the south & west cornwall branch of the ms society december 2013 magazine "the...
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The end of December 2013 is here and here is the 1st edition for 2014, of "The Lifeboat". This month the latest news on how Researchers discovers small DNA differences in people with MS. TB vaccine potential to reduce MS activity investigated. Page 4 NICE confirms new oral treatment for MS on NHS. Celebrities and artists back MS Society’s online auction. Also the November Carers lunch at The Victoria Inn, Threemilestone, Truro and Christmas lunch at The Falmouth Hotel. Plus South & West Cornwall branch Christmas lunch at The Membly Hall Hotel, Falmouth attended by over eighty Members with Family and Friends. Page 7:- Read-A-Thon news and the Schools Awareness DVD project. Laona’s page:- "After all the fear, anger, despair and grief of diagnosis I sit here and realise that my life now in many ways is better. MS is life changing but something life changing can give you a special sort of strength." - A must read for anyone affected or newly diagnosed.TRANSCRIPT
The
Lifeboat
South & West Cornwall
Branch
Monthly Magazine
May your hopes, dreams and wishes come true in 2014
January 2014
1
Page 11 Laona’s page Page 12 December carers lunch at the
Victoria Inn Threemilestone
Page 13 19th January—Meeting at the
Tregenna Castle Hotel, St Ives
Pre Valentine 1940’s night Page 14 cabaret evening Page 15 Rabbit stew
Sweet revenge Page 16 Youth group Page 17 Young MS and Friends Page 18 Events Page 19 Information page
Inside the Lifeboat
this month MS News
Page 3 Researchers discovers small DNA
differences in people with MS
TB vaccine’s potential to reduce
MS activity investigated
Page 4 NICE confirms new oral treatment
for MS on NHS
Celebrities and artists back MS
Society’s online auction Page 5 I remember the cheese of my
childhood,
Thought of the month Page 6 November Carers Christmas lunch
South & West Cornwall branch
Christmas lunch Page 7 Read-A-Thon news.
Schools Awareness DVD
Page 8 Sunshine and Showers TRURO
Mr & Mrs Chapman at the Hall for
Cornwall Page 9/10 Quiz page
Cover picture
This months cover picture gave me a
problem, I designed two covers and
couldn’t decide which one to use so I
have shown the other option here on the
left.
I wanted to create a picture of fantasy so
that we could imagine the realisation of
our hopes and dreams for the future but
as usual I drifted from the subject slightly.
Its looking at so many beautiful pictures
and then trying to choose just one, its
impossible.
2
Chairman’s Report
Editors Note
Hi Everyone,
With Christmas
out of the way I
expect like me
you make new year resolutions which don't last very long.
This month is an important month for the
new members from the West Cornwall area
who have joined us. Together we can and
will allow all our members to enjoy all the
benefits of being in our branch irrespective
of where you live.
I would like to remind you that my wife
Lindsay enjoys the extra care that a
'Personalized Budget' can offer , over the
packages some of you have, when you are
serviced by an agency. When Lin and I
used to use an agency we had twelve and
a half hours a week at a cost to the council
of over £2000 a month. With the same
figure, we are now able to enjoy employing
four Personal Assistants who together give
us in excess of fifty hours a week.
The running of the scheme is not an
onerous one because we use Disability
Cornwall to do all the paper work. This they
do for a charge of £30.00 a month.
Should anyone want to know more. please
get in touch and I will certainly help and
advice you.
Finally don't forget the Annual General
Meeting of which details can be found in
the magazine .
One last thing , I am still trying to find a
recipe for Rabbit pie. So watch out Jasper!
MikeMikeMikeMike
Hello Everyone
The start of the year is
always an exciting time,
looking forward to
new developments.
This new year is no
exception with all our
activities taking place and new ventures
over the horizon.
The transfer of members from West
Cornwall will bring new challenges both in
the supply of services and the financial
implications of 60 or more new members
who will need our services in the far west. I am hoping that the meeting on the 19th
January will be well attended so that we
can start to develop services that meet the
needs of our members in a way that is
practical and cost effective. It is also
important that we put in place the correct
management procedures in order to
maintain continuity and standards, so I
would urge you to attend on the 19th.
More good news is the new member of the
Young MS and Friends Group, Laura Ward
who I am sure will make a valuable
contribution.
More activities this year with the 1940’s
night on the 1st February and the Cabaret
on the 1st of March, not forgetting the now
monthly carers lunch being held in different
parts of the county. If you are 18—35 you can join the Young
MS and Friends Group on the 31st January,
all these events are in this month edition. I must thank all those who came to the
Christmas lunch, it was so good to actually
see the people that we communicate with.
As always with editors notes I seem to run
out of space so I may have a page in next
months Lifeboat so that I can talk more
about the future and the ideas for the
branch.
