save 100 babies©: engaging communities for just and equitable birth outcomes through photovoice and...
TRANSCRIPT
NOTES FROM THE FIELD
Save 100 Babies�: Engaging Communities for Just and EquitableBirth Outcomes Through Photovoice and Appreciative Inquiry
Fleda Mask Jackson • Ama R. Saran •
Sharon Ricks • Joyce Essien • Kevin Klein •
Darryl Roberts • Natasha Worthy
� Springer Science+Business Media New York 2014
Abstract This paper presents a community engagement
model designed to advance social justice and equity for
African American birth outcomes through the combined
techniques of Photovoice and Appreciative Inquiry. In
response to the persistent racial disparities in birth outcomes,
Save 100 Babies� was constructed as a 2-day summit where
the emphasis was placed on individual and community assets
rather than deficits. The engagement was designed to create a
level of readiness among individuals working within and
outside the field of Maternal and Child Health to envision
strategies to attain equitable birth outcomes. The goal of the
conference was to facilitate higher level consciousness by
guiding the participants though a process aimed at articu-
lating assets, possibilities and the potential for co-creating
the desired future where racial disparities in birth outcome
are eliminated. As the result of the guided discourse that
began with photographs of the lives of African American
women, participants articulated the strengths they detected
from the pictures, their recommendations for multifaceted
changes in policies and practices, and their individual and
organizational commitments for a changed future. Since the
summit, participants have indicated ways they have fulfilled
their vows that include informing families and communities
about pregnancy risks, working with youth programs, sup-
porting fatherhood involvement in pregnancy and birth, and
advancing case management that is more attuned to women’s
strengths. Save 100 Babies� is evolving into a network and
clearinghouse for sharing and disseminating information and
resources for collaboration.
Keywords Black infant mortality � Health equity � Social
justice � Community engagement � Resilience and assets �Photovoice and Appreciative Inquiry
Introduction
We seek engagement through dialogue, leadership
development, collaboration, and new models of
organizing.
W. K. Kellogg Foundation [1].
F. M. Jackson (&)
Psychology Department, Spelman College, Atlanta, GA, USA
e-mail: [email protected]
F. M. Jackson
Save 100 Babies, Atlanta, GA, USA
A. R. Saran
National Center for Health Behavioral Change, Morgan State
University, Baltimore, MD, USA
e-mail: [email protected]
S. Ricks
U.S. Department of Health and Human Services, Region IV,
Atlanta, GA, USA
e-mail: [email protected]
J. Essien
Rollins School of Public Health, Atlanta, GA, USA
e-mail: [email protected]
K. Klein
Uncharted Territories, Asheville, NC, USA
e-mail: [email protected]
D. Roberts
Mt Welcome Baptist Church, Decatur, GA, USA
e-mail: [email protected]
N. Worthy
Atlanta Healthy Start, Center for Black Women’s Wellness,
Atlanta, GA, USA
e-mail: [email protected]
123
Matern Child Health J
DOI 10.1007/s10995-014-1436-9
This paper describes a model of community engagement
used to advance health equity and social justice in the
crusade against the disproportionately high rates of black
infant deaths. The model focuses on capitalizing on indi-
vidual and community assets, rather than the stereotypical
challenges most often associated with black expectant
mothers and their newborns. Through the combination of
effective tools and other resources, the model demonstrates
a novel approach for convening individuals and organiza-
tions around the goal of ensuring that all babies are born
healthy.
Community engagement is ‘‘the process of working
collaboratively with and through groups of people affiliated
by geographic proximity, special interest, or similar situa-
tions to address issues affecting the well-being of those
people’’ [2]. Two of the most significant expectations of
successful community engagement are: (1) the establish-
ment of positions and strategies to guide empowering
interaction and (2) the mobilization of community con-
stituents for decision making and social action [2–4]. Thus,
for community engagement to advance the goal of social
action, it is essential that the process be constructed to yield
opportunities for mutual and empowering discourse.
To address the issue of black infant mortality, the
techniques of Photovoice and Appreciative Inquiry were
used to generate meaningful and constructive dialogue that
supplanted the customary ‘‘life deficit’’ discussions about
the reproductive outcomes of African-American women.
