therapeutic caring: a learning disability experience
TRANSCRIPT
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Christine GreenSenior Lecturer andComplementaryTherapyPractitioner,University ofLuton, Faculty of Healthand Social Science, Depart-ment of Public Health andPrimary Care EducationCentre, HighWycombeHP111QW,UK.
LynneNicoll Comple-mentaryTherapy HealthCare Consultant, For AllSeasons, 8 West Street,Marlow, Bucks SL7 2NB,UK.
Correspondence to:Christine GreenTel.: +44(0) 1494 425135
Therapeutic caring: alearning disability experienceChristine Green and LynneNicoll
This paper is a reflective account of our experiences of giving Therapeutic Touch (TT), forthe f|rst timewithin a learning disability setting, to a client who has profound learningdisabilities.Using a case study approach, we share our story of this pathf|nder journey ofdiscovery and showhow the process of reflectionwas instrumental in enabling us to gaininsight on the unfolding therapeutic and caring relationshipwhichwe developedwith thisclient. Issues relating to informed consent were addressed, however thesewere complexand needed special consideration. As client consent could not be achieved through verbalmeanswe needed to drawon our senses and use intuitive skills together with teaminvolvement.IntroducingTTinto a learningdisability settingwasbreakingnewground, andas this case study has shown it does appear to have the potential to enhance therapeuticcaring.r 2001Harcourt Publishers Ltd
Christine Green Lynne Nicoll
INTRODUCTION
Oscar is 25 years old. He lives in a Mencap home
for residents who have profound learning dis-
abilities. Oscar is severely epileptic, has no
speech, and a very limited cognitive ability. It
Complementary Therapies in Nursing &Midwifery (2001) 7,180^187 # 2001Harcourt Pdoi:10.1054/ctnm.2001.0563, available online at http://www.idealibrary.com on 1
seems his hearing and sight is intact. He wears a
helmet at all times, except in bed, to protect
himself in case he has a seizure. He can walk, he
weighs about 45 pounds and is approximately 4
feet in height. He suffers from severe and
progressive scoliosis. Oscar chooses whether to
ublishers Ltd
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Therapeutic caring: a learning disability experience 181
eat or drink or take his medication. He is not
forced in any way, as he is still able to make very
clear choices. His hold on life appears to be quite
tenuous.
We are both Therapeutic Touch (TT) practi-
tioners, and wish to share our story in working
with Oscar using TT. Whilst wishing to help
Oscar we would acknowledge that our therapeu-
tic relationship provided us with an opportunity
to extend our TT practice into working with
people with learning disabilities. In other words
this is a story about our journey of reflection and
discovery.
THERAPEUTICTOUCH
We define TT as a healing art, used to promote a
therapeutic and caring environment. It has been
found to be of benefit in reducing anxiety,
promoting relaxation and altering the perception
of pain. TT has the potential to place the patient
in the best possible position so that their own
self-healing processes can be activated.
In constructing this description of TT, we
draw on multiple existing definitions. For
example, Kreiger (1975), first named and de-
scribed TT as consisting ‘of the simple placing of
the hands for about 10 to 15 minutes on or close
to the body of an ill person by somebody who
intends to heal that person’ [p. 784].
Kreiger highlighted the significance of the
therapist’s intent to heal. This is referred to as
‘intentionality’. Martha Rogers’ Science of Uni-
tary Human Beings (1970) offers a nursing
theory to understand TT (Madrid 1994, Mills
& Biley 1994). In particular, Rogers identified
four inter-related concepts that help explain the
healing phenomena of TT:
K Energy fields
K Open systems
K Pattern
K Pandimensionality.
The energy field concept is based on the belief
that energy rather than atoms form the basic
structure of humans. The energy field consists of
a human energy field that is integral with
environmental energy fields. These fields are
open, enabling continuous changes of energy to
take place between them. Each energy field is
unique, and this can be read as a pattern that is
constantly evolving. The pattern is a reflection of
the physical body, which the TT practitioner
reads with her hands in order to note the energy
flow. Disruption of the energy flow reflects
bodily dysfunction. The TT practitioner,
through the use of her hands, smoothes out the
disruption to the energy flow helping to harmo-
nize and heal the body. Pandimensionality
relates to the body being connected to a greater
cosmic consciousness where there are no bound-
aries between energy fields, which are reflected in
such phenomena as deja vu and altered states of
consciousness.
