social inclusion recommendations
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PEERS' Social Inclusion Campaign Recommendations and WorkplanTRANSCRIPT
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Authentic Inclusion: Campaign Plan for Reducing Stigma and Discrimination in Alameda County Submitted by Peers Envisioning and Engaging in Recovery Services To Alameda County Behavioral Health Care Services June 30, 2011
"We envision an authentically inclusive community that welcomes people with mental health and substance abuse issues, and their families, with equal opportunities to live, love, learn, lead, work, pray and play; and most of all to see a community in which people with mental health issues are not defined by their diagnosis, but by the life they lead."
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Acknowledgements from the Executive Director This year, Peers Envisioning and Engaging in Recovery Services (PEERS) celebrated its ten-‐year anniversary. It also launched the major Alameda County Social Inclusion Campaign, funded under Proposition 63, the Mental Health Services Act. Celebrating these two momentous achievements, I would like begin by acknowledging and thanking all those who are and have been dedicated to breaking down the barriers for consumers and families who have or are living with the effects of mental health stigma and discrimination. This document is the culmination of an intensive, year-‐long planning process that involved the community at all levels in developing strategies to increase respect and dignity for people with mental health challenges and their families. Informed by both research and personal experience, the plan received input from the PEERS Social Inclusion Advisory Board, the PEERS Board of Directors, the Behavioral Health Care Services (BHCS) Social Inclusion Committee, BHCS’s Mental Health Services Act Ongoing Planning Council, and current and former consumers of mental health and substance abuse services, their family members, providers, spiritual and faith-‐based leaders, ethnic and cultural leaders, educators, and community members across the lifespan. Thanks to their advocacy, hard work and expertise, we have a thorough plan that takes positive and strengths-‐ based approaches to reducing stigma and discrimination. And while this report represents the contributions of many people, special thanks are in order to Lisa Smusz, PEERS Program Manager, who was the primary writer of the plan. It is important to note how we got this opportunity to make a difference. The Mental Health Services Act (MHSA) became California law on January 1, 2005 after being passed by the voters (as Proposition 63) in November 2004. This initiative provided for a one percent surcharge on personal income over $1 million to expand community-‐based public mental health services. The Alameda County Social Inclusion Campaign is supported through the MHSA’s Prevention and Early Intervention (PEI) funding, which specifically calls for efforts to reduce stigma and discrimination towards people with mental illnesses. In 2009, Alameda County identified reducing stigma and discrimination as a top priority in its PEI plan. This was an important step towards transforming the mental health system and promoting community integration of people with mental health issues. The efforts of the Pool Of Consumer Champions during the county's PEI stakeholder process was highly instrumental in defining a multi-‐faceted, comprehensive county-‐wide program as an important need. The hope is that this plan will serve as a model for other counties to develop their own local stigma and discrimination reduction programs. The importance of this social inclusion campaign and reducing stigma and discrimination has been a focus of consumers and family members throughout the years, echoed by both the state and federal governments. The 2009 California Department of Mental Health
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Strategic Plan on Reducing Mental Health Stigma and Discrimination acknowledged that “Stigma and discrimination can shatter hopes of recovery and social inclusion, leaving the person feeling devastated and socially and personally isolated.” A 1999 report by the United States Surgeon General recognized “Stigma as the most formidable obstacle to progress in the arena of mental illness and health.” This work is vital for the well-‐being of our community and though our planning year has ended, I want to emphasize that reducing stigma and discrimination for people with mental health challenges is an effort that requires continued dedication and collaboration with the community. Through our ongoing work that joins consumer-‐run and family organizations, consumers and their families, mental health providers, ethnic and cultural leaders and researchers across the county, state and nation, we are committed to making a positive impact. Our ultimate goal is not only to change people’s hearts and minds but also behaviors, system policies, and practices. Thank you, Khatera Aslami-‐Tamplen
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I. Background The number of Americans affected by mental health issues is significant — in any given year, roughly one in four adults suffer from a diagnosable mental disorder and nearly one out of every five children experience some degree of emotional or behavioral difficulty.1 The situation in California is even more acute; nearly one in five adults — about 4.9 million people — said they needed help for a mental or emotional health problem. Approximately one in 25, or over one million Californians, reported symptoms associated with serious psychological distress (SPD). Of those adults with either perceived need or SPD, only one in three reported seeking help from a mental health professional.2 However, individuals with mental health and substance abuse issues face more than the effects of their condition: stigma and discrimination pervade the atmosphere of their recovery and compromise their resiliency and wellness. Stigma, which refers to the negative attitudes towards those with mental health issues, often leads to discrimination, which refers to the unequal and unfair treatment of those with mental health issues. Discrimination can make it impossible for a person with mental health challenges to gain access to basic needs such as housing, employment, medical care, or credit, just to name a few. In 2007, the California Mental Health Services Oversight and Accountability Commission published the California Strategic Plan on Reducing Mental Health Stigma and Discrimination. The report defines stigma as referring to attitudes and beliefs that lead people to reject, avoid or fear those they perceive as being different, and discrimination when people and entities act upon these attitudes and beliefs in ways that can deprive others of their rights and life opportunities.3 It defines three categories of mental health-‐related stigma:
• Public stigma refers to feelings expressed and attitudes held by members of the general public towards individuals experiencing mental health challenges or their family members.
• Institutional stigma encompasses negative attitudes and behaviors about mental illness that are incorporated into the practices, cultures and policies of organizations and social systems (such as employment, education and health care).
1 National Institute of Mental Health. (2009). Statistics. Retrieved January 12, 2009 from website http://www.nimh.nih.gov/health/statistics/index.shtml 2 Grant, D., Kravitz-Wirtz, N., Aguilar-Gaxiola, S., Sribney, W.M., Aydin, M., Brown, E.R. (2005) California Health Interview Survey (CHIS 2005). Retrieved June 9, 2011 from website http://www.healthpolicy.ucla.edu/pubs/Publication.aspx?pubID=419 3 Mental Health Services Oversight and Accountability Commission. (2007). Eliminating the stigma and discriminations against persons with mental health disabilities: a project of the California Mental Health Services Act. Retrieved January 13, 2009 from website: http://www.dmh.ca.gov/MHSOAC/docs/StigmaAndDiscriminationReport07jun12.pdf
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• Self stigma, also called internalized stigma, occurs when individuals internalize the negative attitudes and disrespect that society, the community or peers perpetuate and may turn the challenged individual away from seeking treatment for their condition.
All these types of stigma and discrimination present an obstacle course for people who are already coping with the problems and effects of mental illness. In many cases, self-stigma keeps individuals with mental health challenges from seeking help at all, and discrimination can cause shame, despair and hopelessness that isolates people, preventing them from living full lives and engaging with their communities. The Alameda County Prevention and Early Intervention plan notes that consumers of mental health services have repeatedly communicated their experiences of stigma and discrimination, and how detrimental the impact has been on their lives:
• In a 1998 focus group conducted by the California Network of Mental Health Clients (CNMHC), discrimination was the most frequently reported experience of mental health clients.
• During Alameda County’s October 2007 Conference, “Breaking the Ties that Bind: Challenging Stigma and Discrimination,” mental health consumers surveyed described overwhelming barriers to recovery, hope, caring, empathy, and social inclusion that are generated by stigma and discrimination.
Stigma, discrimination and their negative impacts are not well understood by the general public. Nearly half of the adults in the 1996 McArthur General Social Survey reported that respondents were unwilling to work with or live near people with mental health issues,4 and the 1999 Surgeon General’s Report stated, “Stigma is the most formidable obstacle to progress in the arena of mental health.”
Misconceptions and biases — both internalized and coming from others — diminish hope and can hinder consumers from living, working, and participating fully in the community. Stigma and discrimination also affect family members, companions, parents and caregivers of those living with mental health conditions, as they are often seen as responsible for their loved one’s challenges and treated with suspicion or disapproval – parents in particular bear the brunt of blame for causing a child’s emotional difficulties. Mental health symptoms may be ignored or inappropriately treated, causing unnecessary trauma, suffering and further isolation. Studies have shown that those who do seek treatment report experiencing social stigma and stigmatizing attitudes from mental health professionals.5
Children and Transition-Age Youth are particularly susceptible to peer exclusion and social isolation and are even more vulnerable to stigmatizing affect than adults. Many individuals, families and communities experience the burdens of stigma and discrimination due to multiple
4 Pescosolido, B.A., Martin, J.K., et al. (2000) Americans’ views of mental health and illness at century’s end: continuity and change. Public Report on the McArthur Mental Health Module, 1996 General Social Survey. Bloomington: Indiana Consortium for Mental Health Services Research and Joseph P. Mailman School of Public Health, Columbia University. 5 Angermeyer, M.C., Schulze, B., et al. (2003). Courtesy stigma – a focus group study of relatives of schizophrenia patients. Social Psychiatry and Psychiatric Epidemiology, 38, 593-602.
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conditions — such as children or youth in foster care or special education; racial or ethnic communities; persons with physical disabilities; LGBT or gender-questioning individuals; persons with co-occurring disorders; seniors; rural populations and veterans. Of particular interest to the diverse population of Alameda County is the identification of public stigma as a key factor and need to expand services and supports that focuses on the whole person, utilizing the holistic traditional healing practices from each community.
Stigma and discrimination occur in many places, such as mental health institutions and programs, the community, workplace and schools. Individuals encounter social exclusion and challenges in finding and keeping housing or employment and participating in school activities.
Housing – Landlords are far less likely to consider renting to individuals who reveal they have received in-patient mental health treatment,6 even though doing so violates the Federal Fair Housing Act. Homelessness increases the experience of multiple stigmas and threat of violence; although less than five percent of the general population experiences a severe mental illness, researchers estimate that between 20-40% of the homeless population is comprised of these individuals.7
Employment – A 1995 survey of U.S. employers revealed that half would rarely employ someone with a psychiatric disability, and almost one-quarter would dismiss someone who had not disclosed a mental illness.8
Education Systems – Even though schools are in a unique position to dispel misconceptions about behavioral disorders and mental illness – and some do specifically address stigma and discrimination – many consumers, family members and advocates see the educational system as a setting that multiplies the effects of stigma. By the time the student reaches college, negative attitudes are already deeply ingrained: a 2008 study revealed that only 30% of college students considered “seeking help from a mental health professional if they were having a personal problem that was really bothering them,” yet over 50% reported to have felt so depressed that it was difficult to function and 20% of students reported to have seriously considered suicide.9
Institutions – Studies demonstrate that damaging stigma is often perpetuated by the very systems intended to help and protect the individual with mental health problems: for example, mental health and medical services intended to help are often perpetrators of significant stigma and discrimination. When people encounter stigmatizing attitudes from systems designed to provide help and assistance, they may avoid seeking or continuing treatment. In addition, the criminal justice system is ill-equipped to respond to mental health problems and is also a source of stigma and discrimination that results from the fact that people don't receive mental health services in
6 Page, S. (1995). Effects of the mental illness label in 1993: Acceptance and rejection in the community. Journal of Health and Social Policy, 7, 61-68 7 California Psychiatric Association. (2009). Homelessness and mental health. Retrieved July 15, 2009 from website http://www.calpsych.org/publications/access/homelessness.html 8 Manning, C. & White, P.D. (1995). Attitudes of employers to the mentally ill. Psychiatric Bulletin, 19, 541-543 9 American College Health Association. (2009). Fall 2009 National College Health Assessment. Retrieved August 12, 2009 from website: http://www.acha-ncha.org/docs/ACHA-NCHA_Reference_Group_Report_Fall2008.pdf
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the community - of the 30,000 inmates in California prisons who have a serious mental illness, the majority are nonviolent, low-level offenders who landed in the criminal justice system partly because they did not receive adequate community treatment.10
Media – Studies have found a clear connection between negative media portrayals of mental health challenges and public attitudes and stereotypes.11 Since many people learn about mental illness from the media and entertainment industries,12 inaccurate information can inadvertently promote stigma and discrimination.