The engagement was designed to create a level of readiness
among individuals working within and outside the field of
Maternal and Child Health (MCH) to envision strategies to
attain equitable birth outcomes.
Background
In the spring of 2008, the documentary When the Bough
Breaks aired nationally as part of the award-winning Public
Broadcasting System (PBS) seven-part series, ‘‘Unnatural
Causes: Is Inequality Making Us Sick’’ [5]. The film illu-
minated the facts surrounding black infant mortality and
cast a spotlight on the issues for African-American moth-
ers-to-be in Metro Atlanta through its compelling illustra-
tion of the harmful effects of racial inequality on birth
outcomes [6–11].
In Georgia, African Americans experience the highest
rates of infant deaths: African American (12.3 % per
1,000), Whites (5.7 %), Hispanic, and Asian (3.8 %) [12].
Comparable to Georgia and the nation, the data for
metro Atlanta indicates that many African American
communities also experience disproportionately higher
rates of infant deaths. Atlanta, according to the latest US
Census Bureau Report has an African-American population
of 54 % [13]. Despite the area’s reputation as a hub for
racial progress—professionally, economically, culturally,
and socially—the data consistently shows that black babies
there also are twice as likely to die before their first
birthday [6].
The explanations for the racially disparate birth outcomes
are as multifaceted as they are challenging to comprehend.
Various studies have consistently linked racial stress to poor
health and well-being, which includes poor birth outcomes
[8–11]. Furthermore, research conducted in Atlanta con-
firmed racial and gendered stress’ (gendered racism) asso-
ciation and prediction for significant pregnancy risk [9, 11].
The imbalance of stressors, adequate support, and effec-
tive coping mechanisms have been established as significant
contributors to black infant mortality [9, 14]. Therefore, the
conditions that bolster individual resilience and community
resourcefulness hold promise for creating sustainable indi-
vidual and community-level interventions. In other words,
strategies for eradicating racially disparate birth outcomes
require a focus on creating the conditions necessary to pro-
duce birth outcomes that are both positive and equitable.
Health equity ensures that all people have access to what
is needed to obtain the highest living standards for optimal
health. It also embodies an intentional consciousness and
activation of the authentic knowledge that individuals and
communities hold to navigate their lives. Consideration of
the conditions under which people are born, grow up, work,
and age, e.g. the social determinants of health and the
systems of health care, are therefore critical factors in the
health equity equation [15, 16]. The growing emphasis on
the social determinants of health warrants a broad range of
expertise and insights for drawing the connection between
life experiences and health outcomes. This presents both a
challenge and an opportunity for designing approaches to
cross-sector engagement that is informed by empirical
studies on racial and gendered stress. Ideally, engagement
for just and equitable health outcomes must seek to enroll
cross-sector individuals and organizations in ways that
facilitate and capitalize on the mutual exchange of infor-
mation, knowledge, best practices, and recommendations
for effective transformation.
Community Engagement Through Photovoice
and Appreciative Inquiry
Advanced by Wang and Burris to inform and mobilize
individuals, communities, and organizations for change,
Photovoice was developed for small and large group
interaction. The approach utilizes photographic images to
elicit facilitated dialogue for identifying and interpreting
the experiences and/or settings that are most pertinent to
the participants’ lives [17, 18].
Matern Child Health J
123
Photovoice operates on the premise that images teach;
and that the interpretation of pictures, especially by those
populations most impacted by an issue, can direct action
and inform policy. Accordingly, the technique is an
effective tool for information gathering, participatory needs
assessments, asset mapping, and evaluation. Photovoice is
most suitable for uncovering women’s lived experiences
across life stages, and evaluating and addressing those
conditions impacting women’s health [19].
Wang and Pies developed a Photovoice process for
enhancing MCH agency assessment and evaluation that
used images and the interpretation of these images that
gave staff providers keen insights into community issues as
a context for their quantitative assessments [19]. In an
investigation on potential shared housing arrangements, the
photographed images and responses from intergenerational
African-American women suggested indications of con-
vergent experiences and relationship formation as the result
of their participation in the process [20]. Likewise, a
Photovoice study on lower-income women’s access to
healthy foods revealed not only the difficulties in obtaining
the food, but also the ways that women, nonetheless, felt
empowered to amass what they needed for their families
[21].
