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it’s all about... making Sick Kids better

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it’s all about...making Sick Kids better

As we introduce our campaign to raise at least £15 million for the new Royal Hospitalfor Sick Children in Edinburgh, we warmly thank everyone who has helped to make ourInaugural Ball a very special occasion.

making Sick Kids better...

www.newpyjamas.org

The Balloon & Party Co.

www.newpyjamas.org

making Sick Kids better...

Bringing it all to lifeAs chairman, I am delighted to welcome you to our new pyjamasInaugural Ball. I hope you have a thoroughly enjoyable evening andleave with a strong desire to join us in making the new Sick Kids hospitalthat’s coming to Edinburgh the best that it can possibly be.

In this brochure we give you a brief insight into the dedication andpioneering work of the staff at Sick Kids Hospital, we also explain why we

need a new children’s hospital – and how you can help.

There’s no denying that everyone who is familiar with Sick Kids feels great affectionfor the charming, rambling Victorian building. Parents and patients across Scotland

agree the current hospital has given great service. Equally, parents and staffrealise that on a practical level, the lack of space is a problem especially when

you consider what is possible in modern children’s hospitals.

Although based in Edinburgh, the Royal Hospital for Sick Children is a tertiaryfacility which provides specialist and emergency treatment for children andyoung people from all over Scotland. Over its 150-year life, there has been aconstant need to expand the hospital to meet the ever increasing demand forits services. It has outgrown four different sites in its time. The hospital nowneeds to move once more, this time to a new site where that expansion cancontinue to take place.

But a new children’s hospital in Scotland is about much more than a building.It’s about our investment in the most significant asset we have as a nation – our

children and young people.

Specifically designed for its young patients, the new children’s hospital will be awelcoming, comfortable and friendly place where our children and young people will get

the best healthcare in the world. And it’s money from the campaign that will pay for the kindsof things that will help to make the hospital all that we want it to be.

Thank you for taking the time to join us this evening to hear all about making Sick Kids better. I lookforward to meeting many of you in the months ahead.

With warm regards

professor Graeme Millar CBE chairman new pyjamas campaign

Graeme Millar

making Sick Kids better...

A pioneering culture that brings a smile all round

Since first opening its doors in 1860, the Royal Hospital for Sick Children in Edinburgh has had anenviable reputation for its pioneering work in paediatric healthcare, and also for its commitment

to research into better treatments and care. To give you a brief insight into some of thatpioneering work, and what a new hospital will mean to patients and their families, we

hear from two highly respected paediatric consultants who are known across the worldfor their work at Sick Kids.

Dr Ken Stewart specialises in reconstructing the ears of children who are bornwithout ears. Children and babies come from all over Scotland for the life changingsurgery. Dr Stewart finds his job very rewarding in lots of ways: “Part of thejoy, is to see the smile on the child’s face when they first see the new ear. Theyreally grow in confidence. I learnt the procedurefrom Dr Burt Brent in California. He has nointention of retiring because he nevergets tired of seeing that smile.”

Reaching the four corners of the worldAnother exciting aspect to Dr Stewart’s

work, is his relationship with othersurgeons across the world: “Ear

reconstruction is a niche market and I havefriends all over the world who are doing the same

thing. Last year we held the fourth internationalconference in ear reconstruction in Edinburgh and weliterally had people from the four corners of the world – fromSouth America, South East Asia, Australia and America. Thisyear, we’re to lecture in Beijing. And only last week we had DrFrancoise Firmin across from Paris helping us with a case, andsharing her expertise as we create a really world-class service for Scotland.”

Known internationally for its pioneering work in cleft, facial smile and burns surgery, families inScotland can be assured that Sick Kids really is doing its very best to offer a world-class service. Theconsultants keep up with every new development in plastic and reconstructive surgery — often leadingadvances.

