supporting transformative autism research (star) initiative · challenges & opportunities....
TRANSCRIPT
Micah Mazurek, PhDAssociate Professor
Curry School of Education & Human Development
Supporting Transformative Autism Research (STAR) Initiative
A Journey
The Challenge
Increasing Prevalence
Critical Gaps
Prevalence & awarenessFamilies seeking answersNeed for support
Critical knowledge gapsFew treatment optionsFew trained professionals
Challenges & OpportunitiesCauses &
MechanismsDiagnosis & AssessmentEffective
TreatmentsHealth & Well-beingLeveraging
StrengthsMeaningful Positive
Outcomes
Transformative Solutions at UVA• University Investments Catalyzing Autism Research
• Cluster Hires in Autism• Seed Funding from the Curry School of Education• Key Partnerships with the UVA Brain Institute & UVA Data Science
Institute• Strategic Investment Fund: Supporting Transformative Autism
Research (STAR)
Advancing the Pace of Discovery
UVA Autism Initiative
Mission: To improve the lives
of individuals with autism and their
families
Transformative Research
Developing & Testing New Models
Training & Education
Outreach & Dissemination
UVA Autism Initiative
Transformative Research
Developing & Testing New Models
Training & Education
Outreach & Dissemination
Neuroscience Applied Practice• Underlying mechanisms• Novel treatments & tools• Harnessing data• Leveraging technology
UVA Autism Initiative
Transformative Research
Developing & Testing New Models
Training & Education
Outreach & Dissemination
Assessment Intervention• Faster, more accurate diagnoses• More effective interventions & supports• Data-driven, scalable models• Increasing access to care
UVA Autism Initiative
Transformative Research
Developing & Testing New Models
Training & Education
Outreach & DisseminationBuilding Professional Capacity• UVA Students Professionals• Technology to Increase Reach• Local Global
UVA Autism Initiative
Transformative Research
Developing & Testing New Models
Training & Education
Outreach & Dissemination
Partnering Across Disciplines
Autism Data System• Analysis• Sharing
Autism Research Core• Research• Coordination
Research in Practice • Innovations• Training• Family
Navigation
Catalyzing Discovery
Changing Systems
Equipping Communities
Supporting Transformative Autism Research (STAR)
Autism Data System
Autism Research Core
Research in Practice
STAR Leadership Team
Micah Mazurek
Rose Nevill Bill Therrien
Moira Johnson
Autism Data System
Autism DRIVE
Dan Funk
Aaron Louie
Eleanor Graham
Ke Wang
Data Collection & Storage
Data Sharing & Analysis
Resource Connections
Autism Research Core
Project Coordination
Technical Assistance
Recruitment & Data Collection
ARC
Rose Nevill
Emily Meltzer
Amber Hardin
Wendy Byun
Pilot Studies Awarded: Year 1Missed Early Diagnosis of Autism Related to Non-
Attended Well-Child Checks in Virginia’s Rural Children
Math Talk
Body-Worn Sensors to Identify Functions of Stereotypical
Behaviors for Children with Autism
The Structure of ASD Clinic-Based Instruments: An Innovative Approach
Parent-Child Brain Synchrony in Autism Spectrum Disorders
Therapeutic and diagnostic potential of targeting microRNAs in autism
Pilot Studies Awarded: Year 2Current Behaviors and Barriers/Facilitators to Physical Activity and
Nutrition in Young Adults with ASD
Early Childhood Development of Social
Communication and Reading in Individuals with
Autism
Microglial P2Y12R in Autism Spectrum Disorder
Behaviors
Developing a Multimedia Professional Development
Process For Teachers of Students With Autism
Spectrum Disorders
Research in Practice
Novel Assessments & Interventions
Applied Behavior Analysis
Education & Outreach
Faculty
Bill Therrien
Gail Lovette
Youjia Hua
Emily Solari
Co-developing & testing innovative models of care and training in clinics and community settings
Research in Practice
Clinical Research
Diagnostic Tools & Models
Interdisciplinary Training
Faculty
Jane Hilton
Ellen Davis
Alisa Bahl
Emily Gonzalez
Kate Frazier
STAR Trainees
Postdoc.Fellows
Erica Rouch
Kate Sadler
Katy Bateman
Matt Zajic
Liz White
Doctoral Students
Sarah Emily Shutz
Kristie Jones
Michelle Menezes
Christina Harkins
Ryan Grimm
Family Navigation
Resource Navigation
Family Support & Education
Connections & Resources
Family Navigators
Janet Seide
Fay Painter
Pending
Pending
Research in Practice Projects
Developing & Testing New Tools
More Efficient Diagnostic Tools
Family-Centered Diagnostic Process
Interview-Informed Behavior Support
Research in Practice Projects
Developing & Testing Interventions
Function-Based Video Self-Modeling
“Snack Talks” Social Skills Intervention
Social Skills Intervention for Girls
Developing & Testing Interventions
Water Safety Project
Enhancing Comfort with Dental Exams
Parent Coaching/Training
Research in Practice Projects
UVA Team
Local School Teams
Students
Novel Training Models
ECHO Autism: Education
Research in Practice Projects
Outreach & Dissemination
• Community workshops• Online resource database• In-person & virtual trainings• Virginia Autism Research
Consortium (June 17-18)
Community Partnerships