progress report 05 - national multiple sclerosis...

2005Progress Report

MS attacks.

Fear and unpredictability changelives forever.

As we continue to search for a cure,there’s hope.

For 59 years the National MS Societyhas been here to help people livewith multiple sclerosis today and

without MS tomorrow.

People depend on us.

This is why we depend on you.

A Message from the Chair & Chapter President

Dear Friends, 2005 was an amazing year for the Southern CaliforniaChapter of the National Multiple Sclerosis Society. OurGolden Circle, Dinner of Champions, MS Walk, foundation,and planned giving efforts resulted in enough income to fundmore research than ever before and to make a large dent onour 2.5 million dollar commitment to Promise 2010. We also spent more on programsand services - over $3 million - than ever before. Late in the year we received theexciting news that four teams of the world's best neuro researchers were launchingour neuro repair initiative. If successful this can actually restore function and repairdamage done by MS! We hope, we hope and we hope…We also received a wonderful $1 million grant from the Flora Thornton Foundation latein fiscal year 2005. This enables us to open Eric Small Centers for Optimal Living atUSC, Rancho Los Amigos, and Casa Colina, in addition to our flagship operation, theMarilyn Hilton MS Achievement Center at UCLA, which continues to prosper. And wecontinue to offer literally hundreds of courses, programs, workshops and classes eachmonth - in person, by phone or online - in our large, eight county territory.

Yes, eight large California counties. Though this Progress Report reflects fiscal year2005 (October 2004 - September 2005), we’d be remiss not to include here the biggestchange of all: late in December 2005 our Board and the Board of the Channel IslandsChapter each voted unanimously to join forces. We're off and running, trying hard tobring our "best of the best" Cavallo Award- winning programs and services toVentura, Santa Barbara and San Luis Obispo counties. We know the ChannelIslands Chapter had a strong 31-year history of service. We want to do much more.We are optimistic for the future and we salute the Channel Islands trustee team:Larry Winter, Donna Dawson, Bob Frazee, Kim Phillips, Larry McEwen, KathyLukes R.N., and Dr. David Brandes, who have made our merger such a pleasure and,at least so far, a great success.Thank you to them; to our friends at UCLA, USC and Rancho Los Amigos: Dr. JohnMazziotta, Dr. Florence Clark, Dr. Barbara Giesser, Dr. Julia La Plount, Dr. HelenaChui, Dr. Jim Gordon; to benefactors Steve Hilton and Flora Thornton; to our wonderfulprofessional and support staff; and to all of our oustanding trustees and special friendsfor all you did to make 2005 an outstanding year in the fight against MS. We will end the devastating effects of multiple sclerosis!Sincerely,

Dave Perren Leon LeBuffe, PhDChairman of the Board, 2004 President

Contents PageChapter Programs 3Financial Information 6Research 6Special Events 7Foundation Support 17The Golden Circle 19About MS 21

Southern California ChapterPrograms and Services

The programs and services delivered by the SouthernCalifornia Chapter are unsurpassed when it comes toaddressing the wide range of challenges faced bypeople living with multiple sclerosis. For the secondtime in three years, the Chapter earned the nationaldistinction of excellence - the 2005 Cavallo Award - recognizing outstanding work inservicing the diverse needs of the MS community throughout Los Angeles, Kern, Inyo,San Bernardino and Riverside counties.

From the point of diagnosis and throughout life with the disease, the National MSSociety, Southern California Chapter has offered over 10,000 people with MS andtheir families the power of knowledge, support for health & wellness, and tools forindependence in living well with this disease.

Power of KnowledgeOur goal is to arm people living with MS with the latest information to help themsuccessfully manage the disease and lead a fulfilling life. Toward that end, we heldapproximately 75 educational events this year in communities throughout the five-county area covering topics such as symptom management, communications, researchupdates and more. Over 4,500 people sought out the most current and accurateinformation and links to community resources from the information specialists at ourtoll-free MS Resource Center.

Through continuing professional education programs the Chapter strives to educateand partner with wellness and healthcare professionals to enhance the access andquality of care available to people with MS. In addition, we partner with 11 leadingMS Care Centers throughout Los Angeles and San Bernardino County to providespecialized and comprehensive treatment and disease management for SouthernCalifornians.

Support for Health & WellnessThe Chapter recognizes that a diagnosis of MS shouldnever prevent someone from living well and enjoyingevery opportunity to embrace all that life has to offer.In addition to offering the ongoing 80 adaptive exerciseclasses and wellness workshops, this year talented anddedicated volunteers and staff developed and presentednew, innovative programs that support physical,emotional and spiritual well-being.

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Laugh Out Loud: Our new therapeutic laughter workshops, have peoplelaughing, giggling, chuckling and even cackling. These workshops, patterned afterthe Laughter Club movement, help people with MS, their families, children,caregivers and healthcare providers explore the benefits of therapeutic humor inmanaging the challenges of daily life with MS.

Faith, Spirituality and Chronic Illness and Exploring Your Spiritual Self:These two new programs provided participants the opportunity to explore howspiritual practices can provide a greater level of self-awareness and play a role inmanaging and coping with MS.

CogniFit - Keeping the Mind Moving represents the important concept thatexercising the mind on a regular basis is important to maintaining good cognitivefunction. This 8-week training program, taught by a speech language pathologist,introduces participants to strategies that strengthen attention & focus, enhancememory and help develop practices that can be integrated into everyday living.

Tools for IndependenceDespite the changes MS can bring, independence is possible. Our employmentcounseling services and popular 5-week program named Working But Worried helped170 individuals address the critical issues around maintaining employment andfinding a win-win approach to working with MS.

A wide array of direct assistance programs provided 350 people over $130,000 offinancial help for such services as respite care, rehabilitative therapies (Physicaltherapy, occupationaly therapy, speech therapy & counseling), chore services, crisisassistance, home modification, durable medical equipment, personal care and more.

Commitment to a Continuum of CareFor over seven years, the Chapter has beendedicated to addressing the continuum of careissues that face those whose MS progresses. In2001, the Marilyn Hilton MS Achievement Centerat UCLA initiated a day wellness program focusedspecifically on the needs of those living with MS.Since its launch, the Center has served as a modelfor the type of programming that can be brought toadult day health centers and skilled nursingfacilities in communities nationwide. The Chapter has taken the best practices of theCenter to places like Active Adult Day Care and Hillcrest Care Center in Long Beachto serve the needs of the MS participants and residents of these facilities.

