screening and diagnostic assessment of · policy makers. the guidelines and system recommendations...
TRANSCRIPT
The National Cross Cultural Dementia Network is committed to ensuring that people from culturally and linguistically diverse backgrounds receive accessible and equitable access to all services provided for all Australians. Dementia screening and diagnostic assessment is of primary concern particularly for people from culturally and linguistically diverse background.
Two papers have been produced by the Clinical sub group of the National Cross Cultural Dementia Network in collaboration with the National Ageing Research Institute that address the screening and diagnostic issues with respect to people from culturally and linguistically diverse communities. The Guidelines and System Recommendations document and the accompanying Background paper highlight factors that can influence improved screening and early diagnosis of cognitive impairment, particularly focussing on issues to consider when working with people from non-English speaking backgrounds. The Guidelines can be used as a template to compare to current practice, to determine areas for improved processes to be implemented within a specific service. The ultimate goal is to achieve improved and equitable early screening and diagnosis for all people experiencing mild memory loss.
These Guidelines and System Recommendations are intended to provide information for assessors when they are planning the dementia screening or assessment of a non-English speaking person. They apply to all elements of the screening, assessment and diagnosis process, including cognitive, neuropsychological and functional assessments. They reflect good assessment principles in general, but have been written specifically with dementia-related assessments in mind. They have also been written for service managers and policy makers. The Guidelines and System Recommendations document contains recommendations for resources and processes to be put into
place to enable practitioners to make best use of these guidelines. A Background paper (Screening and diagnostic assessment of non-English speaking people with dementia: A Background paper, report for Alzheimer’s Australia) provides more information supporting the rationale behind these recommendations. Effective screening of people reporting mild memory loss can result in early treatment and support for the patient and their carer / family. There are a number of barriers that currently limit screening and early diagnosis in practice, including lack of information in the community, lack of knowledge of the benefits of early identification, and limited knowledge of screening, assessment and referral processes by primary care practitioners. A number of additional factors add to the delay in seeking screening and diagnosis among people from non-English speaking backgrounds. There are a range of strategies at the service system, primary care practitioner, and community levels that need to be implemented to ensure timely and effective cognitive screening for all people experiencing mild memory loss, including those from non-English speaking backgrounds.
There are a number of factors that contribute to many people not seeking screening / assessment until later stages of disease progression. Information needs to be widely available highlighting the signs that indicate that screening is suggested, and the benefits of earlier identification of cognitive impairment. Again, this information should be promoted widely through a range of English and ethno-specific avenues.
These two papers can be found on the National web site
http://www.alzheimers.org.au/content.cfm?infopageid=4116
Helena Kyriazopoulos
Convenor
National Cross Cultural Dementia Network
Inside this issue:
My Language Portal 1
Two new reports on dementia available
2
Steki Tis Haras 3
From Queensland 4-5
My Language 6
Bowls, Bingo and Bocce 7
Educations Translates to better health
8
CU LT U RA L NEW S
December 2007 Volume 2, Issue 4
Alzheimer's Australia N a t i o n a l C r o s s C u l t u r a l D e m e n t i a N e t w o r k N e w s l e t t e r
An Australian Government initiative
Screening and Diagnostic Assessment of Non-English speaking people with dementia
Models used for illustrative
purposes only.
