sheema report
TRANSCRIPT
Phumla Retreat Centre Ryenjoki Twimukie Development Association
Community Health Needs Assessment Kyangyenyi Sub-County
Sheema District, Uganda
January 2015
1
Acknowledgements
This report was funded by Phillip J. and Frances A. Attwood of Phumla Retreat Centre. The author of this report is the principal investigator of the study. Principal investigator: Lore Herzer, MPH Co-investigator: Grace Nahwera, United Nations High Commission for Refugees (UNHCR) This study was commissioned for Phumla Retreat Centre, Kampala Uganda, and Ryenjoki Twimukie Development Association, Ryenjoki Uganda. We wish to thank the following individuals who assisted with this project: Phillip J. Attwood, Frances A. Attwood, Grace Nahwera, Dr. Able Kamukama, and Kato Nixon. We also extend our sincere gratitude to all village chairpersons of Kyangyenyi sub-county and all study participants.
2
3
Table of Contents Figures & Tables _____________________________________________________ 4 Acronyms ___________________________________________________________4 Executive Summary ___________________________________________________5 Background _________________________________________________________ 6 Uganda and Sheema District ______________________________________ 6 The Ugandan Healthcare System ___________________________________7 Rationale for a Baseline Assessment ________________________________ 8 Methodology _________________________________________________________9 Study Design ___________________________________________________9 Study Location and Population _____________________________________ 9 Sampling Strategy and Sample Size _________________________________9 Study Outcomes ________________________________________________10 Data Collection _________________________________________________10 Data Analysis __________________________________________________11 Results ____________________________________________________________ 12 Overview of Present Conditions ____________________________________12 Family Level Prevalence of Common Illnesses ________________________ 22 Knowledge of Healthy Behavior ____________________________________ 24 Recommendations ____________________________________________________28 Bibliography _________________________________________________________31
4
Figures and Tables Figure 1: Map of Uganda Figure 2: Ugandan Healthcare Structure Table 1: Participant and Family Demographics Table 2: Household Physical Condition Table 3: Household Nutrition Status Table 4: Household Health Status Table 5: Village & Household Power Table 6: Household Water & Sanitation Table 7: Health Center Patient Experience Table 8: Family Level Prevalence of Reported Childhood Illnesses Table 9: Family Level Prevalence of Reported Adult Illnesses Table 10: Healthiest Foods According to Participants Table 11: Participant Disease Prevention Methods Table 12: Participant Hand Washing Behavior Acronyms FP – Family Planning HIV/AIDS – Human Immunodeficiency Virus/Acquired Immune Deficiency Syndrome MOH – Ministry of Health PHPs – Private Health Practitioners PNFPs – Private Not-For-Profits PPH – Post-partum Hemorrhage RTI – Respiratory Tract Infection VIP – Ventilated Improved Pit
5
Executive Summary The health status of Uganda’s population has improved over the past several decades according to many health indicators. Many of these improvements have been made with the decentralization of the public healthcare system, the elimination of user fees, and the increased utilization of the private sector. Although these developments have brought about many improvements, there are still many rural communities experiencing inadequate care as a result of health disparities. This research was conducted in Kyangyenyi sub-county located in Sheema district, Uganda. The purpose was to establish baseline health data for Kyangyenyi in order to understand the prevalence of the population’s major health issues, assess the population’s understanding of healthy behavior, identify health problems in need of improvement through existing and future health programs, and to serve as baseline data for future monitoring and evaluation efforts related to health programs in the sub-county. A cross-sectional study design was used which utilized a family-level survey containing both quantitative and qualitative elements. Six areas were assessed in order to obtain a comprehensive view of family health including household demographic data, household physical condition, family health and nutrition, access to power, water and sanitation, and health center patient experience. A total of 269 participants were interviewed across all six parishes in the sub-county using a multi-stage sampling procedure. The results of the survey were broken down by section. Participants identified access to water, access to power, household cleanliness & organization, and access to quality health services to be among their major concerns. Responses from the survey showed a low community standard for home cleanliness, low village availability of food, limited access to power, dissatisfaction with water cleanliness, and low monthly incomes coupled with high expenditures related to food, health costs, and school fees. With regard to knowledge of healthy behavior, the results showed a low level of knowledge related to nutrition and disease prevention, but adequate knowledge related to hand washing behavior. The prevalence of common childhood and adult illness were also assessed with the most common childhood illnesses being malaria, RTI, skin infections, and allergies and the most common adult illnesses being malaria, RTI, arthritis, stomach pain, and allergies. Based on the results of the survey, it is recommended that health education programs be emphasized within the sub-county. The role of the government village health teams in providing this service should be stressed and developed in order to provide education in the areas of nutrition, crop production, disease prevention methods, family planning, cleanliness and organization, and maternal & child health. In addition to health education, existing government health centers should assess and address issues related to timeliness, payment, and patient satisfaction, as well as private health centers addressing community needs that are accessible by the current standard of living. Future research should focus on the impact of current health services as well as assess areas in need of improvement to support the overall health of the sub-county.
6
Background Over the past two decades Uganda has worked to improve its country’s health indicators as a result of donor support and government policy changes. Although several of Uganda’s health indicators have shown recent improvement, such as infant mortality rate (76 deaths per 1000 live births in 2006 to 54 deaths per 1000 live births in 2010) and maternal mortality rate (435 deaths per 100,000 live births in 2006 to 328 deaths per 100,000 live births in 2010)1, many health indicators continue to remain stagnant or have increased. Uganda is currently experiencing wide health disparities, with the most need among rural communities across the country1. Factors contributing to health disparities in Uganda include socioeconomic conditions, gender roles, climate change, limited rural healthcare, and the availability of both government and external resources1. Despite government planning and decentralization efforts to meet these challenges, rural healthcare continues to provide inadequate care across the country. Uganda and Sheema District Uganda is located in East Africa and is bordered by Kenya to the East, Tanzania to the south, Rwanda to the southwest, Democratic Republic of the Congo to the west, and South Sudan to the north. Uganda has a population of 38.85 million and an annual GDP of $21 billion, classifying it as a low-income country2. The country’s population growth rate from 2002-2014 was 3.03%3. Uganda is divided into 112 districts. Sheema district is located in southwest Uganda and is bordered by Buhweju district to the north, Mbarara district to the east, Ntungamo district to the south, Mitooma district to the southwest, and Bushenyi district to the west. Sheema district is comprised of ten sub-counties including Kyangyenyi, which was the focus sub-county for this research. As of 2014, the population of Sheema district was approximately 211,720 and the population of Kyangyenyi sub-county was 31,2633. Kyangyenyi sub-county is comprised of 6 parishes including Kitojo, Rushozi, Muzira, Masyoro, Rwebaare, and Kangundu. The primary trading center of the sub-county is Kakindo trading center, and the nearest town is Kabwohe. Kyangyenyi sub-county’s largest health center is Kyangyenyi Health Center III, located in Kangundu parish.
