social media & disability activism - university of sydney, march 2, 2015
TRANSCRIPT
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From popular culture to social networking:Disability media advocacy comes of age
Guest Presenter: Beth Haller, Ph.D., Department of Mass
Communication and Communication Studies, Towson University, [email protected]
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Social media benefits for people with certain impairments
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Deaf actress Marlee Matlin: “In Twitter there were no barriers.”
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Blind Film Critic Tommy Edison
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Social media activism generally
• Using social media to coordinate group gatherings• Assembling organized numbers of people• Using social media to warn like-minded people about
those who are against the group’s activist stance• Real time updates allows a group to adjust to any
actions against it• Getting messages to people not directly involved but
still interested in the activism• Enlist support and/or coverage from the news media
and others around the world
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Activists harness social media because that’s where people get their news
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Pros & cons of social media news
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Why Facebook matters to people with disability
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Why New Mobility readers are using Facebook
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National ADAPT leverages Twitter
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ADAPT Twitter feed posts
• Pictures from ADAPT protestors and others• Information about those arrested.• Links to any media coverage of protests.• Information so someone who wanted to participate
but couldn’t be in DC could follow along.• People not in DC could even become active by
calling the federal legislator in charge of the budget proposing the cuts via the phone # ADAPT tweeted.
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Tweets build a cross-disability community
A May 3, 2011 tweet said: “Remember that ADAPT fights for all disabilities: physical, dd, psychiatric, blind, deaf, autism, MCS, everyone. That is why we are here.”
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ADAPT protest video makes it onto CNN web page as iReport
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ADAPT Minnesota continues the message
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Disability Rights Education & Defense Fund (DREDF) YouTube channel
Its YouTube channel has:• Training videos, such as information helping
parents understand the special education process and how to advocate for their disabled child
• Disability rights history: “The Power of 504,” a short documentary video about the 1977 civil rights demonstration by people with disabilities that resulted in the first Federal Civil Rights Law protecting people with disabilities.
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Social media use during natural disasters: Nick & Alejandra
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Alejandra’s Facebook post about their situation
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Little Free Radical blog
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Blog article that told Nick’s story
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Nick’s thank you on Facebook
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Boston’s 90.9 WBUR Tumblr about Nick
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NPR Talk of the Nation story about Sandy’s impact on people with disabilities
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Science show NOVA focuses on the people affected by Sandy
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Inaccessible shelters in NYC(Photos from 2011 from Hurricane Irene but nothing had changed for Hurricane Sandy.)
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NY disability activist Mike Volkman says:
“What we are doing now with Facebook really shows the true potential of what the Internet can do to transform our society. We are seeing changes that rival historically the invention of the printing press.”
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Pop culture and activism
• Comedian Josh Blue• Autism consultant Alex Plank• Promotion of American Sign Language and
Deaf culture on Switched at Birth• Teal Sherer’s My Gimpy Life
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Comedian Josh Blue: “I can say things that other people might not be able to get away
with because of having a disability.”
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Alex Plank founded autism social media site Wrong Planet in 2004
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Alex Plank became the autism consultant on FX’s The Bridge in 2012
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Alex Plank Twitter page
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ABC Family’s Switched at Birth embraces ASL & Deaf culture
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ASL lessons from Switched at Birth
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Teal Sherer’s web series, ‘My Gimpy Life’
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Pop culture adds visibility
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Journalists who cover disability
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From byline to tweet
I tweeted this to the journalist who wrote the story on the previous slide. It was information from a Melbourne activist who found the National Disability Summit was only allowing 12 people with disability attend for the discounted rate - $55 versus $1,500.