systems that fail: service user and carer perspectives on patient safety

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Systems that fail: service user and carer perspectives on patient safety Presented by: Tim Bryson – Project Manager Sarah Rae - Service User Advisor

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Page 1: Systems that fail: service user and carer perspectives on patient safety

Systems that fail: service user and carer perspectives

on patient safety

Presented by:Tim Bryson – Project ManagerSarah Rae - Service User Advisor

Page 2: Systems that fail: service user and carer perspectives on patient safety

Systems that fail ?

• Our project focused on recognised significant systemic risk issues in mental health care

• We worked on redesign of care pathways and care processes using ‘systemic tools’

• We sought to involve service users and carers through the course of the project

Page 3: Systems that fail: service user and carer perspectives on patient safety

Project Sites

Trust Site – Project Safety Improvement Focus

NEPFT Personalisation, reduced violence and aggressionIncreased skills and confidence in dealing with self-harm

NSFT Personalisation, reduced violence and aggressionStrengthened approach to incident investigation and reporting

CPFT Prevention and management of falls

SEPT Improved safety communication and caseload management

HPFT Safer discharge and transfers of care, user focused approach

Page 4: Systems that fail: service user and carer perspectives on patient safety

Project interventions

• Learnt about systems safety assessment• Learnt about human factors training and

coaching, especially in mental health• Learnt about the integration of these

approaches• And about service user and carer involvement

Page 5: Systems that fail: service user and carer perspectives on patient safety

Through systemic assessment we sought to shift the balance towards minimising future risks

Prospective

543

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Approach to patient safety: Retrospective vs. Prospective

Retrospective

LimitationsWhat hasgone wrong?

What could possiblygo wrong?

Page 6: Systems that fail: service user and carer perspectives on patient safety

“The single greatest impediment to error prevention is that we punish

people for making mistakes”

Dr Lucian Leape, Harvard School of Public Health

Through human factors training we sought to shift the culture, towards a culture of open patient safety communication

Page 7: Systems that fail: service user and carer perspectives on patient safety

We learnt that co-design makes patient safety interventions even more effective

System safety assessment

Human factors training and

coaching

Patient experience-based

co-design and improvement

Page 8: Systems that fail: service user and carer perspectives on patient safety

Service user and carer perspectives

• Adverse events can have a significant impact on service users and families, up to and including death of a loved one.• Service users and carers are in a unique position to provide insights into their own care, into care systems and into care systems.• Dr Sarah Ryan, mother of Connor Sparrowhawk is one such carer……..

Page 9: Systems that fail: service user and carer perspectives on patient safety

About me

• Severe and enduring mental illness• Alerted to safety issues during inpatient stay• Trained as an Expert by Experience and Patient

Leader• Led to national and local involvement opportunities• Invited to be a PPI Advisor to the SCPMH project in

2014

Page 10: Systems that fail: service user and carer perspectives on patient safety

Why PPI?

• Service users and carers are good problem solvers• They bring a unique perspective and can raise

concerns• Ethical - end users have a right to influence care

delivery• It is government policy that people be involved in

the commissioning, planning, designing and delivering services

Page 11: Systems that fail: service user and carer perspectives on patient safety

Learning from the project

• PPI should have been hardwired into the project from the start

• All the Trusts struggled with PPI to an extent• PPI can slip down the agenda when there are

competing priorities • Capturing the views patients and carers takes time

and persistence

Page 12: Systems that fail: service user and carer perspectives on patient safety

Learning from the project

• Reviewing time, space and structures to facilitate PPI can help

• Involving service users and carers with experience of that pathway is key

• A culture of trust and openness is needed to encourage feedback

• People may feel freer to contribute in a session that is less process driven than the SSA

Page 13: Systems that fail: service user and carer perspectives on patient safety

Where PPI worked well. . . . . . .

• Service users and carers helped to assess the benefit and impact of potential solutions

• Active role in developing and refining the care pathway interventions

• Pathway interventions were co-designed• People were keen to be involved • There was a marked culture shift

Page 14: Systems that fail: service user and carer perspectives on patient safety

Where PPI worked well. . . . . . .

