shaping a health statistics vision for the 21 st century 2002 nchs data users conference 16 july...
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Shaping a Health Statistics Vision for the 21st Century
2002 NCHS Data Users Conference16 July 2002
Daniel J. Friedman, PhDMassachusetts Department of Public Health
National Committee on Vital and Health Statistics
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Partners, process, and products
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Vision partners
DHHS Data Council National Center for Health
Statistics National Committee on Vital and
Health Statistics
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Joint NCVHS, NCHS, and DHHS Data Council process for developing the 21st century for health statistics
WHO Collaborating Centres for the Classification of
Diseases
NAPHSISAnnual Meeting
DHHS Data
Council
AMCHPAnnual Meeting
CDC Executive Leadership
Launching Healthy People
2010
NCVHS 50TH
Anniversary Symposium
CDC Assessment Initiative Annual
Meeting
National Conference On
Health Statistics
Association for Health Services
Research
Commissioned Papers
Local Discussion Groups,1999-2000
National Academy of Sciences
Workshop, 1999
Workshop Summary,
2001
Regional Public Hearings,2000-2001
Solicitation of Recommendations from
Vision Process Participants
2001
Expert Discussion Groups, 1999
NCVHS Recommendations for Implementing the
vision2002
Shaping a vision for 21st century health statistics, June 2000 interim report
A Health Statistics Vision for the 21st Century, final
report 2002
Participant Input
Reports & Papers
Presentations
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Vision components
Definitions of health statistics, uses of health statistics, and health statistics enterprise
Overarching conceptual frameworks Model of influences on the population’s health Health statistics cycle
Application of overarching conceptual frameworks to describe issues and gaps in U.S. health statistics
Mission of health statistics enterprise Guiding principles for health statistics enterprise Relationship of health statistics enterprise to National
Health Information Infrastructure NCVHS recommendations
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Definitions and uses
Defining health statistics Uses of health statistics Defining health statistics
enterprise
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Defining health statistics
. . . Numerical data that characterize the health of a population and the influences and actions that affect the health of a population.
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Uses of health statistics
1. Creating fundamental knowledge about the health of populations and sub-populations, influences on health, and interactions among those influences
2. Developing information to guide health policy development, assessment, and evaluation
3. Generating information to guide implementation, targeting, evaluation, and refinement of health programs and other interventions for populations and personal health decisions
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Defining health statistics enterprise
. . . infrastructure and the activities necessary to produce health statistics.
Public and private organizations and individuals at all geopolitical levels that perform the processes of health statistics
Highly decentralized Includes organizations that collect, analyze,
and disseminate data on the health of populations and the factors that influence health
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Defining health statistics enterprise
Focuses on the health of the population and subpopulations
Serves the public interest and generates products that are public goods
Engages in systematic and organized inquiry Strives for scientific integrity Involves multiple disciplines Links U.S. health statistics activities to those of
international partners
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Overarching conceptual frameworks
Influences on the population’s health Issues Gaps
Health statistics cycle Issues
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Influences on the population's health
Place & Time
Cultural Context
Context
Built Environment
Political Context
Natural Environment
The Population’s Health Level Distribution
DiseaseFunctional statusWell-being
Health Services
Biological Characteristics Social
Economic
Population-based Health Programs
Community Attributes
Collective Lifestyles and Health Practices
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Using the model to describe issues
Broad definition of health Population health and its determinants Data availability across geopolitical levels Quality and quantity of data on subpopulations Longitudinal and life cycle data Data use, not just data availability
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Using the model to describe gaps Context—cultural and political Community attributes
Social cohesion, influence, networks, support, and change Economic attributes Relationship between “structure, processes, and access”
and “population health” Relationship between “population-based health
programs” and “population health” Built environment
Population’s health Disease incidence and prevalence Functional status Well-being
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Health Statistics Cycle
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Using the cycle to describe issues
Insufficient connections between users and producers of data
Lack of geographic, race/ethnic, and other detail Lack of timeliness in making data available Existing data difficult to find and use Lack of resources jeopardizes major data sources Enterprise-wide coordination and integration
lacking
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Vision for health statistics enterprise
Mission Ten guiding principles Role of National Health Information
Infrastructure
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Vision for U.S. health statistics enterprise: mission
…efficiently provide timely, accurate, and relevant information that can be used to improve the nation’s health, including information about status of the population’s health, information to formulate and evaluate the effects of health policy, and information to manage health interventions and programs.
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Vision for health statistics enterprise: overarching conceptual framework
…helps to maintain a focus on needed data and that guides the health statistics enterprise. Focuses on health, the population, and the
community Emphasizes distribution and level of health Delineates major influences on health Defines research agenda for improving the
population’s health
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Vision for health statistics enterprise: ten guiding principles
1. Enterprise-wide planning and coordination2. Broad collaboration among data users,
producers, and suppliers at local, state, and national levels
3. Rigorous policies and procedures for protecting privacy, confidentiality, and security
4. Flexibility to identify and address emergent health issues and needs
5. Use of data standards
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Vision for health statistics enterprise: ten guiding principles
6. Sufficient detail at different levels of aggregation
7. Integrated, streamlined data collection for multiple purposes
8. Timely production of valid and reliable health statistics
9. Appropriate access to and ease of use of health statistics
10. Continuous evaluation of the completeness, accuracy, and timeliness of health statistics and the ability of the health statistics enterprise to support their production
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Vision for health statistics enterprise: National Health Information Infrastructure
21st century health statistics enterprise must be viewed within context of the NHII
Data standards should mirror NHII NHII provides conceptual framework and
ultimately tools to transform vision into reality
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Vision for health statistics enterprise: National Health Information Infrastructure
The heart of the vision for the NHII is sharing information and knowledge appropriately so it is available to people when they need it to make the best possible health decisions.
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Vision for health statistics enterprise: National Health Information
Infrastructure
• The set of technologies, standards, applications, systems, values, and laws that support all facets of individual health, health care, and public health
• NOT (NOT!) a centralized database• Connects distributed health information
in the framework of a secure network with strict confidentiality protections
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NCVHS recommendations
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NCVHS recommendations Recommendations for achieving the ten guiding principles
(30) Recommendations for moving toward the adoption of the
overarching conceptual framework (6) Recommendations pertain to
Data access and use (3) Data set development (11) Data standards (4) Enterprise structure (3) Evaluation (2) Policy (4) Research agenda (6) Training (2)
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NCVHS recommendations
Priority recommendations for building and integrating the “hub” of the health statistics enterprise
Priority recommendations #1: Reconstituted NCHS #2: national Health Statistics Planning Board #3: state Health Statistics Planning Boards #4: Graduate, in-service, and continuing education
in all elements of the health statistics cycle
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Vision for health statistics enterprise: next steps
Disseminate Vision Develop health statistics enterprise-wide
planning process Hold planning and implementation hearings
and meetings
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ContactsDan Friedman 617.624.5613 [email protected]
Ed Hunter [email protected]
Gib Parrish [email protected]
21st century vision for health statistics URL:http://www.ncvhs.hhs.gov/hsvision/
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