prime centre wales invitation to setting its social … centre wales... · web viewfig.1 word cloud...

DRAFT: FOR CONSULTATION

PRIME Centre Wales Invitation to setting its Social Care Research Priorities for Wales

Date: 5th October 2015Venue: Future Inns, Cardiff Bay

IntroductionIn October 2015 the new PRIME Centre Wales convened a consensus meeting with the key individuals from academia, government, statutory and the third sector to set its social care research priorities for Wales (appendix 1 list of participants). The meeting was led by Prof. Joyce Kenkre and Dr Carolyn Wallace, University of South Wales.

The aim and objectives of the day were:

Aim: To agree the PRIME Centre Wales social care research strategy.

Objectives: To collaborate across health and social care for future delivery of services To set priorities for social care research within the primary and emergency care context To identify facilitators to enable the priorities to be delivered. To agree an action plan for future delivery.

Methodology & MethodA Nominal Group technique was used to develop the agreed research priorities and action plan.This consisted of three phasesPhase one-Private discussions prior to the event. All participants were asked to consult with their colleagues and bring with them three priorities for research.Phase two- The face to face interaction with background presentations and consensus workshops to be reported below.Phase three- The dissemination and consultation of the findings which will result from this report.

The face to face interactionThe background presentations included the following:

• Dr Dan Venables gave a Welsh Government perspective and commenced with the a quote from Prof. Mark Drakeford stating that ‘we invest in research because it makes a difference to patients and service users’. He outlined the principles of prudent health and social care reinforcing the need for high quality research evidence to underpin policy and practice. Dan then reminded us about the vision for Health and Care Research Wales.

• Prof. Judith Phillips (Swansea University) who outlined the new Wales School for Social Care Research vision as ‘Wales: the place to do social care research = increasing the quality and quantity of research for the benefit of the public, social care users, carers and patients’. She included the principles of collaboration with users, inter and multi-agency working, across

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sectors, developing a strategy for training, involving people, strengthening the capacity to deliver on prioritised policy and practice research agendas in the areas of world leading research, working in partnership with external bodies. The priority areas are:

• Coordination and need for a new social care research strategy• Develop capacity and skills in academia and workforce• Organisational culture change• Strengthen knowledge base• Dissemination and Implementation• User involvement• Business and Industry• Collaboration• Champion for social care research in Wales

• Profs Steve Smith and Gideon Calder (University of South Wales) gave an explanation of the concept of wellbeing in the context of the Well Being of Future Generations (Wales) Act 2015. They used the simple definition ‘’well-being relates to how well a person’s life is going’. They posed the basic questions,

• So what is well-being, then?• How does it relate to other values and priorities (fairness, equality, etc)?• How do we balance the quantitative, the qualitative and the philosophical elements

of the well-being ‘package’? • Prof Adrian Edwards (Cardiff University) set the strategy into the context of the new PRIME

Centre Wales. He stated that a ‘Strong primary and emergency care is essential for the effective and efficient functioning of the NHS as a whole’ and a strong academic base must underpin this. PRIME Centre Wales aims to improve the health and wellbeing of people in Wales, internationally through high quality research and influencing policy. Adrian described its structure and work packages, emphasising that this inclusive all Wales centre works with patients and public, social care services, third sector, industry, health and care research Wales infrastructure including its centres and units.

There were five rounds of consensus within the structured workshop where participants undertook the following which resulted in agreed research priorities and action plan:

1. Individuals wrote down their three identified key priorities for research, training and support on green paper provided.

2. Participants paired with another person and presented their ideas to each other. Then jointly agreed on the most important three ideas out of the six originally presented. They wrote these three ideas onto the pink paper provided.

3. Participants regrouped with another pair of participants (who had completed the same process) presented and discussed their collective six ideas. The four together then narrowed the six ideas down and agreed three ideas. These were then written onto the blue paper provided.

4. Participants regrouped with another four participants who had completed the same process, presented and discussed their collective six ideas. The eight together then narrowed the six ideas down and agreed three ideas. These were written down on the yellow paper provided.

5. Participants regrouped with another eight participants who had completed the same process, then presented and discussed their collective six ideas. The sixteen participants

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then narrowed the six ideas down to three agreed ideas. These were then written on the flip chart paper provided.