Chapter Programs & Services

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This year the Chapter was fortunate to receive a generous $1 million, 6-year grantfrom the Flora L. Thornton Foundation to establish the Eric Small Centers forOptimal Living With MS. Modeled after the successful programs at the MarilynHilton MS Achievement Center at UCLA, this initiative represents a newcollaborative partnership for the Society that is like none other in the country-bringtogether a network of leading centers for MS care not only dedicated to the medicalmanagement of this disease, but also committed to promoting well-being, optimizingfunction, and enhancing the overall quality of life for those living with MS.University of Southern California, Casa Colina MS Care Center and Rancho LosAmigos Center for Rehabilitation join the Achievement Center in this uniquepartnership.

AdvocacyThe Chapter continues the fight to protect the rights of people living with MS. Hereare some of the issues we championed this year in conjunction with the other stateChapters in MS-CAN, the MS California Action Network:� Extended the sunset period on a prior bill (AB1661) until

2010 allowing a $500 tax credit to families where theprimary caregiver is a family member.

� Working with the state Olmstead Committee to ensure thatthe issues of the younger disabled population are addressedin the decisions for home and community based services.

� Promoted and supported bill proposing Universal HealthCare in California

� Advocated for the preservation of current wages for IHSSworkers to ensure support for the family caregiver.

Hispanic/Latino OutreachSince 2001, as part of a national Hispanic/Latino Outreach Project, the Chapter hasbeen reaching into the Latino MS communities of Los Angeles, San Bernardino,Riverside and Kern counties to identify issues that impact the knowledge andtreatment of Hispanics living with MS.

� To address the lack of culturally and linguistically appropriate MS materials, theSociety has been working diligently to expand the amount of information availablein Spanish, both in print and online.

� Focus groups also explained that well-informed families are better able to copewith MS and help their loved one. To this end, the Chapter continues to focus itseducational programs to expand knowledge of MS to Spanish-speaking families.

Chapter Programs & Services

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Where the Money Goes Where the Money Comes From

Local Society Funded Research

Brentwood Biomedical Research CenterRashed M. Nagra, PhD $1,189,365 Tissue/DNA Banks

University of California Los AngelesAnthony Campagnoni, PhD $132,915 Glial Cell BiologyJi-Ming Feng, PhD $44,000 ImmunologyM. Cameron Hay-Rollins, PhD $44,000 Psychosocial AspectsLeena Peltonen, PhD $298,066 Human GeneticsNancy Sicotte, MD $512,867 Measuring MS Disease ActivitySeema Tiwari-Woodruff, PhD $351,496 Glial Cell BiologyRhonda Voskuhl, MD, PhD $495,000 Gender Differences - EstrogenRhonda Voskuhl, MD, PhD $825,000 Collaborative MS Research Center

UC, RiversideBenoit Melchior, PhD $135,006 Glial Cell Biology

Special EventsIn 2005, Southern California Chapter special events raised $4,736,852. A majority ofthese funds were raised from our primary events: the Dinner of Champions, MS Walk and MS Challenge Walk. We also acknowledge and appreciate all of thosewho conducted and supported our many third party fund-raising events.

Fiscal Year 2005 Total Expenses$7,255,224

Fiscal Year 2005 Total Revenue$8,020,902

Dinner of Champions - 33%MS Walk & Other Events - 26%Planned Giving/Bequests - 5%The Golden Circle - 10%Grants/Foundation - 17%All Other Contributions - 3%Direct Mail Received at National - 3%Non-Campaign Income - 3%

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Hosts/Co-HostsThe Cimarron GroupDeluxe LaboratoriesNew Wave EntertainmentRegal Entertainment GroupRevolution StudiosTwentieth Century Fox

Sponsors1492 PicturesAMC Entertainment, Inc.AnonymousBertco GraphicsCinemarkCinramCOKeM International LtdCraig Murray Productions& CMP Home Entertainment

Farrell Paura ProductionsGracie FilmsHappy MadisonIgnition CreativeImagine Entertainment

InterActive Corp.The Diller - von FurstenbergFamily Foundation

IntralinkLightstorm EntertainmentLos Angeles TimesMarketCastNielsen EntertainmentPlanet Hollywood Resort and Casino Las Vegas

Rave Motion PicturesSony Corporation of AmericaTechnicolorTrailer ParkViacomWarner Bros. Entertainment, Inc.

Ziffren, Brittenham, Branca,Fischer, Gilbert-Lurie, Stiffelman & Cook, LLP

Premiere SupportersAllied AdvertisingThe Ant FarmAscent Media Group BLT CommunicationsDreamWorksFlyer EntertainmentGiaronomo Productions, Inc.Loews Cineplex Entertainment, Inc.

McCann-Erickson, Inc.Open Road EntertainmentPacific TheatresRegency EnterprisesShoolery DesignStarz Encore GroupUniversal StudiosVarietyWilliam Morris Agency

Special Event SupportersThe Dinner of ChampionsThe 31st Annual Dinner of Champions raised $2.7 million. The gala event, held on September16, 2005, honored Madeleine and Tom Sherak,for their leadership in raising nearly $30 millionthrough the Dinner in the last 13 years. Award-winning TV journalist and author RichardCohen received the Dorothy Corwin Spirit of LifeAward for his courage and candor in publiclysharing his family’s personal journey with MS,and inturn raising much needed awareness aboutthe disease. Byron Allen emceed the evening which included performances by thecast of the film Rent. Plus, Grammy and Academy Award winning composer JohnWilliams directed an 84-piece orchestra in film score favorites. The enormouslysuccessful event was chaired by Roland Mesa and a dedicated committee of co-chairs:Geoff Ammer, Jeff Blake, Mike Dunn, Bob Harper, Leon LeBuffe, SimpsonLeonard, Richard Myerson, Dave Perren, Arthur and Britta Schramm, TonySella and Bruce Snyder. Our gracious thanks to all who made the evening possible.