“…being in the group…I feel listened to”

“The group has helped me make sense of it all”

“I’m always made to feel welcome”

“My comments were valued and taken on-

board”

Page 15: Systems that fail: service user and carer perspectives on patient safety

Human Factors Training

• Dr Harriet Nicholls, Associate Medical Director Luton and Dunstable NHSFT• Tim Bryson, Consultant. Bryson Consultancy• Dr Cinzia Pezzolesi, Senior Lecturer in Human Factors, University of Hertfordshire• Dr Jane Carthey, Human Factors and Patient Safety Consultant

Page 16: Systems that fail: service user and carer perspectives on patient safety

Human Factors definitionHuman factors encompasses all

of those factors that can influence people and their behaviour. In a work context, human factors are the environmental, organisational and job factors and individual characteristics which influence behaviour at work.Clinical Human Factors Group. 2009

Carayon et al., 2006

Page 17: Systems that fail: service user and carer perspectives on patient safety

What we did

• Adapted one day human factors training programme from acute to mental health

- error and cognition- safety culture - non-technical skills- human factors based design

• Delivered coaching programme for Trust Champions

Page 18: Systems that fail: service user and carer perspectives on patient safety

Two complementary interventions

• Systems safety assessment (SSA) and• Human factors training and coaching to improve the

non-technical skills of mental healthcare professionals.

Page 19: Systems that fail: service user and carer perspectives on patient safety

Human factors training without SSA

Improved non-technical skills of frontline teams

No improvement in systems design

Page 20: Systems that fail: service user and carer perspectives on patient safety

Healthcare team fire-fighting

Page 21: Systems that fail: service user and carer perspectives on patient safety

SSA without human factors training Like looking through a

kaleidoscope without having the foundation of ‘systems thinking.’

Difficult to identify how leadership, teamwork, cultures, communication and situational awareness impact on safety

Page 22: Systems that fail: service user and carer perspectives on patient safety

Two complementary interventions: Dimensions of safety

Page 23: Systems that fail: service user and carer perspectives on patient safety

Dr James WardDr Terry Dickerson

Prof. P John Clarkson

System Safety Assessment

Page 24: Systems that fail: service user and carer perspectives on patient safety

The interventions

24Evaluation

Solutions + Learning

2) Human FactorsTraining

1) System SafetyAssessment (SSA)

Page 25: Systems that fail: service user and carer perspectives on patient safety

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• System Safety Assessment involves thinking about problems before they happen

• It asks the following questions:

System Safety Assessment

What is going on?What could go wrong?What problems might it cause?What are we doing to prevent it?How bad is it if it does go wrong?How likely is it to go wrong?Should we do anything about it? What should we do about it?

Page 26: Systems that fail: service user and carer perspectives on patient safety

System Safety Assessment

SSA is:1.Proactive2.Systematic / structured3.Holistic / systemic

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Page 27: Systems that fail: service user and carer perspectives on patient safety

Why?

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Reactive

What hasgone wrong?

Proactive

What couldgo wrong?

Limitation or incentive?

John Illingworth, 2015. Continuous improvement of patient safety: The case for change in the NHS. The Health Foundation.

“Shifting away from delivering improvement through reducing incidences of harm to the proactive identification and management of hazards offers huge opportunities…”

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What did we do?Immersion event

Process mapping

+

Page 29: Systems that fail: service user and carer perspectives on patient safety

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What did we do?

SSA Workshop 1:

What could possibly go wrong?

SSA Workshop 2:

What should we do about it?

+ Engagement with Service Users and Carers

Page 30: Systems that fail: service user and carer perspectives on patient safety

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What did we do?

Development and implementation of solutions

Page 31: Systems that fail: service user and carer perspectives on patient safety

What did we learn? Users’ feedback on SSA:•Well received •SSA “Best use of time today” (+ small increase afterwards)•SSA “Will be important”•Slightly lower scores after SSA2, but still positive. •Confident to use in future – but need expert facilitation.

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Page 32: Systems that fail: service user and carer perspectives on patient safety

What did we learn? SSA Team’s evaluation:•Good attendance and engagement

– Across the organisations / across the professions– But needed more medical representation and

service user / carer input

•More time needed to be more comprehensive, accurate and creative•Significant variation across groups

– Size of groups– Complexity of subject– Atmosphere and buzz?

•SSA’s rigour is valued, but is hard!

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Page 33: Systems that fail: service user and carer perspectives on patient safety

Some of the challenges

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Like a triathlon, when you don’t know the distances

Page 34: Systems that fail: service user and carer perspectives on patient safety

What would we do in the future?• More time?• More frequent meetings? CQC /

staffing changes• Pre meeting to decide subject• Smaller groups?• Mindset?• HF first, THEN SSA.• More service user / carer

engagement• Training course / facilitators (NIHR

CLAHRC funding)• New SSA Toolkit!

– Simplified language / template– www.ssatoolkit.com

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Page 35: Systems that fail: service user and carer perspectives on patient safety

Conclusions

www.ssatoolkit.com

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Thank you!

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