Figure 1: Map of Uganda4
7
The Ugandan Healthcare System The Ugandan National Health System is comprised of all public and private institutions and systems that work to address health issues5. The Ministry of Health (MOH) is in charge of the public healthcare system, which has been decentralized at the district level since 1993. The public healthcare system is categorized using a hierarchical structure with three major levels including National Referral, Regional Referral, and District/Rural Hospitals. District/Rural Hospitals are further categorized into health center IV, health center III, health center II, and health center I (local village health teams). Types of services offered at each level vary, with health center II providing outpatient care and community outreach services, health center III providing laboratory services for diagnosis and maternity care, health center IV adding simple surgery, blood transfusion, and medical imaging, regional referrals adding specialist services and higher level surgeries, and finally national referrals providing comprehensive specialist services, health research, and teaching5.
Figure 2: Ugandan Healthcare Structure
All public healthcare services have been provided at no cost since 2001 when the government abolished user fees in order to provide increased access to services for the most poor. As a result, the government finances its services using general taxes and donor support6. The government of Uganda also established a National Minimum Healthcare Package to address the highest disease burdens among the population which includes health promotion, environmental health, disease prevention and community health initiatives; maternal and child health; prevention, management, and
National Referral Hospitals
Regional Referral Hospitals
Health Center IV (Sub-‐district Level)
Health Center III (Sub-‐county Level)
Health Center II (Parish Level)
Local Village Health Teams (Village Level)
8
control of communicable diseases; and prevention, management, and control of non-communicable diseases. The MOH oversees the private sector healthcare system, which is comprised of Private Not-For-Profits (PNFPs), Private Health Practitioners (PHPs), and traditional healers. PNFPs are traditionally more structured and more prominent in rural areas, while PHPs are the fastest growing sector in the healthcare system5. Since the private sector covers approximately 50% of reported outputs, the government subsidizes PNFPs, several private hospitals, and PNFP training institutions5. Rationale for a Baseline Assessment Over the past two decades Kyangyenyi sub-county has seen major changes in climate, food production, socioeconomic conditions, and availability of natural resources. As a result, these changes have impacted the community in many ways including overall health. For example, changes in climate have brought about longer dry seasons which have impacted the availability of water, forcing many residents to walk long distances to fetch water or to use dirty stagnant “ponds” and “wells” for household use. In addition, the banana bacteria wilt disease has greatly affected crops in the area, creating food shortages and decreasing the amount of money farmers can earn for their families. These conditions not only increase the incidence of disease, but also families’ ability to pay to access quality health services, whether in the private sector or transport to the nearest government hospital. As a result of these conditions, the research team was contracted to carry out a baseline assessment to assess the current health conditions and the need for improved health services within Kyangyenyi sub-county. The purpose of this research was to establish baseline health data for Kyangyenyi sub-county in order to: 1. understand the prevalence of the population’s major health issues 2. assess the population’s understanding of healthy behavior 3. identify health problems in need of improvement through existing and future health programs 4. serve as baseline data for future monitoring and evaluation efforts related to health programs in the sub-county.
9
Methodology It is commonly accepted that medical treatment and illness prevention are both equally important in keeping a population healthy. The methods used in this analysis sought to examine the current effectiveness of illness prevention with relation to health knowledge, as well as disease prevalence in order to understand the current health burden within Kyangyenyi. This section describes the methods used to obtain data on the community’s overall health, including the prevalence of common health diagnoses, and assessment of the population’s knowledge of healthy behavior. Study Design This study was conducted using a cross-sectional design in order to assess Kyangyenyi sub-county’s current health status. Within this design a family-level survey was used containing both quantitative and qualitative elements. As this study is intended to gather information related to current conditions and serve as a baseline for future health programs, a longitudinal design was not used. The family-level survey was divided into six sections in order to obtain a comprehensive view of family health including household demographic data, household physical condition, family health and nutrition, access to power, water and sanitation, and health center patient experience. Within each section a set of both quantitative and qualitative questions was asked, concluding with a short discussion regarding the respondent’s major health concerns for the family and community. Following the data collection phase of the study, data were assessed to determine the prevalence of certain conditions and behaviors and common opinions regarding the community’s health status. Based on the analysis, recommendations were made in order to improve the community’s health in the most affected areas. Study Location and Population The study was carried out within Kyangyenyi sub-county, Sheema district, Uganda. This location was selected based on a small pilot study carried out within the sub-county, which indicated a high prevalence of disease, poor general nutrition status, and poor general living conditions. In addition, a lack of beneficial health services was indicated, implying that residents are not receiving optimal health care or health education within the sub-county. The study population was comprised of all residents within the six parishes of the sub-county. Inclusion criteria for the survey consisted of any person age 17 or older that was a current member of the house being sampled. Sampling Strategy and Sample Size In order to identify study participants within Kyangyenyi sub-county, a multi-stage sampling strategy was used. The sampling frame for stage one of the sample consisted of all parishes and villages of the sub-county. Stratified sampling was used to divide the sub-county into the six parishes of Kitojo, Muzira, Masyoro, Rwebaare, Kangundu, and Rishozi. Each parish was then divided into a list of all villages within the parish. During data collection, the sampling frame for stage two consisted of each family located within