Max Bridges and Mike May are working on
our new website so watch this space!
Happy new year, MMMMaaaallllccccoooollllmmmm
3
News from the MS National Centre
A small study, published this week in the
journal Neurology, has demonstrated the
successful use of a vaccination to reduce
MS activity in people who had experienced
a first MS-like attack.
Researchers studied MRI scans and found
a reduction in MS activity (lesions appearing
on an MRI scan) in people who were given
the Bacille Calmette-Guerin (BCG)
vaccination compared to people who were
given a placebovaccination. The BCG
vaccination can be given to people in the
UK at risk of tuberculosis.
This reduction in MRI activity (which is
known to correlate with relapse rate)
indicates that the vaccination could delay
the onset of being diagnosed with MS.
The study
Researchers in Italy studied 73 people who
had experienced a first MS-like attack (also
known as clinically isolated syndrome; CIS).
At the start of the trial, participants were
given either a vaccination (33 people) or a
placebo (40 people), and monitored for six
months with monthly MRI scans.
The participants were then all given
beta-interferon for a further year, before
taking whichever disease-modifying
treatment they decided on with
theirneurologist. After this, they were
studied for up to five years.
Validation needed
Dr Susan Kohlhaas, head of biomedical
This week,
researchers in New
York have published
the results of a
project studying
small structural DNA
changes (termed ‘modifications’) in the
brains of people with MS.
They discovered subtle differences in DNA
modifications in the brains of people with
MS compared to the brains of people
without MS. This means there can be
differences in the activity level of certain
genes in people with MS.
Differences in myelin-making cells
Genes that help myelin-making cells
(oligodendrocytes) survive were found to
have different modifications and appeared
less active in the brains of people who have
MS.
Clues to MS cause
We already know that the environment can
affect or modify our genes. These small
differences in DNA modifications could lead
to clues about how the environment might
interact with genes to influence the
likelihood of someone developing MS.
This research was published in Nature
Neuroscience and conducted by
researchers in New York using samples
from MS Society Tissue Bank.
Dr Susan Kohlhaas, Head of Biomedical
Research at the MS Society, said:
“Understanding more about changes to
Researchers discovers small DNA
differences in people with MS
molecules in the brain in MS is important to
help us learn more about the underlying
cause, and to find ways to treat or one day
even prevent the condition.
“This is the first study to find differences in
DNA modifications in people with MS, and
we are delighted that samples from the MS
Society Tissue Bank contributed to making
it possible. We look forward to seeing
further developments in this new area of
MS research.”
TB vaccine’s potential to reduce MS
activity investigated
4
NICE have confirmed Aubagio
(aka teriflunomide) should be prescribed on
the NHS in England and Wales as a ‘first
line therapy’ for people withrelapsing
remitting MS.
It's a reversal from the previous
decision given by the health advisory body
in September, which the MS Society
campaigned against.
Freely available on NHS
The decision means that the drug should
soon be freely prescribed to anyone who
might benefit and is considered an
alternative to beta-interferontreatments.
NICE have not recommended the treatment
for those with highly active or rapidly
evolving relapsing remitting MS (for whom
other treatments are available).
Aubagio is a daily pill and only the second
oral therapy to be confirmed for use on the
NHS, after Gilenya, but the first to be
offered to patients as a first treatment
option.
Our view
Nick Rijke, Director for Policy & Research at
the MS Society, said: “This is very good
news for people with relapsing forms of
MS. 90% of people with MS want an
alternative to treatments by regular injection
and now, at last, there is a first line
treatment option available. Teriflunomide
offers a similar treatment effect to the
current injectable therapies, but for many
people will be much easier to live with
because it's a pill.”
Available from 2014
research at the MS Society said:
“It’s really encouraging to see positive
results from this small trial, but they’ll need
validating in larger and longer-term studies
before we know if the BCG vaccination can
reduce the risk of someone developing MS.
“Ultimately, the chance to take a safe and
effective preventative treatment after a first
MS-like attack would be a huge step
forward.”
NICE confirms new oral treatment for MS
on NHS
In line with normal NICE procedure this
decision is now open to appeal. But if there
are no setbacks, then from around April
2014 hospitals and NHS Trusts will be
legally obliged to prescribe Aubagio to all
patients who choose to take it and are
deemed eligible by a neurologist.
The Scottish Medicines Consortium and
Northern Ireland’s drugs regulatory bodies
will consider the treatment separately for
patients there.