The conceptual frameworks for Photovoice are steeped
in Friere’s participatory action work and feminist/woman-
ist theories, emphasizing voice (empowered self-expres-
sion) for those populations most vulnerable to an issue
[22–24]. Friere and others have identified the levels of
responses oppressed people have to their lives. The lowest
levels reveal feelings of entrapment, helplessness, and
passivity. In contrast, the highest level demonstrates self-
efficacy and the readiness to act based upon the ability to
envision ones’ own contribution to a new future [20, 25].
The highest level response is best achieved when dialogue
is facilitated in ways designed to emphasize individual
assets and strengths.
Appreciative Inquiry (AI)—as the complementary
methodology used in this model—is a positive, strength-
based, group facilitation approach. The emphasis is on
helping individuals to see what works, as opposed to fixing
what is wrong. Created by David Cooperrider as a method
for organizational development, it has been applied to
businesses, government agencies, and religious institutions
[26, 27]. Its goal is to prevent individuals from feeling
helpless by energizing them through a focus on available
assets, possibilities, and their potential influences in co-
creating their desired futures.
The questioning in AI revolves around four foci: dis-
covery, dream, design, and delivery [28]. Beginning with
interviews and narratives in which participants describe
optimal performance and functioning within their settings
(discovery), the conversation is then directed toward future
possibilities (dream), visioning for achieving those aims
(design), and identifying plans of action (delivery). It has
been asserted that AI presents a promising approach for
addressing the issues of health disparities in a manner that
has greater possibilities for sustainable change [28].
Designing Save 100 Babies�
Save 100 Babies�—a translation of the Atlanta-based
research on assessing racial and gendered stress –was
successfully presented and well received at a summit
conference. The conference initiative was conceived to
generate community engagement, ignite emphasis on
individual resilience, uncover community resourcefulness,
and identify the changes in practices and social policy
required to address MCH health disparities [29, 30].
The conference also was designed to ensure that the
experience extended beyond unidirectional presentations to
encourage attendee participation. Discourse was promoted
through the facilitated processes of Photovoice and
Appreciative Inquiry, which were adapted for a conference
format. The use of these two techniques was a formative
encounter. Attendees with a broad spectrum of knowledge
and experiences were brought together to identify the
possibilities for their individual and collective contribu-
tions to changing the status of black infant deaths.
The title of the conference was derived from projections
of the number of babies that could be saved in Metro
Atlanta counties if the rates for preterm deliveries in
individual counties were reduced by 50 %. Held at and co-
sponsored by Atlanta’s historic Ebenezer Baptist Church,
the setting underscored black infant mortality as an issue of
social justice; human and civil rights; and a moral obli-
gation that can only be remedied through a multi-layered
approach.
Participants and Procedure
More than 100 women and men of diverse backgrounds
participated in the summit, representing a broad spectrum
of urban communities and health care, education, housing,
employment, social service, faith-based, and advocacy
organizations and agencies. Many of the participating
individuals and organizations represented the professional
and community networks of the summit planning com-
mittee and presenters.
Marketing efforts for the conference included the
widespread distribution of brochures, flyers, and e-mail
invitations emphasizing the event’s focus on equity and the
social determinants of birth outcomes. Before the day of
the summit, the Center for Black Women’s Wellness, a
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123
summit co-sponsor, distributed disposable cameras to their
clients, asking the women to photograph and create journal
entries about a day in their own lives to include images of
themselves that illustrated the settings in which they car-
ried out their lives. These women were individuals from
the community surrounding the Center who were enrolled
in the Healthy Start program, or clients eligible to enroll in
the Center’s wellness clinic.
Institutional review board clearance was not required for
this conference; however, prior to the event, the women
signed forms granting permission for their pictures to be
shown during the summit. Black and white photos were
enlarged to poster size with excerpts from the journals
printed on them and prominently displayed throughout the
conference venue.
