We Empower uS bH – Better career opportunities for people with

Spina bifida and Hydrocephalus in Europe“

Workshop

European Parliament

Strasbourg

23.10.2012

Andrea Nobs, Technische Universität Dortmund, Germany

Lena Rudolph, ASBH, Germany

Marcel Hoiting, Pluryn Rea College, The Netherlands

Martin Künemund, Josefsheim Bigge, Germany

Contents

1. Basic conditions 1.1 Sociopolitical conditions 1.2 Occupational situation of the client

2. Structure of the project 2.1 Objectives 2.2 Approach

3. Cooperation 3.1 Project partners 3.2 Support conception

4. Statements from „Experts on own affairs“

2 23rd October 2012 Workshop – European Parliament , Strasbourg

Andrea Nobs, Lena Rudolph, Marcel Hoiting, Martin Künemund

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1.Basic conditions

1.1 Sociopolitical conditions

• Charter of Fundamental Rights of the European Union

• International Classification of Functioning, Disability

and Health ICF (WHO 2001)

• UN – Convention on the Rights of Persons with

Disabilities

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1. Basic conditions

1.2 Occupational situation of the client

• Lack of self-determination in the field of occupation

• Affected individuals are often allocated to the same

occupational activities, such as office work

• No individual occupational profiling

• Repetitive preparation for further rehabilitation

systems (e.g. special schools tend to recommend

internships in sheltered workshops)

• Affected individuals often suffer from occupational

dissatisfaction

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Starting point

See Nobs/Schieferecke 2010

2. Structure of the project

2.1 Objectives

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Main objectives of the project

Creation of a professional support conception

European-wide networking and exchange of experiences in

the field of vocational and educational training (VET)

Enabling of individuals to become active and to act on their

own responsibility (as defined by empowerment-concept)

Participation and respect for the capability instead of calling

on presumed experts (affected individuals should be

regarded as experts on their own affairs)

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2. Structure of the project

2.1 Approach

Literaturanalyse

Literaturanalyse

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Literature analysis

Future workshop

Questioning of affected individuals

Questioning of professionals

3. Cooperation

3.1 Project partners

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Pluryn

Rea College

Netherlands

The Cedar

Foundation

Ireland ARSBH

Romania

Josefsheim

Bigge

Germany TU

Dortmund

Germany

SRH BBW

Neckargmünd

Germany SBH

Switzerland

ASBH

Dortmund

Germany

3. Cooperation

3.1 Support conception (Methodical tool box)

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Instrument 1: Guidelines for action and practical help in training and vocation

Instrument 2: Empowerment and self-management of young people with Spina bifida and Hydrocephalus

Instrument 3: Information for professionals in the field of vocational guidance, job placement and monitoring of youths with Spina bifida and Hydrocephalus

Instrument 4: Information, tips and hints for employers

Instrument 5: Vocational biographies

Instrument 6: Promoting activities with the help of friends, colleagues and the social network

Instrument 7: Peer support training

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Instrument 1: Guidelines for action and practical help in training and vocation

Target group: Teachers and trainers

Format: Seminar for professionals; a rubric on the project website

Objectives: - To support teachers and trainers in their development of professional capacity and the broadening of respective approaches

- To support and assist pupils individually when they prepare for their career orientation process

Contents: - The principles of self-determination and self-responsibility, (examples) resource orientation and supportive care

- Training of the guidelines

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Instrument 2: Empowerment and self-management

Module 1: Keeping a job

Target group: Young people with Spina bifida and Hydrocephalus

Format: - Manual - Training course - Rubric on the project website

Objectives: - To face challenges in the (first) job

Contents: - To discover what problems there are (examples) - Be able to talk about it and come up with solutions - Communication training as main condition for solving work problems

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Instrument 2: Empowerment and self-management

Module 4: Self-management training

Target group: Young people with Spina bifida and Hydrocephalus

Format: Training course; a rubric on the project website

Objectives: - To encourage self-management and solving one‘s own problems

Contents: - Tips for efficient learning (examples) - Help against lack of concentration - Self-confident behavior - Dealing with stress - Time management - Highlighting personal hygiene

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Instrument 3: Information for professionals in the field of vocational

guidance, job placement and monitoring of youths with

Spina bifida and Hydrocephalus

Target groups: Rehabilitation consultants, employment consultants, integration managers, job coaches

Format: Seminar for professionals

Objectives: - To open minds - To improve the vocational training and employment situation - To individually consult people with SBH - To attempt to respect and realize students‘ career aspirations

Contents: - Basic information about the disabilities - Sensitizing of Empowerment - Analysis of educational and vocational biographies

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Instrument 4: Information, advice and tips for employers

Target group: Employers, staff members

Format: Information events; a rubric on the project website; individual meetings

Objectives: - Disability awareness - Improvement of the chances of integration on the labour market

Contents: - General information on the disabilities (examples) - Disability awareness training - Reasons to employ someone with SBH - Benefits to employers - Factors to consider

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Instrument 7: Peer Support Training

Target group: People with SBH

Format: - Training course - Individual meetings

Objectives: - Help to help oneself - Exchange of experiences

Contents: Module: The competence of peer support - Deeper understanding of one‘s own disability - Recognize the role of peer support - Recongnize the boundaries of confidentiality - Application of various methods of support - Information on social services and referral to other specialized centres - Dealing with difficulties and problems that arise from peer support

Lena Rudolph , Germany,

member of ASBH board and project team

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“The exchange on a

European level is for me

particularly exciting and

inspiring“.

Marcel Hoiting, The Netherlands

involved in the project as an „expert on own affairs“

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„The project encouraged me

to go my own way

independently

and to stand up for others“.

www.we-empower-us.eu

Thank you

for your attention