10
the present village. Data collectors began by traveling to the village chairperson of each village. After explaining the scope of the survey and obtaining the chairperson’s permission, the team then spun a plastic bottle to indicate a randomly chosen sampling direction. Study participants were then randomly selected as the data collectors traveled to every 5th house along the sampling direction until the sampling number for that village had been achieved. This process was repeated for every village within Kyangyenyi sub-county in order to achieve the total sample size. To calculate the sample size for the survey, the sample size calculator provided by Raosoft® was used. The sample size was calculated assuming a margin of error level of 5% and a confidence level of 90%. Given the most recent population of Kyangyenyi sub-county as 31,2634, a total sample size of 269 was calculated. The total sample size was then divided by six, resulting in a total of 44 or 45 surveys per parish. Each parish was then divided by its respective number of villages to calculate the total sample for each village. For parishes or villages with an uneven number, the larger sample was allocated toward the parish or village with the larger population. Study Outcomes The outcomes of interest in this study were 1. an estimate of the prevalence of select health diagnoses common within the region, and 2. an assessment of the population’s knowledge of healthy behavior. In order to identify health diagnoses common within the region a literature review was conducted which reviewed available surveys and results previously used in the area as well as available health reports from local organizations. A list of common health diagnoses was compiled and questions pertaining to each diagnosis were formed within the survey in order to measure disease prevalence. In order to understand the population’s knowledge of healthy behavior several open ended questions related to diet and sanitation/hygiene were formed. The responses for these questions were recorded qualitatively and were later categorized in order to quantify the extent of the population’s knowledge of healthy behavior. In addition to these quantitative assessments, each participant’s perceptions regarding health diagnoses and healthy behavior within the family and population were obtained in order to triangulate and provide a comprehensive view of the current health situation with Kyangyenyi. Data Collection In order to obtain data to assess the study outcomes a comprehensive survey was used which included both qualitative and quantitative elements. The data collection phase took place from March to November 2014. Once a house was identified using the sampling procedure, the data collectors confirmed participant eligibility, explained the purpose, scope, and instructions of the survey, and received oral consent to participate from the participant. The survey contained a total of 99 questions within the areas of household demographics, household physical condition, family health and nutrition, access to power, water and sanitation, and health center patient experience. Survey questions were administered as an interview with one data collector asking questions
11
and recording responses in English and a second data collector translating questions and responses using the local language of Runyankole. Following the administration of the survey, a short 5-minute open-ended discussion was held with each participant. The purpose of this discussion was for the participant to verbalize their perceptions regarding the overall health of the family and of the community, to clearly explain problems faced by the family and community that have an effect on health, and to offer any information not included in the survey that they felt related to the health status of the family and community. Due to various limitations faced by the study team, formal key informant interviews and focus groups were not possible. As a result, the interview was used to obtain qualitative data in order to triangulate information obtained in the survey. Data Analysis All data were entered into an Excel database during data collection, eliminating the need for data assistants. This process not only saved time and resources, but also allowed for minimal missing or incorrect data. Quantitative data analysis was performed using R® software. Given the cross-sectional design of this study, descriptive analyses were performed using means, standard deviations, and percentages to describe the population, calculate the prevalence of common diagnoses, and to quantify the population’s knowledge of healthy behavior. Qualitative data obtained in the survey as well as the interviews were coded by hand and assessed for common themes in order to further assess the population’s knowledge of healthy behavior as well as describe additional factors that affect family and population health.
12
Results This section describes the results from the survey and major issues discussed by participants. The results from each section of the survey are discussed, followed by the results related to the study outcomes. Overview of Present Conditions Demographics Out of a total of 269 participants, 108 were male and 161 were female. The most common age range of participants was from 31-50 years old and 80.3% of participants reported that they were presently married. With regard to education level, men accomplished a higher level than women with 4.2% more men finishing secondary education compared to women, and 4.6% more men finishing tertiary. The majority of both women and men had a primary education level, however 4.9% more women had no education compared to men. At home, families produced an average of 6.06 children. The number of all people currently living in the house was an average of 6.10 with 4 children and 2 adults. The number of children currently living in the house was largely comprised of both biological and non-biological children, and the majority of houses had at least one child living outside the house. Income earned per month ranged widely from zero to one million Ugandan shillings with a median income of fifty thousand. The majority of participants shared that their total monthly income was not enough to cover the monthly cost of food, school fees, medical fees, and other regular costs, which frequently resulted in a need to borrow money or sell land when faced with large essential expenditures. Table 1: Participant and Family Demographics Number (n=269) Relative Frequency (%) Gender Male 108 40.1 Female 161 59.9 Age (years) 17-‐30 63 23.4 31-‐50 104 38.7 51-‐70 79 29.4 70-‐90 20 7.4 Unsure 3 1.1 Marital Status Single 10 3.7 Married 216 80.3 Widowed 38 14.1 Divorced 5 1.9 Religion
13