Note takers/scribes were assigned to record and reflect
on the participants’ responses to the Photovoice images and
to the battery of AI questions they were asked. Notes were
then analyzed to determine the themes that emerged from
the conversations.
The Process
The summit agenda incorporated a variety of components,
each designed to elicit and disseminate information of
critical value in helping the participants achieve their
shared goal. The scheduled agenda was:
1. An introductory presentation that outlined the goal of
the conference
2. A viewing of the documentary, When the Bough Breaks
3. An overview of data relating to black infant mortality
4. Facilitated small group sessions guided by Photovoice
and Appreciative Inquiry
5. Large group sessions for sharing the discussion from
the small groups, and
6. A panel discussion that focused on MCH practices and
policies
Facilitated Small Group Sessions
Appreciative Inquiry (Discovery)
Introductory sessions began by asking attendees to talk
about why they came to the summit. Subsequently, the
participants were divided into pairs and asked to identify a
specific time when they felt cared for and loved. Those
conversations were followed by sessions in which the
participants were divided into groups and shown the pho-
tographs with the journal entries hidden.
Photovoice and Appreciative Inquiry (Discovery
and Dream)
Participants were then asked to provide responses to the
photos. They also were prompted to comment on the
images by elaborating about what they saw that could have
a positive impact on pregnancy and birth.
In the first session, participants responded to a woman’s
photograph of her nearly empty pantry, which she descri-
bed as:
The pantry is basically bare. I do have my cereal that
I get off of WIC vouchers and pretzels. Everything
else in there is phone books, trash bags, and alumi-
num foil. I know that my mother wonders why we are
always at her house to eat.
The second photo depicted a preschool boy sitting on a
neatly covered bed, pillows at his back with a blanket
bearing the name of a college folded across his lap. His
mother’s comment:
This is the bed my son and I share. He’s getting
bigger and likes to move around a lot where neither
one of us gets a good night’s sleep because we are
both uncomfortable.
Second session attendees viewed a pregnant African-
American woman gazing over a park while seated on the
landing of a wooden playground structure. She wrote:
Me? Seven and a half months pregnant wife and
mother of a two-year old, just thinking about the
difficult things that my family and I are going through
right now.
The second photo in this session was an image of two
slightly crumpled dollar bills with several coins scattered
across them. The woman who took the photo wrote:
Money is very low. I’m unable to work and my
husband is working as hard as he can to get a job to
take care of his family.
Photovoice Higher-Level Responses and Appreciative
Inquiry (Design, Delivery)
The conversation about the images continued with the
participants being asked to express how they saw them-
selves, their communities, and the organizations partici-
pating in the quest for equitable birth outcomes. The
session ended with members of the group being asked to
articulate their individual and collective commitments to
ensuring that babies are born healthy.
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123
Outcome: What They Said
Appreciative Inquiry and Sharing Their Lives
(Discovery)
Participant responses included the following comments and
revelations:
I came to be a voice for children: one woman, one
baby at a time.
As expressed by this participant, black infant mortality
was seen as a social justice issue. While venting frustra-
tions over the lack of progress, participants also articulated
a commitment to change:
[I]want to do something different in terms of strategy;
things are getting worse.
Individuals also expressed their desire for more informa-
tion and networking opportunities:
I want to understand the problem from a gender,
racial and human perspective;
[I want] to connect with others who want to do better
in combating this problem.
The two-person conversations revealed periods when
participants had received support and encouragement from
family and friends during crises and as they worked toward
particular goals. Their sharing provided indications of them
feeling empowered and self-confident as a result of the
support they had received.
Photovoice and Appreciative Inquiry Responses
(Discovery and Dream)
A Toddler Seated on a Bed
Seeing a child and a mother sleeping in the same bed
(co-sharing) does not remind me of abuse. In my
culture, children and mothers share the same bed.
There are cultural differences; so, different cultures
may think different about things.
Another participant, however, disagreed with this
perception:
Abuse may be an issue, since the child and mother are
sleeping together in one bed; He may witness the
sexual experiences of his mother.
