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RE: INITIAL IRB APPLICATION Research Compliance 5237 University of Oregon Eugene, OR 97403-5237 November 23, 2013 To whom it may concern: I am writing to introduce my Initial IRB Application. My research project will examine how digital storytelling can provide safe space for creative expression through a thorough literature review and interviews with expert facilitators and experienced participants of digital storytelling workshops. Data from these interviews will be compared with the literature review to form an explanatory conceptual framework. Please find the following documents and attachments enclosed: Completed “Initial IRB Application” Research Plan Attachment D –Use of Audio/Video Recording or Photography in Research Appendix A: Primary Investigator’s Resume Appendix B1: Data Collection Tool – Interview of Facilitator Appendix B2: Data Collection Tool – Interview of Participant Appendix C1: Recruitment Letter to Facilitator Appendix C2: Recruitment Letter to Participant Appendix D1: Consent Form for Facilitator Appendix D2: Consent Form for Participant Appendix E: CITI Human Research Curriculum Completion Report Appendix F: Site Permission I intend to begin data collection in February, 2014. Please contact me if I can provide any additional information or clarification for the approval process at [email protected] or (707) 980-0007. Thank you for your consideration of my application. I look forward to hearing from you. Best regards, Evelyn Thorne Master’s Degree Candidate Arts & Administration Program

UO Initial IRB Review Application Submit Materials by E-mail: [email protected] Page 1 of 7

Version 06, Draft 05/23/2012

University of Oregon

Initial IRB Application

Instructions: Complete this form to request initial IRB review of research involving human participants. Forms for Continuing Review and Approval and exemption are posted on the UO IRB webpage. This checklist is for general guidance and to help researchers submit complete application materials and facilitate the review process. Incomplete or unreadable applications will be extend the IRB process. If you are collecting data at a Hospital, please seek Hospital IRB approval prior to UO IRB approval. NOTE: If this form opens as a "read-only" document, save it to your computer before proceeding. Please submit an electronic version of the application and all research materials (consent form, surveys, interview guides, etc) to [email protected]. A Complete Application Packet Should Include:

A cover letter or memo that inventories all materials submitted One complete copy of the protocol. The protocol is: (1) the application, (2) the separate Research Plan,

and (3) research instruments. Types of research instruments that should be attached: Recruitment Materials: emails, letters, recruitment scripts, flyers, posters, brochures, etc. Data Collection Materials: questionnaires, surveys, data collection forms, focus group scripts,

interview scripts, etc. One copy of the application must have signature(s) (approval will be withheld without signature) Copies of IRB Training certificates for all key research personnel who will interact or collect data Consent Forms(s) or,

If requesting an alteration or waiver of consent If minors (under 18) will be research participants, complete the Minor’s Application in the RCS

website Student Researchers:

Consulted with faculty research: the study will be published, or presented at a conference or other public forum Dissertation and Master’s theses proposals include approved dissertation or thesis proposal. Faculty research advisor has signed the application

Research in Hospitals or HIPAA Covered Entities

If using Protected Health Information (PHI) Submit the Statement on HIPAA PHI form Submit copies of the IRB approval letter and IRB approved consent form(s) from the participating Institution(s)

Research in Public Schools:

Review Protection of Pupil Rights Amendment requirements at: http://www.ed.gov/policy/gen/guid/fpco/ppra/index.html Submit copies of the permission to perform research from each School Principal Submit copies of IRB approval if the school has an IRB

Research at sites other than University of Oregon:

Submit copies of the permission to perform research from administrator Submit copies of IRB approval if site has an IRB

Federally funded research: Wait until you have been funded before submitting an IRB Application.

Submit documentation of funding status with this protocol application Submit a complete copy of the federal grant application including face page

For detailed information on completing this application or creating consent documents go to http://ophs.uoregon.edu/index.cfm?action=irb or call Research Compliance Services 541-346-2510.

mailto:[email protected]

http://ophs.uoregon.edu/index.cfm?action=irb&sub=forms


http://ophs.uoregon.edu/files/uploads/Guidelines_for_Research_Plan.pdf

http://www.ed.gov/policy/gen/guid/fpco/ppra/index.html

http://ophs.uoregon.edu/index.cfm?action=irb



Initial IRB Review Application

Instructions: Use this form for requesting a review of a new protocol. See continuing review application for previously approved protocols, amendment application to change currently approved applications and the exemption application for requesting an exemption from IRB review for a new study

Research Compliance Services

Committee for the Protection of Human Subjects

Phone: 541-346-2510 Fax: 541-346-6224 E-mail form and application materials to : [email protected]

1. Study Title: (If funded must match the sponsored title)

Digital Storytelling: A Safe Space for Creative Expression

2. Principal Investigator Information

A. Name of Principal Investigator: Evelyn Thorne B. Department or Institution: Arts and Administration Program

C. Are You? (Please check) Faculty Staff Undergraduate Student Graduate Student Postdoctoral fellow Other:

D. Co-Investigator(s):

E. Mailing Address:1635 Ferry St. #2 Eugene, OR 97401

F. E-mail address:[email protected]

G. Primary Phone Number:707-980-0007 H. Alternate Phone:NA

I. For Students - Faculty Advisor’s Name:Lori Hager J. Faculty Advisor’s Phone:541-346-2469

K. Faculty Advisor’s E-mail:[email protected]

3. Funding

A. None (Go on to Section IV) Do you plan to apply for funding in the future? Yes* No * Please explain: B. University Funded: List source: C. External*: List source and grant number: D. Federal*: List agency, department and grant number: *Wait until you have been notified that your project will be funded before seeking IRB approval unless otherwise instructed by funding source. Submit documentation of funding status with application and a complete copy of the grant with your IRB application E. Is UO the primary awardee for the grant? Yes No* If No Please list Primary Awardee: F. Are there subcontracts Yes* No If Please list sub-contractors:

4. General Study Information

A. Participant Recruitment Numbers Females: 4 Males: 2 B. Participant Ages (please check)

0-7 (parental consent and oral child assent) 7-11(parental consent and child written consent) 12-18 (parental consent and written consent) 18-65 65+

D. Estimated Project Duration Start Date:1/1/2014 End Date:6/15/14 E. Why is this Project being conducted? (please check)

Faculty/Staff Research Undergraduate Coursework Master’s Thesis Doctoral Dissertation Other:Master's Project





5. Special Study Populations (check if applicable)

Minors (under 18 years) If including minors, also complete Minors risk application Pregnant Women/Fetuses or products of labor & delivery Prisoners Physically or mentally challenged Diminished capacity for consent

Other:

6. Research Risk

*Research must present no more than minimal risk to human participants in order to qualify for expedited review. Minimal risk means that the “probability and magnitude of harm or discomfort anticipated in the research are not greater in and of themselves than those ordinarily encountered in daily life or during the performance of routine physical or psychological examinations or tests.” (45 CFR 46.102) A. Does the research propose greater than minimal risk to participants? Yes* No *If yes skip to part C of this section B. Does the research include prisoners? Yes* No *If research includes prisoners, the application must be reviewed by the full board C. Check all procedures that apply to the research:

(1) Clinical studies of drugs and medical devices. Please specify:

(2) Collection of blood samples by finger stick, heel stick, ear stick, or venipuncture. Please specify:

(3) Prospective collection of biological specimens for research purposes by noninvasive means. Examples: hair and nail clippings; saliva, deciduous teeth at time of exfoliation or extracted during routine care,; excreta and external secretions (including sweat); un-cannulated mucosal and skin cells collected by buccal scraping or swab, skin swab, or mouth washings; sputum collected after saline mist nebulization. Please specify:

(4) Collection of data through noninvasive procedures routinely employed in clinical practice, excluding procedures involving x-rays or microwaves. Examples: physical sensors that are applied either to the surface of the body or at a distance and do not involve input of significant amounts of energy into the participant or an invasion of the participants privacy; weighing or testing sensory acuity; magnetic resonance imaging; electrocardiography, electroencephalography, thermography, detection of naturally occurring radioactivity, electroretinography, ultrasound, diagnostic infrared imaging, doppler blood flow, and echocardiography; moderate exercise, muscular strength testing, body composition assessment, and flexibility testing where appropriate given the age, weight, and health of the individual. Please specify:

(5) Research involving materials (data, documents, records, or specimens) that have been collected, or will be collected solely for non-research purposes (such as medical treatment or diagnosis). Please specify:

(6) Collection of data from voice, video, digital, or image recordings made for research purposes. Please specify: Audio record interviews

(7) Research on individual or group characteristics or behavior (including, but not limited to, research on perception, cognition, motivation, identity, language, communication, cultural beliefs or practices, and social behavior) or research employing survey, interview, oral history, focus group, program evaluation, human factors evaluation, or quality assurance methodologies. Please specify: Individual interviews

(8) Continuing review of research previously approved by the convened IRB as follows:(a) where (i) the research is permanently closed to the enrollment of new participants; (ii) all participants have completed all research-related interventions; and (iii) the research remains active only for long-term follow-up of participants; or(b) where no participants have been enrolled and no additional risks have been identified; or(c) where the remaining research activities are limited to data analysis. Please specify:

None of the above categories apply. For a comprehensive list of Expedited Categories see http://www.hhs.gov/ohrp/humansubjects/guidance/expedited98.htm D. Does this study involve any of the following? (Check all that apply)

Deception or Punishment


http://www.hhs.gov/ohrp/humansubjects/guidance/expedited98.htm



Use of drugs

Covert observation

Induction of mental and/or physical stress

Procedures which may risk physical/mental harm to the participant

Materials/issues commonly regarded as socially unacceptable

Information relating to sexual attitudes, preferences, or practices

Information relating to the use of alcohol, drugs or other addictive products

Procedures that might be regarded as an invasion of privacy

Information pertaining to illegal conduct.

Genetic information that may be linked to a participant’s health status, such as genetic markers for cancer, heart disease, etc. (please see additional application for Genetic research/tissues and specimens)

Information normally recorded in a patient's medical record, and the disclosure of which could reasonably lead to social stigmatization or discrimination.

Information pertaining to an individual's psychological well being or mental health.

Information that if released could reasonably damage an individual's financial standing, employability, or reputation within the community.

Please provide details on all procedures checked above: How are they integral to the study?

7. Research Plan:

Please attach a brief research plan using the topic headers A-I below. Please use simple language and avoid technical jargon. For additional guidance on the research proposal plan, see the University of Oregon IRB Research Plan Guidelines online. Note: Grant, thesis, dissertation or course work proposals may not be submitted in lieu of the Research Plan because traditional proposals do not include specific information on risks, benefits and detailed informed consent procedures. Grant, thesis or Dissertation proposal should be attached as an addendum to the IRB application. Some of the information in a traditional proposal may be cut and pasted into the Research Plan such as the introduction, methods, materials and analysis.

