This presentation is a resource developed as

part of a face to face education event or

workshop.

The target audience is health and social care

professionals in roles providing palliative and

end of life care

The author has agreed to share the work to enable

best practice in the provision of end of life care

Advance care planning with people

with a learning disability

Katy Welsh, Sandra George

and Kelly Brown

Primary Care Liaison Team

Aymi Brown Meadowside Manager

Agreements

Learning outcomes:

• To understand the process of advance care planning and resources that have been developed for people with a learning disability

• To recognise cues and facilitate conversations with people about their plans and hopes for their future

• To consider ways to enable people you work with to have choices at end of life

Free access to end of life e learning

http://www.e-lfh.org.uk/programmes/end-of-life-care/

There are 35 sessions about communication and 18 about ACP within the 160+ modules available

Examples are:• Introduction Principles of ACP• Benefits & risks of ACP to patients,

families and staff• ADRT principles• ADRT in practice• Writing an ADRT• Approaching ACP when capacity is

uncertain

Learning Disability Mortality Review found

Compared with the general population the average age of death for people with LD is :

• 23 Years younger for men

• 29 Years younger for women

Advance Care Planning

What choices do I have?

Advance Care Planning

• End of life care Planning allows people to make important decisions regarding their end of life care and treatment

• It is ongoing

• Time and space is needed to do it well

• Allows people to express their wishes

• Is voluntary

• Remember people change their minds

https://www.england.nhs.uk/wp-content/uploads/2017/08/delivering-end-of-life-care-for-people-with-learning-disability.pdf

Click for a link to the document

Click on the picture for a link to the film

Click on the picture to access the website

Also available as an app for a smart phone

Devon PartnershipNHS TrustBucket List

Devon PartnershipNHS Trust

What is important?

• On your tables, think about what would be

important for the person you are

supporting?

• What would be on their ‘bucket list’?

Devon PartnershipNHS Trust

Click on the picture for a link to the film

Devon PartnershipNHS Trust

How can we enable this?

What resources are available?

• Easy read information

• Video clips

• Talking mats

• Conversations

Devon PartnershipNHS TrustTalking Mats

• Topics:

What you want to talk

about

• Options:

Relates specifically to

each topic

• Top scale:

Allows indication of

feelings

• Where would you like

to die?

• At home; hospital;

hospice.

• Yes; no; not sure.

Devon PartnershipNHS TrustTalking mat layout

Devon PartnershipNHS Trust

http://www.togethermatters.org.uk/im-thinking-ahead-pdf/

Click on the image for a link to the booklet

Devon PartnershipNHS TrustTea / coffee

Devon PartnershipNHS Trust

Devon PartnershipNHS Trust

When is the right time?

Learning from practice.

In your groups, think about what sort of

situations might lend themselves to having a

conversation about death and dying?

Devon PartnershipNHS Trust

Care home representative

How they have approached advanced care

planning in their care setting.

Aymi Brown

Devon PartnershipNHS TrustBucket List

Devon PartnershipNHS Trust

Devon PartnershipNHS TrustFeedback and Evaluation