presentation1
DESCRIPTION
MS PresentationTRANSCRIPT
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Welcome
Art and Science
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Awareness and Hope
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Walk MS in SeattleApril 3, 2011 Walk MS in
Snohomish CountyApril 2, 2011
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400,000 and 2.5 million
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Virus or Bacteria?Genetics?Geography?
“Is it the trees?”
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The immune system: Good Guys vs. Bad GuysThe Brain, spinal cord: “Nerve information Super highway”: Electrical wiringMisdirected self-defense: Demyelination
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Let’s talk about symptoms
Visionmuscle strengthTouchPainBladderBalance and coordinationFatigueCognitivemood
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Relapsing-remitting Secondary progressive
Primary progressive Relapsing progressive
Goal: Have more choices
Goal: Delay the progression
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OnceSlow
Reduce
Active
Positive MRI
After your 1st flare-up
Reduces the risk of another by 44%
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Take Action for Today and Tomorrow
Once a week injection
After 2 years, our patients decreased progression by 37%
After 5 years: 90% of our patients were still VERY
active
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Very few negative side effects
After 10 years: 8 out of 10 patients
were less than 3.0 on the
EDSS scale(Expanded Disability Status
Scale)
The most accepted medication
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Fifty percent of people with relapsing-remitting MS will develop secondary progressive MS within 10 years of their initial diagnosis
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What We’ll Accomplish Together
What sets Avonex apart? A Very personal approachHow to administerYour questions and concernsNutrition, exercise and ideasUnderstanding side effects and your “worry” list Collaboration with your doctor
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Prefilled from the refrigerator Correct name and expiration date Room temperature 30 minutes
heat source warm the syringe
Your “Once-a-Week” Injection
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Frozen Peas
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Like a Pencil
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Possible Side Effects
Flu-ish Symptoms call me
or your doctor
Redness, swelling, itching
www.avonex.com
After 8 years, only 2% stopped because of side effects
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In Summary Goal: Have more choices and
to delay the progression: Choosing AvonexOnce, Slow, Reduce, ActiveAfter 2 years, decreased progression by 37%After 5 years: 90% still VERY active
After 10 years: less than 3.0 on the EDSS scaleVery few side effects: Your personal RN (emotional, physical and financial concerns)50% of relapsing-remitting will develop secondary progressive within 10 years
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Additional Support
www.avonex.com New Self-Help Groups:
Lynnwood and Seattle 1-800-344-4867
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Questions? Ideas? Thoughts?
Art and Science
Nurse Jen425. 281. 2404
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