theparkinson’s update · 2019-02-08 · the parkinson’s update 3 although we make every effort...

A Magazine for the Parkinson’s Community of Southwestern Ontario

WINTER/SPRING2019

Issue 69 12 14 17Difficult Conversations

PEP Online

Parkinson’s Terminology

TheParkinson’sUpdate

2 The Parkinson’s Update

From TheCEO’s Desk

MISSION STATEMENT

BOARD

STAFF

Parkinson Society Southwestern Ontario is the voice of people living with Parkinson’s in SouthwesternOntario. Our purpose is to ease the burden and find a cure through support services, education, advocacy and research.

Brad Richards (President)Joseph Salamon (Treasurer and Secretary)Haad AsadAnthony BenderAlysia ChristiaenChris CurryDr. Jeff HolmesGary PullamDr. Michael RavenekBev ZaifmanDr. Mandar Jog (Honorary)

Shelley Rivard CEO

Joanne Bernard Manager of Administration

Kaitlin Garbutt Coordinator, Programs and Services

Jessica Halls Manager, Special Events

Julia Nagel Coordinator of Special Events

Lisa Nixon Coordinator, Programs and Services

Vickie Thomas Coordinator of Volunteer Development and Administration

A special thanks to

for their significant contribution to this newsletter.

As we begin 2019, it is natural to reflect on successes and consider changes for the future of Parkinson Society Southwestern Ontario (PSSO).

Thanks to you, we had an amazing 2018! We experienced growth in WALK-IT for Parkinson’s with many new and returning participants raising an incredible $437,153! During April Awareness, we introduced Living Well Conferences in four locations, providing education about Parkinson’s and mental health to over 450 attendees.

As we enter these exciting times, we continue to work on a new strategic plan which will shape the direction of PSSO over the next three to five years. We have a niche market, supporting those living with Parkinson’s in Southwestern Ontario.

Education continues to be a priority. PSSO provides conferences, workshops, support groups, webinars, information packages and consultations with our newly certified Information and Referral Specialist, Lisa Nixon. More than ever before, people with Parkinson’s and their families have opportunities to enhance their quality of life.

The education of healthcare workers through the online PEP for Community Caregivers translates into better care and enhanced dignity for people living with Parkinson’s in long-term care facilities and retirement homes.

Advocacy assumes many forms. Whether it is educating healthcare professionals, speaking on behalf of a loved one or appealing to government, advocacy can make a positive difference in dealing with the challenges of living with Parkinson’s. PSSO is forming an advocacy committee in order to have a stronger, louder voice. We invite you to become involved by joining the committee or by volunteering to contact your local representative on what matters most. You are your own best advocate!

Our hope is to extend our reach throughout Southwestern Ontario to all those affected by Parkinson’s. We want to ensure people know that we are available to help in their Parkinson’s journey - We’re in this together!

Warm wishes for 2019!

Shelley Rivard CEO

PSSO Team (left to right): Shelley Rivard, CEO; Julia Nagel,

Coordinator of Special Events; Kaitlin Garbutt, Coordinator, Programs and Services; Lisa Nixon, Coordinator,

Programs and Services; Jessica Halls, Manager, Special Events; Vickie

Thomas, Coordinator of Volunteer Development and Administration;

Joanne Bernard, Manager of Administration.

Front Cover Photo:Parkinson Education Program (PEP) for Community Caregivers goes ONLINE! See page 14 for details.

3The Parkinson’s Update

Although we make every effort to ensure that the information in The Parkinson’s Update is accurate, we cannot take responsibility for any errors or omissions. Information is sometimes taken from letters to the editor, submissions from the Internet or other print material. We make an effort to acknowledge all of our sources.

The information is not intended to take the place of professional medical advice. If you are a patient currently being treated and have questions, or if you think you have Parkinson’s but have not been diagnosed, please seek the advice of a medical professional. This information does not replace consultation with your physician.

Recycle andCreate Awareness

Regional Office: 117- 4500 Blakie Rd., London, ON N6L 1G5Phone ...................................... (519) 652-9437Toll Free .................................. 1-888-851-7376Fax .......................................... (519) 652-9267

e: [email protected]: www.parkinsonsociety.ca

Waterloo Office:Wilfrid Laurier University Northdale Campus, 66 Hickory St., Waterloo, ON N2L 3J4Please call Kaitlin Garbutt at 1-888-851-7376 before visiting the office

www.facebook.com/ParkinsonSocietySWO/

www.twitter.com/ParkinsonSWO

Check Out our Monthly Parkinson’s Webinars! Parkinson’s webinars are online workshops with expert speakers providing

information on important Parkinson’s-related topics.

Benefits to webinars:Convenience

Speakers and participants do not travel to participate.

Cost-Effective There is no expense of booking meeting

space.

Informative A question and answer period follows the

presentation.

Easy No type of special equipment is needed.

How to participate:

1. Go to parkinsonsociety.ca/events and select a webinar.

2. Click Register.

3. A confirmation email will be sent to you with simple instructions.

4. After the webinar you will receive a recording to review at your leisure.

See page 30 for dates of up coming webinars.

When you have finished reading this newsletter, please pass it on by leaving it in a library or a waiting room of a doctor’s office, or give it to a friend.

A Message from the PSSO Board PresidentBrad Richards,President,Parkinson Society Southwestern Ontario Board

These are exciting times for Parkinson Society Southwestern Ontario (PSSO) thanks to you. You have supported us in many ways, including volunteer efforts, donations and community connections. In October, we invited you to participate in a survey and your feedback will help us shape the future of the organization. We certainly appreciate you sharing your opinions!

On behalf of the PSSO board, I am pleased to announce two additions to the board – Dr. Jeff Holmes and Gary Pullam. Jeff and Gary bring years of important healthcare and marketing experience to the PSSO board.

Dr. Jeff Holmes is an associate professor of occupational therapy at Western University. Jeff has been a volunteer with PSSO since 2003. His volunteer experience ranges from speaking at conferences and webinars to parking lot attendant at WALK-IT for Parkinson’s. Dr. Holmes’ training and experience in the healthcare field are definite assets to the PSSO board.

Gary Pullam is an experienced sales and marketing executive with a record of leadership and achievement in the healthcare field. Gary’s corporate background with Trudell Medical Marketing Limited, Johnson & Johnson Medical Products and Abbott Laboratories will be a great asset to PSSO.

Welcome Jeff and Gary to the PSSO board.

April is Parkinson’s Awareness Month(see back cover for details)

Robert’s advice for someone just diagnosed: “Find out as much as you can about Parkinson’s. Learn and ask questions. Never stop asking questions. Join a support group; you won’t regret it. There is so much knowledge to be gained, with guest speakers, healthcare professionals and all the people who share their stories and discuss successes and challenges. Remain active. And talk about it. Talk about your journey with Parkinson’s. Don’t keep it inside. The help and support you need is there.”


Rob EcclestoneRobert’s first indication that something wasn’t right was a tingling in his thumb that just wouldn’t go away. As a part-time wedding photographer, he began having challenges holding the camera the way he wanted. He decided to look into the situation.

After numerous tests and three opinions, he received the official diagnosis of Parkinson’s in 2007 at age 40. He couldn’t believe what he was being told. He thought that perhaps it was a temporary stress reaction as he had lost his father during that time who had also been unwell throughout the previous year. But the unusual sensations in his hand continued.

Because Robert’s symptoms were not strong at that point, he didn’t share his story for the first four years after being diagnosed. He didn’t feel comfortable talking about it. But five years ago he met Kersty, the woman who was leading the Orangeville Parkinson’s support group. She encouraged Robert to come for a visit. Both Kersty and the support group were instrumental in helping Robert talk about his experience. Robert states, “It was like coming out of the darkness – sharing stories, hearing others talk about their experience and learning from each other. Don’t wait like I did. The best thing you can do when you receive this diagnosis is get into a support group right away.” Robert became so involved with the support group that he took on the role of Kersty’s back-up until Kersty retired. Robert now co-chairs with his sister-in-law Christine Cianfagna.

Over time, Robert and his wife Lisa were forced to downsize their photography business, and work with smaller sports groups and weddings. “I can continue to do what I enjoy, according to my schedule and health, and not let the anxiety and physical concerns I had before interfere. It’s far less stressful now.”

Robert is grateful for the incredible support he receives from his employer, the Township of Centre Wellington, where for the past twenty-two years he has worked full-time as a maintenance facility attendant at the local community centre. During the challenges of tremors, awkward gait and energy-level fluctuations, the township has always been, and continues to be, very supportive.

Five years ago Robert became the lead for the Annual Orangeville Parkinson’s walk. His sister Brenda has participated in the walk for years. At one walk he was introduced to the woman who was running the event. When she decided to move on, Robert decided to get involved. He now organizes and manages the event every year. His entire family supports and is involved in everything that goes into making it happen. His wife Lisa and sister Brenda not only participate, they also help with organizing and advertising. Their children Mercedes, Hudson and Conley have the responsibility of rounding up prize donations and leading the draws after the walk. For Robert, “This is an important event that helps provide needed funding for Parkinson’s research.”

Robert’s life with Parkinson’s changed drastically three months ago after undergoing deep brain stimulation (DBS) surgery at Toronto Western Hospital. “It is as if someone is shining a light on my life now. I can walk better, movement is easier, I’m not as exhausted all the time and I can do more than I have been able to over the past few years. The change is phenomenal.” This journey will still continue with regular checkups to ensure the changes are holding strong. Adjustments may be made as needed, but for Robert, this procedure has been life-changing.

Robert continues to remain active with swimming classes at the community centre. Lisa talks about the importance of consistency in life, “Routine is so important. Diet is important. Make an effort to have meals at the same time every day, be consistent with medications, go to bed and get up at the same time every day. It all has a significant impact on overall health.”

– Written by Cheryl Losch, Volunteer, London

I Have Parkinson’sBut It Doesn’t Have Me


Advocacy

Chris Hudson and Mary Ellen Clinkett met with Shelley Rivard to discuss the need for the Parkinson’s community to advocate with a stronger, louder voice on important issues affecting those living with Parkinson’s in Southwestern Ontario.

Together, Chris, Mary Ellen and Shelley identified areas that they felt provision or support was deficient:

• Affordability of medications • Availability of medications • Access to Movement Disorders Specialists and other healthcare providers • Employment issues • Lack of meaningful improvements in treatments and a cure (Levodopa was the last major breakthrough and that was 49 years ago!)