Celebrities and artists back MS Society’s
online auction
To mark the MS
Society’s 60th birthday,
celebrities and artists have
been designing unique
cards for the MS Society
to auction on eBay. The money raised will
fund research. Famous names supporting
‘Cards for a Cause’ include Sir Roger
Moore, Jamie Oliver, Olympic Gold
medallist Sir Ben Ainslie, Sir Ranulph
Fiennes, Richard E Grant, Downton
Abbey’s Hugh Bonneville, Janis Winehouse,
Alan Shearer, Sir Chris Hoy, Lorraine Kelly,
Laurence Llewellyn-Bowen, author Sophie
Kinsella, Oritsé Williams from JLS and Holly
Johnson from Frankie Goes to Hollywood.
You can bid for the cards by visiting eBay
from 2 December:
www.ebay.co.uk/usr/mssocietyuk
Raise money and awareness The auction
launches on eBay on Monday 2 December,
the date of the MS Society’s 60th
anniversary, and will be live for 10 days.
The aim is to raise money and awareness in
the charity’s 60th year. All the money will be
spent on the MS Society’s pioneering
research programme.
Incredibly grateful Michelle Mitchell is the
Chief Executive of the MS Society:
“We’re incredibly grateful to all the
celebrities and famous names who’ve
taken the time to design a card for the MS
Society’s Cards for a Cause auction.
“Every penny raised will go towards our
innovative research programme.
5
I remember the cheese of my childhood,
And the bread that we cut with a knife,
When the children helped with the
housework, and the man went to work not
the wife.
The cheese never needed a fridge, and the
bread was so crusty and hot.
The children were seldom unhappy
and the wife was content with her lot.
I remember the milk from the bottle,
with the yummy cream on the top.
Our dinner came hot from the oven,
and not from the fridge; in the shop.
The kids were a lot more contented,
they didn't need money for kicks,
Just a game with their mates in the road,
and sometimes the Saturday flicks.
I remember the shop on the corner,
Where a pen'orth of sweets was sold.
Do you think I'm a bit too nostalgic?
Or is it....I'm just getting old?
I remember the 'loo' was the lav,
and the bogy man came in the night,
It wasn't the least bit funny going "out
back" with no light.
The interesting items we perused,
from the newspapers cut into squares,
and hung on a peg in the loo,
It took little to keep us amused.
The clothes were boiled in the copper,
with plenty of rich foamy suds.
But the ironing seemed never ending
as Mum pressed everyone's 'duds'.
I remember the slap on my backside,
and the taste of soap if I swore
Anorexia and diets weren't heard of
and we hadn't much choice what we wore.
Do you think that bruised our ego?
Or our initiative was destroyed?
We ate what was put on the table
And I think life was better enjoyed.
Judy Reed
Sent in by Judy Reed
January 2014
Christmas 2013 is gone. I hope
you managed to rest after all
the effort you put into it! It’s
over for now and we are all
looking forward to the New Year. At least I
am and I do hope you are – let’s start 2014
full of optimism that the world will be a
better place by next Christmas.
Resolutions? Let’s not talk about them
today. Perhaps in a couple of weeks when
they are forgotten and we can laugh about
the big plans for a slimmer, fitter body we
envisaged, and just enjoy that box of
chocolates we tried to hide at the back of
the cupboard. You know you will only find it
again when you start the spring cleaning,
don’t you! There’s a thought, spring cleaning – no, let’s not think about that yet – plenty of time for that. Later this year will see the centenary of the
start of WW1 , or ‘The Great War’ as it was
originally thought of. I don’t expect there
were many who could have imagined there
would be another world war so soon.
Although there are some centenarians who
would have been children at that first awful
time, we will probably have to rely on the
memories they can recall from what they
have been told, and I’m sure there will be
parades up and down the country to
commemorate the occasion. We really
must never forget.
I’ll sign off with this thought, just
wishing you a happy New Year,
with a prayer for peace not only
around the world but in every
household this Lifeboat enters and
thanking you for reading these
ramblings month by month.
Ros
Thought of the month
6
November Carers Christmas lunch
Carers
Christmas
lunch at the
Falmouth
Hotel
The carers enjoyed
their Christmas
lunch but I heard
that there were no
spouts!!
South & West Cornwall branch
Christmas lunch
The branch Christmas lunch was hosted by
the Membly Hall Hotel, Falmouth.
The lunch was very well attended with
over 80 people enjoyed their Christmas
meal, of course father Christmas was there
again this year.
We compliment the chef and thank the staff
for a lovely time.
We look forward to next year
Read-A-Thon news
7
The November Read-A-Thon has now finished and we
are waiting for the results to come in this month but all
indications are that more have taken part in each school
participating in this round.
I can’t thank the schools enough for their unbelievable
co-operation. When the final results are in I will publish
them in our magazine
Schools Awareness DVD
These are most of the students
working on the Schools
Awareness DVD.
Mike May and I have been filming
for some time now and hope to be
finished by the end of January
The DVD is about bringing awareness to
schools with regard to MS and how people
are affected by the condition.