A. Introduction and Background:

1. State the problem and hypothesis 2. Provide the scientific or scholarly reason for this study and background on the topic

B. Specific Aims/Study Objectives:

1. List the purpose(s) of the study (what are you hoping to learn as a result of the study)

C. Materials, Methods and Analysis (quantitative and qualitative):

1. Describe data collection methods (Procedures)-be specific 2. Describe the specific materials or tools that will be used to collect the data- be specific 3. Describe timeline of the procedures and how long each procedure will last 4. Describe how you will analyze your data; describe the analysis type and procedures including statistics and scientific

or scholarly justification for the use of these analyses- be specific

D. Research Population & Recruitment Methods:

Describe: 1. Inclusion and Exclusion Criteria (what participant traits are needed to be included, what traits exclude participants?) 2. What is the scientific or scholarly justification for the number, gender, age, or race of the population you intend to

recruit? 3. How did you choose the source of participants or data? (census records, UO students, Mass General Hospital records,

etc.) 4. Recruitment procedure (if applicable) including who will recruit participants 5. Tools that will be used to recruit (payment, advertisements and flyers attach copies to this application)

(Note: participant reimbursement beyond $600 must be reported to the IRS, and this requirement must be added to the consent

form)

E. Informed Consent Procedure

Describe: 1. Who will perform the informed consent procedure? 2. How will that person be trained? (previous related coursework, previous experience, one-on one training with PI or

faculty, etc.)






3. How will the prospective participant’s competence or understanding of the procedures be assessed; will participants be asked questions about the procedures, or encouraged to ask questions?

F. Confidentiality:

Describe the Provisions for participant and data confidentiality: 1. Where the data will be stored, and who will have access to the data and the area? 2. How will the data be stored, and in what format (hard or electronic copy, identifiable or de-identified) 3. Will the participant’s identity be coded? Will the codes to identify participants be stored with the data? (Note: If you

are working with a Hospital or Clinic, please follow their HIPAA Guidelines for data collection and education)

These confidentiality procedures are designed to protect information that if disclosed could have a detrimental effect on community status of the participant, employability, health insurance coverage, liability or be damaging to their reputation.

Special privacy protections for genetic analysis and tissue retention: Will any tissues or body fluids be collected for

genetic or DNA analysis? If so you must specifically state how the samples will be used and if the samples will be retained for future use or perpetual cell line growth. This information must be in the consent form/process, and the participants must be allowed to opt out of perpetual cell line growth.

G. Potential research risks or discomforts to participants

1. Indicate the type of risk that may result from participation. Consider psychological or emotional risks, social stigma, change in status or employment, physical risks or harms, information risks-breach of confidentiality and any effect loss of confidentiality may have on status, employment, or insurability. If the protocol involves treatment, what are the risks compared to other treatments in terms of “standard of care”?

2. Consider the likelihood and magnitude of the risks or discomforts occurring? Are they unlikely, or likely to occur and what effect would the discomforts or risks have on the individual should they occur?

3. How will you minimize risks? Some examples include informed consent, adequate staff training and experience, debriefing, and monitoring adverse effects on participants. If there are no expected risks, state this clearly.

H. Potential research benefits to participants

1. Indicate the type of benefit that may result from participation. Consider psychological or emotional benefits, learning benefits, physical benefits and discuss if participant will benefit directly or if the benefit is largely to gather generalizable knowledge or provide scientific or social information on a topic that may benefit society. DO NOT OVERSTATE the benefit.

2. Consider the likelihood of the benefits. Will all participants benefit, some or none? If there are no direct benefits to participation, state that clearly.

(Note: Monetary compensation is not a benefit of participation, it is a recruitment tool)

I. Investigator experience. Please Attach a current copy of your C.V., unless a current copy is on file.

8. Informed Consent and Waiver of Elements of Informed Consent or Documentation

A. Waiver of Documentation of informed consent: Do you propose a waiver of the requirement to obtain a signed consent form for some or all subjects? Yes No *

If NO, proceed to section 9. B. The IRB may waive the documentation requirement of informed consent (45 CFR 46.117(c) IF:

a. The only record linking the subject and the research would be the consent document, and the principal risk would be

potential harm resulting from a breach of confidentiality. Each subject will be asked whether the subject wants documentation linking the subject with the research, and the subject’s wishes will govern. OR b. The research presents no more than minimal risk of harm to subjects, and involves no procedures for which written

consent is normally required outside of the research context.

Does the protocol meet the all criteria described in a or b above? Please explain:

9. Research Staff (e.g., PI. Co-PI, Research Assistant, and all key personnel who work with data.). Please list and submit

educational certificates for all personnel who will interact with the data. The online educational site ( hyperlink)

Name and credentials Date of IRB Training Certificate Research Role University/Department

Evelyn Thorne 11/07/13 Principal Investigator Arts and Administration Program

10. Performance Sites:




(e.g., University of Oregon, Public Schools, Hospitals, etc.). If the institution has an IRB, IRB approval must be received from that institution as well as University of Oregon unless an IRB review agreement has been made. If the Institution does not have an IRB, the Institution must authorize or provide permission for the research activities (please attach a letter of permission from an Institutional Official, or send as an email to [email protected]). If you are collecting data at a Hospital with an IRB, seek Hospital approval prior and attach HIPAA data use agreements and copies of HIPAA educational certificates to the UO IRB Review application.

Name of Institution (s) Date of IRB Approval

11. Acknowledgement

SUBMISSION OF A PROPOSAL TO THE UO IRB REQUIRES THAT THE PRINCIPAL INVESTIGATOR (AND MENTOR IF THE PI IS A STUDENT OR FELLOW) SIGN THIS PAGE AND READ COMPLETELY THE DEFINITION OF “SCIENTIFIC MISCONDUCT” AND ANSWER ALL “CONFLICT OF INTEREST” QUESTION GIVEN BELOW.

