the u.s. surgeon general’s family history initiative susan vasquez may 2005
TRANSCRIPT
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The U.S. Surgeon General’s Family History Initiative
Susan VasquezMay 2005
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The U.S. Surgeon General’s Family History Initiative
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Why Family History?
• Most diseases are due to interactions of multiple genes and environmental factors.
• Almost every patient has available today, a free, personalized tool that captures many of these interactions and can serve as the cornerstone for individualized disease prevention.
• This valuable, free, and well-proven tool is the family history.
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Why Family History?• Although we will gain important new genomic
tools, family history will remain highly relevant for years.
• Family history helps predict risk for varied health concerns such as heart disease, colorectal cancer, breast cancer, ovarian cancer, osteoporosis, asthma, type 2 diabetes, suicide, etc.
• Yet, many people are unaware of relatives’ medical histories, and many health professionals underutilize this information in advising patients on how to maintain good health.
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Do People Care About Family History?
• In the Parade/Research!America 2004 survey of 1,000 individuals:
• ?? % have found health information on the Internet to be very or somewhat helpful
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Do People Care About Family History?
• In the Parade/Research!America 2004 survey of 1,000 individuals:
• 65% have found health information on the Internet to be very or somewhat helpful
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Do People Care About Family History?
• In the Parade/Research!America 2004 survey of 1,000 individuals:
• 65% have found health information on the Internet to be very or somewhat helpful
• But, 96% thought, in thinking of their own health, that knowledge of family health history was very or somewhat important
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Do People Care About Family History?
• In the HealthStyles survey of over 4,000 individuals:
• 97% thought that knowledge of family health history was important
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Do People Care About Family History?
• In the HealthStyles survey of over 4,000 individuals:
• 97% thought that knowledge of family health history was important
• But, only 30% had actually ever collected health information from relatives to develop a family health history.
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Goals of the Surgeon General’s Family History Initiative
• Increase the American public’s awareness of the importance of family history in health;
• Give the American public tools to gather, understand, evaluate, and use family history to improve their health;
• Increase the awareness of health professionals about the importance of family history;
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Goals of the Surgeon General’s Family History Initiative
• Give health professionals tools to gather, evaluate, and use family history information; and to communicate with their patients about family history;
• Increase genomics and health literacy;
• Prepare both the American public and their health professionals for the coming era in which genomics will be an integral part of regular health care.
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The Surgeon General’s Family History Initiative Launch
• November 8, 2004• Formal announcement of the Initiative
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The Surgeon General’s Family History Initiative Launch
• November 8, 2004• Formal announcement of the Initiative• Release of My Family Health Portrait
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The Surgeon General’s Family History Initiative Launch
• November 8, 2004• Formal announcement of the Initiative• Release of My Family Health Portrait
• Thanksgiving Day, 2004• First Annual National Family History Day
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The Surgeon General’s Family History Initiative Launch
• November 8, 2004• Formal announcement of the Initiative• Release of My Family Health Portrait
• Thanksgiving Day, 2004• First Annual National Family History Day• Publication of “Family History- More
Important than Ever” by Carmona, Collins, and Guttmacher in The New England Journal of Medicine
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My Family Health Portrait computer- based tool
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Since the launch of the Initiative on November 8, 2004
The Initiative has been highlighted in over ?? media stories.
1. 502. 1003. 3004. 5005. 7006. 1,000
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Since the launch of the Initiative on November 8, 2004
The Initiative has been highlighted in over ?? media stories.
1. 502. 1003. 3004. 5005. 7006. 1,000
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Since the launch of the Initiative on November 8, 2004
The “My Family Health Portrait” tool has been downloaded over ?? times.
1. 5,0002. 15,0003. 40,0004. 100,0005. 250,0006. 320,000
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Since the launch of the Initiative on November 8, 2004
The “My Family Health Portrait” tool has been downloaded over ?? times.
1. 5,0002. 15,0003. 40,0004. 100,0005. 250,0006. 320,000
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Since the launch of the Initiative on November 8, 2004
The NEJM article, “Family History -More Important than Ever,” by Drs. Carmona, Collins and Guttmacher has been downloaded over ?? times.
1. 1002. 5003. 1,0004. 5,0005. 20,0006. 30,000
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Since the launch of the Initiative on November 8, 2004
The NEJM article, “Family History -More Important than Ever,” by Drs. Carmona, Collins and Guttmacher has been downloaded over ?? times.
1. 1002. 5003. 1,0004. 5,0005. 20,0006. 30,000
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Next Steps
• Improve “My Family Health Portrait”
• Continued media attention and outreach
• New projects and uses by any and all
• Make Thanksgiving the Annual National Family History Day
• Involvement by more federal and non-federal groups (e.g., MLA)
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To obtain the “My Family Health Portrait” tool:
1) Download the computer based tool from www.hhs.gov/familyhistory
2) Download the PDF of the print tool from www.hhs.gov/familyhistory
3) Order a free copy of the print version through the HRSA Information Center at
1-888-Ask HRSA or www.ask.hrsa.gov
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Please visit the NLM booth to pick up the following materials:
• Copies of the “My Family Health Portrait” print version in both English and Spanish
• Background information on the Initiative
• Bookmarks advertising the initiative
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Questions?
Contact Susan Vasquez at
or visit
The U.S. Surgeon General’s Family History Website
www.hhs.gov/familyhistory
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Since the launch of the Initiative on November 8, 2004
• The Initiative has been highlighted in more than 1,000 media stories
• The computer based tool has been downloaded over 144,000 times
• The print version of the tool has been downloaded over 108,000 times
• An article in The New England Journal of Medicine, “Family History -More Important than Ever,” by Drs. Carmona, Collins and Guttmacher has been downloaded over 20,000 times.
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Genetics Resources• NHGRI - www.genome.gov
• Genetic and Rare Diseases Information Center• On-line health resources- http://www.genome.gov/11510197
• NLM - www.nlm.nih.gov• MedLine Plus- http://medlineplus.gov• Genetics Home Reference- http://ghr.nlm.nih.gov
• CDC - www.cdc.gov (click on genetics & genomics)
• Information accessing providers• NCI Cancer Genetics Services Directory-
www.cancer.gov/search/geneticsservices• National Society of Genetic Counselors- www.nsgc.org