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eHealthIreland.ie| @eHealthIreland Shared Record Programme Business Case Summary 17 May 2017 DRAFT FOR DISCUSSION

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Page 1: Shared Record Programme Business Case Summary · 5/17/2017  · 1 Enable better clinical decision-making by aggregating patient data from disparate organisations’ IT systems into

eHealthIreland.ie| @eHealthIreland

Shared Record ProgrammeBusiness Case Summary

17 May 2017

DRAFT FOR DISCUSSION

Page 2: Shared Record Programme Business Case Summary · 5/17/2017  · 1 Enable better clinical decision-making by aggregating patient data from disparate organisations’ IT systems into

Context within National Electronic Health Record

Moving from records locked in

organisations to a national Shared

Record

Examples:

• Order Communications /

Results Reporting

• Medicines Management

• Clinical Notes

Examples:

• Single MPI

• Scheduling

• Clinical Notes / Records

• Screening & Surveillance

Shared

Record

Community

Operational

Systems

Acute

Operational

Systems

Individual Health Identifier

The “glue” that binds all this together

and maintains integrity and security

across the system

The Individual Health Identifier

Programme is a key enabler that

allows information to be shared

about a patient

PharmacyGP Systems

Private

Hospitals

Other healthcare providers will

access and contribute to the

Shared Record via the

Integration Platform

The National Shared Record will aggregate patient data

from organisations’ ICT systems into a single patient-

centric record and provide collaboration and

communication tools to enable integrated care.

DRAFT FOR DISCUSSION 2

Page 3: Shared Record Programme Business Case Summary · 5/17/2017  · 1 Enable better clinical decision-making by aggregating patient data from disparate organisations’ IT systems into

Vision & AimsThe Shared Record will be a single patient-centric health and social care record available to clinicians, patients and carers, to support the delivery of safe, efficient and coordinated care for the entire population of Ireland. The vision, to be confirmed by the Programme Board, is to create a clinician led Shared Record which clinicians, patients and carers value, and use to improve and coordinate care.

Aim No. Programme Aim HSE Corporate Goal PhaseNo.

1 Enable better clinical decision-making

by aggregating patient data from disparate organisations’ IT systems into a national structured Shared Record

Goal 2 - Provide fair, equitable and timely access to quality, safe health services that people need

Goal 5 - Manage resources in a way that delivers best health outcomes, improves people’s experience of using the service and demonstrates value for money

1, 2, 3

2 Facilitate care collaboration

by enhancing clinicians’ capability to coordinate, plan and manage across care settings

Goal 2 - Provide fair, equitable and timely access to quality, safe health services that people need

Goal 5 - Manage resources in a way that delivers best health outcomes, improves people’s experience of using the service and demonstrates value for money

2, 3

3 Enable self-care and improved collaboration with patients and carers

by making the Shared Record appropriately available to patients and carers

Goal 1 - Promote health and wellbeing as part of everything we do so that people will be healthier

Goal 3 - Foster a culture that is honest, compassionate, transparent and accountable

Goal 5 - Manage resources in a way that delivers best health outcomes, improves people’s experience of using the service and demonstrates value for money

2, 3

4 Improve the working lives of clinicians

by improving access to patient health records and enabling collaboration with colleagues, patients and carers

Goal 4 - Engage, develop and value our workforce to deliver the best possible care and services to the people who depend on them

1, 2, 3

DRAFT FOR DISCUSSION 3

Page 4: Shared Record Programme Business Case Summary · 5/17/2017  · 1 Enable better clinical decision-making by aggregating patient data from disparate organisations’ IT systems into

• Patient Centric summary information

▪ Medications

▪ Laboratory requests and results

▪ Imaging requests and results

▪ Demographics

▪ Key clinical documents

▪ Appointment and attendances

▪ Circle of care etc.

• Patient lists

• Notifications and alerts

• Communicate within patient record

• Care plans

• Integrated care pathways

• Multi-disciplinary assessments

• Case management and analytics

SHARED RECORD

• Key patient summary care data drawn from the

operational solutions within the health service

• A longitudinal view of the patient’s care

• Access to specific elements of records for

different user groups

Shared

Record

• Patient Centric summary information

▪ Medications

▪ Laboratory requests and results

▪ Imaging requests and results

▪ Demographics

▪ Key clinical documents

▪ Appointment and attendances

▪ Circle of care etc.