Page 2 Cultural News
THE NETWORK
Convenor
Helena Kyriazopoulos
Alzheimer’s Australia SA
NSW
Yvonne Santalucia
South West Sydney Area Health
Service
Nicky Hayward-Wright
Alzheimer’s Australia NSW
VIC
Natalija Nesvadba
Alzheimer’s Australia Vic
Jaklina Michael
RDNS
QLD
Dino Bazarbassis
Nova Community Care
Julie Smeros
Aged Care Qld
WA
Frank Schaper
Alzheimer’s Australia WA
Maria Bunn
Multicultural Aged Care Services WA
ACT
Lily Muthurajah
Multicultural HaCC
SA
René Grypma
Northern Mental Health Services
Gosia Skalban
Domiciliary Care
TAS
Monika Dutkiewicz
Migrant Resource Centre
NT
Dr Sadhana Mahajani
ACAT Northern Territory
Australian Government
Chris Mitchell
Alan Landford
Alzheimer’s Australia
Helen O’Brien
Web Links
Alzheimer’s Australia www.alzheimers.org.au
Alzheimer’s Disease International
www.alz.co.uk
Australian Government www.australia.gov.au
Australian Multicultural Foundation
www.amf.net.au
Cultural Diversity in Ageing www.culturaldiversity.com.au
Federation of Ethnic Communities Council
(FECCA) www.fecca.org.au
New Online Resource on Culturally Appropriate Aged Care:
www.culturaldiversity.com.au
Diversity in Health 2008 www.dhi.gov.au/conference
Two new reports on dementia available
Two studies on dementia were
commissioned by the Australian Government
under the Dementia Initiative. The reports
were published in January 2007.
1. Dementia Research Mapping Project
The first report was compiled by a team led by the University of
Queensland. The Dementia Research Mapping Project was
designed to provide users with a summary of current academic
research on various aspects of dementia. A wide range of
Australian and overseas research was examined. The report is
available on the Department of Health and Ageing’s website
Ageing Research Online at www.aro.gov.au.
In addition, the final report has been published in CD format and
is available to interested parties free of charge. For a copy please
contact Alex Olah, Department of Health and Ageing, Canberra
email: [email protected] .
2. Dementia in Australia – national data analysis and
development
This report was researched and authored by the Australian
Institute of Health and Welfare (AIHW). The 'Dementia in
Australia: national data analysis and development' report
presents a profile of the Australian population with dementia, as
well as discussing the characteristics and experiences of those
caring for them.
This report can be found on the AIHW website at
http://www.aihw.gov.au/publications/index.cfm/title/10368
Hard copies can be purchased for $37 by calling 1300 889 873.
Dementia Network Update # 15, July 2007 pp2-3.
Page 3 Volume 2, Issue 4
To Steki Tis Haras
Fronditha Care Inc. provides a host home
program called “To Steki Tis Haras” ( “The
haven of happiness”). It is a respite program
which is funded by the Southern
Commonwealth Carer Respite Centre. The
program’s aim is to provide leisure and
socialisation for older persons experiencing
early stages of dementia and respite for
carers. The program is delivered in a culturally
and linguistically appropriate and sensitive
manner. This is even more important for
dementia clients who generally revert back to
their original language.
Eligible clients must reside in Southern
metropolitan areas of Melbourne. The program
takes place in the home of a qualified carer
(Host Carer). All workers undergo police
checks and have relevant training (minimum
Certificate 111 in Aged Care). The host home
is inspected for safety, hygiene and general
suitability.
WHO IS ELIGIBLE
• Older persons of Greek speaking
backgrounds.
• Older persons who are experiencing
early stages of dementia.
• Older persons living at home with the
support of a carer.
• Older persons who are low level care
and are mobile.
• Older persons residing in Southern
Metropolitan areas of Melbourne.
WHO CAN REFER?
• The individual
• Family or friends
• Doctor
• Other service providers
PROGRAM OUTLINE
Location: Bentleigh East
Day of operation: Thursdays between
9.30am—2.45pm.
(Program does not run on Public Holidays)
Cost: $5 per session
Each session includes morning and afternoon
tea and a Greek midday meal.
ACTIVITIES:
• Discussion Groups
• Games
• Arts and Crafts
• Music
• Companionship
• Reading
• TV / Movies
• Gentle Exercise Program
• Outings
For further information contact the Coordinator
of the program Sonya Illiadis on
(03) 9552 4126.
Q U E E N S
Page 4 Cultural News
Promoting calmness with aromatherapy
Research shows that the soothing and calming effects of aromatherapy may be useful in easing
behaviours of concern in people with dementia.