Others viewed the picture as evidence of stability, order,
and educational aspirations:
The blanket on the bed has the name of a college; this
is a positive image for the family. The mother may be
pursuing a college education. Seeing the name of a
college and knowing there is a focus on education
may be very motivating for the children.
A Pregnant Woman in a Park
She is well dressed; a woman of hope.
Was she poor? Session members challenged this
assumption, principally because of the way she was dres-
sed. They also viewed her being married and her children
having a father living in their home as positive:
The family is intact. While unemployment may be an
issue, the importance of the family must be
remembered.
Still, other observers interpreted the woman’s forlorn
expression as signaling stress, hopelessness, and guilt about
her being unable to work.
Two Dollars and Some Change
All agreed that the picture of the two one-dollar bills and
coins symbolized poverty and the stress of income
inequality:
Should some people have to be underpaid? A person
is doing everything to try to have a good life, but
wages are low. As a country, we have a moral obli-
gation to help the families that are struggling. Low
pay is intentional. Minority employees see others get
the promotion, but they work just as hard. It causes
stress.
An Empty Pantry
The picture of the food-bare pantry also was seen as
indication of income inequity. Yet, once participants were
made aware of the mother’s social support, the fact that she
and her children often had their meals with her mother who
lived in the neighborhood, one response was:
At least she has a family nearby to go to.
What Do Women, Men and Families Need to Produce
Healthy Babies? (Design)
Social support and the presence of needed resources were
viewed as foremost for producing positive birth outcomes.
The conversations centered on interventions for reducing
the stress for expectant mothers and fathers. Regarding
prenatal care and the attention on emotional health, one
individual asked:
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123
Is there a set of questions that OB/GYNs ask during
prenatal visits that would help referrals for mental
and physical health?
Participants recommended stress reduction classes and
other support resources to alleviate psychosocial pregnancy
risk.
The discussions about the impact of pregnancy on men’s
lives examined their contributions to healthy birth out-
comes. One participant noted that the effects of pregnancy
loss on men is seldom explored, asserting that:
Men should be as equally supported as women.
The Role the Black Church
The role of the Black Church in ameliorating the stress and
strife as women await the birth of a child was the focus of
much of the dialogue. Understandably, given the location
of the summit, faith-based organizations were named
prominently as key sites for attending to the emotional and
instrumental needs of pregnant women. As sanctuaries
where the attributes of the individuals are routinely
affirmed, still more can be done to nurture and care for the
needs of pregnant African-American women.
A discussion ensued; affirming and challenging the
institutional role and responsibility of the Black Church to
address the social determinants of birth outcomes. The
consensus that arose from this discussion was:
The church must continue to be, said one of the
participants, the place where people can go to get
what they need…[we must] reintroduce the church as
an integral support system for pregnancy and birth via
mothers, aunties, neighbors, members.
Referencing pregnancy and birth within a religious context,
one individual commented:
Use [the church] as the sacred space model as pre-
vention for infant mortality; pregnancy as a life cel-
ebration; honoring the process through rituals;
recognizing the women’s/mother’s need for time out.
Likewise, the role of public and private institutions, such
as the workplace and educational institutions (K-12), were
also the subjects of engaged discourse. The recommenda-
tions included permitting longer maternity leave and
making certain that all school-age children have mentors.
What Will You Do? (Delivery)
The transition into commitments for changing the land-
scape of black birth outcomes began with conversations
about the innumerable possibilities for families and com-
munities. Participants stated they would educate family and
community members about the seriousness of black infant
mortality and the importance of healthy living, including
finding ways to reduce racial and other stressors.
Creating healthy communities in the participants’ own
neighborhoods and churches was viewed to be among the
ultimate goals. Thus, they expressed a willingness to
advocate for the creation and maintenance of resources
within African-American communities. For example, one
individual committed to supporting teenagers by providing
challenging experiences through outdoor exploration,
camping, water sports and leadership training sponsored by
the Boy Scouts, churches and associated counseling
services.