• Communication with clinicians

• Patient information and signposting

Underpinned by

• Role based access for clinicians

• Audit trail

• Patient and carer access

• Consent management

Core Functional Capabilities

DRAFT FOR DISCUSSION 4

Page 5: Shared Record Programme Business Case Summary · 5/17/2017  · 1 Enable better clinical decision-making by aggregating patient data from disparate organisations’ IT systems into

Data Sources, Integration and Infrastructure EnablersShared Record Phase 1

Shared

Record

Current

Community

Operational

Systems

Current

Acute

Operational

Systems

Individual Health Identifier

Pharmacy

GP SystemsPrivate

Hospitals

DRAFT FOR DISCUSSION

Phase 1 • Clinical portal – national views

Phase 1 • User access and desktop / mobile infrastructure

One Project

(Digital Identity)

Phase 1 • PAS• RIS/ PACS• LIS• MN-CMS• eReferrals• ED• Clinical Document

Systems

Phase 1 • National Integration Platform• Leverage Healthlink messaging

Phase 1 • Simple collaboration tools to plug IT system gaps

Phase 1 • Safely matches patient records

5

Page 6: Shared Record Programme Business Case Summary · 5/17/2017  · 1 Enable better clinical decision-making by aggregating patient data from disparate organisations’ IT systems into

Data Sources, Integration and Infrastructure EnablersShared Record Phase 2

Shared

Record

Community

Operational

Systems

Acute

Operational

Systems

Individual Health Identifier

Pharmacy

GP SystemsPrivate

Hospitals

DRAFT FOR DISCUSSION

Phase 1 • Clinical portal – national views

Phase 2 • Patient portal – patient views• Patient portal – carer views

Phase 1 • User access and desktop / mobile infrastructure

One Project

(Digital Identity)

Phase 1 • PAS• RIS/ PACS• LIS• MN-CMS• eReferrals• ED• Clinical Document

Systems

Phase 2 • National conditionspecific EPRs

• Endoscopy• MOCIS• Cardiology

investigations• Ambulance EPR

Phase 1 • National Integration Platform• Leverage Healthlink messaging

Phase 1 • Communication tools to plug IT system gaps

Phase 2 • Care plans & assessmentsto plug IT system gaps

• SATIS• ePrescribing• NICIS

Phase 1 • Safely matches patient records

Phase 2 • GP PMS• GP out-of-hours systems

Phase 2 • Potential to include

6

Page 7: Shared Record Programme Business Case Summary · 5/17/2017  · 1 Enable better clinical decision-making by aggregating patient data from disparate organisations’ IT systems into

Data Sources, Integration and Infrastructure EnablersShared Record Phase 3

Shared

Record

Community

Operational

Systems

Acute

Operational

Systems

Individual Health Identifier

Pharmacy

GP SystemsPrivate

Hospitals

DRAFT FOR DISCUSSION

Phase 1 • Clinical portal – national views

Phase 2 • Patient portal – patient views• Patient portal – carer views

Phase 3 • Clinical portal – local views

Phase 1 • User access and desktop / mobile infrastructure

One Project

(Digital Identity)

Phase 1 • PAS• RIS/ PACS• LIS• MN-CMS• eReferrals• ED• Clinical Document

Systems

Phase 2 • National conditionspecific EPRs

• Endoscopy• MOCIS• Cardiology

investigations• Ambulance EPR

Phase 3 • Acute Operational Solution

• Departmental systems for local views

Phase 1 • National Integration Platform• Leverage Healthlink messaging

Phase 1 • Communication tools to plug IT system gaps

Phase 2 • Care plans and assessments to plug IT system gaps

• SATIS• ePrescribing• NICIS

Phase 3 • CHO Operational Solution

Phase 1 • Safely matches patient records

Phase 2 • GP PMS• GP out-of-hours systems Phase 3 • Data transmitted via

Healthlink• Potential to add other

data in futurePhase 2 • Potential to include

7

Page 8: Shared Record Programme Business Case Summary · 5/17/2017  · 1 Enable better clinical decision-making by aggregating patient data from disparate organisations’ IT systems into

Proposed Architecture

DRAFT FOR DISCUSSION 8

Page 9: Shared Record Programme Business Case Summary · 5/17/2017  · 1 Enable better clinical decision-making by aggregating patient data from disparate organisations’ IT systems into