The results of rounds 1-5 can be found in appendix 2.

Research ThemesThe individual research priorities gathered in step 1 above were analysed into research themes (se appendix 3). Some of the priorities may be seen as cross cutting a number of themes. For example, ‘Involving older people in the design and planning of services- how? What happens when views cannot be realised/conflict with policy agenda?’ This could be placed in both the ‘commissioning, organisation and workforce’ or ‘Acts, policy and their impact’ themes. For the purpose of this exercise it has been placed into only one theme and would be a consideration for the researchers as to how they engage with colleagues who deliver other themes within the strategy.

Ten research themes were identified from stage 1 :

‘Research awareness, engagement and capacity building’; Long term Care; Integration; Acts, policy and their impact; Wellbeing; Commissioning, Organisation and workforce; Resilience; Medicines; Assessment and outcomes; Abuse.

Agreed Research Priorities The two flip chart lists of six priorities from the 5 consensus rounds were then debated and through agreement rated in order of importance. This resulted in the overarching principle and four research priorities. An agreed action plan was developed.

An overarching principle was agreed:

How do we ensure that the research/work we do is ‘fit for purpose’- in the view of the public, patients, carers as well as professional stakeholders in developing the research question, design, dissemination and evaluating effectiveness and long term impact? How can we be sure that all of the voices are heard when we develop evidence- informed ‘rules of thumb’?

With the following research priorities:

1. The SSWA (Social Services and Wellbeing Act) contains a number of key principles linked to outcomes e.g. co-production and user involvement. In what ways can research be used to monitor and capture the extent to which these principles are changing practice and outcomes?

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2. The role of social and organisational functioning in the demand and implementation of social and health care. Develop protocols for meaningful information sharing across the boundaries between health and social care and between practitioners and the public.

3. What are the individual and social characteristics of receptive/engaged service users/carers/people and how can these characteristics be identified and nurtured?

4. Develop and evaluate new models of commissioning for health and social care which put the service users’ voice in the centre of the frame and includes 3rd sector organisations, and uses a wide range of measures.

Agreed Action Plan Write up and accept feedback. Circulate and ask who wants to be involved in which priority- get a sense of who wants to be

involved and generate energy. Develop steering group?- How do we take all of this forward? Ensure distribution to all not within the meeting, invited groups and individuals. Enquire to the group as to level of involvement- use email list, researcher network etc. Meta engagement with other groups like PRIME and so strengthening the engagement. Signposting people of interest within one research area with another.- how do we achieve that?

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Appendix 1- List of participants

1. Lewis Darmanin, Team Lead Health and Care Research Wales Workforce2. Adrian Edwards, Director PRIME Centre Wales, Cardiff University3. Gerry Evans, Director of Regulation and Professional Standards, Care Council for Wales4. Kristen Evans, Service Development Coordinator, Calan DVS5. Bridie Evans, Research Officer, PRIME Centre Wales, Swansea University6. Hayley Fidler, Centre Manager, Pontypridd YMCA7. Micaela Gal, Research Fellow, PRIME Centre Wales, Cardiff University8. Sophie Hansen, Director, The Office Choir Company9. Helene Hayes, Partnership Development Manager, Citizens Advice Cymru10. Jonathan Huish, Chair, Project Board Pontypridd YMCA11. Chris Jones, Project Manager, Care Directorate Group Gwalia Housing12. Susan Jordan, Reader, Swansea University13. Joyce Kenkre, Professor of Primary Care, PRIME Centre Wales, University of South Wales14. Rachel Lewis, Manager, Age Alliance Wales15. John Moore, My Home Life Cymru Manager, Age Cymru16. Edward Oloidi, PhD Researcher, University of South Wales17. Alison Orrell, Research Fellow, Bangor University18. Rosanne Palmer, Policy Adviser, Age Cymru 19. Judith Phillips, Lead, School for Social Care Research, Welsh Government; Professor of

Gerontology and Director of the Research Institute for Applied Social Sciences, Swansea University, Lewis Darmanin, Team Lead Health and Care Research Wales Workforce