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Tom & Madeleine Sherak, Roland Mesa,Leon LeBuffe, NMSS President Joyce

Nelson and Dave Perren

BenefactorsAnonymousThe Aspect Group: Aspect Ratio, Aspect TV, Level 7,The Picture Mill, Skip Film,VOX.ADV

Big Picture EntertainmentBruce's Gourmet CateringC.F. Entertainment, Inc.Century Theatres, Inc.Cineplex GalaxyCreate Advertising GroupComcast CorporationThe Corwin FamilyFoundation

Creative Artists AgencyThe Carole & Robert DalyCharitable Foundation

Devito/Perlman FamilyFoundation

Drissi AdvertisingEastman Kodak CompanyEndeavorEntertainment Industry Foundation

Entertainment TransportationSpecialists, Inc.

FandangoPeter Farrelly & Bobby Farrelly

Graphic Orb, Inc.In Sync AdvertisingJP Morgan

The John and Jordan DavisFoundation

Kopelson EntertainmentMicrosoftMiramax FilmsMotor EntertainmentMotorolaNational CineMedia, LLPNew Line CinemaPanavision, Inc.Parade PublicationsStephanie and Charles RovenSeismic ProductionsSpyglass Entertainment Terry Hines & AssociatesToy Box EntertainmentToyota USATransamericaTurner Entertainment GroupU-Tech Media Corporation

Committee Tables & Platinum Ad Sponsors3rd iAAV RegencyA&E Television NetworkAMC TV/WEActive InternationalAmeriquest Capital Corporation

AnonymousArt MachineBemis BalkindCarmike CinemasChicago TitleClean FunClearview CinemasCoca ColaDarklight PicturesDr. Floyd Davis & Joan Rylander

Dentsu Inc.Digital DomainDigital Theater Systems, Inc.

DVS Media ServicesDouglas Theatre Co.Eclipse AdvertisingFrederick W. FieldFrontier PicturesFuji Photo Film U.S.A., Inc.Cherna & Gary GitnickJan & Bob GoldmanRaja & Celeste Gosnell Randy & Teri GrossblattGuzzo CinemasDebbie Goldman & Bob Harper Heinz WeberThe Hollywood ReporterHydraulx/Lola VFXIMAX CorporationIncendo MediaInternational CreativeManagement

Israel Discount Bank of New York

Kerasotes TheatresLaura Ziskin ProductionsLawrence Gordon Productions

Logic Label & Packaging, Inc.Los Angeles Newspaper GroupLucasfilm Ltd.Irving H. LudwigMacrovisionMaguire ProspectsRob ManciniMann TheatresMarcus TheatresMarvelMedia Express (Ad Express)MIJO CorporationEugenia Riordan MuleNational AmusementsNew Times Inc.Orbit DigitalOTXPandemoniumPhase One ProductionsPixel Magic

Dinner of Champions (cont’d)

Special Event Supporters

Byron Allen & Bill Pullman


Point 360/IVC Inc.Premiere MagazineTamara and Bill PullmanPulse AdvertisingReading International RentrakFredric D. RosenSCHAWKSDI Media GroupTom & Madeleine SherakSimpson, Thacher &Bartlett LLP

Skadden, Arps, Slate, Meagher, & Flom LLP

Smurfit-StoneSteven Bochco ProductionsTribune BroadcastingTyler Cooper & Alcorn, LLPUCLA Department of Neurology

UPSUniversity of Southern California

Vengroff, Williams, and Associates

The Walt Disney CompanyWells Fargo

Other Generous Patrons3 Arts Entertainment, Inc.21 CineplexA-Mark Films, LLCABC Network SalesAccess Integrated Technologies

Peter AdeeLou AdlerAdvanced Digital Services Inc.Alschuler Grossman Stein & Kahan LLP

amNew YorkGeoffrey G. AmmerPaul Thomas Anderson

AquarelaBaldwin EntertainmentBank of AmericaBarkin, Perren, Schwager& Dolan, LLP

Dr. Ronald BaumB.D. Fox & FriendsBeacon PicturesBender/Helper ImpactBig Mountain ImagingBiogen IdecPaul BlochBlue Star PicturesBNP ParibasBuckingham, Doolittle & Burroughs, LLP

Jack and Elaine Bock Vicki and Robert Bond Boston GlobeBoston HeraldBrand BookingBrenden TheatresCampus Circle, Inc.Steve CarrChris CarterCast & Crew EntertainmentServices

Cathay Organisations Holdings

Certified Reports, Inc.Channel One NetworkCheyenne EnterprisesChicago Sun-TimesChicago TribuneCinelume Film VideoCinema City International NV/Forum Film Limited

CinemexCinepolisCineric Inc.Classic CinemasSandford ClimanClines Printing CorpAndrea CockrumColor West Lithography

Consolidated Theatres Management, LLC

Richard CorgelCornerstone Display GroupCountdown Post Inc.Creative PartnershipCrown TheatresTerry & Greg CurtinCustom Film Effects, Inc.Daniel Clark & Associates Brian & Sharon DavidoffJan & Trish De Bont Dr. & Mrs. Allan DeCherneyDennis J. Gilbert FoundationDetroit NewsDHL DanzasDickinson TheatresDigital Plus Inc.Dolby LaboratoriesWayne DubandE-FilmEastern Federal CorporationEmpire InternationalEmpire TheatresExhibitor Support Partnership, Inc.

Ezee StudiosF & F ManagementRory FieldsFinal Film, Inc.Focus FeaturesGal Enterprise Inc.Pamela and Burt Gelman Jack GiarraputoSuzanne and StuartGildenberg


Meredith Vieira, Richard Cohenand their children Gabe, Lily & Ben

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Louise and Jim GlasserMichael and Naomi GlickfieldRoy & Judy GlickmanSteven GoldDave and Ann GoodingGoodrich Quality TheatresGorfaine/Schwartz AgencyCaecilia Gotama andRobert Bruch

Peter Grad & LaurieBurrows Grad

Edith GradySandy GrushowGSN. The Network for GamesMonty and Marilyn HallTom Hanks and Rita WilsonHansen, Jacobson, TellerHoberman, Newman,Warren & Richman, LLP

Harkins TheatresHarman PressJohn and Bonnie HegemanSusan and Lauren HellerSharon HernandezSteve and Lisa HiltonConrad N. Hilton FoundationBarry L. HirschHogan & HartsonHollywood ClassicsHollywood Film CompanyHollywood Foreign PressAssociation

The Honolulu AdvertiserHouston ChronicleHusch & Eppenberger, LLCImageMoversImagine Fulfillment ServicesIngram Entertainment, Inc.IridioRabbi Steven Jacobs andLinda Abrams