An article published in the Journal of the American Medical Association by Drs. Dorsey and Bloem titled The Parkinson Pandemic – A Call to Action advises that Parkinson’s is the fastest growing neurological disorder, surpassing the growth of Alzheimer’s. The article also states that the number of people with Parkinson’s worldwide will double from 6.9 million in 2015 to 14.2 million in 2040.

To combat this pandemic, the Parkinson’s community needs to speak out for much better provision and action. We must pursue similar strategies to those that in 15 years transformed HIV from a fatal illness into a highly treatable chronic condition.

Chris, Mary Ellen and Shelley are part of the Parkinson Society Southwestern Ontario Advocacy Committee. If you are interested in being part of the committee or can help access influential contacts in government, industry, finance, etc., please contact Shelley Rivard at 1-888-851-7376 or [email protected].

NOTE: To access The Parkinson Pandemic – A Call to Action article, go to parkinsonsociety.ca/advocacy/

Parkinson’s Medical Reception & Annual General MeetingCelebrate World Parkinson’s Day by honouring our Medical Partners in the Southwestern Ontario Community.

Thursday, April 11, 2019Ivy Spencer Leadership Centre 551 Windermere Rd., London

5:45 pm - 6:30 pm • Annual General Meeting (members are encouraged to attend)6:30 pm - 8:00 pm • Medical Reception (everyone is welcome) • 2019 Graduate Student Research Program announcement

Wine & hors d’oeuvres will be served.

Please RSVP by April 1, 2019 by contacting Shelley Rivard at 1-888-851-7376 or [email protected].

Mary Ellen Clinkett

Chris Hudson


Dr. Mandar Jog trained in Neurology and Movement Disorders at the University of Toronto and completed a post-doctoral fellowship in

Computational Neuroscience at the Massachusetts Institute of Technology in Boston. Currently, Dr. Jog is a Professor of Clinical Neurological

Sciences at Western University. He is the Director of the Movement Disorders Program at London Health Sciences Centre.

The Clinic has received the prestigious designation of ‘Centre of Excellence’ awarded by the National Parkinson Foundation, Inc.

Ask TheExpert

I have heard about electromagnetic therapy and would like to hear if this can be used to treat Parkinson’s and how effective it is.

As far as I know, there isn’t any form of validated electromagnetic therapy for Parkinson’s disease. Transcranial magnetic stimulation (TMS) is being used in certain diseases such as severe chronic depression and refractory depression. Of course, there is a possibility that such TMS treatment might also help with the motor state of Parkinson’s disease and it has been studied and continues to be studied. However, TMS in the form of repetitive stimulation (called rTMS) is only performed in specialized centres. The equipment is expensive and the treatment effects are not often felt to be long lasting. Therefore TMS has not yet reached mainstream treatment options.

Electroconvulsive therapy (ECT), has been used for many years for treatment of psychosis in patients with Parkinson’s disease. It is also very well known that ECT can improve not only the psychiatric symptoms, but also the motor state of patients with Parkinson’s disease quite effectively. However, mainstream ECT treatment for typical motor symptoms of Parkinson’s disease cannot be used at this time. It is utilized in those patients who have severe psychiatric complications, along with motor dysfunction where adjustment of medications is not possible.

Are there any vitamins which help delay the progression of Parkinson’s?

There are no vitamins at this time that have been validated and tested to slow down the progression of Parkinson’s disease. We do not recommend that patients supplement their diet with any specific vitamins. However, for nutritional reasons, many elderly patients can be Vitamin B12-deficient and this needs to be tested. Vitamin B12-deficiency can cause numerous neurological symptoms, including peripheral neuropathy, which could affect walking, balance and gait. Therefore, I always test Vitamin B12 levels in patients where I am concerned that nutritional intake might be abnormal.

Why does anxiety increase tremor?

Anxiety is a condition which predominantly is defined psychiatrically as the behaviour and the inner feeling of an individual who is anxious. However, along with the emotional state of mind, physiological factors, such as increase in heart rate, blood pressure, sweating and dryness of mouth, do occur. The reason why these physiological changes occur is related to the underlying biochemistry which results in most, if not all, symptoms of anxiety, which is an increase in the circulating factors, epinephrine and norepinephrine. These two chemicals also act as neurotransmitters, along with having systemic body-wide effects. They act not only on the physiological symptoms mentioned earlier, but they also act on peripheral nerve and muscle systems. This increases the firing of neurons causing excessive twitching right at the muscle level. Circulating epinephrine and norepinephrine levels in the brain can also have an effect on neurons in the brain. This can increase their firing rate, or their effect on the nervous system, which can worsen tremor itself.

However, increase in anxiety-related tremor is not unique to Parkinson’s disease. All other forms of tremor, which could be essential tremor, dystonic neck tremor or tremor for multiple sclerosis, can all increase with anxiety, again with potentially the same underlying biochemical cause.

Are You in the Waterloo Region?Parkinson Society Southwestern Ontario’s Kaitlin Garbutt works at:Wilfrid Laurier UniversityNorthdale Campus, 66 Hickory St., Waterloo (back door of parking lot)Please call 1-888-851-7376 before visiting the office.


Ask TheExpert

Is the root cause of Parkinson’s disease mainly environmental or genetic? What does the most recent literature suggest?

Unfortunately, we still don’t have a clear answer to this question after 50 years of research. As we know, many environmental factors can be implicated in causing degeneration of neurons. Specifically, when it comes to those neurons affected in Parkinson’s disease, exposure to toxins and pesticides, manganese in well water and in miners, exposure to carbon monoxide, repeated head injury and trauma have all been environmental factors that have been potentially linked to causation of Parkinsonism. However, the problem with all of them is that the exposure needs to be at toxic levels. Therefore, working in the administrative department of a company that does welding is not enough to be considered a cause of Parkinson’s disease. When it comes to cerebral trauma, there is no data to indicate that trivial trauma to the head is a risk factor for the general population to get neurodegenerative disease such as Parkinson’s disease. At least at this time, repetitive head injury is felt to be required.

The same is true with genetics of Parkinson’s disease. At this time, the identified genes account for less than 10% of inherited forms of Parkinson’s disease. Indeed, it is clear that not everyone who has had the gene for Parkinson’s disease will in fact get the clear physical state of having Parkinson’s disease either. Therefore, the genetic picture of Parkinson’s disease is also unclear. We routinely do not screen patients who have no family history of Parkinson’s disease.

Finally, most scientists believe that it is a combination of double or triple hit, or more hits to the nervous system. There is a genetic predisposition to having vulnerability to the brain’s neurons. This may not result in the disease unless a second factor (environmental factors such as low doses of carbon dioxide or working in a mine) precipitates the disease. The exposure from the environment would not have caused the disease had the genetic predisposition not been there. Simply having the genetic predisposition would not cause the disease if there wasn’t a second hit from the environment. There could be multiple factors (environmental, or single, triple or quadruple hits). This is currently unknown. Again, we don’t counsel patients specifically on the environmental or genetic factors how or where they should live.

However, if there is a strong family history of Parkinson’s disease and if the risk for a given individual increases over and above the population, we suggest to patients that it can be worthwhile to have genetic testing done from the panels that are currently available.

Join us for a showcase of some of London’s best restaurants and catering companies

and their Signature dishes! Check out parkinsonsociety.ca for a complete list of

restaurants and caterers.

in partnership with

Tickets only $25available at:

all Finch Auto Group dealerships, Budweiser Gardens box office,

online at parkinsonsociety.ca or call (519) 652-9437.

All proceeds support local programs and services for people with Parkinson’s.

MONDAY,JUNE 3, 201911:30 – 1:30 @BUDWEISER GARDENS

If you have a question for ‘Ask the Expert’, please email [email protected]. Although all questions will be considered, we cannot guarantee that your question will be published.

In-service workshops to facilitate the care and treatment of people living with Parkinson’s

may be arranged through Parkinson Society Southwestern Ontario.

Also, speakers may be arranged for presentation to service clubs, employee groups

and other general interest groups. For more information, please call 1-888-851-7376 or

email [email protected].

Public Education


Reader to ReaderMy Experience with PEP

My involvement in helping to develop the online Parkinson Education Program (PEP) for Community Caregivers began in November 2016, six years after my grandmother’s Parkinson’s diagnosis. Eager to learn more about how I could support my grandmother, I began collaborating with my peers to convert the existing PEP manual into more concise PowerPoint slides for the recently released online program (see page 14 for more information).

Through my involvement, I gained valuable insights about Parkinson’s. I learned about the different sleep disturbances that may manifest and the potential side effects of medication-based treatments. I also learned the value of easily accessible, practical resources in managing the challenges of Parkinson’s.

For example, my grandmother suffered from freezing episodes for years. By chance, my family discovered that applying pressure to her fingertips with a pen helps alleviate these episodes. Interestingly, I later learned that tactile cues are listed in the PEP manual as a possible means of relieving freezing episodes.

After completing the slides, I worked with Dr. Mary Jenkins and Dr. Angela Roberts to revise modules one to four and write accompanying voice-over scripts. The revisions centred on updating information to better reflect current guidelines for managing the challenges of Parkinson’s.

For example, in module two (Communication), information on hearing loss was incorporated. In module three (Emotional and Psychiatric Changes), information was updated to include the different types of delirium to better reflect current geriatric medicine guidelines. I am optimistic that updates to the program will continue as new knowledge about Parkinson’s is gained through research and patient input.

My two-year volunteer experience has been informative and worthwhile. I am excited to see the impact that PEP is having in our community. I believe that its wide accessibility and emphasis on current, practical information will make it a valuable resource for individuals supporting those living with Parkinson’s.

Trevor Jairam London

Trevor Jairam, London

strong. compassionate. fierce. talented. generous. devoted. smart. sassy. kind. brave.

Sunday April 28thCelebrate your beauty within by

treating yourself to a wash, cut and a style at a participating elite salon.

The best part? You're supporting an entire community of people living

with Parkinson's Disease in Southwestern Ontario. So feel good,

inside and out. You're worth it.

$45


Reader to Reader Kudos!