Whilst we acknowledge that this description of
TT is limited, we hope Oscar’s story will
stimulate you to explore TT in greater depth.
We ask you to have an open mind to counter
prevailing prejudice within nursing and society
about such therapies. For example, Rayner
(1999) states that ‘Gobbledygook about this sort
of new age stuff is appearing all over the place
nowadays . . . (p. 220)’.
As such we are conscious about demonstrating
the therapeutic impact of TT. By sharing and
reflecting on Oscar’s story we aim to contribute
though a single case study the profound impact
of TT on Oscar’s life.
OSCAR
The Macmillan nurse, who was in contact with
the home carers referred Oscar to us. She felt that
Oscar’s condition had deteriorated and that TT
might be a useful therapy to enhance his quality
of care. Our first appointment at the home was to
meet the manager. She spent time with us and
explained Oscar’s medical and social history, and
she also tried to psychologically prepare us for
our first visit with him. She did this by explaining
his physical appearance in detail so that we could
create a mental image of him. She told us that
others have been ‘taken aback’ when first meeting
Oscar. At this point neither of us felt unduly
concerned as we thought our maturity and
professional skills would be transferable and
would equip us to deal with this new situation.
In fact we were feeling quietly confident. However
our quiet confidence was to be challenged.
When we first met Oscar we were consciously
aware of his fragility; his arms were like sticks,
so fragile, yet so whole. His blue helmet
appeared out of place on a body so small. He
appeared just like a little boy rather than a man
of 25 years. We both felt shock and disbelief.
Something we had not imagined. Nothing could
have prepared us for this moment. Even if the
manager had shown us a photograph of Oscar
we believe that this would not have conveyed
the true picture. We wrote in our reflective
diaries:
I experienced dual emotions – that of excitementand concern of doing any damage.
I felt awkward in his presence. I felt out of mydepth.
We found ourselves addressing our own inade-
quacies when communicating with people
who have learning disabilities. Suddenly com-
munication did not come naturally; we were
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182 ComplementaryTherapies in Nursing &Midwifery
momentarily lost for words and when we spoke,
the words seemed superficial and seemed to echo
politeness rather than the relaxed and comfor-
table interaction we had hoped for.
We were only with him for a few minutes but
the impact was enormous. At this point we
realised our limitations. Our previous experience
had not fully prepared us for what we had
encountered. We felt the responsibility of making
a choice – to proceed with Oscar’s treatments or
not? In many ways we felt it would have been
easier to have said ‘no’. But is ‘saying ‘‘no’’ . . .
playing safe? Or is saying ‘‘no’’ . . . opting out?’
There was a lot at stake. We felt that we would
be letting a lot of people down – ourselves, the
manager and Oscar.
From our perspective we were hungry for this
knowledge and new experience. We were look-
ing to extend the use of TT in different specialist
areas of practice. This would therefore be an
important learning curve for us as TT thera-
pists. We felt strongly that if we did not follow
this through we would be giving up an
opportunity to discover new understanding of
TT. Consequently the need to treat Oscar
became a challenge.
There was also the issue of letting the manager
down. We had informally agreed on our first
meeting with the manager, to offer Oscar 10
treatments. In a way we did feel a sense of
obligation, especially as the manager had gone to
great lengths to seek our services through the
Macmillan nurse.
Lastly, would we be letting Oscar down? At
this point we have to admit Oscar was not our
prime concern, as we had not as yet built up a
therapeutic relationship with him. The relation-
ship could be described as ‘I – It’ rather than ‘I –
thou’ (Paterson & Zderad 1976). This describes
the movement from an objective relationship to a
more subjective caring interactive relationship.
However, we also considered whether it was right
from a humanistic point of view to deprive Oscar
of this treatment.
We reflected that saying ‘yes’ might involve an
element of risk for us, as we felt inadequate in
this foreign setting. We were not apprehensive of
giving the treatment. We believed that as it was
our intention to help and heal, he would not be
at any risk.
However, we felt as if we were walking new
pathways. We were testing new ground. We were
pathfinders, and whilst this offered excitement
and challenge, it also evoked a certain amount of
fear and apprehension from deep within. Nicoll
(1996) describes the feelings pathfinders may
experience. She uses the words ‘apprehension’
‘fear’ and ‘loneliness’ and clearly states that
pathfinding is not an easy route. Reflecting back,
the feelings we were experiencing were to be
expected.