JT Site DevelopmentJulie Kaufer

Susan Keith & Jeanne PerryKelly KeithDan and Leslie KendallKO Creative Krikorian TheatresKTTV/KCOP - Los AngelesLA WeeklyGreg & Nancy LaemmleDavid and Kathy LanderLarger Than LifeLaser PacificLeon LeBuffe & Julena LindM80Mahoney & Soll, LLPPaul and Jacquie Mahoney The Mall CineplexMega Films EnterprisesM.E.G.A. FilmsMegabox Cineplex, Inc.Media Box Co.Midnight Oil CreativeLisa & Jim MilesRosey MillerMole-Richardson CompanyMoo Deung CinemaRobert and Rebecca MooreMotion Picture Association of America

The Motion Picture Bookers Club

Movie MarketplaceMoviewatch NetworkMS Center at Cedars SinaiMedical Center

MTVJames and Mary Anne Murphy

Muvico TheatersAlbert and Angela NassiJack & Bonnie NeinsteinNetjets Management Ltd.Network Courier ServicesNew York Daily NewsNew York TimesNewsday

Newspapers FirstNike, IncNPD GroupNT Audio Video Film LabsOut of the Blue Entertainment

Hutch & Rebecca ParkerWilliam ParkerPacific TitleLinda PahlChristopher PawlakPerennial Strategy GroupEileen Peterson &Michael Shapiro

Picture Production CompanyInternational

Picturemaker ProductionsThe Pitt GroupPoint Six EnterprisesPrecision PostAndrea & Philip ProvenzaleGordon Radley and Amy Sabel

Rhythm and Hues StudiosRichard Ingber Enterainment, Inc.

Riverside Resort & CasinoRJ Moodabe Ltd.Lance and Leslie RobbinsRobert D. & Robin S. Rothenberg

Saber Integrarse SASheri and Steven SafanSan-Ei Printing Co., Ltd.Rae Sanchini & Bruce TobeySargoy, Stein, Rosen & ShapiroScarlet Letters


John Williams and his orchestra


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Julian SchlossbergScott C. Wallace FoundationScott Boras CorporationScott Rudin ProductionsFern & Bob SeizerShintsu Co. Ltd.Shochiku Multiplex TheatresSite SystemsSouthland DisplayMr. & Mrs. Steven SpiraSt. John’s HospitalStarplex CinemasState Street PicturesStock Unosvensk FilmindustriGinny and Bill TeitelbaumTM ProductionsToho Company Ltd.The Tollin FamilyTri State Theatre Service Inc.

Jon TurtletaubTwentieth Century Fox Branch Managers

Twentieth Century Fox Division Managers

Ultra Star CinemasUMCA, Urban MarketingCorporation of America

Union Bank of CaliforniaVideolarVillage SKYCITY CinemasVision AdvertisingVNU, Inc.Washington PostWarren TheatresWehrenberg TheatresJanelle & BrianWerdesheimDiana & Chet WidomWill Rogers Motion Picture Pioneers Foundation

Richard & Lili Zanuck


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The MS WalkOver 6,500 peopleturned out at sevenMS Walk sites inBakersfield, Big Bear,Greater Los Angeles,Lancaster, PalmSprings, Redlands andUpland to walk through beautiful landscapes and toconnect with others who care about fighting MS.Together they raised $1.4 million. Thanks again to ourmajor sponsors, including Charter Communications, Fox11, Bruce's Gourmet Catering, Louise's Trattoria, ClearChannel radio, K-Big 104.3, Star 98.7, Hot 92 Jamz,Xtra sports 570 AM, KOST 103.5 FM, Fabulous 690 AM,KIIS FM 102.7, KFU AM 640, Rebif, Wells Fargo,Westfield Shoppingtown, The Quake 93.5, The Edge100.1FM, Radio LAZER 106.9 FM, Sparkletts, NewsTalk 1470, V106.3, 96.5 KBKO, Santa Barbara Pizza &Chicken, Cold Stone Creamery, KFWB News 980,Ralphs, and VONS.

Top Individual Fund-RaisersSusan Keith

& Jeanne Perry $30,311David Perren $22,236René Webb $21,100Jack Bock $18,871Susan Berenson $11,676Martee Nott $11,452David A. Eagan $10,910Sharon Garrett $10,445Leor Zeitouni $10,300

Top TeamsTeam Engelman $58,254MS Achievers - UCLA

$55,835Frontline Team $41,769René Webb’s Joyful Noise

$26,675YAMS - Youth Against MS

$26,665Teamdooner $25,115

Team Engelman


$5,000 - $9,999Christopher BonillaCalifornia Community Foundation

Shelliene D. CrandallMarni DeckterdoonerTraci EngelmanBarry H. EngelmanAnne R. EpsteinHoma FaniFidelity Charitable Gift FundBailee A. FlaugherGeoffrey M. GeeJack L. GilardiAudrey GoldmanKristine KellyLeon A. LeBuffeHenriette MantelKimberly A. MooreBabs PasternackGina L. PortmanCurtis P. RosenthalAdriane M. ThiessenJerry A. Witkow

$1,000 - $4,999Kathryn AlbrightTawna AlcalaWendy AlterHelen J. AndersonAndrews Kurth LLPArden Realty Limited Partnership

Steve T. AshmoreJodi L. Ashmore

James AtheyBeth AtkinsRachel AtkinsLisa AubinCindy R. BakerDr. Lailee Bakhtiar, M.D.

