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Recreation Services and Quality of Life in Continuing Care in Alberta Submitted to Alberta Health 27 August 2015

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Page 1: Recreation Services and Quality of Life in Continuing Care ... · Final Report on Recreation Services and Quality of Life in Continuing Care II 27 August 2015 Summary: Recreation

RecreationServicesandQualityofLifein

ContinuingCareinAlberta

SubmittedtoAlbertaHealth

27August2015

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TABLEOFCONTENTSAcknowledgement ......................................................................................................................................... i

Research Team ............................................................................................................................................. i

Executive Summary ....................................................................................................................................... I

Background .................................................................................................................................................. 1

Methods ........................................................................................................................................................ 1

Ethics Approval ......................................................................................................................................... 1

Studies’ Purposes ..................................................................................................................................... 1

Data Collection .......................................................................................................................................... 1

Locations and Number of Participants ...................................................................................................... 3

Analysis ..................................................................................................................................................... 3

Results .......................................................................................................................................................... 4

Online Survey ........................................................................................................................................... 4

Resident Survey ........................................................................................................................................ 5

Focus Groups ........................................................................................................................................... 9

Discussion .................................................................................................................................................. 19

Recommendations ...................................................................................................................................... 20

Appendix 1 – Online Survey ....................................................................................................................... 22

Appendix 2 - Resident Survey .................................................................................................................... 29

Appendix 3 - Focus Group Tools For First Series (review of Resident Survey) ......................................... 34

Appendix 4 - Focus Group Tools For Second Series ................................................................................. 42

Appendix 5 – Literature Review .................................................................................................................. 47

Appendix 6 – Detailed Statistical Information for On-Line Survey Results ................................................. 49

Appendix 7 – References for the Report .................................................................................................... 51

Table1:Locationandnumberofparticipantsinfocusgroup......................................................................3

Table2:Staffinvolvedinrecreationbytypeandfull-timeequivalents.......................................................4

Table3:Residents’frequencyofparticipationindifferenttypesofrecreation..........................................5

Table4:Residents'frequencyofparticipationinvariousrecreationservicemodes...................................6

Table5:Residents'satisfactionwithdifferentaspectsoftheirrecreation..................................................6

Table6:Residents'qualityoflife-affect.....................................................................................................7

Table7:Residents'qualityoflife-lifesatisfaction......................................................................................7

Table8:Majorthemesidentifiedinthefocusgroups.................................................................................9

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ACKNOWLEDGEMENTThe Research Team would like to thank Alberta Health, Continuing Care Branch for their financialsupportinordertoconductthisstudy.

RESEARCHTEAM

PrincipalInvestigators

Dr.GordonWalker,UniversityofAlberta

Dr.RobertHaennel,UniversityofAlberta

ProjectManagement

Ms.SandraWoodheadLyons,ExecutiveDirector,ICCER

ResearchAssistants

Ms.MayaHari-Kishun,UniversityofAlberta

Ms.EmilyDymchuk,ICCER

Ms.JanetMayhew,ICCER

Dr.HeatherMoquin,UniversityofAlberta

Ms.TaotingLi,UniversityofAlberta

Ms.AnneLe,BethanyCareSociety

ResearchTeam

Ms.FrancineDrisner,CapitalCare

Ms.RenateSainsbury,LifestyleOptions

Ms.JenniferGrusing/Ms.MarilynWillison-Leach,AgeCare

Dr.VincellaThompson,KeyanoCollege

Ms.GailThauberger,BowValleyCollege

Ms.BevSuntjens/Dr.CraigHart,NorQuestCollege

Ms.SarahJames,AlbertaTherapeuticRecreationAssociation

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EXECUTIVESUMMARYBackground and Methodology: In 2014, Alberta Health asked the Institute for Continuing Care Education andResearch(ICCER)todeveloparesearchproposalexaminingrecreationservicesandqualityoflife(QOL)insupportiveliving (SL)and longtermcare (LTC) facilities inAlberta.Afterethicsapprovalwasobtained, threeseparatestudieswereconducted.Study1 investigatedwhospecificallyprovidesrecreationservices inAlbertaCCfacilitiesusinganonlinesurvey.Todoso,alistofCCfacilitieswasgeneratedusingtheAlbertaHealthaccommodationsearchpageinconjunctionwithpersonalcontactofCCfacilityoperatorsbyICCERrepresentatives.Ofthe65sitesthatparticipated,38(58%)wereSL,21(32%)wereLTC,and6(9%)wereboth.ResultsindicatedthatthemajorityofFull-TimeEquivalentemployeesproviding recreation services were, respectively, Recreation Therapy Assistants/Aides (31%), Health Care Aides(24%), and Recreation Therapists (17%). In contrast, the majority of Part-Time Equivalent employees providingrecreationserviceswereRecreationTherapyAssistants/Aides(52%)andHealthCareAides(23%).Study 2 investigated how frequently CC residents participated in various types of recreation; whoorganized/facilitated their recreation services; andhowsatisfied residentswerewith their recreation. Inaddition,residents reported theirQOL in terms of positive (e.g., calm) and negative (e.g., sad) affect, and life satisfaction.StatisticalanalyseswereconductedtoascertainwhatfactorsimpactedCCresidents’overallrecreationsatisfactionaswellaswhatfactorsinfluencedtheirQOL.Todoso,anon-sitesurveywasdevelopedandthenmodifiedbasedonrecommendations from two focus groups composed of CC recreation staff. Invitations were sent to CC facilitiesthrough various sources (e.g., Alberta Continuing Care Association, Alberta Seniors Housing Association, AlbertaHealth Services, Seniors' Health Zone Directors, ICCER membership). Trained research staff collected surveyinformationfromCCresidents.A total of 359 participants (SL, 47.1%; LTC, 52.9%) provided sufficiently complete information for the plannedstatisticalanalyses.Participants reported that: (a) theymostoftenengaged inmediaactivities, followedbysocial,relaxing,andexerciseactivities;(b)therecreationactivitiestheyparticipatedinweremostfrequentlyorganizedbythe resident staff, followed by self-organized, and then by family and friends; (c) their social and relaxationrecreationneedswere themost fully satisfied;and (d)overall,positiveaffectwasslightlyabove the“Sometimes”mark; negative affect was slightly above the “Seldom” mark; and life satisfaction was marginally closer to the“SlightlyAgree”thanthe“Neutral”mark.ConsistentwithrecreationandQOLresearch(Kuykendalletal.,2015)andtheory (Newman et al., 2014), frequency of recreation participation overall was found to have a significant,substantial, and positive effect on recreation satisfaction overall, above and beyond various socio-demographicfactors. Also having significant and positive impacts on recreation satisfaction overallwere (in decreasing order);whether: (a) the resident organized the recreation activity but the recreation staff facilitated it; (b) the residentorganizedtherecreationactivityontheirown;and(c)therecreationstafforganizedtherecreationactivity.Thesefindingssuggestthatresidentsmightnotonlybenefitfrommorefrequentrecreationparticipationbutalsobyhowtheirrecreationservicesareorganized/facilitated.Thelatterpropositionisfurthersupportedbythefindingthat,ifthe resident organized the recreation activity but his or her family and/or friends fostered it, the resident’srecreation satisfaction overall decreased. This may have been because residents perceived their autonomy wasbeing “thwarted” (Deci & Ryan, 2000)—an issue that potentially could be ameliorated by having recreation stafftrained in facilitative techniquesworkwith residents’ spouses, children,etc. Finally,overall recreation satisfactionwasfoundtohaveasignificant,substantial,andpositiveinfluenceonbothpositiveaffectandlifesatisfaction,aboveandbeyondvarioussocio-demographicfactors.Study3investigatedCCrecreationstaff'sperceptionsofresidents'recreationandQOL. To do so, seven focusgroupswereconductedacrossAlberta.Sixmajorthemeswereidentified,with:(a)fundingrelatedissues(e.g.,lackof funding); (b) staffing related issues (e.g., lack of staff, inconsistencies in staff training and education); (c) roleclarity related issues (e.g., recreation activity provision vs. therapeutic recreation interventions, how recreationtherapy differs from occupational therapy and physiotherapy therapy); (d) professionalism related issues (e.g.,recreation being perceived as being “shunned and discredited”); (e) program related issues (e.g., diverse andcomplexpopulations);and(f)alackofconsensusonwhatQOLisandhowitrelatestoCCresidents’lives.Basedonfocus group findings, funding appears to be the overarching issue for CC recreation staff, regardless of role ororganization, as it has a direct effect on staffing and programming and, in turn, it impacts role clarity,professionalism,andQOL.

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Summary: Recreation services play an important role in improving or maintaining residents’ quality of life.Recreation activities need to be resident-value driven and not organization-value driven. Results from this studysuggestthatwithincontinuingcarerecreationservicesareprovidedbyahostofnon-regulatedhealthcareproviderswith diverse training. Further, findings suggest that there is value in employing trained individuals in providingrecreation services. To improve the quality of recreation service and recreation therapy across the province,government needs to take steps to determine the core competency needed to provide the various recreationservices and recreation therapy. To achieve this goal there needs to be collaboration between ProfessionalAssociations (e.g.,AlbertaTherapeuticRecreationAssociation,TherapyAssistantAssociationofAlberta)andpost-secondary institutions including colleges (e.g., NorQuest, BowValley) and universities (e.g., University of Alberta)withthegoalofsettingeducationalstandardsforrecreationtherapyassistantsandtherapists.

PracticeRelated:1. There is a need for additional staff resources to providemore recreation opportunities directly, aswell as to

facilitateresidents’self-organizedrecreation.Recreationstaffmusthavethetrainingandadvancededucationtosuccessfullydoso.

2. Recreation staff need to provide guidance to residents’ friends and family members on how to facilitateresidents’ recreation without the former being perceived to be thwarting the latter’s independence andautonomy.

3. Recreation staff need education and support on how to provide meaningful and effective information onresidentsatmultidisciplinarycaseconferences.

GovernmentPolicyRelated:4. AlbertaHealth,Alberta Innovation&AdvancedEducation, andAlbertaHealth Services need tobe engaged in

work to align education, roles and responsibilities, and job descriptions of recreation services to ensureconsistencythroughouttheprovince.

5. AlbertaHealth andAlbertaHealth Services need to review funding policies for recreation services in order tobettersupportqualityoflifeinallstreamsofcontinuingcareandtoprovideanoverarchingvisionforrecreationservicesincontinuingcare.

ProviderOrganizationPolicyRelated:6. Providerorganizationsneedtoprovideongoingeducationtoallstaffontheimportanceofrecreationactivitiesto

residents.7. Providerorganizationsshouldencouragecultureshiftsthatsupportallstaffsupportingrecreationactivities24/7,

notjustwhenrecreationstaffareatwork.Thiswouldrequireashiftfromtheclinicalfocustothesocialrealm.EducationRelated:8. Post-secondary institutions andProfessionalAssociations/Colleges inAlbertaneed towork together to ensure

betterintegrationoftrainingandeducationforrecreationstaff(assistantsandtherapists),othertherapies(OT&PT),healthcareaides,andregulatednursingstaff.

9. Colleges in Alberta need to work together to provide consistent learning outcomes for recreationassistants/aides.

10. Post-secondaryinstitutionsinAlbertaneedtoexaminehowtheycanimprovequalityoflifeincontinuingcarebybetterpreparinghealthdisciplinestudents.

ResearchRelated:11. Recreationservicemodeshavenotbeenexaminedpreviously,norhavetheireffectsonrecreationsatisfaction.

Further research on this concept is therefore necessary, especially given it appears to have both positive andnegative impacts.Moreover, if the latter finding is confirmed, then applied research on how recreation staffcouldeducateresidents’family/friendstoreducethelikelihoodofautonomythwartingcouldprovebeneficial.

12. AlthoughlifesatisfactionandpositiveandnegativeaffectarethetwomostcommonlyresearcheddimensionsofQOL, there are others. “Eudaimonic” well-being, for example, focuses on feelings of vitality, meaning andpurpose,personalgrowth,etc.GivenrecreationhasalsobeenfoundtoeffectthisQOLaspect,futureresearchonthisrelationshipinCCfacilitiesisrecommended.

13. A longitudinal follow-up to this study should be conducted to examine the same variables, but overmultiplepointsintime,inordertoconfirmourstudy’sfindings.

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BACKGROUNDIn 2013 the Institute for Continuing Care Education and Research (ICCER) developed the CommunityNeedsDrivenResearchNetwork(CNDRN)toidentifyneedsfromtheperspectiveoffront-lineworkersincontinuingcare (ICCER,2014).Oneof the issues identifiedwas theneed formoreresearch lookingatthe impactof recreationandrehabilitationstaff incontinuingcare (CC), specifically in relationtohowthosestaffarefunded.Inthefallof2014AlbertaHealthaskedICCERtodeveloparesearchproposaltoexaminerecreationactivitiesinsupportiveliving(SL)andlongtermcare(LTC)facilitiesinAlberta,andtoidentifytherelationshipsamongthefrequencyandnatureofrecreationactivities,thefivedimensionsofrecreationsatisfaction,andtheimpactonqualityoflifeofindividualsinSLandLTC.

Littleisknownabouttheimpactofrecreationservicesandinterventionsonthequalityoflife(QOL)ofindividuals in the continuing care sector.Moreover, based on a review of the literature,most of theresearchthathaspreviouslybeenconductedtodatehasnotbeenascomprehensiveaswhatwouldbeideal; that is, where services are provided, to what degree, and by whom; how do recreation staffperceivetherelationshipbetweenwhattheydoandwhateffect ithasontheirresidents;andhowdoresidentsthemselvesbenefitfromsatisfyingrecreationparticipationintermsofQOL.

METHODSEthicsApprovalEthicsapprovalwasreceivedfromtheUniversityofAlbertaResearchEthicsOfficeinJuly2014.

Studies’PurposesThree separate studieswere conducted, each of which focused on different aspects of CC residents’recreationandqualityoflifeandCCrecreationstaffs’perceptionsofrecreationandQOL.

Study 1 - The purpose of this studywas to gain a better understanding of who specifically providesrecreationprogramsandservicesinCCfacilitiesinAlberta.

Study2-Thepurposeofthisstudywasthreefold.First,togaingreaterinsightintohowfrequentlyCCresidentsparticipateinvarioustypesofrecreationactivities;whoorganizestherecreationprogramsandservices residents engage in; how satisfied residents are with their recreation; and how residentsevaluate their QOL. Second, to ascertain what factors impact CC residents’ overall recreationsatisfaction.Andthird,todeterminewhatfactorsinfluenceCCresidents’QOL.