Nancy McAlpine and Lynda Kopas

I wish to thank my friend and personal trainer Nancy McAlpine for all her help during my struggles with Parkinson’s. She has been my saviour and my rock, along with my family.

In 2006, I was diagnosed with Parkinson’s. At the time I was a 58-year-old wife, mother of two and a full-time ER nurse. Nancy was the one who actually sent me to see the doctor, as she noticed my left arm was not swinging and I was noticeably more fatigued than usual. I had to leave my beloved job one year after diagnosis, as I could not keep pace and had severe back pain.

Nancy noticed my decline and set up an exercise program for me. She comes to my house once a week for an hour and I do a program every other day. It’s amazing! I’m much stronger and I have better posture, endurance and attitude.

I encourage all those with Parkinson’s to become involved in some form of exercise or physical activity that works for them.

So once again … Kudos to my dear friend Nancy!

Lynda Kopas Waterloo

Our Monthly Giving ClubPlease consider joining our Monthly Giving Club. Monthly gifts provide a secure funding base for Parkinson Society Southwestern Ontario and lower administrative costs. This allows us to direct more money to our vital services throughout the region.

As a monthly donor you will automatically become a member and the $30 membership fee will be waived.

Membership Matters!There is strength in numbers, and a strong, supportive membership:

• ensures programs and supports are in place for people with Parkinson’s in Southwestern Ontario;• demonstrates a commitment to the work of our organization;• strengthens our credibility and strong connection with the community;• lends weight to our request for funding from foundations, government or corporations;• influences our community leaders to listen when we speak to them about issues that affect people with Parkinson’s and their

families and caregivers.

Benefits include:• a donation receipt;• having a voice in the programs and services offered to people with Parkinson’s in Southwestern Ontario;• a vote at the Annual General Meeting to elect members of the volunteer Board of Directors and approve the

organizational by-laws and audited financial statements;• receiving The Parkinson’s Update, a bi-annual magazine that contains helpful information and strategies for living well with

Parkinson’s;• receiving advance notice of special events, educational workshops and seminars through regular member

correspondence.

Being part of the Monthly Giving Club is easy:• complete the blue monthly giving form and mail to Parkinson Society Southwestern Ontario; or• complete the online form at www.parkinsonsociety.ca; or• call us at 1-888-851-7376.


ResearchUPDATE

Graduate Student Scholarship Program

Parkinson Society Southwestern Ontario Graduate Student Scholarship Program is a strategic initiative to encourage young scientists to enter the field of Parkinson’s research and to invest in research and training that offers promise for future work in the area of Parkinson’s. The following is an update from the 2019 award recipients.

Erind Alushaj Project: MRI Study: Uncovering Preclinical Biomarkers of Parkinson’s Disease

Since winning the PSSO Graduate Student Scholarship, I have collected structural and functional MRI data on patients with REM Sleep Behaviour Disorder (RBD) and healthy control participants. RBD is a rare condition thought to be an early manifestation of Parkinson’s disease (PD). Recent research has indicated that patients with RBD have structural changes in their brain that resemble those of PD. The discovery of changes in the brain that accurately predict the development of PD, called preclinical biomarkers, would improve diagnosis, treatment and management of the disease.

My data collection is on-going, given the rare nature of RBD and the need to rule out other neurological disorders in these patients. Once collection is complete, I will compare data from RBD patients to our healthy controls, along with early-stage PD patients, which I collected in a previous project. My preliminary analysis will look at the volume, shape, structural connections and iron deposits in the brain areas affected in both disorders. I intend to present my research findings at local, provincial and national conferences in the coming months. These accomplishments have been made possible thanks to the support of the PSSO Graduate Student Program.

Daryn Cushnie-Sparrow Project: Efficacy Study of the Speech-to-Noise Feedback (SNF) device

Since receiving the PSSO Graduate Student Award, we have made significant progress in our preparations to test the Speech-to-Noise Feedback (SNF) Device in individuals with Parkinson's disease. The award has been instrumental in the process of developing the device, creating the study protocol and navigating the ethics process.

We have succeeded in acquiring ethics approval to proceed with our investigation of the device's efficacy in treating hypophonia in individuals with Parkinson's disease. Currently, we are testing the device prototype with control participants, in order to fine-tune the final device's parameters. Our intention is to ensure that the device has the best possible chance of being beneficial to the individuals with Parkinson's disease who choose to participate in our study. We plan to begin constructing the devices in the near future, and to start using the device with individuals with Parkinson's disease in early January, 2019.

Continued on Page 11

With your help we can do so much more for people living with Parkinson’s.

VOLUNTEER TODAY!Call 1-888-851-7376 or email [email protected]

to find out how you can help.


Research

The London Movement Disorders Centre Brain Bank is now fully functional

The London Movement Disorders Centre Brain Bank is now fully functional. Patients who are part of the centre are eligible to consider donation of brain tissue upon passing. This is possible only for those who are patients of our clinic and have been followed regularly at the clinic. Autopsy costs are covered for these patients only. Transportation costs will also be covered if needed.

If you or a family member are interested in such a brain donation upon passing, please discuss this with Dr. Jog and his team members or with Drs. Jenkins and Macdonald as appropriate. Their patients are also welcome to take part in this program.

Patients residing at home and in care facilities are all eligible. Information and consent packages are all ready and will be given to those who express interest. Patients at home can keep the information and forms at home. Those in care facilities can hand them over to the charge coordinator or an appropriate individual for safekeeping. All aspects of the procedures are explained clearly in the documentation.

Upon passing, these forms have to be completed and appropriate consents signed. All materials are to accompany the body to the London Health Sciences Centre University Hospital. Again, all of this information is included in the packages.

Michael Tauro Project: Identifying New Approaches that will Help to Address How Alpha-Synuclein Contributes to Mitochondrial Dysfunction in Parkinson’s Disease

When I received the Graduate Student Scholarship from PSSO, I had several goals I wanted to achieve. My research project was focused on alpha-synuclein (aSyn), the most notorious of Parkinson’s disease (PD) proteins. Many studies aimed to shed light on how aSyn is associated with PD, yet a conclusive answer has never been found. My goal was to uncover how exactly aSyn causes cell death, and thus neurodegeneration in PD, and what can rescue this cell death.

I have since found that aSyn interferes with mitochondrial homeostasis, resulting in toxicity and cell death. More specifically, we found aSyn interferes with key mitochondrial processes such as mitochondrial fusion and membrane integrity, all of which guarantee proper function. Mitochondria are responsible for producing most of a cell’s energy. Accordingly neurons cannot function without intact mitochondria. Yet I also found some ways to rescue the toxicity caused by aSyn. I found that inhibiting mitochondrial fission and increasing levels of the lipid ceramide rescued aSyn toxicity. Therefore, I have provided valuable evidence relating to the nature of aSyn and how it causes toxicity and by extension, PD.

My research also established a novel yeast model to study PD, which will be useful for future basic science projects and initiatives to discover therapeutic strategies for the treatment of PD.

Future studies will have a more direct target when attempting to develop therapies and cures for PD. I am most grateful for the PSSO Graduate Student Scholarship, which allowed me to pursue this exciting research to uncover new mechanisms involved in PD.

Science and the development of new ideas and thoughts are the golden rule for innovating better and important therapies. This is especially true for the brave new world of neurodegenerative disorders as we understand them today. Graduate students who support this mandate are absolutely essential in providing the manpower and fuel. Without funding for these students, scientific advancement would grind to a halt. The role of funding agencies is to foster these young minds so that the future of science in studying Parkinson’s disease remains bright.

– Dr. Mandar Jog

UPDATEGraduate Student Scholarship Program

Continued from page 10

From TheResource Centre


Difficult Conversations:Three tips to help you with your next difficult conversation

Difficult conversations. We all have them—with our family and friends, co-workers, care-providers or the people we support. Difficult conversations are a fact of life. How do we handle them? Three ways are the use of Boundaries, Resiliency/Self-Care and Communication.

Tip #1: BoundariesBoundaries are like the fences that define properties. They set limits, letting others know what we will allow, what we are prepared to do (or not do) and what we think is appropriate.

While boundaries are an important part of mental health, we often don’t know how to set them. Generally, setting boundaries involves knowing our limits and then communicating them to others.

Specifically, how do we use boundaries in handling difficult conversations?

• Be aware of our triggers. We can all be emotionally hit, depending on the topic. By knowing your triggers, you may be able to remain logical during the discussion.

• Be aware of your emotional state. Are you ready to have this talk? It’s OK to delay the conversation or not to have it at all. A firm “I am not comfortable having this discussion" or "It’s not an appropriate time to have this talk” can be a good way out. If you feel that you will be ready at some future date, let the other person know this.

• Know your facts. Sharing facts from a trusted source may help support the conversation. For example, know about the progressive nature of Parkinson’s and its many symptoms. If a difficult conversation has been postponed, be prepared to have the talk when the time arrives. Gather any necessary information beforehand.

• Talk about the facts or issue, not the emotional content. It’s easy to become caught up in the emotion around a difficult topic. If you feel that you’re being triggered and the emotional temperature is rising, take a step back and return to the facts. Sometimes this means taking a break and continuing the conversation at another time.

• Be upfront about the rules of engagement. Sometimes difficult conversations take place in a group—especially a support group. It’s the facilitator’s job to communicate the group rules around confidentiality, respect and appropriate topics at the beginning of the meeting.

If you would like more detailed information on boundaries, visit Laurie’s blog post at https://www.laurieblaikie.com/boundaries-are-your-friend.

Tip #2: Resiliency and Self-CareWhen we are resilient, we are able to bounce back when things become difficult. Resiliency is our staying power. We build it by taking care of ourselves on a consistent and regular basis.

Take a moment to dream. How would you practise self-care?

• Increased physical activity?

• Healthy food?

• Spending positive time with family and friends?

• Yoga, mindfulness or meditation practice?

• Getting out in nature?

As our stress levels decrease, we are able to think more clearly, communicate more effectively and become less reactive.

Continued on Page 13


Continued from page12

If you would like more detailed information on resiliency and self-care, visit Jayne’s blog post at http://innovativewellness.ca/three-building-blocks-to-resiliency-and-self-care/.

Tip #3: CommunicationBeing able to communicate means much more than talking, especially with difficult conversations. When we are brought into exploring a challenge, one of the most useful things we can do is listen and hold a safe space for the conversation to take place. But what does this mean?