In May Alzheimer’s Australia (Qld), the Aromatherapy College of Australia and Greek Orthodox
Community Care(GOCC) jointly presented an aromatherapy workshop especially for members of the
Greek community who are family carers of a person with dementia. The free workshop was presented in
English and Greek by a qualified aromatherapy teacher, together with an accredited interpreter. The
workshop was the first collaboration between GOCC and Alzheimer’s Australia (Qld) to present a course
for carers in the Greek community.
“We are very excited about providing the Greek community with equal access to information on
dementia we believe will be useful to carers,” said Julie Smeros, Program Manager Community
Packages at GOCC.
“We find that while there is a high incidence of dementia in the community, carers are often reluctant to
seek help with their caring role. The caring role is seen as an intrinsic part of our culture and we are
keen to introduce the concept of seeking assistance, rather than waiting until the difficulties have
become a crisis situation.
“We believe that if we can encourage carers to seek help in the early stages by participating in courses
on a regular basis, they will be better able to cope and remain in the caring role for as long as they
wish,” she said.
Topics included: what aromatherapy is and how it works; the particular essential oils that are useful for
someone with dementia; and demonstrated various methods of application to suit individual preferences.
Alzheimer’s Australia (Qld) is keen to work with any aged care organisations to present the half-day
aromatherapy workshop for family carers and people with dementia. For further information please call
Meg at the Brisbane Dementia and Memory Community Centre on (07) 3895 8200.
Alzheimer’s Australia (Qld)’s first dedicated
course for Italian-speaking family carers of
people with dementia was held in Mareeba in
May. Working with Diversicare, the Living
with Dementia - Family Carer’s Course was
delivered to fourteen carers with the help of
an interpreter.
“We are always keen to share our dementia
expertise and resources so we work with
community groups to develop courses that are
as appropriate and accessible as possible,”
said Education Services manager Shana Day.
“The Mareeba course was well received and
we are happy to talk to other family carers
who feel they could benefit from something
similar.”
For more information contact Alzheimer’s
Australia (Qld)’s Service Development
Manager, Shana Day, on (07) 3895 8200.
First course for Italian family carers
Q U E E N S L A N D
Page 5 Volume 2, Issue 4
Greater community reach thanks to
Wicking Trust funds
Thanks to ongoing funding from the JO & JR
Wicking Trust, Alzheimer’s Australia (Qld) has
expanded its education program to help provide
essential dementia information to culturally and
linguistically diverse (CALD) communities across
Queensland.
According to Alzheimer’s Australia (Qld)’s Manager
Service Development, Shana Day, a key aim of the
project is to support CALD organisations who wish
to run and promote education sessions in their own
communities.
“We believe it is essential for communities to feel
in control of their information needs and for
education to be delivered in culturally appropriate
ways by people who are known and trusted by their
local communities. We are consulting with a range
of organisations in metropolitan areas to determine
how our community education program can meet
their specific needs. Responses have been very
positive.
“Our education program emphasises the
importance of consistent content and delivery
methods to eliminate any risk of inaccuracy or
personal interpretation of information. It is vitally
important that the information provided is correct
and can be backed up with quality take-home
materials.
“This is an exciting initiative that would not have
been possible without the support of the JO & JR
Wicking Trust. We anticipate further expanding the
program into Cape York communities in the near
future,” said Shana.
Four 30-minute modules have already been
produced. These cover; Therapies and
Communication; Coping with Placement;
Information for Family and Friends; and Memory
Changes. The modules can be presented together
to make a two-hour session if preferred.
Topics were selected following consultation with
consumers and feedback from earlier education
sessions. The program also uses the
comprehensive Dementia Help Sheets available
from Alzheimer’s Australia.
To learn more about Alzheimer’s Australia (Qld)’s
community education programs, please call
Education Services on (07) 3895 8200.
Page 6 Cultural News
My Language
Public libraries play an important role in providing the community with access to information. In our multicultural society one of the challenges for libraries is to ensure that information resources are available in the languages spoken by community members who come from non-English speaking backgrounds.
Over the last decade the internet has become a well established resource within public libraries that enables access to a huge range of online information resources. It can also expand the breadth of available information to people who need to access information in their first language.
