supporting people with active and advanced disease
DESCRIPTION
Supporting people with active and advanced disease. Need better data collection Discussion at MDT – new diagnosis support Identify best practice Early palliative care support improves quality and quantity of life. What is the economic evidence behind survivorship?. - PowerPoint PPT PresentationTRANSCRIPT
Supporting people with active and advanced disease
• Need better data collection
• Discussion at MDT – new diagnosis support
• Identify best practice
• Early palliative care support improves quality and quantity of life
What is the economic evidence behind survivorship?
‘Routes from Diagnosis’ is a way of linking and analysing routinely collected data
Maps the cancer journey from diagnosis through to death
Describing health outcomes i.e. survival times, incidence, prevalence of cancer and non related cancer morbidities.
Tells us how patients interact with the system e.g. interaction with health care services, when, how long and cost
All patients reach one of these outcome groups – taking different routes from diagnosis
Diagnosis
0-12 months
1-7 years, cancer
complications
7+ years, no complications
This is a survivorship outcome framework
1-7 years, other morbidities
1-7 years, no complications
7+ years, morbidities
25.3%
29.7%
5.9%
20.4%
6.3%
12.4%
SIMPLIFIED
EXAMPLE
Everyone diagnosed with prostate cancer in England in 2004
What does RfD tell us?
We know more about clinical
outcomes – beyond just
survival We know more about how they interact with the system
Insight – Health economics
Different ‘Routes
from Diagnosis’
3 final CR survivorship pathways for testing
Interventions tailored for each ‘Route from
Diagnosis’
Designing effective Service Solutions
Exciting new research• Macmillan working with NCIN and Imperial College London to produce evidence on main drivers of cancer costs.
• Cost data will allow comparison of alternative pathways of care.
• Investigate variation in costs in England across lung, breast, prostate and bowel cancer:
• Economic burden of cancer
• Differences in the cancer care pathways and their effects on patient survival and costs
• Cost of emergency admissions of patients with cancer
Supporting people with active and advanced disease
• Need better data collection
• Discussion at MDT – new diagnosis support
• Identify best practice
• Early palliative care support improves quality and quantity of life
Key survivorship messages
• A shift in professional culture is essential to enable supported self management.
• New models of cancer aftercare gives opportunities to improve quality and reduce cost.
• Many people can self manage their health with support, with rapid access to professionals when needed.
• There is significant unmet need arising from consequences of treatment, which can be successfully addressed through prevention and treatment.
• Good survivorship care requires timely communication across boundaries.
Aligning with the NHS Mandate in England
Taking Action - a ‘how to guide’