Our thanks go to Cape Cornwall School
who have had us trampling over their
library for several weeks now
Read-A-Thon DVD
Our next DVD is related to the MS
Read-A-Thon, and we look forward to
working with these student again.
We thank them for their input although
there were more out takes than wraps
they are really doing well.
Our thanks also go to Mrs Megan Nelhams
the school librarian (seen in the picture
above left) for her support and
commitment, not forgetting Emily Hill and
Julie Nash Head Teacher for without them
the project would not be possible.
I will keep you informed of progress.
Cape Cornwall School news desk
8
Sunshine and
Showers TRURO
Self help support
group for Service
users and Carers
are re launching on
the16th January
on Thursdays
from 1:30 - 3:30
then every other
Thursday.
We go ten pin bowling at Truro Bowling
alley, there is parking for disabled and our
group is open to Carers as well who may
benefit from a fun afternoon out within the
community.
We are a mixed group of adults who mostly
suffer from some kind of chronic long term
mental or physical illness and we all
support each other to help each other in
this difficult time of cuts to the NHS and
services.
The group is run by members and
volunteers and we all chip in to make sure
everyone has a nice time. We recently also
got nominated for an award for "Best
Community Activity" by the Voluntary
Services Forum.
We also had a lovely write up by time to
change and here is the link for anyone who
would like more info on Sunshine and
Showers:
www.time-to
change.org.uk/champions/peer-support-
truro
We would like to grow our support group
and from it hope that people will be able to
form friendships and gain support from
people within the community who are also
feeling the NHS cuts to services.
We have been running 18 months now and
have 3 full time volunteers, one gentleman
who had a stroke, myself who has
Fibromyalgia / Suspected MS and our
Treasurer is also disabled so we are very
empathic to the situations our members
face.
We can also sign post and offer a lending
ear should a person need a little
encouragement with the bowling. Or they
can just come along for a cup of tea !!
Claire Jones
Founder / Volunteer Group Leader
Sunshine & Showers (SAS) Mental Health
Cornwall
www.sunshineandshowers.co.uk
Facebook: Sunshine and Showers Positive
Mental Health
Mr & Mrs Chapman at the Hall for
Cornwall
Richard and Amanda Chapman ran a stall
at the Hall for Cornwall in aid of the South
& West Cornwall branch, we thank them
for their fund raising effort through 2013.
May they keep up the good work!
9
January quizJanuary quizJanuary quizJanuary quiz December Quiz answersDecember Quiz answersDecember Quiz answersDecember Quiz answers
Target
£2,000.00
Actual
to date £950
Money Boxes
9
This quiz is all about animals 1 What is the name of the bushy fur
around a male lions neck?
2 Why do zebras have stripes
3 Which monkey has been known to use
stones and sticks as tools?
4 What is a Philippine spotted deer also
named?
5 What frog family is the Trinidad stream
frog a member of?
6 What is the name for a family of
meerkats?
7 What sound does an otter make?
8 How long is a kinkajou's tongue?
Happy birthday to:
2nd Mrs J Revell
Christopher Smith
4th Cynthia Shrubb
Nicola Stevens
15th Joy Rushton
19th Allen Sargent
25th Betty Alderton
28th Ellen May
Can you spot the 12 differences
1 I saw mummy kissing Santa Claus
2 The First Noel
3 Away in a manger
4 Rudolf
5 Walking in a Winter Wonderland
6 Blue Christmas
7 Calypso Carol
8 Once in Royal David’s City
What’s this mystery object?
10
AcrossAcrossAcrossAcross
1111 Hoodwink (4)
3333 Helicopters, colloquially (8)
9999 Endurance (7)
10101010 Bognor ___ (5)
11111111 Precipitous (5)
12121212 Make sorrowful (6)
14141414 Natural tooth covering (6)
16161616 Haphazard (6)
19191919 In-crowd (6)
21212121 Call upon (5)
24242424 Male honey-bee (5)
25252525 Assassinated US president (7)
26262626 Imperil (8)
27272727 Conspiracy (4)
DownDownDownDown
1111 Catastrophe (8)
2222 Situation (5)
4444 Ashore (anag.) (6)
5555 Trimmed, peeled (5)
6666 Intellectual (7)
7777 Cummerbund (4)
8888 Uncomplicated (6)
13131313 Violet gemstone (8)
15151515 Taking everything into
account (3,4)
17171717 Period before Christmas (6)
18181818 Harass a speaker (6)
20202020 Female ruler (5)
22222222 Take unlawfully (5)
23232323 Tool used to cut and shape
wood (4)
Answers to December crossword
January crossword
11
So it is 2014. The post Christmas
slump has been and gone, the feelings of
guilt over all the excess are all but forgotten
and New Year resolutions are yet to be
broken. But before 2013 is a distant
memory and plans for 2014 get under way,
I think there is something more important to
do. As the end of the year approached I
found myself reflecting on all that has
happened in the past year and how one
year can change not just your life but your
whole perspective. After all the fear, anger,
despair and grief of diagnosis I sit here and
realise that my life now in many ways is
better. MS is life changing but something
life changing can give you a special sort of
strength, even though at times I felt I was
barely holding it together. It also gives you
purpose and clarity. It has the incredible
ability to ground and define.