We knew we had many boundaries to over-
come. Initially the following questions were
uppermost in our minds. How would we know
whether he wanted the treatment and would his
non-verbal communication tell us his needs?
On that first day we did not treat Oscar. We
told him who we were and explained TT to him.
We touched him only in a social manner. Oscar
was sitting in his favourite chair in the kitchen.
He was entertaining himself by moving the
coloured objects on his ‘activity centre’. His
hands were constantly moving. We were later to
discover that this constant hand movement was a
characteristic of his which sometimes ceased
when he was in a more relaxed state during
treatment.
Despite our identified concerns and anxieties,
we both felt comforted that we had each other to
support and share with. This first day encounter
highlighted the depth of our emotions, the ethics
and delicacy of the situation and the need for us
to work closely together. We would find this to
be our safety net.
We decided not to treat Oscar on our first visit
because we wanted to get to know him and gain
some form of consent from him. We felt we
gained this as he did not move away from us
while we were talking to him, or as we slowly
began to move closer towards him, or when we
socially touched him. The manager also felt that
Oscar had given us his consent as he stayed with
us. She stated that if he had been unhappy or felt
uncomfortable with any person, he would get up
and leave the room. We were learning about
Oscar’s unique way of giving us his consent. On
the second visit and on most other visits, Oscar
clearly gave us his consent by walking with us
into the lounge. The staff expressed that they
were surprised at his action. They also stated that
Oscar would not go anywhere he did not want
to go.
The following comments, from our reflective
diaries, demonstrate the depth of our commu-
nication with Oscar:
The first time I treated Oscar, I held his hand andlooked into his eyes. He spoke to me with his eyesand body gestures that it was okay to give thetreatment.
Oscar had a way with him that made you veryaware of what he wanted and did not want.
We found it difficult to express this inner
knowledge we were developing about Oscar’s
ways. He was almost charismatic in the way he
drew us to him. He used assertiveness in all body
gestures to ensure the outcome he wanted.
Sometimes at the end of treatment Oscar didn’t likehis helmet being replaced. Was he trying to tell usthat he didn’t want his treatment to end?
Putting his helmet on against his will made us
feel awkward and uncomfortable but we feared
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Therapeutic caring: a learning disability experience 183
for his safety. He sometimes grunted but at
no time did he demonstrate any physical
resistance. We called Oscar’s expression of his
feelings ‘speaking without speaking’. It high-
lights the powerful nature of the way we
developed our non-verbal communications
with him.
The staff were also aware of his special form of
communication. They commented:
He has a unique form of communication andmanages to get across so well what he is feeling.
Everyone who meets him develops a close bondwith him.
He pulls himself into you, and you go into the backof his eyes, he is an amazing young man with afighting spirit.
Over the period we treated Oscar we began
to perceive his eyes as windows. We felt that he
used his eyes as his special form of commu-
nication. His eyes broke down barriers – they
were naked, knowing eyes. They sometimes
spoke with softness and sometimes agitation.
The eyes have been called the windows to the
soul (Dass & Gorman 1985). These words
reflected what we were sharing – the very being
of Oscar.
We reflected on Quinn’s (1996) definition of
TT when we were treating Oscar. She simply
states that ‘it’s the use of the hands on or near
the body with the intent to help and heal’
(p. 69).
Our intention to help and heal Oscar extended
beyond the physical; it was healing of the soul.
This we felt was through the greater cosmic
consciousness where there are no boundaries
between energy fields.
We noted in our reflective diaries:
When I commenced treatment with Oscar, I startedby using contact touch. This was useful to establishand connect with each other. I remember one of thefirst times I treated him, I gently caressed his hands.As I did, I noticed how smooth his skin was, yetpale. I remember feeling how privileged I was tohave made contact with this remarkable youngman. Although he could not speak to me, he spokein other ways. He told me he was pleased to see me.He also told me with his eyes and whole bodygestures.
This illuminates Rogers’ (1986) notion of ‘open
systems’, where two human energy fields were
interacting and interconnecting, in an integral
way. This allows for a continuous interchange of
energy to take place where energy is considered
to be the basic structure of humans.
On one occasion, whilst treating Oscar, thetelephone rang. Oscar was obviously disturbed bythis. His body moved in an erratic way. I spoke tohim in quiet, reassuring way telling him that thiswould not interfere with our interaction. Heseemed to know what I was saying. He wasresponsive to me.
