the toowoomba & district ms support group turns 27! ms ......whether it be 1 or 100 laps in...
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CHILL&CHAT MONTHLY SOCIAL MEET Contact Cathy on 4634 5281 or 0402 143 826 for more info of where, when and to RSVP. Come along for a purely social and very informative gathering every month talking about whatever is on your mind!
WEDNESDAY, SEPTEMBER 11, MS SUPPORT GROUP BIRTHDAY CELE-BRATION LUNCH Thank you to all who helped us celebrate our 27th birthday!
SATURDAY, SEPTEMBER 14 DISABILITY ACTION WEEK TOOWOOMBA COM-MUNITY FESTIVAL10am-3pm Twmba Civic Centre, 155 Herries St (Toowoomba City Library Civic Precinct & City Annex). More info on our facebook site.. Full Info on website http://user.tr.qld.gov.au/events/eventdetail/81884/-/disability-action-week-community-festival or phone 131 872 for more info. SUNDAY, OCTOBER 27 10am FAMILY MORNING OUT The Barn & Scottys Garage, Flagstone Creek Road (11km south east from Picnic Point). Organise your family and carers now, more info soon. SATURDAY, NOVEMBER 16 TOOWOOMBA MS SWIMATHON Raising funds for local MS QLD services. Donate to our 2019 Support Group Swimathon Fundraiser online www.msqldevents.com.au/champion/2019-Toowoomba-MS-Swimathon or contact our treasurer Mike on 0405 213 352. OLD TIME DANCING SUPPORTING PEOPLE LIVING WITH MS Dancing from 8pm until midnight every Saturday night at the MS Dance Hall, USQ, Toowoomba. Contact Helen for more info on 4634 3119.
GUEST SPEAKER We welcome Rebecca Graham, MSQ host and organ-iser for our upcoming November MS Swimathon (did I just say upcoming?! Where did this year go? See the new swimathon merchandise, prizes and how to get the best for our community from the MS swimathon in 2019! BRING your questions and something to eat and share for lunch!
UNIVERSITY OF QUEENSLAND
Clive Berghofer
Recreational Centre
BAKER ST
X
WEST ST
PLATZ ST
Steele
Rudd
College
Ste
ele
Ru
dd
Dr
NELSON ST
CAR PARK
WHERE DO WE MEET?
Toilets
MS Dance Hall
Next Meeting is on Wed, September 18, 10am Cuppa & Chat 10.30am start
NB Steele Rudd Dr is not on your GPS .
Taxi destination “Steele Rudd College”
The Toowoomba & District MS Support Group turns 27!
MS&PNDMessenger
September 2019
En vision Disability Service Last month, EDS Manager Linda Saunders
gave up her time to join us at our support group
meeting to tell us about her business which began providing sup-
port in July of 2017 with the introduction and roll out of the NDIS.
“I wanted to start a small business that focuses on individual ’s
needs, meeting desired goals and positive outcomes. We are
small, locally owned and provide a quality support service”.
EDS has been providing qualified support workers to only care for
NDIS clients currently. If you prefer to have EDS drive you in your
own vehicle this can be arranged too. Linda says “When meeting a
family, I ask questions, listen to what the family would like, then
match staff that may work well with the family’s need. We also pro-
vide short term respite care in home or at our new Toowoomba ac-
commodation environment depending on what the Individual would
prefer.”
Contact Envision Disability Service to help you live the life you want to!
Joanna– I chose Envision on recommendation their clients who I knew. I now use En-
vision for cleaning, ironing as well as social support to take me to gym, help me with
errands as well helping me to cook recently, they are very flexible to how my health is
on the day as to what we do and most helpful. Linda works well to match you with a
compatible person ideal for the job with minimal staff changes from service to service.
I also like the fact that if there are multiple clients we want to share one car and carer
with to go somewhere, we can travel together.
Nicole– Other than the usual cleaning and social support Envision helps me with, it ’s
important to me to spend time with my grandchildren on my own but I need support to
match their energy so arrange the help of Envision for these days, Envision will take
my grandchild as well as myself out including pre arranged trips to Brisbane to spend
time with my family who live there. When I am not well enough to do much I have
simple recipes out for the carer to prepare the dinner and do baking for me.