Year 0 Year 1 Year 2 Year 3 Year 4 Year 5 Year 6

National

Organisational deployment

TimelineIndicative – to be defined during procurement phase

9DRAFT FOR DISCUSSION

Shared Record governance & operational unit establishment

Procurement National design, build and test 1

Require-ments

National design, build and test 2

1st implementation

2nd implementation

National rollout

Business case

approved Stakeholder engagement and communications

Planning & readiness assessments

Enterprise Architecture & Standards

Policies & procedures

Initial go-live sites to be confirmed by the Programme

Board following local readiness assessments

Page 10: Shared Record Programme Business Case Summary · 5/17/2017  · 1 Enable better clinical decision-making by aggregating patient data from disparate organisations’ IT systems into

10

Programme Board Membership

Programme Role Name and Role

Programme Sponsor & Chair David Hanlon, National Adviser and Group Lead, Primary Care

Programme Director Fran Thompson, Programme Director, Strategic e-Health

Acute Clinical Leads Garry Courtney, National Clinical Lead, National Acute Medicine Programme

Gerry McCarthy, Clinical Programme Lead, National Emergency Medicine Programme

Community Clinical Lead Virginia Pye, National Clinical Lead for Public Health Nursing

Mental Health Clinical Lead Seamus MacSuibhne, Consultant Psychiatrist, Carlow/Kilkenny Mental Health Services

Paediatric Clinical Lead Michael Riordan, Chief Clinical Information Officer, Children’s Hospital Group

Acute Services Nominee Angela Fitzgerald, Deputy National Director of Acute Hospitals

CHO Leadership Nominee Michael Fitzgerald, Head of Operations and Service Improvement Services for Older People

Hospital Group Nominee TBC

CHO Nominee Aileen Colley, Chief Officer, CHO 5

OoCIO Delivery Director Seamus Butler, National Delivery Director, Acute Hospitals

OoCIO Delivery Director Alan Price, National Delivery Director, Community Health

HSE Finance Nominee Raymonde O’Sullivan, Assistant Chief Financial Officer

DRAFT FOR DISCUSSION

Page 11: Shared Record Programme Business Case Summary · 5/17/2017  · 1 Enable better clinical decision-making by aggregating patient data from disparate organisations’ IT systems into

Update from European Connected Health AllianceDamian O’Connor, Director of Operations, European Connected Health Alliance

Ecosystema member of the ECHAlliance International Ecosystem Network

Page 12: Shared Record Programme Business Case Summary · 5/17/2017  · 1 Enable better clinical decision-making by aggregating patient data from disparate organisations’ IT systems into

The Global ConnectorEuropean Connected Health Alliance Bringing together the future of Health, Social Care & Wellness

Ecosystem Principles

• Multi-stakeholders – open to all

• Based on a geographic zone

• Permanent with regular meetings

• Shared strategy & action plan

• Light Governance via a working group

• Member of an International network

• Patients / Citizens at the centre

ECHAlliance• Not for Profit Membership Organisation

• 600+ member organisations

• 16,500+ individuals as a community

• Reach into 40+ countries

• Connector Digital Platform

• International Network of Ecosystems

Damian O’Connor. ECHAlliance [email protected]

www.echalliance.com

@echalliance

Page 13: Shared Record Programme Business Case Summary · 5/17/2017  · 1 Enable better clinical decision-making by aggregating patient data from disparate organisations’ IT systems into

Existing Ecosystems

Belgium – Brussels

Canada - Ontario

Czech Republic

Denmark – South

England - Manchester

England - North West Coast

England - London

England - Yorkshire & Humber

Estonia

Finland - Oulu

France – Nice PACA

International Network of Ecosystems100+ quarterly gatherings per year

Greece

Northern Ireland

Republic of Ireland

Scotland

Slovenia

Spain – Valencia

Spain - Galicia

Spain – Catalonia

USA - New York

Launching in 2017

Austria

Canada

Croatia

Denmark

Finland

France

Germany

Netherlands

Spain

Wales

USA

Page 14: Shared Record Programme Business Case Summary · 5/17/2017  · 1 Enable better clinical decision-making by aggregating patient data from disparate organisations’ IT systems into

ECHAlliance Ecosystem priorities (samples)