This again illuminates Rogers’ ‘open systems’
(1986) demonstrating our special way of
connecting.
At the end of the session Oscar and I had developedan understanding of each other that was beyondspeech. It was a mutual understanding of a richnessthat is hard to describe. The strength of ourinteraction crossed physical boundaries. Itenlightened my soul in a meaningful way.
This illuminates Rogers’ (1986) notion of ‘pan-
dimensionality’, where there are no boundaries
between different energy fields. It felt as if we had
expanded into a greater consciousness of self-
realisation.
We learned so much from our encounters with
Oscar. When working with people with learning
disabilities it is important to be sensitive to their
every need. This was highlighted on Oscar’s
ninth treatment. Oscar had suffered a severe
grand mal seizure about half an hour before we
arrived. After discussion with a staff member we
decided not to treat him as he was heavily
sedated, and would not have been able to give us
his consent.
Prior to this encounter with Oscar we had
always gained his consent by walking with him
into the lounge and then by observing any
subtleties which occurred between us. These
subtleties we read as his unique pattern (Rogers
1986). Pattern recognition can be equated with
the inner voice that some people consider their
intuition (Newman 1986). It was these interac-
tions that made the consent unique and moved
us to a greater understanding of the diverse
means by which consent can be gained.
On this occasion Oscar was heavily sedated
and would have been unable to express himself in
a meaningful way, therefore we felt we would
have to consider consent in a different form. To
our knowledge there has not been any studies
undertaken on TT within a learning disability
setting, so the issue of consent has not been
addressed in this context. However Cox and
Hayes (1998) gave TT to an unconscious patient
in an ITU setting. They gained consent from the
next of kin. Oscar’s sister, his only surviving
relative, was aware that he was receiving TT.
However she relied on the staff, at the home, for
day-to-day decision making regarding her broth-
er. As the staff at the home took responsibility
for his care, we followed their advice and did not
treat Oscar on this occasion.
A week later we revisited him. Once again he
was in his own bedroom, as he had had another
fit the day before. The staff explained that they
sometimes, depending on the severity of the
seizure, let him rest in his room for at least a day
following a fit. They felt he was well enough to
receive treatment that day. We did not challenge
their advice but believed at that time that they
were acting in Oscar’s best interest.
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184 ComplementaryTherapies in Nursing &Midwifery
We had not been in his room before. A carer at
the home asked if she could observe the TT
session. We said she could; at this point we did
not know that she was planning to use her
observation of TT for her college assignment.
He was lying in his bed in the dark as if he had
just woken up. Looking back it seemed that he
was not prepared for his treatment and was
maybe caught off guard. We greeted him and
told him we had come to give him his treatment.
Usually he is the one to greet us. At first he
looked at us and then after we commenced his
treatment he became very restless. He even
climbed in and out of bed. We had no option
but to stop our treatment.
Reflecting back, we felt we had violated his
space. We had not asked his permission to give
treatment, or for someone to observe, or if we
could enter his room. The only way he could
express his displeasure was by being restless.
Could his restlessness be because he had nowhere
to run? We felt we had failed to appreciate the
sensitivity of the moment and, more importantly,
his uniqueness. It was almost as if we were so
involved with our need to treat him that we
forgot the purpose of why we were there.
We the therapists and the staff were healthy,
strong and powerful, and we encompassed his
space and rocked the scales off balance. Ful-
brook (1994) has highlighted that it is possible to
insensitively override the patients’ rights when a
person is more powerful than another. The
understanding of power can take the form of a
hidden agenda, as seen by our intention, which
was focused on achieving our outcomes and the
carer’s intention to complete her assignment.
As Oscar has limited ability to express himself
verbally, he could be seen to be in the weaker
position. However this was not to be the case as
Oscar used his unique way of communicating
with us, and he knowingly rejected our treatment
by preventing us from continuing.
Uniqueness is related to Rogers’ (1986) con-
cepts of ‘pattern’ and ‘open systems’. Oscar’s
pattern is unique to him, and he has the right to
withdraw or open his energy field. On this day he
exercised his right to choose not to have the
treatment. The UKCC (1992) state clearly that
the patient has the right to choose freely the care
they receive. Oscar’s perseverance not to be
treated and his determination to make clear
choices for himself resulted in him achieving his
outcome in directing his own life and maintain-
ing his autonomy (Seedhouse 1991).
