the role of the patient in improving quality
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Presentation by Paul Wicks of PatientsLikeMe at the UCLPartners Quality Forum, hosted by SEPT, on 14 June 2013.TRANSCRIPT
The role of the patient in improving quality
Paul Wicks, PhD.
Engines
Aerodynamicist
Performance
Strategists
Testing
Tyres
Management
Systems
Dynamicist
So how have you
been in the last 6
months?
Lewis Trevor
Electronic Sensors Multiple, continuous,
sophisticated
Intermittent,
cumbersome, outdated
Iteration Continuous Glacial
Systems modeling Experts Absent
Purpose of the system Make an advertising
billboard move around
Live a meaningful life
Rewards for a
measured incremental
improvement
Keep your job Money, glory
Rewards for winning Money, glory Keep your job
Two Approaches to Quality Improvement
PROMs / Outcomes
Social Networking
& conversations
Provider Ratings
Case Management
PatientsLikeMe
PatientsKnowBest HealthUnlocked
GP Ratings App
I Want Great Care
Patient Opinion
HealthTalk
Online
CPRD / GPRD
Database
“Where Can I Get The Best Care?”
“How Do I Find a Patient Like Me?”
What does good care look like?
Wicks & Fountain (2012) Patient assessment of physician performance of epilepsy quality of care measures. Neurology Clinical Practice 2:335
23% - I have had fewer visits to the ER
28% - PatientsLikeMe gave me more and better control over my condition
59% -the site has given me a better understanding of my seizures
49% - recording my seizures helps me manage my condition
50% - PatientsLikeMe helped me understand side effects
2010 Epilepsy User Survey: Those who connect with others on PatientsLikeMe report a wider range of perceived benefits to their epilepsy management and quality of life
30% - PatientsLikeMe helped me be more adherent
One-third of respondents had no one in “the real world” with whom to discuss their epilepsy. After joining PatientsLikeMe, two-thirds reported a connection to at least one other person with epilepsy.
2010 Epilepsy User Survey: Those who connect with others on PatientsLikeMe report a wider range of perceived benefits to their epilepsy management and quality of life
Genetics
EEG Telemetry
Cognition
Quality of Care
Treatments
Safety
Carer Support
Co-morbidities
Strategy
Systems
Dynamicist
“Technology makes things possible, people make things happen”
The role of the patient in improving quality
Paul Wicks, PhD.