Political activism, beginning with grassroots organizing
for educating politicians about black infant deaths was
tethered to commitments addressing housing, work, and
income inequality. Connecting the work of citizen advo-
cacy to critical public health issues also was clearly
articulated.
For employment and fair wages, one recommendation
was to re-examine the Davis-Bacon Act involving public
finance wherein union-scale wages or higher-than-mini-
mum wages are an integral part of job creation.
According to one of the participants, this approach rep-
resents a strategy where marketplace and economic issues
converge and require government intervention to make it
possible.
Individual participants and agency representatives
offered ways in which they might redirect their profes-
sional work. The commitments included:
• A local district health department representative ded-
icated his agency to enrolling 75 % of the pregnant
women in his district into prenatal case management to
serve as additional support, while a national govern-
mental health organization committed to collaborating
on grassroots activities for healthy pregnancies.
• A nonprofit organization devoted to hurricane recovery
vowed to address infant mortality during and in the
aftermath of natural disasters by making certain that the
needs of expectant mothers were systematically
addressed.
• A shelter for homeless children saw its contribution as
serving as the liaison between the shelter and any
persons or programs that support improving the
economic, educational, health, and the social well-
being of all babies and their families.
• The Georgia State Department of Labor pledged to
coordinate the development of informational hands-on
tools and resources for participants to get people trained
and back to work.
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123
• Participating professors saw their institutions as sites
for teaching students about the impact of social,
political, and economic factors on birth outcomes.
Social work students in attendance articulated the need
to research and develop new curricula for community
health workers, while other students committed to volun-
teering to work with expectant mothers to help alleviate
their stress. Sororities and other civic and social organi-
zations explored how they might incorporate reducing
black infant mortality into their agendas. Lastly, the rec-
ommendations for prenatal care centered on the holistic
approaches employed by midwives and doulas operating in
rural and urban sites who would train local community
people to implement short- and long-term prenatal care
strategies.
Discussion
The responses resulting from the combined tools of
Photovoice and Appreciative Inquiry demonstrated their
utility for translating a social justice and health equity
agenda for healthy babies into action. Photovoice tell us to
look—up close, and personal. The techniques of Appre-
ciative Inquiry direct how to look in consideration of assets
and the strengths. Their inclusion in a model for commu-
nity engagement was productive in fostering high-level
responses: participants first articulated their own successes
and supports as catalysts for recognizing the possibilities in
the lives of others. What transpired as the result of the
images and facilitated discourse was a model for uncov-
ering the context and work of social justice and health
equity pertaining to the elimination of racially disparate
birth outcomes.
Save 100 Babies� was designed as a starting point for
encouraging the readiness of cross-sector participants to
advocate and act upon the health equity and social justice
agendas for black infant mortality. Explicit in the use of
Photovoice, and the adaptation of Appreciative Inquiry,
was the belief that the goal of health equity should com-
mence at the highest level of mutual community discourse
for the exchange of information and ideas. It was through
the iterations of the AI questioning, moving from discovery
through to delivery, provided a pathway for participants
might to envision how they might contribute.
Admittedly, everyone in attendance was not initially
engaged at a high level of consciousness in visioning the
transformation for others. However, the documentary,
When the Bough Breaks, and the Photovoice images served
to enlighten the audience about the widespread incidence
and effects of infant mortality throughout African-Ameri-
can communities. Many were astounded to learn of the
cumulative impact of racism experienced over a lifetime
and how it can have a profound effect on birth outcomes
that outweighs the benefits of higher social, class, and
economic status. The images left no doubt that black
women from all walks of life are at risk for poor pregnancy
outcomes. Consequently, the responses revealed a critical
array of social, economic, and cultural assets and recom-
mendations for interrupting the linkages between poor birth
outcomes, poverty, and racism.
The participants noted the priority of social support,
resources, and information for mediating stress across their
family, community, work, and constituency networks.
Resiliency and resourcefulness within families and com-
munities were confirmed as essential for a changed future.
Participants touted personal attributes and most acknowl-
edged their presence in the lives of the women portrayed in
the photographs they had viewed. There was shared rec-
ognition that individuals who were vulnerable to poor birth
outcomes were in possession of authoritative knowledge
that could be applied to ensure healthy birth outcomes.