This incident highlighted Oscar as a great
teacher and us as the pupils. It was not an easy
lesson. We remember feeling embarrassed and
humbled. We felt a little disappointed too, that
this was our last negotiated visit with Oscar, but
felt pleased that the staff had asked us to teach
them TT so that they could use it on all their
clients. At least there may be some continuity to
the treatment Oscar received.
WORKINGWITHOSCAR
The room Oscar chose to have treatment in was
inviting, warm, quiet and relaxing, with colours
that smoothed the mind. Such a therapeutic
environment was important not only for Oscar
to relax and receive TT, but it also provided us
with the medium for centering our conscious-
ness.
Centring, according to Sayre Adams and
Wright (1995), is ‘achieved by shifting awareness
from an external to an internal focus, becoming
relaxed and calm and making a mental intention
to assist the patient’ [p. 84].
The importance of centring cannot be under-
estimated. We feel that the key to a successful
outcome in treating a client with TT rests on the
frame of mind of the therapist. Calmness and
tranquillity facilitate the whole process of the
therapeutic experience. Consider a situation
where you have been with someone who is angry
and you leave feel negative yourself. In the
same vein the reverse must be true. Peace and
tranquillity have the potential to result in similar
feelings in your client. This puts them in a
position where they can heal themselves.
Over the 10 weeks we saw Oscar, he developed
his own routine. He always went and lay on the
sofa, and we supported him with pillows. He
showed no resistance to the treatment. We just
removed his helmet and he waited for us to
commence. He seemed to know when the session
was over and on several occasions he indepen-
dently got up and walked into the kitchen, causing
us to scurry behind him with helmet in hand.
It is worth mentioning that on some occasions
we, the therapists, worked together and at other
times we worked separately. Whether working
together or not, we always felt excessive warmth
around his head during the therapy. It could be
argued that this could have been because Oscar
has to wear his helmet all of the time, except when
lying down. However, the sensations of heat and
warmth in association with TT have been well-
documented (Green & Nicoll 1996, Bulbrook
1984, Macrae 1994, Keller & Bzdek 1986,
Raucheison 1984). But what was interesting in
Oscar’s case was the depletion, coldness and
emptiness felt from his neck downward:
I felt the energy field in the region of his headexpanded and hot. This was in stark contrast to therest of his body.
I felt excessive heat in the head region and adepleted coolness from head to toes.
During Oscar’s treatment we repatterned the
imbalances using our hands, smoothing his
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Therapeutic caring: a learning disability experience 185
energy field is a rhythmic fashion. Repatterning
involves, firstly, identifying the imbalances with-
in the energy field, and these may be perceived as
hot, cold, empty and depleted. The therapist then
mentally visualizes the wholeness of the indivi-
dual with the intention towards well-being.
Sayre-Adams (1994) defines repatterning as ‘the
process of projecting, directing and modulating
energy . . . assisting to re-establish the order in
the system’ [p. 27].
As Oscar’s imbalances were perceived to be
extreme, additional modalities such as colours
were used to rebalance his energies. Green (1998)
published a case study in which she used the
visualization of colour to gain a therapeutic
outcome. We used this medium to achieve a
similar effect.
I visualized the colour blue as my hands movedaround his head. I sensed that blue may act as acooling energy. This in turn may help rebalance theenergy field. I then noticed how quickly his energyfield was repatterned. The head now felt cooler.
At times his body was often motionless except
for his hands – they stroked each other in a slow
and caressing movement. Although he opened
and closed his eyes for equal amounts of time
before treatment, we noticed that during the
sessions his eyes were closed for longer periods.
Even when his eyes were open and focused,
they appeared relaxed, gentle and trusting. The
relaxation response associated with receiving TT
has been well documented (Green & Nicoll 1996,
Kreiger 1979, Heidt 1981, Quinn 1982, Olson et
al. 1992, Gagne & Toye 1994).
After we had given Oscar treatment we wrote
down our experiences. We did this as a means to
evaluate the treatment and to share the moment
and depth of the interaction with each other. We
were often surprised at how similar our observa-
tions and experiences were. Examples of these
are:
We both saw the energy like rays of light.
We both experienced the energy as a force pushingour hands further and further away from his head.
