the many faces of deaf-blindness north carolina family leadership training april 21-22, 2008...
TRANSCRIPT
THE MANY FACES OF DEAF-BLINDNESS
North CarolinaFamily Leadership Training
April 21-22, 2008Greensboro, NC
How We’ll Spend OurTime Together
Today– National and State Deaf-Blind Program
– Deaf-Blind Census
– Etiologies Associated with Deaf-Blindness
– Bringing it All Back to Your Role as a FS
– Moving past the Etiology
This Evening– Personal Goals and Supports
– Follow-up Project
Tomorrow– Deaf-Blindness: The Big Picture
– Bringing it All Back to Your Role as a FS
– Wrap-Up and Next Steps
What We Want to Accomplish
Increase your understanding of:• National and state resources related to deaf-blindness
• The diversity within the population
• The major etiologies of deaf-blindness
• The impact of deaf-blindness on overall development
• Communication Development and array of expressive and receptive communication forms
• The need for an individualized communication system
The Deaf-Blind Program
Families
NFADB
AADB
Hilton-PerkinsProgram
Nat’l Coalition on
DB
North CarolinaDeaf-Blind Project
NCDB – TA & Information Services
HKNC
US Dept of EducationOffice of Special Education
Programs (OSEP)
From
Birth
To 22 years
Birth to 3
Programs
School Program
s
Young Adult
Programs
The National Deaf-Blind Census
• National and State Definition of Deaf-Blindness
• Why Collect Census Information
• Process and Forms
• North Carolina and National Results
• Practice
National Definition ofDeaf-Blindness
Deaf-blindness means concomitant hearing and
visual impairments, the combination of which
causes such severe communication and other
developmental and educational needs that they
cannot be accommodated in special education
programs solely for children with deafness or
children with blindness. 34 CFR 300.8 (c) (2)
North Carolina Definition of Deaf-BlindnessNorth Carolina currently uses the national definition of deaf-blindness for defining students in early childhood special education (ages 3-5) and school age special
education (ages 6-21) programs.
“Deaf blindness means concomitant hearing and vision impairments, the combination of which causes such severe communication and other
developmental and educational needs that they cannot be accommodated in special education programs solely for children with
deafness or children with blindness”. (IDEA, 2004)
For infants and toddlers receiving Part C early intervention services, deaf-blindness is defined as:
“Concomitant hearing and vision impairments or delays, the combination of which causes such severe communication and other
developmental and intervention needs that specialized early intervention services are needed.”
PICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPI
A PICTURE IS WORTH A THOUSAND WORDS
Sensory Perspectives
SPARKLE DVD
Etiologies Related toDeaf-Blindness
eti·ol·o·gy“the cause of a medical or disability condition”
• Tell Us About Your Child
• Top Etiologies of North Carolina and Nationally
• Finding Information about Etiologies
Points to Consider About Etiologies
• To know an individual’s etiology is NOT to say that you know the individual
• Absence of a diagnosis can be a nagging mystery or fear
• Possible etiologies should not be casually mentioned
• Need to gather information to establish an appropriate educational program
• Need to gather information to be aware of delayed manifestations
• Pay attention to source and publication date of print and Internet resources
• Connecting with another person or family who shares the diagnosis can be invaluable
Thanks to California Deaf-Blind Services, Fact Sheet #33
So What Do I Do Now
• Your Role as a Family Specialist
• Using HomeTalk with Families
For additional copies (http://www.designtolearn.com/pages/HomeTalk.pdf)