thesycamoreproject kentucky’s prevention enhancement site for fetal alcohol spectrum disorders...
TRANSCRIPT
![Page 1: TheSycamoreProject Kentucky’s Prevention Enhancement Site For Fetal Alcohol Spectrum Disorders (FASD PES) Donna Wiesenhahn, M.Ed, CPP: Director, Bluegrass](https://reader036.vdocuments.us/reader036/viewer/2022081421/56649f165503460f94c2bb8f/html5/thumbnails/1.jpg)
TheTheSycamoreSycamore
ProjectProject
Kentucky’s Prevention Enhancement Site
For Fetal Alcohol Spectrum Disorders
(FASD PES)Donna Wiesenhahn, M.Ed, CPP: Director, Bluegrass Prevention Center &
FASD PES
Laura Nagle, BA, CPP: Coordinator, FASD PES
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What Are We Talking About?
Fetal Alcohol Syndrome (FAS)Fetal Alcohol Effects (FAE)
Alcohol Related Birth Defects (ARBD)Alcohol Related Neurodevelopmental Disorder (ARND)
All of the Above:
Fetal Alcohol Spectrum Disorder Fetal Alcohol Spectrum Disorder (FASD)(FASD)
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On any given day in the United States,10,657 babies are born
1 of these babies is HIV positive
4 of these babies are born with Spina Bifida
10 of these babies are born with Down Syndrome
120 of these babies are born with Fetal Alcohol Spectrum Disorder
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Why Focus on Alcohol?
Institute of Medicine: Of all the substances of abuse, including heroin, cocaine, and marijuana, alcohol produces by far the most serious neurobehavioral effects in the fetus, resulting in life-long permanent disorders of memory function, impulse control and judgment. National Institute of Alcohol Abuse and Alcoholism: Fetal Alcohol Syndrome (FAS) is the leading known cause of mental retardation in western civilization.Center for Disease Control: Although many individuals with FAS have mental retardation, most individuals with FAS have an IQ in the normal range.
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National Institute on Alcohol Abuse and Alcoholism: Persons with FAS have serious problems with attention deficits, impulse control, judgment, and memory. Although many of the physical characteristics associated with FAS become less prominent after puberty,behavioral and emotional problems become more pronounced.
Fetal Alcohol Spectrum Disorder is a lifespan issue. Children with
FASD grow into adults with FASD.
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Kentucky: Prevalence of FASD (Figures based on national prevalence data)
Total Population: 3,960,020
Number of live births: 54,492
# of FASD born per year: 543
# of total FASD: 39,603
# FASD under 18 years old: 11,880
# FASD 19 and older: 27,720
# FASD & Mental Retardation: 5,702
# FASD & Congenital Heart Defects:
18,873# FASD & Epilepsy:
2,375# FASD &ADHD:
15,840
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# FASD & Speech / Language Disorders:
32,867
#FASD & Hearing Loss / Deafness:
11,087
# children with FASD in Foster Care system:
9,503
# FASD & Mental Illness: 27,720
Annual costs for Special Education and Juvenile Justice for FASD (children age 5 – 18):
$19,958,400Total annual costs for FASD: $104,346,426
Cost per day for FASD: $231,200
Five year costs for FASD: $421,940,130
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Practically speaking, what does “brain dysfunction” mean?
Characteristic behaviors of an individual with FASD include:
Difficulty understanding abstract concepts in more than a superficial way.
Difficulty understanding cause and effect.Inability to generalize information from one setting to another; Very rigid thinking.Inconsistent memory & inconsistent performance.Poor judgment.
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When the primary brain injury is never
acknowledged and addressed, the child
grows up believing he is “stupid” and “worthless.” Secondary disabilities develop as a result of the
failure to properly deal with the primary disability.
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94% of individuals with FASD experienced mental health problems (depression, mental illness, suicide attempts)60% experienced trouble with the law (charged or convicted of a crime)
60% experienced confinement in a rehab facility, psychiatric hospital or prison
45% demonstrated inappropriate sexual behavior
43% were expelled or drop out of school
30% experienced severe problems with alcohol or other drugs
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If a woman is pregnant and she can’t stop drinking, she needs
and deserves help.
