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Session #1 – Life Immeasurable: The temptation to quantify quality THE ETHICS OF SEEKING AND ASSESSING "QUALITY OF LIFE" 28TH ANNUAL MEDICAL ETHICS CONFERENCE – 2019

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Page 1: The Ethics of Seeking and Assessing 'Quality of Life' 28th ... · between self-perceived health and overall life satisfaction, as expressed by EU residents. Reported assessments of

Session #1 –Life Immeasurable: The temptation to quantify quality

THE ETHICS OF SEEKING AND ASSESSING "QUALITY OF LIFE"

28TH ANNUAL MEDICAL ETHICS CONFERENCE –2019

Page 2: The Ethics of Seeking and Assessing 'Quality of Life' 28th ... · between self-perceived health and overall life satisfaction, as expressed by EU residents. Reported assessments of

Session #1: Life Immeasurable: The temptation to quantify quality

Jessica Benham, MADoctoral candidate in the Department of CommunicationMaster of Arts Program in BioethicsUniversity of Pittsburgh

Robert McRuer, PhDDepartment of EnglishGeorge Washington University

Candace Skibba, PhD

Associate Teaching ProfessorCarnegie Mellon University

Page 3: The Ethics of Seeking and Assessing 'Quality of Life' 28th ... · between self-perceived health and overall life satisfaction, as expressed by EU residents. Reported assessments of

Session #1: Life Immeasurable: The temptation to quantify quality

Abstract: In an era defined by measurable outcomes and metrics, heavily mediated by technology, has quality of life been over-quantified? This panel will attempt to disrupt the “metric crutch” by prompting discussions regarding the immeasurable aspects of quality of life, discrepancies between patient and doctor evaluations of QoL, and practical strategies for understanding QoL outside a quantifiable framework.

Page 4: The Ethics of Seeking and Assessing 'Quality of Life' 28th ... · between self-perceived health and overall life satisfaction, as expressed by EU residents. Reported assessments of

Session #1: Life Immeasurable: The temptation to quantify quality

Objectives: Following this session, participants should be able to:* Describe the ways in which a disability studies

framework challenges traditional bioethics conceptions of quality of life

* Reconsider the necessity of quantitative measurement frameworks

* Analyze common understandings of “quality”

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