t h ˛˚ˆ˝ ˆ - lcnuk.org of nlcfn 2_web.pdf · by professor angela tod from sheffield hallam...
TRANSCRIPT
The History of the
national Lung Cancer
Forum for nurses
History of NLCFN 2_Layout 1 02/11/2016 11:28 Page 2
Recognising that lung cancer nurse posts had been created with very little strategic
planning or forethought into what the role required, a small cohort of Lung Cancer
Nurse Specialists employed throughout the United Kingdom got together with Lilly
Oncology to identify the needs of lung cancer nurses, with consideration to those
who worked in isolation, new to post and performing similar roles. The first National
meeting was held in Liverpool and had 40 attendees, these included, Tessa Fitzpatrick,
John McPhelim and Gill Walton, who all still support the Forum with as much enthusiasm
today as they had at the very beginning.
The 40 attendees unanimously agreed that a national body was needed to provide a voice on
strategic and clinical issues and to share best practice and that membership to the Forum be
open to any specialist nurse who spends more than 50% of their working week or clinical
activities in caring for patients with lung cancer patients. From this meeting the National Lung
Cancer Forum for Nurses was established in July 1999 and a committee formed. The first
constitution was developed with the objective that the NCFN was to provide a network and
support for nurses. This included education, professional development, audit and research.
Initially the Forum was free to join.
Over the years the Forum grew from strength to
strength. With increasing numbers of lung
cancer nurses joining there became a need for a
designated secretariat to support the committee
in the day to day running of the Forum. In 2004,
Dawn McKinley joined the committee as
secretariat and continued in this role until her
BTOG workload became too much for her to
support both groups. Red Hot Irons took
over the secretariat responsibilities in 2014.
Over the years the NLCFN has become
recognised as an influential voice of
Lung Cancer and Mesothelioma
management and the committee
members represent the Forum
on a wide variety of national and international groups (see opposite).
Along with other healthcare professionals, charities and interested
parties these strategic groups shape, improve and develop lung
cancer and mesothelioma care.
Following the Calman hine report in
1995 (Doh), which emphasised the potential value
of site-specific specialist nurses in improving the care
cancer patients received, the number of lung cancer nurses
increased significantly. This was further endorsed by the
improving outcomes in Lung Cancer document (nhse 1998),
which identified lung cancer nurses as a core member of the
multidisciplinary team.
Chairs of the committee
years Chair/s
1999 - 2000 Darinda Palmer (Claxton),
Claire Henry - co chairs
2001 - 2002 John McPhelim,
Andrew Wilson - co chairs
2003 Andrew Wilson
2004 - 2005 Tessa Fitzpatrick
2006 - 2008 Maria Guerin
2009 - 2010 Liz Darlison
2011 - 2013 John White
2014 - 2016 Diana Borthwick
History of NLCFN 2_Layout 1 02/11/2016 11:28 Page 3
The AnnuAL ConFerenCe
In 1999 the first annual conference took place in Liverpool. The conference had six speakers, one
sponsor and a total of 40 nurses attended. This meeting was primarily a developmental meeting
where today's NLCFN was born.
The annual conference has grown year on year through learning, developments in lung cancer
and feedback from the delegates (see figure 1).
The committee starts planning the programme in January. They are guided by the feedback
received from the previous year’s conference, both positive and negative; to make sure the
conference is packed with educational, current and interesting topics. The committee approaches
key opinion leaders and experts as speakers.
Great care is taken to select a venue which is easily accessible, can accommodate the delegates
and plenary programme and exhibition and meets the requirements of corporate governance for
sponsors and exhibitors.
Figure 1: recorded Conference attendance
year speakers sponsors LCns
1999 6 1 40
2004 6 20 119
2005 6 22 109
2006 9 38 120
2007 10 39 120
2008 6 43 115
2009 14 55 109
year speakers sponsors LCns
2010 10 60 120
2011 16 60 113
2012 14 67 94
2013 14 60 124
2014 28 61 138
2015 26 94 138
• British Thoracic Oncology Group
• British Thoracic Society (BTS)
• BTS Lung Cancer/Mesothelioma Advisory Group
• Cancer Nursing Partnership
• Global Lung Cancer Coalition
• International Association for the Study of Lung
Cancer (IASLC)
• IASLC Allied Nursing and HCP Society
• International Thoracic Oncology Nursing Forum
• Lung Cancer Europe
• Macmillan ERG
• Mesothelioma UK
• National Cancer Registration and Analysis Service
• National Institute for Health and Care
Excellence
• National Lung cancer Audit
• NHS England CRG
• National Optimum Lung Cancer Pathways
(NOLCP)
• Roy Castle Lung Cancer Foundation
• Scottish Lung Cancer Nurse Specialist Forum
• United Kingdom Lung Cancer Coalition
• United Kingdom Oncology Nursing Service
• Welsh Lung Cancer Nurses Forum
organisations on which the nLCFn is represented
Data unavailable for 2000 - 2003
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edinburgh2003glasgow
2011
newcastle2009
harrogate2008
york2002
Liverpool1999
sheffield2000
nottingham2005
Birmingham2007 & 2016
Windsor2015
Brighton2006
London x 22010 & 2013
Bristol x 22001 & 2012
Chester x 22004 & 2014
Figure 2: national Lung Cancer Forum for nurses Conference Locations
History of NLCFN 2_Layout 1 02/11/2016 11:28 Page 5
The nLCFn AnnuAL AWArD
It was following one of the early conferences that the family of John
Lloyden, a patient who was sadly diagnosed and subsequently died of
lung cancer, fund raised to provide the first annual award. His grateful
family wanted to give back something to the lung cancer nurses who
supported them throughout their experience. They continued to fund raise till
2007 when the Forum took over the funding of the award and the name was
changed to the NLCFN Annual award.