A. Scientific Misconduct

“Scientific Misconduct” shall be considered to include: 1. Fabrication, falsification, plagiarism or other unaccepted practices in proposing, carrying out or reporting results from

research; 2. Material failure to comply with Federal requirements for the protection of human participants, researchers and/or the Public; 3. Failure to meet other material legal requirements governing research; 4. Failure to comply with established standards regarding author names on publications; 5. Failure to adhere to issues of confidentiality as provided in the participant consent form, the study protocol, and as outlined

in the Code of Federal Regulations (45 CFR 46). B. Conflict of Interest

1. Are you or any member of your immediate family (spouse or domestic partner and/or dependent children) an officer, director, partner, trustee, employee, advisory board member, or agent of any of the following (check all that apply):

An external organization funding this project Any external organization from which goods and services will be obtained under this project (including

those to which you may be subcontracting a portion of the project work) Any external organization whose financial condition could benefit from the results of this project Any external organization having business dealings in an area related to the work under this project

2. Are you or any immediate family member the actual or beneficial owner of more than five percent (5%) of the voting stock or controlling interest of any of the following (check all that apply):

The external organization funding this project Any external organization from which goods and services will be obtained under this project (including those to which you

may be subcontracting a portion of the project work) Any external organization whose financial condition could benefit from the results of this project Any external organization having business dealings in an area related to the work under this project

3. Have you or any member of your immediate family derived income within the past year, or do you or any member of your immediate family anticipate deriving income, exceeding $10,000 per year from(check all that apply):

An external organization funding this project

Any external organization from which goods and services will be obtained under this project (including those to which you may be subcontracting a portion of the Project work)

Any external organization whose financial condition could benefit from the results of this project Any external organization having business dealings in an area related to the work under this project Do not include funds that would pay your university salary under a sponsored project budget *If you checked any of the above, please specify the extent of involvement:

4. For those projects funded by any external entities, do you have a current, up-to-date Conflict of Interest Disclosure on file with Research Compliance Services that describes this financial relationship? Yes No (if no you must submit an undated COI

disclosure before IRB approval)

5. Do you have a UO Management Plan in place relating to any Financial Conflict of Interest? Yes No





12. SIGNATURES

SIGNATURE OF PRINCIPAL INVESTIGATOR

In submitting this proposed protocol and signing below, I certify that I will conduct the research involving human subjects as presented in the protocol and approved by the University of Oregon CPHS. The undersigned accept(s) responsibility for the study, including adherence to the ethical guidelines set forth in the Belmont Report, Declaration of Helsinki, the Nuremberg Code, the ethical principles of your discipline, the Common Rule and University of Oregon policies regarding protections of the rights and welfare of human participants participating in this study. In the case of student protocols, the faculty research supervisor and the student share responsibility for adherence to policies. Electronic signatures are acceptable (you may type your name or insert an image into this section of the document)*.

Evelyn Thorne 11/23/13

Print Name of Principal Investigator Signature of Principal Investigator Date

SIGNATURE OF FACULTY RESEARCH SUPERVISOR - REQUIRED FOR STUDENT RESEARCH

By signing this form, the faculty research supervisor attests that (s) he has read the attached protocol submitted for IRB review, and agrees to provide appropriate education and supervision of the student investigator, above and share the above Principal Investigator responsibilities. Electronic signatures are acceptable (you may type your name or insert an image into this section of the document)*.

Lori Hager 12/10/13

Print Name of Faculty Research Supervisor

Signature of Faculty Research Supervisor Date

*Editing of this document is restricted to form fields and checkboxes, except for the above fields for signatures. You should be able to

insert an image using most word processing programs.


Evelyn Thorne IRB Application Research Plan

A. Introduction and Background

Digital storytelling is the process in which people tell personal stories through digital media.

This process is usually taught through a three day workshop format where participants share their

stories, receive feedback, craft their script, audio record their story, learn how to use a film

editing software, collect media such as photographs, sound effects and music and finally weave

all these elements together into a single digital story. The Center for Digital Storytelling is an

international training facility of this process and will be the focus of this research project.

While there is existing research on digital storytelling’s effect on topics such as media literacy,

self-efficacy or trauma healing, there is a significant gap on analyzing how digital storytelling

affects creativity. This research project will address this gap by examining how digital

storytelling can cultivate safe space for creative expression.

B. Specific Aims/Study Objectives

There is currently a strong interest in participatory design and media within the arts

administration field, but few successful methods for engaging adults with a wide range of

creative abilities. The goal of this project is to discover how digital storytelling can be effective

in helping adults express themselves creatively, by analyzing what elements of digital

storytelling influence safe space for creative expression.

While digital storytelling has a specific methodology and practice, the elements of the process

that affect safe space, such as a balance between process and product or a focus on participants’

rights, can be extrapolated to other fields so that practitioners interested in engaging adults in

creativity, regardless of previous exposure to the arts, can learn from the digital storytelling

process on how better to build safe space for creative expression into their initiatives.

C. Materials, Methods and Analysis

The methods of data collection will consist of an extensive literature review and key informant

interviews of expert digital storytelling facilitators and experienced participants of digital

storytelling workshops.

The primary methods of data recording will include handwritten notes and audiotape of interviews, if given consent by the interviewees. Interviews will be summarized (with some selective transcription) in computer documents. A semi-structured interview form will be used as the data collection instrument for this investigation. Appendix B includes two versions of this form, one for expert facilitators and the second for experienced participants of digital storytelling workshops. Three interviews with facilitators and 2-3 with participants will each last approximately one

hour. The length of potential follow-up interviews cannot be determined at this time, but every effort will be made to minimize additional requests of research participants. All interviews will take place between February and March of 2014. The entire master’s research project will be completed by June 2013.