Study 3 - The purpose of this study was to gain a better understanding of CC recreation staff'sperceptionsofresidents'recreationandQOL.

DataCollectionAthree-foldapproachtodatacollectionwasused.

Study1-AnonlinesurveywasdesignedandadministeredusingFluidSurvey(seeAppendix1).SectionOneofthesurveyaskedaboutthenameofthesite,itslocation,thenumberofbeds,andwhattypeofsite it was (i.e. LTC or SL). Section Two focused on the number and types of staff (e.g. recreationtherapists, registered nurses, etc.) who provided recreation programs and services in the facility,whether they were full-time or part-time, and the percent of time committed to recreation

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programming. Section Three explored the types of recreation activities provided in the facility, andSectionFouraskedwhetherrecreationstaffsupportorcoordinateresident-directedactivities.SectionFiveallowedparticipantstoprovideadditionalcommentsconcerningtheeffectsofrecreationactivitieson the QOL of residents in CC facilities. The final section determined whether the site would beinterested in having their residents participate in an on-site survey that examined the effects ofrecreationparticipationandsatisfactiononQOL.

AlistofCCfacilitieswasgeneratedusingtheAlbertaHealthaccommodationsearchpage1.Aninvitationtoparticipateinthesurveywassentviaemailtodifferentfacilitiesincludinglongtermcare,supportiveliving,andassisted livingacrosstheprovince. Inaddition,operatorsofseniors’ livingfacilitiesthatareICCERmembers and co-investigators on the studywere asked to send the electronic survey to theircontactsinCCfacilities.

Study 2 - The on-site survey measured recreation participation, recreation satisfaction, recreationservicemodes, andQOL (in termsof bothpositive andnegative affect and life satisfaction), over thepast three months (see Appendix 2). Mobility limitations and demographic information was alsorequested, and residents were given the opportunity to provide input on the types of recreationactivitiestheywouldliketoseeincreasedorestablishedbytheircentreinthefuture.Inordertorefinethequestionnaire,andtohelpwithplanstoadministerit,twofocusgroupswereheldwithrecreationstaff in Edmonton (1 for LTC, 1 for SL) (see Appendix 3). Based on the input from the focus groups,revisionsweremadetothesurveyandplansforadministeringitwererefined.

Thesurvey’smeasureswerebasedonpre-establishedconceptsandscales,including:

• Recreationparticipation -McKechnie’s(1975) inventory,revisedto includecontemporaryactivitiesaswellasthoseemphasizedbyfocusgroupmembers.

• Recreationsatisfaction-BeardandRagheb's(1980)leisuresatisfactionscale,lesstheaestheticsub-dimensionwhichisbetterconstruedasameasureofrecreationfacilitationratherthansatisfaction.

• Recreationservicemodes -anew,continuingcare-specificscaledevelopedbasedonRossmanandSchlatter’s(2008)leisureservicecontinuum

• Positive and negative affect – from Tsai’s (2007) inventory, which conformswith Russell's (1980)circumplex model. Specific emotions were selected based in part on focus group members’comments.

• Life satisfaction -Neugartenetal.'s (1961) LifeSatisfaction IndexA, shortenedbasedonHoytandCreech's(1983)factoranalyticinvestigation.

• Mobilitylimitations–scaleusedpreviouslyinstudiesconductedbytheCo-PI,RobertHaennel.

Invitations to complete the survey were sent through a variety of sources, including: (a) AlbertaContinuing Care Association; (b) Alberta Seniors Housing Association; (c) Alberta Health Services,Seniors' Health Zone Directors; and (d) ICCER membership. Each organization then sent out theinformationlettertositesviaemail.Remindernoticesweresenttwice.Effortsweremadetoensureasmuch as possible near equal numbers of SL and LTC centre residents, as well as representationthroughoutAlberta.

Afterthedatawerecollected,entered,andcleaned,descriptive—toaddressthefirsttwoobjectives—andpredictive—toaddressthethirdobjective—statisticalanalyseswereconducted.Asoutlinedintheliteraturereviewsection,thethirdobjective’svariableswereorganizedbasedonexistingframeworks,1http://standardsandlicensing.alberta.ca/search.html?val=Long-term%20care&st=C

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which theorize that: (a) overall recreation participation frequency has a positive impact on overallrecreation satisfactionwhich, in turn, decreases negative affect and increases positive affect and lifesatisfaction(evenaftercertainsociodemographicfactors,mobilitylimitations,andfacilitycharacteristicsaretaken intoaccount.E.g.BeardandRagheb,1980;Newman,Tay,&Diener,2013;Spiers&Walker,2009); and (b) the type of recreation servicemode (Rossman & Schlatter, 2008) could also enhanceresidents’recreationsatisfactionandQOL(e.g.Bergland&Kirkevold,2006).

Study 3 - FocusgroupswereconductedwithrecreationstaffinCCacrossAlbertatodiscussrecreationtherapy activitieswith residents inSL and LTC, and to discuss staff attitudes/opinions on recreationactivitiesanditsbenefitstoresidents.ThefocusgroupprotocolsareshowninAppendix4.

LocationsandNumberofParticipantsTable1:Locationandnumberofparticipantsinfocusgroup

FocusgroupsparticipantswerefromrecreationdepartmentsinbothSLandLTCfacilitiesandincludedrecreation therapists (RTs), recreation managers, recreation therapy assistants, recreation therapyattendants,andrecreationtherapyaides(RTAs).

AnalysisQSR NVivo 10 software was used for data analysis tasks. A coding scheme (matrix) was developedaccordingtoemergingdataandwasthenusedforallfocusgroups. ThiscodingschemeservedastheinitialnodestructureinNVivo10.

Data analysis was conducted in two phases. In the first phase a manifest content analysis of focusgroups transcripts was performed in order to determine the frequency with which each particularthemeemergedinthedata.Thethemeswereusedasinitialcodingcategories(nodes)andwerethenappliedtoallfocusgroupsbythreecoders.Newemergingthemesidentifiedbytworesearchassistantsandbytheprojectmanagerwereadded,leadingtoarefinementofthemes.Thefirstphasewasthendiscussedwiththefocusgroupfacilitatortocorroboratethethemesaccordingtofocusgroups’notes.Inthesecondphase,alatentcontentanalysiswasperformedinordertoexplorethemeaningofthesethemesandtheissuesrelatedtoeachoneofthemaccordingtocoders.

Location #ofParticipantsFortMcMurray 3GrandePrairie 4Edmontonandarea 4Edmontonandarea 7Calgaryandarea 6

Calgaryandarea 10

Lethbridge(includingMedicineHat) 5

Total 39

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RESULTSOnlineSurveyAfteronlinesurveysthatwereeitherduplicatesorhadextensivemissingdataweredeleted,65surveysremained. Of this total, 13 surveys had a small number (i.e. less than six) of staff datamissing, andthereforemeansubstitutionwasemployedinthesecases.

Ofthe65sitesinthisstudy,38(58%)wereSL,21(32%)wereLTC,and6(9%)wereboth.Intotal,thesesiteshad8,959beds.

Table 2 shows the number of full-time equivalent (FTE) and part-time equivalent (PTE) staff whoprovidedrecreationprogramsandservicesintheCCfacilities inthisstudy,bytype.AlsoshowninthistableisthepercentofthetotalFTEandPTEstaffdoingso,againbytype.

Table2:Staffinvolvedinrecreationbytypeandfull-timeequivalents

TypeofStaff Full-TimeEquivalent(FTE)

PercentofTotalFTEs

Part-TimeEquivalent(PTE)

PercentofTotalPTEs

RecreationTherapists 27.0 17% 11.0 7%

RecreationTherapyAssistants/Aides

48.7 31% 82.6 52%

ActivityCoordinators 15.1 10% 3.8 2%

Nurses(RNs,RPNs,andLPNs)

6.3 4% 3.7 2%

HealthCareAides 37.9 24% 36.9 23%

OccupationalTherapists/Physiotherapists

0.3 0% 1.2 1%

RehabilitationAssistants 4.1 3% 0.8 1%

Front-DeskStaff/AdministrativeStaff

3.7 2% 2.3 1%

VolunteerCoordinators 2.3 1% 3.5 2%

Other 10.8 7% 13.7 9%

Total 156.3 100% 159.4 100%

As reportedabove, themajorityof FTEsproviding recreationprogramsand services are, respectively,Recreation Therapy Assistants/Aides, Health Care Aides, and Recreation Therapists. In contrast, themajorityofPTEsdoingsoareRecreationTherapyAssistants/AidesandHealthCareAides.

Issues

Somesites’emailaddresses listedontheAlbertaHealthaccommodationsearchpagewerenotup-to-date,andtherefore31ofthe217emailsthatweresentoutbouncedback.ThetotalnumberofhoursFTEandPTEstaffworkeachweekcouldalsovaryacrosssites.

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ResidentSurveyAtotalof419on-site resident surveyswerecollected fromacrossAlberta.Afterexcluding thosewithmorethanfivepercentmissingdata(i.e.morethantwoitemsunanswered,bothofwhichcouldnotbefrom the same scale),weusedmean substitution to ensurewe could conduct our planned statisticalanalyses. Of the 359 remaining participants, 234 were female (65.2%); approximately half werewidowed(48.8%)whileanotherquarterorsowereeithermarriedorcommon-law(24.2%);andforty-fourpercenthadnotcompletedhigh-school(versus22.0%whohad,withtheremainderhavinghadatleast some college/university education). The average age was 80.1 years. Participants were splitroughly evenly between SL and LTC facilities (47.1% and 52.9%, respectively). A majority (78.6%)reportedhavingphysicalmobilitydifficultiesandthereforerequiringawalker,awheelchair,orothers’assistancetowalkaroundtheirresidence.

Table 3 reports our results regarding how frequently CC residents participate in various types ofrecreationactivities.Asshown,residentsreportedmostoftenparticipatinginmediaactivities,followedby social, relaxing, andexercise activities. Recreation activities conductedoutsideof the facility, bothoutdoors and special events, were participated in the least. SL participants also appear to engage insometypesofrecreationactivities,andrecreationactivitiesoverall,morethanLTCparticipants.

Table3:Residents’frequencyofparticipationindifferenttypesofrecreation

TypeofRecreationActivity MeanFrequency:AllParticipants

MeanFrequency:SLParticipants

MeanFrequency:LTCParticipants

Outdoor(e.g.patioevents,parksvisits) 2.24 2.27 2.21

Games(e.g.playingcards,boardgames) 2.69 2.96 2.45

Social(e.g.visitingwithfriends/family) 3.61 3.70 3.54

Exercise(e.g.fitnessclasses,walking) 3.41 3.56 3.27

Media(e.g.reading,watchingtelevision) 4.19 4.24 4.14

Artistic/Creative(e.g.crafts,singing) 2.54 2.55 2.53

SpecialEventsOutsidetheFacility 2.26 2.44 2.10

Relaxing(e.g.restinghavinganap) 3.56 3.49 3.61

Spiritual(e.g.goingtoChurchservices) 2.88 2.91 2.86

RecreationActivitiesOverall 3.04 3.12 2.97

Note.1=Never.2=Seldom.3=Sometimes.4=Often.5=VeryOften.

Recreation programs and services can be arranged along a continuum depending on how they aredeliveredandbywho(seeAppendix5-LiteratureReviewformoreonthistopic).AsTable4indicates,themostfrequentrecreationservicemodereportedbyallparticipantswasDependent–Staff(i.e.theresidentstafforganizedtheactivities),followedbytheIndependent(orself-initiated)andDependent–Non-Staffmodes.Thetwoleastfrequentmodeswerewhentheresidentorganized,buteitherresidentstaff or non-staff members facilitated, the recreation activities. Noteworthy here is that theIndependentmodewasmuchhigher forourSLparticipants comparedwithLTCparticipants,whereastheoppositewastruefortheDependent–Staffmode.

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Table4:Residents'frequencyofparticipationinvariousrecreationservicemodes

RecreationServiceMode MeanFrequency:AllParticipants

MeanFrequency:SLParticipants

MeanFrequency:LTCParticipants

Independent(Residentorganizesactivitiesonhis/herown)

2.00 2.36 1.68

Dependent-Staff(Residentstafforganizeactivities)

3.96 3.73 4.17

Dependent-Non-Staff(Non-staff—e.g.family,friends—organizeactivities) 1.96 2.04 1.89

Interdependent–Staff(Residentorganizesbutresidentstafffacilitateactivities)

1.59 1.74 1.45

Interdependent–Non-Staff(Residentorganizesbutnon-staff—e.g.family,friends—facilitateactivities)

1.51 1.57 1.45

Note.1=Never.2=Seldom.3=Sometimes.4=Often.5=VeryOften.

Table5reportsthedegreetowhichCCresidentsweresatisfiedwithvariousaspectsoftheirrecreation,aswellastheirrecreationoverall.Generally,socialandrelaxationneedswerebestfulfilled,withourSLparticipants’ mean scores appearing to be higher than our LTC participants’ scores across all fiverecreationsatisfactiondimensions.

Table5:Residents'satisfactionwithdifferentaspectsoftheirrecreation

TypeofRecreationSatisfaction MeanFrequency:AllParticipants

MeanFrequency:SLParticipants

MeanFrequency:LTCParticipants

Social(e.g.Myrecreationactivitieshelpedmedevelopcloserelationshipswithothers)

3.49 3.57 3.41

Psychological(e.g.Myrecreationactivitiesgavemeself-confidence) 3.12 3.20 3.05

Physiological(e.g.Myrecreationactivitieshelpedmestayphysicallyhealthy)

3.13 3.24 3.03

Relaxation(e.g.Myrecreationactivitieshelpedmereducemystress)

3.44 3.56 3.33

Educational(e.g.Myrecreationactivitiesincreasedmyknowledgeaboutthingsaroundme)

3.01 3.04 2.97

OverallRecreationSatisfaction 3.24 3.32 3.16

Note.1=Never.2=Seldom.3=Sometimes.4=Often.5=VeryOften.

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CCresidents’QOL, intermsofaffect, is reported inTable6.Overall,positiveaffectwasslightlyabovethe “Sometimes” marker whereas negative affect was slightly above the “Seldom” marker. PositiveaffectseemsslightlyhigherforourSLparticipantscomparedwithLTCparticipants,butnegativeaffectisessentiallyidentical.