I am definitely not the person I was, in more
ways than one, although I seem to have
retained all of my annoying traits!. No, I am
now more focused, more settled and in
many ways happier. I feel like I have finally
found myself and what is really important to
me, I feel a sense of completeness that
wasn't there before. Yes at the beginning I
mostly felt like a ticking time bomb,
envisaging a restricted and gloomy future
full of all the worst case scenarios, ready
to throw sensibility and caution aside in fear
of a future where I was no longer able or
capable, better do it now before it's too
late !.
Laona’s page Luckily those thoughts and feelings have
run their course, yes I have the odd blip but
mostly I am focused on today and that is
how I want it to be and how it should be,
enjoying, appreciating and making the most
of the now with my Husband, whose love
and constant support has got me here
and my family and friends.
So now you have said goodbye to 2013
and welcomed in 2014, take time now and
again to celebrate the now with those who
mean the most. For me when I want to
celebrate I want to cook and I want it to
be something special, it doesn't have to
be a culinary masterpiece, it just has to be
delicious!. So maybe I can tempt you with a
course from my winter celebration dinner, a
venison, apricot and pickled walnut
casserole, easy to double up, prepare in
advance and reheat on the day and
definitely delicious !.
Who knows what the future holds but I wish
you all a Happy and Healthier 2014 !.
Venison, apricot and pickled walnut
casserole
1 kg diced venison
100g pancetta, optional
1 x jar pickled walnuts, drained and halved
100g dried apricots
2 onions, diced
3 cloves garlic, crushed
300g shallots, peeled and left whole
375ml red wine
75 ml port
1/2 chicken stock cube
2 tsp tomato puree
2 sprigs thyme
2 bay leaves
2 strips orange peel
2 tbsp chopped parsley
1tbsp cornflour
4 tbsp olive oil
black pepper
Oven 150C/300F/gas 2
Serves 5 - 6
12
Heat 1 tbsp of oil until very hot in a large
pan and brown half of the venison, transfer
to a casserole dish and repeat with the
remaining meat.
Add another tablespoon of oil to the pan
and fry the pancetta, if using. Remove with
a slotted spoon and transfer to the
casserole. Add the shallots to the pan and
cook over a medium/high heat until they
colour and add to the meat along with the
apricots, thyme, bay leaves and orange
peel.
Heat the remaining oil and gently fry the
onions until they soften, add the garlic and
cook for a couple of minutes more. Stir
in the cornflour and cook for a minute
then add the red wine, tomato puree and
crumble in the stock cube. Bring to the boil,
stirring continuously until the sauce has
thickened. If the sauce seems a little too
thick add a drop more wine or water,
season with some black pepper, then pour
into the casserole and mix well.
Place a damp piece of baking parchment
over the meat before covering with a lid.
Cook for 1 hour and 45 minutes, remove
from the oven and stir in the port and
pickled walnuts. Return to the oven and
cook for another 45 minutes, or until the
meat is tender.
Garnish with some chopped parsley before
serving.
Nothing moves me anymore
(only cardboard boxes)
A blue moment feeling my guitar sing
hot—rod wheels sail in the summer breeze sea
A Persian cat in a blue coat of arms-howl’in
music talk and music swing mister music man
the streets where people sleep in
cardboard boxes
A wind wood forest with pink paper blues
microphone sound in an elephant cry
black panther gold fish bowl experience
red rambling ram jam streets with pea green soup
the streets where people sleep in
cardboard boxes
Father and daughter in a blue sock sucking on
ambrose and custard ice cream whizz...with
black flamingo rhubarb and blueberry pie
tangerine marshmallows eating marmalade people
the streets where people sleep in
cardboard boxes
Howl’in wolves cry in bring on back the blues
where a fat cat sat on a pink crescent moon
talking in his head, your soul goes with you
a rainbow bridge where people never cry..
the streets where people sleep in
cardboard boxes
Susan Creese
December carers lunch at the Victoria Inn Threemilestone
Sent in by Susan Creese
The next carers lunch is on the 16th Jan. at the Premier Inn, Camborne which is on the
Camborne West turn off from the A30 (also called the Trevithick Inn). Book now!
13 5 5 13
This meeting is to discuss the future
services provided by the South & West
Cornwall branch following the transfer of
West Cornwall members to South
Cornwall.