Ben J. BalistreriMarjory J. BartleyRobert J. BartleyRichard G. BatisteGayle M. Batiste R.N.Karen BaylessPercenia A. BeasleyBennettYelonda K. BensonMatthew F. BerensonBernards Bros. ConstructionCorey BlakeBobbi BlumBarbara BobbeBolour Trust No. 1Susie BossaertCol. Howard F. Bronson IIIMary Beth B. BrownCarol E. BrowningDavid BrymanCandy BubarBuffalo Hunters ClubBurns Prescription PharmacyHenry BurroughsKimberly CardwellWard CarlisleRandall S. CarlsonCarmichael International Services

Glenn CaronShelley R. CarrLaura CarsonCDC Small Business FinanceLynette ChaneyCathy ChaseChesed FoundationChristmas CottageChurchill Downs CaliforniaCo.City National BankAnnagreta ClaessonAmy T. ClevelandAndy CloughRochelle (Shelley) A. CockrellColor Digital Reprographics

Diana ContrerasSheryl C. CooperBruce C. CorwinCorwin Family FoundationRebecca CostellRyan D. CraigKimberly CucciaAmie R. DahlJamie L. DakeDavidovich & AssociatesJohn W. DavisVikki L. DeanCheryl L. DeBowDolores L. DeLeonSarah M. DelgadoClaudia DiazThe DMK FoundationDina C. DolegowskiAurora G. DominguezIlene DonnerMarvin DonnerLinda DuckworthSarah DuncanRobert DunhamWilliam E. Dunn Jr.Robin EaganMarty M. ElcanJenny EllisHeather V. ElwellJulie EngelmanJamie EngelmanWilletta EnglishEnterprise Rent-A-Car Foundation

Ashley L. FetterFirst Mountain BankMicheal J. FourticqBrian D. Fox

MS Walk (continued)

Kimberly FreemanStephanie FriedmanMelinda FulmerEdith FurstLaura A. FurutaLiseann L. FusinskiEric M. GantwargLynn C. GianakosGibson Dunn & CrutcherMarc GilbarAndrea S. GoldbergAmy K. GonzalesJose GonzalezFran R. GonzalezJose R. Gonzalez IIIThe Good Food Group, Inc.Warren S. GorowitzSusan GossJutta S. GrahamNancy GraingerFaye GrantCarole Lynn GreenCarolyn H. GreenAaron GreenJulie M. GreenbergLinda D. GromanAndrea GrossLoni V. Grubb-EmigJulie GulakAmelita B. GumbsCassandra HaavistoHabih Youssef & AssociatesChristina HacopianBeau R. HaighGerald A. Hanweck Jr.Jeremy HarrisonChris HendershotGayle J. HeningerJason W. HerronClaudette HigdonKay E. HouserKathy HuyssoonICM

Kathleen A. IncerpiNancy IshamJackass, Inc.Susan R. JacobsJewish Community Foundation

Debra JohnsonShelia JonesIlt L. JonesBrice JonesPete H. JosephsRay KarpeHeather L. KayneMichelle KeimDonald B. KeithJames E. KellettDr. And Mrs. Alan KesslerLaura KightlingerMargery KimbroughWilliam S. King Jr.King Pagano & HarrisonJeff KirshnerMary K. KlepperCarl R. KnechtNahleen V. KnightKnight Services, Inc.Jacob A. KnobelGreg Knotts PhDCody Rae C. KnueHolly Konrad-RedhefferKimberly A. KotrlaRobby A. KriegerL & S Milken FoundationLa Jolla BankCindy LangwellDeborah K. LarsonDr. Mysheika R. Lemaile-Williams

Dorothy A. LentiniNancy E. LevesqueSandra LevineJune E. LewinVictoria LovinggoodEllen P. LundquistGinni P. Machamer

Sheridan MacMillan-ThayerAnne MacMurrayRose Marie M. MartelLinda MartinsPeggy L. MayoMichael McKnightStar McNallyRon MeyerSusie MichaelMilken Family FoundationKelley MillerPamela A. MillerZoe MillerAshley MillsErinn N. MilnerDouglas B. MinerChristina E. MisnerMonaco Diversified Corporation

Marie MorrisJoseph MossMelissa MotkinN.T. LongMichelle NadelDaniella R. NamvarCindy E. NevinsJessica M. NewaraWayne NewmarkSteve NottNSBN LLPNu ImageSusan O'ConnorClaudia O'HehirRichard O'HehirJoanne M. OribaSanford PanitchKevin H. ParkEmily Parker


MS Walk (continued)

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Patterson, Ritner, Lockwood, Gartner & Jurich

Karen PayneScott D. PerlmutterSandie PetrucelliVirginia PirosLeslie PodolskyBret R. PrichardRain PryorAngela QuarlesSanto RagnoJefferey RalphStacy RanhoferMichael D. RattsKurt A. ReustLori RheesSarah RichMargaret RichardsonRoad Dog SystemTheresa E. RobinsonPamela M. RobinsonShirley RogersSybille RogersThe Ronald L Holland TrustKara E. RooseScott RossMichael P. RountreeLori RubinJeffrey A. RudmanAnthony RuizChamara A. RussoSara RutenbergJim W. Ryan IIIDeirdre A. Ryan

Gail SacalasBrittany D. SadoianNatalie SchachHeather A. SchenkelDavid ScholderKevin L. Schuder Sr.K. R. SchulzSchwartz & Janzen, LLPBradley S. SeamanGino SestoRobyn ShapiroDavid L. ShedlarzMadeleine Sherak, Ph.D.Doreen S. ShickEdward S. ShickMadeleine H. ShimminGail R. SillsSills Foundation, Inc.Amber SkalskiJanice Slaby M.S.W.Eric SmallLisa M. SmoogenWilliam J. SniderCarina SohailiDebbie K. SpeckmeyerStarbucksEllyn J. SteinMonique R. StewardVanessa K. StimmelKenny StimmelJon StrumSusan SungaThe Sydney Rose FoundationKirsten A. TaggartChad C. TaggartJoyce TanabeKarin A. TarskyZhanna TataryanLinda ToibbWesley ToyKathryn TraweekUnion Bank of CaliforniaMilana VayntrubAlexander VayntrubJacqueline M. WagnerKristina Walker

Wal-Mart FoundationPat WarrenMichelle L. WebbReginald WebbKatheryn WebbSharrelle WelchChester A. WidomDiana L. WidomColleen WilliamsStephen R. WinstonLaurie & Stella A. WisneskiAndrew YamamotoYCMNET AdvisorsTina YesayanYouth Against Multiple Sclerosis, Inc.

