putting it together putting it together adventures in autism systems change nancy cronin, ma maine...
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Putting It TogetherAdventures in Autism Systems Change
Nancy Cronin, MA
Maine Developmental Disabilities Council
Funded by Maine Children Special Health Needs
Ready?Get Set…
Go!
Types of DataProgrammatic Process Reports
• How many steps?• How many plans?• How long did it take?
Demographic• How many? Where do they live?• Gender?• What co-morbid disabilities?• How do we compare to national?
Service Reports• What services are being provided?• How much does it cost?• What does the national data say is evidence based?
Levels of Data UsageLegislature
• Motivation
Stakeholders – Buy In• Programmatic Process
Lead Policy Makers• Cost Analysis• Programmatic Process• National Data• Co-Morbid Data
Legislature• Demographic• National Data• Co-Morbid Data• More Motivation
Using Programmatic
Processto Step Up
Legislature – Motivation(Ready?)
3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 200
50
100
150
200
250
Growth in # of Students Servied By Maine Public Schools in Autism Category
20072011
(A Large Percentage But Not All Students with PDDs Are In-cluded)
Source: Maine DOE ChildCount Prepared by: Maine Developmental Disabilities Council
• Baseline Planning
• Multi-Level Stakeholders Designed
• Builds buy in from ground up
• Informs what real change would look like
• Eliminates political barriers by setting the stage for inclusion
Programmatic Data(Get Set…)
DRILL DOWNEarly Identification Value Stream Mapping
PDD/Autism Current Experience of the Process
CD
SD
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nost
icia
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hera
pie
sM
edi
cal I
ssue
sP
are
nt
Birth
Slow Weight Gain
Food Issues
GI Problems
Seizures
Medications
GI Problems
Slow Weight Gain
Seizures
Food Issues
Medications
Physical Therapy
Developmental / Behavioral Concerns
Doctor
We WorryWait and See
Speech Therapy
Referral to CDSSome Developmental Delay
Referral to Diagnostician
Doctor
Speech Therapy
Medical Specialist
Audiologist
Tubes
Medications
Seizures
Food Issues
GI Problems
We BegOccupational
Therapist Report
Meetings
Speech Therapist
Report Meetings
Diagnostician Report
Meetings
Developmental
Therapy Report Meeting
s
Developmental Domain Report
– Eligibility Meetings
Eligibility Assessment
Observation
Multi-Disciplinary Evaluation
IFSP/IEP
Speech Therapy
Occupational Therapy
Developmental Therapy
MULTIPLE SPECIALIST
VISITS
MULTIPLE SPECIALIST
VISITS
BirthDiagnosis/Rule
Out= Wait Time= Wait Time = Decision Point= Decision Point
1m
3w 3w
1 Year 1 Year
1m
3w
3w
3w
1 Year
3 Months
3 Months
1 Month1 Month 1 Month 3 Months
3w
3w
3w
Maine Developmental Disabilities Council
Policy Makers (GO!)
Field Test of the Screening Tools (in 7 medical practices – over 3,500 children screened)
Creation, by Developmental Pediatricians, Parents and Advocates, of a DVD and supporting train-the-trainer curriculum (Over 500 distributed)
Over 150 Medical Professionals attend early screening presentations
Medical Home Care Coordination Pilot
Early Childhood/Physician Pilot
PCP Results Pre QI CDS Post QI CDS Results -
20
40
60
80
100
120
107 102
65
Programmatic Measurement (G0)
QI activities reduced process by over one month
Southern Maine
Legislature – Motivation(Ready?)
Thank You
If either of us can ever be of assistance, please do not hesitate to contact us.
Nancy Cronin, MA
Executive Director
Maine Developmental Disabilities Council
207-287-4214
Alan Kurtz, PhD Candidate
Coordinator of Education and Autism & LEND Faculty
Center for Community Inclusion and Disabilities Studies, University of Maine
207-581-1262