All field data collected will be coded by using key themes and keywords identified in the conceptual framework of this study. Comparative analysis and triangulation of data content and data sources will be ongoing, as this is a qualitative study employing grounded theory. Data from the interviews will be compared with the literature review to form a conceptual

framework that explains how digital storytelling can build safe space for creative expression.

D. Research Population and Recruitment Methods I expect to interview two to three expert facilitators of digital storytelling workshops at the

Center for Digital Storytelling in Berkeley, CA. Interviewees will be purposively selected based

on their leadership positions within the flagship organization. Only facilitators with 5 or more

years’ of experience in the field will be chosen to participate in this research study.

Interviews with experienced participants of digital storytelling workshops will be identified

through the expert facilitators at the Center for Digital Storytelling. Requirements of selection

will include the following criteria: participant is an adult, have taken multiple workshops and not

a professional in the arts field. Two to three interviews will be conducted with these participants.

Once potential interviews have been identified, target research participants will receive a copy

the recruitment letter (Appendix C). Contacts will be made initially through emailing recruitment

letters, and followed up by phone calls if necessary. Permission to conduct research at the site is

also included in this application.

E. Informed Consent Procedures

I will perform the informed consent procedure, in compliance with training I have received

through research methods coursework, CITI training, and my faculty research adviser.

All participants will be recruited in compliance with Human Subjects guidelines. A signed

consent form will be obtained at the beginning of in-person interviews (Appendix D) and consent

will also be recorded at the beginning of the audiotaped interview. If interviews need to be

conducted over Skype, consent form will be emailed ahead of time and explained at the

beginning the interview. Expert facilitators will be asked to sign a consent form that gives

express agreement to the researcher to identify the participant by name in any written documents

resulting from this study (Appendix D1). Experienced participants will be asked to sign a

consent form that gives the researcher the right to use pseudonyms in place of identification in

any written documents resulting from the study (Appendix D2). All interviewees will be asked to

consent to participate in a one-hour, audiotaped interview, and be available for follow-up

questioning via phone or email.

Participants will be encouraged to ask questions about the study. As stated in the consent form,

interviewees may discontinue their involvement in the research at any time; they are also offered

the opportunity to review their comments prior to publication of research findings.

F. Provisions for Participant and Data Confidentiality

To safeguard the confidentiality of research participants, research notes and research documents

will be securely maintained by the principal investigator in a password-protected computer and

locked home office file. Only the PI and faculty research adviser will have access to these data.

Data collection sheets and audiotape recordings will be destroyed five years after the conclusion

of the research project in case of future conferences or academic presentations. Reflexive notes

will be kept and stored in a safe place in the PI’s office. Identifiable information will not be used

in the reflexive journal, so keeping it beyond the duration of this research project will not put the

confidentiality of research participants in jeopardy.

G. Potential research risks or discomforts to participants

Given the benign nature of the study, very minimal risks may exist in the category of

social/economic/psychological risks due to loss of confidentiality for expert facilitators.

However, there is some risk that participant’s comments, as a representative of his or her

institution, could displease that individual’s colleagues and supervisor(s). That said, such a risk is

unlikely to occur and can be easily addressed through standard informed consent procedures as

outlined in this Research Plan. Risk to experienced participants is greater since digital

storytelling experiences are usually quite intensive and affecting. This is why participants who

have experienced multiple workshops will be chosen as to lessen the possibility that negative

psychological or emotional risks will be a factor.

There is also risk that these personal stories of participants could be discussed in the interviews.

However, the research questions are designed to interview participants and facilitators on the

process, not the product, thus details of personal stories should be avoided. Though, if

information regarding someone’s personal story is revealed, these quotes will either not be used

in the research paper or will be edited as to hide identifiable information.

H. Potential research benefits to participants

Research participants may not benefit directly from this study. However, many of the issues

addressed in this study may bring up ideas and/or concerns that may help participants in their

jobs or creative experiences. Since the goal of this research is to study an overlooked benefit of

digital storytelling on creativity, it could provide another legitimizing factor for digital

storytelling organizations. Participants in workshops will also benefit from the research by

clarifying what methods are best for building safe space for creative expression. Practitioners in

arts administration could also benefit research into methods for participatory arts engagement.

I. Investigator Experience

Evelyn Thorne has extensive experience in the field of digital storytelling. She interned for the

Center for Digital Storytelling during the summer of 2013, where she went through their

facilitator training, helped facilitate multiple workshops and designed educational materials. She

is also a lead facilitator for the Trauma Healing Project’s digital storytelling series, where she

continues to develop her skills at summer camps for youth and three-day workshops for trauma

survivors. As an Arts & Administration Master’s Candidate with a focus on community arts

management, she’s interested in how storytelling can be used in cultural programming for

creative engagement and civic dialogue.

Updated 5/18/07

1

Research Compliance Services

Committee for the Protection of Human Subjects

Attachment D—Use of Audio/Video Recording or Photography in Research

Complete only if your research activities will include the use of audio/video recording or photography.

1. Describe which research activities will be recorded and/or photographed.

1 hour individual interviews will be audio recorded at the consent of the participant.

2. Indicate the purpose of recording and/or photographing activities. (Check all that apply.)

[ ] Archive

[ ] Documentary

[× ] Transcription and analysis

[ ] Use in presentation

[ ] Other – Describe:

3. Describe how any recordings, transcriptions and/or photographs will be labeled and stored for confidentiality

purposes.