Christian 255 94.8 Muslim 14 5.2 Husband’s highest level of education None 32 12.4 Primary 146 55.9 Secondary 59 22.6 Tertiary 15 5.7 Unknown 9 3.4 Wife’s highest level of education None 46 17.3 Primary 167 62.8 Secondary 49 18.4 Tertiary 3 1.1 Unknown 1 0.4 Mean(sd) Median Minimum Maximum Number of birth children 6.06(3.69) 6 0 20 Number of people in house 6.10(2.89) 6 1 19 Number of all children in house 4.29(2.65) 4 0 17 Amount of money (UGX) -‐ 50000 0 1000000
earned per month Household Physical Condition The physical condition of each household was included in the survey to assess living conditions within the sub-county. The average number of buildings on a family’s land was 2.3 with a range of 0 (renters) to 8. The average number of rooms per house was 4.09 with an average of 2.63 rooms used for sleeping by each family. Respondents were asked to categorize the condition, organization, and cleanliness of their house using a three point likert scale of poor, average, and good. Approximately 64.2% and 64.6% of houses were categorized as average condition and average organization respectively, with 33.2% and 30.9% having a poor condition and organization respectively. The general cleanliness of houses was comprised of 76.1% average, 17.5% poor, and 6.3% good. All of the houses interviewed used iron sheets as a roof and 60.0% had mud floors compared to 40.0% cement. The majority of respondents reported that they were not satisfied with the overall physical condition of their house, and that the standard of the community was generally poor. Several participants also stated that they would like to keep their homes better organized, but they were not sure how to go about organizing their rooms. Table 2: Household Physical Condition
Mean (sd) Median Minimum Maximum
14
Number of buildings 2.30(1.09) 2 0 8 Number of rooms 4.09(1.50) 4 1 10 Number of rooms for sleeping 2.63(1.06) 3 1 7
Number (n=269) Relative Frequency (%)
Condition of buildings Poor 89 33.2 Average 172 64.2 Good 7 2.6
Organization of rooms Poor 83 30.9 Average 173 64.6 Good 11 4.1 Unsure 1 0.4
Cleanliness of rooms Poor 47 17.5 Average 204 76.1 Good 17 6.3
Type of roof Iron sheets 269 100 Banana fibers 0 0
Type of floor Mud 185 60.0 Cement 83 40.0
Health & Nutrition In order to assess nutrition status across Kyangyenyi, questions related to eating habits and food availability were asked to participants. When asked the number of times they had eaten over the past 24 hours, participants responded with a mean number of 2.83 times. The most common foods eaten consisted of bananas, beans, posho, potatoes, milk, millet, and cassava from most eaten to least eaten on a daily basis respectively. Foods such as rice, eggplant, fruits, and bread were eaten sparingly on a daily basis. Respondents reported that in 64.7% of families the man of the household was the one to typically buy food, while 15.6% of families reported that the women bought food and 19.3% reported that another family member bought food. When purchasing food, 74.4% of participants reported that food availability in their village was low, while 24.9% reported average and 0.7% reported a high availability of food. Reasons given for low food availability included poor soil for growing, lack of understanding on how to grow enough food on small land, crop diseases such as the banana bacteria wilt, and poor crop yields during dry seasons. When asked the amount of money spent on food for the family per month, the median response was 60,000 Ugandan shillings with a range of zero to one million shillings. Those who spent a small amount of money on food per month typically only ate food grown on their land while those who spent a large sum on food typically had large families and typically sold the majority of food grown on their land.
15
Table 3: Household Nutrition Status Mean(sd) Median Minimum Maximum
Number of times eaten during 2.83(0.98) 3 1 6 the past 24 hours Amount of money (UGX) spent on -‐ 60000 0 1000000
food per month
Number (n=269) Relative Frequency (%) Knowledge of foods related to a healthy diet Listed 3 foods 215 80.0 Unable to list 3 foods 54 20.0 Village food availability Low 200 74.4 Average 67 24.9 High 2 0.7 Foods Eaten in the Past 24 Hours Matooke bananas 201 74.7 Beans 149 55.4 Posho 119 44.2 Potatoes (sweet & Irish) 93 34.6 Milk 62 23.0 Millet 52 19.3 Cassava 41 15.2 Porridge 39 14.5 Tea (dry) 22 8.2 Dodo (greens) 21 7.8 G-‐nuts 14 5.2 Meat 11 4.1 Eggs 11 4.1 Eggplant 7 2.6 Pumpkin 5 1.9 Maize 3 1.1 Rice 2 0.7 Bread 2 0.7 Cabbage 1 0.4 Fruits 1 0.4 Chapatti 1 0.4 With regard to overall health, questions related to maternal health, family planning, malaria, HIV/AIDS, and common diseases were asked within the survey. Families reported that 69.4% of mothers gave birth in a health center while 26% of mothers gave birth at home. Approximately 4.6% of mothers gave birth to some children at home and others at the health center. Similarly, 70.5% of families reported that women received
16
assistance during child birth from a nurse, doctor, or health care worker while the remaining 29.5% of families received assistance at home from either a family member, midwife, traditional birth attendant, a neighbor, or with no assistance. Approximately 16.7% of those surveyed reported delivery complications consisting of C-section, stillbirth, miscarriage, prolonged labor, or post-partum hemorrhage (PPH). Eighteen families reported that the woman of the house did not receive prenatal or antenatal care. Reasons for not obtaining care included lack of transport, far distance, and they did not feel it was needed. After birth, mothers typically breastfed their babies for an average of 18.4 months with a minimum of 3 and a maximum of 48 months, and first fed their babies solid food at an average of 7.1 months with a minimum of 3 and a maximum of 24 months. With regard to family planning, 46.5% of respondents reported ever using any method. The most popular form of family planning was injection, followed by contraceptive pills, no plant, hysterectomy, condoms, IUD, withdrawal, vasectomy, and moon beads. Reasons for low use of family planning were most often given as the side effects and the desire to produce many children. Several participants reported that they had used family planning methods in the past, but had stopped due to health care worker’s inability to manage the side effects. With regard to malaria, respondents reported that children acquired malaria an average of 2.6 times per year, and adults an average of 2.2 times per year. As a preventative measure for malaria, 97.4% of families currently owned at least one mosquito net, while 2.6% reported not owning any nets. Mosquito nets were reported being used by 73.9% of children 5-7 nights per week, while 87.1% of adults used the nets 5-7 nights per week. Participants shared that it was difficult to obtain mosquito nets; supplies of free nets from the government quickly ran out before reaching all families in the sub-county, and many families did not see a large enough need for nets to spend money from their monthly incomes. Finally, out of those respondents with children, only 2 reported that their children were not up to date on vaccinations. Reasons for this consisted of their children being raised during a time when vaccination was not always available. Further results related to common health diagnoses found across Kyangyenyi will be discussed in later sections. Table 4: Household Health Status