• Each person is allowed to express themselves.

• Recognize that everyone is different and has their own perception.

• There is no judgement. Instead participants take the role of 'detective' to try to understand others’ points of view.

Difficult conversations can be hard, but with the above tools you will have the confidence to enter into them and help them to be resolved in a healthy way.

About the AuthorsBoth Laurie (Pictured on right) and Jayne (Pictured top right) specialize in working with people living with chronic/critical physical and mental health challenges such as Parkinson’s, anxiety, depression, grief and loss.

Jayne Hembruff, Pictured top right, offers trauma-informed yoga therapy. Jayne can be reached through her website http://innovativewellness.ca/

Laurie Blaikie, Pictured bottom right, Registered Psychotherapist, is in private practice. Laurie can be reached through her website www.laurieblaikie.com.

Difficult Conversations:Three tips to help you with your next difficult conversation

The Parkinson’s Update 13

Information and Referral Have a question about Parkinson’s? Need help finding information or accessing services in your local community? Call Parkinson Society Southwestern Ontario toll free at 1-888-851-7376 or email [email protected].

Information and Referral is connecting people with the resources that can help them. As defined by the Alliance of Information and Referral Systems (AIRS), “Information and Referral (I&R) is the art, science and practice of bringing people and services together. When individuals and families don't know where to turn, I&R is there for them. ”

Lisa Nixon recently completed her certification in Information and Referral and is available to respond to inquiries Mondays, Tuesdays and Thursdays.

Gift Planning is the act of planning a gift to Parkinson Society Southwestern Ontario.

Here are ways to make a difference through a bequest:

· Invest in PSSO’s greatest needs· Contribute to a specific program

· Donate to research and help find a cure· Commemorate a life

Making your gift of hope for today and tomorrow is easy. Call 1-888-851-7376

or email [email protected].

The Parkinson Legacy

From TheResource Centre Parkinson Education Program (PEP) for

Community Caregivers Goes ONLINE!

The Parkinson Education Program (PEP) for Community Caregivers is an introductory eight-module online educational series offered by Parkinson Society Southwestern Ontario. This program is aimed at caregivers (e.g., nurses, personal support workers,

allied health professionals) who provide care to individuals living with moderate to severe Parkinson’s. The program is ideal for healthcare professionals working in community settings (e.g., home health care, retirement homes, long-term care homes and hospitals) caring for those living with Parkinson’s.

Today’s caregivers are pressed for time, making it extremely difficult to attend educational opportunities. For that reason, Parkinson Society Southwestern Ontario has created the online Parkinson Education Program (PEP) for Community Caregivers to offer flexibility so all caregivers can learn about Parkinson’s, on their time and at their own pace.

In developing this educational program, our aim was to help reduce the burden of living with Parkinson’s and to improve quality of life for affected individuals, their family members and their care providers. Educating our communities is very important because Parkinson’s disease is among the fastest growing neurological conditions and it is expected to surpass the growth of Alzheimer’s disease (Dorsey et al., 2007). Knowing this, action is needed now!

Parkinson Society Southwestern Ontario welcomes all long-term care homes, retirement residences, community organizations, hospitals and home healthcare agencies interested in educating their staff about Parkinson’s. Each module takes approximately 35 to 60 minutes to complete. It includes a multiple-choice quiz at the end, requiring a minimum of 80% passing grade.

After completing all modules of the Parkinson Education Program (PEP) for Community Caregivers, a personalized Certificate of Completion is issued.

A special thanks to our contributors Dr. Mary Jenkins, Dr. Angela Roberts, Dr. Mike Ravenek, Jamie Fritz and Trevor Jairam for making the online PEP for Community Caregivers possible.

The first module of the Parkinson Education Program (PEP) for Community Caregivers can be delivered in person. Please contact Kaitlin Garbutt at kaitlin.garbutt@ parkinsonsociety.ca for more information.

Dr. Mike RavenekDr. Angela RobertsDr. Mary Jenkins

Trevor JairamJamie Fritz

Online modules include:

• What is Parkinson’s?

• Communication

• Emotional and Psychiatric Changes

• Sleep and Fatigue

• Nutrition and Swallowing

• Activities of Daily Living

• Movement and Mobility

• Medical Treatment

By taking this program, participants will be able to:

• Identify the signs and symptoms of Parkinson’s

• Understand the current treatment options available for Parkinson’s

• Develop strategies to better manage communication deficits common in Parkinson’s

• Understand and support emotional and psychiatric changes in Parkinson’s

• Help improve sleep quality, and use strategies to conserve energy during the day

• Have knowledge on the impact of dietary protein on medications, how to keep bones healthy with Parkinson’s and strategies for dealing with trouble swallowing, heartburn and poor appetite

• Feel confident in supporting activities of daily living for someone living with Parkinson’s

• Understand motor fluctuations, freezing and festination of gait, falls in Parkinson’s and strategies that can be implemented to improve safety and mobility

• Recognize the importance of medication schedules, fluctuations, types of medications and ways to cope with adverse effects of medications



Nine Tips for Getting Rest and Sleep With Parkinson's

The physical symptoms of Parkinson’s disease can often prevent those who live with the condition from getting a good night’s sleep and adequate rest. The restorative effects of sleep can improve health and help those with Parkinson’s disease better manage the disease on a daily basis, so ensuring they get enough quality sleep is essential.

The National Parkinson’s Foundation has published some tips on how to get a good night’s sleep, including:

• Establish a bedtime routine. This is one of the keys to a successful night’s sleep. Try to do the same relaxing things each night prior to going to bed. Whether this is having a warm bath, reading a book or watching a TV show it is up to you. Try to go to bed and wake up at the same time each day in order to establish a regular sleep schedule.

• Avoid things that may disturb sleep. Stimulants such as caffeine, alcohol and nicotine are best avoided for an hour or so before bedtime. Likewise, limit the number of liquids you drink so that you’re not waking up in the middle of the night to visit the bathroom.

• Exercise. Exercising during the day will help you sleep better at night. However, it’s best to avoid exercising just prior to retiring for the night.

• Get plenty of light during the day. Exposure to bright light during the day helps our bodies to recognize nighttime and the need to sleep when it gets dark. Natural light works much better than artificial light, so try to spend a bit of time outdoors if possible, or sit near a well-lit window.

• Create a comfortable sleeping environment. A comfortable mattress and pillow are essential. If you can’t afford a new mattress, look into purchasing a mattress topper that can help you feel more comfortable during the night. Keep your bedroom at a cool ambient temperature and if you need to open a window, make sure you’re not in the draught. Ideally, your bedroom should only be used for sleeping and romantic encounters. Banish work or study books, piles of laundry, the television, electronic devices and other non-sleep-related items. Create a tranquil haven where you can relax.

• No pets allowed. Cats and dogs love to sleep close to their owners. They also like to take up more than their fair share of the bed, make noise and disturb you. Give them their own beds in a different room.

• Try over-the-counter sleep aids. Limit prescription sedatives to a two-week period and try a natural alternative such as Valerian root capsules.

• If you can’t sleep, get out of bed. Give yourself 15 minutes to fall asleep. If you’re still awake after this time, get out of bed and sit down and read a book, or listen to some relaxing music until you feel sleepy.

• Limit naps. A nap can be very restorative but it can also interfere with nighttime sleep. Try to limit naps to no more than 40 minutes a day.

Note: This article has been produced by Parkinson’s News Today. By Wendy Henderson, January 17, 2018, https://parkinsonsnewstoday.com/2018/01/17/9-tips-getting-rest-sleep-parkinsons-disease/

We are currently looking for healthcare professionals interested in being trained to give effective Parkinson’s In-Service Presentations in their own communities.

For more information, contact Kaitlin Garbutt at 1-888-851-7376 or at [email protected].

Wanted: Volunteer Mentors for PEP for Community Caregivers

17The Parkinson’s UpdateNote: this article has been produced by, and reprinted with the permission of Parkinson Association of Alberta

From TheResource Centre Parkinson’s Terminology

and Jargon Explained

Parkinson’s Terminology and Jargon ExplainedDid you know statistics indicate that almost half of all patients do not understand medical language or jargon? It is not always an easy task to communicate complex information in a clear and manageable way, because the needs of people are as varied as their levels of understanding about a disease or their health in general. This is not just a healthcare issue. For many industries, a version of ‘insider speak’ is developed. Though familiar to those in the know, it can be like a foreign language to those who do not know. This page contains some of the more common terms and jargon used in regards to Parkinson’s disease (PD).

AKINESIA – the loss of the ability to move one’s muscles voluntarily. The absence of movement. Muscle rigidity.

APATHY – lack of interest, enthusiasm, or concern. A non-motor symptom of Parkinson’s disease that can appear as part of depression or on its own, and is likely due (at least in part) to a lack of dopamine.

ATAXIA – a movement disorder marked by loss of balance and decreased muscle coordination during voluntary movements.

AUTONOMIC DYSFUNCTION – problems with one’s autonomic nervous system (ANS). The ANS is made up of nerves that control several basic bodily functions including (but not limited to) blood pressure, heart rate, sweating, dry mouth, drooling, digestion of food and constipation.

BILATERAL – affecting both sides.

BLOOD-BRAIN BARRIER – a naturally occurring barrier created by brain capillaries that prevents many substances from leaving the blood and crossing the capillary walls into the brain tissues.

BRADYKINESIA – slowness of movement.

CLINICAL TRIAL – any organized research study that uses human participants to test one or more health-related interventions (e.g., drugs, surgery, etc.) to evaluate the effects on health outcomes.

COGNITION – the mental process involved in gaining knowledge and comprehension. This includes thinking, knowing, remembering, judging and problem-solving.

CP – Care Partner.

DEEP BRAIN STIMULATION (DBS) – a surgical option where electrodes are implanted in a precisely targeted area of the brain. This is available to some individuals whose medications are not enough to control PD symptoms and/or when extreme motor fluctuations impede optimum functioning.

DOPAMINE – a chemical produced by the brain responsible for relaying messages that plan and control body movement.

DOPAMINERGIC – an adjective used to describe a chemical, a drug or a drug effect related to dopamine.

DUODOPA – a procedure encompassing both the pharmacologic and surgical component of PD treatment that sees the delivery of levodopa/ carbidopa done in gel form via a tube and pump system directly into the body.