As difficult as these attitudes and beliefs are to change, there is hope: we can learn from various approaches that have been used in other civil rights movements to make strides against stigma and discrimination, such as efforts to address racial discrimination, women’s rights, homophobia and discrimination against people with physical disabilities. The next section addresses these opportunities and the approach we are undertaking.
Our Approach
As a consumer-run organization and one of the original partners collaborating with ACBHCS in developing the model for the Stigma and Discrimination Reduction Campaign, PEERS has a thorough understanding of the needs and requirements of ACBHCS, consumers, family members, and the community. The experience of the planning year has “put a face” on the data and allowed us a unique perspective and opportunity to make real change. Along with our county partners, PEERS is ready to stand with the community to fight stigma and discrimination associated with mental health challenges and create a society that values and includes all people.
Our approach is to integrate the outcomes of our intensive stakeholder input, academic research, the experience of other campaigns and the benefit of our own research and planning of the last year to define and craft a campaign plan that will have specific reach and deep impact. Alameda County currently has very limited programs for reducing the negative outcomes associated with mental health stigma and discrimination. Addressing these negative outcomes, such as suicide, unemployment, homelessness, barriers to treatment, and the effects of trauma, is fundamental to the work of the mental health system. The PEERS Stigma and Discrimination Reduction Campaign is a blueprint for long-lasting change in Alameda County by reducing the stigma and discrimination mental health consumers and their families experience and by fostering their full integration and acceptance into the community
II. Situational Analysis and Project Rationale
Efforts to confront and reduce mental health stigma and discrimination are relatively new and the body of research and evaluation to date on this emerging area is still limited. The first efforts
10 Little Hoover Commission. (2000). Being there: Making a commitment to mental health. Sacramento, California: Little Hoover Commission. 11 Edney, D.R. (2004). Mass media and mental illness: a literature review. Canadian Mental Health Association, Ontario. Retrieved January 14, 2009 fro website: http://www.ontario.cmha.ca/docs/about/mass_media.pdf 12 California Association of Social Rehabilitation Agencies. 2008. Stigma and discrimination: a curriculum for the CalSWEC mental health initiative. Instructors Manual.
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began in the 1990s and leadership drew from the successful experiences on many different fronts, including disability rights, civil rights and other anti-discrimination and human-rights efforts.
Recent work on stigma and discrimination reduction campaigns at the state, national and international levels provides a basis from which to begin. Based on the literature reviewed from the CA DMH Strategic Plan On Reducing Mental Health Stigma And Discrimination and the SAMHSA Stigma Reduction guidelines, we know that the World Psychiatric Association initiated the first major anti-stigma campaign in 1996 in a pilot program in Canada. The focus was on increasing positive mental health coverage in the media. The Open the Doors campaign grew to include efforts in 19 countries and stimulated other initiatives globally.13
Early campaigns utilized primarily national mass media advertising to educate the public, and often included advocacy for more accurate media portrayals of those with mental health challenges. Over time, it has become clear that education was not enough: education alone can produce a better-informed populace, but not necessarily reduce discrimination. Researcher Bernice Pescosolido concludes that because the public embraces a primarily neurobiological understanding of mental illness, there is support for services but not for work to decrease stigma. Pescosolido believes that in response, advocates and providers may need to shift to an emphasis on competence and inclusion to move stigma reduction initiatives forward.
Campaigns now incorporate various approaches for deeper impact, aiming to influence attitudes and behaviors at multiple levels. And campaigns are looking at ways to incorporate more thorough and reliable means of evaluation. However, given the persistence and nature of prevalent attitudes and behaviors, the impact of campaigns takes time to develop. Planning and executing campaigns should be viewed with long-term frameworks in mind.
Social Marketing as a Framework
Social marketing (not to be confused with social media) is a method of utilizing marketing principles and tools to encourage behavioral change as opposed to promoting the purchase of goods or services. Social marketing can be an excellent tool for reframing behavior, reducing barriers to change, motivating individuals to explore behavioral alternatives, reaching underserved or inappropriately served populations and nudging norms toward positive change. Successful social marketing efforts stress the importance of being very specific with respect to your target populations — strategically researching, defining and staying focused on the best means to reach and influence them.
Based on the available literature review, the hallmarks of a successful social marketing campaign include the following:
• Carefully planned approaches to targeting and influencing audiences
13 Sayce, L. (2003) Beyond good intentions: making anti-‐discrimination strategies work. Disability and Society, 18, 625-‐642
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• Multifaceted, using the full array of methods to achieve change
• Multi-level, focused concurrently at the individual, family, schools, community, organizational and systems levels, locally and statewide (the so-called Social-Ecological Model)
• Focused on changing both attitudes and behaviors
• Long-term, as attitudes and behaviors do not change quickly and reinforcement is necessary
• Adequately funded
• Actively involving key stakeholders and program partners both within and outside the mental health community
• Incorporating benchmarks and evaluation and using the results to inform future efforts14 15 16
The social-ecological model and social marketing have both played a critical role in numerous public health efforts by applying interventions simultaneously at multiple levels, which constantly interact and feedback to each other, magnifying and sustaining the effect.
Strategies Used in Other Campaigns Anti-stigma campaigns have used methods, or interventions, for creating change in attitudes and behaviors. The methods most commonly and successfully utilized are:
• Direct Interpersonal Contact — PEERS’ partner and nationally-known stigma reduction researcher Dr. Patrick Corrigan has demonstrated that the best way to change negative attitudes towards people with mental health challenges is through the contact method.17 The contact method asserts that the most effective way to reduce stigma is through credible, sustained personal contact with those who have lived experience with mental health challenges. Interpersonal contact between people with mental health challenges and the general public has been shown to be more effective in improving attitudes than other approaches (e.g., protest or education), and also produces the most significant sustained effect in reducing stigma.
• Education – Public education campaigns have been proven effective at changing attitudes and behavior in the public health field as well as in mental health stigma and discrimination reduction. Carefully crafting messages conveyed through coordinated and strategic partners is key to success. Research has shown the benefits of tailoring content and materials to
14 Substance Abuse and Mental Health Services Administration. (2006). Developing a stigma reduction initiative (SAMHSA Pub.No.SMA-4176). Rockville, Maryland: Center for Mental Health Services, Substance Abuse and Mental Health Services Administration. 15 National Institute for Mental Health in England. (2004). Scoping review on mental health anti-stigma and discrimination: Current activities and what works. Leeds, United Kingdom. 16 Sartorious, N. (2006). Lessons from a 10-year global programme against stigma and discrimination because of an illness. Psychology, Health & Medicine, 11(3), 383-388 17 Corrigan, P.W. (2004). Target-specific stigma change: a strategy for impacting mental illness stigma. Psychiatric Rehabilitation Journal, 28, 113-121.
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specific groups to increase a message’s effectiveness, 18 and that some education efforts have produced short-term improvement in attitudes.19
• Advocacy, coalition building and support – Anti-stigma advocacy has focused on influencing the media, policy and law. Media advocacy is a particularly important area for action, as sensationalist news coverage and film portrayals are believed to be one of the main factors contributing to distorted public attitudes about individuals with mental health challenges.20 Legal advocacy has resulted in powerful anti-discrimination laws, including the Fair Housing Act and the ADA. An important component of anti-stigma and discrimination campaign success is strength in numbers: coalition building of different individuals, organizations and sectors working together toward a common goal.
Offering a broad range of support services and resources to help those with mental health challenges gain information is also a critical piece of the effort. Preliminary studies from two federally funded research centers and many researchers have found that the benefits of participation in peer-led, self-help include increased independence and self-reliance; improved self-esteem; enhanced coping skills and feelings of personal empowerment; and increased knowledge of services, rights, housing, employment and other issues of special concern to those experiencing a mental health challenge.
What Works? (a sidebar on 2 successful examples)
Elimination of Barriers Initiative - SAMHSA
In 2003, the Substance Abuse and Mental Health Services Administration (SAMHSA) launched the Elimination of Barriers Initiative (EBI). The EBI was a three-year demonstration designed to test approaches to addressing discrimination and stigma in eight pilot States and aimed to build awareness of and counter the discrimination and stigma associated with mental illnesses. The EBI laid much of the groundwork for SAMHSA’s National Anti Stigma Campaign (NASC). A key component of the EBI is grassroots support and outreach. Each of the eight States that participated in the EBI formed partnerships, mobilized volunteers, and conducted other on-the-ground activities that generated attention from the media, paved the way for entry into school systems and businesses, and took mental health out of the shadows. Indeed, the program’s impact was deepened through the vibrant community-based initiatives conducted by groups and individuals, including local speakers’ bureaus and other activities intended to foster direct contact between people with mental illnesses and the public at large.
New Zealand: Like Minds, Like Mine
18 Alcalay, R. & Bell, R.A. (2000). Promoting nutrition and physical activity through social marketing: current practices and recommendations. Center for Advanced Studies in Nutrition and Social Marketing, University of California, Davis. 19 State of California, Department of Finance. (2009). California current population survey report: March 2007. Retrieved January 12, 2009 from website: http://www.dof.ca..gov/research/demographic/reports/census-surveys/documents/CPS07_fial.pdf 20 Edney, D. (2004), Mass media and mental illness: a literature review. Canadian Mental Health Association, Ontario.
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New Zealand’s national Like Minds, Like Mine program has drawn praise for its comprehensive, multilevel, long-term, social marketing-based approach to countering stigma and discrimination. In place since 1997, it is the longest running national program and is widely regarded as one of the most successful mental health antidiscrimination programs.21 In 2006, more than 50 percent of surveyed consumers reported reduced levels of stigma and discrimination from family, mental health services, and the public, and about 50 percent reported a reduction in stigma and discrimination in the employment arena.22 After 11 years, the percentage of the public viewing those with mental health challenges as more dangerous than others decreased by 14 percent.23 The program has used a range of methods, including: • Nationwide television and radio advertising campaigns • Public speaking engagements by people with mental health challenges sharing their
experiences • Local programs and activities, such as photography and art exhibitions, public marches or
protests, and Maori cultural events • Media advocacy to disseminate positive personal stories, guidelines for journalists, training
for journalism students, and other efforts to encourage nondiscriminatory reporting • Promotion of discrimination-prevention policies and equal access to housing, education, and
employment The program is a collaborative effort involving a broad spectrum of agencies, such as mental health service providers, consumer-run organizations and networks, and non-governmental organizations and includes national public relations efforts and regional promotional and training activities. Over time, the program has been adapted and it is working to strengthen the role that people who have experienced mental challenges play in the program’s leadership, management, and operation as well as broad stakeholder involvement in planning and implementation (not just same stakeholders, but new voices and champions from outside – ex: educators, business owners, faith leaders, etc). The success of these two initiatives points to key success factors for PEERS as we embark on the implementation of the Social Inclusion Campaign in Alameda County: • The importance of partnerships and coalition building as critical elements for leveraging
PEERS’ Social Inclusion Campaign efforts
• Engaging local and credible sources already within the community to deliver messages (i.e., grassroots advocacy)
21 Myers, F., Woodhouse, A., et al. (2009). Evaluation of “See me” – the national Scottish campaign against stigma and discrimination associated with mental ill-health. Scottish Government Social Research. Retrieved January 20, 2009 from website: http://www.scotland.gov.uk/Resource/Doc?257385/0076396.pdf 22 Ministry of Health. (2007). Like minds, like mine national plan 2007-2013:Programme to counter stigma and discrimination associated with mental illness. Wellington Ministry of Health. Retrieved January 20, 2009 from website: http://www.moh.gov.nz/moh.nsf/indexmh/like-minds-like-mine-national-plan-200713 23 Wylie, A., Cameron, A., et al. (2008). Impacts of national media campaign to counter stigma and discrimination associated with mental illness. Survey nine results for campaign 4. Phoenix Research: Research report for Ministry of Health.