Yorkshire & Humber (England) Digital Health & Wellness

• Local digital roadmap – procurement

• Patient flow – safety

• Mobile working

• Self-management

Valencia – Spain

• eHealth & Wellness

• Chronic Disease Management

• Health Tourism

• Personalized Medicine

Digital Health Scotland

• Self-Management (long term illness e.g. diabetes)

• Decision Support (digital tools, less clinical knowledge e.g. paramedics)

• Digital alternatives for Wellness

• Care in the Home setting

North West Coast (England)

• Mental Health & Wellbeing

• Medicines Management

• Care in the Community

Page 15: Shared Record Programme Business Case Summary · 5/17/2017  · 1 Enable better clinical decision-making by aggregating patient data from disparate organisations’ IT systems into

SATELLITE SERVICES FOR FUTURE HEALTHBelfast – Northern Ireland - 27 June 17 www.eurisy.org

Keynote: Thomas Reiter, European Space Agency, Astronaut & Former Director of ESA’s Directorate of Human

Spaceflight and Operations

Satellite applications can be part of the solution.Satellite data, satellite location and navigation, and satellite telecommunications are part of the technology mix that drives new applications.

Why attend? (No fee)The event will feature case studies about the use of satellite services in taking care of people remotely, monitoring and modifying factors that affect health in urban and rural areas while motivating autonomous, healthy living for longer.

• Health and satellite applications experts who will showcase their experience• Healthcare professionals will speak about their needs• Innovative companies who will demonstrate what the future of health looks like

Sponsorship / Exhibition OpportunitiesProvides an opportunity for your organisation to showcase your products, services and vision directly to a diverse group of public authorities and decision makers. Contact us:EURISY, Alexandra JercaianuE: [email protected]: +33 (0) 147 34 00 79

Supporters:

Page 16: Shared Record Programme Business Case Summary · 5/17/2017  · 1 Enable better clinical decision-making by aggregating patient data from disparate organisations’ IT systems into

Save the date

Digital Health around the Globe 2017

Beijing, 28 – 29 Sept 2017

The China Consortium Health Alliance (CCHAlliance) will organise in 2017, the Digital Health around the Globe (DHG2017) at the long established PTExpo (27-30 September, 2017), a large international event gathering thousands of leaders with the IT and telecommunications industry and organised by the Ministry of Industry and Information Technology.

This Digital Health conference will showcase best Chinese and European initiatives and key leaders around 3 topics:

• Big Data• Traditional Medicine • Wellbeing & Healthy living (2030 Healthy

China)

www. echalliance.com/events/EventDetails.aspx?id=941940&group=

www.ptexpo.com.cn

[email protected]

Partnering with CCHAlliance, ECHAlliance will represent Europe and organise a roundtable about the International Network of Ecosystems, a highly successful European Network of permanent multi-stakeholders groups including Government, Policy Makers, industry and SMEs, healthcare providers and academia.

Page 17: Shared Record Programme Business Case Summary · 5/17/2017  · 1 Enable better clinical decision-making by aggregating patient data from disparate organisations’ IT systems into

ECHAlliance appointed

Strategic Partner to the

Estonian eHealth Presidency

Estonian Ministry of Social Affairs has appointed

the ECHAlliance to assist them in preparations for

the e-health conference "Health in the Digital

Society. Digital Society for Health“ taking place

during the Estonian Presidency of the Council of

the European Union.

Tallinn will bring you the latest developments in three hottopics:

➢ Building citizen-driven demand in eHealth

➢ eHealth supporting the value driven and sustainablehealth and social services

➢ eHealth as a driver of innovation and economicdevelopment

The topics of discussion will include:

➢ Giving citizens access and more control over the use oftheir health data

➢ Cross-border exchange of health data

➢ Making better use of health data for research andinnovation

➢ Creating the right conditions for a digital single marketin health – interoperability, cyber security, dataprotection

Email: [email protected]

Page 18: Shared Record Programme Business Case Summary · 5/17/2017  · 1 Enable better clinical decision-making by aggregating patient data from disparate organisations’ IT systems into

European Connected Health AllianceBringing Together the future of Health, Social Care & Wellness

www.echalliance.com / [email protected]

ContactBrian O’Connor, Chair, [email protected]

Damian O’Connor, COO, [email protected]

Mikaela Nordenfelt, Ecosystem Network Coordinator, [email protected]