Mean(sd) Median Minimum Maximum
Age (months) that children 18.4(7.1) 18 3 48 were breastfed Age (months) that children were 7.1(3.9) 6 3 24 first fed solid foods Number of times per year that 2.6(3.1) 2 0 30 children acquire malaria Number of children that have had 0.4(0.7) 0 0 3 diarrhea in the past month Number of children that have had 1.7(1.5) 1 0 9 a cough in the past month Number of times per year that 2.2(3.1) 2 0 30
17
adults acquire malaria
Number (n=269) Relative Frequency (%) Who assisted during childbirth Healthcare worker 182 70.5
Family member (Mother/in law) 33 13.2 Midwife 18 7.0 No assistance 13 5.0 Traditional birth attendant 8 3.1 Neighbor 3 1.2 Where children were born Health enter 179 69.4 Home 67 26.0 Some home & health center 12 4.6 Delivery complications C-‐section 26 9.7 Post-‐partum hemorrhage 9 3.3 Stillbirth 4 1.5 Prolonged labor 4 1.5
Miscarriage 2 0.7 Family Planning (FP) Ever heard of FP 264 98.1 Never heard of FP 5 1.9 Ever used FP 125 46.5 Never used FP 144 53.5 Type of FP used (n=125) Injection 70 56.0 Contraceptive pills 28 22.4 No plant 18 14.4 Hysterectomy 14 11.2 Condoms 8 6.4 IUD 4 3.2 Withdrawal 4 3.2 Vasectomy 3 2.4 Moon beads 1 0.8 Mosquito Nets Family currently owns at 262 97.4 least 1 net Family currently owns no nets 7 2.6 Nights per week that children use nets 0 nights 18 7.2 1-‐2 nights 14 5.6 3-‐4 nights 33 13.3 5-‐7 nights 184 73.9 Nights per week that adults use nets
18
0 nights 14 5.3 1-‐2 nights 7 2.7 3-‐4 nights 13 4.9 5-‐7 nights 230 87.1 HIV/AIDS Participant has ever tested 232 86.2 Participant has never tested 37 13.8 Families with 1 or more HIV+ 42 15.7 member Families with no HIV+ members 221 82.8 Unsure 4 1.5 Access to Power Access to power was defined as a home that had the physical possibility of using hydroelectricity or solar power. According to respondents, 42.0% reported that their village had access to power while 58.0% reported that their village did not have access to power. Among all respondents who had possible access to either hydroelectricity or solar, 32.2% were currently accessing power while 67.8% were not. Reasons for not having power where accessible included lack of fees for initial connection and for regular monthly access. Within villages that had no access to power, some respondents were able to access solar through personal installation and maintenance. Among all respondents with current access to power, 59.0% used hydroelectricity, 38.5% used solar, and 2.5% had access to both hydroelectricity and solar. Respondents were also asked to rate the reliability of the power which was reported as 46.1% unreliable, 48.7% sometimes reliable, and 5.2% regularly reliable. Due to the majority of respondents having no access to power within their village, power was reported to be a major community problem by the majority of respondents. During the final discussion section of the survey, many participants asked if future projects were being planned to bring power to villages without access and how they could work to obtain access for their villages in the near future. Respondents currently accessing hydroelectricity voiced frustrations about frequent outages at certain times of day or during inclement weather, which affected the overall reliability and user satisfaction. Table 5: Village & Household Power Number Relative Frequency (%) Village access to power (n=269) Yes 113 42.0 No 156 58.0 Household access to power* (n=121) Yes 39 32.2 No 82 67.8 Among those with household power: Number (n=39) Relative Frequency (%)
19
Type of power Hydroelectric 23 59.0 Solar 15 38.5 Hydroelectric & solar 1 2.5 Power reliability Not reliable 18 46.1 Sometimes reliable 19 48.7 Regularly reliable 2 5.2 *The total households with access to power is greater than the number of villages with access to power due to those houses with access to solar within villages that do not access power. Water & Sanitation Study respondents felt that access to water was one of the biggest challenges throughout the sub-county. Approximately 32.3% of respondents felt that water availability in their village was low, compared to 29.7% average and 37.9% high. Although 64.6% of participants received their water by a government installed gravity system, 35.4% of participants received their water by other methods such as streams, springs, wells, ponds, and tanks. Those who did not use the gravity system shared that they were not satisfied with the cleanliness of their water and felt that their current water system caused some percentage of their family’s illnesses. When purifying water for drinking 91.8% of families used the boiling method followed by 4.5% using no purification method, 2.2% using both filtering and boiling, and 0.7% using both tablet and boiling. Participants were also asked if community members and their containers were generally clean or dirty when fetching water at their local water source. Approximately 62.8% of respondents felt that others in the community were frequently dirty when fetching water while 37.2% reported that others were generally clean. Given that those who use stagnant water sources generally dip their hands and containers into the water source to fill their containers, dirty hands and containers may add additional contamination. When observing various water sources aside from gravity, stagnant sources such as wells and ponds were observed to frequently have algae growing on the surface, while streams and springs typically had a high number of mosquitos present in the area. With regard to sanitation, participants were asked questions related to their toilet facilities, knowledge of illness prevention, and hand washing practices. Approximately 94.8% of families used a local pit latrine while 4.8% used ventilated improved pits (VIP) and 0.4% used no toilet facilities. After using the toilet, 41.6% of families reported that they had water for hand washing at the toilet, and 34.2% reported that soap was also available at the toilet. According to respondents, the median number of times a person washed their hands per day was 4. Participants shared that although water and soap were not always available at the toilet, they were usually available at the house. Some respondents shared that when they had kept water and soap at the toilet in the past
20