Helping children with severe burnsChildren come for plastic surgery from Lothian, Fife and the Borders and consultants regularly holdoutreach clinics in the Highlands too. Dr Stewart knows the new hospital will make a huge differenceto children with severe burns: “We’re going to have a futuristic burns unit. Close to intensive care, itwill all be single cubicles with infection control barriers. And we’ll have an ensuite room with a bespokebath and shower where it will be more comfortable for children when we wash them down and changedressings.”

www.newpyjamas.org

making Sick Kids better...

www.newpyjamas.org

A special operating theatre, where the temperature can beregulated, will allow surgeons to perform extensive operations

without the child getting cold and that really is ofparamount importance in saving the child’s life: “It’s

going to make a world of difference. We’ll be ableto keep the child warm, and hopefully, do everythingin one or two operations instead of taking multipleoperations as we do now.”

Designed for childrenDr Stewart and his team are really excited about thenew children’s hospital. “It’s going to transform life forstaff, to come to work in a beautiful hospital. People who come

to work in happy buildings, are happy people. But our patients and theirfamilies will see the biggest difference. They will be welcomed into a warm

environment which is open and friendly and designed with the chid as itscentral focus.”

Dr Ken Stewart consultant plastic surgeon

Giving our patients dignityand comfort

Paediatric oncology consultant, HamishWallace, is responsible for developing thechildren’s cancer service in Edinburgh for thesouth east of Scotland. Dr Wallace firmlybelieves the new hospital will bring manybenefits for children with cancer, their familiesand more generally.

Oncology will be in a purpose built unit withabout 11 cubicles of which about half will beisolation cubicles. It means that patients whodevelop an infection, such as chickenpox, whichis a common complication of children’s cancer, willbe nursed on the ward.

Dr Wallace knows cubicles will make a huge difference: “They willall have a shower. At the moment we don’t even have a bath on the ward for the children to use.The cubicles will also have a bed where a parent, close family friend can stay, and our childrenfind that very comforting when they’re ill.”

Hamish Wallace

making Sick Kids better...

www.newpyjamas.org

Teenagers with cancer find it very uncomfortable to be treated with elderlypeople on the adult service, and they find it very distracting to

be treated on the children’s ward where there are manyyoung children running around. They often tell Dr Wallace

what they desperately long for is privacy: “They needsomewhere to go where they are not disturbed by

the under 12s. They will have a room for study andinternet access, where they can be on their own –and that’s a huge advantage.”

Children need care, and an educationDr Wallace is fully aware that younger children have particular needs too: “Atthe moment we don’t have a quiet play and study area and we’re going to havethis for the under 12s. And, that’s really important because a lot of our childrenneed to continue their education. It is not always possible for them to go to school,

but we can find an hour or two in the day when they can usefully do some workwith a teacher. There are also exciting plans to link hospital school rooms with

patients’ schools.”

Moving closer to the scientistsAnother big plus, is that it’ll be much easier for staff

to get in touch with the people who are responsiblefor helping to diagnose and manage patients’ conditions.

Dr Wallace describes what happens now: “Many tests go to thelabs at the Royal Infirmary and it’s really difficult to speak tothe people who are responsible for the results. At the new hospital,we won’t have this problem because the labs will be close by,such as microbiology, haematology, biochemistry – andpathology, which is needed to diagnose cancer.

“There are also benefits for scans and x-ray tests. A new test, PETscanning, is vital to diagnose and manage some children’s cancers.At the moment, our patients go to Aberdeen for PET scans but we’ll haveour very own, new and exciting scanner at Little France.”

Dr Wallace is also excited about what’s planned for neurosciences: “Brain tumours are the most commonsolid tumour in children. Surgeons can now operate on the brain with pin-point accuracy and many of ourchildren with brain tumours will benefit from the new neurosciences which are in the early planning stagesfor Little France.”

Hamish Wallace paediatric oncology consultantTo hear the interviews in full, please visit www.newpyjamas/network.org

Caring for families

The drop-in centre is a short walk from Sick Kids hospital. It offers an informal,homely atmosphere to children who are affected by long-term conditions

that impact on their daily life, and on their family.

Up to 400 people use the centre each month. Parents are alsowelcome at the centre after their child has been discharged from

hospital, and 10% of families continue to visit the centre when their childhas stopped attending the hospital.