20. Adrian Edwards, Director PRIME Centre Wales, Cardiff University21. Gerry Evans, Director of Regulation and Professional Standards, Care Council for Wales22. Kristen Evans, Service Development Coordinator, Calan DVS23. Bridie Evans, Research Officer, PRIME Centre Wales, Swansea University24. Hayley Fidler, Centre Manager, Pontypridd YMCA25. Micaela Gal, Research Fellow, PRIME Centre Wales, Cardiff University26. Sophie Hansen, Director, The Office Choir Company27. Helene Hayes, Partnership Development Manager, Citizens Advice Cymru28. Jonathan Huish, Chair, Project Board Pontypridd YMCA29. Chris Jones, Project Manager, Care Directorate Group Gwalia Housing30. Susan Jordan, Reader, Swansea University31. Joyce Kenkre, Professor of Primary Care, PRIME Centre Wales, University of South Wales32. Rachel Lewis, Manager, Age Alliance Wales33. John Moore, My Home Life Cymru Manager, Age Cymru34. Edward Oloidi, PhD Researcher, University of South Wales35. Alison Orrell, Research Fellow, Bangor University36. Rosanne Palmer, Policy Adviser, Age Cymru37. Judith Phillips, Lead, School for Social Care Research, Welsh Government; Professor of

Gerontology and Director of the Research Institute for Applied Social Sciences, Swansea University School for Social Care Research

38. David Pontin, Aneurin Bevan Chair of Community Health, University of South Wales39. Steve Smith, Professor of Political Philosophy and Social Policy, PRIME Centre Wales,

University of South Wales40. Cathryn Thomas, Programme and Improvement Lead, Social Services Improvement Agency41. Susan Thomas, PhD Student, University of South Wales

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42. Kate Thomas, Health and Social Care Facilitator, Newport Gavo43. Alun Toghill, Service User Research, Partnership Public44. Dan Venables Head of Social Care Research & Development Division for Social Care and

Health Research, Welsh Government45. Carolyn Wallace, Reader Integrated Care, PRIME Centre Wales, University of South Wales46. Sarah Wallace, PhD Researcher, University of South Wales47. Paula Walters, Director, NHS Centre for Equality and Human Rights48. Angela Watkins, Operations & Communications Manager, PRIME Centre Wales, Cardiff

University49. Annie Williams, Research Fellow, Cardiff University50. Elizabeth Young, Director, Research Evaluation & Policy Home-Start UK51. School for Social Care Research52. David Pontin, Aneurin Bevan Chair of Community Health, University of South Wales53. Steve Smith, Professor of Political Philosophy and Social Policy, PRIME Centre Wales,

University of South Wales54. Cathryn Thomas, Programme and Improvement Lead, Social Services Improvement Agency55. Susan Thomas, PhD Student, University of South Wales56. Kate Thomas, Health and Social Care Facilitator, Newport Gavo57. Alun Toghill, Service User Research, Partnership Public58. Dan Venables Head of Social Care Research & Development Division for Social Care and

Health Research, Welsh Government59. Carolyn Wallace, Reader Integrated Care, PRIME Centre Wales, University of South Wales60. Sarah Wallace, PhD Researcher, University of South Wales61. Paula Walters, Director, NHS Centre for Equality and Human Rights62. Angela Watkins, Operations & Communications Manager, PRIME Centre Wales, Cardiff

University63. Annie Williams, Research Fellow, Cardiff University64. Elizabeth Young, Director, Research Evaluation & Policy Home-Start UK

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Appendix 2- Results of consensus workshop rounds 1-51. Green Paper

a. Fully identify and cost for all necessary resources (including research staff) at grant stages.

b. Encourage and sign post people to free to access training from health and care research wales support centre.

c. Collaboration between all sectors/ investigators and support infrastructures.d. Function and disease- balancing – resiliencee. Prevention of readmission after discharge/ what counts as ‘good’ discharge.f. Engagement /deliberation with SVS- in their diversity e.g. children, older people,

people with intellectual disabilities.g. Selling research to Las- how to engageh. Support for joint research practice posts to help workforce pick up research insights.i. Funding for high quality research bids.j. Selling research to stakeholders such as Las and engaging marketing – need support

from these outside social care (retail/consumer analogy)k. Support for joint research/practice posts- to enable workforce to address challenges

in everyday practice through an evidence base.l. Funding for high quality research bids for developing high quality Wales.m. Integrated agenda, community, resilience-m +p health, what counts as good

discharge, engagement with service users to include their voice.n. Reducing social isolationo. Supporting family resiliencep. Sharing and accessing informationq. Research models of commissioning for health and social care which aims to meet

the needs of people with complex health and social care needs, so that new and innovative models of care can be developed without health and social care commissioners being in competition or conflict.