they had been stolen, prompting them to keep them closer to the house. Further results related to knowledge of sanitation practices will be discussed in later sections. Table 6: Household Water & Sanitation Number (n=269) Relative Frequency (%) Village water availability Low 87 32.3 Average 80 29.7 High 102 37.9 Source of water Gravity 174 64.6 Stream/River 12 4.5 Spring 8 3.0 Well 67 24.9 Pond 1 0.4 Tank 7 2.6 Water purification methods None 12 4.5 Boiling 247 91.8 Filtering & boiling 6 2.2 Tablet & boiling 2 0.7 Covering water 1 0.4 Unsure 1 0.4 People in the community fetch water when they are dirty Yes 169 62.8 No 100 37.2 Toilet facilities Local pit latrine 255 94.8 Ventilated Improved Pit 13 4.8 None 1 0.4 Knowledge of illness prevention Listed 2 ways to prevent illness 182 67.7 Unable to list 2 ways to prevent 85 31.6 illness Missing 2 0.7 Knowledge of hand washing Listed 3 times when hands 219 81.4 should be washed Unable to list 3 ways when 50 18.6 hands should be washed Water availability for hand washing Water available at the toilet 112 41.6 Water not available at the toilet 157 58.4
21
Soap availability for hand washing Soap available at the toilet 92 34.2 Soap not available at the toilet 177 65.8 Mean(sd) Median Minimum Maximum Average number of times participant washes hands per day -‐ 4 1 100 Health Center Patient Experience In order to assess participants’ experiences using local health centers, a series of questions related to their use was asked. Approximately 61.0% of respondents reported that local health centers typically operated on time, while 39.0% reported frequent delays. During their visit to the health center, 60.2% of participants reported that health center staff spared time for them by explaining the cause of their illness, treatment, and prevention, while 39.8% of respondents reported that staff was frequently too busy to speak to them and simply prescribed medication only. In addition, 5.6% of participants reported that health center staff followed up with them after their visit with a phone call or house visit, compared to 94.4% of respondents who received no form of follow up. Those who received follow up were typically patients recently diagnosed with HIV/AIDS. Of those who were prescribed medication at the health center, 88.1% reported that the treatment prescribed was effective while 11.9% reported that the prescribed treatment was ineffective. With regard to drug provider, 47.6% of respondents obtained their drugs from a government clinic, 36.8% obtained their drugs from a private clinic, and 15.2% obtained drugs from both government and private clinics. Survey participants spent a median of 50,000 Ugandan shillings per month on their family’s health. Those families with major health problems and complications spent up to one million shillings per month; for example those with diabetes, hypertension, heart attacks, kidney disease, and other presently unknown health problems. The majority of those who received services from government clinics reported having to spend some amount of money either for timeliness or for certain drugs. This was cause for frustration due to low income levels, high expenditures on health and school, and the fact that government services are intended to operate at no cost. Those respondents who used primarily private clinics explained that their experience at government clinics has been one of untimeliness, regular stock outs, ineffective medication, and the need to pay money to clinic staff when services should be free. As a result of these experiences, those who use private clinics reported that if they must spend money for health services, they would rather spend it to get quality, timely service. Table 7: Health Center Patient Experience Number (n=269) Relative Frequency (%) Timeliness of health center activities On time 164 61.0 Not on time 105 39.0
22
Effectiveness of health center treatment Effective 237 88.1 Not effective 32 11.9 Staff bedside manner Staff spares time and speaks 162 60.2 to me as a patient Staff does not spare time and does 107 39.8 not speak to me as a patient Health center follow up Staff follows up with me after my 15 5.6 visit Staff does not follow up with me 254 94.4 after my visit Drug provider Government 128 47.6 Private 99 36.8 Both government & private 41 15.2 Unsure 1 0.4 Mean(sd) Median Minimum Maximum Amount of money (UGX) spent -‐ 50000 0 1000000
on family health per month Family Level Prevalence of Common Illnesses Children During the pilot study phase of this research, three common childhood illnesses became evident that were included as questions in the research survey. These diagnoses consisted of diarrhea, respiratory tract infection (RTI) or “cough”, and malaria. Within the survey, respondents were asked how many children in the family had had diarrhea and RTI in the past month, and how many times per year family children acquire malaria. An average of 0.4 children per family were reported to have diarrhea per month with a minimum of zero and a maximum of three. Although these numbers do not demonstrate a major burden of diarrhea in the sub-county, it is possible that these numbers are under reported out of embarrassment and shame of the disease. An average of 1.7 children per family were reported to have RTI per month with a minimum of zero and a maximum of nine. This suggests that the majority of families have at least one child experiencing RTI per month. Finally, it was reported that children experience malaria an average of 2.6 times per year. When asked which diseases and conditions family children experience most frequently, the majority of respondents named at least one of the above three conditions.
23
Respondents were also asked which illnesses household children frequently acquire or are diagnosed with. The most common illnesses reported within the sub-county consist of malaria, RTI, skin infections, and allergies. For a complete list of reported childhood illnesses and family level prevalence please refer to Table 8. Table 8: Family Level Prevalence of Reported Childhood Illnesses Number of cases Prevalence (%) (n=255*) Malaria 187 73.3 RTI 152 59.6 Skin infections 41 16.1 Allergies 15 5.9 Diarrhea 9 3.5 Worms 9 3.5 Stomach pain 8 3.1 Typhoid 8 3.1 Pneumonia 8 3.1 Ulcers 4 1.6 Eye problems 3 1.2 Nosebleed 3 1.2 Arthritis 2 0.8 Ear problems 1 0.4 Measles 1 0.4 Cancer 1 0.4 No illnesses 8 3.1 *n represents the total number of families with children. The number of cases represents the number of families that have one or more children frequently diagnosed with the given condition. Adults After conducting the pilot study, two adult illnesses became apparent that were also included within the research survey. These conditions consisted of malaria and HIV/AIDS. Questions related to each condition were asked, as well as general illnesses and conditions frequently experienced by family adults. Respondents reported that family adults typically experienced malaria an average of 2.2 times per year, and malaria was experienced regularly by 52.8% of respondent families. Out of all 269 respondents, only one reported that they had not heard of HIV/AIDS, and 86.6% of study participants reported having ever tested for HIV/AIDS. The prevalence of HIV/AIDS among at least one family member within respondent families was approximately 15.7%. It is possible that this number could be under reported out of shame and stigma associated with the disease.
