stopping contagion with technology: instedd

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a look at our work from the perspective of the movie S T O P P I N G A T T H E S O U R C E

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Have you seen the movie CONTAGION or read about it? Meet InSTEDD, a group that provides the best technology available for surveillance and response -used from villages in Cambodia to the streets of New York; from small NGOs to the American Red Cross. At InSTEDD, we envision a world where communities everywhere design and use technology for their health, safety and development.

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Page 1: Stopping Contagion with Technology: InSTEDD

a look at our work

from the perspective of the movie

S T O P P I N G

A T T H E S O U R C E

Page 2: Stopping Contagion with Technology: InSTEDD

CONTAGION does an excellent job at depicting real

organizations at work in containing a pandemic.

But a short movie can‟t dive too deep or show all angles.

We will show you how technology is being designed and used

around the world to make a difference in public health.

Spanning remote villages and the world‟s largest cities, high-tech

and lo-tech, routine events and pandemics.

All the information is from real-world projects in which InSTEDD

is helping NGOs, health agencies, and governments improve

their ability to improve health & safety with technology.

Page 3: Stopping Contagion with Technology: InSTEDD

GLOBAL CHALLENGES | our work

In CONTAGION, the outbreak storyline starts in an urban

environment. Most of humanity lives in urban settings – in

overcrowded slums. However the largest interface between humans

and animals (a key factor for zoonotic diseases) happens in rural

areas, and that is where diseases first make appearances.

early detection and early

response are key to containing

outbreaks.

there are few people trained to

see diseases breaking out, to

share critical information, and

know what to do.

it all needs to happen in real-time,

from remote places where

language, connectivity, and

education add barriers.

Thousands of village health workers

use GeoChat as a mobile

surveillance network that reach

even remote villages in South East

Asia. Many outbreaks are now

contained locally.

| rural & urban

InSTEDD’s Innovation Labs design

tech based on what we see in the

field – e.g. a way for workers with

reduced literacy to report accurately

what they see in their community.

Page 4: Stopping Contagion with Technology: InSTEDD

GLOBAL CHALLENGES | our work

In CONTAGION, the outbreak is investigated trying to find

„Patient X‟ and understand the disease. Pen and paper are

always useful, but how can investigators in the CDC and

beyond actually share information with each other to accelerate

the containment?

investigators need to share

information regardless of the tools

they have. Even agreeing on what

data may be important takes time.

country governments, NGOs,

hospitals, WHO, CDC, etc. all need

to collaborate and share data to

understand the outbreak. Yet each

one needs to control its information.

InSTEDD designed for the US

CDC (Center for Disease

Control) peer to peer data

sharing tools that work even

when internet and GPRS is not

available.

| sharing information

Investigations can become

international. InSTEDD provides

tools that help countries share

disease data in secure, timely

ways.

Page 5: Stopping Contagion with Technology: InSTEDD

GLOBAL CHALLENGES | our work

In CONTAGION, the information about the disease in the early

stages seems to appear quite fast. Usually it takes more time to

get clues and access to the information needed for analysis

Every clue counts – pictures,

video, and location play an

important role in helping

investigators.

There is a tradeoff between

timely, high-quality, and

complete information. You

can‟t have all 3 simultaneously.

New York Dept. of Health is using

modern Android tablet-based tools

prepared by InSTEDD that allow

capturing and reporting multimedia

from the field.

| real-time investigations

InSTEDD provides tools for curating

real-time streams of

information, helping find outlier

health events, and filter out routine

or noisy data with aid of machine

learning.

Page 6: Stopping Contagion with Technology: InSTEDD

GLOBAL CHALLENGES | our work

In the movie, the investigation is global. It is too late. The

ultimate goal is to contain and slow down outbreaks at their

source. And no one knows better how to do that than the people

who live there.

InSTEDD tools get used

everyday in surveillance and

have been repurposed by the

users on the go – to respond to

floods, or track new diseases.

| global & local

InSTEDD Innovation Labs are

teams of designers, tech savvy

and entrepreneurial people that

invent & build the technologies

their communities need. Photo: the iLab in Phnom Penh, Cambodia

people know best what‟s going

on in their own community.

most tools are designed for

narrow purposes – outbreaks

demand more free-form

collaboration.

in challenging settings, local

innovators are the best suited

to design tools that will be

ultimately adopted.

Page 7: Stopping Contagion with Technology: InSTEDD

GLOBAL CHALLENGES | our work

In the movie, international agencies such as CDC and WHO play

a crucial role in coordinating the investigation and response.