Recordings will be labeled by date of interview and data ID number. They will be stored in a password protected

electronic folder on researcher’s personal computer.

4. Who will have access to the recordings, transcriptions and/or photographs?

The principal investigator and research advisor will be the only ones to have access to the recordings and transcripts.

5. Will any of the following be destroyed?

Recordings Yes [× ] No [ ] N/A [ ]

Transcriptions Yes [× ] No [ ] N/A [ ]

Photographs Yes [ ] No [ ] N/A [× ]

a. If yes, indicate when each will be destroyed.

Recordings and transcripts will be destroyed 5 years after interview date.

b. If no, provide a rationale for maintaining each indefinitely (e.g., presentation, further data analysis, etc.)

6. Are participants given the option of being recorded/photographs or not? Yes [× ] No [ ]

a. If yes, the consent form must provide this option and document participants’ choice (e.g., a separate signature

line, initial space or checkbox to indicate willingness to be recorded/photographed).

b. If recording or photographing is required of participants, the recruitment and consent materials must indicate this.

Evelyn Thorne Creative Leader ∙ Community Organizer ∙ Conscientious Storyteller

http://pages.uoregon.edu/ethorne Cell: (707) 980-0007 ∙ Email: [email protected]

The earth without art is just ‘eh’

Mission

I wish to provide a voice to others by facilitating opportunities for creative engagement.

Education

Masters Candidate, Arts Administration, Community Arts Concentration – University of Oregon, Current -2014

Bachelors of Art, Creative Arts, Art History Minor – San Jose State University, 2007-2011

Digital Storytelling Facilitator & Coordinator

Extensively studied and researched digital storytelling process, facilitation and ethics.

Trained by the Center for Digital Storytelling in facilitating workshops; Helped facilitate multiple workshops at the

Center for Digital Storytelling.

Co-facilitate ongoing digital storytelling workshop series with trauma survivors and youth.

Designed and developed case study material on impact of digital storytelling on HIV & AIDS in South Africa.

Edited and formatted curriculum for examining women’s right through digital stories.

Knowledgeable in editing video content and using film editing software.

Researcher & Writer

Completed research curriculum including research methods, research reading and research proposal design.

Recognized for critical writing skills through Outstanding Language Arts Achievement award.

Promoted awareness of rural Oregon artists on interactive online map through research and presentation.

Used skills in summarization and editing to write study guides for online university classes.

Wrote strategic marketing and project plan for expansion of annual professional development fundraiser.

Promoted public art collection by writing and publishing over 150 articles on art projects to government website.

Arts Administrator & Community Arts Organizer

Educated in arts administration, community arts and community cultural development practices.

Acted as leader of nationally recognized student professional development organization in the arts.

Initiated community-student partnerships by organizing events for networking and discussion.

Managed a youth outreach and cross-promotional campaign for large arts biennial festival.

Planned and advertised record breaking fundraisers for social justice and community arts initiatives.

Educated and organized more than 300 students and faculty to advocate for funding of higher education.

Successfully put together a pilot lecture series on environmental issues nominated for education program award.

Work Experience PODS: Professional Outreach & Development for Students, Current Arts & Business Alliance of Eugene, 2013 Center for Digital Storytelling, 2013 Arts Administration Department, 2013 Oregon Bach Festival, 2012 Antone Consulting & Training, 2012 San Jose Public Art, 2009-2012 ZERO1: The Art & Technology Network, 2010 San Jose Museum of Art, 2008-2009 Benicia Historical Museum, 2007

Volunteer Experience Trauma Healing Project, Current Fred Crafts’ Radio Redux, Current Story Catchers of Eugene, Current Emerging Leaders in the Arts Network, Current Alliance of Graduate Students for Diversity, 2013 Oregon Folklife Network, 2013 Portlandia of the Free, 2012 San Jose State University Environmental Club, 2007-2011 Students for Quality Education, 2008-2011 Queers Thoughtfully Interrupting Prejudice, 2007-2011 Generation Engage, 2008

http://pages.uoregon.edu/ethorne

Appendix B1: Data Collection Tool: Interview of Digital Storytelling Facilitator

Case Study: Center for Digital Storytelling – Expert Facilitator Data ID:

Key Descriptor: The purpose of this interview is to garner the perspective from an expert facilitator in the field of digital storytelling on their experience of how digital storytelling can cultivate safe space for creative expression.

Date: February or March 2014 Interview Location: Center for Digital Storytelling, Berkeley, CA

Interviewee Details: Interviewee has 5 or more years’ experience facilitating digital storytelling workshops with the Center for Digital Storytelling.

Consent: __ Oral __ Written (form) __ Audio Recording __ OK to Quote __

CODING INFORMATION NOTES

Safe Space Data regarding overall theory for creative expression

Facilitation Data regarding how facilitation affects theory

Process Data regarding how process affects theory

Ethics Data regarding how ethics affect theory

Emergent Positive data outside three areas of influence

Divergent Negative data

Semi-Structured Interview Questions:

1. Can you describe your background in facilitating digital storytelling workshops with the Center for Digital Storytelling? And your particular area of focus within the organization? 2. From your experience as a facilitator, what is the relation between safe space and creative expression? Please explain. 3. In your opinion, do you think digital storytelling builds safe space for creative expression? Why? 4. How do you think the digital storytelling process affects safe space for creative expression? What specific aspects of the process? 5. What facilitation practices do you think have a positive effect on safe space for creative expression? How so? 6. What facilitation practices do you think have a negative effect on safe space for creative expression? How so? 7. What role do you think CDS’s ethical guidelines play in establishing safe space for creative expression? Are there specific ethical guidelines that have an effect? 8. Can you provide examples of experiences in the field as a facilitator that negatively affected safe space for creative expression? Please describe them. 9. Can you provide examples of experiences in the field as a facilitator that positively affected safe space for creative expression? Please describe them. 10. Are there other factors outside of process, facilitation or ethics that you think affects safe space for creative expression? Please describe them.

