the brain injury experience - courses.csail.mit.eduthe brain injury experience samantha jane...
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11/7/2012
1
The Brain Injury Experience
Samantha Jane Scolamiero,
PHD, Harvard Medical School
www.braintrust.org
(781) 572-9349
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Samantha: Bio
MIT BoundHigh school left earlyComm. CollegeMIT ApplicationToothacheNew College, FLMIT Library JobBrain Surgery’93 BrainTmr ListServ’97 T.H.E. BRAIN TRUST’98 MIT Brain Trust
’95-’99 Harvard CCC faculty (PHD)’99 Sailing, ShakespeareSalsa’98-00 NIH Advisor NCMRR’00-07 NABTC ‘05 SOS’06 Head InjurySlam poetry’07 Capitol Hill‘08Lyme disease’11 PPAT
Functional Stories
1. Car Totaled (really???)2. Losing Key To Car3. Laundry4. Not Charging Myrna (E.R.)5. Door @ Doctors
Social contextProblem SolvingCreativity
Car Totaled
QuarterDoctors OfficeTicket Notice Second notice Checkbook Backpack One year Red Light Registration Tow truck
Life Impact
Fatigue
Education
Job (assistant)
Relationships
Family
Social Isolation
Strategies : Pass/Fail
Routines
PCA
Myrna & Myrna Jean
Organizer book
Electronic organizer
SLP
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Brain Injury
Causes:_____________
_____________
_____________
_____________
_____________
_____________
Brain Injury CausesTraumaCar accidentGunshotCombatSlip ‘n fallViolence SportsInjury
CongenitalDiseaseBrain tumorAneurism Stroke / TIAEMFChemical Sensitivity
Infection, abscessAnoxia (drowning)ElectrocutionMyocardial infarction “Chemo-brain”RadiationDementiaSurgeryAnesthesiaLymeMSParkinson’sHIV
Degree of Injury1. Invisible:
Subtle Post Concussion Syndrome TIA Aging
MildModerate
2. Visible:Mild
Cranial nerve damageModerate
ParalysisSevere
Total Paralysis Gross Cognitive Impairment
Symptoms - 1Short term memory Working memoryConfusionBrain fogFacial paralysisLimb paralysisLoss sensationFacial recognitionBlack & White ThinkingInability to understand humor (e.g., sarcasm)Time awareness (attn deficit)
Symptoms - 2Hangover“Floating” DockLight sensitivity / photophobiaSeizuresBlackoutsLearning disabilities (e.g., dyslexia)Auditory processingDouble visionLoss visual fieldLoss of taste / smellHallucinationsPsychic abilityFatigue
Symptoms - 3
Cognitive dysfunctionSequencing difficultyOrganizational dysfunctionAmnesiaRetrograde AmnesiaBalance difficultyMotor control issuesSwallowing difficultyDry eyeAuditory processingDifficulty using technology in modern world
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Functional Limitation(s)ADLSGetting dressedBill payingScheduling (e.g., calendar)Initiation (e.g., scrolling)Using gmail (e.g., scrolling)Problem solving (e.g., rental car)Anger ManagementMeal Preparation (e.g., popcorn flambé)Remembering to eat ( hunger )TimersKeeping routinesDecision makingOverwhelmAnxiety
“New MOO Diet”
"How I lost 20 pounds on The New MOO Diet"Author: Samantha J. Scolamiero (Diversity University) Jan. 1995
Gaps in Care & Access
No follow-up8 visits of SLPInsurance capsTechnology Expenses (e.g., PEAT)Proprietary Software Monthly FeesAdvocacyDisability Itself (e.g., Doctor S 2008)Keeping AppointmentsCase Management
Cognitive Prosthetics (Myrna)
Organizers
Timers
Customization
Center for Development
Activities of Daily LivingLaundry
Grocery shopping (e.g., keys ♦ list ♦money)
Telephone answering machine
Appointments (e.g., calendar)
Safety (e.g., locking door)
Hygiene (e.g., red flood)
Hydration
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Importance of Language
Acquired Brain Injury vs. Traumatic B.I.Critique of videoMental illnessCognitive disability (e.g., Downs syndrome)Cognitive impairmentBrain injuryDevelopmental disabilities
Your Career1. Why you took this class?2. Research to prove successful
SLP/Interventional outcomes3. Your Project4. Commercial Aps
Non-ProfitCollaboration MIT IdeasMIT 50KMPHPhD SLPPhD OTPhD
= 5. We Need YouCognitive Rehab Research: Need Proof for Funding
Translational Research MD-PhD Speech Language Pathology-PhD Occupational Therapy, PhD Physical Therapy, PhD
Medical Rehab Research
Young Investigator Grants
Thank YouSamantha Jane Scolamiero
PPAT Nov. 7, 2012
www.braintrust.org
(781) 572-9349
leave message via text
Myrna Jean DEMO