Social policy and community organizing for decent and
affordable housing, fair wages, and job creation were all
viewed as essential to saving babies lives. It was recom-
mended that what was learned from the summit about the
social determinants be incorporated to direct and expand
the scope of the work being done at agencies and organi-
zations serving expectant women and their babies.
Unlike the application of AI for existing organizations
and programs, the process was adapted for a limited
community engagement, with little possibility or intention
to evaluate the extent to which participants honored their
vows after the conference. Attendees gave high ratings
indicating that the summit exceeded their expectations for
learning about the issues and for the receiving guidance for
uncovering solutions.
Since the summit, some participants have anecdotally
reported progress on the commitments they made. While
the focus of the conference was on adults, some individuals
have reported increasing activities with youth as a means to
promote leadership and health for pregnancy prevention.
Other programs are expanding to support fathers’
involvement during pregnancy and birth. Housing profes-
sionals are reporting their continued advocacy for living
spaces where families can thrive. Social service agencies
and health care providers indicate expanding their capacity
for case management in ways that are attuned to women’s
strengths and their needs. The news about what individuals
and organizations are doing is being conveyed through the
evolving network Save 100 Babies� has become. The
initiative is developing as a clearinghouse for sharing and
disseminating research, information, and resources for
collaboration.
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123
Conclusion
The discourse confirmed the value of an approach for
community engagement that advances individual and
community assets, the social determinants, and most
important social justice and health equity. Their integration
signaled that the moral imperative to confront the crisis of
black infant mortality is as vital as those aims steeped in
social, economic, political and health agendas. Ultimately a
social justice and health equity agenda is a vision wherein
the needed changes exceed racial parity to reach the
highest standards for health and birth outcomes. [23].
Future iterations of the approach will pursue further pos-
sibilities for engaging cross sector communities around the
concerns of racial and gendered health equity for policy
and practice development and implementation.
As we continue to advance the willingness and capacity
of individuals and organizations to provide the infrastruc-
ture, resources, and support systems necessary for the
healthy birth outcomes of African-American babies, we are
encouraged and guided by the words of Dr. Martin Luther
King, Jr.:
The arc of the moral universe is long, but it bends
toward justice [31].
We remain in pursuit of justice.
Acknowledgments We would like to acknowledge the W. K.
Kellogg Foundation and HHS, Region IV for their generous support
of this work. Thank you to Reverend Dr. Raphael G. Warnock for
welcoming the collaboration with historic Ebenezer Baptist Church.
We also express sincere gratitude to Jemea Dorsey, Director of the
Center for Black Women’s Wellness and most especially the center’s
clients who permitted us into their lives and became the beacon
guiding the direction for just and equitable birth outcomes.
References
1. Kellogg Foundation. http://web.archive.org/web/20120629222858/;
http://www.wkkf.org/what-we-support/civic-engagement.aspx.
2. CDC/ATSDR, Office of Public Health Practice. (1997). Princi-
pals of community engagement.
3. Wallenstein, N. (2002). Empowerment to reduce health dispari-
ties. Scandinavian Journal of Public Health, 30(59), 72–77.
4. Jones, L., Meade, B., Forge, N., Moni, M., Jones, F., & Norris, K.
(2009). Begin your partnership: The process for engagement.
Ethniticity and Disease 19(4 Suppl. 6), S6, 8–16.
5. California Newsreel. http://www.unnaturalcauses.org/episode_
descriptions.php.
6. Georgia Department of Public Health. (2012). From preconcep-
tion to infant protection: A regional look at periods of risk for
Georgia’s newborns. Atlanta, GA: Georgia.
7. Women’s Health. Gov. Women’s Health in Georgia (DHHS,
Region IV): www.womenshealth.gov/quickhealthdata, Accessed
February, 2013.
8. Dominguez, T. P. (2008). Race, racism, and racial disparities in
adverse birth outcomes. Clinical Obstetrics and Gynecology,
51(2), 360–370.