Appendix B2—Data Collection Tool: Interview of Participant in Digital Storytelling Workshops

Case Study: Center for Digital Storytelling – Experienced Participant Data ID:

Key Descriptor: The purpose of this interview is to garner the perspective from a participant of digital storytelling workshops to see if and how they experienced a feeling safe space for creative expression.

Date: March 3rd, 2014 Interview Location: Center for Digital Storytelling, Berkeley, CA

Interviewee Details:

Interviewee is an adult who have taken multiple workshops and is not a professional in the arts field.

Consent: __ Oral __ Written (form) __ Audio Recording __ OK to Quote __

CODING INFORMATION NOTES

Safe Space Data regarding overall theory for creative expression

Facilitation Data regarding how facilitation affects theory

Process Data regarding how process affects theory

Ethics Data regarding how ethics affect theory

Emergent Positive data outside three areas of influence

Divergent Negative data

Semi-Structured Interview Questions:

1. How would you describe your artistic background? Do you have any training in the arts or formal education? Do you have an arts related hobby? How often do you attend arts events? 2. What led you to take workshops with the Center for Digital Storytelling? 3. How would you describe your experience of creating digital stories? Why do feel that way? 4. In the digital storytelling workshops, did you feel safe to express yourself creatively? Why did you feel that way? 5. How confident did you feel in creating your digital stories? Why did you feel that way? 6. Did a feeling of safe space affect how confident you felt in expressing yourself creatively? How so? 7. Based on your experience as a participant in the digital storytelling workshops, do feel the process allowed you to express yourself creatively? What aspects of the process? 8. Would you change any aspects of the digital storytelling process to allow you to feel more comfortable expressing yourself creatively? Why? 9. Did the facilitators help you feel safe to express yourself creatively? How so? 10. Did any of the facilitators hurt your feeling of safe space? How so? Can you provide an example(s)? 11. As you know, the story circle starts with a discussion of group agreements such as confidentiality and consent. Do you feel that these kinds of ethical guidelines affected your feeling of safe space? How so? 12. Are there any missing ethical guidelines that would help you feel more comfortable expressing yourself creatively? How so? 13. Can you provide examples of a workshop experiences that positively or negatively affected your feeling of safe space in regards to creative expression?

Appendix C1

Recruitment Letter for Expert Facilitator Date

Name

Address

City/State/Zip

Dear <POTENTIAL INTERVIEWEE>:

You are invited to participate in a research project titled Digital Storytelling: A Safe Space for Creative Expression,

conducted by Evelyn Thorne from the University of Oregon’s Arts and Administration Program. The purpose of this

study is to examine how digital storytelling can provide safe space for creative expression.

While there is existing research on digital storytelling’s effect on topics such as media literacy, self-efficacy or

trauma healing, there is a significant gap on analyzing how digital storytelling affects creativity. This research

project will address this gap by examining how digital storytelling can cultivate safe space for creative expression.

Furthermore, there is an increased interest in participatory design and media within the arts administration field, but

few methods for engaging adults with a wide range of creative agencies. Thus, the goal of this project is to evince

how digital storytelling can be effective in helping adults express themselves creatively. The first phase of the study

(January 2014-March 2014) involves a literature review on the aspects of digital storytelling that affect safe space

for creative expression, which will be followed by interviews (February 2014-March 2014) of expert facilitators and

experienced participants of digital storytelling workshops. Data from these interviews will be compared with the

literature review to form a conceptual framework that explains how digital storytelling can build safe space for

creative expression.

You were selected to participate in this study because of your extensive experience facilitating digital storytelling

workshops with the Center for Digital Storytelling. If you decide to take part in this research project, you will be

asked to provide relevant organizational materials and participate in an in-person interview, lasting approximately

one hour, during February or March 2014. If you wish, interview questions will be provided beforehand for your

consideration. Interviews will take place at the Center for Digital Storytelling, or at a more conveniently located

site. Interviews will be scheduled at your convenience. In addition to taking handwritten notes, with your

permission, I will use an audio tape recorder for transcription and validation purposes. You may also be asked to

provide follow-up information through phone calls or email.

If you have any questions, please feel free to contact me at (707) 980-0007 or [email protected], or Dr. Lori

Hager at 541-346-2469. Any questions regarding your rights as a research participant should be directed to the

Office for the Protection of Human Subjects, University of Oregon, Eugene, OR 97403, (541) 346-2510.

Thank you in advance for your interest and consideration. I will contact you shortly to speak about your potential

involvement in this study.

Sincerely,

Evelyn Thorne

1635 Ferry St. #2 Eugene, OR 97401

Appendix C2

Recruitment Letter for Experienced Participant Date

Name

Address

City/State/Zip

Dear <POTENTIAL INTERVIEWEE>:















You were selected to participate in this study because you have experienced multiple digital storytelling workshops

at the Center for Digital Storytelling. If you decide to take part in this research project, you will be asked to

participate in an in-person interview, lasting approximately one hour, during February or March 2014. If you wish,

interview questions will be provided beforehand for your consideration. Interviews will take place at a location of

your convenience or over Skype if necessary. Interviews will be scheduled at your convenience. In addition to

taking handwritten notes, with your permission, I will use an audio tape recorder for transcription and validation

purposes. You may also be asked to provide follow-up information through phone calls or email.




