rareconnect.org webinar how to use twitter to build your online rare disease presence
TRANSCRIPT
How to start a Twitter account for your #RareDisease
| 29th June | Barcelona
www.rareconnect.org
RareConnect Homepage
Questions
Agenda for TodayI. Why start Twitter?II. How to use it?III. Getting startedIV. Choosing a hashtagV. Best practicesVI. Twitter chatVII. Sustaining the momentumVIII. Questions
“In creating the #MPNSM community, it's allowed me and my cofounders to reach out to others and they've been able to reach out to us.”
-Naveen Pemmaraju, one of the cofounders of the #MPNSM Twitter communitySource
On Twitter, MPN Patients and Physicians Connect in Real Time
Why start a Twitter account?
Why start a Twitter account?
To make it useful have your own reason for getting started!
How can I use Twitter?
It’s not all a popularity contest
How can I use Twitter?
Start with listening
How can I use Twitter?
Connection | Voice | Promotion | Awareness | Education
Getting started on Twitter
I. Choose a username
II. Add a photo/logo
III. Fill out your profile
IV. Find friends and start following people
Choosing your @username
• A good username is the same, or similar to, your own name or organisation name
• Be memorable, be consistent with the rest of your brand
• Twitter limits your username to just 15 characters
Username/Handle
• Use a short Twitter username so people have more characters available in message when Tweeting to you
• Your Twitter URL is usually http://twitter.com/username
• Can be changed after you create it
• People interact with you in Tweets by using your username
What’s your username?
What’s your username?
Twitter image guide
Twitter Recommended Dimensions:
Minimum Dimensions:
Maximum Dimensions: Image Scale: Max File Size:
Image Format
s:
Profile Photo: 400x400 200x200px - 1:1 2MBJPG, GIF, PNG
Header Photo: 1500x500 - - 3:1 5MBJPG, GIF, PNG
In-Stream Photo: 506x253 440x220 1024x512 2:1
5MB for Photos, 3 MB
for Gifs
JPG, GIF, PNG
Fill out your profile
Find people to follow
• Following people is how you get to see what they share
• You will see their Tweets in your Timeline, but they won’t see yours unless they follow you back
• Start by importing your email contacts and follow those people that already know you first
Find people to follow
• Find your disease hashtag or hashtags and follow people that are using it
• Go to other accounts you trust like EURORDIS, RareConnect and see who they follow
• Follow back people who follow you and seem interesting
Twitter Lists
• When you start to follow many people, you can miss interesting Tweets
• A list is a curated group of Twitter accounts.
• You can create your own lists or subscribe to lists created by others.
• Viewing a list timeline will show you a stream of Tweets from only the accounts on that list.
Followerwonk.com
• Find your disease hashtag or hashtags and follow people that are using it
• 1
Choosing a disease hashtag #####
1. Check our list here:http://blog.rareconnect.org/social-media-case-studies/raredisease-list-of-hashtags/
2. Don’t re-invent the wheel, do some listening on Twitter, keep conversations together
3. Keep it short, memorable
Best practices
• It’s a platform for 2 way conversations, not a megaphone for only sharing links to your website
• Once you make a plan, use a team approach to be active
• Don’t auto link your Facebook page to your Twitter and only Tweet that way
• 3 times a day, use HootSuite to autoschedule
Best practices
Don’t link Facebook to Twitter
Good examples of Tweets
Good examples of Tweets
What’s a Twitter chat?
A live online discussion event where people communicate on a particular topic, using a chat specific hashtag
What’s a Twitter chat?
Use a free Twitter chat tool instead
Sustaining the momentum
Make a plan
Sustaining the momentum
HootSuite
• Social Media Management System or tool
• Monitor what people are saying about your disease and help you respond instantly
• You and your team login with your Twitter account
Hootsuite Dashboard
Listening to multiple hashtags
Summary
• Find your reason• Just start• Learn• Have fun & try new things• Keep going with a plan
Thank you
FIND US
www.rareconnect.org
facebook.com/RareConnect
twitter.com/Rareconnect
Instagram.com/RareConnect
Emma’s blog, My Normal
Get involved, write me an [email protected]