A collaboration between the state and territory libraries of NSW, QLD, SA, VIC, WA, NT and ACT has resulted in a practical website that allow people to easily find a wide range of information resources in their first language. MyLanguage.gov.au has been developed to allow public libraries to facilitate culturally and linguistically diverse communities’ access to the internet. Through access to aggregated data in over sixty languages, the portal provides access to resources such as search engines, web directories, government websites and updated news headlines.
The MyLanguage concept was inspired by three key ideas: the first is that the Information Society is dependent on fostering access to and publication of multilingual and multicultural information; that libraries are crucial as gateways to multilingual information resources; and that technology and the internet are necessary components to developing access to information and resources for new and emerging communities.
http://www.mylanguage.gov.au
The MyLanguage website is developed by the State Library of Victoria on behalf of the MyLanguage consortium. For more information contact Vicnet, a division of the State Library of Victoria (03) 8664 7001.
www.dhi.gov.au/conference
On 26 July 2007, the Centre for Culture, Ethnicity and
Health (CEH) in partnership with the Ethnic
Communities’ Council of Victoria (ECCV) held a seminar
to explore how well our migrant communities are ageing
in Victoria. The seminar sparked a great deal of interest
from government and the health and aged care sectors,
with over 80 people attending on the day.
The seminar called upon a panel of six experts with
different areas of expertise in the area of positive
ageing. The panel of speakers was introduced by CEO
of North Richmond Community Health Centre, Demos
Krouskos, with following discussion facilitated by Peter
van Vliet, Executive Officer of ECCV.
Barbara Mountjouris, Director of the Office of Senior
Victorians set the context for the seminar by outlining
the Victorian Government’s positive ageing strategy and
related initiatives, emphasising the importance for future
policy to consider the social and economic impacts of
our increasing longevity.
Sue Hendy, Executive Director of the Council on the
Ageing (COTA) posed the question of what ‘healthy
ageing’ and ‘ageing well’ translates to in diverse
languages and cultures and presented her view that
‘ageing well’ can be measured by how we feel about
ourselves as we age. Sue also highlighted the
importance of maintaining lifestyle choices for the baby
boomer generation as this generation comes closer to
hitting retirement, and the social and economic impacts
of these changing expectations of our older population.
Marion Lau, a passionate advocate for ethnic
communities and the current chair of the ECCV Aged
Care Committee presented her view that since the
beginning of the Victorian ethnic movement in the early
1970’s, a bed of roses for migrants from CALD
backgrounds remains to be seen, cautioning the
audience that without governments and communities
genuinely working together towards breaking down
barriers to access and participation for our CALD
communities, our ageing migrants could well be faced
with “a bed of thorns.”
Elisabeth Drozd, Executive Officer of Australian Polish
Community Services outlined the seven principles of
the1998, Commonwealth Charter of Public Service in a
Culturally Diverse Society and suggested that when
evaluating the responsiveness of Governments to our
culturally and linguistically diverse population, the
Charter should be seen as a key point of reference.
Dr Susan Feldman of Monash University spoke about
the intricacies of how men and women experience
ageing and how gender frames men’s and women’s
roles, identities, fit, responsibilities and expectations as
they age and the double jeopardy of disadvantage that
language and cultural barriers can add to the experience
of ageing.
Stavroula Mavroudis, Manager of Aged and Disability
Services at Australian Greek Welfare Society stressed
that ageing and positive ageing are issues for all
generations, and called for images, views and
experiences of culturally and linguistically diverse older
people to be included when tackling the issue of ageism
in our broader community. Stavroula also
acknowledged the importance of ethnic senior citizens
clubs and social groups in maintaining social interaction
and engagement for the Greek community as they age.
Finally, Michael Hillier, Socialisation Coordinator at the
Brotherhood of St Laurence made note of the current
lack of widespread funding for positive ageing and social
support initiatives; where the bulk of funding comes in
the form of generally once-off grants for seniors’
exercise programs or small amounts of funding provided
to aged care providers to run social support groups
through the Home and Community Care program.