Contact Envision to see if Linda and her team can help you or your
family member live the life you want to on 0447 870 875 or find
them on Facebook.
We congratulate Envision on their new improved premises!
Toowoomba MS Swimathon
Saturday, November 16 6am-6pm
The Toowoomba MS Swimathon is a fundraising event where teams of at least 6 peo-
ple are sponsored by friends, family and work colleagues to swim in a 12 hour relay;
raising vital funds for Queenslanders living with multiple sclerosis (MS).
You don’t need to be a ‘competitive’ swimmer to participate – people of all abilities
can join in and take part. You can swim any style or distance that suits you;
whether it be 1 or 100 laps in freestyle, breaststroke, sidestroke, or doggy
paddle – it is all about participation and raising funds to help beat MS!
Healthy competition is important but raising dollars for people with MS is
the reason we hold these events, so….we award your efforts in and out of the pool!
Awards and prizes are given to the highest fundraising team, highest fundraising indi-
vidual, best-dressed team and more!
The day is not just about swimming laps. We provide entertainment, food options and
novelty activities to help your team conquer this 12hour challenge!
• Raise over $100 and receive a MS Swimathon t-shirt
• Raise over $250 and receive a limited edition towel
• The funds you raise will provide much needed services and sup port to people
living with MS in the local area
Swim for Team MS if you have MS or someone you know wants to
swim for you! If you would like to fundraise but cannot swim on
the day, please donate on our support group fundraiser page
online www.msqldevents.com.au/champion/2019-Toowoomba-MS-
Swimathon or contact our treasurer Mike on 0405 213 352.
TOOWOOMBA NEUROLOGISTS,
LESS TIME, STRESS & EXPENSE, SEE A LOCAL!
Ask your GP for a referral to Dr Grant Kleinschmidt
Specialises in Neuromuscular Inflammatory Disease, Demyelinating Disease & Multi-
ple Sclerosis ● Offers Private Practice Consultations & Telehealth for Eligible Patients
(worth the wait). Email [email protected] or Phone 07 4688 6000
TIP Once you have begun on your treatment and if your script
runs out before you see your Neurologist again, yes, you can
ask your GP for future script renewals in Queensland. If you are
on a health care card and government bulkbilled treatment,
seeing a GP will cost you nothing. Seeing your Neurologist
when you only need a script renewal could cost you a Neurolo-
gist visitation fee of approximately $170.
Blood Clot Symptoms: How to Tell if You Have One Ever get a paper cut or nick yourself while shaving? When that
happens, a blood clot saves the day. It quickly stops the bleeding,
and when it's done its job, it usually breaks up. Sometimes, though,
things can go wrong.
When blood clots don't fall apart, they can be dangerous and lead to serious medical
conditions. You can get them in blood vessels in just about any part of your body.
They’re most likely to affect a leg, especially if you sit for long periods of time.
You might get a clot in your arteries, which carry oxygen in your blood from your heart
to all the cells of your body. The result can be really serious. It can keep oxygen from
getting to your heart, lungs, or brain, and cause a life-threatening emergency, like a
heart attack or stroke.
You could also get a clot in the veins that carry blood back to your heart. When that
happens, symptoms usually come on more gradually, but can still mean trouble.
If you learn the warning signs, you'll know when to get quick medical help that can
make a huge difference in keeping you out of the danger zone.
Arms, Legs
When a blood clot forms in one of the deep veins
in your arm or leg, way beneath your skin's sur-
face, it could be something called a deep vein
thrombosis (DVT). That's dangerous because
the clot could travel to your heart or lungs.
You're more likely to get a DVT if you haven't
moved around for a long time, say after surgery
or during a long plane trip. Get medical help right
away if you notice any of these symptoms:
• Swelling. This can happen in the exact spot where the blood clot forms, or your
entire leg or arm could puff up.
• Change in colour. You might notice that your arm or leg takes on a red or blue
tinge, or gets warm or itchy.
• Pain. As the clot gets worse, you may hurt or get sore. The feeling can range
from a dull ache to intense pain.
• Trouble breathing. If this happens, it could mean that the clot has moved from
your arm or leg to your lungs. You may also get a bad cough, and might even
cough up blood. You may get pain in your chest or feel dizzy. Call 000 to get
medical help right away.
