research with alaska native plpeople · emphasis on wellness of the whole person, family and...
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Research with Alaska Native P lPeople
Denise A Dillard Ph DDenise A. Dillard, Ph.D.
OverviewOverview
1 D i ti f Al k N ti P l 1. Description of Alaska Native People and Relevant History
2. Regional Example - Southcentral FoundationFoundation
3 R l t Oth Al k N ti 3. Relevance to Other Alaska Native Regions and Other Communities
Relevant HistoryRelevant History
Health servicesHealth services
ResearchResearch
Education
Southcentral FoundationSouthcentral Foundation
An Alaska Native-owned and An Alaska Native owned and managed regional health corporation operating under the tribal authority operating under the tribal authority of Cook Inlet Region, Inc.
Setting• Southcentral Foundation provides services to…p
• 231 federally‐recognized tribes• 107,413 square miles• 60 communities• 60,000 people
Copyright © 2012 Southcentral Foundation. All Rights Reserved.NOTICE: Unless otherwise indicated, this work represents copyrighted material protected by United States and international law.This work may not be used, reproduced, downloaded, disseminated, published, transferred or transmitted, in whole or in part, in any form or by any means, electronic or mechanical, including photocopying, recording or information storage and retrieval, except with the express written permission of the publisher. This work may not be edited, altered, or otherwise modified, in whole or in part, except with the express written permission of the publisher.
Vision A Native Community that enjoys physical,
t l ti l mental, emotional and spiritual wellness
MissionWorking together with Working together with the Native Community to achieve wellness through health and through health and related services
Copyright © 2011 Southcentral Foundation. All Rights Reserved.
Key PointsyCommitment to
Q alit
Family WellnessShared
R ibilit Quality
We strive to provide the best services for the Native
community.
We value the family as the heart of the Native
community.
ResponsibilityWe value working together
with the individual, the family, and the community. y
We employ fully qualified staff in all positions and we
commit ourselves to iti g d t i i g N ti
We work to promote wellness that goes beyond
absence of illness and prevention of disease.
We strive to honor the dignity of every individual.
We see the journey to ellness being tra eled in recruiting and training Native
staff to meet this need.
We structure our organization to optimize the
p
We encourage physical, mental, social, spiritual, and economic wellness in the individual the family the
wellness being traveled in shared responsibility and partnership with those for whom we provide services.
g pskills and contributions of our
staff.
individual, the family, the community, and the world in
which we live.
Copyright © 2012 Southcentral Foundation. All Rights Reserved.
Operational PrinciplesRelationships between customer‐owner, family and provider must be fostered and supportedEmphasis on wellness of the whole person, family and community (physical, mental, emotional and
Operational Principles
spiritual wellness)Locations convenient for customer‐owners with minimal stops to get all their needs addressedAccess optimized and waiting times limitedTogetherwith the customer‐owner as an active partnerI ntentional whole‐system design to maximize coordination and minimize duplicationOutcome and process measures continuously evaluated and improvedNot complicated but simple and easy to useServices financially sustainable and viable Hub of the system is the familyI nterests of customer‐owners drive the system to determine what we do and how we do itPopulation‐based systems and servicesServices and systems build on the strengths of Alaska Native cultures
Copyright © 2012 Southcentral Foundation. All Rights Reserved.
Approach to HealthcareApproach to Healthcare
Advanced access to a medical home for families
Integration of services Integration of services
Robust quality improvement system Robust quality improvement system
Approach to ResearchApproach to Research
f Review and approval of all research activities according to criteria
bl h d b b l l d h destablished by tribal leadership and what has been heard from customer-owners
Research priorities set by tribal leadership
Review CriteriaReview Criteria
1. Alignment with Southcentral Foundation Vision, Mission, Key
d l lPoints, and Operational Principles
AlignmentAlignment
R h bl d i f Research on problems and issues of special interest to the Alaska Native community namely the Family Wellness community, namely the Family Wellness Corporate Objectives
AlignmentAlignment
Effi d ff ti f h lth Efficacy and effectiveness of health practices and processes
Emphasis on wellness
Benefits to Alaska Native people i i dmaximized
Review CriteriaReview Criteria
f2. Quality of Research Design
Quality of DesignQuality of Design All important variables including
t th / t ti f tstrengths/protective factors
Valid comparisons
Results application and disseminationdissemination
Review CriteriaReview Criteria
f3. Depiction of Alaska Native People
Depiction Depiction Inaccurate/stigmatizing/
t li tipaternalistic
Involvement in design
Preferred language
StaffingStaffing
f ff 6 out of 10 department staff are Alaska Native/American Indian
Emphasis on mentoring and Emphasis on mentoring and training
Review CriteriaReview Criteria
4. Topical Areas Considered Sensitive
ProcessProcess
Concept approvalConcept approval
I tit ti l R i B dInstitutional Review Board
Full proposal approval
Abstracts/Manuscripts/Final Reports
Research PortfolioResearch Portfolio
Ethical and Cultural Considerations Ethical and Cultural Considerations of Research Using Banked Specimens Among Alaska Native Specimens Among Alaska Native People
Pharmacogenetic Testing and Pharmacogenetic Testing and Research Among Alaska Native PeoplePeople
Depression Management in an Alaska Native Primary Care SettingAlaska Native Primary Care Setting
Focus Group Results‐ ContextFocus Group Results ContextDiffering
UnderstandingsImmediate and Future Harms and Benefits
Understandings of Research Type and
Purpose of Research
Context
and Benefits
Ability to
Research
HistoricalContextAbility to Generalize and
Appropriateness of Research
Historical Experience
with Research
Historical I j ti
Future R h
Southcentral Foundation
Injustice Research
Specimen Bank NewsletterSpecimen Bank Newsletter
Pharmacogenetics PosterPharmacogenetics Poster
What can I do about my depression?
CounselingDrugs
Healthy Eating
Drugs
Exercise
ClergyClergy
Stress Reduction
Support Groups Traditional Healing
Herbal Remedies
Exit
Relevance to Other Alaska Native People/Populations
Increasingly diverse population of Increasingly diverse population of the United States
Persistent health and other di itidisparities
Call for new approaches
Questions????Questions????
Thank You!Thank You!
Qaĝaasakung Quyanaq ‘Awa'ahdahQaĝaasakungAleut
QuyanaqInupiaq
Háw'aa
Awa ahdahEyak
Mahsi' IgamsiqanaghhalekHaidaGwich’in Athabascan
g q gSiberian Yupik
Way Dankoo GunalchéeshQuyana
Tsin'aen
Tsimshian TlingitYup’ik
Chin’anQuyanaaAhtna Athabascan Dena’ina AthabascanAlutiiq
Copyright © 2011 Southcentral Foundation. All Rights Reserved.