Table6:Residents'qualityoflife-affect

QualityofLife:Affect MeanFrequency:AllParticipants

MeanFrequency:SLParticipants

MeanFrequency:LTCParticipants

Positive(e.g.calm,content,excited) 3.29 3.35 3.24

Negative(e.g.sad,nervous,angry) 2.30 2.29 2.30

Note.1=Never.2=Seldom.3=Sometimes.4=Often.5=VeryOften.

CC residents’ QOL, in terms of life satisfaction, is reported in Table 7. Overall, participants’ lifesatisfactionmean scorewasmarginally inclinedmore toward the “Slightly Agree” than the “Neutral”marker,withthisappearingtobemostaccurateintermsofourSLparticipants.

Table7:Residents'qualityoflife-lifesatisfaction

QualityofLife:LifeSatisfaction MeanAgreement:AllParticipants

MeanAgreement:SLParticipants

MeanAgreement:LTCParticipants

LifeSatisfaction(e.g.Thesearethebestyearsofmylife)

3.61 3.69 3.53

Note.1=StronglyDisagree.2=Disagree.3=Neutral.4=SlightlyAgree.5=StronglyAgree.

Statisticalanalyseswereconducted toaddressour study’s secondobjective, specifically:What factorsimpact CC residents’ overall recreation satisfaction? Potentially predictive variables were entered inthreeseparateblocks:thefirstconsistedofaresident’ssociodemographiccharacteristicsandwhetherheorshelivedinaSLorLTCfacility;thesecondwascomposedofallofthevariablesinthefirstblockaswellashowoftenaresidentparticipatedinrecreationactivitiesoverall;andthethirdwascomprisedofallofthevariablesinblocksoneandtwoinconjunctionwiththefivedifferentrecreationservicemodes.(Appendix6showsmoredetailedinformationonthesestatisticalanalyses’results.)

Although overall recreation satisfaction was significantly higher for female participants, the factorhavingthegreatestpositiveimpactonthisvariablewasactuallyhowfrequentlyparticipantsengagedinrecreationactivitiesoverall.Aboveandbeyondthesetwofactors,manyoftherecreationservicemodesalso influencedoverall recreationsatisfaction,withthe Interdependent–Staffmode(i.e.Theresidentorganizes,butresidentstafffacilitate,hisorherrecreationactivities)havingthelargestpositiveeffect,followedbytheIndependentmode(i.e.Theresidentorganizeshisorherrecreationactivitiesonhisorher own) and the Dependent – Staff mode (i.e. The resident staff organize recreation activities).Conversely, overall recreation satisfaction decreased the more CC residents organized, but non-stafffostered,theirrecreationactivities(i.e.theInterdependent–Non-Staffmode).

Statistical analyses were also performed to address our study’s third objective; that is:What factorsinfluenceCCresidents’QOL?Potentiallypredictivevariableswereentered intwoseparateblocks: thefirstonceagainconsistingofaresident’ssociodemographiccharacteristicsandwhetherheorshelivedinaSLorLTCfacility;thesecondonceagaincomposedofallofthevariablesinthefirstblockaswellashowsatisfiedaresidentwaswithhisorherrecreationoverall.

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Although neither blocks one nor two predicted negative affect (e.g. sad, nervous, angry), both didpredictpositiveaffect(e.g.calm,content,excited).Theinfluenceofphysicalmobilityonpositiveaffectwassignificantbutsmallinsize,withthoseabletowalkindependentlyhigherthanthosewhocouldnot,whereas the impact of overall recreation satisfaction on this same QOLmeasure was significant butmediuminsize,withthosehavingrecreationsatisfactionalsohavinggraterpositiveaffect.(Note.EffectsizesarebasedonCohen’s,1991,benchmarks).Parallelresultswerefoundforlifesatisfaction.

Issues

Therewerethreekeyissuesconcerningthisstudy.First,althoughrespondentswereabletoreporttheirparticipationin“otherrecreationactivities”thatwerenotlistedinthesurvey,thisinformationcouldnotbeincludedinthestatisticalanalyses.Thus,ourmeanrecreationparticipationfrequencyscoresmaybeunder-estimated.Second,althoughtheoreticallybased,ourstudywascross-sectional innature(i.e.allofthedatawerecollectedatthesametime).Thus,itisalsopossiblethatlifesatisfactionaffectsleisuresatisfaction, or even that a reciprocal relationship exists. Third, data collection took place during theOctober–Marchtimeperiod.Thismeantsomepotentialsiteswereunabletoparticipateduetowinterweatherconditionsandoutbreakoffluandnorovirus.

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FocusGroupsSixmajorthemes,asshowninTable8,wereidentifiedthroughanalysisofthefocusgroupdiscussions.Thefindingsaretheperspectivesoftherecreationstaffwhoparticipatedinthefocusgroups.

Table8:Majorthemesidentifiedinthefocusgroups

Themes

1. Funding

2. Staffing

3. Role Clarity

4. Professionalism

5. Programming Challenges

6. Difference in Perspectives on Quality of Life

Adescriptionofeachthemeisprovidedbelow.

1. Funding

Funding related issues were the most frequently identified by all participants regardless of role ororganization.

1.1Budgets:Somerecreationstaffwerewellsupportedbytheirorganizations intermsofbudgetsforsupplies for programming, while others hadbudgetsthataresupplementedbyresident/familydonations/fundraising. However, many recreationstaff stated that they struggle to buy supplies orprovide a variety of entertainment and recreationactivities due to insufficient funds. One RTmentionedthat, inover20yearsofworkinginthesamesite, shehasneverbeenmadeawareof therecreationdepartmentbudget.

Due to lack of funding, some sites indicated thattheyhadtoshareresources,suchasbusesandbusdrivers for community outings. They may havebeen restricted in the number of bus trips permonthbecausetheycouldn’taffordtheirownbusanddriver.Aswell,bustripsusuallyrequiredmorestaff to porter and supervise, which implies anincrease in salary costs and potentially limits thenumberofcareprovidersremainingatthefacility.

“Youwant asmany opportunities as you can foryourclientsorresidents,andyouhaveacap;thisiswhatyou’regivenandthat’swhatyouhavetouse for the entire year and it’s not necessarilyenough.”“So supplies, we need the supplies to get thingsfor the programs and then ifwewant to have aparty,thereissomuchthatgoesintoaparty,weneed the entertainment, we need snacks foreverybody,weneedjuiceforeverybody,weneednapkins foreverybody,weneedcups toholdthejuice and we need, you know, decorations andthat goes on, and on, and on. So holding oneeventcouldbe$200andup,right? Sothat’soneevent a month and then you need the wholemonth budget. So going on outings, going onanythingreally,hostingabingo,wehaveprizesforbingo, we have prizes for some other of ourprogramsandsnacksforprograms,thingslikethatsoallofthataddsup”

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1.2 Funding model: The perception of focus group participants from both SL and LTC was that thecurrentfundingmodeldoesnotsupportrecreationserviceswelland thatmore fundinggoes towardsrehabilitationstaffcomparedtorecreationstaff.

Lack of funding limits in terms of the number ofactivities and quality of recreation services.Programmingtendstobegearedmoretowardsbiggroup activities instead of towards smallertherapeutic ones. There was a shortage ofqualified staff to provide meaningful one-on-one/smallgrouptherapeutic interventions, inpartbecausetheirtimewastakenwiththe largergroupactivities.

2. Staffing

2.1 Lackof staff: Staffing varied amongst organizations;while noorganizationwasoverstaffed, somestretch their staff very thin. As previouslymentioned,therewasalackofstafftoprovideone-on-oneorsmallgrouptherapeuticprograms,or toescortresidentstorecreationactivities.Recreationstaff recognized that residents needmore one-to-one or small group activities but there wasinsufficientstafftodoso.Moreover,whenregularstaff were on vacation, there was usually noposition cover off, which can leave a gap inprogram services that can be offered during theabsence.

Some facilities were unable to provide eveningand weekend activities because they cannot employ staff to work those shifts due to insufficientfunding.Otherfacilitieswereabletoschedulerecreationstafftoworkevenings/weekends,usuallyonapart-timebasis.

Accordingtotheparticipants,itwasachallengetorecruitandretainrecreationstaff.Thisisoftenduetolackoffundingtohireadditionalstaff.Also,manyoftherecreationpositionsarepart-timeorcasualpositions. Staff members often leave an organization for full-time positions elsewhere, or to pursuefurthereducation.Thissituationleadstoafairlyhighturnoverrateinsomefacilities/locations.

“It’sarehabmodelandwhenyouhavepeoplewhoare90andhave,youknow,acutedementia,you’renotto rehabthem,you’renot;butthecare is justas important, and takes just asmuch if not moretime.Andyet,we’renotfundedforthat.”“SoIwouldsaythat’sanotherbarrier,abigone,isthefundingmodel.”

“Formemy biggest concern always is the staffingandwhatweareabletoprovidetopeople”“We make outcomes for them, and we try andmakesurewesucceedwithdoingthoseoutcomesbutbecauseoflackofstaff,it’sveryhardtosticktotheoutcomes…”“I need more therapy assistants that can berunningdifferentgroupsatthesametime….”

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2.2 Education and training: There are inconsistenciesin the education and training of recreation staff. InCanada, qualification of recreation staff varies fromrecreation therapy assistant certificate, recreationtherapydiploma,recreationtherapydegree,orjuston-sitetrainingwithnoformaleducation.InAlberta,somefacilities hire individuals for a recreation therapistposition with just a diploma, while others require adegree. Some sites hire recreation therapy assistantswithorwithouteducationalfoundations.Somecollegeprogramsrequireanindividualtohavehealthcareaideexperience before becoming a recreation therapyassistant. Participants viewed this as encouraging ataskorientedfocusasopposedtoamoreholisticapproach.

OnceanindividualbecomesanRT,he/sheusuallyseeksemploymentasanRT,ratherthanstayinginanassistant role. While there are staff with RT degrees working as recreation therapy assistants, theyusuallyleaveoncetheygetanRTposition.

2.3 Volunteers: In some parts of the province,finding volunteers to assist with recreationprograms is a very competitive and challengingbusiness. It can be difficult to recruit and retainlong-termvolunteers.Aswell,managingvolunteerscanbeverytimeconsuming. InsomefacilitiesRTsmanage the volunteers, thus consuming time thatcouldbe spent running recreationprograms,whileatothersites,avolunteercoordinatorisresponsiblefor recruiting, screening, conducting orientationsessions, and organizing volunteer appreciationevents. Itwasalsonoted that in someSL facilities,resident-volunteersruntheirownprogramsorhelprecreation staff to run activities. Volunteers arecrucial to recreation departments; however, whileinsomefacilitiesvolunteersdorungroupactivitiesindependently, in other facilities they cannot run

groupprograms.Theyarequitelimitedintheservicetheyprovide;nevertheless,theyarehighlyvaluedandsought-afterastheymakeupfortheshortageofstaff.

“I’vehad,I’veaterribletimekeepingstaff;I,inthepast, I’veusuallyendeduphiringpeoplethathavedegrees,which ismainlywhy they don’t stay andI’ll either, right now I’ve someone who is veryqualified and she is a rec. therapist and she isworkingasanRTArightnow.”"Andittakespeoplewiththeeducationandtheknow-how:whattosubscribetothembecauseotherwise,youknow,youcouldbegivingthemsomethingthat’stotallywrong,likeharmfultothem."

“And even when you have volunteer runprograms,there’sstillthatelementofsupervisionandtrainingand…Seeweneverletvolunteerdoaprogramindependently.Astaffisalwaysthere.”“As you said, we need to give them a lot oftraining. In [] we tend to have a lot of youngerpeoplecomingontheweekends,orevenings. Soyou really need to give them lots of training,otherwise they don’t really follow your objectiveoftheprograms.”“We have volunteer coordinators, but…so theytrainonasortofthegeneralthing,butthenonceweare,youknow,givenavolunteertoworkwith,thenitbecomesourresponsibility.”

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2.4 Locations: In non-urban areas, facilities rely onAlbertaHealthServices’RTs todoassessmentsandconsultations. In metro areas, most organizationshavetheirownRTswhodoassessmentsandprovideprogramming.Additionally,non-urbanareastendtohave more trouble recruiting and retaining bothprofessionals and volunteers. Because of thedistances between communities, staff tends to bestretchedevenfurtherthaninthemetroareas.

2.5 Safety: Without adequate supervision fromstaff,bus tripsandoutingsmayentail significantsafetyproblems,suchasriskoffalls.

Additionally, with a lack of qualified staff toprovideindividualizedattentiontoresidentswithdementia or those who have mental/physicalimpairments,theremaybeahigherriskforthoseresidentstodeclineandbecomemoredepressedand isolated. Residents with dementia may alsobecome more agitated in large group events,which can lead to increased behavioural issues.Manydementiaresidentsfarebetterinacalmer,quieter environment butwith limited recreationstaff, the needs of these residents are not fullycateredfor.

"I think it's just funding for the North is alwayslacking like itcanbecompared, ifyoucomparetootherfacilities...yeah,otherlocations.It'sabout[community]size""Wehavesomevolunteers-veryhardtocomebyfor volunteers because we're such a transientcity. So, we'll get you know, a good volunteergroup, who are reliable and in terms of goingmotivated themselves, they'll come and be herefor a short period of time and then they're gonelikethat,andyou'researchingagain"

"And also though our licensing body, ATRA, wehaveanobligationtobesafeandwehavetotreatand assess as appropriately as we can. Picksomething that’s completely inappropriate forthatclientifthey’reunabletowalk,obviouslywecan’t pick something that involves mobilitybecauseit’snotpossible,so…"

"Yeah, it’s how we provide programming, againwhen you have a little bit of educationbackground, you have better understanding ofdiagnosisand thosekindof issues.Wedeal a lotwith broader chairs, wheelchairs, even with ourbuses and outings. Again having a really goodsense of maintaining resident’s …we have aresponsibility not only to, for us AHS, but to theclientele we work with to provide the safestpossibleprogramming.”

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3. Role Clarity 3.1Responsibilities:Recreationstaffdutiesvarysite-to-site, with some focusing on direct therapeuticrecreation and others focusing on programcoordination. Direct therapeutic duties includeassessments and MDS reporting, interventions,managingwaitlistsandcaseload,supervisingtherapyaides, attending family conferences andinterdisciplinary meetings. At other sites, therecreationstafffocusedtheirtimeonplanninggroupactivitiesandfieldtrips,coordinatingvolunteers,andreportingonattendanceandparticipation.

