presentation patient association, chapters, self support groups, programmes, klara zalatnai 2
TRANSCRIPT
Patient association, chapters, self support groups, programs
Zalatnai Klara - HOPA
EPF Autumn Regional Advocacy Seminar for Patient LeadersBudapest, Hungary 25-26-2 October 2010
Introduction of HOPA
• Based in Budapest • Set up in 1998 • NGO non profit umbrella
organization• 25 chapters• More than 2000 patients
across the country
• Vision:Vision: • Decreasing number of
fragility fractures• Improved quality of life
of the patients
http://www.obme.hu
Key issues
• Health education programs, campaigns about
• Prevention• Early detection of
osteoporosis• Progression of the disease
could be stopped• Patients’ involvement
• In decision making process• Lobbying• Capacity building
Major events of HOPA
• WOD Program• Osteoporosis Civilian Forum• Joint program with the Rehabilitation Section of Osteoporosis
Medical Society
Major programs of HOPA
• Joint program with the Rehabilitation Section of Osteoporosis Medical Society
• April 2009• Funny Role-playing ….
Patient Education and Counseling
• The art of the Therapy
Major programs of HOPA
• Osteoporosis Civilian Forum• May 2110
• It happened to me - what about the quality of life?
Major programs of HOPA
• WOD Program• October 20, 2110
• Don’t miss the signs of breaking spine
It is never too late - Extend
/
http://www.extend.org.uk
Sketches of kids