q1 2019 community meeting - carin alliance€¦ · q1 2019 community meeting march 13, 2019 ©2018...

Q1 2019 Community MeetingMARCH 13, 2019

©2018 LEAVITT PARTNERS 2

Agenda

AgendaWelcome, Anti-Trust Reminder, and New Members Admitted Ryan Howells, Leavitt PartnersDave Lee, Leavitt Partners

12:00pm – 12:05pm

Leadership PerspectivesAneesh Chopra, Care Journey

12:05pm – 12:10pm

Office of Civil Rights UpdateRoger Severino, Director

12:10pm – 12:30pm

CMS and ONC: Proposed RulesSteve Posnack (ONC proposed rule) and Beth Myers (CMS proposed rule)

12:30pm – 1:20pm

VA UpdateDrew Myklegard

1:20pm – 1:30pm

Break 1:30pm – 1:40pm

Patient and Caregiver PerspectivesKristina Sheridan

1:40pm—1:45pm

Market Innovation PresentationKhan Siddiqui, Higi

1:45pm – 1:50pm

Opportunities to Collaborate Facilitated by Ryan Howells

1:50pm – 2:55pm

Next Steps 2:55pm – 3:00pm

Adjourn 3:00pm

Leadership Perspectives

ANEESH CHOPRA, CARE JOURNEY

Updates from OCR

DIRECTOR ROGER SEVERINO

CMS and ONC NPRMs

STEVE POSNACK AND BETH MYERS

VA Update

DREW MYKLEGARD

Kristina Sheridan: Patient and Caregiver Experiences

© 2017 The MITRE Corporation. All rights reserved.For internal MITRE useFor internal MITRE use

Kristina Sheridan, eCaregiver

CARIN Alliance Quarterly Meeting

March 2019

Transforming Patient Voices into Hard Data: A Patient Story

© 2018 The MITRE Corporation. All rights reserved. Approved for public release. Distribution unlimited. Case number 18-3627

@K_Sheridan1 @MITREhealth

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© 2017 The MITRE Corporation. All rights reserved. For Internal MITRE Use.

Our Family

© 2017 Image Source: K. Sheridan

© 2017 The MITRE Corporation. All rights reserved. Approved for public release.

Distribution unlimited. Case number 17-3405


The Beginning




The Decline



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Overwhelmed to Empowered

© 2018 Images Source: Kristina Sheridan



Our Outcome

© 2017 The MITRE Corporation. All rights reserved. Approved for public

release. Distribution unlimited. Case number 17-3405© 2017 Image Source: K. Sheridan

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Experts

… in everyday living

with chronic disease


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From Rocket Science to Healthcare


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Self-management support

• Symptom management support

• Self-monitoring of symptoms

• Insight into health status

• Drug management support, including reminders

Communication with providers

• More in-depth patient-provider conversations

• Online communication with providers

• Improved follow-up/ coordination of care

eHealth Tech

• Tailored toward patients

• Easy to use technology

• Accessible at home

• Requires as few actions as possible

Huygens, M., Vermeulen, J., Swinkels, I., Friele, R., Van Schayck, O., P. de Witte, L., Expectations and needs of patients with a chronic disease towards self-

management and eHealth for self-management purposes. BMC Health Service Research. 2016; 1472-6963. DOI:

https://bmchealthservres.biomedcentral.com/articles/10.1186/s12913-016-1484-5

Jerant, A., Friederichs-Fitzwater, M., Moore, M. Patints’ perceived barriers to active self-management of chronic conditions. Patient Education and Counseling.

2005; V 57, Issue 3, Pages 300-2007. DOI: http://www.sciencedirect.com/science/article/pii/S0738399104002605

©2017 The MITRE Corporation. ALL RIGHTS RESERVED. Approved for Public Release; Distribution Unlimited. Case Number 17-4706

Patient Needs


https://bmchealthservres.biomedcentral.com/articles/10.1186/s12913-016-1484-5

http://www.sciencedirect.com/science/article/pii/S0738399104002605

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Workflow

… supporting patient and provider bi-directional communication

© 2019 Image Source: The MITRE Corporation

© 2018 The MITRE Corporation. All rights reserved. Approved for public release. Distribution unlimited. Case number 18-3627© 2019 The MITRE Corporation. All rights reserved. Approved for public release. Distribution unlimited. Case number 19-0499

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The Patient Toolkit

… transforming the

patient voice into

hard data



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Capturing the Patient Voice



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Sharing for Action



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Barriers to Adoption

[1,3]

[3]

[3]

[2]

[4]

[4]

[2,3]

© 2019 Image Source: Kristina Sheridan

[1] Moore, S.L. et al. A mobile health infrastructure to support underserved patients with chronic disease. Healthc (Amst). 2014 Mar;2(1):63-8. doi: 10.1016/j.hjdsi.2013.12.016. Epub

2014 Feb 5.

[2] Fischer SH, David D, Crotty BH, Dierks M, Safran C. Acceptance and Use of Health Information Technology By Community-Dwelling Elders. International journal of medical

informatics. 2014;83(9):624-635. doi:10.1016/j.ijmedinf.2014.06.005.