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• Utilizing outlets that connect with different age groups and cultural groups (e.g., language-
specific newspapers, social media for youth) • Emphasizing the use of positive reinforcement whenever possible III. What We’ve Learned in Alameda County
Turning to data from the subject community in Alameda County, there are several avenues of research that PEERS reviewed and took on towards planning this campaign:
• Existing County Prevalence, Housing and Ethnicity Data and African American Utilization Report, Goals and Recommendations, Winter 2011
• Original Research: Stigma and Discrimination Reduction Survey, Breaking the Ties that Bind: Challenging Stigma and Discrimination Conference, October 2007
• Original Research: African American and Housing Town Hall Meeting Surveys, Winter 2011
Alameda County Prevalence Data and African American Utilization Report
California leads the nation in racial and ethnic diversity: the 2010 Census revealed that only 40% of the population self-identify as non-Hispanic Caucasian; 38% are of Hispanic descent; 13% are Asian; 6% are African American and 5% are of mixed race (less than 2 % are Native American or Pacific Islander). Alameda County’s population reflects this diversity; however, the African American and Asian populations are roughly twice the average statewide percentages.
2010 Population Demographics Alameda County California 2010 Population 1,510,271 37,253,956 % Population change 2000-2010 4.6% 10% White, non-Hispanic 34% 40% Asian 26% 13% Hispanic Descent 22.5% 37.6% African American 12.6% 6.2%
Culturally appropriate strategies to address stigma and discrimination are particularly necessary in California, as the state is expected to become even more diverse in the near future. Studies suggest that various ethnic groups frequently experience stigma and discrimination in radically different ways, with African Americans, Latinos and Asians perceiving the threat or
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“dangerousness” of contact with individuals experiencing mental health challenges much higher than Caucasians.24
The Behavioral Risk Factor Surveillance System put into place by the Centers of Disease Control and Prevention monitors behavioral risk factors in adult populations. An optional mental illness and stigma question inserted into the 2007 Monitor revealed that African Americans in particular hold a more negative view of mental illness and its treatment outcomes than other ethnic groups.
Alameda County has a very diverse population base, representing a range of service potentials. A lens through which to identify priorities is the prevalence and service ratio data of consumers of mental health services in Alameda County.
Prevalence and User Disparities by Ethnicity in Alameda County
Ethnicity % Prevalence in Population
% Frequent Users Served
Service Disparity
African American 23% 43% 20%
Asian/Pacific Islander 20% 12% -8%
Caucasian 23% 28% 5%
Latino 27% 14% -13%
Native American 1% 1% N/A
Other 6% 2% -4%
Source: BHCS System Data, 2008
The 2000 Census indicates that reported prevalence of mental illness per population25 in Alameda County is fairly consistent across ethnicities (with some exceptions) but that disadvantaged African American youth and adults are served by mental health services in the County at levels higher than proportionate to their population or to the prevalence of mental illness within the population. Dr. Marye Thomas, Director of Alameda County Behavioral Health Care Services, noted,26 As statistics show, most behavioral health care programs in California serve African Americans
24 Whaley, L.A. (1997). Ethnic and racial differences in perceptions of dangerousness of persons with mental illness. Psychiatric Services, 48,1328-1330 25 2000 census data, Estimates of Prevalence of Persons with Serious Emotional Disturbance (SED) and Serious Mental Illness (SMI) in Alameda County. 26 Crowder, G.R. African American Utilization Report. (2011). Alameda County Behavioral Health Care Services.
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at a disproportionately higher rate than other ethnic communities, and these services are provided in extremely restrictive (often involuntary) settings such as hospitals and jails. Here in Alameda County, low income African Americans with serious mental illness (and co-occurring disorders) represent 25% of our population, yet receive 40% of all mental health services. Despite this “over-provision” of services, across the lifespan, positive mental health outcomes among African Americans in Alameda County and across the state are inconsistent, which leads us to conclude that many African Americans are being inappropriately served.” Dr. Thomas goes on to further articulate ACBHCS’ priorities as follows: …BHCS recognized that we needed to scrutinize our service delivery system and determine ways of improving outcomes for African American consumers, their families and the County’s African American community at large. The Mental Health Services Act (MHSA) provided funding and opportunities to begin addressing these disparities in ways that in the past would have otherwise been difficult.
Key recommendations of the Report include:
• Continue to innovate in building a system of care that intrinsically provides appropriate services for all consumers and their families in Alameda County, recognizing each ethnicity’s distinct social, cultural and spiritual affinities.
• Implement African American cultural sensitivity and behavioral health awareness training for all County staff, including BHCS, Public Health Services, Social Services and Criminal Justice employees and contractors.
• Develop collaborations and supportive infrastructure between BHCS, Public Health and other County agencies to earlier engage consumers who are experiencing or are at risk for serious mental health issues, specifically in departments with an over-representation of African American adults, e.g., Criminal Justice and Social Services.
• Enlist and educate the African American faith community to reduce stigma and provide effective services to support consumers and family members.
• Increase the accuracy and reduce bias of diagnoses and treatment options among children and youth by promoting the use of Clarifying Assessments, community-based consultations, and best interventions for trauma practice.
• Strengthen the cultural relevancy of services by increasing the number of multidisciplinary, culturally appropriate case management teams in the field.
• Ensure that new programs and infrastructure are developed with input from African American subject matter experts.
• Expand peer-to-peer support programs, community capacity building and therapeutic activity group (TAG) programs throughout the TAY and Adult systems of care.
• Increase the links and communication channels among BHCS, providers and the primary
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care community across all ages; provide screenings for Post Traumatic Stress Disorder (PTSD) and depression within the primary care setting.
• Provide primary care providers with culturally relevant training on Differential Diagnosis to address co-occurring conditions linking mental health, substance abuse and physical health issues, especially in older African American adults.
• Recognize the impact of historical trauma across the African American community, and explore solutions to instill a belief and trust in the effectiveness of the County system of care.
These findings and recommendations are the source of our conclusion that the African American consumer of mental health services in Alameda County is a priority area of focus for PEERS as we conceive of and develop our 2011-2013 Social Inclusion Campaign.
We have also learned that the original timeline of one year for the African American and Housing-focused Social Inclusion Campaign is insufficient. The limit of a one-year timeline only allows for the development of relationships with integral parties; it does not allow for evaluation and refinement of strategies. By extending the Social Inclusion Campaign timeline to two years, PEERS will be able to build relationships, implement strategies, and evaluate the effectiveness of the strategies in year one and then adapt, refine, and implement evaluated strategies, as well as continue to deepen relationships in year two. During the second year, we will also plan strategies for another community and another power holder group. This extended timeline will allow the campaign to be more effective in reducing stigma and discrimination against people with mental health issues.
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IV. Guiding Principles Gathered from Situational Analysis Guiding Principle 1: Change Attitudes (Impacting Stigma) by Emphasizing Contact Method As discussed previously, PEERS’ partner and nationally-known stigma reduction researcher Dr. Patrick Corrigan has demonstrated that the best way to change negative attitudes towards people with mental health challenges is through the contact method. The contact method asserts that the most effective way to reduce stigma is through credible, sustained personal contact with those who have lived experience with mental health challenges. Interpersonal contact between people with mental health challenges and the general public has been shown to be more effective in improving attitudes than other approaches and also produces the most significant sustained effect in reducing stigma.27 Although PEERS will continue to use education and advocacy throughout the campaign, the evidence supporting the contact method has led us to choose a plan that emphasizes the contact method over other approaches. Guiding Principle 2: Messages and Strategies Must Meet and Fit the Cultural and Linguistic Needs of Alameda County While the Social Inclusion Campaign will address the issue of stigma and discrimination within the community at large, special emphasis in 2011-2013 will be placed on partnering and supporting change within the African American community which has been historically inappropriately served in the mental health system. Some of our earliest strategies in the implementation year will be to spend time building relationships within natural communities that exist within the African American community including: faith-based groups, black-owned businesses, older adult populations, TAY, men’s and women’s issues groups, and families of people with mental health issues. After hosting a town-hall meeting for those involved with the African American community, PEERS learned about some key issues involved in reducing stigma and discrimination and in building our network of allies in the work ahead. PEERS discovered the importance of not isolating the idea of spirituality to one area of the campaign, but rather to weave in spirituality and outreach to faith-based communities into all parts of campaign. We plan on partnering with the faith-based community to host educational gatherings, support groups, and community events (such as WRAP, eCPR, public art, community gardens, etc.). In addition to the faith-based communities, we plan on providing skills building trainings around trauma and discuss its association to mental health and wellbeing. A Public Health Crisis. Alameda County Violent Death Reporting System 2002-2004 report page 3 indicates that “Although African Americans make up only 35% of the total population in Oakland, they represent more than 77% of the homicide victims.” This data overwhelmingly highlights the need to address trauma in Alameda County’s highly diverse metropolitan city.
27 Corrigan, p.w. (2004). Changing the Stigma Through Contact. Advances in Schizophrenia and Clinical Psychiatry. 1(2):54-‐57.