DYSARTHRIA – speech difficulties due to impairment of the muscles associated with speech that can happen at any time and tend to increase as Parkinson’s progresses.

DYSKINESIA – abnormal, uncontrolled, involuntary movement that can affect one body part or the entire body. It may appear as a side effect of long-term drug treatment in Parkinson's and it may worsen in response to stress.

DYSPHASIA – difficulty speaking.

FACIAL MASKING – see Hypomimia.

FAMILIAL PARKINSON’S DISEASE – Parkinson’s disease that runs in families and is thought to have a primarily genetic cause. This type of Parkinson’s accounts for less than 5% of PD cases worldwide.

FREEZING – a sudden, but temporary, inability to move that often occurs when initiating movement (such as walking) and/or at a ‘boundary’ (such as a doorway). Most individuals experience episodes when they are ‘off’ or are due for their next dose of medication.

HYPOMIMIA – the reduced or loss of facial expression. So named because the condition gives an affected person a fixed, mask-like expression. Often called facial masking or Parkinson’s Mask.

HYPOPHONIA – reduced vocal loudness; soft voice.

IDIOPATHIC – adjective meaning ‘of unknown cause.’ The typical form of Parkinson’s disease is idiopathic Parkinson's.

LEVODOPA – drug containing a form of the brain chemical dopamine, commonly used to treat Parkinson’s disease.

MICROGRAPHIA – an acquired disorder commonly associated with PD, in which handwriting is abnormally small and cramped, or progressively smaller.

MILD COGNITIVE IMPAIRMENT – deficiency in executive functions (multi-tasking, problem solving and reasoning), attention difficulties, visuospatial (depth perception, sense of direction) dysfunction, slowed thinking, difficulties in finding words, and difficulties in learning and remembering information.

MOTOR SYMPTOMS – symptoms that involve movement and mobility. In Parkinson’s these include resting tremor, bradykinesia, rigidity and postural instability.

NEURON – a specialized cell that transmits nerve impulses; a nerve cell.

NEUROTRANSMITTER – a specialized chemical substance produced in nerve cells that permits the transmission of information between nerve cells. Dopamine is one example of a neurotransmitter.

NON-MOTOR SYMPTOMS – symptoms that do not involve movement or mobility. In Parkinson’s the range is fairly large and includes sleep disturbances, mood disorders, psychosis, cognitive impairment and autonomic dysfunctions.

OLFACTORY DYSFUNCTION – the reduced or loss of sense of smell.

ON/OFF – fluctuations that occur in response to levodopa treatment in which the person's mobility changes suddenly and unpredictably from a good response (on) to a poor response (off). ‘Off’ is typically most noticeable as one’s dose of levodopa wears off and before the next dose takes effect.

POSTURAL INSTABILITY – a tendency to fall or the inability to keep oneself from falling; imbalance.

PWP/PWPP – Person with Parkinson disease/Person with Parkinson Plus Range of Motion – the full movement potential of a joint, usually its range in the ability to flex and extend.

RESTING TREMOR – a shaking that occurs in a relaxed limb, and disappears with active limb movements.

RIGIDITY – muscular stiffness, characterized by a resistance to movement in the limbs.

YOUNG ONSET PARKINSON’S DISEASE – a form of Parkinson’s disease characterized by the onset of symptoms before age 50.


People with Parkinson’s disease (PD) may experience low blood pressure (hypotension) at some point during their disease progression. In fact, one in five people with PD is affected by orthostatic hypotension, also called postural hypotension: low blood pressure experienced when changing positions (e.g., moving from lying down or sitting to standing up). This occurs because PD can impair the body’s natural reflex mechanism that causes automatic adjustments of your blood pressure when you change position, exercise, eat, or are out in warm or cold weather. Also, anti-Parkinson’s medications (and many other drugs) can lower blood pressure.

Blood pressure decreases when blood vessels relax or lose their ability to constrict. If there is less fluid in the body, the circulating blood volume is decreased and blood pressure drops. Normal blood pressure range is 100/60 to 140/90. While some people will not experience any warning signals, drops in blood pressure below 100/60 may result in dizziness, lightheadedness or weakness. If severe, hypotension can lead to fainting or falling. Individuals have also used terms such as giddiness, sleepiness, tiredness and mental or visual blurring to describe what has actually turned out to be low blood pressure.

These sensations will often intensify upon standing or after walking. Although any time of day is possible, many report the occurrence more in the early morning hours to 1-2 hours after receiving a dose of medication.

It is important to understand the cause and to treat the problem before an episode of fainting or falling occurs. Monitoring blood pressure – lying down as well as standing up – should be routine. Here are a number of simple measures which can be used to restore normal blood pressure regulation:


Low Blood Pressure in Parkinson’s

Evaluate Medications Ask your doctor to re-evaluate your complete medication list. Adjustments of the medications themselves or the timing sequence might be all that is needed.

Increase Fluids and Salty Foods Interventions such as increasing fluids and salt in the diet can be very effective. Drinking eight glasses of water per day and eating salty foods are commonly recommended. With more fluid in the body, circulating blood volume is enhanced and blood pressure increases.

Caffeine In addition to adding fluid, drinking caffeinated coffee enhances blood vessel constriction, thus increasing blood pressure.

Frequent, Small Meals Blood pressure is often lowered after a large meal, so it can help to eat frequent, smaller meals. Alcohol should be avoided, as it has a tendency to dilate blood vessels, contributing to lower blood pressure.

Environment Warm weather, hot baths, or any activities that cause blood vessels to relax should be avoided.

Clothing Waist-high compression/support hose (e.g., Jobst® stockings or Sigvars® pantyhose) can be helpful in maintaining blood pressure.

Slow Position Change When rising from a lying position, sit on the edge of the bed for a few minutes, then stand up slowly, holding on to a secure support.

Bed Position Raise the head of the bed 30-40 degrees. Lying flat for a prolonged period of time can contribute to lower blood pressure.

Medication Occasionally, salt tablets or medications such as droxidopa (NortheraTM), fludrocortisone (Florinef®), and Proamatine (Midodrine®) are prescribed. By increasing blood volume and promoting vascular constriction, these drugs help raise blood pressure. The risks associated with using these drugs can be controlled with close medical supervision. Some patients respond better using a combination of treatments.

www.parkinson.org Linda P. Miller, R.N., M.Ed. The Parkinson Handbook

Join us for a showcase of some of Waterloo’s best restaurants and catering companies

and their Signature dishes! Check out parkinsonsociety.ca for a complete list of

restaurants and caterers.

MONDAY,

Tickets only $25

available online at www.parkinsonsociety.ca

All proceeds support local programs and services for people with Parkinson’s.

101 Father David Bauer Dr., Waterloo

Let’s Do Lunch! Signatures Waterloo Region!

JUNE 10, 201911:30 – 1:30 @WATERLOO MEMORIAL RECREATION COMPLEX


2018 Parkinson’s Regional Conferenceat The Inn of Waterloo on October 20

Thank you to all of our speakers and sponsors who made this event possible!

Note: Recordings from past conferences can be found by going to http://www.parkinsonsociety.ca/videos-and-audios/.

Premier Sponsor

Principal Sponsors

Associate Sponsors

Dr. Quincy AlmeidaDr. Jim Frank

Dr. Joyce Lee Greta Mah

Renee Heitner

Roula MandasSteve Ludzik

Conference Speakers

Dr. Jim Frank is thanked by Ashley Fox for his presentation on Be Safe: Reducing Fall Risk and Improving Mobility.

Sponsors were in attendance to provide information and to answer some questions of attendees of the conference.

Location

Total: $437,153

Amount Raised

Brant-Norfolk Chatham-Kent

hciredoGGrand BendLondon & District Orangeville Owen Sound Oxford County Port Elgin

notbmaL-ainraSSouth Grey Bruce & Hanover Area Stratford & Area Strathr yoTillsonburgWaterloo Region

xessE-rosdniW

Thanks to everyone who

joined us to make WALK-IT for Parkinson’s

in 2018 a huge success!

Photo compliments of Bruce Raynard

$14,054$10,479$16,219$7,347$92,477$11,336$11,411$5,944$18,651$43,176$42,414$37,449$11,604$6,479$47,150

$60,963

21WALK-IT for Parkinson's

2018 WALK-IT for Parkinson’s Sponsors

Emerald

Assante Wealth Management, Bruce Power, Dure Foods, Enbridge Pipelines Inc., Hunter Steel & Supply Ltd., KW Civitan Club, McCormick Canada, Newtex Cleaners, Ross Totten Insurance, RPA Enterprises, Steeves & Rozema, Toyota Motor Manufacturing Inc.

Action Health Care, Bill McConnell - RBC Dominion Securities, Bluewater Office Equipment, CBI Health, Carson Cleaners, Chatham- Kent Dental, Compass Minerals, Core Fuels Ltd., Dr. D.G. MacKay Dental, E. Hoffman Plastics Inc., Gates Canada Inc., Georgian Bay Cremation Services, Hamstra Carpet One, John Ernewein Limited, Karn’s Roofing, L.H. Jenkins, Leed Tego, Matchett Financial Services Inc., Ontario Power Generation, Parlan Precase Inc., Precision Home Medical Equipment, Rowland Your Independent Grocer, South Gate Centre, Strathroy Mini Storage, T A Brown Funeral Home, Team DeCoppel Remax Land Exchange, The Dock’s Restaurant, The Queen’s Bar and Grill, Tim Horton’s, Town & Country Mutual Insurance, Unifor Local 44, Unifor Local 88, Viking Cives Ltd.

AM800/CTV, AM1380 & Jewel 92, Bluewater Radio 91.3, CHYM FM, Country 106.7, Country 107.3, Easy 101, My FM, 92.3 The Dock FM, 98.9 The Beach, 104.7 Heart FM, 570 News.

Saphire

Media

Premier

Media

Principal

For a list of top teams and walkers, go to www.parkinsonsociety.ca.


CommunityPartnerships

Julia Nagel has joined our team as Coordinator of Special Events. Julia brings enthusiasm and energy that will be an amazing asset to our team. Julia comes to us as a university graduate from Western University with a Bachelor of Arts and a double major in History and Political Science. Her most recent work experience at FireRock in London will bring a fresh perspective to our events. Julia is very happy to join the Parkinson Society Southwestern Ontario team and is excited to help make a difference in the lives of people living with Parkinson’s. She looks forward to working on our exciting events in 2019!