24
Respondents were also asked which illnesses household adults most frequently experienced. The most common illnesses consisted of malaria, RTI, arthritis, stomach pain, and allergies. For a complete list of reported household adult illnesses and family level prevalence please refer to Table 9. Table 9: Family Level Prevalence of Reported Adult Illnesses Number of cases Prevalence (%) (n=269*) Malaria 142 52.8 RTI 84 31.2 Arthritis 38 14.1 Stomach pain 36 13.3 Allergies 33 12.3 Ulcers 24 8.9 Skin infections 19 7.1 Chest pain/heart problems 16 5.9 Eye problems 15 5.6 Sexually transmitted infection 13 4.8 HIV/AIDS 11 4.1 Diabetes 9 3.3 Kidney problems 7 2.6 Worms 7 2.6 Typhoid 6 2.2 Hernia 5 1.9 High blood pressure 5 1.9 Cancer 4 1.5 Hypertension 3 1.1 Edema 3 1.1 Nosebleed 2 0.7 Pneumonia 2 0.7 Sleeplessness 2 0.7 Teeth problems 2 0.7 Goiter 2 0.7 No illnesses 14 5.2 *n represents the total number of families. The number of cases represents the number of families that have one or more adult frequently diagnosed with the given condition. Knowledge of Healthy Behavior Nutrition In order to assess knowledge of nutrition and healthy eating behavior, respondents were asked to list the three healthiest foods available in the sub-county, regardless of
25
availability or cost, according to their knowledge of nutrition. A total of 80.0% of respondents were able to list three foods that they felt were healthy, while 20% were unable to list three foods or responded that they did not know what made certain foods healthy. Of those respondents who listed three foods, those listed as healthiest were millet, matooke bananas, potatoes (sweet & Irish), and posho. These five foods are eaten most often within the sub-county, however they are each high in carbohydrates and do not contain some nutrients in quantities that are vital for growth, development, and body maintenance. It was also observed that many children of respondents had developed kwashiorkor, indicating low levels of protein in the body. Some parents of these children were concerned about their child’s health, but did not know what the condition was, what caused it, or how to treat it. The prevalence of kwashiorkor and other types of observed malnutrition and the lack of general knowledge related to these conditions indicate a low level of understanding of general nutrition among study participants. For a complete list of foods listed by participants in order of healthiest please refer to Table 10. Table 10: Healthiest Foods According to Participants Number (n=269*) Relative Frequency (%) Millet 125 46.5 Matooke bananas 121 45.0 Potatoes (sweet & Irish) 118 43.9 Posho 107 39.8 Rice 76 28.3 Cassava 66 24.5 Beans 35 13.0 Meat (including fish) 32 11.9 G-‐nuts 13 4.8 Yams 12 4.5 Milk 10 3.7 Dodo (greens) 8 3.0 Eggs 4 1.5 Fruits 3 1.1 Sugar 2 0.7 Carrots 2 0.7 Cabbage 2 0.7 Bread 2 0.7 Pumpkin 2 0.7 Maize 1 0.4 Did not know 2 0.7 *n represents the total number of participants. The number for each food represents the number of participants who stated the given food as one of the three healthiest foods available in Kyangyenyi.
26
Disease Prevention In order to assess knowledge of disease prevention, participants were ask to list two ways that they can prevent disease at home, and three times when they should wash their hands during the day. A total of 67.7% of respondents were able to list two ways they could prevent disease at home, while 81.4% were able to list three times when they should wash their hands during the day. The most common ways participants cited for preventing various diseases at home included boiling water, general cleaning, and being clean, while the most often cited times for hand washing were before eating, after using the toilet, after working, and after waking in the morning. These responses illustrate that although respondents were able to list ways of preventing disease, the majority of responses were very general and not distinct. Examples of hand washing behavior were comprised of more specific examples implying that respondents had better knowledge of hand washing behavior as opposed to disease prevention. For a complete list of knowledge of disease prevention methods and hand washing behavior please refer to Tables 11 & 12. Table 11: Participant Disease Prevention Methods Number (n=269*) Relative Frequency (%) Boiling water 82 30.5 General cleaning 64 23.8 Being clean 60 22.3 Sleeping under nets 35 13.0 Washing hands 26 9.7 Sweeping 24 8.9 Washing utensils 23 8.6 Cleaning the compound 20 7.4 Slashing bushes 19 7.1 Good sanitation 17 6.3 Having a toilet 16 5.9 Covering food 8 3.0 Eating healthy foods 7 2.6 Destroying stagnant water 5 1.9 Abstinence 4 1.5 Covering the toilet 4 1.5 Closing windows & doors 3 1.1 Proper disposal of wastes 2 0.7 Having a high income 2 0.7 Condoms 1 0.4 Stop visiting neighbors 1 0.4 Breastfeeding 1 0.4 Did not know 12 4.5
27
*n represents the total number of participants. The number for each method represents the number of participants who stated the given method as one way to prevent disease at home. Table 12: Participant Hand Washing Behavior Number (n=269*) Relative Frequency (%) Before eating 220 82.1 After using the toilet 136 50.7 After working 94 35.1 After waking in the morning 94 35.1 After eating 53 19.8 Before sleeping 17 6.3 Before cooking 15 5.6 After washing utensils 11 4.1 Before peeling 9 3.4 Before breastfeeding 8 3.0 After milking 7 2.6 After touching something dirty 7 2.6 Before bathing 6 2.2 Before drinking 4 1.5 Before praying 3 1.1 After peeling 3 1.1 Before serving 2 0.7 After shaving 1 0.4 Before taking medicine 1 0.4 Before brushing teeth 1 0.4 Before cleaning 1 0.4 After cleaning 1 0.4 Did not know 1 0.4 *n represents the total number of participants. The number for each situation represents the number of participants who stated the given situation as one time when a person should wash his or her hands.
