the home haemodialysis guide – one year of experience€¦ · 47th edtna/erca international...
TRANSCRIPT
47th EDTNA/ERCA International Conference September 15th – 18th, 2018, Genoa, Italy www.edtnaerca.org
The Home Haemodialysis Guide –One year of Experience
Presented bySiobhan Gladding & Michel Roden
A Joint Project between EDTNA/ERCA and NxStage Medical
47th EDTNA/ERCA International Conference September 15th – 18th, 2018, Genoa, Italy www.edtnaerca.org
SIOBHAN GLADDING
Siobhan has been a nurse for nearly 30 years working in renal, critical care and paediatrics. Before her role with NxStage she was the matron at Queen Alexandra Hospital in Portsmouth
Siobhan has been working with NxStage since 2011 and she is passionate about home haemodialysis and offering life changing benefits to the patients and their families
Siobhan is today the Director of Clinical Education
47th EDTNA/ERCA International Conference September 15th – 18th, 2018, Genoa, Italy www.edtnaerca.org
ONE YEAR OF EXPERIENCE...
47th EDTNA/ERCA International Conference September 15th – 18th, 2018, Genoa, Italy www.edtnaerca.org
TIMELINE
2016 Q3 Q4 2018 Q1 Q2 Q3
PHASE 1
Q4
PHASE 2
• Start up of the Collaboration
• Development of the Content & Design of the Book & Application
PHASE 32019
2017
2018
Q1 Q2Q3
Q4Q32016
• First Workshop with the Project Team
• Launch at the 46 EDTNA/ERCA Int’l Conference, Krakow
• Launch at the 47 EDTNA/ERCA Int’l Conference, Genoa
47th EDTNA/ERCA International Conference September 15th – 18th, 2018, Genoa, Italy www.edtnaerca.org
THANK YOU ALL!
This Project have been brought together
thanks to the involvement of several
volunteers’ who have the expertise in this
treatment modality.
All of YOU deserve to be acknowledged!
47th EDTNA/ERCA International Conference September 15th – 18th, 2018, Genoa, Italy www.edtnaerca.org
Evgenia Golland
Sophie Halldin
Nicola Thomas Carol Rhodes
Debbie Fortnum
Karen Pugh-Clarke
Maria Cruz Casal
Nicola Pacy
María F. Slon Roblero
Marie-Louise Bodin
47th EDTNA/ERCA International Conference September 15th – 18th, 2018, Genoa, Italy www.edtnaerca.org
Anki Davidson
Natalie Borman
Pedro BaptistaKalliopi-Anna Poulia
Katey Atkins
Monica EdströmTony Goovaerts
Gunnar Malmström
47th EDTNA/ERCA International Conference September 15th – 18th, 2018, Genoa, Italy www.edtnaerca.org
Michel Roden
Michel Lambotte
Dozo
Anna Junque
Angela DrähneAnna Marti i Monros
47th EDTNA/ERCA International Conference September 15th – 18th, 2018, Genoa, Italy www.edtnaerca.org
Siobhan Gladding
Leigh Mortier Eric Weinhandl
Laura StevensJeff Burbank
Julien Gautier
47th EDTNA/ERCA International Conference September 15th – 18th, 2018, Genoa, Italy www.edtnaerca.org
47th EDTNA/ERCA International Conference September 15th – 18th, 2018, Genoa, Italy www.edtnaerca.org
MICHEL RODEN
1982 started to work as a nurse
33 years working with dialysis - HD; PD; HHD education
23 years as Nephrology nurse 2005 - EDTNA/ERCA Volunteer (KM, KMM, EC, Pres.
Elect, Pres., BA)
2018 - DOPPS CRA for Belgium
47th EDTNA/ERCA International Conference September 15th – 18th, 2018, Genoa, Italy www.edtnaerca.org
OBJECTIVES
The benefits of this modality of renal replacement therapy are clearly demonstrated in the literature and the ability to perform Frequent Home Haemodialysis is clearly a key contributing factor to positive outcomes
THE AIM Of this Project is to reach all renal healthcare professionals caring for Chronic
Kidney Disease patients, offering them the chance to learn from experts about caring for patients who choose HHD treatment, focusing on FHHD
For Patients who take responsibility for their dialysis treatments are empowered and this can improve the quality of their life
47th EDTNA/ERCA International Conference September 15th – 18th, 2018, Genoa, Italy www.edtnaerca.org
NO BARRIERS...ONLY OPPORTUNITIES
47th EDTNA/ERCA International Conference September 15th – 18th, 2018, Genoa, Italy www.edtnaerca.org
DR. ROSEMARIE BAILLOD STORY...
Dr. Rosemarie Baillod, who worked alongside with Dr. Shaldon in the 60’s, explained how the machines were developed:
“I had to develop alarm systems and I had to go to a shop called Radio Spares, and I had to buy relays, light bulbs and little alarms. We got some monitoring from Cambridge Monitors – if the pressure went too high it would alarm, if it went too low it would alarm, and it was in a box about 2 feet square, it looked very smart. The first time we arrived at the patient’s home –everything leaked!”
47th EDTNA/ERCA International Conference September 15th – 18th, 2018, Genoa, Italy www.edtnaerca.org
THE EARLY DAYS OF HEAMODIALYSIS
47th EDTNA/ERCA International Conference September 15th – 18th, 2018, Genoa, Italy www.edtnaerca.org
47th EDTNA/ERCA International Conference September 15th – 18th, 2018, Genoa, Italy www.edtnaerca.org
Monday, September 17th
9.00 – 0.30W 05 Round Table Discussion
A Guide to Implement Home Haemodialysis– Meet the Authors & Translators
Chairs: Debbie Fortnum (Australia)Maria Cruz Casal (Spain)
Welcome!
47th EDTNA/ERCA International Conference September 15th – 18th, 2018, Genoa, Italy www.edtnaerca.org
THANK YOU VERY MUCH FOR YOUR ATTENTION!