the impact of public involvement sarah buckland director involve [email protected]
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National advisory group. Funded by the Department of Health, since 1996
INVOLVE is an National Institute for Health Research Programme
Promotes active involvement of the public in NHS, public health and social care research
INVOLVE
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• Influencing policy and practice
• Increasing awareness and sharing experiences of others
- website- newsletters- databases
• Giving advice and guidance- publications- enquiries
Role of INVOLVE
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• Research commissioners and policy makers
• Researchers
• Public e.g. service users and carers
Who needs evidence / knowledge and why ?
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• examples
• narratives
• reflective accounts
• evaluations
• qualitative studies
• quantitative studies
What evidence / knowledge do we need?
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• Examples of user controlled research
• Examples of involvement in social care research
INVOLVE Database of projects
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• Nature and extent of involvement in health and social care research
• Reflections on involvement
• Impact of involvement
INVOLVE (2007) invoNET Bibliography Volume One
InvoNET library(www.invo.org.uk/invoNET.asp)
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• To identify the benefits and value of public involvement in research
• To understand the best approaches to public involvement
• To reflect and learn from the evidence / knowledge
INVOLVE Impact Study: Aims
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• Bibliography of resources
• Review of the literature
• Reflective analysis
INVOLVE Impact Study: Methods
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• research
• research ethics
• service users and carers involved
• researchers
• implementation and change
Impact of involvement on: