role of advocates
TRANSCRIPT
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“Stand Up to Cancer” National Televised FundraiserIntegrating the Advocate Perspective into the
SU2C Research Funding ProcessAdvocate Advisory Council
• Stand Up To Cancer will bring together the best and brightest members of the cancer
research and advocacy communities to work in a way that will transcend the barriersthat have traditionally inhibited creativity and collaboration.
• Whether they are survivors, patients or family members, advocates provide a broad
perspective of disease related issues important to their constituency. Advocatesunderstand what cancer research means to patients and their survival and theirquality of life.
• Advocates will sit side-by-side with the scientists so their perspectives will be
integrated into the direction of the research we fund.
• SU2C Advocate Advisory Council
o Leaders of about 25 key advocacy organizations will be invited to join
o Chairperson elected by majority vote of the Council
o Speak about the importance of cancer research
o Serve as a resource for the Stand Up To Cancer project by suggesting ways to
enhance this national initiativeo Formulate an advocacy action plan for public awareness
o Annually elect two members to serve on the Blue Ribbon Scientific Advisory
Committeeo Annually elect two members to serve on Innovative Grants Subcommittee
o Recommend advocates to serve on Dream Teams
o Have the opportunity to attend the SU2C television program on September 5th
o Link to SU2C website and vice versa
• “Blue Ribbon” Scientific Advisory Committee
o About fifteen highly accomplished, senior laboratory researchers and
physician-scientistso Two advocates, elected to serve one-year terms by the SU2C Advocate
Advisory Councilo Determine the most promising scientific areas (particular organ sites and other
specialized research areas) for potential funding of Dream Teamso Select Dream Team Leaders and approve Dream Team membership
o Review and approve Dream Team research proposals, milestones, and budgets
o Review Dream Teams’ progress and make recommendations regarding
adjustments in the funding (e.g., continuation, reduction) of individual Dream Teams
o Review the recommendations of the Innovative Grants Subcommittee(s) and
select a balanced portfolio of innovative funds
Criteria for selection:In order to effectively and productively take part in the Stand up to Cancer ResearchFunding Process, it is vital that the advocates are not only leaders in a nationalorganization, but also have an understanding of key concepts of cancer research. Advocatemembers selected to the SU2C Advocate Advisory Council should:
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“Stand Up to Cancer” National Televised FundraiserIntegrating the Advocate Perspective into the
SU2C Research Funding ProcessAdvocate Advisory Council
• Hold a senior leadership position in a national organization
• Have a demonstrated impact on cancer research through policy advocacy, research
advocacy and/or community outreach
• Represent a constituency of patients, survivors, or others in the cancer community
• Have experience serving on grant panels/study sections that award funds for cancer
research (e.g., National Cancer Institute, DoD Congressionally Directed MedicalResearch Programs, Susan G. Komen for the Cure, California Breast ResearchProgram) or as a patient advocate on a cooperative group, SPORE or other advisorygroup
• In addition, high priority will be given to those individuals who have successfully
completed special training for advocates (e.g., the AACR’s Scientist<->SurvivorProgram, Consumer Advocates in Research and Related Activities CARRA training of the National Cancer Institute, Project LEAD ,or an equivalent program).
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