Care and understandingFamilies look upon the centre as a placewhere they can relax. It’s a place wherethey will find solitude, a listeningear, emotional support andpractical information – all ofwhich is important to help themto cope with difficult and

stressful times. Staff urgeparents to take advantage of the

complementary therapies becauseit’s crucial that they take care of

themselves if they are to care for theirsick child. Parents also value the internet

links that allow them to keep in touch with friendsand family and the office. Arts and crafts help patients and

their siblings to share their feelings and express what’s on their mind.

Centre manager, Helen Taylor is very excited about the new children’s hospital. “The future for us isvery bright and very exciting. We’ll be in a purpose built building which will let us do much for parentsand patients. We’ll open for longer, seven days a week. The new hospital can’t come soon enough.”

making Sick Kids better...

www.newpyjamas.org

The Edinburgh Royal Hospital for Sick Children...the facts• Established in 1860, it was the first children's hospital in Scotland

• Staff treat 100,000 children every year

• Staff deal with more than 72,000 out-patient appointments every year

• Staff deal with 6,000 emergency admissions every year

• Over 20% of patients live outside Lothian

• The paediatric intensive care retrieval team brings 150 emergency patients from all over Scotland to the hospital every year

• One in four children will be admitted to a hospital before reaching 14

Helen Taylor

making Sick Kids better...

www.newpyjamas.org

It will take more than a sticking plaster

Today, like its early founders back in 1860, everyoneconnected to Sick Kids hospital shares the commongoal to make sick children well and to secure a healthyfuture for them and their families. Everyone alsorecognises that the hospital would not operate nearlyas well without the generosity and vision of thehospital’s benefactors and supporters.

Whether it’s a gift to help a family get the supportthey need, to secure the latest medical technology,or to help fund the next big discovery, the items onour wish list will make it easier for staff at Sick Kidsto give sick children the very best healthcare they can.Here we describe our three wish list funds to help youdecide where you want your money to go.

The family support fund£25 £50 £100 £250 £500 or more

This fund helps families to cope with all those unexpected situations thatcome from having a sick child in hospital. Your gift will pay for

anything from toys to IT equipment, items for the drop-incentre – and accommodation for families when a child

is being treated at the Sick Kids hospital.

The equipment fund£25 £50 £100 £250 £500 or moreYour support will help to buy specialistequipment that is often unavailable anywhereelse. This can be anything from a body scanner toa Brain Lab – a piece of equipment that is used duringbrain surgery to guide surgeons to the precise area wheresurgery is needed, such as in a brain tumour.

The discoveries fund£25 £50 £100 £250 £500 or more

Pioneering research has been the fabric of the Royal Hospital for Sick Children.From its early beginnings, staff have worked with, and produced, pioneers in

paediatric medicine. You only need to read about the work and dedication ofconsultants Ken Stewart and Hamish Wallace to see how your generous gift will help

that strong tradition to continue.

To make a donation, please visit www.newpyjamas.org or write to us at 12a Castle Terrace, Edinburgh EH1 2DP.

www.newpyjamas.org

making Sick Kids better...

“You go in sad, and come out happy”

To remind us what new pyjamas is all about we’re delighted pupils fromthe Julie Mitchell Edinburgh Dance Academy can join us at our

Inaugural Ball as we bring the campaign to life.

The prospect of a new children’s hospital coming to Scotland,is a very exciting one. No one linked to Sick Kids will deny thatit’s very much needed. But the new hospital is much more thana building. It’s about investing in the most significant asset wehave as a nation – our children and young people. All the peoplewho care for, and treat the children at Sick Kids, have onecommon desire – to make sick children better. We can draw

parallels to this from Jamie, aged nine, a pupil at the danceacademy who, when asked about his dancing, said:

“You go in sad, and come out happy.”

Julie Mitchell, who set up the Edinburgh DanceAcademy in 1996, firmly believes that self expression

is a wonderful way for children to improve their social skillsand build their confidence. “The world of dance is an exciting place

to be – a place where children can forget any worries. They go into the studiofor an hour and they can let themselves go. They can be a wave on a beach ora tiger in the jungle, they can be what they are – children!”

Assistant artistic director, Jenni Inglis told us: “We’ve wanted to dance for thechildren at Sick Kids for ages now but the lack of space at the hospital

has always been a problem so we’re absolutely thrilled to have thechance to dance tonight to help raise money for the new hospital.”