3.2 Confusion of the ‘therapies’: Participantsreportedthattherewasalackofclarityastohowrecreation therapy differs from occupationaltherapy (OT)orphysiotherapy (PT). Inmanysites,OTandPTassistantsrunrecreationprograms,butrecreation assistants are restricted in the type ofexerciseprogramsthattheycanprovide.

Also, there are no definite titles for recreationstaff; it varies depending on facilities across theprovinceandacrossthecountryaswell.Theymaybecalledrecreationtherapists, recreationtherapyassistants, recreation therapy attendants, orrecreationtherapyaides.Thedistinction isusuallybased on educational background, although notentirely.MostRTshavea4-yeardegree,howeverothers have a 2-year diploma and are still calledrecreation therapists. The terminology of 'aide','assistant',or 'attendant'seemstobebasedmoreonorganizationalpreferencethanoneducation.

Furthermore, volunteers, family members, OTassistants, PT assistants, nursing staff, health care aides and others also provide recreation activitiesdependingonsite;thisdemonstratesoverlappingandpoorlydefinedrolesofrecreationstaff, i.e. ifalltheseotherpeoplecanproviderecreationactivities,thenwhatistheroleofrecreationstaff?Thereisalsoa lackofknowledgeaboutrecreationtherapyscopeofpracticeamongsthealthcarestaffandthepublic.Recreationstaffareseenas“funpeoplewhoplayallday”.Toaddressthisissue,recreationstaffeducateotherstaffduringorientationsessions, interdisciplinarymeetings,andeducatebothstaffandthepublicduringRecreationTherapymonthinFebruaryorwhenevertheyhavetheopportunitytodo

“I have to restructure my department so that Icangetalltheredtapealldoneandallthepaperworkandallthemeetingsandthisandthat,thatIhave topullmyselfoffthefloor.Sothatthestaffare actually the ones who are carrying out theprogramming,so that’sone lessperson that’sonthefloor,right?Andthatisvery,very challenging,right?"“We’realsoexpectedtonotonlyruntherapeuticprograms,socialprograms,outings,specialeventsandthenwe’reallsupposedtotakecareofallthebuildingdecorationsforalltheseasonalactivities.So our expectations, theexpectations are hugeonusplusattendall thecareconferences,attendall the ID meetings, I personally attend 6 IDmeetingsaweekforabout1hrto1and1/2hreachone.”

“We had a discussion on howwith talking toHR,OT/PTtherapyassistant couldgo into the roleofarecreationperson,butaRecTaidecouldn’tdothesame…”“I feellikealotofthatisthatrecreationtherapistsstill isn’t well known, and therefore the roles arenot clarified; like there is a role for rec. assistants,there is a role for rec. therapists and they aredifferentroles.”

“Sometimes since recreation is kind of a newertherapy,maybe lesscommonknowledge likeasOTalotofpeopleknowwhatthatisthanrecreation.Alot of the individuals think well it’s bingo! Or it’splaying games type of thing. Maybe lack ofknowledge fromotherdisciplines,not like is abadway,butitjustmightbeniceiftheyknewalittlebitmoreaboutthetherapeuticsidesinsteadofjustthedailyactivitiesthatwedo,there’salotmoretoit.”

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so.However,theyarestillstrugglingtoestablishthemselvesasprofessionalsamongstotherhealthcarestaff.

Participantsstatedthattheretendstobeahigherexpectationonrecreationstaff;theyareexpectedtoproviderecreationactivities toall residentswhileOTandPTprovideservices toonly14%of thetotalresidentpopulation.Yetinmostorganizations,thenumberofrehabilitationstaffisequaltoorgreaterthanthenumberofrecreationstaff.

3.3 Therapeuticrecreationvsactivities:Therewasfurtherconfusionregardingtherapeuticrecreationinterventions and recreation activities, i.e.targeted interventions versus general socialactivities.Therapeuticrecreationinterventionsareindividualizedwithpersonal goals,objectives, andoutcomesmeasures;whereas recreationactivitiesaim to provide a calendar of general socialprogrammingthat isavailabletoallresidents.Theratioofrecreationstafftoresidentsforanactivitytobecountedasa therapeutic intervention is1:8or less. For general activities the ratio variesdepending on facilities; it ranges fromabout1:50tomuchhigher.Thesehigherratiosandlarge group sizes in general recreation activitiesareparticularlyproblematic for residents withcomplex needs such as mental health concerns,responsive behaviours ordementia. Theratios inthesegeneralrecreationactivitygroupshighlightaperceivedshortageofrecreationstaffandpartiallyexplainswhyitishardtocarryouttherapeuticinterventionswiththeresidents.

3.4RAIMDS2.0andRAIHomeCare:InsomeLTCfacilities, recreation staff do their own RAI datainputting, while in others they have designatedpeople, such as the RAI coordinators. In facilitieswhere nursing or RAI coordinators complete therecreation portion of the RAI without consultingwith the recreation staff, participants indicatedthattheRAIdatadoesnotnecessarilymatchwhatrecreationstaffarerecordingfortheirclients.

This is not yet an issue for staff in SL, as the RAIHomeCare is not used as a basis for funding yet.They do worry that they will have the sameconcernsastheLTCstaffinthefuture.

“So lot of places have hired activity coordinatorswhomayormaynothaveeducationorhaveevena background therapeutic recreation, and therehasbeena really…we’ve spentprobably10yearstrying to define the difference between arecreation therapist and a therapeutic recreationprogram and an activity coordinator and activityprograms, so there is like two totally differentthings happening, and the problem with nothaving enough staff it’s been challenging toactually carry out a therapeutic recreationprogram.“

“So we’ve got audited recently and theprogramming - only people care planned forcertain programs can be considered doing atherapeuticprogram.Soeven thoughwedo1 to8, and it’s, you know, in the cognitive round, it’snot necessarily considered therapeutic to AHS,whichwe’vejustrecentlyfoundout.”

“Theyhaveevengoneas faras filling inour careplan information. And previous sites I’ve been atin LTC, they’ve filled in our MDS, and it’s “No, Idon’t fill in your RNs stuff, I don’t know anythingabout your RN, I’m not a nurse, so [don’t fill outtherecreationtherapysection].”

“CauseyouhavetodividetheminutesforMDSbythenumberofparticipants in theprogram; so forus, we work with the MDS coordinator and weactually don’t code any minutes because theminutesonMDS,it’snotaworkloadmeasure.”

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4 Professionalism

4.1Recreation is“shunnedanddiscredited”: RTsare not regulated by the Health Professions Act,whichisperceivedashinderingtheiracceptanceasprofessionals amongst other healthcare staff andthe public. As indicated previously, there is ageneral lack of knowledge about what recreationstaffactuallydo.

Health care aides and recreation therapyattendants are the two persons closest to mostresidents, yet they are not usually involved ininterdisciplinary meetings. Service provided byrecreation staff is not considered as important tothehealthofresidentsasotherprofessionals(suchas nurses, pharmacists, and other therapists) and at times they are not even included in care plans;however,recreationstaffclaimthattheirapproachisdifferentfromtheclinicalormedicalmodel.Theirapproach ismoreholistic;they lookatthe individual’spastandpresent interests,physicalandmentalabilities and then plan recreation activities to increase their physical, mental, emotional, social, andspiritualstatus.

4.2 Regional variability: There are no Canadianstandards for recreation professionals, whichcauses confusion for the public, healthprofessionals and RTs themselves. Focus groupparticipantssharedtheirexperienceswithdifferingtraining and work conditions in recreation acrossthe country. There are disparities across Albertaandotherprovincesinjobtitles,rolesandscopeofpractice,andeducationalrequirements.

ParticipantsstatedtheneedtohaveconsistentjobtitlesandeducationacrossAlbertaandCanada.Tobe recognized as a regulated profession, theAlberta Therapeutic Recreation Association hassubmitted an application to government forinclusion in the Health Professions Act. Anyoneentering the profession should have theeducational background and recreation therapistshould be a protected title; therefore no one

shouldcallthemselvesanRTiftheydonotmeettherequiredcriteriatodoso.

Working towards this, RTs provide in-services to educate staff, residents, families, and the public ontheir role and scopeof practice and the benefits of recreation therapy. They also have openhouses,newsletters, and journals, and they hold a recreationmonth in February every year to celebrate andteach others about their profession. RTs believe that in order to get their profession recognized, theinitiative should start at an academic level; there should be consistency and improvement in therecreationprogramsofferedineducationalinstitutesacrosstheprovinceandCanada.

“…our professional association, AlbertaTherapeutic Recreation, has submitted to thegovernment that we become part of the HealthProfessionsActandsowearewaitingonpinsandneedlesforthat,becauseIthinkthatwillbeabigchangeforourprofession.”

“I first received my certificate as an RTA atNorQuest as a rec. therapy aide and they didn’tcall it an assistant. I was told at the time that itwasanassistant,sotheterminologyisreallyweirdbecause when you talkwith rec. therapists fromolder years, they have a different view point ofassistant versus and an aide; so it’s not abouteducation, non-education per say, so that’ssomething that just the effects of lack ofknowledge perhaps on what’s going on in theeducationarea.”

“Iwasn’tevenincludedinthecareplan.”

“But I’ve been somewhat kicked out of a careconference,right?Because,“ohyoudon’tneedtohear this” and it’s like “I’m a professional…YouknowIdeservetobehereasmuchasyoudo,andmaybe I can help”…So, that’s a big thing and I’vehad,youknow? Kindofstandofftothestaff,likenoI’mstayinghere.”

“They still have that stereotypewearedoing justplay. So we have to keep on correcting thethoughtandshowthem,Iguesstoshowthem.”

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5 Programming Challenges

5.1Diverse and complex populations: The biggestprogramming challenge for the recreation staff isproviding meaningful activities for a diversepopulation. Clients entering CC can have multiplecomorbidities with varied levels of acuity andcomplexities, are from awide age range and fromdifferentculturalandethnicbackgrounds.Withthelackof funding, resources,andstaff, it canbeveryhardtoprogramactivitiesthatcatertotheneedsofthis diverse group. Most recreation staff work inpart-timeorcasualpositions.Managementtendstowant “flashy events” and calendars that have avarietyofprogramseven if theydonotnecessarilyproducemeaningforsomeresidents.Withthelackof staff and time, recreation therapists have toresort to largerprograms insteadofone-on-oneorsmall group therapeutic interventions. These largegroup programs do not cater to the individual’sspecificneeds.

5.2 Staff and administrator attitudes: Someparticipants perceive management as interferingtoo much in recreation, telling them whatactivities should be done and how to runprograms, without understanding why RTsapproach their work the way they do. Also, RTsare busy inputting MDS (in LTC), doingassessments, programming, attending careconferences,andkeepingrecordofattendanceinprograms, that they have less time to do whatthey are supposed to do, i.e. providingtherapeutic recreation. Recreation therapyassistantsruntheprogramsandRTsonlyoverseethem most of the time. Some focus groupparticipants felt that theyarenotusing the skillsforwhichtheyhavebeentrained,rathertheyaredoingmainlyadministrativeduties.

Other staff do not necessarily see the value ofrecreation therapy; there is a need to educatethem on the goals and benefits of recreationtherapy and encourage participation. Recreationstaff are not there 24/7, but the need for

“Programmingforthatmanyvarietiesofneedsinone facility is so tough… It’s the time to do thatbecause you are going in and everybody hasdifferentneeds.”

“Ihaveclientsaged26toa99[yearold]andyouare like: “ohman!How am I going to do that?”Andyouknowthattheyoungergenerationisevenharder because the program is geared towardstheolderadults.”

“We have an age range of 24 to 102 in thatbuilding so rec for us is a little bit challenging,sometimes to get all our people in wanting tocome to programs. So we have a variety ofdifferent things that we offer 7 days a weekprogrammingtohitallthepeople.“

“I thinktheother thing thatwe’venoticedtoo inthe last couple of years, in terms of theadmissions, like the type of residents that arecomingintoLTC,isreallychanging.“

"Andyoustill,likeyourmanagementisstillkindofdictatingwhattheywantfromyou."

“Wefindthatthere’squite,itseemsthere’squitea variation in how frequently the HCAs getinvolved; in some facilities, some organizations,theHCAs they say if there’s aprogramgoing on,HCAs say: “Oh, good. I’d go for a cup of coffeenow!” and in others the HCAs are very muchinvolved.”

“Yeah,soit’slikeandIthinkpeoplealwayslookatrecreationasjustthefunpartsandstuff…withoutactually understanding fact thatwe, thewaywe,our role is to help individuals gain quality of lifeandfindwaystopreventanytypeofdepression..”“We’ve even had one Administrator going onoutingwithusthisoneyear,andthatwasgreat,avery eye-opening experience for him, cause hethought: “Ohmygod!Youguysreallyworkhardthrough the day.” And he had no idea what toexpect.”

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recreationandmeaningfulactivitiesisthere. InsomefacilitiesHCAsandnursingstaffareon-boardtoprovide recreation but in others, they are not. They are either too busy with their workload or lackinterestindoingsoastheyhavebeentrainedtobetask-orientedanditishardtochangetheirmindset.

Participants stated that the difference in staff attitudes towards recreation services can be similarthroughout a facility (organizational culture), or the attitudes can vary between units/houses in afacility.

Moreover, recreationstaffareunable toquantify thechangesthat theybring in theQOLorhealthofresidents unlike PT andOTwhere the changes aremore visible. They need to find credible outcomemeasurestoback,justify,andvalidatetheeffectivenessoftheirintervention.

5.3Volunteers:Volunteersenrichtheprogrammingbut are restricted in the kind of service they canprovide. It is also very difficult to find and keeplong-term volunteers. This hinders the running ofprograms;somefacilitiesrelyheavilyonvolunteersto runactivitieswith residents,but theseactivitiesarenottherapeutic.

Ontheotherhand,somefacilitiesfinditveryusefulto bring community groups in (e.g. a local quiltinggroup may use the facility to hold their regularquilting meetings). This allows for more informalinteractionsbetweenthecommunityandresidentsandprovidesadditionalopportunitiestoengagetheresidentsinmeaningfulactivities.