Thank you in advance for your interest and consideration. I will contact you shortly to speak about your potential

involvement in this study.

Sincerely,

Evelyn Thorne


Appendix D1

Consent Form for Expert Facilitator

Research Protocol Number: ___________

Digital Storytelling: A Safe Space for Creative Expression Evelyn Thorne, Principal Investigator

University of Oregon Arts and Administration Program















You were selected to participate in this study because of your extensive experience facilitating digital storytelling

workshops with the Center for Digital Storytelling. If you decide to take part in this research project, you will be

asked to provide relevant organizational materials and participate in an in-person interview, lasting approximately

one hour, during February or March 2014. If you wish, interview questions will be provided beforehand for your

consideration. Interviews will take place at the Center for Digital Storytelling, or at a more conveniently located

site. Interviews will be scheduled at your convenience. In addition to taking handwritten notes, with your

permission, I will use an audio tape recorder for transcription and validation purposes. You may also be asked to

provide follow-up information through phone calls or email. There are minimal risks associated with participating in

this study, particularly since this phase of research is exploratory in nature.

Any information that is obtained in connection with this study will be carefully and securely maintained. Your

consent to participate in this interview, as indicated below, demonstrates your willingness to have your name used in

any resulting documents and publications and to relinquish confidentiality. It may be advisable to obtain permission

to participate in this interview to avoid potential social or economic risks related to speaking as a representative of

your institution. Your participation is voluntary. If you decide to participate, you are free to withdraw your consent

and discontinue participation at any time without penalty. Any information that is obtained in connection with this

study and that can be identified with you will remain confidential and will be disclosed only with your permission.

I anticipate that the results of this research project will be of value to the digital storytelling field, especially the

Center for Digital Storytelling. This research can also be of value to arts practitioners interested in facilitation

participatory media and creative engagement. However, I cannot guarantee that you personally will receive any

benefits from this research.




Please read and initial each of the following statements to indicate your consent:

_____ I consent to the use of audiotapes and note taking during my interview.

_____ I consent to my identification as a participant in this study.

_____ I consent to the potential use of quotations from the interview.

_____ I consent to the use of information I provide regarding the organization with which I am associated.

_____ I wish to have the opportunity to review and possibly revise my comments and the information that

I provide prior to these data appearing in the final version of any publications that may result from this

study.

Your signature indicates that you have read and understand the information provided above, that you willingly agree

to participate, that you may withdraw your consent at any time and discontinue participation without penalty, that

you have received a copy of this form, and that you are not waiving any legal claims, rights or remedies. You have

been given a copy of this letter to keep.

Print Name: __________________________________________________________

Signature: _______________________________________________________ Date: ________________

Thank you for your interest and participation in this study.

Sincerely,

Evelyn Thorne


(707) 980-0007

[email protected]

Appendix D2

Consent Form for Experienced Participant

Research Protocol Number: ___________

Digital Storytelling: A Safe Space for Creative Expression Evelyn Thorne, Principal Investigator

University of Oregon Arts and Administration Program















You were selected to participate in this study because you have experienced multiple digital storytelling workshops

at the Center for Digital Storytelling. If you decide to take part in this research project, you will be asked to

participate in an in-person interview, lasting approximately one hour, during February or March 2014. If you wish,

interview questions will be provided beforehand for your consideration. Interviews will take place at a location of

your convenience or over Skype if necessary. Interviews will be scheduled at your convenience. In addition to

taking handwritten notes, with your permission, I will use an audio tape recorder for transcription and validation

purposes. You may also be asked to provide follow-up information through phone calls or email. There are minimal

risks associated with participating in this study, particularly since this phase of research is exploratory in nature.

Any information that is obtained in connection with this study will be carefully and securely maintained. Your

consent to participate in this interview, as indicated below, demonstrates your willingness to allow a pseudonym to

be used with all identifiable data that you provide. It may be advisable to obtain permission to participate in this

interview to avoid potential social or psychological risk of discussing your digital storytelling experience. Your

participation is voluntary. If you decide to participate, you are free to withdraw your consent and discontinue

participation at any time without penalty. Any information that is obtained in connection with this study and that

can be identified with you will remain confidential and will be disclosed only with your permission.

I anticipate that the results of this research project will be of value to the digital storytelling field, especially the

Center for Digital Storytelling. This research will also benefit participants of digital storytelling workshops by

clarifying practices that cultivate safe space for creative expression. However, I cannot guarantee that you personally

will receive any benefits from this research.




Please read and initial each of the following statements to indicate your consent:

_____ I consent to the use of audiotapes and note taking during my interview.

_____ I wish to maintain my confidentiality in this study through the use of a pseudonym.

_____ I consent to the potential use of quotations from the interview.

_____ I consent to the use of information I provide regarding the organization with which I am associated.

_____ I wish to have the opportunity to review and possibly revise my comments and the information that

I provide prior to these data appearing in the final version of any publications that may result from this

study.

Your signature indicates that you have read and understand the information provided above, that you willingly agree

to participate, that you may withdraw your consent at any time and discontinue participation without penalty, that

you have received a copy of this form, and that you are not waiving any legal claims, rights or remedies. You have

been given a copy of this letter to keep.

Print Name: __________________________________________________________

Signature: _______________________________________________________ Date: ________________

Thank you for your interest and participation in this study.

Sincerely,

Evelyn Thorne


(707) 980-0007

[email protected]

Appendix E

Appendix F

re: initial irb application€¦ · diminished capacity for consent other: 6. research risk...

Documents