Two extra special starsNow aged 13, Moritz Toellner joined the dance academy whenhe was six. Destined for a career in dance, Moritz is now on themid assocaiates programme at The Royal Ballet School in London.When asked about performing on this special occasion, Moritz said:

“ xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx.”

Moritz’s partner for the evening is 10 year old Lauren Stott who started dancing whenshe was five. Lauren is just as excited about dancing for the new Sick Kids hospital: “I

love dancing because it makes feel very happy – especially when performing on stage withall my friends.”

www.edinburghdanceacademy.co.uk

Lauren Stott

Moritz Toellner

making Sick Kids better...

www.newpyjamas.org

Tamikas Treehouse turns it around for new pyjamas

We’re thrilled that Glasgow band Tamikas Treehouse, which has shared a stagewith Natalie Imbruglia, Alesha Dixon and Imagination, is supporting the new pyjamascampaign.

Formed in 2006 by Blair, Gordon, Harry, Will and, latterly bassist Ross, thisdynamic band is hotly tipped for a star studded career. And for tonight’s

special performance, the band will play the song they wrote for thecampaign aptly named Turn it Around.

The band is enthusiastic in its support for the new pyjamas campaign:“Music is a fantastic way of making people feel better and we love theidea of helping that to happen while doing what we love – playing ourmusic.”

The band is particularly keen to support the new Sick Kidshospital as it will be expanding the age range of patients from

13 years old to 16 years – and up to 18 in some cases. Both Willand Blair remember when, at 13 years old, they were treated forappendicitis in adult hospitals. They understand the need to be

treated in an environment appropriate to their age.

Will recalled: “It was a weird age. They didn’t knowwhether to treat me as an adult or as a child. I

ended up in an adult hospital but would havepreferred to be among kids of my own age. I felt

very vulnerable and out of place.”

“The fear of the unknown is very strong when you go intohospital,” says Blair, “and adults are not always goodat explaining things to children. Specialists who are usedto doing this make a huge difference to how comfortableyou feel about being in hospital.”

You’ll have the opportunity to enjoy the band at variousnew pyjamas events as the campaign gains momentum.

To follow the band’s success visit www.tamikastreehouse.com

making Sick Kids better...

www.newpyjamas.org

network site

website

Surfin’ does the business

A bigger, brand new hospital is coming soon to Edinburgh andthe Sick Kids Friends Foundation is really excited about helpingto make it the best place for sick children anywhere in the world.

That’s going to take several million pounds, and the new pyjamascampaign has a vital part to play in this. And with your help, whatwe bring to the hospital will make a world of difference to thousandsof Scotland’s children and their families

To raise the money needed, we must do all we can to make people aware of the new hospitalproject, explain why it’s so important for Scotland and how they can help.

We’re competing with thousands of other charities and good causes – 25,000 in Scotland,86,000 in the UK. On top of this, the present economic situation is forcing people to thinkhard about what’s important to them when deciding how to spend their money. So we mustwork hard to grab people’s attention and imagination.

Engaging people everywhereTechnology has never played such a big part in our daily lives as it does now. With this inmind, we’ve built a website that we hope will engage people far beyond Edinburgh andScotland.

By joining new pyjamas social network, you will be put in touch with other people who, likeyou, want to make a difference. Through podcasts and blogs, you will hear directly frompeople involved in this exciting project. Whether it’s the doctors and nurses, the planners,the architects, the campaign team or donors – or patients’ families, you will be able to listen,and write to them.

A lot is going to happen between now and when the new Sick Kids hospital opens at the endof 2012 and we want people across Scotland and beyond to be a real part of the new pyjamascampaign. As the campaign gets underway, you will be able to follow our progress and getinvolved in raising money too.

So please, tell your friends and colleagues about new pyjamas and make this the bestfundraising campaign in Scotland.

Thank You

Elaine McGonigle director new pyjamas campaign

Elaine McGonigle

www.newpyjamas.orgit’s all about...making Sick Kids better

The new pyjamas campaign is part of The Sick Kids Friends Foundation

Registered office The Royal Hospital for Sick Children, 20 Millerfield Place,Edinburgh EH9 1LW. A Scottish registered charity SC 020862