5.4 Programming space: In some facilities,recreationstaffdonothaveadedicatedrecreationroom, instead they have to use common areas,hallways, or dining rooms. However, other staffalso use the same areas, for example, OT and PTmayusethesamespaceforprogramming.Hence,recreation staff have to schedule around mealtimesandcompetewithotherstafffortheseareas.Aswell,theycannotusethesetypesofpublicareasto provide quiet, small group therapeuticinterventions, as there are people coming andgoingandthisdisturbsthegroup.It isalsohardto

runsensorystimulationprogramsinnoisyopenspaces.

Somefacilitiesareveryoldwith longhallwaysandmultiplefloors;therefore itcanbechallengingandtimeconsumingtogetclientsfromoneendofthebuildingtowhererecreationistakingplace,moresowhenthereisalreadyashortageofstaffandvolunteers.

“Soeverybodyneedsavolunteerandthereseemstobefewerandfewerpeoplevolunteeringandiftheydo itmightbeforonemonthorforshorterperiodoftime.”

“…andIconnecta lot inthecommunity.I tellmyadministrator it’s bringing in the community intoour community, so having scouts groups doingtheir thing, or a quilting group that does theirquilting group at our facility, or you know, kidscomein[fromschools],sotome,whentheysay:“Well we got to get these people out in thecommunity.” I say: “well, the community comesto everybody so that 75 people can benefitinsteadof6people.”

“…one largeauditoriumweuse for theAdultDayProgramsforresidentsfromthecommunitycomein4daysaweekcanusethat.Somymainspaceisused4daysaweek.”

“We use the dining rooms asmuch aswe can orourlargediningroom,andthendownonthehalls,justkind,youknowcouldbethosespotinthehallsbut that interruptsHCA pretty heavy and it’s justloudandit’s,it’schallenging.”

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6 Difference in Perspectives on Quality of Life

TherewasalackofconsensusonwhatQOLisandhow it relates to residents’ lives. QOL variesonan individual basis depending on individualinterests. It is a person-centered viewpoint,focusing on the individual’s power to makechoices intheir lives.Thelevelofengagement insocial networking, community activities, foodchoices,anddaily livingaffectsQOL. TobeabletoenhancetheQOLofresidents,recreationstaffneed time to communicate with the residentsand their families in order to understandindividuals’ interests and needs. QOL is aboutperson-centred planning, person-centred care,and getting to know the client you are workingwith.Itisalsoaboutgivingtheresidentsasenseof self-worth,purpose, andmeaning in life.QOLis difficult to measure, due to the subjectivenature of the factors that contribute to well-being. For instance, happiness is defined as anindicator of QOL, and what contributes to oneperson’shappinessandresultingQOLmaygreatlydifferfromanother’s.

Participantsmentioned different philosophies ofperson-centred care could make a difference toQOL. SomesitesusetheEdenphilosophytoenhanceQOLof residents.Thisphilosophybelieves thattherearethreeplaguesinlife:boredom,loneliness,andhelplessness.Theparticipantsfeltthat iftheyare able to address these issues that are very prevalent in CC, they can enhance the QOL of theirresidents.ParticipantsstatedthatQOLwasalsoaboutvaluingandrespectingtheresidentsforwhotheyareandwheretheycomefrom.Bysodoing,oneisabletoprovideculturallycompetentcarethatwillenhance the wellbeing of the residents. They saw the barriers to enhancing the QOL of residentsincludingalackofstaff,alackoffunding,andtheflawsinassessmenttoolsthatdeterminewhogetsOT,PT,andRTservices.Ifresidentsdonotmeetthecriteriafortheseservices,itaffectstheirQOL,astheydonotget theextrahelp that theyneed to thrive in theirnewhome.All theygetaremeals,nursingservices,personalcareandhygiene,andiftheyarephysicallyabletodoso,theycanattendbigsocialgatherings.ParticipantsfeltstronglythatonewayrecreationstaffcanenhancetheQOLofresidentsisbyadvocatingforanincreaseinthetypeandnumberofstaffandservicesprovided.

Issues

Theorganizationof focus groups and theparticipationof recreation staffwereaffectedbyChristmasandAlbertawinterweather.Christmasisthebusiesttimeofyearforrecreationstaffandmanyfacilitiesstart their decorations/activities in November. This made it difficult to plan focus groups fromNovember until January. As well, one focus group in central Alberta was postponed due to winterweatherandwasunabletoberescheduled.

“Ithinkasanexamplemanytimesovertheyearsofbeing in care conferences where the pharmacistpresentthemeds,andthenursepresenttheoverallcareplan andOT talks about finemotor tasks, andPhysio talks about their gait and family memberswait and what they are waiting for is therapeuticrec. staffbecausetheywanttoknowif their familymemberishappy.AndIalwaysfeellikewehadkindofthegrandpiecetopresentbecauseIthinkoverallwhat people want is their family members to behappy and to have that quality, I think that’s thebiggestpartofthequalityoflife,andIfeellikethatcomesthroughinthethingsthatwedoassess:pastinterests,orwhatdoyoudoforrelaxation,whatdoyou do to challenge your mind, what do you dophysically? I feel like we catch the vary spectrumthatdoesequalqualityoflife.”

“Imean,youknow,it’sabouttheresidentsandtheirchoice, their independence andwhat theywant toordon’twanttodo.”

“I think if your mind and your body and spirit isactivethenIthinkyourqualityisenhanced.”

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DISCUSSIONStudy 1 – The review of the literature did not identify any previous studies that had attempted todeterminewhichspecificstaffmembersproviderecreationprogramsandservicesinCCfacilities.Thus,our resultsmustbeconsideredexploratory innature.Havingacknowledged thispoint,what is clearlyevident is thecritical rolerecreationtherapyassistants/aides, followedbyhealthcareaides,andthenrecreationtherapists,playinthisprocess.Althoughthisinformationmayhavelimitedutilityonitsown,itisimportantwhendiscussingourStudy2findings’inregardtotheeffectsthefacility-basedrecreationservicemodeshadonresidents’recreationsatisfactionoverall.

Study 2 – Examined holistically, frequency of recreation participation overall had a significant andsubstantial effect on recreation satisfaction overall—a finding consistent with the meta-analysisdiscussed in the Literature Review section (i.e. Kuykendall et al., 2015). While this suggests thatresidents would benefit from “just doing more”, the recreation service mode results provide someinsight into how this might best be accomplished. Specifically, staff could provide more recreationactivitiesdirectlyor,evenmoreeffectually,helpfacilitatethoseactivities initiatedbytheresidentsor,ideally,both.Thisintegratedapproach(i.e.involvingbothstaffandresidents)wouldrequireadditionalfull-timeequivalentstafffocusedonrecreation(seealsoShippeeetal.,2015)aswellasensuringthesestaff-members not only have the ability to offermore recreation activities but also the interpersonalskillsandtrainingtoenableresidents torealizetherecreationopportunities they initiate.Noteworthyhere is that direct and facilitative efforts by non-staff members do not appear to have the samebenefits, possibly because, in the latter case, CC residents could sometimes view family members’assistance as being “autonomy thwarting” (Deci & Ryan, 2000). Potentially, this problem could beovercome by having recreation staff trained in facilitative techniques work with residents’ spouses,children,etc.

Again, examined holistically, overall recreation satisfaction had a significant and substantial effect ontwokeyaspectsofQOL:positiveaffectand lifesatisfaction.These findingsare largelycongruentwiththosediscoveredinthemeta-analysisdiscussedintheLiteratureReview;howeveritmustbenotedthatKuykendall et al. (2015) reported a single, omnibus QOL correlation which makes direct comparisondifficult. Additionally, in our study overall recreation satisfaction did not significantly impact negativeaffect. This result is somewhat surprising as, for example, Lee and associates (2012) found thatparticipation in fewer leisure activities (as well as higher stress levels andmoremobility limitations)wereassociatedwithdepression intheelderly.Regardless,giventheseresultsaswellastheevidenceoutlined elsewhere in this report, itwould seemprudent to facilitateCC residents’ overall recreationsatisfactioninordertomaintain(andperhapsevenimprove)theirQOL.Howthiscouldbeaccomplishedis discussed briefly in terms recreation servicemodes in the previous paragraph, and reiterated andexpandedoninourRecommendationssection.

Study3–ThesixmajorthemesidentifiedinthefocusgroupsaretheperspectivesofrecreationstaffinCCacrosstheprovince.TheissuesreflecttheexperiencesofthesestaffastheyworktoprovideQOLtoCCresidents.Someoftheissuesarecomplicated–forinstance,fundingofrecreationservicesinCCisnotstraightforward.WhilemostpeopleinCCwouldagreethatrecreationservicesareunderfundedbythe system,how the funding is actually allocated is complicatedand confusing. There aredifferencesbetweenlevelsofCC2(SL1&2arefundeddifferentlythanSL3&4,whichagainisdifferentthaninLTC).Whentheresearchersapproachedvariousproviderorganizationstoaskaboutfundingallocations,they

2WithinAlberta’scurrentcontinuingcaresystem,supportivelivinghasfourdifferentlevelsofcare.Levels1&2arecongregatelivingsettingssuchaslodgesandgrouphomes.Levels3,4&4D(dementia)arecongregativelivingsettingsbutwithmorepersonalsupportservices.

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found that there is inconsistency across zones of the province and that there is a fair amount oforganizationalflexibility.LTCisfundedthroughthePatientBasedCareFundingmodelandeachfacilityisgiven an envelope of therapy services dollars, the amount based on the complexity of needs of itsresidents. It is the facility/organizationsprerogative todisperse the funds tobestmeet the residents’needs. This includes both professional and non-professional therapies, i.e. social work, OT, PT,recreation, respiratory, and nutrition. In SL 3&4 the system is currently in transition, but in theEdmonton zone, funding for RTs and RTAs depends on occupancy and the number of Designated SLlivingbedsinafacility.

The funding issue appears to be the overarching issue – it has a direct effect on staffing andprogramming.Theseinturnaffectroleclarity,professionalism,andQOL.

RECOMMENDATIONSOverall it isclearthatrecreationservicesplayanimportantroleinimprovingormaintainingresidents’qualityoflife.Recreationactivitiesneedtoberesident-valuedrivenandnotfromorganization-values.

Resultsfromthisstudysuggestthatwithincontinuingcarerecreationservicesareprovidedbyahostofnon-regulatedhealthcareproviderswithdiversetraining.Further,findingssuggestthatthereisvalueinemploying trained individuals in providing recreation services. To improve the quality of recreationserviceandrecreationtherapyacrosstheprovince,governmentneedstotakestepstodeterminethecorecompetencyneededtoprovidethevariousrecreationservicesandrecreationtherapy.Toachievethisgoal thereneeds tobecollaborationbetweenProfessionalAssociations (e.g.,AlbertaTherapeuticRecreation Association, Therapy Assistant Association of Alberta) and post-secondary institutionsincludingcolleges(e.g.,NorQuest,BowValley)anduniversities(e.g.,UniversityofAlberta)withthegoalofsettingeducationalstandardsforrecreationtherapyassistantsandtherapists.

PracticeRelated:

1. Thereisaneedforadditionalstaffresourcestoprovidemorerecreationopportunitiesdirectly,aswellastofacilitateresidents’self-organizedrecreation.Recreationstaffmusthavethetrainingandadvancededucationtosuccessfullydoso.

2. Recreationstaffneedtoprovideguidancetoresidents’friendsandfamilymembersonhowtofacilitateresidents’recreationwithouttheformerbeingperceivedtobethwartingthelatter’sindependenceandautonomy.

3. Recreation staff need education and support on how to provide meaningful and effectiveinformationonresidentsatmultidisciplinarycaseconferences.

GovernmentPolicyRelated:

4. AlbertaHealth,AlbertaInnovation&AdvancedEducation,andAlbertaHealthServicesneedtobeengaged inwork to align education, roles and responsibilities, and jobdescriptions of recreationservicestoensureconsistencythroughouttheprovince.

5. AlbertaHealthandAlbertaHealthServicesneedtoreviewfundingpoliciesforrecreationservicesinorder to better support quality of life in all streams of continuing care and to provide anoverarchingvisionforrecreationservicesincontinuingcare.

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ProviderOrganizationPolicyRelated:

6. Provider organizations need to provide ongoing education to all staff on the importance ofrecreationactivitiestoresidents.

7. Providerorganizationsshouldencouragecultureshiftsthatsupportallstaffsupportingrecreationactivities 24/7, not just when recreation staff are at work. This would require a shift from theclinicalfocustothesocialrealm.

EducationRelated:

8. Post-secondary institutions and Professional Associations/Colleges in Alberta need to worktogethertoensurebetterintegrationoftrainingandeducationforrecreationstaff(assistantsandtherapists),othertherapies(OT&PT),healthcareaides,andregulatednursingstaff.

9. Colleges inAlbertaneedtoworktogethertoprovideconsistent learningoutcomesforrecreationassistants/aides.

10. Post-secondary institutions in Alberta need to examine how they can improve quality of life incontinuingcarebybetterpreparinghealthdisciplinestudents.

ResearchRelated:

11. Recreationservicemodeshavenotbeenexaminedpreviously,norhavetheireffectsonrecreationsatisfaction.Furtherresearchonthisconceptisthereforenecessary,especiallygivenitappearstohavebothpositiveandnegativeimpacts.Moreover,ifthelatterfindingisconfirmed,thenappliedresearchonhowrecreationstaffcouldeducateresidents’family/friendstoreducethelikelihoodofautonomythwartingcouldprovebeneficial.

12. AlthoughlifesatisfactionandpositiveandnegativeaffectarethetwomostcommonlyresearcheddimensionsofQOL,thereareothers.“Eudaimonic”well-being,forexample,focusesonfeelingsofvitality,meaningandpurpose,personalgrowth,etc.GivenrecreationhasalsobeenfoundtoeffectthisQOLaspect,futureresearchonthisrelationshipinCCfacilitiesisrecommended.

13. Alongitudinalfollow-uptothisstudyshouldbeconductedtoexaminethesamevariables,butovermultiplepointsintime,inordertoconfirmourstudy’sfindings.

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APPENDIX1–ONLINESURVEY

Note: the survey was conducted using designed and administered using FluidSurvey. The followingshowsthesurveyinWordformat.

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RecreationandQualityofLifeinSupportiveLivingandLongTermCareinAlberta

ThisstudyissponsoredbytheInstituteforContinuingCareEducationandResearch(ICCER)throughfundingsupportfromAlbertaHealthandhasethicsapprovalfromtheUniversityofAlberta.Thepurposeofthisstudyistwofold;togainabetterunderstandingof:(a)thenumberofpeopleprovidingrecreationprogramsandservicesinsupportivelivingandlong-termcaresitesinAlberta;and(b)theamountofrecreationprogramsandservicesprovidedinthesesamecontinuingcarecentres.