Other things to keep in mind……
FASD wasn’t identified until 1973.Medical professionals STILL recommend alcohol to “help pregnant mama relax”Treatment options for women are extremely limited.
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Beginning @ the Beginning
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Remember….
Alcohol affects whatever is
developing at the time that alcohol
is consumed.
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7 weeks
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13 weeks
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Frontal Lobe: Responsible for impulse control, judgment, regulation of emotion, planning, self-regulation, motivation
Corpus Callosum: Passes information from the left brain (rules, logic) to the right brain (impulse, feeling)
“What do you mean I can think about my feelings? I can’t think when I’m feeling.” Liz, 14, FASD
Brain Anatomy = Day-to-Day Functioning
Hippocampus: Responsible for forming, storing and sorting memories; “packaging” information to be stored in an organized way
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In order to effectively address behaviors,
we must look at behaviors as an
indicator of brain function – rather than as willful misconduct.
Non-competence, rather than non-compliance.
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Punishing a person Punishing a person with FASD for with FASD for
behavior resulting behavior resulting from brain from brain
dysfunction is like dysfunction is like punishing a person punishing a person
who is blind for who is blind for bumping into the bumping into the
furniture.furniture.
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Individuals with FASD have
challenges with…
…and yet the environment demands…….
slow cognitive pace rapid responses
dysmaturity, acts younger than age
grouped by age
memory problems, often needs re-teaching
remember after just one lesson
learn by doing abstract learning
difficulty transitioning
multiple transitions
need more time one timeline for everyone
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How much alcohol does it take to cause damage? What kind of damage is
caused by different amounts of alcohol?
“Depending on the dose, timing and conditions of exposure, as well as on the
individual characteristics of the mother and fetus, prenatal alcohol exposure can cause a
range of disabling conditions.”
--Dr. Ann Streissguth
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Wayne State University:(As published in 2001 Journal: Pediatrics)
The researchers found that children who had been exposed to ANY
AMOUNT of prenatal alcohol had a much higher incidence (3.2 times
higher) of aggressive and delinquent behavior. The effect was observed at average levels of exposure as low as
one drink per week.
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Belfast, Ireland:(1999 Study)
The researchers found that infants who had been exposed to one to four drinks per week showed significant
differences in “startle response” and “habituation”, as compared to the comparison group. This indicates
damage to the brain stem, which will affect learning and behavior later in
life.
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“Our lives would have been
So much less complicated
If all those born with A.R.B.D.
(Alcohol Related Birth Defects)
Were also born with F.B.H.
(Fluorescent Blue Hair).”
**Leon’s Mom
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Red Flags……
Confirmed prenatal exposure to alcoholBiological sibling with diagnosed FASPresence of facial features
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Orange Flags…
Maternal alcoholism
Adoptive / foster care status
Multiple co-occurring disorders that don’t quite “fit”
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Pink Considerations….
“Talks better than he thinks”Frequent rages / meltdownsInappropriate social interactionsDelayed motor skills
Difficulty with changes in routine
Sensory Integration issues
Easily overstimulated / difficult to soothe
Poor memory
Inconsistent skill levels from day to day
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Kentucky Resources, So Kentucky Resources, So Far!Far!FASD Prevention Enhancement Site:
Funded by Division of Substance Abuse; provides training and technical assistance to programs and agencies.FASD Statewide Training Network: Made up of local professionals who have attended 3-day Training of Trainers; So far, 315 trainers have trained 2000+ of their colleagues!Kentucky’s FASD Workgroup: Made up of representatives from Mental Health, Public Health, DCBS, Education, Substance Abuse. Goal: to increase the ability of programs to respond effectively to FASD issues
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Kentucky Resources, So Kentucky Resources, So Far!Far!
FASD Diagnostic Clinic:
Weisskopf Child Evaluation Center, University of
Louisville
Dr. Yasmin Senturias
502-852-7558
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TheTheSycamoreSycamore
ProjectProject
Donna Wiesenhahn, M.Ed, CPP: Director, Bluegrass Prevention Center
& FASD PES (859-225-3296)
Laura Nagle, BA, CPP: Coordinator, FASD PES (859-624-3622) –