Hold Your Own EventA new year is upon us and you may be interested in supporting Parkinson Society Southwestern Ontario in new ways. How about planning your own community fundraising event?

Become a Champion for Parkinson’s and raise funds to support Parkinson’s services, education, research and to help build a strong advocacy campaign in Southwestern Ontario. Parkinson Society Southwestern Ontario can provide friendly support, as well as website and social media promotion.

From garage sales, birthday parties and barbecues to sports tournaments and car shows, no event is too big or too small. Take the lead, get creative, build awareness, raise funds ... and don’t forget to have fun!Your actions have an impact – start planning your event today!

For more information, contact Jessica Halls, Manager, Special Events at 1-888-851-7376 or [email protected].

CHAMPIONS FOR PARKINSON’S

Dance- a-thon

TriviaNight

Your actions have an IMPACT. Start planning

your event TODAY!

YodellingCompetition

MotorcycleCruise-in

CommunityPartnerships

Community Partnerships100 Kids Who Care Dufferin (Orangeville)Bencom Financial Corporation Customer Appreciation Golf Day (Kitchener)Canduct Industries Ltd (London)City Hall Charity Chest (London)Hessenland Novemberfest (Zurich)Highland Golf/Curling Club (London)Kerwood Bethesda UCW (Kerwood)Ladies Auxiliary RCAFA Wing 404 (Waterloo)London Police Association (London)Long Point Lioness Club (Port Rowan)Lori South (Kitchener) Tupperware FundraiserOrder of the Eastern Star Bethlehem Chapter 136 (London)Putt Fore Parkinson’s Golf Tournament (Cambridge)Sail on With Parkinson’s (Sarnia)Sherwood Systems (Kitchener)Southwestern Ontario Lawn Tractor Racing Association (SOLTRA) (Belle River)St. John Ambulance Southwestern OntarioStorage Worx (London) Sydney Armstrong Garage SaleThe Elmwood and District Chamber of Commerce (Elmwood) The Probus Club of Kitchener-Conestoga Club 51

Honouring Loved Ones Through DonationsDanee and Sharon Class (Waterloo) 50th Wedding AnniversaryDavid Collins (Barbados) ChristmasRaymonda Christiaen (Tillsonburg) ChristmasJanine Currie (London) ChristmasTom Cowan (Mount Brydges) 75th BirthdayRobert Daragon (Windsor)Charlie and Marion Frosst (London) 60th Wedding AnniversaryMelissa Groff (Mississauga) BirthdayStephanie Holmes and Kris Eby (New Hamburg) WeddingIrene (Tillsonburg) BirthdayJesseka (Leamington) 20th BirthdayRichard MacLennan (Ayr) Elaine MacPherson WeddingTerry Rizzo (Brantford) 80th BirthdayDoris Sawer (Sarnia) Christmas Sydney (Waterloo) 8th BirthdayHudson (Cambridge) 1st BirthdayOtto Weber (Stratford) ChristmasGary and Elizabeth Welch (London) 50th Wedding AnniversaryGeorge Werezak (Sarnia) Christmas

Find Out if Your Employer Offers a Matching Gift or Volunteer ProgramMany companies have matching gift programs in which they will match a donation given by an employee, retired employee or even volunteers. Check with your company’s human resources department and ask your parents/friends/relatives if their employer has a matching gift program as well. Then, work with employers. It’s an easy way to double your impact.

Participating Organizations:CA TechnologiesComark Services Inc (London) Green Shield Canada (GSC) Sifton Family Foundation (London)Union Gas - Vancouver Foundation Matching Gifts Program

FoundationsEnterprise Holdings Canada Foundation London Community Foundation

Thank you 100 KIDS Who Care Dufferin for awarding PSSO

with a cheque for $1,000. Kaitlin Garbutt's presentation on

Parkinson's won the competition!

Thanks to the organizers of the Highland Bonspiel for raising funds for PSSO.

Elizabeth and Gary Welch celebrated their 50th anniversary with family and friends with donations going to PSSO – Congratulations! (pictured with daughter Tara and son Todd)

2019 Putt Fore Parkinson’s was a great success!

Special thanks to Grant and the team at Sherwood Music in Kitchener for hosting a fantastic concert in support of PSSO!



Volunteerism

Volunteer Profile: Bob Cotie

Bob Cotie received his Parkinson’s diagnosis about nine years ago. Like many who are newly diagnosed, Bob researched Parkinson’s on the Internet. He landed on the PSSO website (parkinsonsociety.ca) and registered for the Regional Parkinson’s Conference.

After attending a couple of Parkinson’s conferences, Bob felt compelled to get involved. He began volunteering with the Port Elgin, Kincardine and Area Walk for Parkinson’s and has been a part of the planning committee for four years now. Bob’s focus is on visiting local businesses in order to obtain corporate sponsors and the local corporate community has been very generous.

Bob Cotie recently retired as a pastor at two churches. He remains very involved in the community by helping to provide free dinners every Monday night through the generosity of one of his sponsors, The Queen’s Bar and Grill. He is also involved with the local food bank.

Bob understands the value of attending support groups. He enjoys attending the Young-Onset Parkinson’s Coffee Club in Hanover where he has gotten to know a number of people. Bob and his wife Deb also spend some time in Florida where they have met others living with Parkinson’s. There is the possibility of starting a support group there as well.

Bob has been enjoying his volunteer experience and is very impressed with the amount of dedication he sees with others volunteering for Parkinson Society Southwestern Ontario in his community. He feels that volunteers are necessary to get things happening, like education, awareness and research.

The Port Elgin, Kincardine and Area WALK-IT for Parkinson’s has become an annual event for Bob and his family. The group of about 18 (kids and grandkids) not only participate in the walk, but also come early to help with set-up. Volunteering is truly a family affair!

WE NEED YOU

VOLUNTEER TODAY!

Alone we can do so little;Together we can do so much.

– Helen Keller

With your help we can do so much more for people living with Parkinson’s

Contact Vickie at 1-888-851-7376 or [email protected]


Support Group News

What is a Parkinson’s Support Group?Parkinson Society Southwestern Ontario has a large network of regional support groups for people living with Parkinson’s, their carepartners and loved ones. New members are always welcome.

A support group can be a very effective tool for enhancing your ability to cope with the challenges of Parkinson’s. A typical meeting may include:

• Sharing new resource information

• Tips on coping with aspects of Parkinson’s

• Sharing good humour and personal anecdotes

• Supporting a group member going through a difficult time

• Listening to guest speakers on an issue relating to Parkinson’s or caregiving

• Socialization

Support groups provide a positive and supportive environment in which people living with Parkinson’s can be themselves, knowing that their privacy and confidentiality are respected.

Support groups provide opportunities to learn about

Parkinson’s disease. Most importantly, they bring

together others living with Parkinson’s who can identify

with struggles and applaud victories. I commend the

support groups for their efforts in making the difference

in the lives of people living with Parkinson’s.

Dr. Mandar Jog Director, Movement Disorders Program London Health Sciences Centre

Parkwood Education

Program (London)

This seven-week program increases awareness and

provides coping strategies for individuals with Parkinson’s

and their carepartners.

What to expect during each visit:

• A one-hour education session provided by skilled healthcare professionals to address the following areas:

o Signs and symptoms of Parkinson’s

o Disease progression and management of physical symptoms

o Medication management

o Mobility issues

o Speech and swallowing issues and nutrition

o Adaptive equipment for self-care

o Energy conservation and relaxation

o Health benefits of leisure

o Overcoming barriers to leisure

o Social and emotional aspects of the disease and adjustment process

• A 1½ hour exercise class, led by a physiotherapist

• A support group for carepartners, led by a social worker

• Refreshments

Dates:Session 1: May 3 – June14Session 2: September 6 – October 14

Call 519-685-4046 for more information.

• Parkinson Society Southwestern Ontario and our services

• Parkinson’s and Parkinson’s programs• Upcoming events, conferences and

workshops

• How you can help• Corporate/Employee involvement• Signing up on our mailing list• And more …

Go to www.parkinsonsociety.ca and find out about:


Support Group News

Annual Facilitator’s Workshop

Our Annual Facilitator’s Workshop was held on Saturday,

September 29 at the Cambridge Inn with

19 Facilitators in attendance. Some topics

included Navigating the Health Care System

and Handling Difficult Conversations.

Highlights from the day included warrior

pose and chanting “I am a PSSO Support

Group Facilitator!”

We’re Looking for Support Group Facilitators and Co-Facilitators!

Volunteer Today!Contact Vickie Thomas at [email protected] or 1-888-851-7376.

Having worked in long-term care, I realize how important it is to have a support system in place to help families. This gives me a chance to help others while being supported as a family member.

Maxine Arnold, Co-Facilitator, Dunnville Parkinson’s Support Group

“Being the facilitator of a support group is a truly special and rewarding opportunity. Here, people share personal stories while strong friendships are built as people connect, learn together and support each other.”

Pamela Helmes-Hayes

• Do you have an interest in helping support people living with Parkinson’s and their families?

• Are you a caring individual looking to develop leadership skills?

• Do you like to plan and organize meetings or facilitate discussions?

If you answered YES to these questions, we have the volunteer position for you! Support Group Facilitator and Co-Facilitator volunteer opportunities are available now in several areas throughout our region.


Brantford

Cambridge

Chatham-Kent

Brantford Parkinson’s Support GroupFacilitators: Bill Flintoff & Jocelyn Neale

Cambridge Parkinson’s Support GroupFacilitators: Ashley Fox & Luci Santamaria

Cambridge YMCA Neurological WellnessExercise Programs

Chatham-Kent Parkinson’s Support GroupFacilitator: Alicia Hill Dionne - Volunteer Co-Facilitator Required!