PRINCIPALINVESTIGATOR:Dr.GordWalker,ProfessorPhysicalEducationandRecreation,UniversityofAlberta([email protected],780-492-0581)

Pleasetakethetimetocompletethissurvey.Thesurveyshouldtakeapproximately15minutestocomplete.Allresponseswillbekeptconfidentialandanonymous.Noresultswillbeattributedtoanyindividual.Yourparticipationinthestudyisvoluntary.Youmaydeclinetoansweranyofthequestionsandendyourpartinthestudyatanytime.Byagreeingtocompletethissurvey,youaregivingyourconsent.

Ifyouhavefurtherquestionsorneedmoreinformationaboutthissurvey,pleasecontactSandraWoodheadLyonsatscwl@iccer.caor780-248-1504.Ifyouhavequestionsaboutyourrightsasaresearchparticipant,pleasecontacttheUniversityofAlbertaResearchEthicsOfficeat780-492-2615.

Nameofsite:___________________________

Town/cityinwhichsiteislocated:____________________

Numberofbeds/units:_____________

Typeofsite:

Long-termCareSupportiveLivingCheckallthatapply

Level: 12

3

4

4D

Doyourrecreationstaffsupport/coordinateresident-directedrecreationactivities,suchasFridaymovienights,etc.?

Yes No

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Question1:

Whoprovidesrecreationservicesatyoursite?Pleasecompletethefollowingtable.

Staff Yes No N/A

RecreationTherapists

RecreationTherapyAssistants/Aides

ActivityCoordinators

Nurses:RNs

Nurses:RPNs

Nurses:LPNs

HealthCareAides

OccupationalTherapists

Physiotherapists

RehabilitationAssistants

Front-desk/AdministrationStaff(Day)

Front-desk/AdministrationStaff(Night)

VolunteerCoordinators

Volunteers

Others–pleasespecify__________________

Others–pleasespecify__________________

Others–pleasespecify__________________

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Question2(a):

Pleaseprovidethenumberofstaffwhoprovidesrecreationservicestoresidentsineachcategory.

Staff#ofFull-TimeStaffProvidingRecreation

#Part-TimeStaffProvidingRecreation

RecreationTherapists

RecreationTherapyAssistants/Aides

ActivityCoordinators

Nurses:RNs

Nurses:RPNs

Nurses:LPNs

HealthCareAides

OccupationalTherapists

Physiotherapists

RehabilitationAssistants

Front-desk/AdministrationStaff(Day)

Front-desk/AdministrationStaff(Night)

VolunteerCoordinators

Volunteers

Others–pleasespecify__________________

Others–pleasespecify__________________

Others–pleasespecify__________________

Total

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Question2(b):

Whatpercentageoftimedotheyspendonrecreationactivities?

StaffFull-TimeStaff%ofTimeSpentonRecreationActivities

Part-TimeStaff%ofTimeSpentonRecreationActivities

RecreationTherapists

RecreationTherapyAssistants/Aides

ActivityCoordinators

Nurses:RNs

Nurses:RPNs

Nurses:LPNs

HealthCareAides

OccupationalTherapists

Physiotherapists

RehabilitationAssistants

Front-desk/AdministrationStaff(Day)

Front-desk/AdministrationStaff(Night)

VolunteerCoordinators

Volunteers

Others–pleasespecify__________________

Others–pleasespecify__________________

Others–pleasespecify__________________

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Question3:

Pleaseprovideacopyofthelastthreemonthsofyoursite’srecreationscheduleasanattachment(PDForWord)?

Pleaselistanyrecreationprogramsorservicesmissingfromtheserecreationschedules:

ActivityName NumberofHoursperMonth

1.

2.

3.

4.

5…

Question4:

Doyouhaveanycommentsyouwouldliketomakeregardingtheeffectsofrecreationactivitiesonthequalityoflifeofresidentsinlong-termcareandsupportiveliving?

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Wewillbesurveyingresidentsinbothsupportivelivingandlong-termcaresites.Areyouwillingtohaveyoursiteparticipateinthesurveythatwillexaminetheeffectsofrecreationonresidents’qualityoflife?

Yes No

Ifyes,pleaseprovidethefollowinginformation:

ContactPerson:___________________________ Phone#:_______________________________

Title/designation:_________________________

________________________________________

Email:_________________________________

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APPENDIX2-RESIDENTSURVEY

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Recreation and Quality of Life Questionnaire

The purpose of this study is to learn more about how often people participate in recreation activities and what effect it has on their quality of life. As a voluntary participant in this study, it will take you approximately 10 minutes to complete the survey. If you have any questions, please refer to the Participant Information Letter you were given. Section A: The following statements assess how often you participated in various recreation activities over the past three months. Please circle the number that applies to you.

Recreation Activities Never Seldom Some times

Often Very Often

1. Doing outdoor activities, such as visiting parks or going to barbeques and patio events. 1 2 3 4 5

2. Playing games, such as cards, board games, table games, or computer games. 1 2 3 4 5

3. Doing social activities, such as having tea or coffee, or visiting with friends and family members. 1 2 3 4 5

4. Exercising, such as walking, fitness classes, carpet bowling, or doing a physical activity. 1 2 3 4 5

5. Media activities, such as reading, listening to music, or watching television. 1 2 3 4 5

6. Doing artistic or creative activities, such as crafts, singing, or dancing. 1 2 3 4 5

7. Going to special events outside the facility. 1 2 3 4 5 8. Resting or relaxing, by doing nothing or having a

nap. 1 2 3 4 5

9. Spiritual activities, such as going to church services or reading the Bible. 1 2 3 4 5

10. Other activities, such as:_________________ _________________________________________ 1 2 3 4 5

11. Other activities, such as:_________________ _________________________________________ 1 2 3 4 5

12. Other activities, such as:_________________ _________________________________________ 1 2 3 4 5

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Section B: The following statements assess who organized the recreation activities you participated in over the past three months. Please circle the number that applies to you.

Never Seldom Some times

Often Very Often

1. I organized the recreation activities I did on my own. 1 2 3 4 5 2. Staff members organized the recreation activities I

did. 1 2 3 4 5

3. Non-staff members (such as friends or family) organized the recreation activities I did. 1 2 3 4 5

4. I organized the recreation activities I did, but staff members encouraged or assisted me. 1 2 3 4 5

5. I organized the recreation activities I did, but non-staff members (such as friends or family) encouraged or assisted me.

1 2 3 4 5

Section C: The following statements assess how often various needs were satisfied during your recreation activities over the past three months. Please circle the number that applies to you.

Never Seldom Some times Often Very

Often 1. My recreation activities increased my knowledge

about things around me. 1 2 3 4 5

2. My recreation activities helped me develop close relationships with others. 1 2 3 4 5

3. My recreation activities developed my physical fitness. 1 2 3 4 5

4. I have had social interaction with others through my recreation activities. 1 2 3 4 5

5. My recreation activities gave me self-confidence. 1 2 3 4 5 6. My recreation activities helped me stay physically

healthy. 1 2 3 4 5

7. I used many different skills and abilities in my recreation activities. 1 2 3 4 5

8. My recreation activities contributed to my emotional well-being. 1 2 3 4 5

9. The people I met in my recreation activities were friendly. 1 2 3 4 5

10. My recreation activities helped me reduce my stress. 1 2 3 4 5 11. My recreation activities gave me a sense of

accomplishment. 1 2 3 4 5

12. My recreation activities were physically challenging. 1 2 3 4 5

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Section D: The following statements assess how often you experienced various feelings over the past three months. Please circle the number that applies to you.

Never Seldom Sometimes Often Very Often 1. Content 1 2 3 4 5 2. Depressed 1 2 3 4 5 3. Excited 1 2 3 4 5 4. Sad 1 2 3 4 5 5. Calm 1 2 3 4 5 6. Nervous 1 2 3 4 5 7. Drowsy 1 2 3 4 5 8. Angry 1 2 3 4 5

Section E: The following statements assess how satisfied you have felt about your life over the past three months. Please circle the number that applies to you.

Strongly Disagree

Slightly Disagree Neutral Slightly

Agree Strongly

Agree 1. As I look at my life, I am fairly well

satisfied. 1 2 3 4 5

2. I am just as happy as when I was younger. 1 2 3 4 5

3. I expect some interesting and pleasant things to happen to me in the future. 1 2 3 4 5

4. I would not change my past, even if I could. 1 2 3 4 5

5. My life could be happier than it is now. 1 2 3 4 5

6. I have made plans for things I’ll be doing a month or a year from now. 1 2 3 4 5

7. These are the best years of my life. 1 2 3 4 5 8. I have gotten pretty much what I

expect out of life. 1 2 3 4 5

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Section F: The following statement assesses your physical mobility. Please indicate which response best describes your situation by circling the corresponding letter.

1. Which one of the following statements best describes how you usually get around inside your facility?

a. I can walk independently without the use of any walking aids. b. I require the use of a walking aid, such as a cane or walker. c. I require the use of a wheelchair. d. I require the assistance of another person to be mobile.

Section G: We need to know a bit about the people who complete this survey. Please provide us with some basic information.

1. What is your gender? Male Female

2. What year were you born? ____________

3. What is your marital status?

Single/never married Married/common-law Widowed Other 4. What is the highest level of education you completed? _________________________

5. Do you generally read, write, and speak in English or in another language?

English Another language (If so, what is it? _______________________) 6. What is the name of the facility you are living in? _____________________________

7. How many months have you lived in this facility? _________ months.

8. Did you complete this questionnaire by yourself or did someone else help you?

I did it myself. I had help. (If so, what is the person’s relationship with you? _____________________________________)

Section H: The final section may help your facility plan future recreation activities. 1. Are there any new recreation activities you would like to start doing?

________________________________________________________________________ ________________________________________________________________________

2. Are there any current recreation activities you would like to do more often?

________________________________________________________________________ ________________________________________________________________________

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APPENDIX 3 - FOCUS GROUP TOOLS FOR FIRST SERIES (REVIEW OFRESIDENTSURVEY)

1.FocusGroupInformationletterandconsentform

2.Focusgroupguide

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4-023EdmontonClinicHealthAcademyUniversityofAlberta11405–87AvenueNWEdmonton,ABT6G1C9http://www.iccer.ca

354June2014

TITLE: RecreationTherapyandQualityofLifeinContinuingCareStudySPONSOR:AlbertaHealth

PRINCIPALINVESTIGATORS: Dr.GordWalker,ProfessorPhysicalEducationandRecreation,UniversityofAlberta

([email protected],780-492-0581)Dr.BobHaennel,ActingDeanandProfessorRehabilitationMedicine,UniversityofAlberta

([email protected],780-492-5991)CO-INVESTIGATORS: FrancineDrisner,CapitalCareJenniferGrusing,AgeCareCraigHart,NorQuestCollege

RenateSainsbury,LifestyleOptionsGailThauberger,BowValleyCollegeVincellaThompson,KeyanoCollege

PROJECTCOORDINATOR:

Sandra Woodhead Lyons, Executive Director, Institute for Continuing Care Education and Research(ICCER)(780-248-1504)

Thisinformationletterisonlypartoftheprocessofinformedconsent.Itshouldgiveyouthebasicideaofwhatthisresearch isaboutandwhatyourparticipationwill involve. Ifyouwould likemoredetails,pleaseask.Takethetimetoreadthislettercarefullyandtounderstandanyaccompanyinginformation.Youwillreceiveacopyofthisletter.

BACKGROUND

Littleisknownabouttheimpactofrecreationservicesandinterventionsonthequalityoflifeforindividualsinthecontinuingcaresector.In2012ICCERidentifiedtheneedforstudyanddocumentationofthebenefitsofrecreationtherapyservices.Residents,clients,families,andfront-linestaffseethebenefitsfromtheseinterventions,butthewayfundingisprovidedinAlbertamakesithardforproviderstojustifyhiringmorerecreationtherapystaff.Fromtheperspectiveofthefront-lineworkers,engagementintherapeuticandrecreationalinterventionsandprogramsincreasesmotivation,independence,functionalcapacityandqualityoflife.Italsoappearstodecreasetheneedforcertaintypesofmedicationsandreduceschallengingbehaviors.

WHATISTHEPURPOSEOFTHESTUDY?

ThisstudywillexaminerecreationtherapyactivitiesinsupportivelivingandlongtermcarefacilitiesinAlberta.Thestudywillfocusontherelationshipbetweenfrequency,duration,andnatureofrecreationactivities,thesixdimensionsofrecreationsatisfaction,andtheirimpactonthequalityoflife.Theresultswill potentially be used to encourage more funding for recreation staff in continuing care.

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WHATWOULDIHAVETODO?

Youhavebeenaskedtoparticipateinafocusgroup.Thefocusgroupwilllastapproximatelyonehour.Thisfocusgroupisspecificallytotalkaboutthesurveytheresearchteamplanstodowithresidentsinsupportivelivingandcontinuingcare.Youwillbeaskedtofreelyshareyouropinionsaboutanyissues,orideasforadministeringthesurvey,andtocommentonanyotherissuesorneedsthatyouthinktheresearchersneedtoknoworbeawareof.

Wewouldliketogetyourpermissiontoaudio-recordthesessionstoprovideanaccuraterecordofourconversation.Noteswillalsobetaken.

WHATARETHERISKS?

Therearenoknownriskstoparticipatinginthisstudy.Yourjobwillnotbeaffectedinanywaybyyourparticipationinthisstudyorbytheinformationyouprovide.

WILLIBENEFITIFITAKEPART?

Thereisnodirectbenefittoparticipatinginthisstudyalthoughinformationcollectedwillbeusedinthelargerstudyontheeffectsofrecreationtherapyactivitiesandqualityoflifeforresidents.ThestudymayhaveanimpactonimprovingrecreationtherapyactivitiesinAlberta.

DOIHAVETOPARTICIPATE?

Yourparticipationinthestudyisvoluntary.Youmaydeclinetoansweranyofthequestionsandendyourpartinthestudyatanytime.Shouldyouwishtowithdrawfromthestudy,pleaseinformtheresearcherorcontacttheindividuallistedbelow.Ifyoudecidetowithdraw,pleasebeawarethatyourrecordedcommentsandanswerswillnotbecodedinthetranscriptionsbutcannotberemovedfromthedatauptothatpoint.