r. Research for effective new types of health and social care collaboration. E.g. joint reablement schemes for older people.

s. Research for manpower needs of new patterns of health and social care at qualified and unqualified levels.

t. Health and service contribution to independent living. * focus is often on social care including within WG independent living framework.

u. Impact of employment on health and social care and wellbeing. Could look at employer awareness of the contribution they make to health, social care & WB.

v. Integrating needs assessment and Impact assessment. In context of Service Planning and WOFG Act.

w. Care homes- Impacts of good/poor admission/discharge to/from hospital to/from care home.

x. Impacts of emergency hospital admission on quality of life of residents in care homes

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y. Impacts of community involvement in care homes on qol of res of care homesz. CCW- primary care support for nursing and care home provision with further

extension to home care services.aa. Social function in demand for social and health care.bb. Management of dementia in social care and primary care services.cc. Age Cymru- Implementation of SSWAdd. Shift to preventative servicesee. Advocacy in person-centred careff. Development of near patient tests for use in the community/nursing care homesgg. Training and supply of IV antibiotics in the community and nursing care homes.hh. Pharmacy –providing AB advice, poss CRP tests-reduce antibiotic prescribing and

also role in educating regarding antibiotics.ii. Involving older people in the design and planning of services- how? What happens

when views cannot be realised/conflict with policy agenda?jj. How can 3rd sector service provision be fully integrated with health & social care

statutory services?kk. Integrated care pathways- what works?ll. The commissioning, delivery and regulations of long term home care that promotes

wellbeing.mm. Dialogue and values driven approached to evidence in …..nn. More effectively supporting of inter dependent caring relationships.oo. How to design a system which supports people across the artificial divides /budgets

of health and social care.pp. What services and interventions promote earliest intervention and planning for care

(health and social care)?qq. What advice and information needs do people have when defining their wellbeing

outcomes; accessing care and challenging the care /services they are given?rr. Perpetratorsss. Intergenerational abusett. Under-represented groupsuu. Evaluation designvv. Why is research important? Lack of knowledge /understanding in social services/3rd

sector.ww. Research training priorities- quality of data, data collection methods and

outcome measures.xx. Defining the research question.yy. Cascade Wales- Money and resourceszz. Transfer of knowledge (research knowledge) into practiceaaa. Partner organisations knowing what research is.bbb. The practicalities of transferring policies into practice providing support for

people with intellectual disabilities to express their sexualities.ccc. Identify challenges facing carers around sexualities linked to the perception of

others

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ddd. Identify needs and how to meet the needs of carers linked to their effort to meet sexuality need of people with ID.

eee. Qualitative research to gain experiences and perspectives of men who have experiences domestic abuse.

fff. Understanding the needs of men who experience DAggg. Determining the provision of support for men experiencing DA and the

perspectives of these providing the support via frontline and management,hhh. Ready to engage /‘hard to reach’ measurementiii. User centred: in tension with self-assessed measures listening to children.

Attribution of part(s) of outcome to whomjjj. Family as opposed to parent or child, volunteer impactkkk.How to improve research evidence in service delivery and academic -service

communicationlll. How to ensure a research agenda reflects service users’ needs for priorities.mmm. What is the role of social care services in preventing unscheduled health

needs?nnn. Training in critical appraisal skills for social care staff- ‘how to read a

research paper’ooo. Training for care home managers and the value of research evidence- could

also be identified people in local authorities who commission services.ppp. Training for service users and how to research their own conditionqqq. Effects on wellbeing of isolation and chronic healthcare. What works in

addressing this?rrr. How communication (good /poor) with health professionals effects take up of

preventative measures.sss. What is the most effective way the 3rd sector can be involved/G******* to health

and social care research or 3rd sectorttt. Medicine monitoring for long term prescribed medicine.uuu. Medicine management stopping and starting medicinesvvv.Using ADRC to identify the contribution of prescribed medicine in pregnancy and

lactation on children to five years, including social variables e.g. household illnesswww. Wellbeing arena, what is it? How wide/high? Is it health and social care?xxx.Confidence in wider community, co-production, business}engagement, education,

culture changeyyy.The care journey- process, care home sector, dom.care wellbeing- outcome based.zzz. Integrated training and services within the long term sectoraaaa. What are the implications of potential EU policy on the banning of mercury

based amalgam in dental fillings?bbbb. What would be the benefits of implementing dental assessment for stoke

and maxilla facial illness service users.cccc.

