NACDD TA Institute 2014Data In Action Esme Grant, Esq. Director of Public Policy , NACDD egrant@nacdd.org

Overview• Data and Policy Generally• Data and Appropriations • PPRs, Websites, and Annual Reports• Agency Requests for Information and Comments

Data and Policy Generally• Data is everything!

• “If you can’t measure it, you can’t improve it”

• Data helps to show the impact of a policy or appropriations, the need for funding or policy change, and highlights/educates others for future policy making

Data and Appropriations• What data is key? • Quantitative data to show constituent impact (e.g. # of

people with DD in state, % loss of funds) AND• Qualitative data like stories

• Example: NACDD Appropriations Survey • Example: NDD United Booklet

PPRs, Websites, and Annual Reports• Program Performance Reports (PPRs) • Evidence-based data

• Websites• Accomplishments and primary goals

• Annual Reports

Requests for Information/Comments

Federal Agency Requests for Information or CommentsImpacts data collection

processesImpacts policy and

regulationsIncludes disability

perspective