Youalsohavetherighttoaskquestionsandaskformoreinformationwheneveryoulike.

WHATELSEDOESMYPARTICIPATIONINVOLVE?

Youmaybeaskedtoparticipateinafollow-upinterviewifwehavemorequestionsforyou.

WILLMYRECORDSBEKEPTPRIVATE?

During the focus group theremay be individualswho know and recognize you. Althoughwe requestfocus group participants respect the confidentiality of others in the group, we cannot guarantee it.Outsidethegroup,youranonymityandconfidentialitywillbeensuredinthetranscribeddata.Youwillnotbeidentifiedbynameinthetranscriptionprocess.

TheProjectCoordinator,theresearchassistant,andanyoftheresearchteamparticipatinginthefocusgroupareawarethatyouareparticipatinginthisstudyandthereforeitmaynotbepossibleforyoutotakepartinthestudyanonymously.Theinformationthatyouprovide,however,willbekeptconfidential.Codenumberswillbeusedontranscriptsandnotes.Listsofparticipantsalongwiththecodenumberandconsentformswillbestoredseparatelyfromthedata.Allinformationfromthestudywillbereportedatahighlevelonlymeaningthatyournamewillnotbeidentified.Onlyprincipalandco-investigators,projectcoordinator,andresearchassistantwillreviewtranscriptsandnotes.AlldatacollectedwillbestoredinalockedcupboardattheUniversityofAlbertaforaperiodoffiveyears.

Ideasandquotesfromfocusgroupsandnoteswillbeusedforinterimandfinalreports,publicationsandpresentationsofresearchinformation,butatnotimewillyoubeknownbyyournameorinanyotherway.Anonymityandprivacywillbeassuredasmuchaspossible.Youmayhaveacopyofinterimandfinalreports.

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ThisstudyhasbeenapprovedbytheHealthResearchEthicsBoard,UniversityofAlberta.

CONTACTS

Ifyouhavefurtherquestionsconcerningmattersrelatedtothisresearch,pleasecontactSandraWoodheadLyons,ExecutiveDirector,InstituteforContinuingCareEducationandResearch(ICCER),4-023EdmontonClinicHealthAcademy,UniversityofAlberta,11405-87AvenueNW,EdmontonABT6G1C9([email protected]).

Ifyouhaveanyquestionsconcerningyourrightsasapossibleparticipantinthisresearch,pleasecontacttheResearchEthicsOffice,UniversityofAlbertaat780-492-2615.

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CONSENTFORMTITLE: RecreationTherapyandQualityofLifeStudy

PRINCIPALINVESTIGATORS: Dr.GordWalker,ProfessorPhysicalEducationandRecreation,UniversityofAlberta([email protected],780-

492-0581)Dr.BobHaennel,ActingDeanandProfessorRehabilitationMedicine,UniversityofAlberta

([email protected],780-492-5991)CO-INVESTIGATORS: FrancineDrisner,CapitalCareJenniferGrusing,AgeCareCraigHart,NorQuestCollege

RenateSainsbury,LifestyleOptionsGailThauberger,BowValleyCollegeVincellaThompson,KeyanoCollege

PROJECTCOORDINATOR:SandraWoodheadLyons,ExecutiveDirector, Institute forContinuingCareEducationandResearch (ICCER) (780-248-1504)

Doyouunderstandthatyouhavebeenaskedtobeinaresearchstudy? r Yes r NoHaveyoureadandreceivedacopyoftheattachedInformationLetter? r Yes r NoDoyouunderstandthebenefitsandrisksinvolvedintakingpartinthisresearchstudy?

r Yes r No

Haveyouhadanopportunitytoaskquestionsanddiscussthisstudy? r Yes r NoDoyouunderstandthatyouarefreetorefusetoparticipateorwithdrawfromthestudyatanytime?Youdonothavetogiveareason

r Yes r No

Hastheissueofconfidentialitybeenexplainedtoyou? r Yes r NoDoyouunderstandwhowillhaveaccesstotheinformationyougive? r Yes r NoDoyouunderstandthatthefocusgroupwillbeaudio-recorded? r Yes r No

Continuedpage2.

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Thisstudywasexplainedtomeby:

Iagreetotakepartinthisstudy.

SignatureofResearchParticipant Date Witness

PrintedName PrintedName

Ibelievethatthepersonsigningthisformunderstandswhatisinvolvedinthestudyandvoluntarilyagreestoparticipate.

SignatureofInvestigatororDesignee Date

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FOCUSGROUPPROTOCOL

1. INTRODUCTION [approx.5minutes]

Welcome Everyone! I want to start by thanking all of you for coming today. My name is SandraWoodheadLyonsand Iwillbe facilitatingthegrouptoday. Iwould liketo introducemycolleague(X)whowillbeobservingthesessionandtakingnotes.

Ihopeeachofyouhavereceivedinformationaboutthepurposeofthismeetingtoday.However,Iwillgooverthepurposeofthisstudyandgiveyouanoverviewofwhatwewillbedoingduringthissession.

First,Iwouldliketocoversomehousekeepingissues.

Iassumethatyouhaveallfilledouttheconsentformalready.Ifyouarrivedlateandhavenotfilledouttheconsentform,Iwillhavetoaskthatyoudosonowbeforewecontinue.

Justareminderthatthissessionwillbewillberecordedonaudiotape.Onereasonwedothisissowecanidentifykeythemesfromthefocusgroups.However,Iwanttoassureyouthateverythingyousayherewillbekeptanonymous.Yournamewillnotbeassociatedwithanythingthatyousay.Sometimeshoweveroneofyoumaysaysomethingthatconciselycapturesapointthathasbeenraisedfrequently.Inthatcase,wemayuseyourexactwordsasaquote.ButwewouldNOTidentifyWHOhadsaidthesewords.

Becausewearetapingthesession,Ihavetoaskyoutospeakoneatatime.Ifseveralpeoplearetalkingatonce,thetaperecordercannotpickupwhatisbeingsaidandImightmisssomethingimportant.Aswell,Idowanttohearfromeveryone.AndsoIwouldaskthatallofyouberespectfulofthethoughtsand opinions expressed during the session; thus, allowing for an equal opportunity for everyone tospeakandparticipate.Imaytrytodrawsomepeopleintothediscussion.ButIdon’twanttomakeyouuncomfortable. Hopefully you will feel free to participate – sharing as little or as much as you arecomfortable with. Also, I would like to ask that what is said here stays here. Just as we will berespecting your confidentiality, we ask that you respect the confidentiality of others in the group.Pleasedonotdiscusswhatothersinthegrouphaveshared.

Howlongwillallthistake?

Today,oursessionshouldlastapproximatelyanhourandahalf.

Duringthediscussiontoday,wewouldliketohearYOURopinion.Whenwehavediscussions,wewouldlikeyoutospeakupandvoiceyouropinionespeciallyifitisdifferentfromtheopinionsalreadyraised.We do NOT want everyone to agree with each other - rather we would like to hear all the varyingviewpoints. Inotherwords, it is certainlyall right todisagreewith something that someoneelsehassaid.Purpose

The purpose of this focus group is to talk about the survey the research team plans to do with residents in supportive living and continuing care. Today we want to identify any issues or concerns you might have based on your knowledge of the residents you work with. This information will be used to improve the administration of the resident survey.

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2. PARTICIPANT INTRODUCTIONS [approx. 5-10 minutes]

We would like to start with introductions. We would like to introduce ourselves and we will ask you to do the same. Knowing each other will allow us all to feel comfortable in this enriching discussion.

3. QUESTIONS [approx. 40 minutes]

After the introductions, the team will share the resident survey (attached to ethics application form in documentation section), to encourage discussion and as a starting point.

1. What’s your overall impression of the survey? 2. Comment on the format and font size? Do you anticipate most of your residents will be able to

read it? Understand it? 3. Do you have specific comments or concerns about any of the questions? 4. What will be the most effective way to administer the survey in your facility? (need info on type of

facility and residents)

Discussion is encouraged around how the group feels it can be most effectively administered. The team will provide background on specific questions as to why they were selected and why they were worded the way they are.

4. CONCLUSION AND WRAP UP [5 minutes]

Facilitator will summarize some of the key issues or features of the discussion and will ask if any participants have any final comments or feedback in regards to the focus group.

Final thank you, wrap-up, and discussion of any further housekeeping issues.

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APPENDIX4-FOCUSGROUPTOOLSFORSECONDSERIES

1.FocusGroupInformationletterandconsentform

2.Focusgroupguide

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FOCUS GROUP PROTOCOL

1. INTRODUCTION [approx. 5 minutes]

Welcome Everyone! I want to start by thanking all of you for coming today. My name is Sandra Woodhead Lyons and I will be facilitating the group today. I would like to introduce my colleague (X) who will be observing the session and taking notes.

I hope each of you have received information about the purpose of this meeting today. However, I will go over the purpose of this study and give you an overview of what we will be doing during this session.

First, I would like to cover some housekeeping issues.

I assume that you have all filled out the consent form already. If you arrived late and have not filled out the consent form, I will have to ask that you do so now before we continue.

Just a reminder that this session will be will be recorded on audiotape. One reason we do this is so we can identify key themes from the focus groups. However, I want to assure you that everything you say here will be kept anonymous. Your name will not be associated with anything that you say. Sometimes however one of you may say something that concisely captures a point that has been raised frequently. In that case, we may use your exact words as a quote. But we would NOT identify WHO had said these words.

Because we are taping the session, I have to ask you to speak one at a time. If several people are talking at once, the tape recorder cannot pick up what is being said and I might miss something important. As well, I do want to hear from everyone. And so I would ask that all of you be respectful of the thoughts and opinions expressed during the session; thus, allowing for an equal opportunity for everyone to speak and participate. I may try to draw some people into the discussion. But I don’t want to make you uncomfortable. Hopefully you will feel free to participate – sharing as little or as much as you are comfortable with. Also, I would like to ask that what is said here stays here. Just as we will be respecting your confidentiality, we ask that you respect the confidentiality of others in the group. Please do not discuss what others in the group have shared.

How long will all this take?

Today, our session should last approximately an hour and a half.

During the discussion today, we would like to hear YOUR opinion. When we have discussions, we would like you to speak up and voice your opinion especially if it is different from the opinions already raised. We do NOT want everyone to agree with each other - rather we would like to hear all the varying viewpoints. In other words, it is certainly all right to disagree with something that someone else has said.

Purpose

The purpose of this focus group is to discuss recreation therapy activities with residents in supportive living and continuing care.

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Recreation Therapy and Quality of Life in Continuing Care Study 16 June 2014

Today we want to

2. PARTICIPANT INTRODUCTIONS [approx. 5-10 minutes]

We would like to start with introductions. We would like to introduce ourselves and we will ask you to do the same. Knowing each other will allow us all to feel comfortable in this enriching discussion. Please be sure to include your role, for instance recreation therapist, or recreation therapy assistant.

4. QUESTIONS [approx. 40-60 minutes]

Thank you for the introductions. I notice that there were x number of (RTs, RTAs, etc). Is this representative of the people who provide recreation therapy activities in your organization?

Who else is involved?

What sort of activities do you include under recreation therapy? Do you do one-on-one activities with residents? Or only group activities?

How active are your residents in choosing activities they want to do? Do you supervise/support resident directed activities?

What do you consider Quality of Life (QOL) to be, particularly in regards to your residents? Do you see a relationship between what you do, in terms of recreation, and QOL for the residents? What effect does recreation have on your residents lives?

4. CONCLUSION AND WRAP UP [5 minutes]

Facilitator will summarize some of the key issues or features of the discussion and will ask if any participants have any final comments or feedback in regards to the focus group.

Final thank you, wrap-up, and discussion of any further housekeeping issues.

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454June2014

CONSENTFORMTITLE: RecreationTherapyandQualityofLifeStudy

PRINCIPALINVESTIGATORS: Dr.GordWalker,ProfessorPhysicalEducationandRecreation,UniversityofAlberta([email protected],780-

492-0581)Dr.BobHaennel,ActingDeanandProfessorRehabilitationMedicine,UniversityofAlberta

([email protected],780-492-5991)CO-INVESTIGATORS: FrancineDrisner,CapitalCareJenniferGrusing,AgeCareCraigHart,NorQuestCollege

RenateSainsbury,LifestyleOptionsGailThauberger,BowValleyCollegeVincellaThompson,KeyanoCollege

PROJECTCOORDINATOR:SandraWoodheadLyons,ExecutiveDirector, Institute forContinuingCareEducationandResearch (ICCER) (780-248-1504)

Doyouunderstandthatyouhavebeenaskedtobeinaresearchstudy? r Yes r NoHaveyoureadandreceivedacopyoftheattachedInformationLetter? r Yes r NoDoyouunderstandthebenefitsandrisksinvolvedintakingpartinthisresearchstudy?

r Yes r No

Haveyouhadanopportunitytoaskquestionsanddiscussthisstudy? r Yes r NoDoyouunderstandthatyouarefreetorefusetoparticipateorwithdrawfromthestudyatanytime?Youdonothavetogiveareason

r Yes r No

Hastheissueofconfidentialitybeenexplainedtoyou? r Yes r NoDoyouunderstandwhowillhaveaccesstotheinformationyougive? r Yes r NoDoyouunderstandthatthefocusgroupwillbeaudio-recorded? r Yes r No

Continuedpage2.

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Thisstudywasexplainedtomeby:

Iagreetotakepartinthisstudy.

SignatureofResearchParticipant Date Witness

PrintedName PrintedName

Ibelievethatthepersonsigningthisformunderstandswhatisinvolvedinthestudyandvoluntarilyagreestoparticipate.

SignatureofInvestigatororDesignee Date

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APPENDIX5–LITERATUREREVIEWInpsychology,qualityoflife(QOL)isoftencalled“subjectivewell-being”(SWB).“Subjectivewell-beingisabroadcategoryofphenomenathatincludespeople’semotionalresponses,domainsatisfactions,andglobal judgements of life satisfaction” (Diener, Suh, Lucas, & Smith, 1999, p. 277). Each of thesecomponentscanbefurthersub-dividedinto:(a)positive(e.g.happiness)andnegative(e.g.depression)affect; (b) satisfactionwithone’s current life as awholeordistinct areas thereof; and (c) satisfactionwithdifferentdomains,includingrecreation(Dieneretal.,1999).Inpartbecausepersonalitytraitsarerelatively stable, people typically maintain, or eventually return to, the same level of happiness(Lyubomirsky,Sheldon,&Schkade,2005)andlifesatisfaction(Cummins,2013).Thisso-called“hedonicsetpoint”explainsroughly50percentofaperson’sSWB,withanother10percentorsobeingexplainedby“lifecircumstances”(e.g.age,gender;Lyubomirsky,2008).Theremaining40percentisdependentonthe degree towhich an individual engages in “intentional activities” that are flexible, self-congruent,self-determined,intrinsically-appealing,andsocially-supported(Lyubomirsky,2008).

