NIHR ‘Breaking Boundaries’ Review of Public Involvement

Health Services Research Network (HSRN), Nottingham, June 20th, 2014

Simon Denegri, Chair, INVOLVE; NIHR National Director for Public Participation and Engagement in Research (UK)

Cometh the hour, cometh the patient

‘We stand on the cusp of a revolution in the role that patients – and also communities – will play in their own

health and care. Harnessing what I’ve called this renewable energy is potentially the make-it or break-it difference between the NHS being sustainable – or not.’

Simon Stevens, NHS CEO, NHS Confederation Annual Conference, June 2014

What is the ‘Breaking Boundaries’ review?

• A strategic review to examine future options in building an active collaboration with the public and making best use of their skills, knowledge and experience.

• Aims to build on achievements in public involvement to help deliver future ambitions for research and a healthier nation

• It will shape tone, style and approach to public involvement across the NIHR over the next 10 years.

Five areas of inquiry

1. Overall evaluation of progress to date2. Barriers to public involvement3. How we can do things differently4. Future design and delivery 5. What will success look like

Review will report in the autumn ahead of the INVOLVE Conference, Birmingham, 26/7 November 2014

Emerging themes

1. Value of public involvement2. Quality and standards3. Models of delivery: centralised versus

localised4. Evidence into practice: how to spread embed

effective, purposeful practice?5. Support, relationships, incentives

Your feedback• HSRN survey on people’s chairs• Submissions can be made up until 26th June

– Online: https://www.surveymonkey.com/s/NIHRbreakingboundaries – Using formal submission document: http://

www.nihr.ac.uk/awareness/Pages/BreakingBoundaries_CallforEvidence.aspx

– Taking part in Tweetchats (Details to be announced)

With thanks to CLAHRC NWL for their expert support

ppi.review@nihr.ac.uk