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In addition, because the African American community possesses a wide array of individuals with differing ages and life experiences, it is essential to create culturally- and age-appropriate messages and outlets, particularly an African American community brochure. In addition to producing African American-specific educational and outreach materials, PEERS is committed to producing specific informational materials that promote social inclusion in multiple ethnic and cultural groups. Campaign informational materials will be available in five languages (English, Chinese, Vietnamese, Spanish, and Farsi), and articles and public service announcements will be placed in language-specific news outlets. In our efforts to expand the message of inclusion to a broader audience in our diverse county, Wellness and Recovery Action Planning (WRAP) groups and informational materials have been expanded to serve the Spanish speaking community. Partnerships and trainings (such as eCPR) are being planned with the faith-based communities as well as training in Spirituality 101 for Mental Health practitioners. Guiding Principle 3: Fully Engage Stakeholders in Planning and Implementation of Campaign As discussed earlier, one of the key take-away messages we found in the research and examination of other campaigns was the necessity of fully engaging all stakeholders and the community at large in all phases of campaign planning and implementation. During our planning year, we made a concerted effort to reach out to, actively involve, and incorporate the input of consumers and family members from across the lifespan, power group holders, and members of the diverse ethnic communities that make up Alameda County. We humbly recognize that if our efforts are to be successful, we will need to continue to build relationships and trust by respectfully engaging members of the African American community and Housing power group holders, continuing to listen and adapt our efforts in response to the knowledge they share with us about their communities and the issues they face in eliminating stigma and discrimination. Due to the importance of relationship and trust-building, we will form community action teams, finding natural groups of stakeholders within the focus communities, including older adults, spiritual communities, and TAY. These action teams will aid in the implementation and evaluation of the stigma reduction strategies, giving feedback to the PEERS team for refinement throughout the implementation period. Our outreach and relationship building is in its infancy, but already it has yielded rich information and allies. Some of our efforts to engage and activate champions within the greater Alameda County community included: • Community Dialogue: In October 2010, PEERS hosted the Social Inclusion Campaign Community Dialogue, a daylong event that featured a keynote talk by Dr. Corrigan and introduced the campaign to PEI recipients and community leaders, informing them of our plans and requesting their involvement and participation. • Advisory Board:
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In addition to receiving guidance from Dr. Corrigan and community leaders at the Dialogue, PEERS formed an advisory board for the campaign to help shape and direct strategies for the implementation year. To ensure a diverse community presence, board members were selected to represent a cross-section of the populations with whom PEERS works. The advisory board represented groups including consumers, family members, TAY, older adults, providers, faith-based leaders, K-12 educators, post-secondary educators, African Americans, and Asian Americans. The role of each advisory board member was to bring information and opinions to the workgroup based on the knowledge of the community they represented. They were also expected to become champions and deliverers of the message to their respective communities. As a whole, the advisory board was responsible for selecting two focus groups for the implementation year of the Social Inclusion Campaign. One group was to be an ethnic community, and the other group was to be a significant power holder in the community. For the ethnic group, the advisory board selected the African American community, as it has been inappropriately served over time and received no PEI funding. For the power group, the advisory board selected the housing sector, as its members collectively decided that no one can be truly mentally healthy unless one first has access to safe, welcoming, and sustainable housing. A visual summary of the Advisory Boards’ process and all recommendations can be accessed in the Appendices of this report. • Town Hall Meetings: In planning for the Social Inclusion Campaign, PEERS conducted two Town Hall meetings where community members including consumers and family members were surveyed. The first Town Hall focused on African American consumers and family members and their views about sources of support, key sources of messages about mental health issues, their feelings with respect to those messages, obstacles to getting the help they need and concerns about mental health issues. As discussed in our findings from research and previous campaigns, we will need the support of our community partners and stakeholders in delivering messages, implementing projects, and creating real change in our communities. PEERS has identified and has begun developing working relationships with the following system partners and stakeholders: PEERS Stakeholders
• BHCS- Alameda County Behavioral Health Care Services (?) • ACNMHC- Alameda County Network of Mental Health Clients • ACMHA- Alameda County Mental Health Association
o FERC- Family Education and Resource Center • BACS-Bay Area Community Services • HHREC- Health and Human Resource and Education Center • AC NAMI- Alameda County National Alliance on Mental Illness • AC UACF- Alameda County United Advocates for Children and Families • EBRP-East Bay Recovery Project • BOSS- Building Opportunites for Self-Sufficiency
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• Bonita House Inc. • HHREC- Health and Human Resource Education Center • CNMHC-California Network of Mental Health Clients • Telecare-Villa Fairmont, Strides, Morton Baker • La Clinica de la Raza • La Familia Counseling Service • Horizon Services, Inc. • John George Psychiatric Services • Native American Health Center • Fred Finch Youth Center • STARS Community Services • Youth UpRising • Casa de la Vida • FPFY-First Place for You • Spiritual communities • CRIL- Community Resources for Independent Living • National Empowerment Center • Berkeley Mental Health • CHAA- Community Health for Asian Americans • ACCMHA-Alameda County Council of Mental Health Agencies
Guiding Principle 4: Change Actions (Impacting Discrimination) with 3-part approach Our campaign strives not just to impact attitudes, reducing stigma, but also to impact discriminatory behaviors. Many past campaigns for behavioral change have utilized strategies that emphasize evoking an emotional response in the audience (ex: “This is your brain on drugs” commercial), many more have used the strategy of informing the audience of the action they should take (ex: “Just Say No”), or trying to change the system to support change (ex: legislation to punish people for selling drugs). However, these strategies become far less effective at moving the audience to action when used separately rather than as part of a three-part approach that utilizes all of these tactics in prescribed manner. Building from the change model highlighted in the book Switch: How to Change When Change is Hard, our strategies uses a process in which each intervention consists of all three parts, rather than separating them into disjointed, unconnected attempts. First an emotional connection with the audience is made (get them to care about the issue). After the emotional connection has been established and while the audience is motivated, they are given a specific, achievable, measurable call to action. Lastly, clear any barriers to their participation immediately. The following is an example of how this model is applied in our strategies: (Emotional Connection) Our speakers’ bureau is scheduled to present at a meeting of housing managers that are fearful about having people with mental health issues living in their building. The speakers’ bureau will present an emotionally compelling, personal story of how mental health issues are but one facet of their personhood -- dispelling myths and fears -- and how stigma and discrimination affects their ability to find and keep housing. (Information) The audience is then asked to do three follow-up actions: 1. Sign-up for a training
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that will give them more tools and feel more confident to support tenants with mental health issues. 2. Take the “Stigma Stops with Me” pledge on line or by paper, and 3. Each One Teach One – spread the message they have learned to at least one other person. (Remove Barriers) In order to make it easy for audience members to follow up, sign-up sheets for the follow-up workshop are distributed at the event and reminder cards about the training date they have signed up for are given to registrants. Secondly, a laptop with wireless is provided for those who wish to take the pledge on site via Facebook, or a poster to sign for those who do not have a Facebook account. Lastly, brochures and palm cards with a summary of talking points and links to video presentations of the speakers’ bureau are distributed for audience members to share with others. Guiding Principle 5: Maintain a Strengths-Based Approach and Utilize Positive Reinforcement In keeping with our organizational values, the Social Inclusion Campaign will utilize a strengths-based, positive-reinforcement approach whenever possible. Our campaign will strive to seek out and support the “bright spots” (positive efforts being taken toward a more inclusive society) already existing within the Alameda County community. Instead of drawing attention and media exposure to negative actions, we will seek to find examples of what is already going well and provide positive reinforcement, media attention, and community support for those actions. Prior research has shown that the while traditional protest has a place and potential for impact, the long-term potential for change is uncertain and there is the possibility of backlash. By focusing our efforts on positive reinforcement, we hope to avoid the potential backlash possible with traditional protest models and instead promote buy-in and duplication. This positive-reinforcement approach has the additional benefit of promoting solutions that have emerged from the community of focus itself. As noted in the book Switch: How to Change When Change is Hard, these solutions are more likely to not only be more realistic and sustainable, but less likely to be rejected by the community as would “imported” solutions imposed by perceived outsiders. Guiding Principle 6: Use New Tools to Broaden Our Reach and Engage Individuals Across the Lifespan While the results of the contact method are central to the PEERS implementation strategy, the task of facilitating widespread change through face-to-face contact in a geographically dispersed and densely populated area such as Alameda County is daunting and requires a creative, thoughtful strategy. PEERS perceives the supplemental use of social media key to creating contact opportunities. Many people (particularly transitional age youth and adults aged 25-45) perceive social media outlets as a legitimate point of contact, as demonstrated by the socialization and shift in personal relationships facilitated by Facebook and online dating. In addition, social media in particular is a powerful way to distribute messages and content. Nearly three quarters (73%) of online teens and an equal number (72%) of young adults use social network sites.28 Over the past 10 years, transitional aged youth as well as adults aged 25-45 have consistently been the two groups most
28 Lenhart, Amanda, Kristen Purcell, Aaron Smith, and Kathryn Zickuhr. “Social Media and Young Adults.” Pew Internet and American Life Project: http://www.pewinternet.org/Reports/2010/Social-‐Media-‐and-‐Young-‐Adults.aspx.
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likely to go online. Interestingly, online media is not just a tool that can be used to engage young adults more effectively, but is increasingly becoming an effective means of reaching older adults (over the age of 65) as demonstrated by recent significant increases in internet usage in older adults (over the age of 65).29 V. Strategies and Methods
Messages: As an exercise, PEERS asked members of our staff and community stakeholders to define what social inclusion, stigma, and discrimination meant to them. As you might imagine, there were nearly as many definitions as participants. This simple exercise echoed the sentiment reflected in the feedback of consumers surveyed at the 2007 Breaking the Ties that Bind Conference, as well as the recommendations of SAMHSA in their guide to developing stigma reduction initiatives: The complex matter of stigma and discrimination must be distilled into several messages and slogans that convey critical information and calls to action in an easily understandable manner. These campaign messages are the foundation from which talking points, PSAs, newspaper articles, and marketing materials are developed, giving us a common language and frame of reference to talk about the goals of our campaign in a consistent manner. Our first step in developing messages was to research what other campaigns had done, learning from both their successes and failures. Secondly, we as a team thought deeply about what research had demonstrated to be effective in combating stigma and what key concepts we wanted to convey. Finally, and most importantly, we listened to our stakeholders: consumers, family members, providers, and power holders ensuring that the messages were crafted to resonate with and be clearly understood by our audience. Based on this analysis, we determined that the following message qualities were critical: 1. The messages must be strength-based, emphasize recovery, and inspire hope. 2. The messages must serve to promote inclusion and respect toward people with mental health
issues and their families rather than identify, separate, or inspire pity or a sense of powerlessness and victimization.
3. The message should help the audience understand why they should care about people with mental health issues, pointing out their likely personal connection to the issue.
4. The message should be accessible to the broadest possible audience. The message must be written in simple, clear language free from jargon understandable to members of the general population, not only those who have experience within the mental health system.
5. The message should do more than just raise awareness, rather it must be a call to action and personal responsibility to help change our society.
6. The message must be congruent with the adage of “nothing about us, without us.” 7. The message should convey that mental health issues are a single facet of a unique human
being and not their defining characteristic, existing within a context of both individual strengths and weaknesses.
29 Ibid.
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With those qualities in mind, we are using the following messages in our campaign. This list is not intended to be exhaustive, but a starting point of clear messages to be adapted and expanded upon depending on the audience and forum. The first bolded line is a slogan that might be used to draw the audience member in or grab attention, followed by an explanation of the message’s intent and talking points that might be more fully developed in the brochure, postcard, PSA, article, event theme, speech, etc:
• “Stigma Stops With Me.” Our campaign is about action, not just raising awareness. We strive to create an equal sense of personal responsibility in all community members (those with lived experience of mental health issues and those without lived experience) to stop stigma and discrimination and create a more inclusive society. We create small, clearly measurable, achievable actions that community members can commit to publicly. This slogan, printed on t-shirts, online pledges, and posters provides a call to action. Key talking points might include:
o You can make a difference in the way people view and treat people with mental health issues if you:
Learn and share the facts about mental health. Share your own personal story of recovery if you are a person with lived
experience of mental health issues. Treat people with mental health issues with dignity and respect. Speak out
when others are disrespectful or spread stereotypes and misinformation. Support the development of community resources for people with mental
health issues and their families. Respect the rights of people with mental health issues and don’t
discriminate against them when it comes to housing, employment, or education.
o “Each One, Teach One.” Everyone has the ability and responsibility to educate others about what they have learned. People are more likely to listen to and act on information they hear from a known, trusted source rather than someone who is perceived as an “outsider.” You can be that trusted source of information. If everyone takes responsibility for educating at least one other person about what they have learned, our efforts to change our community can grow exponentially.
• “Hope isn’t a 4-letter word.” Too often, people with mental health issues and their families are afraid to, or are actively discouraged to, hold out hope for recovery and full life after a mental health diagnosis. Yet hope is a powerful tool for working toward wellness, and the facts show that people with mental health issues can and do recover. There are many paths and tools that can be utilized and adapted in a journey to recovery including but not limited to: working with mental health professionals, self-help strategies, community supports, peer support, medications, spiritual practices, and more. Our message is: Don’t allow anyone to take away your hope for a better future and take charge of your recovery process.
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• “Look Closer: I am more than my diagnosis.” Modeled after the U.K. campaign “Time to Change,” individuals would introduce themselves to viewers (via video), talking about their lives, successes, and roles along with the fact that they have a mental health diagnosis. The viewer is confronted with an image of a whole, complex individual that does not meet the pre-conceived stereotypical portrayal of a person with mental health issues. The brief introduction to the person is followed by the message: “Not what you expected? Look closer at … [what you believe] [people before you judge them] [how you treat others] [the messages you see in the media]. Despite what you may have heard … [mental health issues are but one facet of a complex human experience and do not define the individual] [people with mental health issues are more likely to be victims of violent crime than the perpetrators] [people can and do recover from mental health issues]. People with mental health issues surround you everyday and make important contributions to our families and our society. It’s time to stop the lies and stop the discrimination. [Insert call to action.]”
• “Mental health is part of all our lives.” This message was developed by SAMHSA to both normalize the experience of mental health issues and to make the issue personally relevant to the audience, pointing out that mental health problems are quite common and affect almost every family in America. In California, 1 in 5 are living with a mental health issue. That means either you, or someone you know is very likely to be affected by the issue of stigma and discrimination.