Dunnville Parkinson’s Support GroupFacilitators: Maxine Arnold & Ruth Locis

Chatham-Kent Parkinson’s SMART Exercise Program

Chatham-Kent Parkinson’s Sharing and Caring (Luncheon Group)Facilitator: Jane Haskell

2nd Wednesday of each month (excluding July and Aug.) 2:00 p.m. to 4:00 p.m.John Noble Home, 97 Mount Pleasant Rd., Brantford

2nd Thursday of each month (excluding July and Aug.) 1:00 p.m. to 2:30 p.m.Chaplin Family YMCA, 250 Hespeler Rd., Cambridge

3X/wk., free for YMCA membersChaplin Family YMCA, 250 Hespeler Rd., Cambridge

2nd Tuesday (Jan., Mar., May, Sept. and Nov. ) 6:30 p.m. to 8:00 p.m.Active Lifestyle Centre, 20 Merritt Ave., Chatham

4th Tuesday of each month 6:30 p.m. to 8:00 p.m. Grandview Lodge, 657 Lock St. W., Dunnville

Every Tuesday & Thursday 10:00 a.m. to 11:00 a.m., Classes are free.Grace Christian Reformed Church, 255 Tweedsmuir Ave. W., Chatham

2nd Thursday (Feb., Apr., June, Oct. and Dec.) 11:30 a.m. to 1:00 p.m.Active Lifestyle Centre, 20 Merritt Ave., Chatham

Regional Support Groups

Hanover

Goderich-Huron

Kincardine

Grand Bend

Goderich-Huron Parkinson’s Group SupportFacilitator: Carol McDonnell - Volunteer Co-Facilitator Required!

Grand Bend Parkinson’s Support GroupFacilitators: Maxine Eveland & Kate Mason

Hanover Parkinson’s Coffee ClubFacilitator: Michelle Napper

Hanover Parkinson’s Care Partner Support GroupFacilitator: Jane Radke

Hanover Parkinson's Lunch Support GroupFacilitator: Linda Byers

1st Tuesday of each month (excluding Jan. and Feb.) 1:30 p.m. to 3:00 p.m.Mackay Senior Centre, 10 Nelson St. E., Goderich

Last Monday of each month (excluding Dec., June, July and Aug.) 2:00 p.m. to 3:30 p.m.Grand Bend Area Community Health Centre, 69 Main St. E., Grand Bend

2nd Tuesday of every month from April – November 5:30 p.m. Potluck Saugeen Municipal Airport, 34 Saugeen Airport Rd. (July and Aug. meetings at different locations)

4th Wednesday of each month 1:00 p.m. to 3:00 p.m.New location to be determined

1st Tuesday of the month 12:00 noon to 1:30 p.m. Cravings, 208 7th Ave., Hanover

Kincardine Parkinson’s Support GroupFacilitator: Regional Office - Volunteer Facilitator Required!

2nd Tuesday of each month (excluding Jan. and Feb.) 12:00 noon to 1:30 p.m.New location to be determined

Kitchener-WaterlooEvening Kitchener Parkinson Connection Support GroupFacilitator: Laura Greenway-Balnar - Volunteer Co-Facilitator Required!

3rd Thursday of each month (excluding July, Aug. and Dec.) 6:30 p.m. to 8:00 p.m.Briarfield Gardens Retirement Residence, 1250 Weber St. E., Kitchener (Sponsored by Briarfield Gardens)

Dunnville

Call 1-888-851-7376

Before Attending

Your First Meeting!


Kitchener Rock Steady Boxing at the A.R. Kaufman Family YMCA Two levels of classes offered. Several classes available per week. Free to YMCA members. A.R. Kaufman YMCA, 333 Carwood Ave., Kitchener

LeamingtonLeamington Parkinson’s Support GroupFacilitator: Lynn Tomlinson - Volunteer Co-Facilitator Required!

Leamington Parkinson’s SMART Exercise Program

1st Tuesday of every month (excluding July and Aug.) 11:30 a.m. to 12:30 p.m.Leamington and District Half Century Club, 160 Talbot St. E., Leamington

Every Tuesday (excluding July and Aug.) 10:30 a.m. to 11:30 a.m., Classes are free.Leamington and District Half Century Club, 160 Talbot St. E., Leamington

Kitchener Parkinson’s SMART Exercise Program

Kitchener YMCA Neurological Wellness Exercise Programs

Every Tuesday and Thursday 1:30 p.m. to 2:30 p.m., Classes are free. A.R. Kaufman YMCA, 333 Carwood Ave., Kitchener

3X/wk., free for YMCA members,A.R. Kaufman YMCA, 333 Carwood Ave., Kitchener

Meaford

Orangeville

Listowel

London

Meaford and Area Parkinson’s Support GroupFacilitators: Regional Office - Volunteer Facilitator Required!

Orangeville Parkinson’s Support GroupFacilitators: Christine Cianfagna & Rob Ecclestone

Listowel Parkinson’s SMART Exercise Program

London Parkinson Connection Support GroupFacilitators: Maryanne Kjemtrup & Amanda Stark

London Parkinson’s Exercise GroupsRehabilitation Trainer: Bill Gold

London Parkinson’s SMART Exercise Program

London Parkinson’s Carepartner Coffee ClubFacilitator: Regional Office

London Rock Steady Boxing

Owen Sound Rock Steady Boxing

3rd Tuesday of each month 2:00 p.m. to 4:00 p.m.Meaford United Church, 7 Boucher St. E., Meaford

2nd Wednesday of each month (excluding July and Aug.) 7:00 p.m. to 8:30 p.m.Alzheimer Society, 25 Centennial Rd., Orangeville

Every Tuesday and Friday 2:00 p.m. to 3:00 p.m., Classes are free. VON Office, 975 Wallace Ave. N., Listowel

3rd Saturday of each month (excluding July and Aug.) 2:00 p.m. to 4:00 p.m.Trinity Lutheran Church, 746 Colborne St. (Oxford and Colborne), London

Several classes offered in alternate weeks (Wed. and Thurs.) 12:00 noon to 1:00 p.m. Parkwood Day Hospital, 550 Wellington Rd., London

Every Monday and Thursday 2:00 p.m. to 3:00 p.m., Classes are free.Carling Heights Optimist Community Centre, 656 Elizabeth St., London

Last Tuesday of each month (excluding July and Aug.) 1:30 p.m. to 3:00 p.m.Storage Worx, 115-4474 Blakie Rd., London

3X/wk., $100/monthSouthside Group, 75 Blackfriars St., London

2X/ wk., free for YMCA membersYMCA of Owen Sound Grey Bruce, 700 10th St. E., Owen Sound

Owen SoundOwen Sound Parkinson’s Support GroupFacilitator: Bevan Lougheed

Owen Sound Parkinson’s SMART Exercise Program

2nd Tuesday of each month 2:15 p.m. to 3:30 p.m.The New Life Centre, First Christian Reformed Church, 199 4th Ave. W., Owen Sound

Every Tuesday and Thursday 1:00 p.m. to 2:00 p.m., Classes are free.First United Church, 435 21st St. W., Owen Sound

Waterloo Parkinson’s Support GroupFacilitator: Pat Cunningham

4th Wednesday of each month (excluding July, Aug. and Dec.) 10:30 a.m. to 12:00 noonWesthill Retirement Residence, 25 Westhill Dr., Waterloo

Sarnia-LambtonSarnia-Lambton Parkinson’s Support GroupFacilitators: Carolyn & Ron Young

4th Wednesday of each month (excluding June, July and Aug.) 2:00 p.m. to 4:00 p.m.Clearwater Arena Community Room, 1400 Wellington St., Sarnia

Call 1-888-851-7376

Before Attending

Your First Meeting!


St. Thomas Parkinson’s SMART Exercise ProgramEvery Monday and Thursday 10:00 a.m. to 11:00 a.m., Classes are free.Elgin Mall, 417 Wellington St., St. Thomas.

St. ThomasSt. Thomas Parkinson’s Support GroupFacilitator: Sheri Lawrence - Volunteer Co-Facilitator Required!

2nd Tuesday of each month (excluding July and Aug.) 2:00 p.m. to 4:00 p.m.Knights of Columbus Hall, 265 Wellington St., St. Thomas

StrathroyStrathroy Parkinson’s Support GroupFacilitators: Susan Capito & Alisha Gleiser

Parkinson’s SMART Exercise Group

3rd Tuesday of each month (excluding July and Aug.) 1:30 p.m. to 3:00 p.m.Westmount Christian Reformed Church, 405 Drury Lane, Strathroy

Every Monday 1:00 p.m to 2:00 p.m., Classes are free.VON Middlesex-Elgin Office, 274 Head St. N., Strathroy

Woodstock

Windsor

West Lorne

Tillsonburg

Woodstock Parkinson’s Support GroupFacilitator: Cheryl Wituik

Windsor Parkinson’s Support GroupFacilitators: Susan Davies & Patricia St. Pierre

West Lorne Parkinson’s Support GroupFacilitator: Betty Jo Drent

Tillsonburg Parkinson’s Support GroupFacilitator: Cheryl Wituik

4th Monday of each month (excluding July and Aug.) 2:00 p.m. to 4:00 p.m.UNIFOR, 126 Beale St., Woodstock

4th Tuesday of each month (excluding Dec.) 7:00 p.m. to 8:30 p.m.Windsor Community Living Support Services, 7025 Enterprise Way, Windsor

4th Thursday of each month (excluding Aug.) 10:30 a.m. to 12:00 noonThe Hub, 146 Munroe St., West Lorne

3rd Thursday of each month (excluding July and Aug.) 1:00 p.m. to 2:30 p.m.Tillsonburg Retirement Residence, 183 Rolph St., Tillsonburg

Windsors Parkinson’s SMART Exercise Group

Windsor-Essex Rock Steady Boxing

Every Wednesday 1:30 p.m. to 2:30 p.m., Classes are free. Windsor YMCA, 3400 Grand Marais Rd. E., Windsor

3X/wk., $100/monthBorder City Boxing Club, 1072 Drouillard Rd., Windsor

Stratford

Simcoe

Stratford Parkinson’s Support GroupFacilitators: Connie Birmingham & Marg Scott - Volunteer Facilitator Required!

Simcoe Parkinson’s Support GroupFacilitator: Marie Claire Astles - Volunteer Co-Facilitator Required!