These energy manifestations may be considered
to be a pandimensional, especially as on occa-
sions we were not working together and neither
of us had verbally exchanged our experiences at
the time of treatment. Through our reflections
we were able to conceptualize non-linear ways of
being. This became rich and meaningful to us as
therapists and educationalists.
SHARINGOSCAR
Developing relationships with Oscar’s carers at
the home began on our first visit where we were
introduced to the home manager and the
members of staff who were on duty that day.
However we noticed that when we went on
subsequent visits there were often new faces,
some of whom did not seem to be aware of the
full purpose of our visit. It was only during the
treatments, when we were constantly interrupted,
that we realised that there was a flaw in the
communication links.
Our reflective notes identified the following
interruption during the first treatment:
She came in with his tea. She sat him up andproceeded to feed him. He was not happy. Heresisted and grunted. However drank his tea.Afterwards she remarked that – ‘he obviouslyenjoyed the treatment he was receiving because hedid not want to be moved, not even for his tea’.
We were aware that this was a learning
experience for the carer as well as ourselves.
Consequently we did not see the need to pursue
the issue further, other than taking the precau-
tionary measure of requesting that he had his tea
before commencing subsequent treatments.
However, as the following reflections high-
light, the interruptions continued:
Ten minutes into the treatment I was disturbed by amale care assistant who asked me what I was doing.I tried to explain but it wasn’t easy to break in themiddle of treatment. Interestingly he told me thathe was trained in holistic massage. I felt annoyedby this interruption as I felt it was unnecessary andit was difficult to recommence treatment.
A further 10 minutes into treatment I was disturbedby a female care assistant. Oscar’s eyes met hersand he cried out loudly. He seemed disturbed. Shetold me that she didn’t know Oscar well as she wasnewly employed. She informed me that Oscar hadsuffered a seizure earlier that afternoon and shegave this as her reason for disturbing me. I silentlyquestioned the wisdom of her action.
The constant interruptions affected the sensitiv-
ity of the moment and the connections were
often lost. This can be understood and related to
everyday reality when a person is disturbed
whilst in deep concentration. It is hard to
recapture that level of consciousness again.
During TT treatment we attain a level of
centredness which when disturbed can easily be
lost and can be difficult to regain. Consequently
the potential of the treatment may be compro-
mised and this could be even more marked if
there is rationing of treatment time available.
It wasn’t enough to assume that all members
of staff would not disturb us. Before each session
we explained to the staff members we would be
commencing the treatment and would be closing
the door. We asked not to be disturbed.
Reflecting back, it may also have been relevant
to have approached the home manager and
discussed this issue with her as she was in a prime
position to communicate with her staff.
We considered other possible reasons why we
were interrupted. Was it because of their lack of
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186 ComplementaryTherapies in Nursing &Midwifery
knowledge of the nature of the treatment? If this
was the case, we needed to have spent time
informing them and perhaps allowing them to
experience the treatment for themselves before
commencing Oscar’s treatment.
Another possible reason could be because
they were in the protective parent role. To us, it
seemed like they were parents wanting the best
for their child – yet not always knowing when to
let go. Sharing of Oscar may have been difficult
for them as they were the key carers and we
were the invited guests. They may have per-
ceived us to be encroaching on their caring role,
especially if they were ill informed as to our
intentions.
Despite a slow start we developed a good
working relationship with the carers. We
achieved this by sharing at a more personal level
and using day-to-day conversations. We noticed
that this helped to break down many of the
barriers. The evaluation that follows demon-
strates that the carers had also acknowledged the
value of TT in the caring of people with learning
disabilities. Over the 10 weeks we felt that we had
developed a partnership based on mutual trust,
value and respect. We were pleased with the
outcome and the way we had finally dealt with
the situation.
SHARINGWITHTHESTAFF
We were invited to attend the staff meeting to
evaluate Oscar’s treatment. This was a valuable
experience as it enabled us to gain the percep-
tions of the staff and to gather objective and
subjective data. The staff made the following
comments:
K Improvement in diet. ‘It was noted that
during the period he was receiving regular
treatment, he began eating three meals a day’
K Relaxation. ‘He was very relaxed afterwards
and did not want to move from the sofa’
‘It relaxed him so much’
‘It was a pleasure to see him looking so
relaxed’
K Increase in sensory awareness. ‘Over
Christmas he selected some Christmas cards,
he chose the bold and colourful ones’
K Time and Space. ‘He responded so well to the
treatment and there is not a lot of things he
can do and be involved in, it gave him his own
quality time and space’
K Communication needs. ‘Therapeutic Touch
gave Oscar the quietness he likes and the
one to one close contact he desires’
‘Oscar enjoys a quiet and calm atmosphere and
chooses to sit by himself quite often, he does not
always respond favourably to close contact, but
his choice is quite clear’.