9. Jackson, F. M., Rowley, D. L., & Owen, T. C. (2012). Contex-
tualized stress, global stress and depression in well-educated
African American women. Women Health Issues Journal, 22(3),
e329–e336.
10. Collins, J. W., David, R. J., Handler, A., Wall, S., & Andes, S.
(2004). Very low birth weight in African American infants: The
role of maternal exposure to interpersonal racial discrimination.
American Journal of Public Health, 94(12), 2132–2138.
11. Jackson, F., Phillips, M., Hogue, C., & Curry-Owens, T. (2001).
Examining the burdens of gendered racism: Implications for the
pregnancy outcomes among college-educated African American
women. Maternal and Child Health Journal, 5(2), 95–107.
12. March of Dimes, Peristats, Georgia. http://www.marchofdimes.
com/peristats/ViewSubtopic.aspx?reg=13&top=6&stop=105&lev=
1&slev=4&obj=1&dv=ms. Accessed September 2013.
13. US Census, Quick Facts, Atlanta. http://quickfacts.census.gov/
qfd/states/13/1304000.html. Accessed September 2013.
14. McEwen, B. S., & Steller, E. (1993). Stress and the individual:
Mechanisms leading to disease. Archives of Internal Medicine,
153(18), 2093–2101.
15. Braveman, P. (2014). What is health equity?: And how does a
life-course approach take us further toward it? Maternal and
Child Health Journal, 18(2), 366–372.
16. Commission on the Social Determinants of Health. (2008).
Closing the gap in one generation: Health equity through
action on the social determinants of health. Final Report.
Geneva, CH.
17. Wang, C., & Burris, M. A. (1997). Photovoice: Concept, meth-
odology, and use for participatory needs assessment. Health
Education, 24(3), 269–287.
18. Wang, C. C., & Pies, C. A. (2004). Family, maternal, and child
health through photovoice. Maternal and Child Health Journal,
8(2), 95–102.
19. Wang, C. C. (1999). Photovoice: A participatory action research
strategy applied to women’s health. Journal of Women Health,
8(2), 185–192.
20. Killion, C. K., & Wang, C. C. (2002). Linking African Amer-
ican women across life stage and station through photovoice.
Journal of Health Care for the Poor and Underserved, 11(3),
310–325.
21. Velera, P., Gallin, J., Schuk, D., & Davis, N. (2009). ‘‘Trying to
eat healthy’’: A photovoice study about women’s access to
healthy food in New York City. Journal of Women Social Work,
24(3), 300–313.
22. Friere, P. (1970). Pedagogy of the oppressed. New York:
Continuum.
23. Weiler, K. (1988). Women teaching for change: Gender, class,
and power. South Hadley, MA: Bergin and Garvey.
24. Collins, P. B. (2000). Black feminist thought: Knowledge, con-
sciousness, and the politics of empowerment. New York:
Routledge.
25. Carlson, E. D., Engebretson, J., & Chamberlain, R. M. (2006).
Photovoice as a social process of critical consciousness. Quali-
tative Health Research, 16(6), 836–852.
26. Cooperrider, D. L., Whitney, D., & Stavros, J. M. (2005).
Appreciative inquiry handbook. Brunswick, OH: Crown Custom.
27. Whitney, D., & Trosten-Bloom, A. (2003). The power of
appreciative inquiry: A practical guide to positive change. San
Francisco, CA: Berrett-Kochler.
28. Moore, M., & Charvat, J. (2007). Promoting health behavior
change using appreciative inquiry: Moving from deficit models to
Matern Child Health J
123
affirmation models of care. Family and Community Health,
30(Suppl 1), S64–S71.
29. Todd, J. L., & Worrell, J. (2000). Resilience in low-income,
employed African American women. Psychology of Women
Quarterly, 24(2), 119–128.
30. Jackson, F. M. (2007). Race, stress, and social support:
Addressing the crisis in black infant mortality. Washington, DC:
The Joint Center for Economic and Political Studies.
31. Craig, J. (1964). Wesleyan Baccalaureate is delivered by Dr.
King. Hartford, Connecticut: Hartford Courant.
Matern Child Health J
123