2. Pink Paper

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a. How to design a system which supports people across the arterial divider/budgets of health and social care

b. What advice and information needs to people have when defining wellbeing outcomes accessing care and challenging the care/services they are given?

c. How do we ensure that the work we do is fit for purpose- evaluationd. Development of near patient tests for use in the community/nursing/care

homese. Training and supply of IV antibiotics in the community and nursing and care

homesf. Pharmacy providing antibiotics advice, possibly CRB tests- reduce antibiotics

prescribing and also role in educating regarding antibioticsg. Fully identify and costs for all necessary resources (including service users

and research staff) at grant stages.h. Involving service users and patients to identify research priorities as well as

from clinicians/academic ideas.i. Health service contribution to independent living * focus is often on SC

including within WG I.L Frameworkj. Impact on emerging hospital admission on quality of life od residents in care

homesk. Integrating needs assessment and impact assessment, context of service

planning & WBOFG Actl. Money and resources- where to access, how to maximise, how to pool

resources? Increaser funding for soc.care, decrease for health?m. Why is research important? Lack of knowledge and understanding of

research purpose and process, transfer of knowledgen. Defining the research question- outcome measures, data quality, data

collection methodso. What have the characteristics of a receptive service user and how can these

characteristics be identified and nurtured?p. Strategically Wales has engaged with user involvement…. However at

measurement /evidence level the Gold Standard remains RCT. How is this gap breached?

q. Preventative role of social care in preventing unscheduled/emergency health needs

r. Implementation of SSWA e.g. the extent to which it meets stated objectives for co-production

s. Management and experience of dementia in social care and primary care services

t. The role of social functioning in the demand and implementation of social and health care e.g. preventative.

u. Effective dialogue and values driven approaches to using evidence (including directly from older people) in service and workforce development

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v. The commissioning delivery and regulation of long term homecare that promotes wellbeing

w. Integrating third sector community within the planning and delivery of health and social care organisations

x. Investigate the practicalities of transferring policies into practice in providing support for people with ID to express their sexualities. See to understand the needs of men experiencing DA, their perspectives, experiences etc.

y. Develop practical models of joint single point of contact health care commissioning across Wales which match the complex health and social care needs of people across Wales

z. Develop protocols for health and social care information sharing across health and social care sector

aa. Develop evidence based heuristics (rules of thumb) (i.e. protection of personal autonomy for people in the health + care settings)

bb. Effect on wellbeing of isolation and chaotic lifestyles, what works in addressing this

cc. How communication with health professionals effects **** of preventative measures

dd. What is the most effective way the 3rd sector can be involved/contribute to health and social care research?

ee. Involving practitioners and service users and the public in research- thinking outside the social care box

ff. Resilience- relationship between counteracting disease/problems with promoting functioning

gg. What counts as good discharge- preventing readmissionhh. Wellbeing v its wide connotationsii. Medicine monitoring for long term prescribed medicationjj. Using ADRC to identify the contribution of prescribed medicines in

pregnancy lactation of children to 5 years, including social variables e.g. household illness

3. Blue Papera.How do we ensure that the work/research we do is fit for purpose-

evaluation- translated into practice (measuring long term impact)?b.People don’t know what they don’t know- how can we provide advice and

information on health and social care (people don’t divide these 2 things) support earlier and better to enable earlier intervention and better outcomes.

c. More community based services e.g. near patient tests, advice and education rather than only in a hospital/GP setting.

d.Involving practitioners +SVS + patients in setting research agendase.What is good monitoring after discharge- effects of prescriptions long term

implications, promoting good functioning etc.