The Agenda:
12.00 Assemble
12.30 A light lunch
1.00 Presentation about South & West
Cornwall branch.
1.30 Open forum:
What services do our members
want?
How can they be delivered?
How can we improve our
services?
The Financial implications.
3.00 pm sum up If you wish to attend this meeting please
call Malcolm 01209 860754 or email
[email protected] The meeting is open to all members and
carers, however a lack of response will
result in cancellation and a missed
opportunity to have your say in the future
services provided by your branch.
Important noticeImportant noticeImportant noticeImportant notice It has been brought to our notice that
vouchers have been issued and are being
used for hydrotherapy in the west.
The Harbourside physiotherapy centre has
not yet been authorised to accept these
vouchers and until we have carried the
necessary checks we cannot issue
vouchers for this facility
The object of the meeting on the 19th
January is to discuss our requirements and
services, then put the necessary
management procedures in place.
I am hoping that we have resolved this
problem before this issue goes to press.
Please attend the meeting so that we can
take logical steps to provide the required
services.
19th January—Meeting at the Tregenna
Castle Hotel, St Ives
Yes! back by popular demand we are
holding another 1940’s night on the 1st
February 2014.
We want to fill the hall with a 1940’s
atmosphere, lots of dancing, good
company and a great time.
Dress up in your best 1940’s outfit and
enjoy the evening.
Its only £5.00 which includes a pasty
supper and there’s great music from
the Fire ’n’ Ice 1940’s disco.
Call: 01209 860754 for tickets.
Pre Valentine 1940’s night
Information
A cabaret evening with
Your name and address (printed)
……………………………………………………………………………………………...
………………………………………………………………………………………………… Dietary requirements
………………………………………………………………………………………………... I would like tickets for the Fire ‘n’ Ice Cabaret on 1st March 2014
Please indicate number of wheel chair spaces required: - Number
None
The next Fire ‘n’ Ice Cabaret is on the 1st March 2014, and is being hosted by
the Tregenna Castle Hotel, St Ives. The evening is open to all and will consist of
a meal and entertainment. So ring your friends and get your tickets booked to
avoid disappointment. Other branches are welcome to attend.
The Details :
Date: To be held on a Saturday 1st March 2014.
Venue: Tregenna Castle Hotel, St Ives The Meal: Two course meal, Roast Beef with dessert (Vegetarian option).
Programme: 7.00 for 7.30 Meal
Entertainment from 9.00pm till at least 11.00pm
Entertainment: Fire ‘n’ Ice - popular Duo, plus a star guest Raffle in aid of MS plus Lucky ticket draw.
Total Price: Free for people with MS
£5.00 for carers
£10.00 for all others, All are welcome A special rate of £45.00 per person bed & breakfast is available, quote Fire ‘n’
Ice when booking. If you wish to attend please complete the return slip below and send it with
your remittance to:-
Malcolm Glister
Whispering winds
Crellow Hill, Stithians
Nr Truro Cornwall TR3 7AQ
Tel 01209 860754
Email: [email protected]
Please make cheques and orders payable to MSS
Society (do not send cash). You will receive confirmation of purchase and the
tickets will be held on the door for you on arrival unless you state otherwise.
14
15 15
Ingredients
• 140g prunes
• 50ml brandy
• 50g soft brown sugar
• 2 rabbits, jointed
• plain flour, for dusting
• 1 tbsp vegetable oil
• 3 rashers smoked streaky bacon, sliced
into thin strips
• 2 carrots, chopped
• 1 onion, chopped
• 2 celery sticks, chopped
• 1 garlic clove, crushed
• 2 thyme sprigs
• 1 bay leaf
• 150ml red wine, the best you can afford
• 250ml chicken stock
chopped parsley and wild rice, to serve
MethodMethodMethodMethod
1. Heat oven to 150C/130C fan/gas 2. Put
the prunes in a bowl with the brandy and
brown sugar, stir, then set aside to soak.
2. Dust the rabbit in the flour. Heat the oil in
a large flameproof dish and brown the
rabbit all over until golden – you may have
to do this in batches. Set the rabbit aside.
Add the bacon, vegetables, garlic and
herbs to the dish and fry for 5 mins until
starting to colour.
3. Pour in the red wine and scrape all the
goodness off the bottom of the dish. Add
the chicken stock and put the rabbit back
in the dish with the boozy prunes, then
cover and cook for 2 hrs, stirring
occasionally, until the rabbit is totally tender.
Serve scattered with parsley and wild rice
on the side
Rabbit stew
Help!!
somebody
save me
from the
cooking pot
Sweet revenge
Mmmmmmmmmmmmmmm looking tasty,
I wonder if this is one of those Mike George
descendants?
As Jasper is a friend of mine, here's the
message. Take Jasper out the pot or the budgie gets
it.