Michael also highlighted the importance of supporting
the positive ageing of our community by honouring
people’s individual interests and for programs to provide
opportunities for individuals to meet like minded people
rather than like aged or able bodied people.
Comments made during the following panel discussion
and close of the seminar included the recognition of
diminishing social space and opportunities for people to
access and meet in safe areas and that as we lose
these opportunities to maintain social friendships, we
become unwell. Calls were made for the need to
evaluate how far governments have come in instituting
culturally inclusive and appropriate policies and
programs. Proposals were made for the development of
a multicultural aged care strategy and the need to
include our newer arriving migrant community members
in dialogue about ageing, as well as looking to our
migrant communities as positive examples of leading
healthy lifestyles as they age.
The seminar prompted a great deal of interest and
discussion about the way in which our CALD
communities are ageing within out wider community.
This highlights the need for a great deal more work to be
done in the area by both governments and the general
community.
Natasha Kukanja
Policy officer, Aged Care
ECCV
Bowls, Bingo and Bocce Exploring How Well Our Migrants Are Ageing
Page 7 Volume 2, Issue 4
Page 8 Cultural News
Noeliniz Ve Yeni Yiliniz Kutlu Olsun
Boze
Narodzenie
Καλά Χριστούγεννα και
Ευτυχισµένο το Νέο
Ετος
Chung Mung Giang Sinh
Buone Feste Natalizie
Kala
Christouyenna
Zalig kerstfeest
Boas Festas
Selamat Hari Natal
Sung Tan Chuk Ha
Merry Christmas
From the National
Cross Cultural
Dementia Network.
Royal District Nursing Service
(RDNS) clients originally from
Macedonia will benefit from a newly
launched education package that will
help them to manage their diabetes.
Diabetes is a chronic health
condition becoming increasingly
prevalent in Australia, and
Australians born in some overseas
regions are at greater risk of
developing the illness.
“The Macedonian Diabetes
Education Package was developed
to provide RDNS nursing staff with a
culturally appropriate resource for
client and carer education as one
component of the overall
management of diabetes’ explains
Jaklina Michael, RDNS’ Cultural
Liaison Coordinator.
With over 30% of RDNS’ clients born
in non-English speaking countries,
ensuring their equal access to our
services is achieved through RDNS’
Cultural Planning Framework. Via
this channel, and with the support of
RDNS’ Clinical Leadership Group on
diabetes a dedicated Macedonian
education package on diabetes was
developed.
Macedonian was chosen as the
feature language for the pilot
program as research showed there
were very few resources available in
that language, and what literature
was available was aimed at too high
a level of literacy.
Co-managing the project were
Jaklina Michael and Tracy Aylen,
one of RDNS’ clinical nurse
consultants in diabetes. They
developed the project in partnership
with Macedonian Community
Welfare Association Inc. and through
extensive consultation with the
Macedonian community.
“The final education package
includes a set of guidelines, bilingual
information sheets, a flip chart as
well as audio resources including a
tape, CD and transcripts” said
Jaklina.
”The package is used by RDNS
nurses to assess the learning styles
and needs of Macedonian clients
and carers and assist them with the
self-management of diabetes.”
“Importantly, it provides a template
that can be adapted in the future to
enable RDNS to provide similar
products and benefits to other ethnic
groups and on other health related
topics, such as dementia”
The package received the Lilly
Innovation Award at the 2006
Australian Diabetes Educators
Association Annual Scientific
Meeting.
The Macedonian Diabetes Education
Package is available for sale. The
order form is available on the RDNS
website: http://www.rdns.com.au/NR/
rdonlyres/266D7ABD-21AA-4125-
AFC8-9ED9E08EBDEF/10489/
OrderformAllPub2007.pdf
Questions about the package can be
directed to Jaklina Michael –
[email protected] or (03) 9854
3444
JAKLINA MICHAEL
Cultural Liaison Coordinator
Royal District Nursing Service
Education translates to better health Royal District Nursing Service, Melbourne