Jeffrey M. ZabnerAmy Zendle


MS Walk (continued)


$5,000 +Jacqueline BrinleeCindy DavilaRenee DavisLouise FordTiffany JordanTheresa KeenerMarla L'AngelleLinda MilsonKerry O'DonnellBarbara PachanoEileen WhelehanJennifer Wilmans

$1,000 - $4,999Phyllis AbaranokAnna AlvarezManny ArguelloRoberta BackmanRick BaldiniSherry BeamerShelley BensonDara BenvenisteTiffany BirkettTrisha BoledovichDavid BrittCharlene BrownJudi BrunerBrenda BurnsTerri Cambio

Gary CambioChiuhing CaseyKarin ChamberlainKelley ChoeJanet ChoiJessica ChristensenNicole CohenJennifer ConkJeanine DavoustSusana De Los ReyesYvonne DeLeonBarbara Den HartogDina Di BellaMonique DiazAlison DlugoszKerry DolanElizabeth DuffesBeth ElwellErin EricksenTaleen EvansJan Faiola MorrisseyGeorge FairmanStephanie FarnanElizabeth FennerEric FowlerKaren FulmerEmil GallardoShellie GeorgeBrenna Gibson-RedpathClara Gilbert

Amy GladCynthia GonzalesRuben GonzalezLeslie GrimesMark GuerreroLisa HallSue HansenChristine HarpelPamela HicksJanet HornerJeanne HuberLori HuntsmanWendy JacobyBarbara JoelsonNicole JonesJennifer Jordan DutillyCyntia KalickiMelissa KassanJustin KassanCaroline KielmayerJudy KimSandra KitashimaTahira Knight-ZaluskeSandy KraemerCaren LandrumAmy Levinson MillanLinda LewisMaria LischkeMerlinda LopezDusty Magrann

MS Challenge WalkWith the passionate commitment ofover 500 walkers, crew and volunteers,the 2005 MS Challenge Walk raisedover $1.24 million for the SouthernCalifornia, Orange County and SanDiego Area Chapters! Participantsembarked on a journey that took themthree days and 50 miles along some ofSouthern California’s most sceniccoastlines. Special thanks to all of those who so generously sponsored the MSChallenge Walk: Addie’s Studio, Sycuan Resort and Casino, La Salsa, CaliforniaSulphur Co. and Balance Point Massage Therapy Clinic.

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Heidi MankoffMona MardiniVirginia MarshallKathleen Marshall-PrimozicElisabeth MartinJoyce MasonMaureen McCarthyDebbie McGowanMarty McLeodTony MerrittJoan MerrittRick MilsonMichelle MonrealDoris MorganMelanie MrozJennifer NathansonKelly NielsenKeri OkudaTracy OvistS OxboroughSofia PantojaBrent ParsonsKaryl PartenheimerChristopher PentzellMichelle PerrinGregory PerrineJohnny Pittello

Jen PollockMiguel RamirezMelanie RandallSuzanne RiggioRoberta RiosJasmine RobertsTamara RobertsonDiane RomeoRobert RosenbergCarolyn RussellYolanda SainzYvonne SalasColleen SellersHelen SerrySandy SessinghausRebecca ShakerchiRaad ShawafMichelle SilvaMichael SmithDebbie SmithMarie SmithLacee SnookChristine SoteloSarah SpearJulie StaffordAva StoneErin SwearingenCristine ThaxtonJoy ValentoAnnette VeraMichelle VittorieNancy WalkerShannon WallaceSusan WalsheCindy WaltersMillie WarrenLaura WelchSunny WhangMitch WheelerTanaaz WheelerStephen WilliamsDee Dee WilliamsVikki WissemaChristy ZajackSusan Zolla

MS Golf Classic

$1,000+Academy EscrowAmerican Family FundingAmPro Mortgage Corp. C.A. Walker Research Solutions

Countrywide FinancialCovenant MutualDavie-BrownFinancial Center MortgageFinancial Title CompanyFirst American Title H.D. Smith-Barnes DivisionLexus of ValenciaLighthouse Lending, Inc.Long Beach MortgageNew Century VolkswagenPM PressRaymond James & Assoc., Inc.ResMAE Mortgage Corp.Security National MortgageSierra Pacific MortgageSouthland TitleWells Fargo Home MortgageLoren Woll

Special Event SupportersMS Challenge Walk (continued)

16

In 2005, planned giving/bequest income - donated through living trusts and wills,charitable trusts and gift annuities - totaled $403,288. National and local direct mailappeals benefiting the Chapter raised $238,631. Donations made to the Chapterthrough workplace giving payroll deductions, as well as tributes and memorials tohonor or memorialize loved ones, reached $252,491.

Foundation and Corporate Support

Flora L. Thornton Foundation: $1 million over six years to support The Eric SmallCenters for Optimal Living with MS (awarded September 2005)

Conrad N. Hilton Foundation: $690,000 over threeyears to support The Marilyn Hilton MS AchievementCenter at UCLA (awarded December 2003)

California Community Foundation: $200,000over two years to support The Marilyn Hilton MSAchievement Center at UCLA (awarded June 2005)

Weingart Foundation: $75,000 over two years tosupport the Partners in Care Program (awarded April2005)

The Ralph M. Parsons Foundation: $50,000 tosupport The Marilyn Hilton MS Achievement Centerat UCLA (awarded April 2005)

Anonymous: $25,000 to support the Latino OutreachProject (awarded April 2005)

Flora L. Thornton Foundation: $25,000 to support The Eric Small Yoga Program(awarded May 2005)

AEGON Transamerica Foundation: $25,000 to support The Marilyn Hilton MSAchievement Center at UCLA (awarded April 2005)

Change A Life Foundation: $10,000 to support the MS Family Retreat Weekend (awardedAugust 2005)

J.B. and Emily Van Nuys Charities: $8,455 to support the Chapter's capacity-buildingtechnology upgrade project (awarded November 2004)

Employees Community Fund of Boeing California: $7,500 to support the MS FamilyRetreat Weekend (awarded July 2005)

Major & Traditional Giving

Chapter President Leon LeBuffe, CenterDirector Stephanie Fisher and UCLA Chairof Neurology Dr. John Mazziotta at the 4th

anniversary of The Marilyn Hilton MSAchievement Center at UCLA in June 2005

17

UBS Financial Services: $7,500 to support the 4th of JulyCelebrating Independence program at the Hollywood Bowl(awarded May 2005)

Zev Yaroslavsky, Supervisor, Third District of LosAngeles County: $6,000 to support restroom renovations atThe Marilyn Hilton MS Achievement Center at UCLA(awarded January 2005)

Change A Life Foundation: $5,700 to support restroom renovations at The Marilyn HiltonMS Achievement Center at UCLA (awarded March 2005)

Home Instead Senior Care Foundation: $5,000 to supportMS-specific programming at adult day health care and skillednursing facilities (awarded March 2005)