• “Uncover, Recover, Discover”
This message, used primarily by our speakers’ bureau “Lift Every Voice and Speak,” summarizes the approach to storytelling that we utilize in our efforts to combat stigma. Participants first “uncover” by coming out about their personal experiences with mental health issues, discussing the origins and factors that played a part in their difficulties. Speakers next focus on their experiences on the road to recovery – both successes and failures – and the tools and support strategies that helped them on their journey. Finally, the audience and the speaker “discover” what we can do to support others who might be experiencing mental health issues, how we ourselves can find greater wellness, and how to create a more inclusive and welcoming community together.
VI. African American Community Workplan Media Strategies for the African American Community In implementing various forms of informational and communications materials, the media prong of the Social Inclusion Campaign will utilize both culturally appropriate and technologically advanced strategies. Culturally relevant media: Remaining true to the needs of the target population in the implementation period, PEERS will produce an African American-‐specific informational brochure. The brochure will give an overview of mental health using both accessible language and imagery, as well as give
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contact information for providers already trusted by and established in the community. In addition, PEERS will produce a short film on the African American community and mental health stigma. The film will profile members of the community who have been diagnosed with and recovered from a mental health condition, and the role of family, friends and culture in their recovery process as it relates to the African American community. PEERS will seek to explore the role of race, class, and historical trauma in mental health issues and provide a way for audience members to take action to end stigma and discrimination. Further, PEERS will also promote its principles of hope and recovery and encourage those in the African American community who may be struggling with a mental health issue. In addition to producing hard copy materials targeted at the African American community, PEERS will also have a customized page on its Web site providing a quick and easy way for users to find specific and relevant information. By housing resources, articles, blog posts, and videos on African Americans and mental health in one place, PEERS is able to cater to both savvy Internet users as well as those who may just be going online for the first time. Just as with the hard copy informational materials, PEERS will ensure all online materials feature resources and messaging specific to the African American community. We will also ensure that the variety of the African American community is adequately captured, including all sectors, professions, and age groups. Radio show and podcasts: PEERS will produce and host its own shows to deal with mental health stigma within the African American community. The media team will produce both a call-‐in radio show and corresponding podcast with similar content in different formats. For those who have questions they would like answered or who do not use podcasting and are less tech savvy, the radio show will be a useful tool. Conversely, for those who don’t necessarily want to call-‐in but just want to listen or who are more tech savvy and enjoy downloading audio, the podcast will be an excellent fit. Television show: Expanding beyond radio, PEERS also produces and hosts a public access television show called “Mental Health Matters.” In the implementation year, the show will feature episodes dealing specifically with mental health and the corresponding stigma in the African American community. The video will also be posted in its entirety on Blip.Tv as well as in digestable, sharable clips on YouTube and the PEERSnet video section, where users can share ratings and comments. PSAs: In addition to creating original news content, PEERS will pursue relevant radio, print, and broadcast media outlets to air public service announcements on mental health. Radio will be especially emphasized, as it is a media outlet widely utilized and recognized by the African American community (see Appendix). Print news will feature drop-‐in PSA articles profiling a prominent community member with mental health issues and dispelling mental
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health myths from facts. Local television outlets will air PEERS-‐produced PSAs (see Appendix). TAY: (Across The Lifespan) When engaging in outreach with any population, it is important to customize messaging to specific age groups; therefore, this understandably holds true for the African American community. Research has shown that the majority of TAY individuals actively use social media to communicate with one another. To facilitate the discussion of mental health via Web 2.0 means, PEERS will heavily publicize the Facebook pledge to TAY users and engage them as much as possible to share what they will do to end mental health stigma with their online friends. Additionally, PEERS has and will further build out a TAY-‐specific website containing a discussion board and other features that allow TAY to communicate with one another at http://peers.lifeportal.com. Empowerment Strategies for the African American Community Skills Building and Support Groups: Empowerment can come in many forms, and it is the goal of the Social Inclusion Campaign to foster and promote as many as possible within the African American community. Groups offered will include Wellness Recovery Action Planning (WRAP), Trauma-informed mindfulness practice for wellness, Intentional peer support trainings and certifications for consumers of mental health services in the African American community (by Shery Mead), and Re-form-a-tion Mask Groups. To start, PEERS will provide age-appropriate ongoing WRAP groups across the lifespan, including sites that focus on supporting TAY and older adults. Groups will be focused in a traditionally African American community and at trusted and accessible locations, such as churches and community centers. PEERS will also outreach to consumers of mental health services who are African American and provide training opportunities for the growth and certification of new WRAP facilitators from within the community. Trauma-informed mindfulness practice groups will focus on helping consumers of mental health services develop and maintain a personal mindfulness practice to deal with stress and sustain wellness and recovery. The mindfulness practice groups will be led by consumers of mental health services who have been trained by PEERS and our partners at University of California San Diego Mindfulness Institute in trauma-informed mindfulness techniques and have developed/maintain their own mindfulness practice. In partnership with UCSD, these mindfulness groups will be part of a year-long study in which we will examine the effectiveness of mindfulness as a tool for healing from trauma and wellness and recovery in the African American community. Finally, we will partner with a grantee of the Alameda County Behavioral Health Care Services Innovations Grant Program by offering “Re-form-a-tion: Moving beyond stigma” groups. This workshop focuses on providing participants with the tools to recognize society’s stigmatized perception of them and their own internal perception of themselves. Using multiple flat masks, combined with visuals from magazines, drawings, writings, and other artistic tools, mask-makers
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can express how they feel they are seen by others and how they see themselves, helping them to create a dialogue about who they truly want to be. Arts: Over time, many consumers have expressed the importance of participation in the arts to their empowerment and recovery. To that end, PEERS will sponsor art, photography, poetry, and craft shows in the African American community. Such shows will happen twice per year, with dates to be determined. Following scheduling confirmation, PEERS will prepare outreach materials including palm cards, posters, and electronic invitations promoting gallery openings and opportunities to meet the artists. Additionally, PEERS will host artist discussion evenings the week after a gallery opening. Potential gallery locations and contributors include housing sites, the Oakland Museum, Inferno Gallery, PEERS Walk-A-Thon, Berkeley Market at Adeline BART station, Berkeley Rep Theatre, Black Repertory Theatre, coffee shops, restaurants, public libraries, and Souletys in Jack London Square. Another piece of the art-for-empowerment concept will focus on the use of film. In the implementation year, PEERS will host an annual film contest exploring mental health in the African American community and ways people in the community are putting an end to stigma. To go along with the film contest, PEERS will promote one film workshop (with the potential to be an ongoing series) engaging those with an interest in writing and producing shorts, filming, and editing clips. Potential topics and subjects for workshop projects include presentations by Lift Every Voice and Speak. The workshop will also teach participants how to submit their works to area film festivals. Potential partnerships include the San Francisco Community College Department of Film, Youth Uprising, Berkeley Digital Film Institute, and Academy of Art University. Finally, PEERS will hold one special film screening at the Grand Lake Theatre, providing an opportunity for shorts created in the workshop to be shown to a broad and diverse audience. Poetry open-mic nights will be prominent in the implementation year. Held once a month in a variety of locations within the African American community, the open-mic nights will supplement and be promoted along with outside, pre-existing open-mic nights. By confirming our mic nights do not conflict with others and promoting those talent nights that are not held by PEERS, we hope to create a collective voice and form valuable partnerships. In cooperation with the Outreach Component of our campaign, members of Lift Every Voice and Speak as well as Black Men Speak will participate in outside events such as poetry slams in the community to bring the message of mental health and recovery as well as the issue of stigma and discrimination to a wider audience. Potential locations for PEERS sponsored events include a coffee house on a Saturday evening, community event center with our own coffee and baked goods, a faith-based community, or a housing site that is convenient to the African American community. Any chosen location must be easily accessible by public transit. In order to gain as many friends and allies as possible, the poetry performances will be videotaped and distributed on the PEERS Web site as well as shared with partners in the community. Outreach Strategies for the African American Community:
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Outreach and Education Via Natural Communities Prompted by the clear feedback received at the African American Town Hall meeting and recommendations of other focused group meetings, PEERS will produce culturally-specific contact opportunities/speakers’ bureaus as well as educational curriculum and materials (ex: Lift Every Voice and Speak, Black Men Speak, information on creating welcoming spiritual communities, and an African American community brochure). As requested in the Town Hall meeting, these materials will explore specific issues that face people with mental health issues within the African American community, the language that feeds external and internal stigma, as well as information about mental health wellness and recovery and culturally-responsive resources in the community. These contact opportunities/speakers’ bureau engagements, and educational materials will be offered in partnership with organizations already working within the African American community and via natural community hubs such as: book stores, restaurants, black-owned businesses, spiritual communities, older adult facilities and organizations, youth organizations, family support organizations, and laundry mats or barber shop/hair salons. By leveraging a wide variety of natural communities, we seek to share the much needed information and contact opportunities to a diverse audience of all ages. Establishing Stigma-Free Zones and Business Certifications As stated previously, one of our key goals is to move people beyond the theoretical and into action against stigma and discrimination. In addition to creating opportunities for individuals to make a public declaration of their stand against stigma and discrimination (see media section for more details on the Facebook pledge application), we plan to create opportunities for businesses within the African American community to become “certified stigma-free zones.” Business owners wishing to participate in this program will attend a workshop where they have contact with people with lived experience of mental health issues (via Lift Every Voice and Speak and Black Men Speak), learn basic skills for responding appropriately to people who may be experiencing distress, as well as learn some basic talking points about mental health issues for sharing appropriately with others. Finally, participants will be asked to take the “Stigma Stops with Me” pledge and take a pre- and post-test to evaluate the impact the workshop has had on their attitudes about people with mental health issues. Once the participant has completed the workshop, he/she receives signage for their establishment indicating their space as a “Stigma Free Zone,” along with resources and materials for display. As an incentive to participate, certified businesses will receive free advertising in a PEERS published “Stigma Free” business guide, and will have their logos and contact information displayed on materials distributed at events sponsored by PEERS throughout the year. Special emphasis will be given to recruiting owners of hair salons / barber shops located in traditionally African American neighborhoods. As a place of natural gathering where customers often spend a significant amount of time socializing with proprietors while receiving services, these businesses afford a unique opportunity to spread messages and information about mental health issues, recovery, and fight stigma and discrimination within the community by a trusted
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source. After participating in the certification workshop, owners of salons and barber shops would be provided with follow-up to provide support and evaluate whether the training influenced discussions about mental health and wellness in their businesses (see evaluation and research). Education and eCPR (Outreach) Education for community leaders and family members is also an important component in the empowerment of the African American community and our efforts to eliminate stigma and discrimination. In addition to other educational opportunities (such as the Lift Every Voice and Speak speakers’ bureau, printed materials and online resources, cable access shows, etc.) we will utilize eCPR in our educational efforts. Deemed "emotional CPR," eCPR is an educational program designed to teach people to assist others through an emotional crisis. For more information on eCPR, please visit: http://www.emotional-cpr.org. Four eCPR trainings will be offered at various trusted locations within the community, including spiritual centers, business centers, recreational centers, and family/education centers. Dates, locations, and facilitators will be announced when scheduling is confirmed. Community projects: Community projects will also be launched in the implementation year within the African American community, and such projects will serve multiple purposes. First, by having mental health consumers and non-consumers working alongside each other, stigma and discrimination will be eliminated. PEERS’ partner and nationally known stigma researcher Dr. Patrick Corrigan maintains that such interactions and teamwork – deemed the “contact method” – are the most effective way to break stereotypes and prejudicial attitudes. Second, community projects will produce a tangible way of improving neighborhoods, and serve as a visual reminder of the accomplishments and positive qualities of those with mental health issues. Lastly, community projects are a method of empowerment, as consumers can work on and ultimately experience a finished product making a positive impact in the community. Ideally, the project would be sponsored by a known and trusted community entity, such as a business or church. Ideas include a community garden, labyrinth, tree and bench, fountain, or mural. VII. Housing Sector Workplan Media Strategies for the Housing Sector Relevant informational materials: Just as PEERS will produce an informational brochure specific to the African American community, so too will we produce a brochure specific to the housing power group. At the town hall meeting in the spring of 2011, housing owners, developers, and landlords expressed that while they know how to provide accessible housing to those with physical disabilities, they were less clear on how to accommodate those with mental health challenges. By clearly explaining how power holders can make housing fair and supportive to those with mental health challenges – as well as explaining the importance of mental health and how to help a tenant in who is experiencing difficulties with mental health issues – we hope to reduce stigma and discrimination in the housing sector.