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f. Promoting wellbeing vis-à-vis reducing costs- best use of data, reducing problems, promoting better coping?

g.Transfer of knowledge e.g. integrated needs and impact assessment in context of service planning and wellbeing Act.

h.Integration of health and social services- who is the best boss? Health or social care? Distribution of resources, Equal allocation?

i. Improving sharing between health and social carej. The role of social functioning in the demand and implementation of social

and health care e.g. the preventative role of social care in preventing unscheduled /emergency health needs

k.The SSWA contains number of key principles linked to outcomes e.g. coproduction and use involvement. In what way can research be used to monitor and capture the extent to which these principles are changing practice and outcomes?

l. What are the characteristics of a receptive/engaged service user and how can these characteristics be identified and nurtured? [applicable in a variety of context]

m. The practicalities of transferring policies and research into practice in providing support for people with intellectual disabilities to express their sexuality.

n.Effective dialogue and values driven approach to using evidence (including research and directly from older people) in health and social care service and workforce development

o.What happens to men in relationship to safeguarding and service provision (e.g. in domestic abuse or day service engagement with GP)

p.How do we develop evidence informed rules of thumb that guide care givers but are also informed by service users and draw on 3rd sector experience.

q.Develop new models of commissioning for health and social care which puts the service user voice in the centre of the frame and include 3rd sector organisations plus H+SC organisations.

r. Develop protocols for H+SC information sharing across the boundaries between H+SC.

4. Yellow papera.The SSWA contains a number of key principles linked to outcomes e.g. co-

production and user involvement. In what ways can research be used to monitor and capture the extent to which these principles are changing practice and outcomes?

b.The role of the social and organisational functioning in the demand and implementation of social and health care.

c. What are the characteristics if a receptive/engaged service user and how can these characteristics be identified and nurtured? [applicable in a variety of contexts]

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d.How do we ensure that the work/research we do is ‘fit for purpose’- in the view of public, patient, carers as well as professional stakeholders in developing the research question, design, dissemination and evaluating effectiveness and long term impact.

e.Public and patient knowledge: ‘People don’t know what they don’t know’. How can we provide advice and information on health and social care? For example, ensuring adequate provision of information for patients, families and carers for effective monitoring after discharge from hospital.

f. Promoting wellbeing vis-à-vis- best use of data, reducing problems, promote better enquiry.

g.How can we make sure that all the voices are heard when we develop evidence- informed ‘rules of thumb’?

h.Develop new models of commissioning for H+SC which put the service user voice in the centre of the frame and includes 3rd sector representation.

i. Develop protocols for meaningful information sharing across the boundaries between H+SC.

j. How do we ensure that the work/research we do is fit for purpose –in the view of public, patients, carers as well as professional stakeholders in developing the research question, design, dissemination and evaluating effectiveness and long term impact?

k.Public and patient knowledge: ‘People don’t know what they don’t know’. How can we provide advice and information on health and social care? For example, ensuring adequate provision of information for patients, families and carers for effective monitoring after discharge from hospital.

l. Promoting wellbeing via-a-vis reducing costs- better use of data, reducing problems, promoting better coping etc.?

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Appendix 3 Identified themes from the Results of consensus workshop rounds 1-5

Theme: ‘Research Awareness, Engagement and capacity building’ How to ensure a research agenda reflects service users’ needs for priorities. Fully identify and cost for all necessary resources (including research staff) at

grant stages. Encourage and sign post people to free to access training from health and care

research wales support centre. Collaboration between all sectors/ investigators and support infrastructures. Engagement /deliberation with SVS- in their diversity e.g. children, older people,

people with intellectual disabilities. Selling research to LAs- how to engage Funding for high quality research bids. Selling research to stakeholders such as LAs and engaging marketing – need

support from these outside social care (retail/consumer analogy) Support for joint research/practice posts- to enable workforce to address

challenges in everyday practice through an evidence base. Funding for high quality research bids for developing high quality Wales. Dialogue and values driven approached to evidence in ….. Under-represented groups Evaluation design Why is research important? Lack of knowledge /understanding in social

services/3rd sector. Research training priorities- quality of data, data collection methods and

outcome measures. Defining the research question. Cascade Wales- Money and resources Transfer of knowledge (research knowledge) into practice Partner organisations knowing what research is. How to improve research evidence in service delivery and academic -service

communication What is the most effective way the 3rd sector can be involved/G******* to

health and social care research or 3rd sector

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Fig.1 Word cloud from round 1 of workshop event.


