Therapeutic Education: Therapeutic Education: Cancer Patients on Cancer Patients on chemotherapy:chemotherapy:

Shamim Akhter QURESHI

MBBS,MPH, Ingénieur d’étude(EHESP)

2nd June 2012

June 2010

ProjectProject

Contribution to a program of Therapeutic Education of Patients (TPE) treated for a cancer

Special concern at Educational

Diagnosis

Main concern about patients on chemotherapy

Host InstitutionHost Institution

Teaching Hospital Rouen, France

Under the supervision of Prof. Czernichow, the head of Public Health and Epidemiology.

Definition of TPEDefinition of TPE

A comprehensive approach to support patients and their families

To better understanding of their diseases

To acquire or maintain the skills they need to manage their life with a chronic disease in the best possible way.

WHO (1998)WHO (1998)

Why TPE ? Why TPE ?

More chronic diseases now

Multiple healthcare professionals

Patients empowerment for decision making

Better prognosis for patients

Best satisfaction at work for professionals

Why Cancer ?Why Cancer ?

A leading cause of death worldwide Cancer has been approved as chronic

disease TPE could both prevent cancer deaths and

reduce complications Many information needed by patients Making the quality of life better Several associated therapies with possible

Side Effects involved (radiotherapy, chemotherapy, surgery)

Two Cancer plans in France Pressures from patients groups

Basic Steps of TPEBasic Steps of TPE

1. To make an educational diagnosis 2. To Establish a tailored TPE

programme with learning priorities 3. To provide group or individual

sessions (or both) 4. To Assess acquired skills and to

revise programme if necessary (HAS)

What is Educational What is Educational Diagnosis ?Diagnosis ?

• A systematic, comprehensive, iterative collection of information by the health care provider

• Concerning each patient' bio clinical, educational, psychological and social status.

• • A basis to set the targets tailored for each

patient

Aim of the study:Aim of the study:

To identify the best method and time for educational diagnosis of hospitalized cancer patients on chemotherapy.

Methods (1)Methods (1)Literature review (Internet, Pub Med,

Journals) Main concepts : Cancer and therapies, Side effects, TPE, Educational diagnosis, Timing and method, To make questionnaires

Observation and interviews The whole Healthcare process for cancer patients

(Announcement consultations, Medical staff, Multidisciplinary –RCP- and Routine Meetings)

Data used (Medical records, Notes taken during meetings, Special workbooks (“classeur”)

Consultations of coordinating nurse Consultation with psychiatrist for the caregiver Informal conversations with dietician, hair dresser,

Geriatric, kinesthesist, psychologist 10 days in two different departments

Methods (2)Methods (2)Observation and interviews (cont)

Project meetings of Hospital staff for the TPE program elaboration Two courses for the educational training of medical staff for TPE

Ethical aspects

Verbal consent from the medical staff to access to the medical records,

Verbal consent from patients and professionals before interviews

Permission from the patient during my consultation observations

Results on health care Results on health care process (1)process (1) Outpatient is referred from family doctor with reports, see

specialist, have more investigations, if provisional diagnosis cancer,

Patient is called for announcement of diagnosis during a

special consultation

Record submitted to RCP, diagnosis and treatment is finalised according to the reaction the patient.

For chemotherapy : Patient goes to nurse to have explanations on intravenous chamber, side effects or any other question

Nurse notices his psychological and social life status, gives him the detail of all professional he is going to meet

Day hospital : medical examination, chemotherapy session, during weight check by dietician and advice if necessary, help from attending assistant

Inpatients more sick are admitted in weekly or traditional hospital

Diagnosis announcement in a room and followed by

other professionals (95%)

Everyday meeting of staff for taking charge and brief description of patient to each other

Special workbooks explanation and consent

Consultation with different professionals if required or asked before next weekly meeting

Coordinating nurse works as relationship between patient and all professional

Results on health care process Results on health care process (2)(2)

Results from PatientsResults from Patients All patients agreed on that

◦ structured interviews is a best method ◦ education should not be started just after

diagnosis announcement

Two out of three patients did not like the Special workbooks

One out of three did not like the announcement consultation and educational language,

Two of them did not want to take part in decision making about treatment

All of them never attended any special session for education

Results from 11 Results from 11 ProfessionalsProfessionals

None of them have got the training for TPE. 6 did not know about educational diagnosis All agreed with personal interviews as the best option

for educational diagnosis. Only one did not like the idea of TPE. Concerning time for ED :

◦ 8 agreed with the next weekly meeting ◦ 3 agreed with chemotherapy sessions

5 considered that Special workbooks can help as a part for ED while 3 thought it can’t,

4 considered that patients can understand about disease and therapy,

6 have the experience of patients asking questions 5 told that some patients participate in the decision-

making

Limitations of the studyLimitations of the study Short Pilot study

A single hospital, only 2 specific wards

Qualitative data without statistical significance

Both patients and professionals should have altered their behaviour because of the observation (Hawthorn effect).

Access to the patients but no data on family

ConclusionConclusionTPE seems to be not well known by professionals,

including EDOncopsychlogy should be improved

Time for ED has to be discussed : Weekly meetings can be a good place to finalize the

educational needs of the patient Just after the diagnosis announcement the patients

should not be given education

Method for Educational Diagnosis

Personal Interviews