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Positive reinforcement and educational video: In order to introduce the Social Inclusion Campaign and the issue of mental health to housing power holders, PEERS will produce a short film on housing and stigma. The film will provide a general overview as to the link between housing and mental health. The video will also profile current power holders that are already providing fair and affordable housing and welcoming spaces to tenants with mental health challenges. By profiling those who are getting it right, not only is PEERS adhering to its strengths-‐based approach, but we are also providing tangible examples for other housing leaders to follow. Relevant media: Like the African American group, the housing sector will also get a specific website page on the PEERS Web site. This space will host resources, videos, brochures, and informational materials available to landlords, housing owners, and property developers in one simple, easy-‐to-‐find space. In addition, consumers will also be able to find housing resources to suit their specific needs. As with all parts of our campaign messaging, wording and language will be tailored to the housing power group. Radio show and podcasts: PEERS will produce and host its own shows regarding housing issues around consumers of mental health services and stigma. The media team will produce both a call-‐in radio show and corresponding podcast with similar content in different formats. The radio show will be aired in a consistent time slot (TBD), while the podcast will be available for download, free of charge, on the PEERS Web site. Television show: In “Mental Health Matters,” the PEERS-‐produced and hosted television show, PEERS has produced and posted online two full shows on housing. One features Mary Hogden, a consumer and mental health activist, and profiles her experience with the housing system and follows her journey from being on the streets to living in and funding her own apartment. The other episode features housing experts Robert Ratner, Director of Housing Services for Alameda County Behavioral Health Care Services, and Elaine deColigny, Executive Director of EveryOne Home. The latter episode features take-‐away points consumers should keep in mind while looking for housing as well as elaborating on housing as a mental health care issue. The episodes have been posted in their entirety on Blip.Tv as well as in shorter clips on YouTube and the PEERSnet video section, where users can share ratings and comments. Selected clips from these shows will be integrated into the housing web page for viewing by the power group holders, and will be integrated into presentations with relevant housing audiences. PSAs: In addition to creating original news content, PEERS will pursue relevant radio, print, and broadcast media outlets to air public service announcements on mental health and housing. Drop-‐in articles and news coverage will be strategically placed in targeted newspaper and local television outlets (see Appendix). Empowerment Strategies for the Housing Sector
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Empowerment Skill Building and Support Groups In our partnership with the housing sector, PEERS will host ongoing groups focusing on empowerment skills development in at least two housing sites or homeless shelters. Groups offered will include Wellness Recovery Action Planning (WRAP) and Mindfulness Practice for wellness. PEERS has already selected the Ridge as one location for a WRAP group, and will consult with Alameda County Behavioral Health Care Services Housing Director Robert Ratner for a second appropriate site. In these locations, WRAP groups and Mindfulness Practice groups will focus on helping consumers of mental health services maintain wellness with emphasis on tools and skills useful for dealing with issues related to housing (ex: roommate relationships, etc). Education: PEERS will provide both consumers and housing power holders with valuable educational opportunities about the link between mental health and housing. The priority in consumer education focuses on educating consumers about their rights as tenants. In collaboration with other non-profit housing partners, PEERS will sponsor a Tenants’ Rights educational session at a POCC monthly training luncheon. That luncheon will feature a panel of experts, QA sessions, and participants will walk away with a fulfillment handout that can utilized and consulted in the future. The session will be videotaped and posted on the PEERS Web site as a resource for those unable to attend. PEERS will also offer training in the Seeking Safety curriculum for providers and peer support specialists with the goal of establishing at least two new Seeking Safety groups in our community of focus during the implementation year. Begun in 1992, Seeking Safety was developed through grant funding from the National Institute on Drug Abuse by Lisa M. Najavits, PhD at Harvard Medical School/McLean Hospital. Seeking Safety is a present-focused therapy to help people attain safety from trauma/PTSD and substance abuse. It may be conducted in group or individual format and is suitable for implementation in a variety of settings. It is of special interest to PEERS during our implementation year as it has also been used successfully with people who have a trauma history but do not meet criteria for PTSD. Outreach Strategies for the Housing Sectors Community projects: Just as in the African American community, collaborative community projects will also be implemented at housing sites. Two such projects will be completed in 2011-2012: one in the Oakland/Berkeley area and another in Hayward/Fremont area. Potential community project ideas include gardens, labyrinths, trees and benches, community fountains, and public art projects such as murals. The rationale behind the Housing Community project is twofold: first to provide a significant contact opportunity, allowing members of the community, landlords, residents, and people with lived experience of mental health issues to meet as equals and work collaboratively for a period of time. Secondly, all too often consumers of mental health services are only viewed as recipients of assistance and services and are not perceived as a population that “adds value” or contributes to a community. This view is sadly often integrated into the
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consumer of mental health services perception of themselves as recipients of services or charitable actions, rather than one who has value and talents with which to help their community. The community projects offer an exceptional opportunity to change that perception, allowing consumers of mental health services to give back to their communities and be perceived as a valuable member of, rather than a drain on, society. Education for Power Holders: One of the primary messages heard during our Town Hall meeting with housing power holders was a request for concrete skills training for landlords and property managers to help them better respond when residents experience times of crisis. In response, PEERS proposes holding housing site trainings in eCPR, providing landlords and property managers with tools to recognize and respond appropriately to someone experiencing signs of emotional distress. We will offer three eCPR trainings to housing power authorities over the course of the implementation year with attendees welcome to bring colleagues, friends, or whoever else they feel would be appropriate to attend (managers, maintenance, office staff, etc.). In addition to eCPR and other skill building educational outreach for power holders, PEERS will create meaningful contact opportunities between power holders in the housing sector and consumers of mental health services. This will be accomplished by holding a series of speakers bureau events and having individuals speak at housing events and public hearings on housing projects. Additionally, PEERS will promote the inclusion of consumer representatives (including our Outreach Coordinator) on existing housing boards and housing groups including EBHO, EveryOne Home board, and other landlord’s associations and property management group meetings. VIII. General Population Workplan: Although the main thrust of our campaign programs are focused on reducing stigma in the African American community and the Housing power group, the campaign will also address stigma and discrimination within the larger general population of Alameda County. Media: One means of having significant impact on the attitudes of the general population is through the media. The messages we are exposed to in the media are important in influencing our ideas and feelings about people. Unfortunately, inaccurate portrayals of people with mental health issues are all too common in news, television, radio, Internet, and film depictions. Our proposed Media Watch Program would leverage the power of the community in identifying, responding to and thereby shaping these messages. PEERS has further partnered with the Entertainment Industries Council in Los Angeles, the recipient of statewide Stigma and Discrimination Reduction CalMHSA funding to change media messages in cooperation with Hollywood studios, to expand the reach and power of our Media Watch Program. Community members wishing to affect social change are trained to track and analyze the ways in which individuals with mental health challenges are portrayed in various types of media. Volunteers are encouraged to track a form of media they already actively utilize, choosing from
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any of the six media types tracked by the program, including newspapers, magazines, television, radio, movies, and the Internet. Unlike traditional media watch campaigns, volunteers are encouraged to seek out positive, balanced depictions of people with mental health issues in addition to identifying those that are stigmatizing. The program emphasizes using the power of positive reinforcement to create more positive and accurate depictions of people with mental health issues in the media. Once a media watch sample is identified and screened by the PEERS staff, an Action Alert is created and posted on our website and social media outlets such as Facebook and Twitter. Members of the community are invited to take action by clicking on the Action Alert which then enables the user to send a pre-written email to the media outlet in question, praising them for their balanced depiction, or helping to raise their awareness in cases of negative depictions. Additionally, “Reverse Boycotts” can be organized utilizing social media, encouraging members of the community to attend movies that portray people with mental health issues in a positive manner, visit and share websites with accurate information, and otherwise support and patronize outlets who are working hard to change the way people with mental health issues are depicted in the media. When stigmatizing or discriminatory messages are identified, the focus of the Media Watch program’s efforts center around educating the creator of the message, utilizing the well-documented “contact method” wherein the individual has direct contact and interaction with individuals with mental health issues that do not fit stereotypical and inaccurate portrayals. While we agree that traditional protest has a place and some potential for positive impact, the long-term potential for change is uncertain and there is the possibility of backlash. By focusing the thrust of our efforts on education and positive reinforcement, encouraging media outlets that are already doing good work in their coverage of people with mental health issues, we hope to avoid the potential backlash possible with traditional protest models and instead promote duplication and inspire other media outlets to follow the example of those who are 'getting it right.' The community is actively involved in all parts of the effort: identifying media portrayals that deserve praise or further education, informing others about issues of stigma in the media via social media sharing, and in actively engaging the media creators in dialogue about their work. Outreach: PEERS will host community events that create opportunities for contact between the larger community and consumers of mental health services throughout the year. The first of these will serve to launch our campaign into the general community’s awareness during Mental Health Awareness week during the first week of October. Held at Cesar Chavez Park in Berkeley on October 1st, The Mental Health and Wellness Walk will feature political figures from the local and state level (tentatively scheduled: Mayor Jean Quan), leading mental health and wellness officials from Alameda County, leaders from within the consumer movement, entertainers, and consumer speakers. Instead of raising funds as in a traditional walk-a-thon, participants will strive to raise “pledges” (getting as many people as possible to take the “Stigma Stops with Me”
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pledge online). The event will also feature an art exhibit by people with lived experience of mental health issues, a create your own art station, family activities, resource and information tables about mental health resources as well as ample opportunities for people from the community to meet and socialize with people who publically identify as a consumer of mental health services. Empowerment: Although special emphasis will be placed on offering culturally responsive empowerment activities and trainings to members of the African American community in the implementation year, PEERS will continue its ongoing efforts to support the empowerment of all consumers of mental health services. In addition to our well-known WRAP groups and WRAP certification trainings for consumers, and the new empowerment through creative arts meetings, PEERS will host a training in the use of humor and comedy in telling one’s story and combating stigma called: Stand Up for Mental Health. Created by David Granrier, a person who lives with depression, Stand Up for Mental Health is a course that teaches consumers of mental health services about the use of humor in combating stigma and discrimination and provides a hands-on workshop in which consumers are taught how to tell their story through comedy. “We use comedy to give consumers a powerful voice and help reduce the stigma and discrimination around mental illness,” says Granirer. “The idea is that laughing at our setbacks raises us above them. It makes people go from despair to hope, and hope is crucial to anyone struggling with adversity. Studies prove that hopeful people are more resilient and also tend to live longer, healthier lives.” More information on the program can be found at: http://www.standupformentalhealth.com/. IX. Campaign Strategies and Deliverables Media Strategies and Deliverables
African American Community
Housing Power Holders General Population
Short introductory film, under 10 minutes, about mental health issues in the African American community
Short introductory film, under 10 minutes, about the issues surrounding mental health and housing
Short introductory film, under 10 minutes, about PEERS and the campaign
Customized webpage for with resources, articles, blog posts, and videos specific to the African American community
Customized webpage with resources, articles, blog posts, and videos specific to the Housing community