Tune in next month to see if Jasper
escapes the pot and the budgie flies away.
Meanwhile cook a different rabbit, doesn’t
it look good.
16 16
South Cornwall branch
MS Youth Group West
“Making Sense”
JJJJaaaassssppppeeeerrrr
Well Christmas is now over and in the lead
up, members of your MS youth group were
all very busy with school plays, Jamie
playing in a guitar ensemble in church and
Ben playing with Pendeen Silver Band in
their big Christmas concert.
Our youngest member Jack celebrated his
3rd birthday on December 21st and had a
fantastic day. Belated birthday wishes Jack,
from all members and Jasper!!!
Keep reading 'The Lifeboat', to find out
what other adventures the youth group are
up to. Jamie will be watching Premier
League Darts again in March. Megan and
Lauren will be off to Wembley in June to
see One Direction with Megan’s mum Paula
and Nikki (who will be taking ear plugs) and
Ben has a week camping with his school.
We hope to arrange more fund raising
events including a coffee morning and
maybe another table top sale or craft fayre.
Your monthly Lifeboat will keep you
informed.
Until next month, Megan, Jamie, Lauren,
Ben, Jack, Anna, Nikki and even Jasper
(who has taken time out from tea making)
wish you all a Very Happy New Year!!!!
Nikki xx
My London trip On Wednesday the
6th of November at
6.00am I got on a train
to go to London, It took
6 hours.
The train was a bit
boring but we
had some things to
entertain us, when we got to London we
went to our hotel rooms. We stayed in the
Cardiff hotel, in rooms or 3 or 4. After we
did some sight seeing and when we fin-
ished we went on the London eye.
The eye was very
good we saw lots of
nice sights and things.
Next we went to a
restaurant called
Garfunkel's. I had
sausage mash and beans. When we had
finished we went to watch Charlie and the
chocolate factory. It was very good,
my favourite was miketevee [luca Toomey]
because he is a very good acrobat and
gymnast, he is also a very good actor.
After the show we went back to the hotel.
The next morning after breakfast we went
back to our rooms to get our stuff ready
and played some games. We did some
more sight seeing.
At about 2.00 we
went to the house
of parliaments. We
went into the
houses of
commons and
houses of lords and we got to meet
Andrew George. He answered some of our
questions. When he was younger he
wanted to be a spaceman. After that we
went to a restaurant called ask it was really
nice. I had pepperoni pizza. When we had
finished, it was time to get the train all the
way home. I had a really great time! Lauren
Thanks Lauren for your
article on your trip to
London, it must have been
exciting.
Has anyone else out there
been on a trip that we
could hear about, why not write in to the
editor and tell us about your school trips
with lots of pictures if possible.
Or just give us a story about something
you have done, we could run a
competition. Do it Now!!
17
Young MS and Friends Group
The Young MS & Friends group are
developing their activities with a view to
launching a programme of events in the
new year.
We welcome the arrival of Laura Ward a
new member, Laura is from Belfast and
makes a great addition to the team.
A Young MS and friends social event for
people aged between 18 and 35 has been
arranged for Friday the 31st January 2014
at the Victoria Inn, Threemilestone,
Nr Truro.
7.00 pm start, come and have a chat,
something to eat and just chill out.
Call 07724205006 to book your place
Look out for the posters and brochure to
be launched in the new year
Young MS and Friends
Group
At the Victoria Inn
Are you aged between
18 and 35
The First social event held by the Young MS Group is
to be held at the Victoria Inn, Threemilestone on the
31st January 2014. 7.00 pm arrival, the evening will be funded by the
South & West Cornwall branch so if you fit the age
group come and have a meal with the Young MS
team and talk about what they can offer you and
what you would like to see for young people with MS
in Cornwall.
18
Events taking place at Merlin MS Centre
Sign up is open for the Grand Canyon Sign up is open for the Grand Canyon Sign up is open for the Grand Canyon Sign up is open for the Grand Canyon
TrekTrekTrekTrek---- 10101010thththth----17171717thththth May 2014 Trek.May 2014 Trek.May 2014 Trek.May 2014 Trek. Are you
ready to experience the breath taking
beauty of the Grand Canyon whilst raising
money for the Merlin Ms Centre?
With a year to fundraising you have plenty
of time to join us for this trek of a lifetime.
Contact the centre for more information
01726 885530. Looking for collectorsLooking for collectorsLooking for collectorsLooking for collectors
Merlin MS Centre are looking for willing and
friendly volunteers to help with their
supermarket collection days throughout the
year and throughout the county. If you think
you can spare an hour or two to help then
please get in touch with the centre on
01726 885530.