The gooD PrACTiCe guiDe
In the first six years that the Forum was running it became evident that lung cancer nursing
was becoming more established. The nurses were developing services and projects that
promoted patient care. The Forum, as part of their ethos to share good practice, produced the
first Good Practice Guide. Two further Good Practice Guides have been published in 2009 and
the latest guide in 2014.
Integrated Lung Cancer Nursing: A Good Practice Guide (2004)
Leading the Way to an Ideal Lung Cancer Service (2009)
Excellence and Innovation in Specialist Lung Cancer Nursing Services (2014)
AnnuAL WorkshoP WiTh LiLLy onCoLogy
In 2004 Lilly Oncology approached the Forum committee and suggested developing a Workshop
for Lung Cancer nurses to develop a national project to further improve patient care. Initially
referred to as the ‘Lilly Workshop’ and with a name change in 2011 the success of this NLCFN
Annual Workshop speaks for itself.
The NLCFN Annual Workshop gives lung cancer nurses the opportunity to lead on a national
project and present this at the Annual Conference.
During the early years the Workshop attendees were split into two groups to produce
two smaller projects. Since 2008 however bigger projects were undertaken and in 2013
saw the first Workshop members’ efforts rewarded at the World Conference on Lung
Cancer in Australia when the ‘Guidance for the Supportive and Palliative Care of Lung
Cancer and Mesothelioma Patients and their Carers’ was accepted as a Poster
presentation.
History of NLCFN 2_Layout 1 02/11/2016 11:28 Page 6
Annual Workshops to date:
year Project Title/s
2004 1. Fail safe Chest X-Ray system: Patient Satisfaction Survey
2. Lung Tracker Job Description
2005 1. Template business case for securing the LCNS role
2. Telephone audit tool
2006 1. Nurse Led Follow Up Guidelines
2. Post operative patient survey
2007 1. Quality indicators; Prevention of hospital admissions audit
2. LCNS core Job Description
2008 A Good Practice Guide on the Prevention of Unplanned Hospital
Admissions
2009 Guideline for Lung Cancer Nurse Specialist’s to Communicate
Key MDT Decisions to Patients
2010 Palliative Radiotherapy guideline & Holistic Needs Assessment
Tool Solitary Pulmonary Nodule Guideline
2011 & 2012 Guidance for the Supportive and Palliative Care of Lung Cancer
and Mesothelioma Patients and their Carers
2013 Understanding and Reducing Admissions to A&E; The Role of the
Lung Cancer Nurse
2014 Improving Survivorship through pre-habilitation at the start of
the journey
2015 A Framework to support the Lung Cancer Nurse Specialist in the
development and evaluation of nurse-led clinics
2016 Can the early intervention of the Lung Cancer CNS improve the
patient experience, pathway, and outcomes for those admitted via
the emergency route on first presentation?
History of NLCFN 2_Layout 1 02/11/2016 11:28 Page 7
reseArCh inTeresT grouP
This was developed in 2009. The recognition that audit and research are fundamental in
developing lung cancer services resulted in the development of the NLCFN Research Interest
Group (RIG). In 2011 the NLCFN RIG introduced a small grants scheme which was launched to
support lung cancer nurses to undertake research projects. The Research Interest Group is led
by Professor Angela Tod from Sheffield Hallam University.
ThorACiC surgery grouP
In 2009 a further sub group of the NLCFN was developed to support those nurses who work in
the surgical field of lung cancer. To date, the thoracic surgery group (TSG) has produced essential
documents to improve the care of patients undergoing thoracic surgery including:
• Guideline to prepare and support patients undergoing lung resection
• Guideline for telephone follow up for patients undergoing thoracic surgery
• Patient information for enhanced recovery
More recently, the project work from the RIG and TSG groups have been put forward as
abstracts at the British Thoracic Onocology Group and poster presentations at the World
Conference on Lung Cancer. The groups have been instrumental in developing services, audit and
research within lung cancer nursing and made United Kingdom Lung Cancer Nurses gain global
recognition.
The neWsLeTTer
The newsletter is produced 3 times a year. The editor is one
of the committee members and NLCFN members are
encouraged to write news items on new developments,
educational items, feedback from attendance at national and
international conferences or general lung CNS new items.
The newsletter has grown from strength to strength and is
sent out via email to all members.
The WeBsiTe
The website was initially managed by a committee member.
It has educational materials and information and is an arena
for discussions. The general public can access the website’s
educational and information pages but NLCFN members have access to the other areas which
include details on conferences, member information and other educational materials. It is
currently managed by Red Hot Irons as part of their operations team role.
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History of NLCFN 2_Layout 1 02/11/2016 11:28 Page 8
The TrusTees AnD BeCoMing A ChAriTy
The organisation became a Charitable Incorporated Organisation (CIO) on
19 January 2015 giving the organisation more protection. The trustees meet twice
per year and occasionally by email/teleconference. The role of the trustees is that
of the governance of the organisation. The trustees of the charity are:
Lorraine Creech (Chair)
Alison Leary
John White
Dr Michael Peake
Diana Borthwick
The National Lung Cancer Forum for Nurses is a charitable
incorporated organisation - charity number 1160011
VAT Registration number: 237 6753 78
Correspondence Address: Unit 2 Warwick House, Fairview Industrial Estate,
Kingsbury Road, Curdworth, Warwickshire, B76 9EE
Telephone: 01675 477607 Email: [email protected]
Web: www.nlcfn.org.uk Fax: 01361 331811
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