The Use of the ICF in IrelandThe Use of the ICF in Ireland

Dr Anne Good (National Disability Authority)PrincipaI Investigator Mhadie Ireland

Mr Gerry Brady (Central Statistics Office)Scientific Committee Mhadie Ireland

Ms Mary Ann O’Donovan (Health Research Board)Scientific Committee Mhadie ireland

Mhadie ConferenceEuropean Parliament16 September 2008

BackgroundBackground

• Equality legislation and mainstreaming policy

• Disability Act 2005

• National Disability Strategy 2005-2011

• Data deficits

• EU and UN requirements

Overview of Irish ICF usageOverview of Irish ICF usage1. NDS Pilot 2002-2004 (www.nda.ie)

2. Irish participation in international work (WG and Mhadie)

3. Census 2002 and 2006 (www.cso.ie)

4. National Disability Survey 2008 (www.cso.ie)

5. HRB National Physical and Sensory Disability Database MAP project (www.hrb.ie)

6. Needs assessment in context of national disability strategy (at planning stage)

NDA Pilot 2003NDA Pilot 2003

• Two questionnaires developed and tested (ICF framework) for adults and children in private households

• Consultations with stakeholders

• Pilot process reviewed

• Interviewer guidelines developed

• NDS recommended to government, as post censal survey

Irish participation in UN and EU Irish participation in UN and EU activitiesactivities

• Representation on UN WG on Disability Statistics 2003 - 2008

• Participation in EU Mhadie project 2005-2008

• Contribution to WHO ICF work in Armenia and Georgia 2005

Census 2002 and 2006Census 2002 and 2006

Census 2002– First time disability questions included in

census, rate 8.3%

Census 2006– Disability questions revised, rate 9.3%

National Disability Survey 2006National Disability Survey 2006

1. Pilot questionnaires and interviewer guidelines the starting point

2. Questionnaires developed for adults and children in residential settings

3. Post censal survey, sample 17,0004. Another broad consultation exercise, emphasis on

government departments5. Many questions reworded/modified (especially re

mental health)6. More prominence given to built environment and

transport7. Major life areas eg education, employment

expanded

National Disability Survey 2008National Disability Survey 2008NDA Pilot 2003 NDS 2006

Section 1• Activities and aids Type of disability (includes questions on

severity)Section 2• Help from other people Caring and help from other peopleand attitudes of other people

Section 3• Background to reduction Attitudes of other people in activities

Section 4• Major life areas Transport

Section 5• Demographic information Built environment accessibility

National Disability Survey National Disability Survey

New Sections

Section 6 EducationSection 7 Work and trainingSection 8 Social participationSection 9 Sport and exerciseSection 10 General and demographic

information

National Disability SurveyNational Disability Survey

• Publication Autumn 2008

• Important learning from analysis of census ‘no’ sample– Impact of different interviewers – targeted survey– ICF framework

Benefits of using ICFBenefits of using ICF

• Structure for research• Depth• Comparability

• Allows for assessment of coverage of activities and participation

• Mhadie mapping exercise and item data bank useful for question design

NPSDD MAPNPSDD MAP

• National Physical and Sensory Disability Database (NPSDD) – 2002 National Implementation– Over 27,000 people registered

• Registration Criteria:– Have a persistent physical and/or sensory disability– Predominant disability is physical/sensory– Less than 66 years of age– Receiving or requiring specialised health and

personal social service– Have consented to being on the database

NPSDD MAP contd.NPSDD MAP contd.

• Measure of Activity and Participation (MAP) – Introduced in 2004– 7,562 people completed section (2007)

• 3 Sections– Barriers and Challenges– Participation Restriction– WHODAS II

• MAP Bulletins– www.hrb.ie

Next stepsNext steps

• Reflect on NDS and MAP experience re operationalisation of ICF

• Develop disability demographic for other surveys eg Garda and Telecoms

• Work on integration of disability demographic into administrative data collection

• Plan ICF CY as framework for national needs assessment process for children

Learning from Use of ICF in Ireland Learning from Use of ICF in Ireland

• Importance of ICF training• Complexity of operationalising ICF across types

of data collection and across cultures• Areas of ICF for which are few models• Aspects of ICF which may need revisiting• Dissonance between ICF model and perceptions

of some disabled respondents • Need to expand ICF ethical guidelines (NDA

guidelines developed)