Spiers andWalker (2009) noted that the intentional activity characteristics identified by Lyubomirsky(2008) were very similar to the attributes often ascribed to leisure (cf. Kleiber, Walker, & Mannell,2011).Similarly,afterconductingacomprehensivereviewofthepertinentliterature,Newman,Tay,andDiener (2014)proposedthat leisurecould“trigger” fivecorepsychologicalmechanisms—detachment-recovery, autonomy, mastery, meaning, and affiliation (or DRAMMA)—that, in turn, could lead toincreased SWB. Many of these mechanisms correspond with what Beard and Ragheb (1980) calledrecreationsatisfaction,thatis:“thepositiveperceptionsorfeelingswhichanindividualforms,elicits,orgainsasaresultofengaginginleisureactivitiesandchoices. It isthedegreetowhichoneispresentlycontentorpleasedwithhis/hergeneral leisureexperiencesandsituations” (p.22).BeardandRaghebidentified six recreation satisfaction sub-dimensions, five (i.e. social, psychological, physiological,educational,andrelaxation)ofwhicharecongruentwithSWBasdescribedabove,whilethesixth(i.e.aesthetic)isbetterconstruedasleisuresatisfactionfacilitator.

To date, the majority of empirical research on the above has focused on how frequency of leisureparticipation, and overall leisure satisfaction, influence SWB. Of these two, leisure satisfaction is thebetter predictor (Kleiber et al., 2011), likely because leisure participation is antecedent to leisuresatisfaction (Walker,Halpenny, Spiers,&Deng, 2011).A recentmeta-analysis (Kuykendall, Tay,&Ng,2015) supports the above, with these researchers reporting intercorrelations of: .26 between leisureparticipationandSWB,.38betweenleisuresatisfactionandSWB,and.42betweenleisureparticipationandleisuresatisfaction.

Although Kuykendall and colleagues (2015) also examined the relationships between leisureparticipation, leisure satisfaction, and SWB separately for workers and retirees—and discovered, forexample,thatthelattergroupgenerallyexhibitedstrongercorrelations—noneoftheseretirees,asfaraswecouldascertain,residedinCCfacilities.(Somewhatsimilarly,intheagingarea,Adams,Leibbrandt,andMoon,2011,reviewedover40studiesonsocialandleisureactivityandwellbeinginlaterlife,butdidnotidentifywhetherparticipantswerecommunity-orsite-based.)Infact,areviewoftheliteraturebyourresearchteamsuggestedthistypeofresearchisrelativelyrare.Amongthefewexceptionsare:(a)HorowitzandVanner’s(2010)studyofseniorsaged65andolderresidinginassistedlivingfacilities,which “found significant low tomoderate correlations between retained engagement in life activities(leisure,social,andinstrumentalactivitiesofdailylivingandlifesatisfaction,andseveralQOLdomains,includingphysicalfunctioning,mentalhealth,generalhealth,andvitality”(p.130).And(b)McGuinnandMosher-Ashley’s (2000) study of older adults residing in LTC facilities, that found that although the

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overall number of recreation activities participated in did not affect residents’ life satisfaction, thosewhoreportedengaginginself-generatedrecreationactivitieshadahigherleveloflifesatisfactionthanthose that did not. Worth noting here is that neither of these investigations measured recreationsatisfaction,whichhasbeenfoundtobean interveningvariablebetweenrecreationparticipationandlifesatisfaction(Kuykendalletal.,2015;Walkeretal.,2011).

Alsonoteworthyisthatitmaynotonlybewhetherrecreationactivitiesareoraren’tself-generatedthatisimportant,butalsotheamountofdirectcareprovidedbyactivitystaff.Forinstance,inalongitudinalstudyofnursinghomesfrom2007to2010,Shippeeandassociates(2014)foundthat,whileage,gender,maritalstatus,andfunctionalhealthwereconsistentpredictorsacrossanumberofQOLdomains,“[t]hepositive association between increases in QOL and activity staff hours suggests the importance ofprovidingresidentswithparticipationinsocialorgoal-directedactivities.InterventionstoimproveQOLamongthisgroupoffacilitiesmay include increasingthenumberofhoursperdayofactivitystaff”(p.574). Bergland and Kirkevold’s (2006) study of Norwegian nursing home residents seems to supportbothapproaches, as theirparticipants reportedbothorganized (e.g.musicalevents)and self-initiated(e.g. reading) recreation activities were described as pleasant and meaningful, and contributed to asenseofthriving.

Solely self-organized recreation, and entirely externally-organized recreation, can be viewed as theoppositepolesonarecreationservicecontinuum(Rossman&Schlatter,2008).Variouspermutations(or“modes”)existbetweenthesetwoextremes;andthisistrueforeachexternalrecreationprovider.Thus,inordertounderstandaCCresident’soverallrecreationsatisfaction,itwouldseemnecessarytoknowboth his or her overall recreation participation frequencyand not only how frequently eachmode isemployed by him or her (e.g. self-organized, self-organized but externally facilitated; externallyorganized), but also across allmajor external recreationproviders (e.g. facility staff; non-facility staff,suchasfamilyandfriends).

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APPENDIX6–DETAILEDSTATISTICALINFORMATIONFORON-LINESURVEYRESULTSHierarchicalRegressionResultsPredictingOverallRecreationSatisfaction

RegressionVariablePredictingOverall

RecreationSatisfaction

Block1:SociodemographicCharacteristicsandTypeofFacility

Block2:Block1PlusOverall

RecreationParticipationFrequency

Block3:Blocks1and2PlusRecreationServiceModes

KeyFindings

Intercept 3.60 1.02 0.50 -----

Gender-0.13** -0.09** -0.11***

Higherforfemalesthan

males

YearofBirth 0.00 0.00 0.00 -----

PhysicalMobility 0.08 0.05 0.05 -----

TypeofFacility -0.04 0.00 0.04 -----

OverallRecreationParticipationFrequency

----- 0.73**** 0.63****Variablehavingthelargest

positiveeffect

IndependentMode(Residentorganizesrecreationactivitiesonhis/herown)

----- ----- 0.10*** -----

Dependent-StaffMode(Residentstafforganizerecreationactivities)

----- ----- 0.06* -----

Dependent-Non-StaffMode(Non-staff—e.g.family,friends—organizerecreationactivities)

----- ----- 0.00 -----

Interdependent–StaffMode(Residentorganizesbutresidentstafffacilitaterecreationactivities)

----- ----- 0.16****

Modethathasthelargest

positiveeffect

Interdependent–Non-StaffMode(Residentorganizesbutnon-staff—e.g.family,friends—facilitaterecreationactivities)

----- ----- -0.09*OnlyModethathasanegative

effect

ExplainedVariance .04 .31 .37 -----

Note.1=Never.2=Seldom.3=Sometimes.4=Often.5=VeryOften.*p<.05.**p<.01.***p<.001.****p<.0001.

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HierarchicalRegressionResultsPredictingQualityofLife–PositiveAffect

RegressionVariablePredictingPositiveAffect

Block1:SociodemographicCharacteristicsandTypeofFacility

Block2:Block1PlusOverall

RecreationParticipationFrequency

KeyFindings

Intercept 3.52 2.27 -----

Gender -0.05 -0.01 -----

YearofBirth 0.00 0.00 -----

PhysicalMobility 0.15** 0.11* Higherforthosewhocouldwalkindependently

TypeofFacility 0.00 0.01 -----

OverallRecreationSatisfaction ----- 0.34****Variablehavingthelargestpositiveeffect

ExplainedVariance .02 .13 -----

Note.1=Never.2=Seldom.3=Sometimes.4=Often.5=VeryOften.*p<.05.**p<.01.***p<.001.****p<.0001.

HierarchicalRegressionResultsPredictingQualityofLife–LifeSatisfaction

RegressionVariablePredictingLifeSatisfaction

Block1:SociodemographicCharacteristicsandTypeofFacility

Block2:Block1PlusOverall

RecreationParticipationFrequency

KeyFindings

Intercept 4.19 2.55 -----

Gender -0.08 -0.02 -----

YearofBirth -0.01 0.00 -----

PhysicalMobility 0.19** 0.15** Higherforthosewhocouldwalkindependently

TypeofFacility -0.02 0.00 -----

OverallRecreationSatisfaction ----- 0.46****Variablehavingthelargestpositiveeffect

ExplainedVariance .04 .16 -----

Note.1=StronglyDisagree.2=Disagree.3=Neutral.4=SlightlyAgree.5=StronglyAgree.*p<.05.**p<.01.***p<.001.****p<.0001.

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APPENDIX7–REFERENCESFORTHEREPORTAdams,K.B.,Leibbrandt,S.,&Moon,H. (2011).Acritical reviewofthe literatureonsocialand leisure

activityandwellbeinginlaterlife.AgeingandSociety,31,683-712.

Beard,J.G.&Ragheb,M.G.(1980).Measuringleisuresatisfaction.JournalofLeisureResearch,12,20-33.

Bergland, A., & Kirkevold, M. (2006). Thriving in nursing homes in Norway: Contributing aspectsdescribedbyresidents.InternationalJournalofNursingStudies,43,681-691.

Carruthers, C.P., & Hood, C.D. (2004). The power of the positive: Leisure andwell-being.TherapeuticRecreationJournal,38,225-245.

Cohen,J.(1992).Apowerprimer.PsychologicalBulletin,112,155-159.

Cummins,R.A.(2003).Normativelifesatisfaction:Measurementissuesandahomeostaticmodel.SocialIndicatorsResearch,64,225-256.

Deci, E.L., & Ryan, R.M. (2000). The" what" and" why" of goal pursuits: Human needs and the self-determinationofbehavior.PsychologicalInquiry,11,227-268.

Diener,E.,Suh,E.M.,Lucas,R.E.,&Smith,H.E.(1999).Subjectivewell-being:Threedecadesofprogress.PsychologicalBulletin,125,276-302.

Horowitz,B.P.,&Vanner,E.(2010).Relationshipsamongactiveengagementinlifeactivitiesandqualityoflifeforassisted-livingresidents.JournalofHousingfortheElderly,24,130-150.

Hoyt, D.R., & Creech, J.C. (1983). The Life Satisfaction Index: A methodological and theoreticalcritique.JournalofGerontology,38,111-116.

Institute forContinuingCareEducation&Research.TheCommunityNeedsDrivenResearchNetwork.FinalReport.February2014.http://www.iccer.ca/pdf/ICCER_CNDRN_final_report.pdf[accessed12August2015]

Kleiber,D.A.,Walker,G.J.,&Mannell,R.C.(2011).Asocialpsychologyofleisure(2nded.).StateCollege,PA:VenturePublishing.

Kuykendall,L.,Tay,L.,&Ng,V.(2015).Leisureengagementandsubjectivewell-being:Ameta-analysis.PsychologicalBulletin,141,364-403.

Lee,C.T.,Yeh,C.J.,Lee,M.C.,Lin,H.S.,Chen,V.C.H.,Hsieh,M.H., ...&Lai,T.J.(2012).Leisureactivity,mobilitylimitationandstressasmodifiableriskfactorsfordepressivesymptomsintheelderly:Resultsofanationallongitudinalstudy.ArchivesofGerontologyandGeriatrics,54,e221-e229.

Lyubomirsky,S. (2008).Thehowofhappiness:A scientificapproach togetting the lifeyouwant.NewYork:ThePenguinPress.

Lyubomirsky, S., Sheldon, K.M., & Schkade, D. (2005). Pursuing happiness: The architecture ofsustainablechange.ReviewofGeneralPsychology,9,111-131.

McGuinn, K.K.,&Mosher-Ashley, P.M. (2000). Participation in recreational activities and its effect onperceptionoflifesatisfactioninresidentialsettings.Activities,Adaptation&Aging,25,77-86.

McKechnie,G.E.(1975).ManualfortheLeisureActivitiesBlank.PaloAlto,CA:ConsultingPsychologistsPress.

Page 58: Recreation Services and Quality of Life in Continuing Care ... · Final Report on Recreation Services and Quality of Life in Continuing Care II 27 August 2015 Summary: Recreation

FinalReportonRecreationServicesandQualityofLifeinContinuingCare

5227August2015

Neugarten,B.L.,Havighurst,R.J.,&Tobin,S.S. (1961).Themeasurementof life satisfaction.JournalofGerontology,134-143.

Newman,D.B.,Tay,L.,&Diener,E.(2014).Leisureandsubjectivewell-being:Amodelofpsychologicalmechanismsasmediatingfactors.JournalofHappinessStudies,15,555-578.

Rossman,J.R.,&Schlatter,B.E.(2008).Recreationprogramming:Designingleisureexperiences(5thed.).SagamorePublishing.

Russell,J.A.(1980).Acircumplexmodelofaffect.JournalofPersonalityandSocialPsychology,39,1161-1178.

Ryan,R.M.,&Deci,E.L. (2001).Onhappinessandhumanpotentials:A reviewof researchonhedonicandeudaimonicwell-being.AnnualReviewofPsychology,52,141-166.

Shipee,T.P.,Hong,H.,Henning-Smith,C.,&Kane,R.L. (2015).Longitudinalchanges innursinghomeresident-reportedqualityoflife:Theroleoffacilitycharacteristics.ResearchonAging,37,555-580.

Spiers, A., & Walker, G.J. (2009). The effects of ethnicity and leisure satisfaction on happiness,peacefulness,andqualityoflife.LeisureSciences,31,84-99.

Tsai,J.L.(2007).Idealaffect:Culturalcausesandbehavioralconsequences.PerspectivesonPsychologicalScience,2,242-259.

Walker,G.J.,Halpenny,E.,Spiers,A.,&Deng,J.(2011).AprospectivepanelstudyofChinese-Canadianimmigrants’leisureparticipationandleisuresatisfaction.LeisureSciences,33,349-365.