Tel: 01726 885530
South & West Cornwall
Branch events 2014
JasperJasperJasperJasper
19th January—Members meeting at
Tregenna Castle Hotel, St Ives 12.00 till
3.00pm
16th January—The next carers lunch at the
Premier Inn, Camborne which is on the
Camborne West turn off from the A30 (also
called the Trevithick Inn).
please, if you are going confirm with
Karen on 01872 274188.
31st January—Young MS and Friends
Group social event at the Victoria Inn
Threemilestone
1st February—1940’s night at
Perranaworthal village hall
8th February—Annual Meeting at the
Carnon Inn, Carnon downs Nr Truro
1st March—An evening with
Fire ‘n’ Ice cabaret at the
Tregenna Castle Hotel, St Ives
Watch this space for future events, for more
information call Malcolm: 01209 860754
All branches are welcome to attend South &
West Cornwall events, we would be pleased
to see you.
I’m opening a gym called,
“resolutions”. It will have exercise
equipment for the first two weeks
and then turn into a bar for the
rest of the year.
Anyone can join!!
My new project
Branch contact details:Branch contact details:Branch contact details:Branch contact details:
Whispering Winds
Crellow Hill
Stithians
Nr Truro
Cornwall
TR3 7AQ
Tel: 01872 274911
www.mssociety.org.uk/southcornwall Satellite eventsSatellite eventsSatellite eventsSatellite events Last Monday of each month: Last Monday of each month: Last Monday of each month: Last Monday of each month:
Helston & Lizard Group meeting:
Wheal Dream Restaurant, Helston
from 11.00am to approx 2.00pm.
Lunch at discounted rate. Every Thursday: Every Thursday: Every Thursday: Every Thursday:
Yoga at the Well Being Centre,
Nance Lane, Churchtown,
Illogan. 11.00am to 12.15pm. with
Carolyn Smith by appointment only. Every third Thursday of each monthEvery third Thursday of each monthEvery third Thursday of each monthEvery third Thursday of each month
Carers meeting at Mike George’s Useful contacts:Useful contacts:Useful contacts:Useful contacts:
MS National Centre: 02084 380 700
MS Helpline: 0808 800 8000
Care Direct: 0800 444 000
NHS Direct: 0845 4647
Editors Contact detailsEditors Contact detailsEditors Contact detailsEditors Contact details:
To send in articles or comments.
Malcolm Glister
Whispering Winds, Crellow Hill,
Stithians, Nr Truro,
Cornwall, TR3 7AQ
South & West Cornwall Branch Information
Need help or advice, call our
support number 01872 274911
All views expressed in this publication are individual and not necessarily the view or policy of the charity and its supporters.
Multiple Sclerosis Society Registered charity nos. 1139257 / SC041990
Registered as a limited company in England and Wales 07451571
Chairman: Chairman: Chairman: Chairman: Mike George
Telephone: 01872 862031
email: [email protected]
Treasurer: Treasurer: Treasurer: Treasurer: Hilary Merton
Telephone: 01872 863896
email: [email protected]
Address: 7 Agar Meadows, Carnon Downs, Truro,
TR3 6HS.
Voucher Admin Officer: Voucher Admin Officer: Voucher Admin Officer: Voucher Admin Officer: Christine Sargent
Telephone: 01209 315386
email: [email protected]
Secretary: Secretary: Secretary: Secretary: Richard Stevens
Telephone: 01736 360551
email: [email protected]
M S Support : M S Support : M S Support : M S Support :
Telephone: 01872 274911
Carer’s Officer: Carer’s Officer: Carer’s Officer: Carer’s Officer:
Karen Moore
Telephone 01872 274188
Branch Profile manager and Magazine Editor: Branch Profile manager and Magazine Editor: Branch Profile manager and Magazine Editor: Branch Profile manager and Magazine Editor:
Malcolm Glister
Telephone: 01209 860754
email: [email protected]
Branch Web manager: Branch Web manager: Branch Web manager: Branch Web manager: Mike May
Telephone: 01872 272 957
email: [email protected]
Membership: Membership: Membership: Membership: Betty Alderton
Telephone: 01872 270901
email: [email protected]
Minute Secretary: Minute Secretary: Minute Secretary: Minute Secretary: Moe Fisher
email: [email protected]
Branch Safety Officer and Youth Team: Branch Safety Officer and Youth Team: Branch Safety Officer and Youth Team: Branch Safety Officer and Youth Team: Nikki Jenkin
Telephone: 01736 787089
email: [email protected]
Events CoEvents CoEvents CoEvents Co----ordinator: ordinator: ordinator: ordinator: Malcolm Glister
Telephone: 01209 860754
email: [email protected]
Fund Raising Officer: Fund Raising Officer: Fund Raising Officer: Fund Raising Officer: Marlene Stevens
Telephone: 01736 360551
email: [email protected]
Young MS & Friends Young MS & Friends Young MS & Friends Young MS & Friends Lauren & Alex