Lockheed Martin Aeronautics Employees' Reaching Out(AERO) Club: $3,000 to support the MS Mountain Getawayat Camp Paivika (awarded January 2005)

Northrop Grumman/Integrated Systems Sector: $2,500to support the Enrichment Program in the Community (EPIC)(awarded June 2005)

Sempra Energy/Energy for Others: $2,500 to support theMS Family Retreat Weekend (awarded March 2005)

Employees Charity Organization (ECHO) of NorthropGrumman: $2,000 to support the MS Mountain Getaway atCamp Paivika (awarded May 2005)

W.M. Keck Foundation: $2,000 for general support (awardedDecember 2004)

Northrop Grumman/Litton Systems, Inc.: $2,000 forgeneral support (awarded December 2004)

18


Foundation and Corporate Support (continued)

Home Instead’s Brad Luskpresents a check to Chapter

President Leon LeBuffe

Families enjoyed time togetherat the MS Family Retreat

Weekend

Major DonorsWho Commit to the Cause, Care and Cure

Thanks to the generosity of members of The GoldenCircle, the Chapter's premier gift recognition society,$935,000 was raised toward the 2005 campaign, with lessthan 2% expenses. Co-chaired by Julie Kaufer and SueMeltzer, the Committee responsible for facilitating thesuccessful campaign included Helen Bolsky, Derrick R.E. Doba, David E.Gooding, Randy Grossblatt, Michael Lichner, Paul Mahoney, Pam Miller,Sheri Safan and Fern Seizer.


Julie Kaufer and Sue Meltzer

ANGEL ($50,000 +)Caroline & Stephen L. KauferSherak Family FoundationTuffli Family Foundation

BENEFACTOR($25,000 to $49,999)Anonymous (2)Helen BolskyUBS Foundation USA

PATRON($10,000 to $24,999)AnonymousDonna M. & Dr. Walter F. Bauer

John Brenner, Cutting Edge Supply Co.

Steffanie & Geoffrey Gee Judy & Roy GlickmanMelanie Grisanti & Gordon McLeod

Lisa & Ray KarpeJulie Kaufer & Frank ReddickMichael J. LichnerSue & Ed MeltzerClaudette Nevins & Benjamin L. Pick

Edward H. TaranFrederick R. Weisman Philanthropic Foundation

SPONSOR($5,000 to $9,999)AnonymousDr. Joan Otomo-Corgel & Richard Corgel

Mari-Jo & Gary M. Deutschman

Frankie A. & John A. Duran Linda Ellman & Gary Mandinach

Donna GarberAnn & David GoodingBruce Hecker, Bruce’s Gourmet Catering

Kathleen & Dr. Delmer Henninger

Charlotte B. & S. Lawrence Jacobs

Tatiana & Todd JamesLeon Lowenstein FoundationLouise Laraway Teal Foundation

Iris B. MahoneyGail & Haim PekelisPhi Alpha KappaPam & Mark RubinDorothy & Charles B. Samuel Joan & Arnold SeidelFern & Bob SeizerRuth Lynn & Hank SobelDina Tecimer & Masood Sohaili

Jane & Lester Trachman Family

Linda & Dennis H. VaughnFlorence M. VictorDiana & Chet A. Widom

FRIEND($2,500 to $4,999)AnonymousLaVilla S. & Dean H. Adamson, Wilbur C. Grosse Trust

Pamela & Paul H. ApelJoanne K. BeckwithElaine & Jack Bock, Jr.Barbara & Morton BowmanCamilla J. & Arnold W. Bramlett

Pearl Anne & Melvin Brooks Sandra & Bernard FischbachJulie K. FriedmanPhyllis & Bill GibsonDanny Goldman, Danny Goldman Casting

Mary Ann GoodArlene & Richard HavelCharlotte Hughes & Christopher Combs

Cathrine IrelandPat & Jake JacobsTracy & Michael KerkorianSieny & Dr. Alex KrammerJulena Lind & Leon LeBuffeLouis L. Borick, Louis L. Borick Foundation

Gloria Meeker 19


Senn V. MosesEugenia Riordan MuléFaith Pearlman, Jerome & Faith Pearlman Foundation

Eva Rose & Eugene SafanAlison & Lawrence A. Rosenthal

Dr. Philip S. RyanSheri & Steven SafanSandra J. & Vincent E. ScullyMace SiegelIrene V. SteinmanThelma StewartJames S. TyreSylvia Weisz Pamela M. Woods & Kirk A. Pasich

MEMBER($1,000 to $2,499)AnonymousEric K. AdairBetsy & Harold ApplebaumRhona BaderClaudia Barski & Peter J. Carian

John W. BartlettMickey BearmanHilda & Dan BergherTracy Bechtold & Robert J. Gach

Frieda & Alan E. BerlinBialis Family FoundationKay & J. Alan BlooreLes BohemVicki & Robert BondMartha J. & Leonard J. Brutocao

Mari S. & Ward M. BukofskyKatherine BurrowsAlexandra CarianJudith A. Carroll

Stephen C. Carroll Mr. & Mrs. Aaron C. ClarkRonnye CohenToni & Bruce CorwinDiana R. DavidowShirley Lu & Norman Davidson

Janelle Del Carlo & Keith Brant

Saundra & Ron De CrescentAnita L. DeFrantzJanet C. DirksKerry A. DolanDorothy & Sidney FactorGloria & Stanley FishfaderPat & Robert Fleming, Paveco Construction

Edith & Arthur FurstSharlene & Sol F. GalperCandy & Gavin GervisElvie & Yale GieszlJulie Gilbert & Aaron SonesRosemary & Jeffrey S.Glikman

Judy & David M. GoldsteinEdith M. GradyJody Graham & Mitchell J. Dunitz

Susan A. & Ronald G. Graves Karen L. GreenDiane & David H. GreenbergSherri & Gary HaberFred N. HellmannNaomi A. & Craig N. Hentschel

Rosalind HewsenianJohnny HolidaySusan M. HowardElaine Smith IrellCharlotte & Stanley KandelAnnie Wilson-Karges & Terry Karges

Karen G. & Donald E. KarlNicole G. & Bill Keck Mr. & Mrs. Steven Keefer

Susan Keith & Jeanne Perry Morton KirshnerArline M. & Seymour KreshekSylvia KrugSara & Jon KutlerElizabeth & Bradley La CourSharon A. & Herbert A. Lambert

Frances F. & Jerry G. LeighAnn & Don Levin, Lenore S. Levin Family Foundation

Ernest LieblichVivien LowyJoanne & Bruce MacCallumJacquie & Paul MahoneyMahoney & Soll, LLPRusty & Elliott MaltzmanRose Marie MartelBernice G. McMahonPamela A. MillerSheryl Miller & Robert Schilling

Lee & Stanley MillsRuth & Robert MirvisAnn Moorefield, Moorefield Construction, Inc.