Stratford Gentle Yoga for Parkinson’s GroupCertified Yoga Instructor: David Querin

2nd Tuesday of each month (excluding July and Aug.) 1:30 p.m. to 3:30 p.m.Army, Navy and Air Force Veterans Centre, 151 Lorne Ave. E., Stratford

3rd Thursday of each month (excluding July and Aug.) 1:00 p.m. to 3:00 p.m.Wellings of Waterford, 111 Bruce St., Waterford

Every Monday 10:00 a.m. to 11:00 a.m., $7/classArmy, Navy and Air Force Veterans Centre, 151 Lorne Ave. E., Stratford

Sarnia-Lambton Rock Steady Boxing 2X/wk., $75/monthIronworks Fitness, 611 St. Clair St., Point Edward

A support group can be a very effective tool for enhancing your ability to cope with the challenges of Parkinson’s. Parkinson’s support groups can help provide knowledge, understanding, hope and a sense of community.

Sarnia-Lambton Parkinson’s Exercise GroupInstructors: Dorothy Fyfe & Nora Hope

Every Thursday 11:00 a.m. to 11:45 a.m.Strangway Centre, 260 East St. N., Sarnia

Call 1-888-851-7376

Before Attending

Your First Meeting!

2019 Regional Parkinson’s Event Calendar

May3 Parkwood Education Program (London) For further information, please call (519) 685-4046. See page 25. Session 1: May 3 – June 14 Session 2: September 6 – October 14

23 WEBINAR: TBD

29 10th Annual Parkinson Golf Classic - Presented by Rembrandt Homes (London) West Haven Golf & Country Club (See page 31 for details)

June3 7th Annual SIGNATURES – A Taste Test of London’s Best - In Partnership with Finch Auto Group Budweiser Gardens, London (See page 7 for details)

10 2nd Annual SIGNATURES – A Taste Test of Waterloo’s Best Waterloo Memorial Recreation Complex 101 Father David Bauer Dr., Waterloo (See page 19 for details)

19 WEBINAR: Parkinson’s Dementia Susan Cuming Public Education Coordinator, Alzheimer Society Haldimand Norfolk 12:00 noon – 1:00 pm

For more information, to keep updated and to become involved in our special events, go to www.parkinsonsociety.ca, call 1-888-851-7376 or email [email protected].

February19 WEBINAR: Self-Management John Murphy Presented by Parkinson Society British Columbia 1:00 pm – 2:00 pm EST (10:00 am – 11:00 am PST)

20 WEBINAR: Genetics and Parkinson’s Dr. Mike Farrer 12:00 noon – 1:00 pm

March12 WEBINAR: Genetic Discovery to Biology Jordan Follett and Dr. Emil Gustavsson Presented by Parkinson Society British Columbia 1:00 pm – 2:00 pm EST (10:00 am – 11:00 am PST)

20 WEBINAR: 10 Commandments of Caregiving Kim Hill, PartnerinCare 12:00 noon – 1:00 pm

April2 Living Well Conference: What’s in Your PD Toolkit? (Cambridge) Cambridge Hotel and Conference Centre 700 Hespeler Rd., Cambridge 9:00 am – 2:00 pm (See back cover for details)

9 Living Well Conference: What’s in Your PD Toolkit? (Walkerton) Best Western Plus Walkerton Hotel and Conference Centre 10 Eastridge Rd., Walkerton 9:00 am – 2:00 pm (See back cover for details)

11 Parkinson's Medical Reception & AGM (London) Ivy Spencer Leadership Centre 551 Windermere Rd. (See page 5 for details)

16 Living Well Conference: What’s in Your PD Toolkit? (Stratford) Best Western Plus: The Arden Park Hotel 552 Ontario St., Stratford 9:00 am – 2:00 pm (See back cover for details)

17 WEBINAR: Getting the Most Out of Exercise for Parkinson’s Dr. Jim Frank Professor Emeritus of Kinesiology, University of Waterloo 12:00 noon – 1:00 pm

23 Living Well Conference: What’s in Your PD Toolkit? (Windsor) Holiday Inn and Suites (Ambassador Bridge) 1855 Huron Church Rd., Windsor 9:00 am – 2:00 pm (See back cover for details)

28 Hair Affair for Parkinson’s Cambridge, Kitchener, London and Waterloo (See page 8 for details)

September 7, 2019 Brantford-Brant County – Mohawk Park

Goderich – Rotary Cove Pavilion

London and District – Springbank Gardens

South Grey Bruce and Hanover – Hanover Town Park

Stratford and Area – Upper Queen’s Park

Waterloo Region – Location to be determined

Wellington-Dufferin – Location to be determined

September 8, 2019 Chatham-Kent – Kingston Park

Owen Sound – Harry Lumley Bayshore Community Centre

Port Elgin, Kincardine and Area – North Shore Park

Strathroy and Area – Strathroy Seniors Centre

Tillsonburg-Norfolk County – Memorial Park

Windsor-Essex – Malden Park (Visitor Centre Entrance; 4200 Malden Road)

Woodstock-Ingersoll – South Gate Centre

September 15, 2019 Grand Bend – Grand Bend Recreation Centre

Sarnia-Lambton – Stoke’s Bay Grill & Bar

Visit www.walk-it.ca for more details.30 The Parkinson’s Update

In Memoriam We offer our sympathy to the families whose loved ones have passed away between June 1, 2018 and December 15, 2018.

We make every effort to include all members who have passed away. We sincerely apologize if any individual was inadvertently omitted from the above list. Please call and let us know if we have missed anyone and we will include their name in our next issue.

Ruth AbbottSylvia ArmstrongJohn ArroyasKenneth AylingRosaire BaillargeonRonald BaxterHelen BazeleyRobert BloomfieldDonald BoydMargaret BrandGerry BreaultDonald BrockDonna BrockLinda BrownShirley BrysonTadeusz BulatWilliam BurtonPaul ButtigiegRocco CaldarozziJoyce CarlisleHoward CarrMaria CarreiroRoy ChappelJames ChurchillJames ChuteBernard Clarke Edward ClintonDon CoplandGlenn Coultes

Joyce CoultisLucille DallaireKenneth DavisAlan DavisRoy DesjardinsJim DevereuxMichel D'HoineAmerico Di StefanoMarjorie DoolElva DoyleIsobel DurnanAmbrose DwyerHedy EastonEdmund Erber SrJudith Anne EvansJohn FalkinsDavid FarkasAlice FarnellBernice FlettHarold Frier Harry FrookOscar GagnierWilliam GallingerBetty GingerichEdward GouldSusan Graham Kathleen GrayMary HaehnelLaurel Hall

Phyllis HarlockReginald HarrisWilliam HillisRichard HiscocksEvelyn HobbsDonald Hollingsworth Robert HollubJames HorneRobert HowieBernard HureauDaniel IrvineElizabeth JohnsonWilbert JonesPaul KastnerWilliam KellyWilliam KentJohn Kertesz SrHerbie KohlmaierMaria LangCharles LatschMonique LeblancJames LehmannDr. Glynn LeyshonSteven LinceMargaret LittleBarrie LuceLjubo MajhanovichDonald ManningDaniel Marion

Gordon MartzBruce McCallumRobert McCannRobert McElhoneIan McKenzieWanda MierzynskiHarold MillerNeville MillikenBruce MontgomeryBernard NewmanEttie NoseworthyMiao PakMaureen ParkerDante PellarinRosalina PinpinAlice PlainDe Dai QuangHenry RaabPhyllis RabbFerne RacknorRobert RaeWilliam RampMary RiversRobert RobbinsPatricia Rodgers Maria RoesJohn RoksAudree RossiniEnid Rowlands

John RozemaDonald RuefferLarrie SachsMagdolna SalamonGeorge SandersLloyd SandhamMartin SchmidtDale SchnittkeAnita SchochMarleta SchragnerMaurice SchwarzeGuido SerbeeJames SkuboviusLouise SloteWard SmithJames SoulliereJohn StalkerVictor StrausKrishnallal SurujnarainRobert TruaxMaria Van HertenHank VandezandeCarol VanOstrandRoger VerkindtAnn VermuntJean Waddick

Alice WalkerRon WatsonHelmut WelsandAlfred WelzelRichard WhittinghamJohn WiddlfieldGlyn WilliamsJoseph WilliamsJames Wilson James WiltshireElizabeth WithersGloria WolfeHelen WoodliffeGordon YoungMary YurekJohanna ZelemLaverne Zimmer


When you make a gift of securities, you not only benefit from the tax credit but you also avoid paying tax on capital gains accumulated on the securities. In order to take advantage of the capital gains tax reduction, you need to donate the securities directly to PSSO rather than selling the securities and donating the proceeds of the sale.

If you own publicly traded securities or mutual funds, you may want to consider donating the securities or mutual funds directly to Parkinson Society Southwestern Ontario.

For more information, please contact Shelley Rivard at 1-888-851-7376 or [email protected].

Why Give Securities or Mutual Funds?

Silent auction, door prizes, contests, lunch and dinnerFor more information, please contact Julia Nagel at [email protected].

10TH ANNUAL Parkinson Golf Classic

Presented by Rembrandt HomesWednesday, May 29, 2019 | West Haven Golf Club

2 Living Well Conference: What’s in Your PD Toolkit? (Cambridge) Cambridge Hotel and Conference Centre 700 Hespeler Rd., Cambridge 9:00 am – 2:00 pm

9 Living Well Conference: What’s in Your PD Toolkit? (Walkerton) Best Western Plus Walkerton Hotel and Conference Centre 10 Eastridge Rd., Walkerton 9:00 am – 2:00 pm

11 AGM & Medical Reception (London) Ivy Spencer Leadership Centre 551 Windermere Rd.

16 Living Well Conference: What’s in Your PD Toolkit? (Stratford) Best Western Plus: The Arden Park Hotel 552 Ontario St., Stratford 9:00 am – 2:00 pm

17 WEBINAR: Getting the Most Out of Exercise for Parkinson’s Dr. Jim Frank Professor Emeritus of Kinesiology, University of Waterloo 12:00 noon – 1:00 pm

23 Living Well Conference: What’s in Your PD Toolkit? (Windsor) Holiday Inn and Suites (Ambassador Bridge) 1855 Huron Church Rd., Windsor 9:00 am – 2:00 pm

28 Hair Affair for Parkinson’s Cambridge, Kitchener, London and Waterloo

April is Parkinson’s Awareness MonthEvents in April

What’s in yourPD Toolkit?

2019 LIVING WELL CONFERENCES

REGISTRATION FEE $30CAMBRIDGE | WALKERTON | STRATFORD | WINDSOR

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