Training for service users and how to research their own condition Training in critical appraisal skills for social care staff- ‘how to read a research

paper’

Theme: Long term Care (including care homes and dom. Care), Care homes- Impacts of good/poor admission/discharge to/from hospital

to/from care home. Impacts of emergency hospital admission on quality of life of residents in care

homes Impacts of community involvement in care homes on qol of res of care homes CCW- primary care support for nursing and care home provision with further

extension to home care services. Development of near patient tests for use in the community/nursing care homes Training and supply of IV antibiotics in the community and nursing care homes. Training for care home managers and the value of research evidence- could also

be identified people in local authorities who commission services.

Theme: Integration Integrated training and services within the long term sector Integrated agenda, community, resilience-m +p health, what counts as

good discharge, engagement with service users to include their voice. How can 3rd sector service provision be fully integrated with health &

social care statutory services? Integrated care pathways- what works? How to design a system which supports people across the artificial

divides /budgets of health and social care.

Theme: Acts, policy and their impact What are the implications of potential EU policy on the banning of mercury

based amalgam in dental fillings? Health and service contribution to independent living. * focus is often on social

care including within WG independent living framework. Age Cymru- Implementation of SSWA

Theme: Wellbeing Wellbeing arena, what is it? How wide/high? Is it health and social care? Impact of employment on health and social care and wellbeing. Could look at

employer awareness of the contribution they make to health, social care & WB. The commissioning, delivery and regulations of long term home care that

promotes wellbeing. More effectively supporting of inter dependent caring relationships. What advice and information needs do people have when defining their

wellbeing outcomes; accessing care and challenging the care /services they are given?

15


The practicalities of transferring policies into practice providing support for people with intellectual disabilities to express their sexualities.

Identify challenges facing carers around sexualities linked to the perception of others

Identify needs and how to meet the needs of carers linked to their effort to meet sexuality need of people with ID.

Effects on wellbeing of isolation and chronic healthcare. What works in addressing this?

Theme: Commissioning, Organisation and workforce, Research for manpower needs of new patterns of health and social care at

qualified and unqualified levels. Research models of commissioning for health and social care which aims to

meet the needs of people with complex health and social care needs, so that new and innovative models of care can be developed without health and social care commissioners being in competition or conflict.

Research for effective new types of health and social care collaboration. E.g. joint reablement schemes for older people.

Management of dementia in social care and primary care services. Shift to preventative services Advocacy in person-centred care Involving older people in the design and planning of services- how? What

happens when views cannot be realised/conflict with policy agenda? What services and interventions promote earliest intervention and planning for

care (health and social care)? The care journey- process, care home sector, dom.care wellbeing- outcome

based. Sharing and accessing information Prevention of readmission after discharge/ what counts as ‘good’ discharge. What is the role of social care services in preventing unscheduled health needs? Confidence in wider community, co-production, business}engagement,

education, culture change How communication (good /poor) with health professionals effects take up of

preventative measures.

Theme: Resilience Function and disease- balancing – resilience Reducing social isolation Supporting family resilience Social function in demand for social and health care. Family as opposed to parent or child, volunteer impact

Theme: Medicines Medicine monitoring for long term prescribed medicine.

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Medicine management stopping and starting medicines Using ADRC to identify the contribution of prescribed medicine in pregnancy and

lactation on children to five years, including social variables e.g. household illness

Pharmacy –providing AB advice, poss CRP tests-reduce antibiotic prescribing and also role in educating regarding antibiotics.

Theme: Assessment and outcomes What would be the benefits of implementing dental assessment for stoke and

maxilla facial illness service users. Integrating needs assessment and Impact assessment. In context of Service

Planning and WOFG Act. Ready to engage /‘hard to reach’ measurement User centred: in tension with self-assessed measures listening to children.

Attribution of part(s) of outcome to whom

Theme: Abuse Understanding the needs of men who experience DA Determining the provision of support for men experiencing DA and the

perspectives of these providing the support via frontline and management, Perpetrators Intergenerational abuse Qualitative research to gain experiences and perspectives of men who have

experiences domestic abuse.

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