Webpage with resources, articles, blog posts, and videos for the general population
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Produce 1 episode of Mental Health Matters, aired via cable and internet, about mental health issues in the African American community
Produce 1 episode of Mental Health Matters, aired via cable and internet, about mental health and the Housing community
Produce 20 episodes of Mental Health Matters, aired via cable and internet
Produce 2 call-‐in radio shows and downloadable podcasts regarding mental health issues in the African American community
Produce 2 call-‐in radio shows and downloadable podcasts regarding mental health and housing
Expand upon existing TAY-‐specific website: http://peers.lifeportal.com
Produce informational brochure specific to the African American community
Produce informational brochure specific to the Housing community
Produce informational brochure regarding PEERS, the campaign, stigma, and discrimination
Pursue media outlets widely recognized by the African American community, including radio, print, and broadcast media, regarding the issues of mental health, stigma, and discrimination in the African American community
Pursue drop-‐in news articles and news coverage regarding the issues of mental health, stigma, and discrimination to raise awareness of issues to power holders
Pursue media outlets, including radio, print, and broadcast media, regarding issues of mental health, stigma, and discrimination
Launch and research the effectiveness of the Facebook pledge application to end stigma and discrimination
Advertise on mass transit, including the interior of BART trains and the exterior of AC Transit buses for the Mental Health and Wellness Walk and the Stigma Stops with Me pledge
Media Watch program Empowerment Strategies and Deliverables
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African American
Community Housing Community General Population
Offer 2 WRAP groups in a traditionally African American community
Offer 2 ongoing support groups in housing sites and/or shelters
Offer WRAP groups throughout the county, appropriate to groups across the lifespan, including TAY and older adults
Host 1 “Re-‐form—a-‐tion: Moving beyond stigma” workshop series in a traditionally African American community
Host Tenants’ Rights workshop in partnership with the POCC
Host 1 “Re-‐form-‐a-‐tion: Moving beyond stigma” workshop series for the general population
Provide trauma informed mindfulness practice groups in a traditionally African American community site
Provide 2 trainings in Seeking Safety curriculum for providers and peer support specialists
Provide mindfulness training to consumers to become mindfulness practice group leaders
Sponsor 5 art workshops and shows, including visual art and spoken word in a traditionally African American community
Sponsor 5 art workshops and shows, including visual art and spoken word
Stand Up for Mental Health workshop in telling your story through comedy
Outreach Strategies and Deliverables
African American Community
Housing Community General Population
Host 2 Stigma Free Zone certification workshops for businesses in the African American community, with a goal of 10 businesses achieving certification
Host 2 eCPR trainings for housing power holders
Host 1 comedy night in a public space after Stand Up for Mental Health workshop
Present Black Men Speak at 5 public speaking events
Facilitate 1 community garden at a housing site
Present the Speakers’ Bureau at 5 public speaking events
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Facilitate 1 public art project in a traditionally African American community
Host Mental Health and Wellness Walk on October 1 as a kick-‐off event to Mental Health Awareness Week in Northern Alameda County
Host a community event for Mental Health Awareness month in May in Southern Alameda County
Spirituality Strategies and Deliverables
African American Community
Housing Power Holders General Population
Create lists of faith-‐based communities in traditionally African American communities
Host National Mental Health Day of Prayer event on October 3
Present 2 workshops on creating more welcoming faith based communities at faith-‐based organization in traditionally African American community
Host Yoga and Meditation training
Present 1 Mental Health 101 workshop at faith-‐based organization
X. Evaluation and Research In the implementation year of the Social Inclusion Campaign, PEERS will conduct both evaluations and research to measure the effectiveness of campaign strategies. Evaluation refers to the assessment of events occurring throughout the implementation period. Rather than evaluating the program upon its conclusion, our evaluation strategy will provide staff with “real-time” feedback, allowing them to make adjustments to the plan as needed during the implementation process. Without evaluation, PEERS would not learn about the effectiveness of certain methods until the implementation period, thus missing important and valuable opportunities to make corrections or modifications in a timely and efficient manner. Because the implementation of campaign strategies is an iterative process, evaluation holds great
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importance. Evaluation will be conducted at the conclusion of individual events -- such as Speakers Bureau presentations, trainings, community events, or educational sessions – and will examine the responses and attitudes of the event’s attendees. Areas covered in the evaluation will include perceived quality of the event, effectiveness, educational/attitudinal impact, and recommendations from the audience in how to improve our efforts. While the plan is an educated hypothesis born from extensive research, other campaigns, and feedback from stakeholders, we do not expect perfection; rather, we anticipate something of high enough quality to implement, but also from which to learn. Our approach is one of curiosity and humility, and as such, requires that we implement, evaluate, adjust, re-evaluate, and share key take-away points as they arise. Research refers to the collection and analysis of data over the two-year implementation period, at which point any significant trends, behaviors, or changes will be discovered. Although preliminary data from research efforts can be used in modifying and adapting our programs, final research analysis will not complete until two-year implementation period has concluded. By utilizing research methodology, we will learn about the broader question of attitudinal shifts over time. Defining penetration and impact In the evaluation and research processes, we will measure both penetration and impact. Penetration refers to how visible and pervasive the campaign message is to the general public, as well as how often people are interacting with campaign efforts. This is often measured through statistics around Web site hits, social media activity, and registration for various events. Impact refers to the degree to which campaign efforts have affected attitudinal change regarding people with mental health issues. In analyzing evaluation impact, PEERS will administer short surveys; in analyzing research impact, PEERS will utilize Dr. Patrick Corrigan’s measure of attitudinal change as a pre- and post-test. Evaluation strategies In evaluating penetration, we will monitor data on a monthly basis in the following areas:
Web hits. Facebook likes. Number of pledges taken in the "Stigma Stops with Me" intiative. Number of video views on PEERS YouTube page and PEERS Web site videos. Readership stats for date when PSA article appears in paper, based on print circulation for the date the article is published Viewership stats for date when PSA featured on television or Radio channels. Podcast downloads of PEERS radio shows and podcasts.
Sign-in sheets for WRAP groups, training sessions, speakers bureau performances, outreach activities and attendance at events. In evaluating impact, we will implement qualitative evaluations to measure attitudinal shifts, analyzing:
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• Training evaluations • Speakers Bureau evaluations • Discussion Board comments about pledge activity • Event surveys Quarterly web-based surveys to YouTube subscribers, listservs, newsletter
recipients, and Facebook page subscribers to evaluate effectiveness of messages and events
Research strategies PEERS, along with the help of Dr. Patrick Corrigan and his research team, will measure changes in attitude over time in the general community via the Facebook Pledge Research Project Plan. The “Stigma Stops with Me” Facebook application, which allows users to make an online pledge describing how they will end stigma and discrimination, will be used in determining how online users’ views towards people with mental health challenges change over the course of months. After a user takes the online pledge, PEERS will send them an invitation to complete a survey on their attitudes towards mental health consumers. Then, to measure change, we will send that same user another email three months later. We plan to start the process on July 1, 2011, have research completed by January 1, 2012 and analysis completed by June 1, 2012. PEERS also plans on conducting research on changes in attitudes in our focus populations for the implementation year, namely the African American community and housing sector. In the Barbershop/Salon Research Project Plan, PEERS plans on providing incentives to beauty parlors and hair cutting businesses that become “safe spaces” in which individuals can talk about mental health issues. Business owners/managers attend a workshop and are given information about the myths and facts of mental health issues, basic listening skills practice, as well as information on local resources for recovery and support. Incentives for those who complete the training include business certifications, awards, and free advertising and publicity in PEERS publications both in print and on-line. As a follow up study with a research associate, PEERS plans on tracking how often the topic of mental health arises in “safe spaces” and the quality of information conveyed compared to those areas with no such designation. With regards to the power holders in the housing sector, PEERS will measure impact through qualitative surveys and evaluations posing questions about attitudes. Our initial effort will be focused on Speakers Bureau presentations to housing owners and landlords, and reviewing the attendees’ self-described reactions in written form. Summary of strategies Evaluation Research Penetration PEERS will keep real-time
statistics on various measures, including Internet activity, media viewership, and event sign-ins.
PEERS will total statistics on various measures, including Internet activity, media viewership, and event sign-ins after one year.
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Impact Surveys and evaluations will be conducted to learn of attitude changes in response to PEERS-sponsored events.
PEERS will utilize Dr. Patrick Corrigan’s measure of attitudinal change as a pre- and post-test.
Reporting PEERS will present the findings and results of the campaign’s implementation in various ways. As part of the ongoing effort to establish real-time results and provide real-time feedback, PEERS will report penetration measures in a monthly oversight report. In addition to providing hard data, PEERS will also summarize and graph evaluation responses in the oversight report to depict any trends in a visual manner. PEERS will also be analyzing attendance and evaluation after each event and strategize necessary adjustments to the campaign. We will be doing this to increase campaign reach and effectiveness prior to implementing the next instance of event (ex: Speakers Bureau session). At the end of the first implementation year, PEERS will compile all statistics, evaluations, research projects, and learning outcomes in an annual report. At that time, the research projects will also be submitted for publication. APPENDICES Appendix A Our Thanks to the People Who Made This Work Happen Advisory Board Joe Anderson Sarah Ashbrook boona cheema Christina Cross Tim Dreby Derethia DuVal Karina Foote Renu Garg-Peter Linz Jonathan Griggs Ernest Hardmon III Sheldon Koiles Abobaker Mojadidi Cheyenne Pronga Dianne Rush Woods Melany Spielman Dina Tyler Sally Zinman
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Oversight Committee Judith Ghidinelli Tracy Hazelton Mary Hodgen Jay Mahler Barbara Majak Lupe Mariscal Genevieve Tregor Rosa Warder Gary Spicer Khatera Aslami Lisa Smusz PEERS Board of Directors Luther Jessie Board President Jonathan Griggs Treasurer Paulette Malak Secretary Quintara Nielson Board Member Marti Winterhalter Board Member Melany Spielman Board Member Staff and Key Contractors participating in the planning year Staff: Khatera Aslami Christal Byrd Jenee Darden Lala Doost Letty Elenes Shannon Eliot Mary Hogden
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Latasha Howel Nancy Lee Enrique Lopez Tracy Love Kristin Magruder Daniel Oden Lauri Pamisciano Lisa Smusz Natalie Stone Brianna Williams John Woodruff Contractors: Yaffa Alter Monique Tarver Sally Zinman Consultants: Kathleen Brown Pat Corrigan Chi Chi Okonmah Laurel Mildred Laura Peck Karen Perkins Colette Winlock Appendix B
Original Research: Stigma and Discrimination Reduction Survey, Ties that Bind: Challenging Stigma and Discrimination Conference, October 2007
The POCC Stigma and Discrimination Workgroup was led by Sally Zinman at the “Breaking The Ties That Bind: Challenging Stigma and Discrimination” conference in October 2007. The survey participants included consumers, family members and providers as follows:
Participants in 2007 Stigma and Discrimination Survey
Ethnicity Consumers Family Members Providers Caucasian 31% 41% 47% African American 36% 45% 22% Asian 9% 0 15% Latino 16% 9% 12% American Indian 3% 0 0 Multi-ethnic 3% 5% 3%
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Non-Caucasian respondents comprised the majority in two of the three categories; providers who responded to the Survey were less representative of diversity than consumers and family members and were the only group for which Caucasians were the largest single ethnicity.
Three key questions were asked of respondents and their answers collated:
Question 1: What groups stigmatize and discriminate against people with mental disabilities?
All three groups ranked “the criminal justice system” and “community members and society” as the first and second groups of people that most exhibit stigma and discrimination.
Consumers and family members identified “the criminal justice system” as the most discriminating in significant numbers, while providers identified “community members and society” almost as much as “the criminal justice system” as the most discriminating.
Providers ranked “the mental health system” as more discriminating than consumers and family members did.
Consumers alone ranked “family members” among the most discriminating groups. Family members ranked “employers and landlords” as more discriminating than consumers and providers did. This, along with family members ranking of “the mental health system” within the top five, provides an insight into the barriers of family members’ experience in assisting their loved ones in accessing jobs, housing and the mental health system.