REFLECTINGONREFLECTION
Throughout our time with Oscar we have been
able to develop our reflective skills. At the onset
we decided to share our reflective experiences
with each other and this allowed us to grow
together. We took every available opportunity to
jot down our thoughts. Often we did this on
scrap pieces of paper. We would then piece these
together, so that we could capture the moment in
time spent with Oscar.
In no time at all our reflective diaries had
grown, and they enabled us to gather both
objective and subjective data from a variety of
rich sources. Reflective writing is a powerful
means of exploring practice as it can make
possible new ways of theorising, reflecting on
and coming to know oneself and ones profession
(Holly 1989). Initially we reflected after the
event. Schon (1983) refers to this activity as
reflection-on-action. It involves looking back on
an experience and drawing from it meaning and
understanding.
As we have mentioned earlier, within this
placement setting, we were novices, eager to
learn, and reflection provided us with the scope
to do so. A structured reflection-on-action,
enabled us to look critically at both our strengths
and our weaknesses, and take action where
necessary by using a problem solving approach.
However as we became more confident and
comfortable with Oscar in his home setting, we
were able to develop and strengthen our reflective
skills even further. We moved from a structured
to a less structured reflection-in-action.
Schon (1983) described reflection-in-action as
‘our knowing is in our action’ [p. 49]. It is a process
undertaken in the midst of action, which draws on
the innumerable judgements of quality made by
competent practitioners, within their day to day
practice. Such action is governed by intuitive or
spontaneous thinking, which guides further action.
Certainly during our TT sessions with Oscar,
intuitive thinking was seen to be a dominant
feature, which enhanced practice. The profound
nature of our journal writing highlights this.
Reflection enabled us to enhance our depth
and breadth of knowledge of TT phenomena and
the underlying unitary theory and research
underpinning both TT and therapeutic caring
in context of a learning disability.
CONCLUSION
We acknowledge that TT was of great value to
the total well-being of Oscar. It was clear that
there was never going to be a physical cure for
him. This was never our intention. However TT
treatment improved his quality of living at that
moment in time in his life.
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Therapeutic caring: a learning disability experience 187
TT has been criticised strongly by Rosa et al.
(1998). They state that the claims of TT are
groundless and that further professional use is
unjustified. Their article reviewed some of the
published literature and tested 21 practitioners
with TT experience under blinded conditions to
determine whether they could correctly identify
which of their hands was closest to the investi-
gators hands. The findings of this study indicated
that the results were slightly worse than would
have been predicted by chance.
On reviewing our work with Oscar, Rosa
et al.’s (1998) research loses its relevance of what
TT is all about. The richness of the experience,
the perceived outcome and the sharing of new
knowledge cannot be compared to the clinical
outcome of the distancing of hands. In other
words, quality is much more important than
prediction. Especially when dealing with people
in palliative care.
Quality in our eyes was achieving a holistic
outcome. An analogy can be drawn with
McCaffery’s (1979) work on pain. She states
that ‘Pain is whatever the experiencing patient
says it is, existing whenever he says it does’
[p. 14].
This takes into account ‘pain as an experience’
rather than dividing the pain into subgroups.
Working with Oscar was also a lived experience
where he was the focus of our treatment. Not
whether we were dealing with his physical, social,
psychological or spiritual well-being. The whole
made the experience more than the sum of the
parts.
Reflection too, was part of the process of
achieving a holistic outcome. It was a useful tool
for enhancing our growth and development as
well as for problem solving. We feel reflection
enabled us to appreciate the therapeutic caring of
the total situation. It has been shown that we
worked closely together in order to look with
critical eyes at our practice. Dass and Gorman
(1985) offer the following appropriate quote; ‘We
work on ourselves, then, in order to help others.
And we help others as a vehicle for working on
ourselves’ [p. 227].
Breaking new ground is both exciting and
daunting. However we believe that we could not
have anticipated the outcomes we experienced
and shared. So many times we have used the
words unitary in our teaching but now we feel we
have experienced it.
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