[3] Jorie M. Butler, Marjorie Carter, Candace Hayden, Bryan Gibson, Charlene Weir, Laverne Snow, Jose Morales, Anne Smith, Kim Bateman, Adi V. Gundlapalli, Matthew Samore.

Understanding Adoption of a Personal Health Record in Rural Health Care Clinics: Revealing Barriers and Facilitators of Adoption including Attributions about Potential Patient Portal

Users and Self-reported Characteristics of Early Adopting UsersAMIA Annu Symp Proc. 2013; 2013: 152–161. Published online 2013 November 16.

[4] U.S.D.H.H.S. Patient Provider Telehealth Network – Using Telehealth to Improve Chronic Disease Management. 2012 June.

https://www.healthit.gov/sites/default/files/pdf/RCCHCandPHS_CaseStudy.pdf


https://www.ncbi.nlm.nih.gov/pubmed/26250090

https://www.healthit.gov/sites/default/files/pdf/RCCHCandPHS_CaseStudy.pdf

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Policy Drivers

…expanding access to empower patients


MACRA …moving

patients and providers

towards a new paradigm

that rewards patient

engagement

HHS Proposes New Rules

to Improve the

Interoperability of

Electronic Health

Information

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Patient

GP

Caregiver

Psychiatrist

NP PT

One-Directional

Communication

Provider Patient

Current State


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Patient

GP

Caregiver

Psychiatrist

NP PT

Bi-Directional

Communication

Provider Patient

Future State


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Empowered

@MITREhealth

@K_Sheridan1

[email protected]


mailto:[email protected]

Khan Siddiqui: Market Innovations

Ryan Howells OPPORTUNITIES TO COLLABORATE

www.carinalliance.com | @carinalliance | ©2019 Leavitt Partners | 29

“The public sector is now ahead of the private sector. This is a moment for the healthcare industry to step up. We need to see this as a call to action.”

- Governor Mike Leavitt speaking at HIMSSFormer Health and Human Services Secretary


HOW

Implementation GuidesDa Vinci, Argonaut, CARIN, and others

WHAT

StandardsHL7 FHIR, SNOMED, LOINC, etc.

Fast Healthcare Interoperability Resources (FHIR)

WHO

ImplementersPayers, Plans, Apps, Pharmacies, etc.


2019 Focus Areas

Trust FrameworkFocus: Develop a trust framework with an enforceable code of conduct for third-party applications to follow that includes a set of self-attested questions for how data will be used by entities not covered by HIPAA.

Eliminating Policy and Business Barriers

Health PlanFocus: Develop a consumer payer data set (similar to Blue Button 2.0) and implementation guide for resources that payers can display via a FHIR API.

Consumer-facing real-time pharmacy benefit check (RTPBC)Focus: Develop a consumer-facing API version of real-time pharmacy benefit check to enable consumer access to drug formulary and benefit information, financial responsibility, therapeutic alternatives, and cash price in accordance with the “Patient Right to Know Drug Prices Act.”

Post-Acute Care Focus: Develop a consumer-facing API related to the post-acute care assessment information that is found in the CMS data element library.

Defining How to Share Data

https://del.cms.gov/DELWeb/pubHome


2019 Focus Areas

Consumer-facing app storeFocus: Develop a centralized non-platform and non-vendor specific location where payers, providers, consumers, and others can access consumer-facing applications to determine which applications are following the CARIN Code of Conduct and who is connected with which data holder.

API Centralized LibraryFocus: Develop a centralized, non-vendor, non-sector specific location where the API end points can be managed and posted in a machine-readable format for app developers

VA, Blue Button 2.0, and CDC

Consumer ID and AuthenticationFocus: Develop best practices and a framework for implementing the NIST Identity Assurance Level 2 (IAL2) and Authenticator Assurance Level 2 (AAL2) guidelines in health care .

Protecting Digital Identity

https://pages.nist.gov/800-63-3/


2019 CARIN Quarterly MeetingsMarch 13, May 9, Sept 12, and Dec 10

CARIN in the Community

• March 6: Vizient Medical Leadership Series Webcast

• March 18 – 20: 2019 State Healthcare IT Connect Summit in Baltimore, MD

• March 27 – 28: 2019 Health Datapalooza in Washington, D.C.

• April 8: SKYGEN USA 2019 Summit in Scottsdale, AZ

• April 14 – 16: American Telemedicine Association Conference in New Orleans, LA

• April 30: BCBS 2019 National Summit in Grapevine, Texas

• May 2 – 3: Global Privacy Summit in Washington, D.C.

• May 16 – 17: Association for the Utah Community Health Centers Conference in Utah

q1 2019 community meeting - carin alliance€¦ · q1 2019 community meeting march 13, 2019 ©2018...

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