These days, a new form of organization is emerging that can

complement their function: Regional networks of neighboring

countries.

| WHO, CDC & regional networks

Diseases don‟t respect borders

and don‟t need a visa. Movement

of animals and workers is a

major force in disease spread.

Investigators in neighboring

countries need to build trust

before events happen.

The politics of each outbreak are

different. Outbreaks can be

matters of national security.

InSTEDD supports the Mekong

Basin Disease Surveillance

Network (MBDS) with mobile tools

on sentinel border sites, that help

track outbreaks as they cross

borders.InSTEDD technologies work

internationally allowing agencies

to share appropriate information,

securely, and 24x7. Users include

SE Asia country governments

(incl. China & Vietnam)

Page 8: Stopping Contagion with Technology: InSTEDD

GLOBAL CHALLENGES | our work

In CONTAGION, technology doesn‟t really take a primary role, and

technologies seem to exist that provide instant display and

understanding of data. But what happens when agencies with

disparate systems need to work together?

the quality, sources and

formats of relevant

information can’t be

predicted.

standards are not widely

implemented and supported,

and need to be updated.

technology needs to adapt to

the users, not the other way

around.

InSTEDD works closely with our

users, listening and iterating. We

build and integrate custom

systems when requested and

provide the InSTEDD platform as

open source.

| agile technology design

As the 2009 H1N1 outbreak

developed, InSTEDD provided

WHO with geoclustering tools that

allowed them to compare reported

vs. confirmed case spread based

on their internal systems.

Page 9: Stopping Contagion with Technology: InSTEDD

GLOBAL CHALLENGES | our work

CONTAGION shows how modern society can get easily disrupted.

Helping people with the information they need to help themselves

is not done enough, even though the technology exists.

| information to those in need

Supply chains, transportation,

and other infrastructures are

fragile.

Lack of information amplifies the

deaths and suffering of any event.

Mobiles are an not used enough

to provide personally relevant

information to victims of an event

InSTEDD provided AlertNet with

the technology to send SMSs with

aid information to tens of

thousands of survivors of the Haiti

earthquake. 85% of recipients

acted differently as a result.

InSTEDD provides the American

Red Cross with tools that save key

members hours in the activation of

community volunteers during

times of crises

“Information is a vital form of aid in itself… Disaster-affected people need information as much as water, food, medicine, or shelter.

Information can save lives, livelihoods and resources.”

- World Disaster Report

Page 10: Stopping Contagion with Technology: InSTEDD

GLOBAL CHALLENGES | our work

CONTAGION shows: “Nothing spreads like fear”. In our world

information flows rapidly via mobiles and replicates via wide social

graphs like Twitter and Facebook. Is this being harnessed for good?

| official & crowdsourced data

there is nothing inherent in social

networks/media to make their

information tend to the truth.

the truth itself may be unverified,

complex, and open raw data is

typically not available or trustworthy.

response agencies are not social-

media savvy, and their messages

are easily overrun.

InSTEDD’s TaskMeUp and Riff tools

allow teams to sift through live

streams of information like tweets,

news, blogs and SMS – combining

crowd-, expert-, and algorithm-

sourced data.

Simple mobile tools from InSTEDD

speed up the validation of what’s

really happening and educate health

workers and reporters on what to

look for.

Page 11: Stopping Contagion with Technology: InSTEDD

At InSTEDD, we

envision a world

where communities

everywhere design

and use technology

for their health,

safety and

development.

Learn more at

http://instedd.org

@instedd

Pictures from the movie Pictures from our daily work

Page 12: Stopping Contagion with Technology: InSTEDD

| rural & urban

| sharing information

| real-time investigations

| global & local

| WHO, CDC & regional networks

| agile technology design

| official & crowdsourced data

are these topics interesting? Learn more about…

| information to those in need

http://instedd.org/technologies/

the technologies that make a difference

http://instedd.org/iLabs/

the iLabs where social needs meet innovation

http://instedd.org/our-work/consulting/

http://instedd.org/our-work/projects/

the projects with local impact and global reach

http://instedd.org/ @instedd

http://ilabamericalatina.org

Page 13: Stopping Contagion with Technology: InSTEDD

All ™, ® and © contents –names, texts and logos- are property of their respective owners.

CONTAGION is a Warner Bros. Pictures trademark.

The InSTEDD logo is © InSTEDD.

This presentation is shared under Creative Common: CC-by-nc-nd

No celebrities were harmed during this research.

…and dozens of agencies, groups, foundations, companies, social enterprises InSTEDD is proud to

collaborate with…

This wouldn’t have ben possible without….

Everyone who worked on Contagion… ..and everyone who works in public health every day