28
Recommendations The results of this study demonstrate that the residents of Kyangyenyi sub-county must improve certain aspects of their health and living conditions in order to improve their overall health status. Based on current knowledge levels related to disease prevention methods and nutrition, it is important that residents receive education in order to improve overall knowledge and maintain behavior changes within these areas. It is also important that education be used in order to teach the community how to improve their standard of living in the home and on important health topics such as family planning and maternal & child health. In addition to community education programs, it is recommended that local government and private health organizations assess their effectiveness and efficiency and address obstacles hindering the community from receiving high quality medical care and patient satisfaction. Participants of the survey frequently shared that they wished they could improve certain areas such as the cleanliness and organization of their house, but they did not know how to improve upon their current conditions. Similarly, after asking participants to list ways they prevent illness at home and when they should wash their hands, the majority of respondents asked to be educated in those areas. These responses as well as the data from the survey show a need and desire for education in the sub-county related to nutrition, crop production, disease prevention methods, family planning, cleanliness and organization, and maternal & child health. Given that the government has established local health teams at the village level, it should be their responsibility to regularly implement these education topics. During discussions with survey participants, many respondents shared that they had never been informed of any health education programs and did not even know that village health teams existed in their area. According to one participant who was also part of a village health team, the government did not provide adequate training for the village health teams and they lacked educational resources to help communities. The government also provides no financial support or reimbursement, which creates a lack of motivation and interest for community members to join. As a result, the teams are largely inactive and do not provide the support needed by the community. Since local village health teams provide a vital service and also serve as a valuable resource for the community, it is recommended that the government work with the local village health teams to find a way of increasing motivation so that the community regularly receives the health education they need. Other countries have successfully used their village health teams to make a difference in local community health by providing monetary compensation, establishing a strong connection with local health centers, providing appropriate training materials and training sessions, and uniformly coordinating teams across the nation7,8. In addition to improving government sponsored village health teams, it is recommended that private health organizations in the area also address the need for health education. While providing large health education programs provides the community with a wide range of specific information, providing information at clinics or having one to one health talks with patients also provides vital health information that can be shared by the patient with family and friends in the community.
29
Alongside health education, the support for behavior change is also important in order to assist the community in adapting behaviors. For example, respondents reported having a diet high in carbohydrate foods such as matooke bananas, cassava, posho, beans, and potatoes. The addition of vegetables that are not as commonly eaten such as tomatoes, cabbage, pumpkin, and eggplant that provide vital nutrients may be difficult for families to implement in practice since they are used to eating their traditional foods. Organizations that provide health education must be able to follow up with the community and provide the support needed to help them change long standing traditional behaviors. It is essential that existing health services in the community operate efficiently and effectively so that patients receive the highest quality care. Those study respondents who reported using government health clinics shared experiences of long wait times, frequent stock outs, and the need to pay to receive time with a doctor and quality services. Those who used private clinics shared that although the doctor spent more time with them and drugs were more readily available, the cost was much higher making private services unaffordable or too costly. Respondents also shared a general dissatisfaction with the way they are treated as patients in the sub-county, especially in government clinics. As a result, it is recommended that local clinics assess their standards and procedures and address areas that prevent quality care and a positive patient experience. One area that many participants shared was a major concern was their current and future access to water. The fact that almost one-third of the sampled population currently has low availability of water and that 35.4% obtain their water from stagnant or polluted sources is cause for concern. In general, respondents who lived in mountainous or very rural areas had the least access to regularly available water. One positive solution that has been attempted has been the construction of high quality, long-term durable rainwater tanks shared by a group of families. One village within Rwebaare parish constructed three of these tanks and the result has been a more consistent, reliable water source for those in the immediate area. As a result of this success, it is recommended that local organizations helping with water access explore the construction of these tanks for villages where water access is lowest. The community is also encouraged to investigate grants available from large organizations in order to provide funding for future tank construction. As researchers we recognize that this study is subject to several limitations. As this study was conducted using a cross-sectional design we are only able to measure the prevalence of illness and are not able to make any inference regarding exposure related to disease. Funding and time restrictions also limited our ability to assess valuable qualitative data by holding focus group discussions and key informant interviews. During data collection we also recognize the possibility of interviewer bias during interpretation as well as recall bias resulting in respondent’s failure to report information (such as HIV/AIDS) and fabricate information. In order to control for these different types of limitations several methods were used in the design phase of this study. Clear, specific questions were formed in the survey in order to account for response accuracy
30
and understanding. Specific interview techniques were used to form questions for sensitive topics, such as HIV/AIDS and family planning. Local interpreters were also trained in appropriate interview techniques in order to reduce interviewer bias. As one purpose of this research is to serve as baseline data for future health projects and to provide a clear picture of present conditions, it is recommended that more research be conducted in order to assess the impact of current and future projects on the health status of Kyangyenyi sub-county residents. In conclusion, this research shows that the residents of Kyangyenyi sub-county are in need of health education and behavior change support in order to improve conditions having a negative impact on health in the home environment, and improved government and private health services currently operating in the sub-county. Given that the government has opted to provide medical services at no cost and has set up local village health teams, these services should be utilized more effectively in order to have a more positive impact in the community. Private organizations should also make sure they are doing their part to offer the highest quality services needed by the community that are accessible by the current standard of living. Future research should focus on the impact of existing projects related to the community’s needs as well targeting areas still in need of improvement in order to support the overall health of the Kyangyenyi sub-county community.
31
Bibliography
1. World Health Organization (2014). Country Cooperation Strategy: Uganda. WHO Regional Office for Africa, World Health Organization. Available online at http://www.who.int/countryfocus/cooperation_strategy/ccsbrief_uga_en.pdf?ua=1 [last accessed January 14, 2015].
2. The World Bank (2015). World Development Indicators: Uganda. The World Bank Group, The World Bank. Available online at http://data.worldbank.org/country/Uganda [last accessed January 14, 2015].
3. Uganda Bureau of Statistics (UBOS) (2014). National Population and Housing Census 2014: Provisional Results. Kampala, Uganda, Uganda Bureau of Statistics.
4. Management Sciences in Health (STAR-E) and Elizabeth Glaser Pediatric AIDS Foundation (STAR-SW) (2011). Community Knowledge and Practices LWAS Survey, 2010. Sheema District, Uganda, Management Sciences in Health.
5. Uganda Ministry of Health (2011). Health Sector Strategic Plan III: 2010-11-2014-15. Kampala, Uganda, Uganda Ministry of Health.
6. Twikirize, J.M. and O’Brien, C (2012). Why Ugandan rural households are opting to pay community health insurance rather than use the free healthcare services. Int J Soc Welfare 21:66-78.
7. The Earth Institute: Columbia University (2012). One Million Community Health Workers. New York, New York, Columbia University.
8. Kaschko, A.N. (2013). Remuneration for community health workers: Recommendations to the World Health Organization. MPH Policy Paper. Boston, University, Boston University School of Public Health.