powerpoint presentation advocacy_group_[1]
TRANSCRIPT
WE ADVOCATE FOR
THE FAMILIES WHO HAVE
CHILDREN WITH CHRONIC ILLNESSES
Advocacy Group Members: Dadri Thomas, Junghae Song, Kasey Reyes,
Mandisa Guishard-Meade, Sophia Hagley and Vesna Adamova
WHY WE CHOSE THIS TOPIC?
The lack of information
The lack of awareness
The lack of support program
Limited knowledge
BACKGROUND INFORMATION ABOUT THE TOPIC
What is Chronic Disease?
A long – lasting condition
Affects the population worldwide
70% of all death in North America
(1.7 million each year)
http://cmcd.sph.umich.edu www.ellenrixford.com
RESEARCH PLAN
What are the things that we want to know about the topic?
Funding and Financial Problems for the Families with Children who have Chronic Illnesses
Other difficulties the Families going through
Where and how are we going to find information to answer the questions and support our advocacy position?
Survey
Interview and ECE
Interview a parent who have a child with Chronic Illness
Interview a friend
Online resources
WHAT DID WE LEARN FROM THE SURVEY
96.51% of 85 people agreed that the support and funding
services are very important for the Families who have
Children with Chronic Illness
76.92% of 78 people believe there are not enough
support and funding services available for the Families
who have Children with Chronic Illness
76.24% of 84 people said they have a connection to a
family of a child with a chronic illness or they know
someone who does.
Do you know?
What percent of children in North America have a
chronic illness?
0-10%
10-20%
20-40%
50%
Name 3 organizations that provides services for the
families who have children with chronic illness.
INTERVIEW A FRIEND
- ASTHMA
When and how did you know?
SuJi had coughing for 3 and 4 weeks
How is your feeling?
Depressed and bad
How do you manage your situation?
Providing activities that SuJi wants to learn
STAKEHOLDERS
Sick Kids Hospital
Ronald McDonald House
CCASA (Community Care Access Centre)
Starlight Children’s Foundation Canada Reference: www.starlightcanada.org/
“BRINGING SMILES TO THE FACES OF
CHILDREN WITH SERIOUS ILLNESS, AND RELIEF
INTO THE HEARTS OF THEIR WORRIED
FAMILIES” (STARLIGHT MATTERS)
STARLIGHT PROGRAMS
OUT-OF-HOSPITAL PROGRAMS
Starlight Escapes (parties, picnics, sport events)
Starlight Day Brighteners (concert, museum)
Starlight Wishes (unique once-in-a-lifetime experience) Reference: Starlight Out-of-Hospital Programs
IN-HOSPITAL PROGRAMS
Starlight Fun Kits (books, toys, games, puzzles, crafts)
Starlight Fun Centre (mobile entertainment)
Starlight Fun Rooms (to relax and interact)
Starlight Tablet Program (using technology) Reference: Starlight In-Hospital Programs
WHO CAN QUALIFY FOR THE STARLIGHT
PROGRAMS; HOW MUCH THEY COST?
Families who have Children with a serious, chronic or
life threatening illness from newborn through to age
The first step is to become a Starlight Family
Starlight supports the whole family
Programs are free
ACTION PLAN
Facebook Page
Petition
Letter Toronto Star
Bake Sale
Volunteering
Donation to make her wish come true
769 members
Knowledgeable information
Videos inspiring from the experiences of the
Families who have Children with Chronic Illness
Inspirational quotes
Pictures of the Events (such as Bake Sale
Fundraiser and Starlight Gala Event)
INFORMATION, VIDEOS, PICTURES, QUOTES AND
MORE
LETTER TO TORONTO STAR
“We are writing to you on behalf of those Children and
their Families affected by Chronic Illnesses. We are Early
Childhood Education Students from Centennial College
who are learning to be successful advocates for important
issues and spread awareness throughout our community.
We chose to advocate for Families who have Children with
Chronic Illness because we found that families are
struggling and going through hard time to find appropriate
resources and funding…” (Centennial College Advocacy
Group ).
BAKE SALE (ON MARCH 25TH, 2014)
BAKE SALE (DOUGHNUTS, CUPCAKES, COOKIES,
CANDY BAGS, POPCORN AND MORE)
VOLUNTEERING AT STARLIGHT
STARLIGHT FUNDRAISING EVENT
STARLIGHT FUNDRAISING EVENT
(SILENT AUCTION)
PETITION
Petition to the Public Health Agency
Support the Families with Children who have Chronic
Illness with appropriate resources
Our goal is to get 100 signatures
Once we have 100 supporters, the petition will get sent
directly to the head office of Public Health Agency of
Canada
Now we have 60 supporters
WE NEED YOUR SUPPORT TO STAND UP FOR
THE CHILDREN AND THEIR FAMILIES
PETITION
WE NEED YOUR SUPPORT
PLEASE SIGN UP OUR PETITION TO THE PUBLIC
HEALTH AGENCY
WE ALL TOGETHER CAN MAKE A DIFFERENCE IN
LIVES OF CHILDREN WHO HAVE CHRONIC
ILLNESSES AND THEIR FAMILIES
THANK YOU