 Adrienne Barkle

09 428 0190 Frankynicki.turner@idea.org.nz 09 529 8748 Nicki Turnerinfo@youthtown.org.nz 09 379 5430

14 www.pfrc.org.nz

USEFUL LINKSAUCKLAND IF HOSTS:

• HealthCare NZ www.healthcarenz.co.nz

• Lifewise www.lifewise.org.nz

• Manawanui In Charge www.incharge.org.nz

• Presbyterian Support Northern www.northern.enliven.org.nz

• Vision West www.visionwest.org.nz

CARERS NZ www.carers.net.nz

GUIDE FOR CARERS www.msd.govt.nz/documents/what-we-can-do/community/carers/carers-brochure-english.pdf

IMAGINE BETTER www.imaginebetter.co.nz

INCLUSION AOTEAROA www.inclusionaotearoa.co.nz

MINISTRY OF HEALTH – MORE INFORMATION ABOUT IF www.health.govt.nz/your-health/services-and-support/disability-services/types-disability-support/individualised-funding

OFFICE FOR DISABILITY ISSUES – ENABLING GOOD LIVES www.odi.govt.nz/eglives

PREVIOUS NETWORKER MAGAZINES www.pfrc.org.nz/resources/networker-magazine

TRANSITION EXPO 2014THE PROGRESSION FROM SCHOOL TO COMMUNITY LIFE

Hosted by Parent & Family Resource Centre (PFRC) & Ministry of Social Development (MSD)

WHEN:

WHERE:

TIME:

Tuesday 19 August 2014

Fickling Convention Centre 546 Mt. Albert Road Three Kings, Auckland

9am–2.30pm

The Transition Expo features most of Auckland’s Transition and Vocational Programme Providers as well as an array of leisure, recreation, sports and information providers. Transition providers are contracted by the MSD to facilitate a smooth progression from school to community life for a young person with a disability who is ORS (Ongoing Resourcing Scheme) funded. In their final years at school transition coordinators help the student with a disability, their family and education professionals from the school to decide upon an appropriate community placement for post-school life. This is an important decision for any young person and requires planning and knowledge.

This Expo will feature a Transition Seminar in a separate presentation room at 9.30am and midday (1.5hr seminar will run twice) – issues covered will include:

• Engaging with Taikura Trust at this important transition phase

• The process for ORS funding and access to vocational programmes upon leaving school

• Post school options including High Needs and Very High Needs Vocational Programmes, employment possibilities, micro-enterprise

• Information about future planning for your loved one with a disability

• Use of supports such as Individualised Funding and Carer Support Subsidy

• Options for living arrangements – IF and Flatting, Choice in Community Living, Residential Care, etc

• Work & Income supports you may be eligible for

This Expo is suitable for all students aged between 14-21 years who are ORS funded, parents, family members, caregivers, education experts, careers advisors, school transition coordinators, teachers and all those involved in the care of a young adult with a disability.

Transition Providers, Vocational Service Providers and ‘leisure/recreation’ providers will each have a stall providing information, pamphlets, booklets, DVDs and promotional material. Representatives from each organisation will be available for advice including also Work and Income, Ministry of Education, Ministry of Health and Taikura Trust. Although this Expo is aimed at ORS funded students, all students with a disability and those involved in the disability sector would benefit from information available on the day.

Please contact PFRC for further information on (09) 636-0351 or pfrcadmin@pfrc.org.nz

No need to RSVP – see you on Tuesday the 19th of August!

Free entry, plenty of free parking, fully accessible venue, information pack given to each family, and coffee van for purchase of refreshments*

*please bring cash if you would like to purchase coffee

A small vigorous community based resource centre for the families and whanau of disabled children and young people.

We would like to take this opportunity to thank our Funders including:

ASB Community Trust

New Zealand Post

COGS Committees – Auckland, Manukau, Papakura/Franklin & Waitakere

Maungakiekie-Tamaki Local Board Community Grant

A BIG THANK YOU...

We do this through:

• Information, advice and seminars • Advocacy for and with disabled people and their families • Influencing national policy and decision-making • Incubating innovative programmes for families

CORE VALUERespecting and

supporting choice

MISSIONTo empower

disabled people and their families through leading social change

VISIONDisabled people and their families

are able to lead the lives they desire

DIAS ProviderThe Parent and Family Resource Centre (PFRC) is a Disability Information and Advisory Service, otherwise known as a DIAS Provider. We are contracted by the Ministry of Health to provide a service to families and whanau of disabled children and young people in the Auckland Region.

Disclaimer: The views and suggestions in this newsletter are those of individual contributors and are not necessarily supported by Parent and Family Resource Centre Inc.

The Parent & Family Resource Centre Inc - CC21603 - is a reg-istered charitable entity in terms of the Charities Act 2005. For more information about the Parent & Family Resource Centre Inc, visit the Charities Register at www.charities.govt.nz

We have moved! From 12 May 2014 our new address 3B Olive Road, Penrose. All other contact details remain the same. We have a visitors car-park at our front door and we are fully acces-sible in our new premises. We also have two large seminar rooms available for use.

PARENT AND FAMILY RESOURCE CENTRE INC. is a Disability Information and Advisory Service (DIAS) and is open weekdays 9–4.30pm. 3B Olive Road, Penrose, Auckland Post to PFRC, PO Box 13385, Onehunga 1643, Auckland. For more information on PFRC visit www.pfrc.org.nz or phone (09) 636 0351.