Question 2: What kind of attitudes did the group who discriminated or stigmatized exhibit?
0 20 40 60 80 100 120
Criminal Justice System
Community Members and society
Media
Family Members
Mental Health System administration,
Employers
Landlords/housing personnel
Provider Response
Family Member Response
Consumer Response
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All three groups ranked “judgmental” as the most prevalent attitude exhibited by groups that stigmatize and discriminate. “Disrespect” and “Fear” also ranked among the top five most prevalent discriminating attitudes by all three groups. Both consumers and family members ranked the same five attitudes, although in different order. Providers ranked “Abuse” as the lowest of any attitude, while consumers and family members ranked it among the top three discriminating attitudes.
Question 3: What kind of Social Inclusion or Stigma and Discrimination Reduction program would you like to see Alameda County fund?
0 20 40 60 80 100
Judgmental
Abuse
Disrespect
Controlling
Fear
Ridicule
Shunning
Provider Response
Family Members Response
Consumer Response
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All groups – consumers, family members and providers — ranked “a multi-faceted consumer operated program targeting employers, housing, schools, criminal justice/police, media, faith based agencies and health care professionals,” “enhance personal skills, abilities and self-esteem, such as WRAP programs, job mentorship and promoting independent living skills,” and “address external discrimination, such as legal and civil rights, discrimination in housing, employment and schools and an effective complaint system’ among their top five Stigma and Discrimination programs, although not in the same order. “A multi-faceted consumer operated program…” was the highest preference for all three groups.
Providers and family members – not consumers – ranked “target mental health and substance abuse providers and systems” as among their top five.
“Clarifying the stigma and discrimination message” was important to consumers only, possibly suggesting that consumers want to determine the anti-stigma and discrimination message as well as their dissatisfaction with prevailing anti-stigma and discrimination messages.
0 20 40 60 80 100 120 140
Multi-‐faceted consumer operated program targeting employers, housing, schools, criminal justice/police, media,
Enhance personal skills, abilities, and self esteem, such
as WRAP programs, job mentorship, and promoting
Address external discrimination, such as legal and civil rights, discrimination in housing, employment, and
Clarify the consumer anti-‐discrimination and stigma
message
Focus on and inclusion of multi-‐cultural populations and
perspectives
Media campaign, including TV and radio initiatives
Target mental health and substance abuse providers and
systems
Provider Response
Family Member Response
Consumer Response
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Appendix C
Homelessness and Housing Instability in Alameda County
Another population of interest to Alameda County as a priority is the homeless. Available 2004 county data30 reveals that:
• As many as 16,000 people experience homelessness during the course of a year and 6,215 people are homeless on any given night (NOTE: this data precludes the 2008 onset of recession)
• 58% of homeless adults have one or more disabilities, including mental illness, HIV/AIDS and other physical disabilities
• Over 30,000 people with mental illness have extremely low incomes and are at risk of homelessness in Alameda County
• Nearly 1,000 people with mental illness are homeless on any given night, and over 30% of those are dually diagnosed with substance abuse addiction
• Approximately 34,000 (6%) of Alameda County’s 523,000 households are at severe risk of homelessness because they are extremely low-income renters paying more than 50% of their income on housing.
Appendix D
Original Research: African American and Housing Town Hall Meeting Surveys, Spring 2011
In planning for the Social Inclusion Campaign, PEERS conducted two Town Hall meetings where community members, including consumers and family members, were surveyed. The first Town Hall focused on the African American community and their views about sources of support, key sources of messages about mental health issues, their feelings with respect to those messages, obstacles to getting the help they need and concerns about mental health issues. The African American Survey questionnaire that was completed at the Town Hall meeting was developed by the African American members of the PEERS Advisory Board in collaboration with Gigi Crowder, BHCS Ethnic Services Manager and Project Manager of the African American Utilization Report.
30 Everyone Home. (2004). Fact Sheet: Homelessness and Housing Instability in Alameda County. Alameda Housing and Community Development
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African American Community Town Hall Meeting Report
As a result of the completed questionnaires from the African American Town Hall Meeting, consumers and family members reported that community support groups, schools, mental health providers, spiritual groups including churches, friends and family are the greatest sources of support when dealing with mental health issues. Several Town Hall Meeting attendees mentioned NAMI East Bay and African American Family Support Group as community supports that are especially helpful. Another attendee finds support in other community groups, “BEST NOW helped me get involved in mental health service; POCC helps me to know the importance of leadership in mental illness field.”
0 2 4 6 8 10 12 14 16
Community Support Groups
Mental Health Providers
Friends
Spiritual Community / Church
Family
Schools
# of Attendees Finding Support
Support
Support
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The vast majority of the attendees stated that the media is the largest source of the negative messages/myths received about mental health relating to African American/ Black people, followed by family, school and church.
0 2 4 6 8 10
Media
Family
School
Church
Community
Friends
# of Attendees Hearing Message from Location
Where Message Heard
Hearing Messages
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When asked how the messages about mental health issues made them feel, the attendees overwhelmingly stated that the messages made them feel stigmatized, categorized, and discriminated against, followed second by negatively affected. The attendees feel that the main messages/myth being delivered are that “people with mental health issues are dangerous and violent” and are “criminals.” Another common message/myth is that “all you have to do to help yourself with mental health issues is pray.” Other attendees stated that the message that mental health is a weakness and should not be acknowledged is pervasive in the community.
0 5 10 15 20 25 30 35 40
Well Supported
Understood and Truthfully Represented
Neutral
Negatively
Stigmatized, Categorized, and Discriminated Against
# of Attendees Feeling
The Feeling
How Messages Make You Feel
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Culturally incompetent practitioners, general lack of and lack in quality of resources, and the fear of stigma and stereotyping are the main obstacles faced as an African American / Black person when trying to get needs met during a mental health emergency. As reported by one attendee, “There are a shortage of black therapists so if you request one, there may be a delay in getting a black counselor which means a delay in getting help.”
0 2 4 6 8 10 12 14 16 18
Lack of appropriate resources
Fear of stigma and stereotype
Medication issues
Law enforcement
# of Attendees Facing Obstacle
Obstacle
Obstacles in Getting Care
51
The need for education about wellness and recovery, services, resources, and mental health issues is a serious concern for the attendees at the Town Hall Meeting. The fee for services and working to maintain basic needs in order to maintain mental health were also areas of concern surrounding mental health issues in the African American / Black community. One attendee suggested, “Believe there’s a lot of potential for educating the Black community through its institutions, which are currently rather passive. Institutions to consider are religious institutions, schools, primary health care institutions, and hair care salons.” Another attendee saw the need in “providing more services, training police, and education [about mental health issues to the larger community].”
0 1 2 3 4 5 6 7 8
Education about resources and mental health issues
Cost of services / No fee
Maintain basic needs
# of Attendees Concerned
Concern
Concerns about Mental Health Issues
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Appendix E Housing Community Town Hall Meeting Report
Housing Community Town Hall Meeting Report
Attendees of the Housing Community Town Hall Meeting overwhelmingly agreed that the programs and partnerships currently in place are incredibly bright spots in helping people with mental health issues find and maintain housing. For example, one attendee noted that the “Berkeley Mental Health Partnership between landlords and mental health community clinics” helps those struggling with housing. Other programs, such as MHSA Supportive Housing Funds, were also mentioned as bright spots. It has also been noticed that the general care and awareness for the need of housing is positive in the community. Attendees reported that, “people are coming out to listen, talk about, work together,” and that there are “people who are about other people and their needs.”
0 5 10 15 20
Programs and Partnerships
Care and Awareness
Faith-‐Based Support
Advocacy
Consumer Choice and Involvement
Policies
# of Attendees Citing Bright Spot
Bright Spots
Bright Spots
53
In terms of the major barriers that the housing community faces, it was noted that the high cost of housing and the lack of funding, as well as the stigma attached to mental health issues, are the main barriers. Lack of awareness and education about the issue, in addition to the availability of services are other major barriers described by the attendees. One of the attendees described stigma as a barrier by noting the existence of “Personal biases against people with mental health issues and poor people in general." Another attendee reported on the barrier of funding by stating, “Funding for those with mental health issues is slow to materialize.”
0 2 4 6 8 10 12 14 16
High Costs and Lack of Funding
Stigma
Awareness and Education
Availability of Services
Lack of supports
Safety and quality of housing
# of Attendees Citing Barrier
Barriers
Barriers
54
Attendees stated that education and training about wellness and recovery in the community, having support programs to get and stay in housing, and having more affordable housing through greater funding are needed in order to remove the barriers and obstacles to finding and staying in quality housing. One attendee declared that “Educating that recovery is possible” and “Educating on housing rights and responsibilities” is essential. Another attendee noted the need for funding, education, and support by stating, “Increased funding for support and education—support can be in assisting in stabilization, intervention in evictions…and expectations that individuals with mental health issues deserve a quality residence.”
0 2 4 6 8 10 12 14
Education and Training
Housing supports
Affordable housing options and funding
Safe and Quality Housing
More effective programs and partnerships
Incentives
# of Attendees Citing Need
Need to Rem
ove Barriers
What is Needed to Remove Barriers
55
Appendix F: “Lift Every Voice and Speak” The Alameda County Social Inclusion Campaign Speakers’ Bureau, Lift Every Voice and Speak, has been meeting since early March. Using the model of “Uncover, Discover and Recover,” members of the bureau have worked on crafting stories using portions of their lives to set context, identify turning points and highlight experiences and tools of recovery and wellness. Due to the commitment to monthly ToastMasters meetings, the work of the Speakers’ Bureau, Lift Every Voice and Speak, will continue throughout the beginning of the campaign’s implementation year. This time will be used not only to continue the work of story crafting, but will also be used to highlight several alternative ways in which to share stories and to have an adequate amount of time to prepare for our presentations within the larger communities of Alameda County. Lift Every Voice and Speak Messaging:
♦ Recovery is a process ♦ Hearing personal stories, empower consumers and caregivers ♦ How family supported or didn’t ♦ How stigma and discrimination impacted your recovery process ♦ Small targeted groups ♦ Facilitated by an officer and/or Natalie
As with any difficult experience or circumstance, attaining recovery and wellness is an evolutionary process. Personal stories are powerful tools in the education and empowerment of consumers, family members and community leaders. Using an approach that targets specific audiences, consumer stories can bring to life the effects of stigma and discrimination on those with mental health challenges and change hearts, minds and behaviors.
Conclusion – call to action
♦ Take the pledge – Facebook and written ♦ Leave with resources (including African American and Housing brochures) ♦ Each one teach one
This campaign is about action. So often people speak of stigma and discrimination, but do not offer actionable next steps. Today, we as Lift Every Voice and Speak would ask you to do three things. First, please see the Stigma Stops With Me cards, and take our pledge either online or here today. Second, take any and all resources that may be helpful to you, a loved one or the
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larger community. Third, share this experience, what you have learned and what inspired you to work to end stigma and discrimination with at least one other person. Appendix G: Media Outlets Targeted NEWSPAPER Bay Area News Group Alameda Journal Alameda Journal Berkeley Voice Oakland Tribune East Bay Express Oakland Post Sunday Morning News (Black Newspaper) WEBSITE Alameda Patch Berkeley Patch Berkeleyside.com Castro Valley Patch Lake Merritt-Uptown District Lake Merritt-Uptown District Oakland Local Oakland Local Ads Pleasanton Patch San Leandro Patch RADIO STATION KBLX (R&B Jazz) KPFA (news and music) KPFA "About Health" KPFA "Hard Knock Radio" KPFA PSA KQED (news) KQED "California Report" KQED PSA TV STATION ABC 7 KPIX 5 KPIX 5 KRON KTVU KTVU
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Appendix H Advisory Board Documents
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