Service System for Management and Sharing of Scientific Data in Medicine

Depei Liu, Ph.D.

Chinese Academy of Medical Sciences

Service System for Management and

Sharing of Scientific Data in Medicine

The system is :• The key component of the National Program for

Sharing of Scientific Data• One of the National Basic Core Platforms for

Science and Technology

Institutions Responsible

• Chinese Academy of Medical Sciences

• Chinese Center for Disease Control and Prevention

• General Hospital of People’s Liberation Army

• Chinese Academy of Traditional Chinese Medicine

Superior Administrations• Department of Basic Research, Ministry of Science and

Technology• Department of Science, Technology and Education,

Ministry of Health• Training Bureau of Science and Technology, Department

of Health, General Department of Logistics of P.L.A.• Department of Science, Technology and Education, State

Administration of Traditional Chinese Medicine

Objectives of the System

• To establish Resources of Scientific Data in Medicine

• To establish Centers of Scientific Data in Medicine

• To establish Networks of Scientific Data in Medicine

Establishment of Resources of Scientific Data in Medicine

• To integrate available medical data resources and to set up main databases

• To organize and rescue medical data with scientific value

• To collect and utilize international resources of medical data

• To explore and re-utilize data resources

Establishment of Centers of Scientific Data in Medicine

• Macroscopically adjusted and directed by the Government

• Based on the current academic systems in China

• Implemented step by step under the uniform layout

• Adoption of the polices, regulations and technical criteria

Establishment of Networks of Scientific Data in Medicine

• To support the national key programs in science and technology

• To emphasize data resources in the fields of new and high technology, basic biomedical sciences, and important geographical areas

• To connect the related professional main databases through Internet

• To build up the scientific data network with reasonable physical distribution and logistic unification

The System Will Cover Most Areas of Medicine

• Basic medicine, clinical medicine, public health, traditional Chinese medicine, special medicine, meteria medica, innovative drugs, etc.

• The database for emerging and re-emerging infectious diseases such as SARS will also be included

Long-Term Objectives of the System

• To serve research and education in biomedical sciences and to improve the innovation capability in medical sciences and technology

• To improve the overall level in prevention, diagnosis and treatment of diseases

• To enhance the self-protective consciousness of Chinese people and thereby to ensure the entire nation’s health, by opening to the public

• To strengthen the ability to response to the sudden incidents in public health

• To provide information for government to make policies and to promote the health care and economic development

Long-Term Objectives of the System

Working Plan of the System

Four Centers/Networks in Phase I• Scientific data center for basic medicine• Scientific data network for clinical medicine• Scientific data center for public health• Scientific data center for traditional Chinese medicine

A special database for SARS and respiratory diseases

Projects in the System

Projects Institutions Responsible

Service System of Management and Sharing of Scientific Data in Medicine

Chinese Academy of Medical Sciences

Establishment of the Center of Scientific Data in Basic Medicine

Institute of Basic Medical Sciences, Chinese Academy of Medical Sciences

Establishment of the Network Center of Scientific Data in Clinical Medicine

Peking Union Medical College Hospital, General Hospital, P.L.A.

Projects Institutions Responsible

Establishment of the Center of Scientific Data in Public Health

Chinese Center for Disease Control and Prevention

Establishment of the Center of Scientific Data in Traditional Chinese Medicine

Chinese Academy of Traditional Chinese Medicine

Establishment of the SARS Database and Sharing

Chinese Center for Disease Control and Prevention

Establishment of the Database of Respiratory Disease and Sharing

General Hospital, P.L.A.

Mechanism of Organization and Management Model

• The System will be planned and coordinated as a whole

• Management and running model featuring the team work of leading, advisory expert and working groups

• The establishment and running of a center or a network will be carried out by the institutions responsible, in collaboration with related institutions

Leading Group

• The group will include leaders from the institutions responsible, and several professionals in scientific administration

• The group will be responsible for the decision-making and coordination of the system

Advisory Expert Group

• The group will include experts from the expert committee of the National Program for Sharing of Scientific Data, from institutions responsible, and in the field of scientific data sharing

• The group will be responsible for steering and authorization of general design, selection of the institutions responsible, as well as phase inspection and evaluation of individual project

Working group

• The group will include members from the working group of the National Program for Sharing of Scientific Data, and principal investigators from the institutions responsible

• The group will be responsible for the overall design of the project, writing the proposal and report for the project, and actual running of the project

Framework in 2003-2004 Service System for Management and Sharing of Scientific Data in Medicine

Classification Criteria Catalog System

   

Establishment of the Centers/Networks

         

Establishment of Main Database for Biomedicine

Establishment of Main Database for Neuroinformatics and Oncol

ogy

Establishment of Main Database for

Food Ingredients and Hygiene

Establishment of Main Database for Modern

TCM

Scientific Data Center for Basic Medicine

Scientific Data Center for

Clinical Medicine

Scientific Data Center for Public

Health

Scientific Data Center for TCM

Establishment of SARS Database

Establishment of Database for Respiratory Disease

Tasks in the Period of 2003-2004

• Finalize the organization to lead the project, the recruitment of investigators and the mechanism for project management

• Study and establish the mechanism of co-establishment and sharing of medical scientific data, aiming at different users and levels

• Collect and analyze the related medical information and technical criteria

• Study and define collection scope, methods, technical criteria, and data type, data source

• Study models of data storage and management for medical data units. Compile the catalog, index, and data criteria

• Study and determine exchange methods and management model

• Establish a network of medical information, and define interface criteria on database-related service

• Realize the basic service of database network, including management and affairs processing, definition of interface criteria of knowledge service, distributing browse function for language-sense browser

Protein Database

Neuroinformatics Database

Neoplasm Database

Cerebra-cardiovascular

Database

Acupuncture

TCM Database

Epidemiology Database

Toxicosis Database

AIDS DatabaseGene Database

Digital Human Body Database

Chinese Herbs

Clinical

Medicine TCM

TCM lectures

Preventive

MedicineBasic

Medicine

Diabetes Mellitus Database

System of Management and

Sharing Service of Scientific Data

for Medicine

Physiological Constants Database

Expected Results

• To establish a Scientific Data Center/network involved in basic medicine, clinical medicine, public health, and TCM, and to form the running environment of network with reasonable physical distribution and logistic unification

• To finalize the detailed rules on converge of medical scientific data, the management of data converge, and to provide the sharing service of data

• To establish Chinese biomedical database, Chinese food ingredients and hygiene database, Chinese neuroinformatics database ,and Chinese modern prescription of TCM database

• To completely utilize the computer network and communication Technology to set up the System and submit the technical report of sharing service

• To recruit talents with informatics, computer sciences, and medicine, and to strengthen the team pursuing data sharing, in order to meet the requirements of the System

• To build up the cooperative environment, and to undertake the data sharing service on SARS and respiratory diseases

• Sharing service benefits governments, institutions of medical, scientific research,and education, and enterprises and public. Sharing service can be offered in the means of free and nonprofitable charge.

Thank you for your attention!