William MosesianBarbara A. & Paul T. NortonJioia S. & Samuel NelsonDenise & Ken NowackKristen & Sanford PanitchCassidy L. & Matthew J. ParkEleanor H. ParkerDr. Ian D. PaschNancy & David PerrenRhonda Rand, MDKaren RandallCarole J. & Doug RawsonPamela Sherwood Reims & Josh Reims

Karen L. & Graham A. RitchieRalph S. RobertsR.J. Romero, Oremor Management

Donald R. Rudkin20

The Golden Circle (continued)

John J. SakmarFred R. SalisburyNancy & Mark SamuelsKay R. & Dr. Loren E. SanchezSea Board Envelope CompanyBritta J. & Arthur E. SchrammSidney Stern Memorial TrustSuzanne & Robert SiegelKathy & Don SmithJane & Doug SmithBarbara Sobel & Jonathan Rubens

Debra & Dr. Philip A. SobolArleen Sorkin & Christopher Lloyd

Kimberly & David StaffordJeannette Stern & Robert Moskowitz

Karin & Steven StollerLori & Gary StoneJanis & Jeff SusskindClaudette L. & Henry L. Taylor, Jr.Jayne & Kelly TienEvelyn S. & Jeffrey M. TolinCynthia A. Torres & Michael V. Gisser

W. Lee TownsJan & Christopher E. TurnerWini VandermanLorna & Dr. Shelby WagnerJody Needle Waterman & Jack L. Waterman

Janet & Congressman Henry A. Waxman

Pamela & Dr. Robert WeingartenJulia & Roy WeinsteinSusan H. & William T. WeintraubAnne Marie & Jack WilderCarnie Wilson & Robert BonfiglioSusan H. & Philip T. WinikMaria & Dr. Joe YamamotoElla Zarky

Major & Traditional Giving Multiple sclerosis is a chronic, often disablingdisease of the central nervous system.

Symptoms may be mild, such as numbness in thelimbs or severe, such as paralysis or loss ofvision. Most people with MS are diagnosedbetween the ages of 20 and 50 but theunpredictable physical and emotional effects canbe lifelong. The progress, severity andsymptoms of MS in any one person cannot yet bepredicted, but advances in research andtreatment are giving hope to those affected bythe disease.

Founded in 1946, the National MS Societysupports more MS research, offers more servicesfor people with MS, provides more professionaleducation programs and furthers more MSadvocacy efforts than any other MS organizationin the world.

We do this through the extensive research wesupport to find the cause, cure and improvedtreatments of the disease; the comprehensiveservices we provide to people with MS and theirfamilies; the professional education programs weoffer to assist health care providers better servetheir MS patients; and through our advocacyefforts on state and federal levels to encouragepublic policies supportive of the needs of peoplewith multiple sclerosis. This is why we at theNational Multiple Sclerosis Society are here.

The National MS Society is pleased to advisethat it meets the standards of all major agenciesthat rate non-profit groups.

The mission of the National Multiple SclerosisSociety is to end the devastating effects of MS.

Marni Deckter, Progress Report Editor

21

The Golden Circle (continued)

MembersEric AdairByron AllenJohn V. Bock, Jr.Richard CorgelBruce C. CorwinJoan DavisDerrick R.E. DobaMatthew FeinCheryl S. Feldmann, Ph.D.Tracie FissBrian D. FoxDr. Barbara GiesserRoy GlickmanDavid M. GoldsteinDavid E. GoodingHarland N. GreenSandy GrushowJohn HallRobert E. HarperBruce HeckerCharles HirschhornAlvin S. Kaufer, Esq.Julie Kaufer, Esq.Susan KeithAlan H. LedermanSimpson C. Leonard, Jr.Paul M Mahoney, Esq.Sue MeltzerRoland MesaRosey T. MillerSenn Moses

Sanford PanitchDavid Perren, ChairJeanne Perry, Ph.D.Sheri SafanArthur E. Schramm, Jr.Britta SchrammFern SeizerMadeleine Sherak, Ph.D.Thomas SherakEric SmallJonathan StrumDina Tecimer, Esq.Bill Todman, Jr.Chet Widom, AIA

Honorary TrusteesAmy AlcottWalter F. Bauer, Ph.D.Edith FurstSteve GarveyYale GieszlEdith GradyFred LukasMerlin OlsenLawrence PressmanHon. Richard RiordanLoren E. Sanchez, EdDDennis H. Vaughn, Esq.Congressman

Henry A. Waxman & Janet Waxman

Charles C. Wolf, Esq.

2005 Board of Trustees

Senior Chapter StaffLeon LeBuffe, Chapter PresidentSusan Bradley, Vice President, Field ServicesJanelle Del Carlo, Executive Vice President, DevelopmentMarni Deckter, Director of CommunicationsJim Elfline, Vice President, Special EventsAlice Keshishian, Vice President, FinanceDenise Nowack, Executive VP, Chapter Programs

Southern California Chapter2440 S. Sepulveda Blvd. Suite 115Los Angeles, CA 90064310.479.44561.800.FIGHT.MSFax: 310.479.4436www.nationalmssociety.org/calE-mail: [email protected]

Inland Empire Field Office5 East Citrus Ave., Suite 107Redlands, CA 92373909.307.3388, 800.752.1773Fax: 909.307.3392

Coachella Valley Field Office73710 Fred Waring Dr. Suite 103Palm Desert, CA 92260760.776.5740Fax: 760.776.5742

Antelope Valley/SantaClarita Valley Field Office1669 West Avenue J, Suite 309Lancaster, CA 93534661.945.9111Fax: 661.948.6875

Kern County Field Office 1800 30th Street, Suite 105Bakersfield, CA 93301661.321.9512Fax: 661.321.9518

progress report 05 - national multiple sclerosis...

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