• Lower leg cramp: If the clot is in your calf or lower leg, you may feel like you
have a cramp or charley horse.
Continued Over….
Heart
A blood clot that forms in or around your ticker may cause a heart attack. Watch out
for symptoms like these:
• Severe pain in your chest and arm
• Sweating
• Trouble breathing
Lungs
A blood clot in your lung usually starts out in a deep vein in your arm or leg, then
breaks off and travels to your lung. When this happens, you get what's called a pul-
monary embolism, an extremely dangerous condition.
Get medical help right away if you:
• Feel short of breath or have problems breathing
• Get pain in your chest
• Start to cough
• Begin to sweat
• Feel dizzy
Brain
Blood clots here may be caused by fatty deposits in the walls of the blood vessels
that bring blood to your brain. Or sometimes, they may form because of a blow to
your head that leads to a concussion.
In other cases, a clot that starts out in a different part of your body, like your chest or
neck, might enter your bloodstream and travel to your brain, where it can cause a
stroke.
Watch out for these symptoms:
• Problems with your vision or speech
• A seizure
• General feeling of weakness
Source. Excerpt from WebMD Medical Reference | Reviewed by James Beckerman, MD, FACC on July 05, 2018
Medical Alert Check Recently we heard about a fall that did not trigger the medical alert
alarm and the user was hurt. Check your medical alert routinely to
make sure it is working as it should and understand how your alert
detects a fall so it will work for you when needed.
Another story was of a home break in last month while the medical alert user was in
the home. Her phones were stolen but thankfully her medical alert could be used to
get emergency assistance.
D id you miss the SBS Insight Program on living with MS?
The focus of the discussion was how people live with and manage
their multiple sclerosis (MS). Visit the following weblink for full info.
https://msra.org.au/news/sbs-insight-program-living-with-ms/
President Sue 4564 9318 email [email protected]
Vice President Daryl 4636 0406 email [email protected]
Secretary Trish 0422 361 622 email [email protected]
Treasurer Mike 0405 213 352 email [email protected]
Facebook Manda 0435 185 435 email [email protected]
Newsletter & PR Joanna 4635 3281 email [email protected]
Chill & Chat Social Meet Cathy 0402 143 826 email [email protected]
SMAC Twmba Carers Rep Jon 4635 5481 email [email protected]
Services, Management & Advisory Committee “A conduit between MSQ management and people
with MS, their families and carers.“
On the Web search “MS Toowoomba”
FACEBOOK “MS Support Group Toowoomba”
Toowoomba MS Wellness Centre
Easternwell Building, 8-10 Russell St, Toowoomba
MS QLD Neuro Physiotherapy
Colorplast Care Incontinence Clinic visiting monthly
Phone Irene on 0423 422 318
MS QLD/Neuro Assist Appointments and Infoline 1800 177 591
www.msqld.org.au
Spark NeuroCare Regional Service Co-ordinators
Janice Wheeler P 1800 875 244 or M 0408 186 690
Andrea Meehan P 1800 875 244 or M 0439 484 148
TOOWOOMBA MS SUPPORT GROUP CONTACTS
S iponimod under consideration for
treatment of secondary progressive MS 04 September, 2019, Excerpt from MS Research Australia
Secondary progressive MS, a form of MS that can follow on from relapsing re-
mitting MS, currently has no approved treatment options available in Australia.
A large clinical trial in people with secondary progressive MS showed that
siponimod can reduce the risk of disability progression in those with secondary progressive
MS. The Pharmaceutical Benefits Advisory Committee (PBAC) will be meeting in Novem-
ber to assess the use of siponimod, brand name Mayzent, in people with secondary pro-
gressive MS and submissions in support of these applications are invited from the MS com-
munity.
Secondary progressive MS is a type of MS that can follow on from the most common form
of MS, relapsing remitting MS. Currently, there are no approved treatments available for
secondary progressive MS in Australia.
Siponimod is an oral treatment from the same class as fingolimod (Gilenya), a medication
already approved in Australia for the treatment of relapsing remitting MS. It acts by target-
ing immune cells and preventing them from moving into the areas of inflammation in MS
(the brain and spinal cord).