stroke association · expert centre on aphasia. •focus on speech pathologies and the innovation...

Stroke Helpline 0303 3033 100

stroke.org.uk


stroke.org.uk

Stroke Association

UK Stroke Assembly North

14 June 2016

Au revoir Mr Barrick


stroke.org.uk

First Scotland Stroke Assembly meeting


stroke.org.uk


stroke.org.uk

“The Life After Stroke Centre saved my life. Without a shadow of doubt, I wouldn’t be where I am today without it. It’s a home away from home where I’ve met new friends, worked harder on my rehabilitation and found a new life. As soon as I was introduced to the Centre, it was as if I was being born again.” Pete Rumbold


stroke.org.uk

Yorkshire Life after stroke

centre • A centre for stroke innovation

• As well as providing support to people locally, the

Centre will have a national role developing as an

expert centre on aphasia.

• Focus on speech pathologies and the innovation of

new technologies for those experiencing aphasia.

• Close to Sheffield Universities centre for research

and teaching in human communication, excellent

links with speech and language experts and are

exploring ways in which we can work together.


stroke.org.uk

Keynote lecture 2016 200 guests (high net donors,

clinicians, academics, stroke

survivors and influencers) at

Lancaster House, our

highest ever attendance

Prof Joanna Wardlaw

from University of Edinburgh

delivered Lecture on Vascular

Dementia

Celebrated the recipients of our

Research Awards as they were

unveiled for the first time


stroke.org.uk

Liverpool UK Stroke Forum 1400+ attendees


stroke.org.uk

Royal Mail charity of the year progress •2 year partnership so far we have raised

£1,240,161 towards the £2 million

•This cash goes toward covering our Welfare

grants programme to Stroke survivors and

their families

•Partnership ends 2016.


stroke.org.uk


stroke.org.uk

Hospital to community – EIS-Stroke Recovery

Navigator/Co-ordinator

Rehabilitation/Reablement/Support-intensive

rehabilitation/exercise referral

Review Services

Communication support service- Aphasia, Dysphasia etc.

Emotional needs support-Anxiety, depression, etc.

Supported self management and confidence

building-SASHA

Secondary prevention

Carer- Assessment and support

Advocacy

Specialist Childhood Stroke service

Specialist

Building Independence

Advice & Information

Community support

Back to work & study skills

development

Online community

Telephone helpline

Peer support

Voluntary Groups and Clubs

Grants

SASHA

Stroke Recovery Friends Service

Added Value Sustaining Independence

& Self-management

Contracted Services Reablement, Support and Rehabilitation

Stroke Recovery Service Integrated Service Solution

Person Centred


stroke.org.uk

Legacies…. •We acquired 202 new

Pledgers in 2015/16,

bringing the total to 3056,

.

•Our Free Will Scheme

has produced 1400

Pledgers to date.


stroke.org.uk

Buckingham Palace •Gala dinner raised £600,000 so far, expect it

to top £1 million, next one being planned for

2018


stroke.org.uk

Life after stroke awards • Judging panel

combined has

donated over

£1.4m since to

2011

•2015 First ever

national media

partnership

with Daily

Express


stroke.org.uk

Know your Blood Pressure KYBP

We have seen an

30% increase in the

number of KYBP

events against

target

473 events

50,000+ people


stroke.org.uk

Stable and sustainable •Nesta funding of

£850,000 secured for

Long term support

groups

•Will improve training

and support for

volunteers in groups

and clubs

•Higher quality provision

and support


stroke.org.uk

International opportunity

•Burden of Stroke Report

•SAFE

•Purple to be colour of Stroke Europe wide

•Relationship with ESO

•World Stroke Campaign


stroke.org.uk


stroke.org.uk

What about Stroke as a health priority ?

•Push for new stroke national strategy “A new

Era for Stroke” starts this week

•26% vacancy rate for stroke consultants

•More difficult environment, where are the other

charities \/

•https://petition.parliament.uk/petitions/129830

https://petition.parliament.uk/petitions/129830


stroke.org.uk

11 years ago, We said: Take

notice or people will continue to

die or suffer unnecessarily


stroke.org.uk

We developed….


stroke.org.uk

It could have been so different

Know the signs of Stroke and watch your

Dr Joe Harbison,

currently Clinical

Director Stroke for

Eire;

• Arm

• Response

• Smile

• Evaluate


stroke.org.uk

2007 Campaigning

made progress in

England, N Ireland

and Wales, with

Stroke moving

close to Priority

one, and in all top

level NHS plans


stroke.org.uk

• 21 Quality Targets

• Ring-fenced funding

• Goals on long-term

support in the

community

• Priority one status

• Despite decision

makers being opposed

2007 Strategy included:


stroke.org.uk

We persuaded

Government to

finance a £12

million multimedia

stroke awareness

advertising

campaign


stroke.org.uk

Advances •24/7 access to thrombolysis organisationally

now in latest SSNAP audit

•Access to stroke units is now standard care

•Nursing levels up from 8 per 10 beds(2012)

to 9 by 2014

•PHE funded FAST adverts with our web

address in England


stroke.org.uk

Last few years NHS leaders downgrade stroke •Stroke improvement programme closed

•Stroke clinical networks closed

•Stroke Research Network closed

•Stroke survivor ring fenced community

funding shutdown

•National stroke strategy ignored.

•SSNAP funding cut by 20%

https://petition.parliament.uk/petitions/129830 Share it




stroke.org.uk

The National Stroke Strategy vision

2007, Hospital and outwards


stroke.org.uk

New Era for stroke Campaign

Share https://petition.parliament.uk/petitions/129830




stroke.org.uk

Thank you all so much


stroke.org.uk

stroke association · expert centre on aphasia. •focus on speech pathologies and the innovation...

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